I Am a Guillain Barre Syndrome Survivor

Personal Stories, Advice, and Support 260 People

    I have had GBS since 2011,

    I was quarantined with my stepmother who had H1N1, I myself have never had a flu shot. I had know idea i had GBS, the doctors told me it was in my head at first. 5 doctors and 2 neurologists later, they discovered I have chronic GBS... I still have no use of my right leg and in...
    charityrw39 charityrw39
    41-45, F
    2 Responses Jun 1, 2014

    Gbs Changed My Life

    I decided to share something that I haven't talked to many People, about.... I know through knowledge is power... I also want to recognize for 2012 that I'm having a different outlook and will show appreciation for all that life has to offer. Here goes....Hi Guys,Here is my story...
    chell1223 chell1223
    5 Responses Jan 2, 2012

    I am recovering from Guillain-Barre Syndromee

    (GBS). After 27 months I am nearly able to stand up with the help of one person and can walk very short distances using a rollator. I would like to help others wiiith the same synndrome.
    Louise13GBS Louise13GBS
    61-65, F
    1 Response Sep 5, 2015

    Part 2 Okay it was a very emotional time in my

    life. Not allowed to drive until I'd been assessed by our local driver authority . That sucked big time. I told them from the department, if I can't drive, I'd rather not be here. ****, I had a young family . I was the bread winner . I made myself walk, 2 walking stick. 30...
    deleted deleted
    1 Response Feb 2, 2014

    Part III i look at my past GBS stories.

    .. although brutally honest... which i tend to reserve for justme... so grateful to report the love of a few close, dear friends... of family... and my Jesus has been faithful... even when i was faithless... brought me through that season of frost/barreness has begun to sprout...
    clgsassy clgsassy
    56-60, F
    1 Response Mar 19, 2014

    I Am A Guillain Barre Syndrome Survivor

    I can only say that I must be extremly lucky. Just a few weeks ago following a heavy cold I woke to tingling in the toes and fingers. I worked with this thinking little of it and expecting the symptoms to dissipate after a good nights sleep. On the 3rd morning I noticed a...
    Pauls73 Pauls73
    1 Response Oct 30, 2013

    Eradicated entire colon last January

    and occurred after a kind of general weakness and the weakness of the engine that symptoms suddenly appeared in 44 Day divide continues to creep loudest back, legs, hands weakness and numbness I live in a country Namie do not know what to do, but I certainly will draw their...
    gillete gillete
    46-50, M
    Jul 3, 2015

    Lovely Way To Begin My Day

    I have begun the past 2 mornings by falling. It's a helluva way to begin the day....to begin assessing injuries incurred...Interesting that over this next week, I decided to work on being kind, compassionate to my body, which i am generally frustrated with and don't like much...
    clgsassy clgsassy
    56-60, F
    5 Responses May 30, 2013

    I'm REALLY scared...I'm not sure

    if this is anything to go by, but I've read some of these story's and they all describe what I'm going through PERFECTLY! What should I do?????? Maybe it's nothing. I hope it's nothing.
    MatildaBlack MatildaBlack
    16-17, F
    2 Responses Oct 21, 2014

    My experience with GBS started around July 20,

    2013. It started with a tingling in my feet which then progressed throughout my legs. Within two days I started to stumble and the day after that I fell and was unable to get up. From the time I got admitted it took three hours for me to need oxygen support and only about four...
    liz2407 liz2407
    22-25, F
    1 Response Dec 3, 2013

    Never Give Up

    At the age of 51 I was a very busy wife,working mom and grandmother. Life seemed to be flying by.My husband and I spent all our free time outside of work in northern michigan at our lake house.We were making plans for our retirement that was a few years down the road.One morning...
    heysteve heysteve
    51-55, F
    3 Responses Jan 5, 2013

    Never Give In

    I was diagnosed with GBS in September of 09. I thought I had the flue but, 48 hours later, I was in intensive care @ BSA Hospital in Amarillo, Texas. I was 51 years old, married with 3 kids, a great job, and in no way prepared for what awaited me. On September 17th 2009, my...
    okcowman okcowman
    56-60, M
    7 Responses Mar 18, 2013

    I was camping with my family in November 2011

    had an awesome day kicking the footy(AFL) with a mate. during the day i started feeling light headed and weak in the knees but didn't think much of it. so it became night time i was standing by the fire when i feel my body start to sway a bit i thought i should sit down, i then...
    comftabull comftabull
    Jan 17, 2014

    Gbs Changed My Life.

    lindsay412 lindsay412
    4 Responses Feb 15, 2011

    September 2014: I am 29 years old

    and to celebrate my birthday I went to spa with my girlfriend. Everything was smooth until the next morning. I woke up Sunday with a splitting migraine, extreme chills and severe diarhea that lasted 5 days. I tried to see my primary doctor but then I figured it was just a...
    santrim santrim
    31-35, F
    1 Response Sep 25, 2014

    a continuous period of 44 full day

    and so far I can still move but scarcely severe pain and the back legs above with the mother and weaknesses as well as hands except grip hands are still working ... and average ??? Is it possible to go away
    gillete gillete
    46-50, M
    Jul 3, 2015

    I'm A 30 Year Guillain-Barre' Syndrome (GBS) Survivor!!!

    I had Gillain-Barre' Syndrome (GBS) in May 1981, at the age of 19.  At that time, I was full of energy and full of life... when it came to a sudden halt.  I had total paralysis, except one eyeball and one thumb joint.  Communication was impossible as I was on the vent for 40...
    51-55, F
    9 Responses Apr 19, 2011


    19 years old on Christmas. Year 3 of being a GBS survivor. It's honestly a blessing to be here today. I am thankful to walk, eat, and even go to the bathroom again. Many people who've had GBS had numbness start near their feet area and slowly creep it's way up until it's...
    mmbadger mmbadger
    22-25, F
    2 Responses Dec 15, 2013


    Hi Guys am a Guillain Barre Syndrome survivor. I was 9 years old it happen on December, 2000 just after Christmas and Boxing Day. I spent about 3 to 4 weeks in the Hospital and slowly after the Hospital I regain my health. I was one of the lucky few survivor I came to a near...
    Alexander91 Alexander91
    26-30, M
    Nov 3, 2013

    Im A Gbs Survivor

     one morning i woke up feeling not like myself. i was so weak i thought it was because i didnt eat anything. Then that evening i started vomitting. Then i became even more weak. I needed help getting out the bed, eating, and in and out the bed...
    india25 india25
    26-30, F
    6 Responses May 12, 2010

    Life After Gbs

    It will be one year October 8th that I woke up feeling like my feet were asleep only the feeling did not go away,later that day I would occasionally loose my balance while walking and I noticed food was tasting funny. I was frightened because I did not know what was going on...
    kim52 kim52
    8 Responses Aug 10, 2012

    I am Janice, a 77 year old female

    and had GBS 25 years ago. I was at UMMC then rehab for 2 months. Over the years I felt better but had some residual stuff, but about 8 months ago I developed back muscle pain and intense thigh muscle aches that persist. My GP referred me for PT & then and MRI. She thought I had...
    jlcaputi jlcaputi
    70+, F
    2 Responses Oct 3, 2014

    Guillain-Barre' Syndrome - Surviving The Aftermath Years After Onset

    I'm just ME... now a middle-aged lady from Alabama and a Survivor of Guillain-Barre' Syndrome (GBS). I have traveled a long journey in my life - the journey I would never wish on anyone. GBS not only has a paralyzing grip on your body, but is the WORST PAIN YOU CAN IMAGINE! GBS...
    51-55, F
    14 Responses Feb 20, 2013

    First Seen In Boston

    I was 4 years in in 1990 when I was diagnosed. I was paralyzed. I couldn't move my legs and could barely move my arms. Children's Hospital in Boston, MA has never seen anything like this. A four year with Guillain Barre syndrome. I treated with the best neurologist in the state...
    erynchanted616 erynchanted616
    1 Response Aug 16, 2008

    GBS 9 Years Ago...

     In June 2001 I was diagnosed with GBS. One year almost to the day of my first anniversary with my sweet hubby.  This is my story....  I had gone to an amusement park on a Tuesday. The next day I had total vertigo- to the point I was running into walls at the...
    mp77 mp77
    31-35, F
    8 Responses Jul 6, 2009

    Recovering From Guillain Barre

    My experience with GBS began in the end of May 2007.  I woke up with tingling finger tips and toes; the tip of my tongue was also numb.  After several doctor visits, intense pain in the back, stumbling to the ground, my husband called 911 and I was taken to the local...
    Beverlej Beverlej
    6 Responses Jul 6, 2008


    Hey Everyone, I had a very acute form of GBS. It began with symptoms, which I thought was severe stomach flu. I was exhausted and felt my legs were getting to "heavy" to move. At the time I was a private chef, working in people’s houses and yachts. I traveled a lot and was in...
    angiesam angiesam
    6 Responses Apr 11, 2012

    Eradicated entire colon last January

    and occurred after a kind of general weakness and the weakness of the engine that symptoms suddenly appeared in 44 Day divide continues to creep loudest back, legs, hands weakness and numbness I live in a country Namie do not know what to do, but I certainly will draw their...
    gillete gillete
    46-50, M
    Jul 3, 2015

    My Story

    My life has changed so much in the last months. It was two weeks before Christmas and  I was working and my back was killing me.   I lift a lot of heavy stuff at work and I thought that I had pulled my back. I went to the doctor and she ordered a MRI because my...
    katia1421 katia1421
    16 Responses May 16, 2008

    I was diagnosed with GBS on January 25,

    2014. I am a stay at home to a very active 3 year old. I was pretty healthy and active before GBS. I got up on January 24 and it felt like my feet were alseep. I had a lot of numbness and tingling in my feet. I thought I just needed to move around and my feet would wake up. As...
    babiegurl27 babiegurl27
    31-35, F
    2 Responses Jun 20, 2014

    I have acute motor axonal neuropathy.

    It's the evil stepchild of Guillain-Barré syndrome and the nasty cousin of chronic inflammatory demyelinating polyneuropathy whatyourdonotknowbecauseyouarenotme.blogspot.com/
    ChickenUnderwear ChickenUnderwear
    Jan 3, 2016

    I am 31 years old female

    and was diagnosed Guillain-Barré syndrome. I felt tingling weakness in my right leg and in few hours it started spreading to lower limbs and I realised something is grossly wrong so we immediately consulted the family physician who was very sharp enough to diagnose it and I...
    amishah154 amishah154
    31-35, F
    1 Response Mar 23, 2015

    Check if content is inappropriate

    for children under 18 Cancel EP is a community based on authenticity, support, and respect. Please post with these values in mind.
    gillete gillete
    46-50, M
    Jul 3, 2015

    For Friends And Families Of Guillain-barre' Syndrome Survivors

    This was not written by me, but a friend of a GBS Survivor. It is meant to be shared to whomever will listen. First of all, I am not a GBS survivor, my best friend is. I am a below knee amputee, so I have my own demons. GBS not only affects the inflicted, but everyone in their...
    51-55, F
    3 Responses Mar 6, 2013

    Guillain Barre Syndrome Survivor Part One

    sometimes thriver...othertimes...not so much...Iam23, 1stbaby, son, Grant3months young,not feeling well,felt like a common coldorrrsomekinda fluWithin 4 days i could notmove from theneckdownHusbandtakes me to doc"either rapid multiple Sclerosis"(ewwww...know what that is...scared...
    clgsassy clgsassy
    56-60, F
    1 Response Aug 2, 2012
    gillete gillete
    46-50, M
    Jul 3, 2015

    I contracted GBS in Jan 2013.

    Was in ICU and rehab. It has been a tough journey. I have recovered tremendously, but not fully. Experiencing alot of muscle contrations which I cannot control. Fatigue every single day. Many frustrations as I cannot seem to explain what my body is going through when I look fine...
    fierozasmith fierozasmith
    46-50, F
    Aug 11, 2015

    Surviving One Day At a Time

    I am a Guillain Barre Syndrome Survivor. I'm thirty years old and first started experiencing symptoms August 16, 2007. It started with a little sore on my leg which I thought was a staph infection. The doctor tested it and said it was actually a strep infection and gave me...
    kdstew kdstew
    6 Responses Jun 16, 2009

    I to had GBS when I was 9.

    This was 1979, did well got everything back except being able to lift my feet and toes upward. After 35 years my knees ankles and hips kill me. I remember nothing of my first 9 years or the hospital. Mom said I was in ICU for 45 days then I went to rehab for 1 year. Guess the...
    Jlewis009 Jlewis009
    46-50, M
    Jan 11, 2014

    without symptoms of the disease

    or immune plasma treatments or is it to be dealt with? I thank you and I hope to
    gillete gillete
    46-50, M
    Jul 3, 2015

    I Am a Survivor of Gbs Too!

    Alos a survivor, contracted it in 2005, went to ITU, life support etc got out of hospital 2006 (aged 22)and since then have completely changed my life! emigrated to South Africa, i ride, have horses and surf!! Yes miracles do happen! :) 
    beewee84 beewee84
    22-25, F
    2 Responses Aug 8, 2009

    It struck me when i was just 18yrs old.

    .. Now i'm 23yrs old its been almost 5yrs now... i was admitted to ICU on June , 2009, doctor gave my family just 48 hrs.. 21 days ventilator & 2 months in ICU... Really wen i looked back now its being a gr8 experience in my life which change my way towards looking thing... I...
    Fi10 Fi10
    26-30, M
    Feb 19, 2014

    Wow, there is a topic

    for what left me with not only 60 % of my strength. This terrible virus struck me down in 1988. I was unable to move anything but my head. Was it scary, what do you think. My lungs almost collapsed . I was in ER for 7 days . I had to be hand fed, washed , I had 5 major blood...
    deleted deleted
    2 Responses Feb 2, 2014

    I got GBS back in December 2014 it's

    so hard I'm trying to keep my head up
    mike718 mike718
    36-40, M
    Feb 10, 2016

    8 Years Later :)

    I remember when I contracted GBS - was in the ICU for days, had to rehab back into walking, doing things for myself, etc.  The worst part was I'd go online and read stories and the outlook always seemed bleak. I was 18 when I contracted it, and it took at least a year to...
    crb2222 crb2222
    4 Responses Nov 21, 2010

    I Was 17, One Year Ago, When Gbs Hit.

    The morning after my senior prom, Sunday May 18 2008, I woke up to the flu and shooting pains in my legs. My mom thought I had just danced too much the previous night so she made me walk it out. However, it was so painful I was crying as I had...
    thatonechica thatonechica
    18-21, F
    2 Responses Oct 17, 2009

    October 8 2014 was my last normal day .

    October 9th I started to feel tingling and numbness in my hands and feet. I felt weakness in my knees and fumbled things with my hands. So Friday the 10th I went to the ER and had my first lumbar puncture so they could look for elevated protein in my spinal fluid they did...
    aimeelou22 aimeelou22
    4 Responses Oct 21, 2014

    Life With Gbs! Someone Who Can Understand

    My Name is Michele. I was diagnosed with GBS July of 2011. A spinal tap confirmed it. I was at my local hospital for a month. Suffering with sever pain and extreme weakness. After 30 days in that hospital they didn't know what to do with me. The neurologists here attempted to...
    MitziHernandez MitziHernandez
    41-45, F
    3 Responses Aug 18, 2012

    Okay this very rare virus I contacted just over

    26 years ago. Now I still can't get up from the ground in the sitting position without help. Do more exercise to strengthen your muscles the so called do gooders tell me. I know I've already written my Experience on the F ing terrible mental state I feel today .., this is it...
    deleted deleted
    1 Response Mar 27, 2014

    Fish Sobrebiente De Guillain Barre Syndrome

    queridos lectores todos que esten pasando por una enfermedad quiero desirles que tengan fe y esperanza ase aprocimadamente un ano yo padesi esa emfermedad y desde mis ojos asta la punta de mis pies estava completanente inmovil grasias al tratamiento que resibi de celulas madres...
    blancagarza blancagarza
    51-55, F
    Oct 29, 2013

    I was 26 years old when I got GBS.

    I was a new mom of a four month old baby girl. Before she was born I had taught 1st grade. The plan was to take a year off from teaching then go back. But while on leave, I got a bad sinus infection that led to GB. that was in 1991. It took several years for me to recover and...
    mommabrick5 mommabrick5
    51-55, F
    3 Responses Apr 7, 2014
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