I Have Thygeson's Superficial Punctate Keratitis Stories of Experiences

Hello! I'm Parker and I have had thygesons since the age of 7. I'm 14 now and it has been a stressful ride these pass years. The doctors have put me on steroids and that's the only thing that seems to help but I can't stay on them...

Hello! I'm Alix. I'm 23 and the last 4 weeks are the first time I have EVER had trouble with my eyes.

I just found out yesterday what had been causing me weeks of excruciating eye pain. I had never heard of Thygeson's until the...

Wow so glad to have found you. I was diagnosed last week. I have been dealing with it for about 3 weeks and I am concerned that I've been misdiagnosed with TSPK. The steroids did nothing for me except when I had to wake up at night...

Hello everyone!
I've been reading postings concerning TSPK for several months and finally decided to post my own.
In September 2012 I had a conjunctivites in my right eye, was treated with Tobradex(anti-bacterial&steroids...

Does the pain/ache ever dissipate once you get this disease? Or will my eyes hurt forever more? They don't look like hell anymore but the ache is so constant. What do each of you do for pain management? Gawd, I have so many questions! I...

Has anyone tried this and had any luck. I have been on restasis four times a day but I still always got outbreaks. I gave up using those drops and now only use a steriod when I feel an outbreak coming (twice a day for a day or two). I...

Hi. My name is Kalita and I'm from Melbourne Australia. I was diagnosed with thygesons "whatever u call it" in January of this year. I had never heard of this disease and I honestly thought that I was having eye problems because I...

Hi im Gloria i am 23 and live in WA Australia. I have only recently been diagnosed with TSPK almost six months ago i think. I went to the opthamologist because i couldnt even open my eyes, he said the problem had gotten so bad as i was...

Hi my name is Rebecca, When i was 4 i was diagnosed with a corneal disease.( thygeson's keratitis) i am now 16. It has been the worst thing i have ever dealt with. I've tried several different steroids and anti-viral medicines and...

I found out accidentally that there is a name for this "virus". I definitely have TSPK and its nice to know there are data out there. I am convinced it is stress related. My version of it results in eye pain and lots of tearing-up...

Hi everyone.
I battled with outbreaks of horrendous eye discomfort, photofobia, tearing etc etc for a number of years on and off from the age of 18. I got told I had various viral infections but no-one seemed to really know what was...

I have been dealing with Thygesons for 11 years it is so painful and my vision is going now from all the steroid use! I wish there was a cure but there isn't I have tried everything and don't know what else I can do but try to deal with...

Hello, I was only diagnosed about 3 months ago, it took over a year for someone to come with the proper diagnostic. He prescribed me drops to put in each eye (one is slightly worse than the other) 4 times a day. It immediately started...

Does any one know if there are any specialists for TSPK in the UK and has any research been published ?
I've had this condition for over 20 years now. I can go for years without an out break, but it always returns. I have had enough and...

I first developed symptoms a year after recovering from Lyme Disease. I had developed Lyme and it went untreated for 4 months. A three day hospital stay and some antibiotics later, I recovered, except that my eye doctor noticed that I...

I have suffered from TSPK since a child, although the symptoms were always mild as s child...sensitivity to light...I remember having to sit in the shade on holiday as the glare from the pool was too much to play with the other children...

Hi everyone,

I have some good news that I hope might help, but first a little background information. I know that this condition can have some characteristics that are different for each individual and that some of you have found...

i am a 34 year old female, originally from the UK, and have suffered with TSPK since I was 13. I was only diagnosed with TSPK last year, here in the States and my eye doctor seemed to think that my flares were allergy related. After a...

It has been very useful reading the posts on Thygeson's so I thought I'd share my experience of living with the condition in the hope that I might be able to help other people who are suffering with it aswell.

I have had Thygeson's for...

Hi, I'm in my fifties and have had TSPK for a couple of years. My doctor (Doctor A)  initially prescribed steroids which helped wonderfully. Then I developed glaucoma; I don't know if the two are related, but it worries me. Anyway, he...