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I Am a Heart Transplant Patient

Personal Stories, Advice, and Support 32 People

    Dialated Cardiomayopathy

       Hello! I am Cassidy. I was diagnosed with dialated cardiomayopathy when I was 18 months old. I had to have a heart transplant. The doctors said I would live until I was around the age of seven and probably have to have another transplant but I am now 13 and am doing great...
    CassidyRyanna CassidyRyanna 13-15 1 Response Jun 9, 2012

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    Heart Failure At 30

    My name is Aimee.   I went into congestive heart failure at the age of 29 while 7 months pregnant with my daughter.  I had a difficult pregnancy with many sleepless nights and difficulty breathing.  I told my OB repeatedly about these problems but they were brushed off as...
    abrashear abrashear 31-35 Mar 9, 2011

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    New Heart Transplant Patient

    My name is NinaCar Barbieri. I'm 41 years old and I have been just placed on the heart transplant list. I live in Florida and I go to Shands hospital in Gainsville.I'm looking to meet other patients and share experiences along with making new friends
    NCar NCar 41-45, F 4 Responses Jul 10, 2011

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    Born in 1989 Got my transplant at 3 weeks old

    (7/4/89) Then right after got a second at 7 weeks old (08/05/89) This year (2014) will be 25 years !!!
    jfm8907 jfm8907 22-25, M 1 Response Jan 5

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    New Heart, New Life 8/10/2010

    Hi my name is John I am 63 years old and got my new heart a little over a year ago. Things are great didn't know how bad I was and now every day I find something I used to do and am now able to do again.
    jcsmokey jcsmokey 61-65, M 1 Response Nov 2, 2011

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    HEART Transplant @ 26

    Hi my name is Andrea and I received a heart transplant in May of 2004 it has been almost 5 years.  I am 31 years old now and It has been a long hall!! I  was diagnosed with heart failure at age 23 while I had just gotten married and was teaching kindergarten as well as...
    andreasaha1977 andreasaha1977 31-35 1 Response Mar 31, 2009

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    Today is my 4 year heart transplant anniversary

    but its not as great as everyone thinks it is well at least for me anyway. It's more a living hell, doctors tell me what I can and cannot do like if its their life. I'm depressed most of the time and being a teen having heart failure I was always in the hospital instead of being...
    MrDysfunctional MrDysfunctional 18-21, M 1 Response Jun 26

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    Ahuman Want to Helpt Any Heart Patient

    my name is nana my mam is a heart patient since i was 5 years old and my dad have aheart disease in the last naw i am in 19 years old and i really want to help and support any heart patient feel that he need afriend understand his pain and anyone want to communicate i am waiting...
    nana500 nana500 18-21 1 Response Jun 3, 2009

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    I Am A Father Who Lost His Daughter

    My daughter, Paige, always wanted to be an organ donor, so when she turned 16 she proudly registered on the donor's list. Well, I am 45 years old and had heart failure. I have been waiting years to get a new heart. Well, on December 3rd, 2011 my daughter was on her way to my...
    Kittykatisme890 Kittykatisme890 41-45, M 1 Response Nov 9, 2013

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    Related Experiences

    Ok so four days ago it happened. Nurse came into my ward and told me they had a potential donor again and the team were on their way to assess it, just like the first time. Only...
    InstantCustard InstantCustard 26-30, M 2 Responses Oct 16

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    Long term illness is difficult to deal with at the best of times, but being told you need major surgery like a heart transplant is not what I'd call pleasant. I have spent the...
    InstantCustard InstantCustard 26-30, M Oct 12

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    I am I and you are you whatever we are to each other our hearts know. I speak to your heart ,every moment I crave for your touch. Knowing Impossible cant be made possible still why...
    winterfall winterfall 36-40 8 hrs ago

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    I want mend broken heart I wish you'd get out of my heart Quit leaving pictures of us there. Quit painting yourself in the red dress we danced in and then threw away by our...
    MrHeartaFire MrHeartaFire 31-35, M 2 Responses 5 hrs ago

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    hearts hearts hearts!! i just love em!
    ishansaha24 ishansaha24 18-21, M 3 hrs ago

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    I can't do it anymore. I wanted to be strong. I don't want to guilt him. I didn't guilt him last time. He came back on his own. I only left him two messages, neither pressuring nor...
    WingsofTime WingsofTime 22-25, F Oct 3

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    The hCG used for the hCG weight-loss protocol is found in guys. We offer doctor and medically assisted weight reduction supervised %link%. The hCG diet is fast becoming the go-to...
    brandonmejia245 brandonmejia245 26-30, M Sep 24

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    I feel helpless. It really is out of my control. I don't know if there's anything else that I can do. I'm frustrated because I had just typed out a long paragraph and it got erased...
    WingsofTime WingsofTime 22-25, F 1 Response Oct 10

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    I don't know what to do. I can't persuade him of anything. He has to figure it out on his own. I just hope the happiness and love I brought into this relationship is enough for him...
    WingsofTime WingsofTime 22-25, F 1 Response Oct 12

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    Right now, I need to focus on mending my insecurities and problems. Here are some quotes that I can relate to. I'll come back and read these every time I feel like breaking down...
    WingsofTime WingsofTime 22-25, F Oct 10

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    The struggle within of right and wrong. Logic telling you to run, yet the heart is begging and pulling you to stay and never let go. The emotions so strong that it is a constant...
    ThoughtFulMoments ThoughtFulMoments 36-40, F 7 hrs ago

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    I am not patient but that was the old me. I am learning that if God can be patient with me I can be patient with him. Love is give and take, not just take.
    gardengirl17 gardengirl17 22-25, F Oct 1

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    My partner and I broke up three months ago after a ten year relationship. The decision was semi-mutual, being together was too hard and we had grown in completely separate ways...
    seleneapa seleneapa 22-25, F 2 Responses Oct 12

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    Sometimes it's better to wait on what you want because the time that you want it may not be the best time that you need it. It may not even be the thing that you need. Just be...
    Cozy01 Cozy01 18-21, F 1 Response 6 days ago

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    Take your heart away, Leave mine all alone. Was love ever present? I will never know. Let your new companion, Be that stupid phone. Maybe its just time, To finally let you go. How...
    Mindlabyrinth Mindlabyrinth 41-45, M 1 day ago

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    Take your heart away, Leave mine all alone. Was love ever present? I will never know. Let your new companion, Be that stupid phone. Maybe its just time, To finally let you go. How...
    Mindlabyrinth Mindlabyrinth 41-45, M 1 Response 1 day ago

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    I don't know how, or why, I keep going back to you, or why I don't just let you go. I know this is gonna end in disaster and heart break but I'd be willing to give my heart to you...
    catherineeac catherineeac 13-15, F Sep 28

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    Do you remember the day? I do, and remember it well. It was the night before your surgery, April 12, 2014. We stayed up all night not wanting to say good night, or good bye...
    Spicedpecan0617 Spicedpecan0617 61-65, F Oct 6

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    Maybe I'm crazy, maybe I'm young and stupid. So I'm not going to call what we had more than dating. But I've never had such strong feelings for someone... It wasn't to long ago...
    ashuriiNikooru ashuriiNikooru 18-21, F Sep 25

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    Its beating time with mineYou thought loveLove, love was on the lineHe holds you downBut I know you want to runBut you're hot, hotLoaded like a gunOh you feel oh so trapped and...
    Incognito666 Incognito666 18-21, M Oct 4

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    I'm not quite sure when it started but a sound of a beating heart is something that turns me on but also relaxes me. I just love laying on ones chest listening to this lovely sound...
    Arna78 Arna78 36-40, F 3 Responses Oct 14

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    When i was born, my heart was weak. Over the years of my childhood my mother made it strong, she taught me emotion, but then my parents got divorced and and for fear I would get...
    Zigzagzack Zigzagzack 13-15, M Oct 16

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    I just wish I could do that, but humans heart is so stubborn and you cannot make it obey. it has it's own mind and can do it's own action. I just wish I could tell my heart no to...
    myleslus myleslus 22-25, F 1 Response Sep 29

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    I still checking my Ex facebook. And I know if meet him I will disappointed . He was 8 years old young and he wasn't even good kisser and I don't know. We almost had a sex and I...
    olsen1004 olsen1004 31-35, F 3 Responses Oct 2

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    I wish that the moment we met your eyes didn't take me to another world wishing upon a dream come true, you'd wrap me in your arms One Day and Love Me unconditionally. A Love I've...
    Xenasdreams Xenasdreams 22-25, F 3 Responses Oct 5

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    First and foremost I can’t believe I’m saying this but thank you. Thank you for teaching me the one lesson you just have to learn the hard way. For showing me what love feels...
    spiteyourface spiteyourface 16-17, F Oct 5

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    I can't take it. I just feel my whole body's paying for the mistake of my heart. I wish my heart had a brain but I can't blame it. My heart just wants another to beat at the same...
    Dynasty2000 Dynasty2000 13-15, F 1 Response Oct 7

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    I also had open heart surgery shortly after I was born but the doctors just told my parents to leave me there, forget about me, and try again because there was no way I was going...
    EnigmaticYoshi EnigmaticYoshi 18-21, M 1 Response Oct 9

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    No one ever tore down my walls like that, no one ever made me feel so loved. No one ever touched me like you did. And no one ruined me as beutifully as you. You broke into my heart...
    ColourfulDreams ColourfulDreams 13-15, F Oct 10

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    After a terrible day yesterday, I thought I was going to feel depressed for the rest of my life, no hope, no purpose. My mother showed up, after 8 years, and I realized she hadn't...
    Theworldisminenow Theworldisminenow 18-21, F 1 Response Oct 13

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    Almost a year ago, the love of my life left me for another man, whom she had a child with. We were together for almost 12 years and besides our kids, I've never loved another human...
    midwesterndad74 midwesterndad74 46-50, M 3 Responses Oct 13

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    I was involved with a family man starting last year. The relationship ended 3 months ago. He was my first love in high school and having him back in my life felt like a second...
    youbrokeme youbrokeme 41-45, F 2 Responses Oct 15

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    I see nothing in your eyes, and the more I see the less I like. Is it over yet, in my head? I know nothing of your kind, and I won't reveal your evil mind. Is it over yet? I can...
    Smaugthestupendous Smaugthestupendous 22-25, M a week ago

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    Watching Disney movies always keeps me young at heart. I also love listening to my Children playlist mostly involved music from Disney and Jim Henson. I enjoy high fiving the...
    BigRalphie74 BigRalphie74 36-40, M 6 days ago

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    Mixed Messages I offer her a glass of water, I tell her that she needs it, she tells me I must be blind, that her heart's breaking but I can't see it... She was just at the bar...
    AaronLA AaronLA 31-35, M 2 days ago

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    This is the first time I feel that my love story with A7mad is over. Never thought that I was living a fake love story.  My love left me with clod heart, he didn't care if I'm sad...
    unknown159231 unknown159231 18-21, F 1 Response 1 day ago

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    I have been married for 3 years with 2 kids. My husband became cold & snappy ever since the kids came along. I guess due to the stress of taking care of the kids & loss of freedom...
    Lina2702 Lina2702 31-35, F 3 Responses Sep 26

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    So my bf comes over after a trip and I hug him hello. I'm a hugger. I believe in a good warm hug. He offers one arm in response, then a peck on the lips. Wtf, says my heart...
    Fallflower Fallflower 36-40, F 3 Responses Oct 3

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    I am having trouble getting over my ex-boyfriend. He started out so sweet and after a few months another side came out that I didn't like. It started little with anger spats...
    hopegarden33 hopegarden33 31-35, F 2 Responses Oct 3