I Have Holt-oram Syndrome Stories of Experiences

Birdie came unexpected being told you are in menopause oops not. But what a blessing she is she is my little life saver had she not come we would of not known about my Breast Cancer so her being born with HOS has never been a problem...

Hi, i'm Richard

I'm 27, and have Holt Oram Syndrome, I have absent ulna's in both arms, and reconstructed thumbs which my index fingers were used, I live in Wales, and i'm new on here please come and say hi :-)

I created this page because I am 34yr old women who has only recently was given the name to something I have lived with my hole life. Well during this time I have been doing alot of thinking and it has gotten me to want to know more...

I'm 26 and have Holt Oram syndrome, a few months ago I decided to set up a support group as I couldn't find one to join.  The group is at: http://holt-oram.ning.com/ please join if you have HOS, there are 17 members at the...

Hi my name is Amy and I am 33 years old and mother of 3. I was diagnosed with HOS 9 years ago when i was pregnant with my twins. Until that point I had never heard of it and had no idea why I was different from everyone else. I had an...

I was born with Holt Oram Syndrome. It's something that's going to be with me my whole life. Not many people know what Holt Oram Syndrome so I often find myself explaining what it is. I have looked around for sites on the internet to...