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I Am a Guillain Barre Syndrome Survivor

Personal Stories, Advice, and Support 227 People

    My experience with GBS started around July 20,

    2013. It started with a tingling in my feet which then progressed throughout my legs. Within two days I started to stumble and the day after that I fell and was unable to get up. From the time I got admitted it took three hours for me to need oxygen support and only about four...
    liz2407 liz2407 18-21, F 1 Response Dec 3, 2013

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    I was diagnosed with GBS on January 25,

    2014. I am a stay at home to a very active 3 year old. I was pretty healthy and active before GBS. I got up on January 24 and it felt like my feet were alseep. I had a lot of numbness and tingling in my feet. I thought I just needed to move around and my feet would wake up. As...
    babiegurl27 babiegurl27 26-30, F Jun 20

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    It struck me when i was just 18yrs old.

    .. Now i'm 23yrs old its been almost 5yrs now... i was admitted to ICU on June , 2009, doctor gave my family just 48 hrs.. 21 days ventilator & 2 months in ICU... Really wen i looked back now its being a gr8 experience in my life which change my way towards looking thing... I...
    Fi10 Fi10 22-25, M Feb 19

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    My Story

    My life has changed so much in the last months. It was two weeks before Christmas and  I was working and my back was killing me.   I lift a lot of heavy stuff at work and I thought that I had pulled my back. I went to the doctor and she ordered a MRI because my...
    katia1421 katia1421 36-40 14 Responses May 16, 2008

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    Wow, there is a topic

    for what left me with not only 60 % of my strength. This terrible virus struck me down in 1988. I was unable to move anything but my head. Was it scary, what do you think. My lungs almost collapsed . I was in ER for 7 days . I had to be hand fed, washed , I had 5 major blood...
    JohnCrighton JohnCrighton 51-55, M 1 Response Feb 2

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    Gbs Changed My Life

    I decided to share something that I haven't talked to many People, about.... I know through knowledge is power... I also want to recognize for 2012 that I'm having a different outlook and will show appreciation for all that life has to offer. Here goes....Hi Guys,Here is my story...
    chell1223 chell1223 31-35 5 Responses Jan 2, 2012

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    Fish Sobrebiente De Guillain Barre Syndrome

    queridos lectores todos que esten pasando por una enfermedad quiero desirles que tengan fe y esperanza ase aprocimadamente un ano yo padesi esa emfermedad y desde mis ojos asta la punta de mis pies estava completanente inmovil grasias al tratamiento que resibi de celulas madres...
    blancagarza blancagarza 46-50, F Oct 29, 2013

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    4 X Gillian Barre Survivor

    Brett's Story Where does one begin I am one of four brothers the second of twins, my father was in the RAAF so the family moved about frequently from Perth to Toowoomba Qld , Penang Malayia , back to Perth and then the second time to Malaysia and then Melbourne. I have spent my...
    Bhalvorson Bhalvorson 51-55 2 Responses Jun 9, 2013

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    Okay this very rare virus I contacted just over

    26 years ago. Now I still can't get up from the ground in the sitting position without help. Do more exercise to strengthen your muscles the so called do gooders tell me. I know I've already written my Experience on the F ing terrible mental state I feel today .., this is it...
    JohnCrighton JohnCrighton 51-55, M 3 Responses Mar 27

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    It's Almost Been A Year Now

    I am a Guillain barre Syndrome survivor, and my story is pretty similar to those that i have personally talked to, though very different from ones i have read, So here goes, sometime in early October 2012 I noticed that i was having trouble getting out of bed / and chairs, i...
    wanderer21 wanderer21 41-45, M Aug 27, 2013

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    I have had GBS since 2011,

    I was quarantined with my stepmother who had H1N1, I myself have never had a flu shot. I had know idea i had GBS, the doctors told me it was in my head at first. 5 doctors and 2 neurologists later, they discovered I have chronic GBS... I still have no use of my right leg and in...
    charityrw39 charityrw39 36-40, F 1 Response Jun 1

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    I'm A 30 Year Guillain-Barre' Syndrome (GBS) Survivor!!!

    I had Gillain-Barre' Syndrome (GBS) in May 1981, at the age of 19.  At that time, I was full of energy and full of life... when it came to a sudden halt.  I had total paralysis, except one eyeball and one thumb joint.  Communication was impossible as I was on the vent for 40...
    1981SURVIVOR 1981SURVIVOR 51-55, F 7 Responses Apr 19, 2011

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    Survivor And Wondering If Anyone Else Experienced This...

    I had Guilliane Barre in early 2001, 12 years ago! I had foot drop in my right foot and noticed I was tripping over my own feet quite a bit. I wasn't sure what was happening, but I worked with a nurse and he told me that it could be MS and to have it checked ASAP. I went to a...
    nessad24 nessad24 36-40 2 Responses Apr 6, 2013

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    Part 2 Okay it was a very emotional time in my

    life. Not allowed to drive until I'd been assessed by our local driver authority . That sucked big time. I told them from the department, if I can't drive, I'd rather not be here. ****, I had a young family . I was the bread winner . I made myself walk, 2 walking stick. 30...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Feb 2

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    Guillian Barre Survivor But Still A Few Symtoms After 7 Years.

    The most puzzling thing for me about getting this syndrome is trying to figure out what cause it in the first place. I had sprayed my peas with a chemical that would make my plant grow faster. It was suppose to be a miracle to make them grow. I for got that i had sprayed the...
    shaunapark shaunapark 56-60 1 Response Dec 24, 2011

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    I was 26 years old when I got GBS.

    I was a new mom of a four month old baby girl. Before she was born I had taught 1st grade. The plan was to take a year off from teaching then go back. But while on leave, I got a bad sinus infection that led to GB. that was in 1991. It took several years for me to recover and...
    mommabrick5 mommabrick5 46-50, F 3 Responses Apr 7

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    Never Give In

    I was diagnosed with GBS in September of 09. I thought I had the flue but, 48 hours later, I was in intensive care @ BSA Hospital in Amarillo, Texas. I was 51 years old, married with 3 kids, a great job, and in no way prepared for what awaited me. On September 17th 2009, my...
    okcowman okcowman 56-60, M 5 Responses Mar 18, 2013

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    I Was 17, One Year Ago, When Gbs Hit.

    The morning after my senior prom, Sunday May 18 2008, I woke up to the flu and shooting pains in my legs. My mom thought I had just danced too much the previous night so she made me walk it out. However, it was so painful I was crying as I had...
    thatonechica thatonechica 18-21, F 2 Responses Oct 17, 2009

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    Brand New To All This, Quite A Club To Join!

    This is very new, I was diagnosed September 10th, 2013. I went to Morocco on vacation three months ago and came home with constant diarrhea which turned out to be Campylobacterus Jujunie. I didn't know the significance of that but do now. Early in September I started laughing...
    EMTurner EMTurner 51-55, F 2 Responses Sep 26, 2013

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    GBS 9 Years Ago...

     In June 2001 I was diagnosed with GBS. One year almost to the day of my first anniversary with my sweet hubby.  This is my story....  I had gone to an amusement park on a Tuesday. The next day I had total vertigo- to the point I was running into walls at the...
    mp77 mp77 31-35, F 6 Responses Jul 6, 2009

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    Guillain-Barre' Syndrome - Surviving The Aftermath Years After Onset

    I'm just ME... now a middle-aged lady from Alabama and a Survivor of Guillain-Barre' Syndrome (GBS). I have traveled a long journey in my life - the journey I would never wish on anyone. GBS not only has a paralyzing grip on your body, but is the WORST PAIN YOU CAN IMAGINE! GBS...
    1981SURVIVOR 1981SURVIVOR 51-55, F 7 Responses Feb 20, 2013

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    I Got It The 2nd Time This Jan......

    i was 38 when i came down with gbs.....it took me almost 1 yr 2 recover they told me i was the worst they have ever seen in toledo ohio...they thought i was goin 2 die a few times....never recovered my feet r the worst...they never stop hurttin but aleast i can walk ...then this...
    ziluun ziluun 41-45, F 3 Responses Apr 23, 2012

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    I Am A Guillain Barre Syndrome Survivor

    I can only say that I must be extremly lucky. Just a few weeks ago following a heavy cold I woke to tingling in the toes and fingers. I worked with this thinking little of it and expecting the symptoms to dissipate after a good nights sleep. On the 3rd morning I noticed a...
    Pauls73 Pauls73 56-60 Oct 30, 2013

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    March 22, 2011

    I was diagnosed with GBS shortly after being hospitalized March 22, 2011. I was 23 and my dad and I had just come back to Ohio from going up to Northern Michigan University. I was looking into going back to school to study psychology animal behavior. A few days after we had...
    Norway87 Norway87 26-30, F Sep 17, 2013

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    Life With Gbs! Someone Who Can Understand

    My Name is Michele. I was diagnosed with GBS July of 2011. A spinal tap confirmed it. I was at my local hospital for a month. Suffering with sever pain and extreme weakness. After 30 days in that hospital they didn't know what to do with me. The neurologists here attempted to...
    MitziHernandez MitziHernandez 41-45, F 3 Responses Aug 18, 2012

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    Part III i look at my past GBS stories.

    .. although brutally honest... which i tend to reserve for justme... so grateful to report the love of a few close, dear friends... of family... and my Jesus has been faithful... even when i was faithless... brought me through that season of frost/barreness has begun to sprout...
    clgsassy clgsassy 56-60, F 1 Response Mar 19

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    Recovering From Guillain Barre

    My experience with GBS began in the end of May 2007.  I woke up with tingling finger tips and toes; the tip of my tongue was also numb.  After several doctor visits, intense pain in the back, stumbling to the ground, my husband called 911 and I was taken to the local...
    Beverlej Beverlej 56-60 6 Responses Jul 6, 2008

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    Guillain Barre Syndrome Survivor Part One

    sometimes thriver...othertimes...not so much...Iam23, 1stbaby, son, Grant3months young,not feeling well,felt like a common coldorrrsomekinda fluWithin 4 days i could notmove from theneckdownHusbandtakes me to doc"either rapid multiple Sclerosis"(ewwww...know what that is...scared...
    clgsassy clgsassy 56-60, F 1 Response Aug 2, 2012

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    Hanging in there with GBS and a Colostomy!

    My husband and I both are retired somewhat from our regular jobs. My husband is still preaching in a small delta town in Mississippi about 45 miles from where we live. I am his unpaid secretary and piano player for his churches. We have a new home in a new community and life was...
    Kaybo59 Kaybo59 70+, F 1 Response Apr 9, 2013

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    8 Years Later :)

    I remember when I contracted GBS - was in the ICU for days, had to rehab back into walking, doing things for myself, etc.  The worst part was I'd go online and read stories and the outlook always seemed bleak. I was 18 when I contracted it, and it took at least a year to...
    crb2222 crb2222 26-30 3 Responses Nov 21, 2010

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    HOW COULD THIS HAPPEN TO ME??!!

    "HOW COULD THIS HAPPEN TO ME??!!!" Written by 1981 Survivor(Reviewed and Approved by Clint) What word would you use for EXTREME pain??? When I was going over synonyms of extreme pain in my mind, I thought of severe, distressful, agonizing, excruciating, even TORMENTING. However...
    1981SURVIVOR 1981SURVIVOR 51-55, F Feb 22, 2013

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    Never Give Up

    At the age of 51 I was a very busy wife,working mom and grandmother. Life seemed to be flying by.My husband and I spent all our free time outside of work in northern michigan at our lake house.We were making plans for our retirement that was a few years down the road.One morning...
    heysteve heysteve 51-55, F 2 Responses Jan 5, 2013

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    Im A Gbs Survivor

     one morning i woke up feeling not like myself. i was so weak i thought it was because i didnt eat anything. Then that evening i started vomitting. Then i became even more weak. I needed help getting out the bed, eating, and in and out the bed...
    india25 india25 26-30, F 6 Responses May 12, 2010

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    First Seen In Boston

    I was 4 years in in 1990 when I was diagnosed. I was paralyzed. I couldn't move my legs and could barely move my arms. Children's Hospital in Boston, MA has never seen anything like this. A four year with Guillain Barre syndrome. I treated with the best neurologist in the state...
    erynchanted616 erynchanted616 22-25 1 Response Aug 16, 2008

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    Gbs-doctors

    Hey Everyone, I had a very acute form of GBS. It began with symptoms, which I thought was severe stomach flu. I was exhausted and felt my legs were getting to "heavy" to move. At the time I was a private chef, working in people’s houses and yachts. I traveled a lot and was in...
    angiesam angiesam 26-30 6 Responses Apr 11, 2012

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    WOULD LOVE ADVICE! PLEASE READ!

    19 years old on Christmas. Year 3 of being a GBS survivor. It's honestly a blessing to be here today. I am thankful to walk, eat, and even go to the bathroom again. Many people who've had GBS had numbness start near their feet area and slowly creep it's way up until it's...
    mmbadger mmbadger 18-21, F 2 Responses Dec 15, 2013

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    Survivor

    Hi Guys am a Guillain Barre Syndrome survivor. I was 9 years old it happen on December, 2000 just after Christmas and Boxing Day. I spent about 3 to 4 weeks in the Hospital and slowly after the Hospital I regain my health. I was one of the lucky few survivor I came to a near...
    Alexander91 Alexander91 22-25, M Nov 3, 2013

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    GBS

    After several years I am still suffering flu-like symptoms and confined to bed often for weeks.
    sherrytam sherrytam 61-65, F Sep 30, 2013

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    I was camping with my family in November 2011

    had an awesome day kicking the footy(AFL) with a mate. during the day i started feeling light headed and weak in the knees but didn't think much of it. so it became night time i was standing by the fire when i feel my body start to sway a bit i thought i should sit down, i then...
    comftabull comftabull 18-21 Jan 17

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    Gone But Never Forgotten...

    I've always took advantage of life and didn't care about if I lived or died... basically was always depressed. I guess something or someone wanted to prove to me that there was more to life then just wanting to do absolutely nothing. And this was the BIG life changer for me... I...
    jenzi26 jenzi26 26-30 2 Responses Jul 24, 2013

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    The "AFTER-SHOCK" of Guillain-Barre' Syndrome -- 32 Years Later

    Hopefully, if my words have any information worthy of sharing, this note will be shared in order to help others understand the "after-shock" of Guillain-Barre' Syndrome -- 32 years later. I was recently asked the following question: You were hit as a teenager and the...
    1981SURVIVOR 1981SURVIVOR 51-55, F 5 Responses May 20, 2013

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    I Am a Survivor of Gbs Too!

    Alos a survivor, contracted it in 2005, went to ITU, life support etc got out of hospital 2006 (aged 22)and since then have completely changed my life! emigrated to South Africa, i ride, have horses and surf!! Yes miracles do happen! :) 
    beewee84 beewee84 22-25, F 3 Responses Aug 8, 2009

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    Lovely Way To Begin My Day

    I have begun the past 2 mornings by falling. It's a helluva way to begin the day....to begin assessing injuries incurred...Interesting that over this next week, I decided to work on being kind, compassionate to my body, which i am generally frustrated with and don't like much...
    clgsassy clgsassy 56-60, F 5 Responses May 30, 2013

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    Life After Gbs

    It will be one year October 8th that I woke up feeling like my feet were asleep only the feeling did not go away,later that day I would occasionally loose my balance while walking and I noticed food was tasting funny. I was frightened because I did not know what was going on...
    kim52 kim52 51-55 7 Responses Aug 10, 2012

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    Surviving One Day At a Time

    I am a Guillain Barre Syndrome Survivor. I'm thirty years old and first started experiencing symptoms August 16, 2007. It started with a little sore on my leg which I thought was a staph infection. The doctor tested it and said it was actually a strep infection and gave me...
    kdstew kdstew 26-30 6 Responses Jun 16, 2009

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    GBS Part 3

    I am finding,as i get older...the most difficult thing for meis not managing the excruciating painbut all the indignities i have had to managefrom the medical community/ins. companies....Like somehow I have to provewhat a hot mess my body is....either because of pain, muscular...
    clgsassy clgsassy 56-60, F 1 Response Apr 23, 2013

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    Gbs

    I too came down with gbs back in May 2011 and up to now im getting to the point werwe i hope that i will soon be able to walk on my own but i will beat this thing it wont get me down not if i can help it. be strong everyone .
    happy24 happy24 56-60, F Mar 27, 2012

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    Gbs Changed My Life.

    I HAVE SPENT THE LAST 5 MONTHS IN THE HOSPITAL.  IN SEPTEMBER 2010 I BEGAN EXPERIENCING WEAKNESS IN MY LEGS. ASSUMING I HAD A PINCHED NERVE FROM A RECENT SURGERY I CONTINUED WORKING, IGNORINNG THE NUMNESS AND TINGLING.  A FEW DAYS LATER I WOKE UP UNABLE TO TAKE A FEW STEPS...
    lindsay412 lindsay412 22-25 3 Responses Feb 15, 2011

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    This Is The Story Of My Mother

    My mom got Guillian barre syndrome on March 22, 2013. Was hospitalized for 7 weeks. Only after three weeks is that doctors discovered what was the illness of my mother. My mother in December of the previous year had Dengue. After this illness she was greatly weakened. A week...
    MQPA MQPA 41-45, F Oct 4, 2013

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    For Friends And Families Of Guillain-barre' Syndrome Survivors

    This was not written by me, but a friend of a GBS Survivor. It is meant to be shared to whomever will listen. First of all, I am not a GBS survivor, my best friend is. I am a below knee amputee, so I have my own demons. GBS not only affects the inflicted, but everyone in their...
    1981SURVIVOR 1981SURVIVOR 51-55, F 2 Responses Mar 6, 2013

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    I to had GBS when I was 9.

    This was 1979, did well got everything back except being able to lift my feet and toes upward. After 35 years my knees ankles and hips kill me. I remember nothing of my first 9 years or the hospital. Mom said I was in ICU for 45 days then I went to rehab for 1 year. Guess the...
    Jlewis009 Jlewis009 41-45, M Jan 11

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