I Have Hidradenitis Suppurativa Stories of Experiences

I have not been diagnosed with hs but im pretty sure that its what I have I have had these cyst/boil things for about six or seven years now it started off just on my inner thighs and then moved to underneath my boobs and armpits and...

I have been living with HS since I was 12 years old. Through the years, it has only become worse. Between living with it and being constantly misdiagnosed, I have lived in this hellish limbo. At 22, I decided to join the Air Force. The...

I was diagnosed with hs in jan 2011, since then i have had lots of flare ups, and surgery. This was the most painful, humiliating period of my life...( my 17 year old son had to literally lift me on and off the toilet!). Since the...

Senna leaf tea.. i know it sounds like yet another stupid so called treatment..... i know because ive tried so many... but this is it guys... i came across this by chance... and im so excited to spread the word and read about your...

hidradenitis is completely relatedto our digestive system.. maybe something were eating or producing that our body doesnt like

So this very strong laxative... when used daily... will completely put you into remission

I cant say as to...

I have this theory that HS has not much to do with bacteria at all.... but as with all open wounds you want to keep the area clean so HIBICLENS as well as an EXFOLIATING SUGAR SCRUB does the trick.... and just stay away from deoderant...

hi i am 19 and i have had HS since i was 16 in high school. it made my high school experince a living hell to the point where i had to become home schooled. i have been on soooo mant different antibiotics that my body probably just...

It is during our darkest moments that we must focus to see the light;
Not on the pain but the victory in finding a cure. ##stayingprayedup

I've been in bed for almost a week now but I feel more inspired than ever. Im glad I found this website and Im even more glad to find people who understand my pain and frustration. Writing and sharing my feelings has become very...

LIFE brings alot of trials and tribulations that seem unbearable at the time. But you have to keep encouraging yourself, that you can do ALL things through Christ that strengthens you. One thing I have learn is, you can't give up! The...

Guys I'm goin to experiment myself and see what I come a cross I see many in the same pain I dealing with but it doesnt stop here guys. It is a lil embarrassing but other pple have the same amount of stress were all goin through its jus...

I am 31 years old and I suffer with Hidradenitis Suppurativa. It's funny that now I finally have a name for it. Ive suffered for what I thought was just a boil for 14 years now. Everytime I went to the doctor or local MEA clinic, I...

Hello fellow HS members I've been suffering from this condition for over 10years and Im only 26 I wasn't diagnosed till late 2012 at first it would bebone undet the arm randomly now I would have a flare up every 3 says or so now it's...

After several years of suffering, finally receiving a diagnosis, and many failed surgeries and procedures, my life had very little meaning. The pain was unbearable and consumed every bit of happiness I had in my life. My story is...

I recently went to a new doctor and she prescribed me Clindamycin HCL 300 mg. I take one every day and I have also began using Hibiclens. I purchased a gallon jug and use it every time I bathe/shower. The combinations seems to be...

I have had HS for 15 years and nothing has worked for me. I am looking for a surgeon and want to know if a dermatological surgeon is better then a general surgeon? my insurance doesn't pay for dermatology. I am in a lot of pain and it...

I'm 15 and I have HS. It's horrible and I have in my inner thigh area. Iv had it since I hit puberty; It's pretty bad and the scars are so ugly! I really feel for anyone who's got it. I'm really worried about when I get older and how my...

Im starting my second week of enbrel...
let me just say this drug is a MIRACLE for anyone with HS!
before i got on it i could barely walk... they were constantly draining and everytime one would start to heal it would just fill back...

Hi. My name is Catherine and I have been suffering with HS for over 23 years. They first started out as red bumps in the vaginal area. After repeated infections my doctor surgically removed the tissue. That didn't work. The lesions...

I am 54 and was diagnosed about 10 years ago. I am currently suffering a severe axillary infection. I am currently unemployed so I have no insurance in which to go to the doctor. I've been to many doctors and specialist and hear the...