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I Addisons Disease

I have Addison's Disease 22 People

    My Daily Struggles...

    I was diagnosed with Addison's disease 13 yrs ago. At first it was difficult and I was sick a lot until the drs found the right mix of mede. I take hydrocortisone and florinef. I have been told I need to reduce my hydrocortisone (25 mg daily) as it will cause me issues in the...
    hopingforabetterlife hopingforabetterlife 41-45 2 Responses Jul 10, 2012

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    Battling To Get Diagnosis For Possible Addison's

    Hi there I live in a third world country in Africa and am really battling. My questions are: 1) If your normal ACTH and Cortisol blood tests are normal, does that mean that a ACTH stimulation test will turn up negative for Addison's as well? 2) I am on cortisone treatment for...
    Simone1974 Simone1974 36-40, F Oct 18, 2012

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    21 yrs of screaming the place down with pain,

    unbelievable fatigue, no diagnosis for 10 yrs, there was no internet back then. When I finally got diagnosed with fms I was put on drugs but am chemically sensitive so ended up unable to move for a week each time. I didn't believe the diagnosis because none of the remedies...
    tubbypurple tubbypurple 51-55, F 2 Responses Jun 26

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    Addisons. Polyglandular Autoimmune Syndrome Type 1

    I have polyglandular autoimmune syndrome type 1, my condition is very rare, so i do most ofthe researching by myself, i was diagnosed in yr 6 and am almost in year 11, it has had me thinking for the past few weeks and i really just need an insight from someone who has this. My...
    sheakyshea sheakyshea 16-17, F 1 Response Nov 26, 2013

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    The Path Of Addison's Disease

    I was 27 years old, it was August, 1978, and I had just gone through a complete body cramp that was so painful it cut off my breathing. I was so weak from not being able to eat and was looking out the window. "I'm going to die". It was a simple statement of fact. I was not scared...
    ssfrisky ssfrisky 61-65 Sep 10, 2012

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    Had Enough Of This Disease

    Been diagnosed with addisons 2 yr ago since Christmas been struggling with skin irritation sensitivity anyone else have this
    Tinagriffiths Tinagriffiths 31-35, F Feb 10, 2013

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    Addison Disease

    i was diagnosed with Addison disease when i was fourteen years old i began not feeling well developed a very dark tan and started to loose my appetite. at first my family and i thought nothing of it and doctors would tell me i don't have anything wrong with me. then it started to...
    draven1000 draven1000 22-25 2 Responses Sep 6, 2012

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    Related Experiences

    Hello everyone, I have had to find a place to vent my frustrations and hope that putting my experience into words will help me on my current journey. The lack of support from...
    linrob14 linrob14 46-50, F Aug 4

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    Hello everyone, I have had to find a place to vent my frustrations and hope that putting my experience into words will help me on my current journey. The lack of support from...
    linrob14 linrob14 46-50, F Aug 4

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    I know what you're going through and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to...
    smgreen1703 smgreen1703 18-21, F 6 days ago

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    I was diagnosed about 3 years ago. Been sick for at least 5 years, probably longer. I have tried many meds and still can't get my disease out of an active state. Not sure what...
    Enaed Enaed 46-50, F 1 day ago

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    After a childhood filled with severe pain, day after day in bed..... countless visits to Hospitals...Mri scans...specialist appointments which amounted to nothing, no one could pin...
    thedayyouwentaway thedayyouwentaway 36-40, M 2 Responses Jul 31

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    More truthfully, my 4 year old has Wolman Disease. Does anyone out there have this? Live with this? Have a child that is healthy and living a happy life despite this? I'd love...
    AquaMama AquaMama 31-35, F Aug 4

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    I'm not sure if I'm even reaching the right support group. I'm 32 years old I have just been diagnosed with Mixed connective tissue disease a few months ago, I have had 3 grand mal...
    monim23 monim23 31-35, F Aug 11

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    i started having panic and anxiety attacks when i was 9. people thought i was being abused i wasnt and didnt know what anxiety was i was 9! it wasnt until i was 23 that a keen...
    ericseamless ericseamless 31-35, M 1 Response Aug 11

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    I got diagnosed about a year ago and everyone's always thought I was always scared do to my bulging eyes turns out I have Graves' disease
    germany100 germany100 18-21, F Aug 12

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    I have polycystic kidney disease. The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with...
    aneetasree aneetasree 31-35, F Aug 22

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    Yesterday, something happened to me that scared the crap out of me. For more than ten years, I have had Ménière's disease. I was shopping in Target when I was suddenly hit with...
    scottdavidsmith scottdavidsmith 46-50, M 1 Response Aug 22

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    I'm 29 y.o. now. Living in eastern Europe. For 8 year I'm aware that I have Lyme Disease. 8 years ago my neurological (only - no joint pain) blew up my life. I was a second college...
    someSadMan someSadMan 26-30, M 1 Response 2 days ago

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    I had this patch of tanned skin on my stomach and my arm-pits in large blobs across my body for over a year. It was very confidence ruining, and I was scared of it spreading on to...
    xSundip xSundip 18-21, M Aug 6

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    I was told I had keinbock's about 12 yrs. ago had surgery to shorten bone in my right arm. That helped with pain for about two yrs. so I stayed working but since then pain has...
    icequeen029 icequeen029 31-35, F Aug 11

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    I was born with a small right ventricle that doesn't pump so now I am living with half a heart! Stroke survivor, open heart surgery surviver, 3 major heart surgery survivor.
    Klcataldo Klcataldo 18-21, F 1 Response Aug 12

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    Last year in August I got extremely sick. So sick that I passed out in a grocery store and ended up in the hospital. They said I was just dehydrated. Gave me some fluids and sent...
    connorelaine connorelaine 18-21, F Aug 19

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    Recently I have found out that I have got a STD, which I have apparently had for a while now. I didn't realize that the pains I was having and had for a while could even be...
    littlewozit18 littlewozit18 18-21, F a week ago

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    Can someone here explain to me the kind of pain and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking...
    sugarcakes143 sugarcakes143 18-21, F 3 Responses 2 days ago

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    I have gitelmans syndrome. Ya it's weird... Anyone else?
    Keekeem Keekeem 31-35, F 2 days ago

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    I have had bloating and gas, alternating with constipation and hemorrhoids, and was told I had irritable bowel syndrome, for several years now. in 2006, I went through some very...
    gastricwoman gastricwoman 51-55 11 hrs ago

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    I have struggled with my husband's disease for at least 25 years of the 36 we've been married. I never realized that I married into this disease, as I was always the kind of...
    Stndingrl Stndingrl 56-60, F 1 Response Aug 14

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    Top Cosmetic Dentistry London. While traditional dentistry targets oral hygiene and preventing, diagnosing and treating oral disease, cosmetic dentistry centers on improving the...
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    I have seen people run away from mentally ill.they are rude and also make fun of them.Instead of supporting them they do exact opposite.People who suffer from depression,bipolar...
    dwinewen dwinewen 16-17, F 2 Responses 13 hrs ago

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    We heard this saying a milliin times." Cherish yr love ones before its too late". I love her but I was too engaged in my work hoping for a better future for both of us. Too little...
    Dealalone99 Dealalone99 41-45, M 13 hrs ago

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    Within the first week of our relationship my ex-boyfriend said to me "if you're going to be with me you aren't going to have time for anyone but me." This was a red flag to me, but...
    amazingcuzitis amazingcuzitis 18-21, F 1 Response 19 mins ago