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i'm dying and I am 19

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Anonymous User

Posted by Anonymous
on June 15th, 2009 at 3:35 AM

I have Celiac Disease and even though I know it's killing me I still eat and use products containing wheat and flour...I don't know how to stop doing this to myself and apparently death isn't good enough reason for me to quit : /  I have also recently been diagnosed with cancer and had surgery to remove it and my appendix where it was found. 

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  1. GlutenFreeMom - 46-50 years old

    Posted by GlutenFreeMom on July 24th, 2009 at 12:19 PM

    Please don't get so discouraged. My own experience with Celiac is that for some insane reason I craved gluten. I look back at the things I used to eat and check the labels and realize that I had been suffering a gluten addiction.

    At first I only went wheat free, but I still had terrible cravings. It wasn't until after I finally went totally gluten free, I found that my cravings lessened and then disappeared altogether after a few weeks. I also experienced positive changes in my health (physically, mentally and emotionally) as I purged gluten out of my diet.

    Going gluten free is not an easy process, but one advantage you have over my experience is that times have changed. If there is not a support group through your doctor or hospital, you can check out the many on-line sources that are now available.

    There are hundreds of gluten free foods available today, that weren't only a year ago. The quality and taste has improved ten-fold.
    Some grocery stores now have aisles labeled "gluten free," and there is always the health food stores. Some restaurants are also climbing on board and offer gluten free items.

    I was an avid baker and cook (my favorites Christmas cookies, paczki (Polish donuts),
    pierogi (Polish ravioli) before I found out I was Celiac and I still am, I just find gluten free recipes or make gluten free changes to my own recipes.

    The web is filled with gluten free info-from support groups, recipes, food products and personal stories. There are also many books on the subject.

    If you live at home, I hope your family knows the importance of a gluten free diet. I know it can feel embarassing when trying to order gluten free in a restaurant. I have found that most restaurants have become aware of gluten intolerance and food allergies and that they don't even blink an eye at the mention of it. The college my daughter goes to also offers gluten free meals.

    Please give the gluten free diet a fair try. There are gluten free foods that you can substitute for the gluten items. You will experience intense cravings at first, but they will go away.

    You're young, and I know you can get your health and life back by going gluten free, even if it means asking others for help.

    Reply | 2dislike | Flag

  2. Anonymous

    Reply by An EP User May 24th, 2015 at 2:34AM

  3. FreedomRiderRon - 56-60 years old - male

    Posted by FreedomRiderRon on September 26th, 2009 at 8:11 PM

    Please, please, please get help. You are heading for a disaster. There are a great number of celiac related health problems when one doesn't adhere to the gluten free diet.
    I speak from experience. I was diagnosed when I was 5 years old, I'm 60 now. Back then, Celiac was a very little known disease and the cause of it was still unproven. There were no specific gluten free food products available either. My mother had a big struggle to find and/or make gluten free food. It wasn't until about 1980 when gluten free food started trickling onto the market. Now it is quite plentiful, although somewhat more costly, but one cannot put a price on their health.
    As time went on I drifted away from the gluten free diet. Although I suffered with many effects, I remained off the diet for many years. All the while I was doing a lot of serious damage to my body. I have neuropathy, a skin condition, osteo arthritis, I lost all my teeth, swelling of the ankles/feet and I've had 2 bouts with colon cancer which I almost did not survive.
    Luckily, I did survive and, although I now have to deal with a colostomy appliance and have in home care, I currently enjoy relatively good health, I have a renewed appreciation for the people in my life and for life itself. I have done many things I always said I would do "one of these days", including become the Art Director for our local chapter (Manitoba Chapter) Newsletter (Celi-Yak) of the Canadian Celiac Association. Please visit our website for lots of info: There are many such groups and I encourage you to find a similar group as this in your local, they are able to provide guidance and help you to achieve a healthy, happy gluten free life.
    Good luck

    Reply | 1dislike | Flag

  4. Anonymous

    Reply by An EP User May 24th, 2015 at 2:34AM

Experience Project is a community based on authenticity, support, and respect. EP encourages you to post with these values in mind.

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