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I Am a Guillain Barre Syndrome Survivor

Personal Stories, Advice, and Support 220 People

    Im A Gbs Survivor -  one morning i woke up feeling not like myself. i was so weak i thought it was because i didnt eat anything. Then that evening i started vomitting...
    india25 india25 26-30, F 6 Responses May 12, 2010

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    HOW COULD THIS HAPPEN TO ME??!! - "HOW COULD THIS HAPPEN TO ME??!!!" Written by 1981 Survivor(Reviewed and Approved by Clint) What word would you use for EXTREME pain??? When I was...
    1981SURVIVOR 1981SURVIVOR 51-55, F Feb 22, 2013

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    For Friends And Families Of Guillain-barre' Syndrome Survivors - This was not written by me, but a friend of a GBS Survivor. It is meant to be shared to whomever will listen...
    1981SURVIVOR 1981SURVIVOR 51-55, F 2 Responses Mar 6, 2013

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    I Am A Guillain Barre Syndrome Survivor - I can only say that I must be extremly lucky. Just a few weeks ago following a heavy cold I woke to tingling in the toes and fingers. I...
    Pauls73 Pauls73 56-60 Oct 30, 2013

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    Guillian Barre Survivor But Still A Few Symtoms After 7 Years. - The most puzzling thing for me about getting this syndrome is trying to figure out what cause it in the first place...
    shaunapark shaunapark 56-60 1 Response Dec 24, 2011

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    4 X Gillian Barre Survivor - Brett's Story Where does one begin I am one of four brothers the second of twins, my father was in the RAAF so the family moved about frequently from...
    Bhalvorson Bhalvorson 51-55 1 Response Jun 9, 2013

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    I to had GBS when I was 9. This was 1979, did well got everything back except being able to lift my feet and toes upward. After 35 years my knees ankles and hips kill me. I...
    Jlewis009 Jlewis009 41-45, M Jan 11

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    I Am a Survivor of Gbs Too! - Alos a survivor, contracted it in 2005, went to ITU, life support etc got out of hospital 2006 (aged 22)and since then have completely changed my life...
    beewee84 beewee84 22-25, F 3 Responses Aug 8, 2009

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    Okay this very rare virus I contacted just over 26 years ago. Now I still can't get up from the ground in the sitting position without help. Do more exercise to strengthen your...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Mar 27

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    I'm A 30 Year Guillain-Barre' Syndrome (GBS) Survivor!!! - I had Gillain-Barre' Syndrome (GBS) in May 1981, at the age of 19.  At that time, I was full of energy and full of life...
    1981SURVIVOR 1981SURVIVOR 51-55, F 7 Responses Apr 19, 2011

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    Gbs-doctors - Hey Everyone, I had a very acute form of GBS. It began with symptoms, which I thought was severe stomach flu. I was exhausted and felt my legs were getting to...
    angiesam angiesam 26-30 6 Responses Apr 11, 2012

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    My experience with GBS started around July 20, 2013. It started with a tingling in my feet which then progressed throughout my legs. Within two days I started to stumble and the...
    liz2407 liz2407 18-21, F 1 Response Dec 3, 2013

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    GBS - After several years I am still suffering flu-like symptoms and confined to bed often for weeks.
    sherrytam sherrytam 61-65, F Sep 30, 2013

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    Gbs Changed My Life - I decided to share something that I haven't talked to many People, about.... I know through knowledge is power... I also want to recognize for 2012 that I'm...
    chell1223 chell1223 31-35 5 Responses Jan 2, 2012

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    Life After Gbs - It will be one year October 8th that I woke up feeling like my feet were asleep only the feeling did not go away,later that day I would occasionally loose my...
    kim52 kim52 51-55 7 Responses Aug 10, 2012

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    GBS 9 Years Ago... -  In June 2001 I was diagnosed with GBS. One year almost to the day of my first anniversary with my sweet hubby.  This is my story....  I...
    mp77 mp77 31-35, F 5 Responses Jul 6, 2009

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    Guillain Barre Syndrome Survivor Part One - sometimes thriver...othertimes...not so much...Iam23, 1stbaby, son, Grant3months young,not feeling well,felt like a common...
    clgsassy clgsassy 56-60, F 1 Response Aug 2, 2012

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    Lovely Way To Begin My Day - I have begun the past 2 mornings by falling. It's a helluva way to begin the day....to begin assessing injuries incurred...Interesting that over this...
    clgsassy clgsassy 56-60, F 6 Responses May 30, 2013

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    Recovering From Guillain Barre - My experience with GBS began in the end of May 2007.  I woke up with tingling finger tips and toes; the tip of my tongue was also numb. ...
    Beverlej Beverlej 56-60 6 Responses Jul 6, 2008

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    I Was 17, One Year Ago, When Gbs Hit. - The morning after my senior prom, Sunday May 18 2008, I woke up to the flu and shooting pains in my legs. My mom thought...
    thatonechica thatonechica 18-21, F 2 Responses Oct 17, 2009

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    Survivor And Wondering If Anyone Else Experienced This... - I had Guilliane Barre in early 2001, 12 years ago! I had foot drop in my right foot and noticed I was tripping over my...
    nessad24 nessad24 36-40 2 Responses Apr 6, 2013

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    Never Give Up - At the age of 51 I was a very busy wife,working mom and grandmother. Life seemed to be flying by.My husband and I spent all our free time outside of work in...
    heysteve heysteve 51-55, F 2 Responses Jan 5, 2013

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    I was 26 years old when I got GBS. I was a new mom of a four month old baby girl. Before she was born I had taught 1st grade. The plan was to take a year off from teaching then go...
    mommabrick5 mommabrick5 46-50, F 1 Response Apr 7

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    Brand New To All This, Quite A Club To Join! - This is very new, I was diagnosed September 10th, 2013. I went to Morocco on vacation three months ago and came home with constant...
    EMTurner EMTurner 51-55, F 1 Response Sep 26, 2013

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    My Story - My life has changed so much in the last months. It was two weeks before Christmas and  I was working and my back was killing me.   I lift a lot of heavy...
    katia1421 katia1421 36-40 14 Responses May 16, 2008

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    This Is The Story Of My Mother - My mom got Guillian barre syndrome on March 22, 2013. Was hospitalized for 7 weeks. Only after three weeks is that doctors discovered what was the...
    MQPA MQPA 41-45, F Oct 4, 2013

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    The "AFTER-SHOCK" of Guillain-Barre' Syndrome -- 32 Years Later - Hopefully, if my words have any information worthy of sharing, this note will be shared in order to...
    1981SURVIVOR 1981SURVIVOR 51-55, F 5 Responses May 20, 2013

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    Surviving One Day At a Time - I am a Guillain Barre Syndrome Survivor. I'm thirty years old and first started experiencing symptoms August 16, 2007. It started with a little sore...
    kdstew kdstew 26-30 6 Responses Jun 16, 2009

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    Guillain-Barre' Syndrome - Surviving The Aftermath Years After Onset - I'm just ME... now a middle-aged lady from Alabama and a Survivor of Guillain-Barre' Syndrome (GBS). I have...
    1981SURVIVOR 1981SURVIVOR 51-55, F 6 Responses Feb 20, 2013

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    WOULD LOVE ADVICE! PLEASE READ! 19 years old on Christmas. Year 3 of being a GBS survivor. It's honestly a blessing to be here today. I am thankful to walk, eat, and even go to...
    mmbadger mmbadger 18-21, F 2 Responses Dec 15, 2013

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    March 22, 2011 - I was diagnosed with GBS shortly after being hospitalized March 22, 2011. I was 23 and my dad and I had just come back to Ohio from going up to Northern Michigan...
    Norway87 Norway87 26-30, F Sep 17, 2013

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    Part 2 Okay it was a very emotional time in my life. Not allowed to drive until I'd been assessed by our local driver authority . That sucked big time. I told them from the...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Feb 2

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    My Dad Dint Survive - Lucky are those who survive its a tough journey but never give up. My dad started vomiting saturday night we immediately took him to hospital, he was feeling...
    Feb 7, 2013

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    8 Years Later :) - I remember when I contracted GBS - was in the ICU for days, had to rehab back into walking, doing things for myself, etc.  The worst part was I'd go online...
    crb2222 crb2222 26-30 3 Responses Nov 21, 2010

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    I Got It The 2nd Time This Jan...... - i was 38 when i came down with gbs.....it took me almost 1 yr 2 recover they told me i was the worst they have ever seen in toledo ohio...
    ziluun ziluun 41-45, F 3 Responses Apr 23, 2012

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    Part III i look at my past GBS stories... although brutally honest... which i tend to reserve for justme... so grateful to report the love of a few close, dear friends... of family...
    clgsassy clgsassy 56-60, F 1 Response Mar 19

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    Life With Gbs! Someone Who Can Understand - My Name is Michele. I was diagnosed with GBS July of 2011. A spinal tap confirmed it. I was at my local hospital for a month. Suffering...
    MitziHernandez MitziHernandez 41-45, F 3 Responses Aug 18, 2012

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    Survivor - Hi Guys am a Guillain Barre Syndrome survivor. I was 9 years old it happen on December, 2000 just after Christmas and Boxing Day. I spent about 3 to 4 weeks in the...
    Alexander91 Alexander91 22-25, M Nov 3, 2013

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    Hanging in there with GBS and a Colostomy! - My husband and I both are retired somewhat from our regular jobs. My husband is still preaching in a small delta town in Mississippi...
    Kaybo59 Kaybo59 70+, F 1 Response Apr 9, 2013

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    Fish Sobrebiente De Guillain Barre Syndrome - queridos lectores todos que esten pasando por una enfermedad quiero desirles que tengan fe y esperanza ase aprocimadamente un ano yo...
    blancagarza blancagarza 46-50, F Oct 29, 2013

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    It's Almost Been A Year Now - I am a Guillain barre Syndrome survivor, and my story is pretty similar to those that i have personally talked to, though very different from ones i...
    wanderer21 wanderer21 41-45, M Aug 27, 2013

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    GBS Part 3 - I am finding,as i get older...the most difficult thing for meis not managing the excruciating painbut all the indignities i have had to managefrom the medical...
    clgsassy clgsassy 56-60, F 2 Responses Apr 23, 2013

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    Gone But Never Forgotten... - I've always took advantage of life and didn't care about if I lived or died... basically was always depressed. I guess something or someone wanted to...
    jenzi26 jenzi26 26-30 2 Responses Jul 24, 2013

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    Wow, there is a topic for what left me with not only 60 % of my strength. This terrible virus struck me down in 1988. I was unable to move anything but my head. Was it scary, what...
    JohnCrighton JohnCrighton 51-55, M 1 Response Feb 2

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    First Seen In Boston - I was 4 years in in 1990 when I was diagnosed. I was paralyzed. I couldn't move my legs and could barely move my arms. Children's Hospital in Boston, MA has...
    erynchanted616 erynchanted616 22-25 1 Response Aug 16, 2008

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    Gbs Changed My Life. - I HAVE SPENT THE LAST 5 MONTHS IN THE HOSPITAL.  IN SEPTEMBER 2010 I BEGAN EXPERIENCING WEAKNESS IN MY LEGS. ASSUMING I HAD A PINCHED NERVE FROM A RECENT...
    lindsay412 lindsay412 22-25 3 Responses Feb 15, 2011

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    Never Give In - I was diagnosed with GBS in September of 09. I thought I had the flue but, 48 hours later, I was in intensive care @ BSA Hospital in Amarillo, Texas. I was 51 years...
    okcowman okcowman 51-55, M 6 Responses Mar 18, 2013

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    I was camping with my family in November 2011 had an awesome day kicking the footy(AFL) with a mate. during the day i started feeling light headed and weak in the knees but didn't...
    comftabull comftabull 18-21 Jan 17

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    It struck me when i was just 18yrs old... Now i'm 23yrs old its been almost 5yrs now... i was admitted to ICU on June , 2009, doctor gave my family just 48 hrs.. 21 days...
    Fi10 Fi10 22-25, M Feb 19

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    Related Experiences

    My mother (53) was diagnosed 3 days ago and it is awful. She is currently in the ICU on a breathing tube plus many other tubes. My sister and I are doing our best to help as much...
    Creeder1 Creeder1 26-30, M a week ago

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