I Am a Brain Tumor Survivor

Personal Stories, Advice, and Support 121 People

    I Was Diagnosed With A Brain Tumour When I Was 25

    My name is Claire and the Founder of Aunty M Brain Tumours 2008: I was diagnosed with a rare brain tumour called an intraventricular meningioma when I was 25. During my own recovery I then wanted my experiences to be beneficial to others. I wrote a book called A Brain Tumour's...
    meningiomashelp2011 meningiomashelp2011
    May 13, 2013

    My 13 Year Old Son

    In April of this year my son who is 13 years old had a seizure while playing soccer.  Three weeks later he was in the operating theatre removing a tumor from the left side of the brain.  It was really a  terrible time for the family. We prayed day and night. ...
    mmricketts mmricketts
    3 Responses Dec 8, 2010

    18 And Fighting A Brain Tumour.

    My name is Nikita and I am 18 years old. On February 23rd 2012 I was diagnosed with a benign extensive right thalamic/intraventricular tumour and after the removal the histology comfirmed that it was a Central Neurocytoma. After 2 and a half weeks of experiencing blinding...
    NikitaB936 NikitaB936
    22-25, F
    3 Responses Jun 28, 2012

    Hi all - hugs to those still struggling with

    this. I was born in 1968, had an absence at school around 1974, and headaches in 1981 which lead to the discovery of a brain tumour. I had a shunt surgically inserted to drain away fluid and prevent hydrocephalus. The tumour was successfully treated by radiotherapy which...
    Berek2000 Berek2000
    46-50, M
    May 5, 2014

    I Am New

    Ok with my brain tumor and the radio and chemotherapy.I came a diabetic.I have a thyroid problem.And im high when i talk been like that from 3 to now when i am 19.And i walk on my toes.If you want to talk all be friends then cool.Oh i am a little blind too lol.
    x2011man x2011man
    18-21, M
    1 Response Jun 9, 2011

    Seeing Life Through Another's Eyes ...

    and I love this life. Yes, I was for almost 1 year in the hospital, nobody knew if I would survived and I will never be 100% healthy, but I thank God that I am still here.
    deleted deleted
    13 Responses Sep 11, 2008

    I Am A Survivor!!

    In 2005 (senior year in h.s.) I was constantly losing weight to the point I was 93 lbs. For a 5'10" woman that is not very good. That summer I had a grand mal seiszure while in driving school. If I had it 15 minutes before while I was driving, I would have been killed. I...
    silvertwist23 silvertwist23
    3 Responses Oct 29, 2010

    God Is Good All The Time, All The Time God Is Good

    My mother had a brain tumor. 2 doctors both from different hospital told me my mom had 6 months to live and if i decided to have her operated she'll have additional 6 months to live and the operation is 50-50, since she is 60 years old the risk is higher. Both doctors told me...
    luiscp luiscp
    1 Response Feb 10, 2013

    Six Weeks To Live

    When discovered to have a massive tumor at the base of my brain I was told I had less that six weeks to live.  On the day the tumor was discovered I promised God I would tell the world of his miracles if I survived.  I've been trying to live up to that promise ...
    rlburroughs rlburroughs
    66-70, M
    3 Responses Nov 3, 2009

    Life Is Full Of Suprises

    Hi my name is joy 42 years old from philippines, three times undergone brain surgery (2006,2007 and 2010).im just praying will not reoccur so my life will be fined.Eventhough i lost my left hearing,left eyes ang unable to walk normal needs cane l.im just thankful im alive...
    joydiliag joydiliag
    41-45, M
    4 Responses Jan 18, 2013

    I Am a Brain Tumor Survivor...

    My name is DeAnna and I am also a brain tumor survivor. I am 35 years old and two years ago I fell down the steps to my home. After thinking that I had injured my neck an MRI was ordered and I was told at that time that I had a very large tumor on my brain stem blocking the...
    shnookers73 shnookers73
    4 Responses Sep 16, 2008

    Much love to all of you.

    I am still battling mine. ❤️
    Monochromicorn Monochromicorn
    18-21, T
    2 Responses Jan 14

    Astrocytoma In 1972

    I was 14 years old. By the time I got a correct diagnosis, the tumor had destroyed my right optic nerve and had grown to the size of a large lemon. But it was a relief that no one was calling me a hypochondriac anymore. After surgery came radiation therapy. On March 14, 1973 the...
    lew1899 lew1899
    56-60, F
    2 Responses May 18, 2013

    Life Changing - You Are Not Alone

    April 3rd 2007 I went to bed as usual; April 4th awoke in the afternoon in the casualty unit of our local hospital. I had no idea what was going on nor did I know where I was. Apparently I had suffered a siezure during the night and this was the result. There followed visits...
    mtbhc1582 mtbhc1582
    51-55, M
    10 Responses Jun 16, 2010

    Perseverance Is My Middle Name, Though Not Willingly.

    I am a 33 year old female who was diagnosed with a brain tumor at the age of 12. I underwent surgery and radiation. I was on a study for radiation and had the treatments twice a day for I think 6 weeks. The first few years after the tumor was removed and radiation was...
    mbrown001 mbrown001
    36-40, F
    Sep 22, 2013

    8.5 Years Of Remission

    When I was 16 (in 2002), I was diagnosed with a pineal gland germinoma. They found it because the tumor itself was pinching off one of my ventricles. I was on vacation at the time, about to start my junior year of high school in about a week, and then I started getting really...
    komickaze komickaze
    1 Response Nov 7, 2011

    Grade Two Glioma

    Hi I'm a young British guy I'm 29 and on the 19 December 2012 walking home from the gym , down the road from my home I went in to a sizure and woke up in a and e at the London hospital with in 24 hours I found out I had a brain toumar !!! With in a month I've been told its a...
    Neilg421 Neilg421
    31-35, M
    3 Responses Apr 7, 2013

    Maryann Marino Rn

    Hi, my name is Maryann . I am 62 years old, full time working dialysis nurse. 12 year survivor with a new tumor showing up last month in a new area of my brain and a different type of tumor. last time it seemed easier even though I was on my Honeymoon, in Utah on vacation. I am...
    mask1711 mask1711
    3 Responses Jan 12, 2011

    The Future Is Bright

    OK in 2007 I had the news that no-one wants to hear (I had a brain tumour, craniotomy within a week and most of the tumour removed); last week I had the news we all want to hear, I had an out patient appointment with my neurosurgeon and my MRI scan has now been stable for three...
    mtbhc1582 mtbhc1582
    51-55, M
    2 Responses May 2, 2011

    A pilocystic cerebellar astrocytoma on the left

    side of 4th ventricle, WHO grade l, has changed my life. It is a brand new journey and adventure for me. I was given a second chance by the one up there. It never crosses my mind that I will need to go under the knife. Well, being me, I like it to be as natural as possible in...
    arsuriani arsuriani
    26-30, F
    3 Responses May 27, 2014


    I realize it has been a while, and in our exclusive club, that can be an ominous sign. Not the case for me. I just had my 6 month follow up with the NO/RO. I am "stable". A family members joked that this may be the first time someone has used that word when describing me...
    Stubborntoafault Stubborntoafault
    36-40, F
    1 Response Jan 30, 2011

    It has been exactly 1 year

    since my last brain surgery! Today was the day of my last brain surgery!
    musicspeakstome musicspeakstome
    22-25, F
    Dec 2, 2015

    I was diagnosed with a benign cerebellar

    astrocytoma when I was 9. Supposedly it was the size of a grapefruit. I had frequent intense headaches along with nausea. Surgery was effective, and I've never had a recurrence. It was a very difficult recovery for me, learning how to walk and move as I used to took a few months...
    nearlydone84 nearlydone84
    31-35, M
    2 Responses Jan 25, 2014

    Just shy of 16 years old,

    a junior in high school. I had it all going for me...my friends, my grades, my extra curricular activities, even my future...& I never thought a game of hide & seek could change that, but it did...QUICK. OCTOBER 2010-- A normal Friday at school, we had a volleyball game & a...
    18-21, F
    2 Responses May 23, 2014

    Golf Ball.

     Hello my name is Tacoseverywhere and I have a brain tumor the size of a golf ball that none of my friends know about. I lie to them to keep it quiet because it makes me feel weak. I know it shouldn't but that doesn't change anything.   I have gone to so many MRI's I...
    tacoseverywhere tacoseverywhere
    18-21, F
    5 Responses Apr 26, 2009


    When I was 12 years old, I had a brain tumor that was cancerous. The doctors didn't think i would live or if I did would not be able to see or walk. That was 52 years ago
    countryboy52 countryboy52
    26-30, M
    5 Responses Jun 17, 2008

    Never Give Up!!!

    My story… When I was young I had dreams of being a top athlete and going to the Olympics like my father had done before me… all that changed October 18th 1988 when I was diagnosed and had a surgery to remove a huge brain tumor in my cerebellum!  The Astrocytoma...
    Ice75 Ice75
    31-35, M
    3 Responses Sep 16, 2010

    This past November i had surgery to remove a

    brain tumor. I don't remember most of my time in the hospital, but i know that i had at least three seizures before being admitted. The problem is i had them at night and had no idea what was happening so i never said anything then one night i started screaming from the panic...
    Dinosaurinthebigcity Dinosaurinthebigcity
    18-21, F
    2 Responses May 22, 2015

    More Brain Surgery

    Last night (christmas eve) I found out that my brain tumour has grown and now I need to have another operation. I can't even being to describe how scared I am. I'm not scared of dying and I'm not scared of waking up paralysed. I'm scared of losing my feelings for my boyfriend...
    NikitaB936 NikitaB936
    22-25, F
    5 Responses Dec 25, 2012

    I Heard These Words

    In May of 2000, I survived the removal of a meningioma brain tumor, it was benign. The size was a little larger than a golf ball, and located in the base of my skull, pressing on my spinal cord. If this tumor had not been found out soon, it could have killed me in my sleep...
    56-60, F
    7 Responses Apr 10, 2008

    Story Of My Life

    Most of my life i had to do with the fact that is was diagnosed with a ependymoblastoma brain tumor at the age of three years old. all though i do not remember most of this incident in my life, my parents remind me every year of the tragedy that they went through as i battled...
    ChristopherPegg ChristopherPegg
    26-30, M
    3 Responses Mar 23, 2011

    My Dad Has Brain Cancer Glioblastoma. Please Read!

    I am from Malaysia, last year May 2012, my father was diagnosed with recurrence brain tumor called Gliobastoma (one of the most DEADLY/aggressive tumor cancer) Life span survival rate is 1 year if the patient receive treatment, without the treatment only have half year to live...
    maxmike maxmike
    31-35, M
    3 Responses Feb 10, 2013

    A Sense Of Tumor..........

    My name is Paudy Byrne. Im 24 and from Ireland. Below is a story I wrote for a Canteen Ireland newsletter............ Top of Form Lucky Man         As far as I can remember it all began when I started secondary school back in in 1999. I was a carefree 13...
    pab1986 pab1986
    22-25, M
    2 Responses Jul 26, 2010

    I Had Brain Tumor At 14

    For a few years I felt like ****, but I thought feeling so tired, weak and sick was my life. But, I was thankful I had great friends who cared about me so much. They knew I was really skinny (only about 55 lbs at 14yrs) and they also knew I felt awful. My mom took me to the...
    Jessicamae27 Jessicamae27
    1 Response Feb 28, 2012

    After my last operation (April 5th 2013) I have

    just found out that I now have another growth. This makes me feel scared and vulnerable and I can't bear thinking about the future. I feel too young to be going though this.
    NikitaB936 NikitaB936
    22-25, F
    2 Responses Apr 4, 2014

    Im A Survivor

    October 4 2010 i had the big surgery to remove a tumor located on my brain stem that was about the size of a lemon. I woke up from that sugery and iI was unable to talk walk and I was in pain that I can not describe. Although now I am almost fully recovered the road to recovery...
    ricorico542 ricorico542
    31-35, M
    2 Responses Sep 4, 2012

    Goodbye to the Orange

    I am a very lucky individual. It's 2 years since I was diagnosed with a brain tumour. I'd been sick for about a year with what I thought was neck pain. I'd seen chiropractors, doctors and osteopaths who all told me it was stress, so I decided to move to another state where I...
    bettybookbinder bettybookbinder
    2 Responses Mar 10, 2009

    3 months back i had this brain tumor surgery

    aftwr which i came completely to my senses just today... It all began with a headache and fever. i started losing weight unexplained. i used to faint every now and then. My parents thought something was not right with me and the doc advised an MRI i already had this gut feeling...
    deleted deleted
    1 Response Jan 21

    Not Yet A Survivor...

    I'm facing a biopsy in the cavernous sinus and it's terrifying. I've been in the worst pain for 10 months, slowly getting worse. I started at my general physician back in January for a pain that started in November. It feels like a tooth moved up into the top of my mouth in front...
    lmbarns lmbarns
    Sep 17, 2012

    In the late 1985 i had the first of two

    astrocytoma resections. Two, because it was too big to take out all at once. I had no support groups to attend (still don't) and have spent this while time being embarrassed that i ever had anything wrong with my brain. Now i am debilitated from chronic pain and a myriad of...
    L2pb L2pb
    51-55, F
    Jan 6

    Hi. Uh, so I will try to make this organized

    and make as much sense as possible. I'm not sure if its suppose to be an informative piece or personal or what... so here it is: November 2013, I got my brain tumor removed. Prior to this, I had three weeks of massive migraines. They were located near the base of my neck and...
    skyeraine skyeraine
    22-25, F
    3 Responses Mar 22, 2015
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