I Am Affected By Meniere's Disease

This is a group for those of us who have been diagnosed or are in close proximity to people with Meniere's Disease. 152 People

    Waiting And Watching

    I have had full menieres for2&1/2 years. I have been on medications and had 3 surgeries since Feb.2011. I can say I have more good days than bad ones. I just wait and watch for signs and symptoms. Can't work cause driving 20 miles one way really scares me. I am afraid I could...
    cdwyrick cdwyrick
    51-55, F
    2 Responses Jan 6, 2013

    I Have Menieres

    I suffer from menieres and would like to more people about it I lost the only job I ever knew how to do now I find it realy hard to learn anything new I am a single mom of a 4 year old I am sick everyday I hear the ocean 24 hours a day it is hard to sleep wich makes everything...
    natalie29 natalie29
    7 Responses Nov 18, 2008


    rodolfoap rodolfoap
    46-50, M
    Feb 9, 2014

    It's been 5 years since I was diagnosed with

    Meniere's Disease. I was diagnosed younger than most people at 24 years of age. I was a college student working in the restaurant business which meant little income and no insurance. When my symptoms initially hit I thought it was allergies. Quite literally overnight my ear...
    UpShift UpShift
    31-35, F
    1 Response Jan 8, 2014

    Drives U Crazy

    my name is adam,, ive had MD for over 35 yrs. it went bilateral 2 years ago. my heart and prayers are with u all. i soo agree with dr mercy,, we need lots more research and dev on this insane problem. since it went bilateral,, my life has been a total wreck,, dealing with one ear...
    delta9420 delta9420
    1 Response Apr 10, 2013

    Sixth International Symposium On Meniere's Disease

      PRESS RELEASE   Michael T. Burcon, DC started researching Meniere’s disease (MD) ten years ago after having three MD patients quickly recover from their vertigo under upper cervical specific chiropractic care. His papers have been published in the Journal...
    drburcon drburcon
    1 Response Sep 6, 2010

    Looking for people who have server Menieres

    Disease and has had the shunt surgery on my left ear but now I'm getting in my right ear
    gborron gborron
    51-55, F
    3 Responses Jul 21, 2014

    I was diagnosed with Meniere's about 8 years

    ago, because I had several drop attacks - terrifying! The total exhaustion brought on by these drop attacks was very much like I what I'd been told migraine sufferers experience. I already had hearing loss and tinnitus, but, as it runs in my family, I never made much of those...
    kittymama1 kittymama1
    Jan 14, 2016

    I was diagnosed with Meniere's Disease in April

    2014. What I experienced was feeling dizzy, tired (very tired), could not get up to go to work and some ringing in one ear. I thought I was just exhausted at work and taking rest would be fine. However, things got more serious after a week. I felt exactly the same, but the...
    michaelchs michaelchs
    31-35, M
    Oct 24, 2014


    I have had Meniere's for the last 30 +years but later it has severely affected my lifestyle and I ca barly keave the house and then on my husband's arm - and he is a home lover and hates leaving the house. I WANT to talk to someone
    bevy2 bevy2
    3 Responses May 26, 2012

    Please Try This. I Cant Believe It Works.

    Hi there. I am a new member and this is my first group. I signed up just to share my story and so far success in stopping my wicked vertigo attacks. It started 3 years ago with the fullness in my ear with tinitus. Shortly after that i had my first vertigo attack, I thought i...
    davsharnais davsharnais
    36-40, M
    1 Response Nov 16, 2012

    Back In The Swirl: Coping With Meniere'S Disease, Migraine, Chronic Depression, And Baffled Doctors.

    Hello fellow Menierians, I am a bilateral Meniere sufferer since my early youth. My heart goes to all of you. I know first-hand the devastating consequences of this devilish illness. Nevertheless, although Meniere does not have a cure ...yet; it is possible to treat it, overcome...
    mercylk mercylk
    Feb 21, 2013

    Back In The Swirl: Coping With Meniere'S Disease, Migraine, Chronic Depression, And Baffled Doctors.

    Hello all, This is a recommendation/ endorsement of my book by Dr. Herbert Silverstein in his Institute News Letter. Dr. Silvesrtein is a world-renowned clinician, who has devoted 41 years of his life to study and research Meniere. He is the founder- director of the Silverstein...
    mercylk mercylk
    1 Response Feb 21, 2013

    Tired All The Time

    About early March 2012, I was at work and my hearing in my right ear shut down and I got a little dizzy. It lasted only 5 minutes. Then it continued doing the same thing again for another 3 days. The following week it shut down for 5 minutes. Then the next week it was perfectly...
    lanakarin lanakarin
    61-65, F
    May 19, 2012

    Young And A Mess

    i am 19 years old, and ive had menieres disease in my right ear since i was 16. i was actually diagnosed when i was 18 after many visits from two doctors. i had my very first vertigo attack at age 13 or 14, but it had only happened once until i turned 16. so far this sickness has...
    d0theunthinkabl3 d0theunthinkabl3
    5 Responses Oct 30, 2011

    This story has a happy ending

    so please read! I was diagnosed three years ago with Meneire"s. My first attack lasted for 2 days. Everyone on this blog knows how miserable that feeling is so I won't go into the details. I did all the testing and it wasn't my blood pressure, or blood sugar levels, or a...
    hshbahrain hshbahrain
    51-55, F
    2 Responses Jan 20, 2014

    Meniere's Destroyed My Life

    My husband has Meniere's disease, and he has not been able to work for a year now.  He's been in and out of work, we are broke, we have no life anymore.  The doctors keep trying new meds all the time but nothing seems to work.  He gets dizzy and "woozy"...
    TawnyaoRbY TawnyaoRbY
    31-35, F
    22 Responses Jun 26, 2008

    I Am Not Alone

    I'm female, 23. I had my first attack in 2000 (when I was only 10, pretty rare at that early age) on my left ear, and second attack in 2006 (when I was 16) on my right ear. Fortunately I haven't had any attack since then. I haven't had vertigo or vomiting but I still have...
    defiantsurvivor defiantsurvivor
    26-30, F
    3 Responses Aug 20, 2013

    I found out I have Meniere's Disease about 10

    years ago. My mom had this too but her episodes were much more severe. I remember her falling on the floor from the vertigo. Surgery helped her It effects my hearing and I have trouble hearing a lot of words that people are saying to me if they talk in a low voice. I...
    deleted deleted
    2 Responses Oct 18, 2015

    I am only 31 and a zookeeper in the beginning

    stages of Meniere's disease. Not a good combination for a Meniere's diagnosis. My first attacks came after working emergency overnight and overtime hours (I was up for 48 hours straight). I'd have just short spinning episodes, with ringing and deafness in left ear, while walking...
    KeeperKim KeeperKim
    31-35, F
    1 Response May 21, 2014

    I was diagnosed a few months ago

    after a severe vertigo made me fall and crack my skull. I had just been living with it. But at work I found it was getting very difficult to hear blood pressures, lung sounds, and apical pulses through my stethoscope. I thought it was my scope but come to find it was my ears. I...
    kristy31415 kristy31415
    22-25, F
    2 Responses Apr 24, 2014

    A Long Struggle With Meniere's

    I've had meniere's now for just over 8 years and it has also destroyed my life. One of the worse things is that I'm living alone with no one to help me through the darkest to times. One thing that I was taking for quite some time that really did help is called VINPOCETINE...
    mondo mondo
    10 Responses Sep 23, 2008

    I was diagnosed with Meniere’s Disease over

    20 years ago. Fortunately I only have attacks about 2 times a year. But when I do they last for several weeks at a time. The last few years the attacks have been more severe. Last week it I felt the tinnitus starting. As always it’s the tinnitus is always in my left ear...
    Loud123 Loud123
    61-65, M
    3 Responses Jan 11, 2014

    Meniere's and My Social Security Medical Review

    Last Wednesday I had a Social Security medical review to determine if Social Security would accept my disability for Meniere's. I had applied back in April of 2013 for Social Security Disability at the same time I filed a claim on a supplemental disability insurance policy I had...
    Cicadas Cicadas
    61-65, M
    2 Responses Aug 26, 2013

    Yesterday, something happened to me

    that scared the crap out of me. For more than ten years, I have had Ménière's disease. I was shopping in Target when I was suddenly hit with a Ménière's “drop attack” which is a severe attack of dizziness (vertigo). The attack was so severe that I fell to my knees in...
    scottdavidsmith scottdavidsmith
    46-50, M
    1 Response Aug 22, 2014

    I Guess I'm Not Alone Dealing With This Brutal Disease

    Hi, I am 54, very active and have a great wife and 3 amazing boys. I suffered my first attack during an Indoor soccer game (oldtimers) in April, 2009 in Peterborough, Ontario Canada. I felt something real bad & unusual was happening. Anyhow, after a very rough night and lots of...
    56-60, M
    Sep 18, 2013

    Not The Same Me

    I am 74 years old and was diagnosed with Meniere's when I was 70. Apparently this is a late onset. My first and most horrible experience was in my living room, just sitting on the sofa when the world around me began to swirl. It was the most frightening thing that I could...
    outtopasture outtopasture
    70+, F
    1 Response Mar 8, 2013

    Dealing With A Vestibular Disorder Like Meniere's Disease

    Hi Guys, Read your story and I know how you feel. I have suffered from hearing loss for over 25 years and 3 Years ago I started suffering from Vertigo, Nausea, sudden falls and Vomiting lasting a couple of hours at a time. I went to a GP up the road but he thought I had a virus...
    sharpebradley sharpebradley
    3 Responses Nov 15, 2010

    I have had this Menieres Disease

    for 20 years I had the surgery in my left ear 3 years ago where they put a shunt in worse thing I ever did my balance is a bigger problem now I have nothing but fullness in that ear I fell horrible always now I'm showing signs of it in my right ear I have always since I can...
    gborron gborron
    51-55, F
    1 Response Jul 21, 2014

    Please Let Me Know If I Can Help U

    angel242go angel242go
    51-55, F
    1 Response Feb 6, 2013

    Tom 55 Yrs Old,life Destroyed By Meniers

    I started having wierd spinning sensation at work one day. Over the next few painfull years, ambulance rides,hospital stays and my life going down the tube. They finally figured out it was meniers. They tried the tubes and the machine which helped me get a few more years out of...
    TG27 TG27
    1 Response Dec 24, 2012

    My Meniere's Disease Story

    I have been diagnosed with Meniere's Disease for about 5 years now but think I might have had it before I was officially diagnosed. I have vertigo attacks daily and sometimes it acts up bad and sometimes it doesn't. I'm on maxide once a day and take florical, which is a calcium...
    apsugurl28 apsugurl28
    31-35, F
    3 Responses Dec 10, 2010

    Never Give Up! I'Ve Had MD For 7 Yrs

    I was diagnosed 7 yrs ago when i started having dizzy episodes and hearing loss. I refused to believe i had it for a couple years even though i had symptoms about every 3 months. Things that have helped me: Lots of rest Ginger root Gingko biloba Meclazine (i use Rugby brand...
    Stroft1 Stroft1
    51-55, M
    May 28, 2013

    Having A Good Meniere'S Diary

    Hi All, My name is Maximo and also has Meniere's since 2009. I am at the early stages of the disease and I am able to handle it (so far) with diet, diuretics and no salt and alcohol. I have a bachelor in Computers for this reason with a friend we have created an application for...
    MaximusT79 MaximusT79
    1 Response Jan 27, 2013

    Meniere's Success Story

    Hello,I was diagnosed about 3.5 years ago and wanted to share how I stopped/manage my symptoms.  I am not selling anything, just want to help anyone if possible.  At the time I had a 2 year old and was 6 months pregnant.  The room began spinning and would not stop for 10-14...
    ivyskies ivyskies
    36-40, F
    2 Responses Mar 3, 2012

    Meniere's And Me

    I have been living with Meniere’s disease for nearly a decade. In that time, i have struggled to find the ability to not only manage the effect of this debilitating disease but also to sustain a functional purpose for my life. In the last few months, my hope for a new beginning...
    detectivescotty detectivescotty
    46-50, M
    1 Response Feb 10, 2013

    Battling This Disease For 12 Yrs

    Ive been battling this disease for 12 yrs now.  Some days are worse than others.  Mine was caused by a head injury.  I was a pedestrian, in a hit and run MVA.  In the beginning, when i had a attack, i prayed for death, because i couldnt handle the vomiting...
    golfnana golfnana
    2 Responses Aug 7, 2010

    Is Ever Going to End?

    I have been diagnosed with Meniere's Disease.  I started experiencing symptoms in my seventh month of pregnancy.  I had two severe attacks of vertigo and missed a fair amount of work.  I thought everything would go back to normal once I delieverd but here I am...
    JSpence JSpence
    2 Responses Jul 25, 2009

    Doctor Recommendation

    Hi, I live in Silver Spring, MD near Rockville and Olney. I have seen a doctor who specializes in dizziness at Washington Hosptital Center. He diagnosed me with Meneires. I would love to find another doctor closer to me. I would like a second opinion and would rather not have...
    Monnie45 Monnie45
    Jun 11, 2013

    Something That I Found To Help Keep Symptoms Away - Menieres ...

    Dear Sir/Madam, I would like to share what I found works for me to keep the Menieres symptoms away - About a year ago I had my first attack of Meniers - the vertigo, nausea couldn't get up to walk ... not nice at all! Went to the doctor and they gave me cortizone and stugeron it...
    DeonHerbst DeonHerbst
    51-55, M
    5 Responses May 25, 2012

    Meniere's - 6 Months And Counting

    I was diagnosed with Meniere's (MM) back in August of 2012. I have had a history of fullness and hearing loss in my right ear most of my life. The appearance of these episodes would usually show up during winter stormy weather. I have always been affected by minor changes in...
    Cicadas Cicadas
    61-65, M
    5 Responses Feb 25, 2013

    Hearing Aid Dilemma

    I have Meniere's disease and am extremely sensitive to sounds. I am a church goer and have problems when music is played. I am looking for a hearing aid that I can put in and control with a remote so that I can turn my hearing completely off when caustic sounds occur and turn...
    indyaanna indyaanna
    2 Responses Mar 6, 2013

    I want to share the idea

    that aspartame -- found in diet drinks, most chewing gum, and lots of other foods -- is a trigger for my Meniere's. I have "experimented" by leaving it out of my diet, and then adding it back in, and the results are conclusive. If nothing else works, try cutting off the supply...
    MeniereRover MeniereRover
    66-70, M
    2 Responses Dec 22, 2013


    rodolfoap rodolfoap
    46-50, M
    Feb 9, 2014

    Serc (betahistine dihydrochloride) Will Cure Meniere's

    Available in Canada and Europe by prescription under the brand name Serc or generic betahistine dihydrochloride. About 11 years ago Meniere's struck me... for weeks I had a rushing sound in my left ear and much hearing loss. One morning I woke up and the room spun like I was...
    lexrex lexrex
    31-35, M
    2 Responses Dec 2, 2012
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