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I Am a Caregiver

Personal Stories, Advice, and Support 426 People

    A Role No One Chooses, Part 2

    Todd is the mildly retarded senior citizen diagnosed with Stage IV congestive heart failure with a life expectancy of one to two years and for whom I have become full-time caregiver. We saw his cardiologist's nurse practitioner two days ago for the results of Todd's latest...
    cmmacneil cmmacneil 51-55, M 3 Responses Jun 17, 2012

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    H is starting to talk end stage more & more.

    Last week he said I should do all right (when he's gone) b/c I have the grandkids & the dog. Yesterday he said it was time for us to prepay our burial plots. The fatigue is overwhelming most of the time. When he's not exhausted he's dealing with debilitating diarrhea. Last night...
    Harley53 Harley53 56-60, F 3 Responses Sep 3

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    Caring For Grandma... Dad Is Interfering

    HI All, I have been looking for someone/something/someplace to be able to share and connect with others. So 2 months ago my Grandma had a stroke while we were out for lunch, she all of a sudden could not write her own name - to sign for the bill at the restaurant. I knew...
    phishprincess phishprincess 26-30, F 9 Responses Jul 21, 2010

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    One Shoe

    I found Dad sitting on the edge of his bed this morning, one shoe off, one shoe on, staring down at the floor. That image will stay with me forever. In many ways it's like he's still present in this world, but with one foot in and one foot out. Here physically, but his heart is...
    Harley53 Harley53 56-60, F 1 Response Jul 2, 2010

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    Funny Things People Say To Caregivers

    Whenever I write or talk about this, people get very serious, and try to lecture me.  All I'm trying to do is have a laugh.  I really am trying to be funny.  Here are some of the things people say to me about my caregiving situation.  I think they're funny."What can I do...
    BlueSam BlueSam 51-55 13 Responses Sep 29, 2011

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    H has not done well yesterday

    or today. He slept all day yesterday b/c he felt so bad. He blamed it on the change of meds, but I'm pretty sure it's the diseased liver. He's asleep now too. Today he got up & asked me for help processing payment on an eBay purchase. Now, I've purposefully stayed away from his...
    Harley53 Harley53 56-60, F Sep 11

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    Lines You Wont Cross

    being a caregiver is tricky...its a wonderful personality trait to have but it can get tricky...because we can care for others...but it is only good and healthy if that person cares back...or sometimes someone doesnt give in the same way you need, not their fault there are...
    wickedlittlepixie wickedlittlepixie 41-45, F 1 Response Nov 10, 2012

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    What The Heck?

    I spent my entire life as a caregiver.  First for my siblings, to make up for brutal sadistic parents.  Then came single parenthood.  Worked 35yrs as a nurse.  Last gig was a husband with Vascular Dementia.  That finished my caregiver role.  He is in a care home.  Now when...
    deleted deleted 26-30 3 Responses Dec 12, 2011

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    Falling In Love With 3 People

    I am currently in a relationship with the most beautiful person I think has ever been placed on this Earth. He has epilepsy, Dissociative Identity Disorder, major depression, and schizoaffective disorder. His mother has passed away, he has no relationship with his father, and his...
    Waiting4Zion Waiting4Zion 22-25, F 1 Response Feb 18, 2012

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    Single Mom to Special Needs Child and Caregiver

    Hello.. I find myself part of the "sandwich generation". I'm a single mom to my 9 year old who is a special needs child and also caregiver for my 79 year old mom with stage 4 cancer. I would love to discuss this situation with others in the same boat of being a...
    IrishDancinMum IrishDancinMum 46-50, F 4 Responses Dec 7, 2007

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    Always Have Been

    I help others in part to hide from my own issues. I think my friend "denial" plays a big part in it. Don't get me wrong, I have a huge heart that breaks easily but I continue to put it out there in hopes that I'll bring joy to someone else. I will spend every waking...
    mysplitpersonality mysplitpersonality 36-40, F 2 Responses Oct 1, 2007

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    It Has Only Gotten Worse And Will Get Even More Worse.....

    For the last two months I have been in and out of hospitals with my mom. Last month she has an episode in her sleep that left her left side pretty much paralyzed and her face was the most prominent. I decided to take her to the hospital and they treated her as a stroke patient...
    carodwen carodwen 31-35, F 1 Response May 28, 2013

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    Since 2011, I've been taking care of my

    grandmother. For the first year, it looked as though she wasn't going to make it for very long. Now, she's just a few weeks shy of turning 90! That's quite an accomplishment! Not to get her to 100! :D
    Whoami30 Whoami30 26-30, M Mar 24

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    The Old Bat

    I am the caregiver for my man's 87 year old mother.  I used to be an over the road truck driver, and my man drives also. When I lost my job a year ago, we decided that instead of me getting another driving job that I would stay home and keep an eye on her.  We moved her into...
    sugarmagnolia71743 sugarmagnolia71743 41-45, F 1 Response Jan 22, 2011

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    The last two days my husband (he has cirrhosis)

    has been very sluggish, slurring his words, and his responses have been very slow. We had a meeting on the south side today, and I became terrified as he drove there. It was like he was drunk. He's definitely showing signs of encephalopathy, I think. He has shown signs before...
    Harley53 Harley53 56-60, F 1 Response Aug 29

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    One Day At A Time...

    My mother, 77, was recently diagnosed with Alzheimer's. I relocated to be with her and be her full time caregiver. With both daughters grown and on their own and having just gotten divorced, it was not a difficult decision. I'm just beginning to wade through this river of...
    odaat3 odaat3 51-55, F Oct 7, 2012

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    It Makes Me Feel Good

    I am a long term caregiver for a few people and I am a respite caregiver for a few people. I really do like me job.It makes me feel good to help people. Not all of my clients are nice but I understand why they are unhappy. Others are really cool people. They all deserve care and...
    lyricaldemise lyricaldemise 36-40 1 Response Aug 17, 2013

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    It Can Be Draining

    i have worked in a mental health facility for 14 yrs and, although it can be rewarding, it can also take a toll on you as well. couple that with looking after my disabled sister, who has arthritis and avascular necrosis of the talus, among other things, and sometimes i am just...
    jerrica jerrica 41-45, F 20 Responses Oct 29, 2008

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    Both my Great Aunt (88 y.

    o.) and Grandma (76 y.o.) have no other way to go to the store for groceries, so I usually take them. Then, as soon as we get home, I do lawn care stuff for both of them like mowing the lawn and trimming weeds and stuff. In the fall I rake their leaves. I also try and do other...
    Pg33k Pg33k 22-25, M 1 Response Jun 3

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    Still Have Faith

    If you have ever cared for a loved one or are currently in that role you may have feelings of sadness, frustration, tired and triumph. Still, we wouldn't change being there for our spouse or family member. I want to share a great book that is now out that helped me during a...
    Justinwalker78 Justinwalker78 26-30, M Apr 29, 2012

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    I hate when people consider me

    as unemployed, because I don't have a paying job. A lot of people figure that I just sit on my butt all day playing video games or sleep all day. I don't. I may not get paid in the typical way for what I do, but I do get paid in kind gestures and appreciation which is...
    NaturallyPeculiar NaturallyPeculiar 18-21, F 3 Responses Sep 4

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    What I do Best I love caring

    for people its what I'm good at and when I received a phone call my Uncle Needed me I was right there Sometimes being a caregiver is really hard but it's my joy in Life knowing I could make a difference
    Foreverme23 Foreverme23 22-25, F 3 Responses May 13

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    I made H chicken and dumplings night

    before last. You'd have thought I gave him the moon. He said either thank you or that I'd outdone myself no less than six or seven times. Guess I'll be making that again! His appointment with the GI doctor went well yesterday. I told him how he was sleeping around the clock and...
    Harley53 Harley53 56-60, F 1 Response Sep 10

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    I love my job and I enjoy receiving growth from

    my work and support. But I want to do more. I feel restricted somewhat in what is deemed as good care. It seemed to be less about the person and taking a more person centred approach and more about how the objectives are met.
    targets targets 26-30, M May 22

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    3 a.m. -- just got a call from the Assisted

    Living where I have Dad now. The police found him wandering about a block away. They got him back safe and sound, thank God. He said he was "investigating."
    Harley53 Harley53 56-60, F 3 Responses Sep 2

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    A Role No One Chooses, Part 3

    Due undoubtedly to my background in journalism, I have a respect for the power and potential of the written word. It can be cathartic, giving voice to thoughts and feelings whose emotions can cloud a reality that, despite our knowing we must face, can be tinged with denial. And...
    cmmacneil cmmacneil 51-55, M 4 Responses Jun 23, 2012

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    I Take Care Of 5 Different People By Myself

    I am a caregiver for paranoid schizophrenics, I take care of five at a time, I am the only one on shift. I stay over for two nights, so I am there for 48hrs. It's not an easy job, but it isn't as bad as people think. I'm in charge of meds, which can be a tough job because there...
    SammiBee23 SammiBee23 18-21, F 2 Responses Oct 15, 2013

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    CARING For Someone We Love.

    My name is Isabel from Melbourne, Australia. The insperation  why I build my site is my husband John. I am new at doing this, but as I learn hopefully will improve in the future & looks much better & nicer.For me this is very imotional to do this.Which is also...
    iamfairy iamfairy 36-40, F 2 Responses Oct 14, 2007

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    Doing My Duty

    My parents, both in their 60's, are nearing the end of their life. My mother suffers from dementia and my father has emphysema and COPD. I am starting to wonder if he may have cancer as well. My parents hate doctors and usually refuse to see one. Which makes my job even harder. I...
    carodwen carodwen 31-35, F 3 Responses Jan 23, 2013

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    Hi guys!!! I came across this site accidentally.

    I was taking a quiz concerning caregivers and whether or not they had caregiver stress.Well out of 10 symptoms, I had a perfect 10! Lol ... Both my son , who has four disabilities and my Mom, an octogenarian ( with several disorders) live with Me in my home The quiz questions...
    PinkzmusicPassion PinkzmusicPassion 51-55, F Sep 6

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    Is there anyone out there

    that finds living a struggle, but is afraid to die
    rellal rellal 56-60, F 1 Response Jun 7

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    The Perfect Fit.

    I am a caregiver, or as the agency I work with calls it, a support person. Our organization uses a person-centered approach to make the people we work with feel safe, loved and engaged (Gentle Teaching). At first I thought it was totally weird and kind of rolled my eyes at it...
    Astroluxgal Astroluxgal 26-30, F 1 Response Oct 17, 2013

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    I had to help H make a withdrawal from an ATM

    tonight. He's really struggling mentally. While it scares me on one hand, on the other hand I realize, as I become more in charge, I feel less "controlled."
    Harley53 Harley53 56-60, F Sep 11

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    A Role No One Chooses

    I was only acquainted with but did not know the neighborhood man everyone called Todd, a senior citizen who I noticed was the target of cruel comments by the kids in the neighborhood. But I started to know him that Thursday morning in January 2009. One of those Midwest savage...
    cmmacneil cmmacneil 51-55, M 6 Responses May 13, 2012

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    I guess this is a crisis post.

    I'm at the point of being so confused and overwhelmed by a situation which I have so little control over that this feels like the only way I can get some advice, opinions, and get this off my chest at the same time. I am in my twenties, doing my Masters, engaged, and just lost...
    caringforcaregivers caringforcaregivers 22-25, F 1 Response Dec 28, 2013

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    my nana is not able to do anything alone

    anymore becasue of dementia and a stroke and i am now her full time care giver,. i am currently involved with a new love. which as i can already tell is going to be hard to balance between work and my nana. i am feeling very overwhelmed right now and i feel scared. i kno i can...
    cassandra1122 cassandra1122 26-30, F 1 Response May 23

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    Caring For Grandma... I Put Dad In His Place...part 2

    This is part two of my first post. So it has been a few months since all this drama went down. Things have finally settled down. I read my father the riot act and told him he had to be there day to day to be able to make decisions regarding my Grandma.. He was actually very...
    phishprincess phishprincess 26-30, F 1 Response Sep 23, 2010

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    I am a caregiver. I have been one

    for quite a few years. It makes me upset when people put their relatives in a home then only visit them on a holiday or once a year.
    drummer173 drummer173 46-50, M 1 Response Apr 21

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    Stage 4 Lung Cancer

      The CareGiver He was my best friend and he had no family after his brother was found dead from a boat accident. He had always been there for me when I needed him. Like the time I need a place to live and didnt have enough money for the deposit or to get the lights...
    magicwolf magicwolf 51-55, M 2 Responses Aug 8, 2009

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    Caring For Husband With Terminal Cancer

    Scott is my husband of 10 years and he was diagnosed with stage 4 Nasopharyngeal cancer - probably from smoking and drinking - in December 2009. He underwent 32 radiations treatments (the doctor had ordered 40 but he could only complete 32. He was also given chemotherapy for 9...
    darra1960 darra1960 46-50 3 Responses Apr 27, 2011

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    I have been coping with my grandmother having

    lung cancer for three years now. This past year has been the hardest yet. And on top of that my other grandmother has dementia. Knowing that both of my grandmas are going down hill at the same time isn't the easiest thing to deal with. Not knowing when the last time I'm going...
    Angelmarie14 Angelmarie14 18-21, F Dec 9, 2013

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    Related Experiences

    I have been diagnosed with P.T.S.D., depression, bi-polar, catarracts, chronic pain, asthma, etc. I need a caregiver. I can't make a doctor's appointment because I don't have...
    SorrowofHeart SorrowofHeart 51-55, F Sep 8

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    She woke up and forgot what happened. I had to explain why she had scars on her leg, stomach, and chest. I had to tell her that she just had open heart surgery. ~~~~~~~~~~ I was...
    Acebo Acebo 18-21, F 2 Responses Sep 2

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    This story should begin with me telling of the time following up to my husbands accident. I had managed to fracture my right metatarsal. This put me in a walking boot and on...
    Yoga1980 Yoga1980 31-35, F 24 mins ago

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    That's the understatement. I used to be quiet and reserved, my voice used to be soft, not harsh and raspy, like whiskey and smoker's voice. I HATE living in the duplex my mom and...
    AllThePrettyHorses AllThePrettyHorses 41-45, F 7 Responses Sep 2

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    I will be having a cervical (neck) steroid epidural on the 18th for my chronic neck pain. Then on the 22nd I will be having my the carpal tunnel release surgery on my left hand...
    Harley53 Harley53 56-60, F 1 Response Sep 10

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    He is a sweet, intelligent, open-minded older gentlemen. He is retired and a wonderful caregiver to his wheel-chair bound wife of 50 years. He has taught me so much about history...
    Bikinigardener Bikinigardener 46-50, F 2 Responses Aug 30

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    I find that I try to offer my undivided and complete attention to those I care for. I listen and offer advice, and I make sure that I am available when crisis strikes. But there...
    SerendipityTheMuse SerendipityTheMuse 36-40, F 1 Response Aug 30

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    Still dealing with the loss of my mom. The loss of everything. I just started a new job. I feel it will be good though. I am a caregiver at an assisted living facility. And I...
    amberderrickx amberderrickx 18-21, F 1 Response Aug 31

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    Quite a few children with ADHD locate it difficult to manage during the university day. The varsity centred approach will instruct mothers and fathers and children how to cope...
    Cameronzpg2937 Cameronzpg2937 31-35, M 1 Response Sep 3

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    I do like meeting strangers, the thrill of the anonimity, but only like to talk about naughty stuff when and if there is a connection on other levels. Like a personality that leaks...
    osito2polar osito2polar 36-40, M Sep 4

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    I do like meeting strangers, the thrill of the anonimity, but only like to talk about naughty stuff when and if there is a connection on other levels. Like a personality that leaks...
    osito2polar osito2polar 36-40, M 1 Response Sep 4

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