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I Am a Guillain Barre Syndrome Survivor

Personal Stories, Advice, and Support 253 People

    Life With Gbs! Someone Who Can Understand

    My Name is Michele. I was diagnosed with GBS July of 2011. A spinal tap confirmed it. I was at my local hospital for a month. Suffering with sever pain and extreme weakness. After 30 days in that hospital they didn't know what to do with me. The neurologists here attempted to...
    MitziHernandez MitziHernandez 41-45, F 3 Responses Aug 18, 2012

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    I was diagnosed with GBS on January 25,

    2014. I am a stay at home to a very active 3 year old. I was pretty healthy and active before GBS. I got up on January 24 and it felt like my feet were alseep. I had a lot of numbness and tingling in my feet. I thought I just needed to move around and my feet would wake up. As...
    babiegurl27 babiegurl27 26-30, F 3 Responses Jun 20, 2014

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    I Am a Survivor of Gbs Too!

    Alos a survivor, contracted it in 2005, went to ITU, life support etc got out of hospital 2006 (aged 22)and since then have completely changed my life! emigrated to South Africa, i ride, have horses and surf!! Yes miracles do happen! :) 
    beewee84 beewee84 22-25, F 3 Responses Aug 8, 2009

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    GBS 9 Years Ago...

     In June 2001 I was diagnosed with GBS. One year almost to the day of my first anniversary with my sweet hubby.  This is my story....  I had gone to an amusement park on a Tuesday. The next day I had total vertigo- to the point I was running into walls at the...
    mp77 mp77 31-35, F 8 Responses Jul 6, 2009

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    Never Give In

    I was diagnosed with GBS in September of 09. I thought I had the flue but, 48 hours later, I was in intensive care @ BSA Hospital in Amarillo, Texas. I was 51 years old, married with 3 kids, a great job, and in no way prepared for what awaited me. On September 17th 2009, my...
    okcowman okcowman 56-60, M 7 Responses Mar 18, 2013

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    Check if content is inappropriate

    for children under 18 Cancel EP is a community based on authenticity, support, and respect. Please post with these values in mind.
    gillete gillete 41-45, M Jul 3

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    Gbs Changed My Life

    I decided to share something that I haven't talked to many People, about.... I know through knowledge is power... I also want to recognize for 2012 that I'm having a different outlook and will show appreciation for all that life has to offer. Here goes....Hi Guys,Here is my story...
    chell1223 chell1223 31-35 5 Responses Jan 2, 2012

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    Fish Sobrebiente De Guillain Barre Syndrome

    queridos lectores todos que esten pasando por una enfermedad quiero desirles que tengan fe y esperanza ase aprocimadamente un ano yo padesi esa emfermedad y desde mis ojos asta la punta de mis pies estava completanente inmovil grasias al tratamiento que resibi de celulas madres...
    blancagarza blancagarza 46-50, F Oct 29, 2013

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    I contracted GBS in Jan 2013.

    Was in ICU and rehab. It has been a tough journey. I have recovered tremendously, but not fully. Experiencing alot of muscle contrations which I cannot control. Fatigue every single day. Many frustrations as I cannot seem to explain what my body is going through when I look fine...
    fierozasmith fierozasmith 41-45, F Aug 11

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    Part III i look at my past GBS stories.

    .. although brutally honest... which i tend to reserve for justme... so grateful to report the love of a few close, dear friends... of family... and my Jesus has been faithful... even when i was faithless... brought me through that season of frost/barreness has begun to sprout...
    clgsassy clgsassy 56-60, F 1 Response Mar 19, 2014

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    September 2014: I am 29 years old

    and to celebrate my birthday I went to spa with my girlfriend. Everything was smooth until the next morning. I woke up Sunday with a splitting migraine, extreme chills and severe diarhea that lasted 5 days. I tried to see my primary doctor but then I figured it was just a...
    santrim santrim 26-30, F 1 Response Sep 25, 2014

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    8 Years Later :)

    I remember when I contracted GBS - was in the ICU for days, had to rehab back into walking, doing things for myself, etc.  The worst part was I'd go online and read stories and the outlook always seemed bleak. I was 18 when I contracted it, and it took at least a year to...
    crb2222 crb2222 26-30 4 Responses Nov 21, 2010

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    a continuous period of 44 full day

    and so far I can still move but scarcely severe pain and the back legs above with the mother and weaknesses as well as hands except grip hands are still working ... and average ??? Is it possible to go away
    gillete gillete 41-45, M Jul 3

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    Wow, there is a topic

    for what left me with not only 60 % of my strength. This terrible virus struck me down in 1988. I was unable to move anything but my head. Was it scary, what do you think. My lungs almost collapsed . I was in ER for 7 days . I had to be hand fed, washed , I had 5 major blood...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Feb 2, 2014

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    Guillain-Barre' Syndrome - Surviving The Aftermath Years After Onset

    I'm just ME... now a middle-aged lady from Alabama and a Survivor of Guillain-Barre' Syndrome (GBS). I have traveled a long journey in my life - the journey I would never wish on anyone. GBS not only has a paralyzing grip on your body, but is the WORST PAIN YOU CAN IMAGINE! GBS...
    1981SURVIVOR 1981SURVIVOR 51-55, F 13 Responses Feb 20, 2013

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    Eradicated entire colon last January

    and occurred after a kind of general weakness and the weakness of the engine that symptoms suddenly appeared in 44 Day divide continues to creep loudest back, legs, hands weakness and numbness I live in a country Namie do not know what to do, but I certainly will draw their...
    gillete gillete 41-45, M Jul 3

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    Brand New To All This, Quite A Club To Join!

    This is very new, I was diagnosed September 10th, 2013. I went to Morocco on vacation three months ago and came home with constant diarrhea which turned out to be Campylobacterus Jujunie. I didn't know the significance of that but do now. Early in September I started laughing...
    EMTurner EMTurner 51-55, F 2 Responses Sep 26, 2013

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    October 8 2014 was my last normal day .

    October 9th I started to feel tingling and numbness in my hands and feet. I felt weakness in my knees and fumbled things with my hands. So Friday the 10th I went to the ER and had my first lumbar puncture so they could look for elevated protein in my spinal fluid they did...
    aimeelou22 aimeelou22 36-40 4 Responses Oct 21, 2014

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    I was 26 years old when I got GBS.

    I was a new mom of a four month old baby girl. Before she was born I had taught 1st grade. The plan was to take a year off from teaching then go back. But while on leave, I got a bad sinus infection that led to GB. that was in 1991. It took several years for me to recover and...
    mommabrick5 mommabrick5 46-50, F 3 Responses Apr 7, 2014

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    WOULD LOVE ADVICE! PLEASE READ!

    19 years old on Christmas. Year 3 of being a GBS survivor. It's honestly a blessing to be here today. I am thankful to walk, eat, and even go to the bathroom again. Many people who've had GBS had numbness start near their feet area and slowly creep it's way up until it's...
    mmbadger mmbadger 18-21, F 2 Responses Dec 15, 2013

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    For Friends And Families Of Guillain-barre' Syndrome Survivors

    This was not written by me, but a friend of a GBS Survivor. It is meant to be shared to whomever will listen. First of all, I am not a GBS survivor, my best friend is. I am a below knee amputee, so I have my own demons. GBS not only affects the inflicted, but everyone in their...
    1981SURVIVOR 1981SURVIVOR 51-55, F 4 Responses Mar 6, 2013

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    My experience with GBS started around July 20,

    2013. It started with a tingling in my feet which then progressed throughout my legs. Within two days I started to stumble and the day after that I fell and was unable to get up. From the time I got admitted it took three hours for me to need oxygen support and only about four...
    liz2407 liz2407 22-25, F 1 Response Dec 3, 2013

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    I'm REALLY scared...I'm not sure

    if this is anything to go by, but I've read some of these story's and they all describe what I'm going through PERFECTLY! What should I do?????? Maybe it's nothing. I hope it's nothing.
    MatildaBlack MatildaBlack 13-15, F 2 Responses Oct 21, 2014

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    First Seen In Boston

    I was 4 years in in 1990 when I was diagnosed. I was paralyzed. I couldn't move my legs and could barely move my arms. Children's Hospital in Boston, MA has never seen anything like this. A four year with Guillain Barre syndrome. I treated with the best neurologist in the state...
    erynchanted616 erynchanted616 22-25 1 Response Aug 16, 2008

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    This Is The Story Of My Mother

    My mom got Guillian barre syndrome on March 22, 2013. Was hospitalized for 7 weeks. Only after three weeks is that doctors discovered what was the illness of my mother. My mother in December of the previous year had Dengue. After this illness she was greatly weakened. A week...
    MQPA MQPA 41-45, F Oct 4, 2013

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    I am Janice, a 77 year old female

    and had GBS 25 years ago. I was at UMMC then rehab for 2 months. Over the years I felt better but had some residual stuff, but about 8 months ago I developed back muscle pain and intense thigh muscle aches that persist. My GP referred me for PT & then and MRI. She thought I had...
    jlcaputi jlcaputi 70+, F 2 Responses Oct 3, 2014

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    I am 31 years old female

    and was diagnosed Guillain-Barré syndrome. I felt tingling weakness in my right leg and in few hours it started spreading to lower limbs and I realised something is grossly wrong so we immediately consulted the family physician who was very sharp enough to diagnose it and I...
    amishah154 amishah154 31-35, F Mar 23

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    Survivor

    Hi Guys am a Guillain Barre Syndrome survivor. I was 9 years old it happen on December, 2000 just after Christmas and Boxing Day. I spent about 3 to 4 weeks in the Hospital and slowly after the Hospital I regain my health. I was one of the lucky few survivor I came to a near...
    Alexander91 Alexander91 22-25, M Nov 3, 2013

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    Lovely Way To Begin My Day

    I have begun the past 2 mornings by falling. It's a helluva way to begin the day....to begin assessing injuries incurred...Interesting that over this next week, I decided to work on being kind, compassionate to my body, which i am generally frustrated with and don't like much...
    clgsassy clgsassy 56-60, F 5 Responses May 30, 2013

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    Surviving One Day At a Time

    I am a Guillain Barre Syndrome Survivor. I'm thirty years old and first started experiencing symptoms August 16, 2007. It started with a little sore on my leg which I thought was a staph infection. The doctor tested it and said it was actually a strep infection and gave me...
    kdstew kdstew 26-30 6 Responses Jun 16, 2009

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    Gbs Changed My Life.

    I HAVE SPENT THE LAST 5 MONTHS IN THE HOSPITAL.  IN SEPTEMBER 2010 I BEGAN EXPERIENCING WEAKNESS IN MY LEGS. ASSUMING I HAD A PINCHED NERVE FROM A RECENT SURGERY I CONTINUED WORKING, IGNORINNG THE NUMNESS AND TINGLING.  A FEW DAYS LATER I WOKE UP UNABLE TO TAKE A FEW STEPS...
    lindsay412 lindsay412 22-25 4 Responses Feb 15, 2011

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    gillete gillete 41-45, M Jul 3

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    Part 2 Okay it was a very emotional time in my

    life. Not allowed to drive until I'd been assessed by our local driver authority . That sucked big time. I told them from the department, if I can't drive, I'd rather not be here. ****, I had a young family . I was the bread winner . I made myself walk, 2 walking stick. 30...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Feb 2, 2014

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    It struck me when i was just 18yrs old.

    .. Now i'm 23yrs old its been almost 5yrs now... i was admitted to ICU on June , 2009, doctor gave my family just 48 hrs.. 21 days ventilator & 2 months in ICU... Really wen i looked back now its being a gr8 experience in my life which change my way towards looking thing... I...
    Fi10 Fi10 22-25, M Feb 19, 2014

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    Recovering From Guillain Barre

    My experience with GBS began in the end of May 2007.  I woke up with tingling finger tips and toes; the tip of my tongue was also numb.  After several doctor visits, intense pain in the back, stumbling to the ground, my husband called 911 and I was taken to the local...
    Beverlej Beverlej 56-60 6 Responses Jul 6, 2008

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    Gbs-doctors

    Hey Everyone, I had a very acute form of GBS. It began with symptoms, which I thought was severe stomach flu. I was exhausted and felt my legs were getting to "heavy" to move. At the time I was a private chef, working in people’s houses and yachts. I traveled a lot and was in...
    angiesam angiesam 26-30 6 Responses Apr 11, 2012

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    Eradicated entire colon last January

    and occurred after a kind of general weakness and the weakness of the engine that symptoms suddenly appeared in 44 Day divide continues to creep loudest back, legs, hands weakness and numbness I live in a country Namie do not know what to do, but I certainly will draw their...
    gillete gillete 41-45, M Jul 3

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    Never Give Up

    At the age of 51 I was a very busy wife,working mom and grandmother. Life seemed to be flying by.My husband and I spent all our free time outside of work in northern michigan at our lake house.We were making plans for our retirement that was a few years down the road.One morning...
    heysteve heysteve 51-55, F 2 Responses Jan 5, 2013

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    Life After Gbs

    It will be one year October 8th that I woke up feeling like my feet were asleep only the feeling did not go away,later that day I would occasionally loose my balance while walking and I noticed food was tasting funny. I was frightened because I did not know what was going on...
    kim52 kim52 51-55 8 Responses Aug 10, 2012

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    Guillain Barre Syndrome Survivor Part One

    sometimes thriver...othertimes...not so much...Iam23, 1stbaby, son, Grant3months young,not feeling well,felt like a common coldorrrsomekinda fluWithin 4 days i could notmove from theneckdownHusbandtakes me to doc"either rapid multiple Sclerosis"(ewwww...know what that is...scared...
    clgsassy clgsassy 56-60, F 1 Response Aug 2, 2012

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    I'm A 30 Year Guillain-Barre' Syndrome (GBS) Survivor!!!

    I had Gillain-Barre' Syndrome (GBS) in May 1981, at the age of 19.  At that time, I was full of energy and full of life... when it came to a sudden halt.  I had total paralysis, except one eyeball and one thumb joint.  Communication was impossible as I was on the vent for 40...
    1981SURVIVOR 1981SURVIVOR 51-55, F 8 Responses Apr 19, 2011

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    I Was 17, One Year Ago, When Gbs Hit.

    The morning after my senior prom, Sunday May 18 2008, I woke up to the flu and shooting pains in my legs. My mom thought I had just danced too much the previous night so she made me walk it out. However, it was so painful I was crying as I had...
    thatonechica thatonechica 18-21, F 2 Responses Oct 17, 2009

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    Im A Gbs Survivor

     one morning i woke up feeling not like myself. i was so weak i thought it was because i didnt eat anything. Then that evening i started vomitting. Then i became even more weak. I needed help getting out the bed, eating, and in and out the bed...
    india25 india25 26-30, F 6 Responses May 12, 2010

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    I have had GBS since 2011,

    I was quarantined with my stepmother who had H1N1, I myself have never had a flu shot. I had know idea i had GBS, the doctors told me it was in my head at first. 5 doctors and 2 neurologists later, they discovered I have chronic GBS... I still have no use of my right leg and in...
    charityrw39 charityrw39 36-40, F 2 Responses Jun 1, 2014

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    I was camping with my family in November 2011

    had an awesome day kicking the footy(AFL) with a mate. during the day i started feeling light headed and weak in the knees but didn't think much of it. so it became night time i was standing by the fire when i feel my body start to sway a bit i thought i should sit down, i then...
    comftabull comftabull 18-21 Jan 17, 2014

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    I Am A Guillain Barre Syndrome Survivor

    I can only say that I must be extremly lucky. Just a few weeks ago following a heavy cold I woke to tingling in the toes and fingers. I worked with this thinking little of it and expecting the symptoms to dissipate after a good nights sleep. On the 3rd morning I noticed a...