I Am a Caregiver

Personal Stories, Advice, and Support 624 People

    Are there any support groups out there

    for spousal caregivers? The only one I could find online - wellspouse.org - does not have a group in my area. I've been caring for my wife with muscular dystrophy for 8 years, and I'm close to losing it. My life consists of work and taking care if her and the home. I rarely...
    02K30 02K30
    46-50, M
    Apr 2, 2015

    But I am not going to be doing this work much

    longer. I have been a caregiver for over 20 years, and I need a change.
    PinkHeartCrystals PinkHeartCrystals
    41-45, F
    2 Responses Dec 30, 2015

    Kind of. My grandma has Alzheimer's,

    and my grandpa is her main caregiver, but he's an alcoholic, so I'm her main supporter.
    Wolflover1999 Wolflover1999
    18-21, M
    Nov 4, 2015

    Serenity Amidst Calamity

    About 2 months ago I was told my sister whose body is 53 but she is 5, 6 or 7 emotionally, had stage 4 rectal cancer which involves her liver and more.  She had 6 months to a year to live...closer to 6 months.  I am her sole caregiver.  When 1st told, my Higher...
    samstarr samstarr
    61-65, F
    2 Responses Nov 11, 2007

    H has not done well yesterday

    or today. He slept all day yesterday b/c he felt so bad. He blamed it on the change of meds, but I'm pretty sure it's the diseased liver. He's asleep now too. Today he got up & asked me for help processing payment on an eBay purchase. Now, I've purposefully stayed away from his...
    Harley53 Harley53
    61-65, F
    Sep 11, 2014

    I care about myself. So,

    I'm a caregiver, right?
    deleted122 deleted122
    22-25, F
    1 Response Nov 5, 2015

    During the blizzard I stayed with my grandmother

    who suffers from sundown dementia. My mom is her primary caregiver while I am at school during the week. This weekend since my mother was not around and we were cooped in up in the house her dementia got the best of her. I have been kicked, punched, shoved, scratch, and had...
    WelcomeToMySirenLife83 WelcomeToMySirenLife83
    22-25, F
    1 Response Jan 24, 2016

    I made H chicken and dumplings night

    before last. You'd have thought I gave him the moon. He said either thank you or that I'd outdone myself no less than six or seven times. Guess I'll be making that again! His appointment with the GI doctor went well yesterday. I told him how he was sleeping around the clock and...
    Harley53 Harley53
    61-65, F
    1 Response Sep 10, 2014

    Hi guys!!! I came across this site accidentally.

    I was taking a quiz concerning caregivers and whether or not they had caregiver stress.Well out of 10 symptoms, I had a perfect 10! Lol ... Both my son , who has four disabilities and my Mom, an octogenarian ( with several disorders) live with Me in my home The quiz questions...
    PinkzmusicPassion PinkzmusicPassion
    51-55, F
    Sep 6, 2014

    The Perfect Fit.

    I am a caregiver, or as the agency I work with calls it, a support person. Our organization uses a person-centered approach to make the people we work with feel safe, loved and engaged (Gentle Teaching). At first I thought it was totally weird and kind of rolled my eyes at it...
    Astroluxgal Astroluxgal
    31-35, F
    2 Responses Oct 17, 2013

    The woman I work for has no living relatives.

    Neither did her husband. He passed last year. Her friends are wig their families or live far away, and my sweet Joyce is going to be alone on Christmas. I've been working so much I planned to keep my Friday off as usual but I think I might have to take some time to go make her...
    peacexpuppyx peacexpuppyx
    26-30, F
    3 Responses Dec 24, 2015

    i just got a new job

    as a caregiver. i have orientation on Friday. im so excited to start.
    cupofteeee cupofteeee
    18-21, F
    3 Responses Oct 13, 2015

    I just got back from taking my mom to the

    dentist. It's been one of those days where she gets mad because she thinks I'm getting mad at her when I'm really just having a hard time. And *then* I get mad for real. Sometimes I think people don't realize just how physically demanding being a caregiver can be and how it...
    doremiyasu doremiyasu
    31-35, M
    2 Responses Oct 13, 2015

    I'm completely worn out

    after being a caregiver for almost a year . I know that's a short amount of Time , but I never imagined that this would Be an actual job . Nurses deserve way more credit for doing it all day long
    Iamalostcause Iamalostcause
    22-25, M
    1 Response Oct 13, 2015


    AnonymousAngel13 AnonymousAngel13
    22-25, F
    Aug 17, 2015

    My grandfather suffered a massage stroke around

    my birthday I never knew what a stroke was so it was (sorry if this sounds selfish ) a little traumatic seeing it happen right in front of my face I guess I felt since I had no job for the longest time , plus my mom and I stay with my grandparents the least I could do was play...
    Iamalostcause Iamalostcause
    22-25, M
    3 Responses Apr 17, 2015

    Dad's check up went great -- his blood pressure

    is great, his weight is great, his cholesterol is great. He's very slightly anemic, but nothing to worry about. Got his pneumonia shot (already got his flu shot a month ago.) He doesn't need to be seen for six months! At 89 & 1/2 he's doing better than me. I have to see my...
    Harley53 Harley53
    61-65, F
    2 Responses Nov 14, 2014

    Funny Things People Say To Caregivers

    Whenever I write or talk about this, people get very serious, and try to lecture me.  All I'm trying to do is have a laugh.  I really am trying to be funny.  Here are some of the things people say to me about my caregiving situation.  I think they're funny."What can I do...
    BlueSam BlueSam
    13 Responses Sep 29, 2011

    Dad's doing better. But he's a long shot from

    being okay.. I'm frustrated at the lack of help with Dad. My sister is, too. My brother says there's no money to hire help and the home health nurse is saying we need someone to be there with Dad around the clock. This is not working out at all. My brother has never offered a...
    Harley53 Harley53
    61-65, F
    1 Response Apr 17, 2015

    So, I'm working a hospice case today.

    It's really the most terrible tumor I've ever seen on a person, this woman's face is completely deformed, tumor coming out of nostrils, and I have to wash away blood every fifteen minutes. She is 91 years old and has a very aggressive and rare form of melanoma. It's growing...
    deleted deleted
    8 Responses Feb 26, 2015

    I had to help H make a withdrawal from an ATM

    tonight. He's really struggling mentally. While it scares me on one hand, on the other hand I realize, as I become more in charge, I feel less "controlled."
    Harley53 Harley53
    61-65, F
    1 Response Sep 11, 2014

    H is starting to talk end stage more & more.

    Last week he said I should do all right (when he's gone) b/c I have the grandkids & the dog. Yesterday he said it was time for us to prepay our burial plots. The fatigue is overwhelming most of the time. When he's not exhausted he's dealing with debilitating diarrhea. Last night...
    Harley53 Harley53
    61-65, F
    1 Response Sep 3, 2014

    "No, Bonnie, no!" yells the dining room worker

    at the scrawny. grey-haired resident from Dad's retired living facility. "Sit down, right there!" The cafeteria lady turns her back to finish placing pitchers of ice water at every table. As soon as she turns her back, the resident jumps up and starts scooting toward the kitchen...
    Harley53 Harley53
    61-65, F
    1 Response Nov 25, 2014

    I am a care giving to my wife

    who is blind and also to a aging brother. No help from family. They think I should do it all. I'm sick myself with bipolar and all I get is judgement.
    deleted deleted
    4 Responses Jul 10, 2015

    Always Have Been

    I help others in part to hide from my own issues. I think my friend "denial" plays a big part in it. Don't get me wrong, I have a huge heart that breaks easily but I continue to put it out there in hopes that I'll bring joy to someone else. I will spend every waking...
    mysplitpersonality mysplitpersonality
    36-40, F
    2 Responses Oct 1, 2007

    My dad had not lost his ability to walk,

    eat, or bathe yet. But he is slowly diminishing, it is obvious. He had a nose bleed yesterday, and one of his tumours is at the same area. I feel that he will face a dramatic deterioration in the near future. I had a really close friend who told me that it's okay to rest, or...
    thequietexplosion thequietexplosion
    18-21, F
    Mar 29, 2016

    Does anyone know how to go about making room

    for yourself while caring for someone else full time? I'm really struggling with this. Because of it, a guy that was interested in me decided to stop talking to me because I couldn't make time for him. I have a feeling this is something I'm gonna keep dealing with for the rest...
    midnitephoenix midnitephoenix
    31-35, F
    2 Responses Oct 1, 2015

    3 a.m. -- just got a call from the Assisted

    Living where I have Dad now. The police found him wandering about a block away. They got him back safe and sound, thank God. He said he was "investigating."
    Harley53 Harley53
    61-65, F
    3 Responses Sep 2, 2014

    One Shoe

    I found Dad sitting on the edge of his bed this morning, one shoe off, one shoe on, staring down at the floor. That image will stay with me forever. In many ways it's like he's still present in this world, but with one foot in and one foot out. Here physically, but his heart is...
    Harley53 Harley53
    61-65, F
    Jul 2, 2010

    These few days.. I've been doing less.

    But I'm bored, I'm tired. I need some outside air.
    thequietexplosion thequietexplosion
    18-21, F
    Apr 7, 2016

    Single Mom to Special Needs Child and Caregiver

    Hello.. I find myself part of the "sandwich generation". I'm a single mom to my 9 year old who is a special needs child and also caregiver for my 79 year old mom with stage 4 cancer. I would love to discuss this situation with others in the same boat of being a...
    IrishDancinMum IrishDancinMum
    46-50, F
    4 Responses Dec 7, 2007

    Lines You Wont Cross

    being a caregiver is tricky...its a wonderful personality trait to have but it can get tricky...because we can care for others...but it is only good and healthy if that person cares back...or sometimes someone doesnt give in the same way you need, not their fault there are...
    wickedlittlepixie wickedlittlepixie
    41-45, F
    1 Response Nov 10, 2012

    I have had relationships with adult little girls

    and adult baby girls. As a Guardian I provide for my little girl or baby girl and sometimes even spoil them!!
    Guardian3 Guardian3
    56-60, M
    1 Response Jun 1, 2015

    I hate when people consider me

    as unemployed, because I don't have a paying job. A lot of people figure that I just sit on my butt all day playing video games or sleep all day. I don't. I may not get paid in the typical way for what I do, but I do get paid in kind gestures and appreciation which is...
    NaturallyPeculiar NaturallyPeculiar
    22-25, F
    2 Responses Sep 4, 2014

    I am a caregiver. I have been one

    for quite a few years. It makes me upset when people put their relatives in a home then only visit them on a holiday or once a year.
    drummer173 drummer173
    51-55, M
    2 Responses Apr 21, 2014

    It Can Be Draining

    i have worked in a mental health facility for 14 yrs and, although it can be rewarding, it can also take a toll on you as well. couple that with looking after my disabled sister, who has arthritis and avascular necrosis of the talus, among other things, and sometimes i am just...
    jerrica jerrica
    51-55, F
    19 Responses Oct 29, 2008

    Just had a phone call from my mum

    who basically said if that's how you feel it's upto you wether you come or not. Why did I even bother to ring you.
    issimma issimma
    36-40, F
    Jul 16, 2015

    Hey my fellow caregivers!

    I just got a new page on facebook and Id love your support! The more likes I get the more I can accomplish! Thank youuuu! www.facebook.com/AngelA.R.KCaregivingAndEventPlanning
    AnonymousAngel13 AnonymousAngel13
    22-25, F
    Aug 17, 2015

    Caring For Grandma... Dad Is Interfering

    HI All, I have been looking for someone/something/someplace to be able to share and connect with others. So 2 months ago my Grandma had a stroke while we were out for lunch, she all of a sudden could not write her own name - to sign for the bill at the restaurant. I knew...
    phishprincess phishprincess
    26-30, F
    7 Responses Jul 21, 2010

    I love my job and I enjoy receiving growth from

    my work and support. But I want to do more. I feel restricted somewhat in what is deemed as good care. It seemed to be less about the person and taking a more person centred approach and more about how the objectives are met.
    targets targets
    26-30, M
    May 22, 2014

    I've come to realize

    that I am a Caregiver for my wife. I never thought much about it, but I am learning just how hard being a caregiver can be. I've been married for 23 years now. The happiness and joy of a new life together has given way to the sadness and disappointments brought on by life's...
    RealMustangGuy RealMustangGuy
    51-55, M
    6 Responses Jun 23, 2015

    Both my Great Aunt (88 y.

    o.) and Grandma (76 y.o.) have no other way to go to the store for groceries, so I usually take them. Then, as soon as we get home, I do lawn care stuff for both of them like mowing the lawn and trimming weeds and stuff. In the fall I rake their leaves. I also try and do other...
    keiisenshi keiisenshi
    26-30, M
    Jun 3, 2014

    my nana is not able to do anything alone

    anymore becasue of dementia and a stroke and i am now her full time care giver,. i am currently involved with a new love. which as i can already tell is going to be hard to balance between work and my nana. i am feeling very overwhelmed right now and i feel scared. i kno i can...
    cassandra1122 cassandra1122
    31-35, F
    1 Response May 23, 2014

    CARING For Someone We Love.

    My name is Isabel from Melbourne, Australia. The insperation  why I build my site is my husband John. I am new at doing this, but as I learn hopefully will improve in the future & looks much better & nicer.For me this is very imotional to do this.Which is also...
    iamfairy iamfairy
    36-40, F
    2 Responses Oct 14, 2007
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