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I Am Affected By Meniere's Disease

This is a group for those of us who have been diagnosed or are in close proximity to people with Meniere's Disease. 133 People

    My Meniere's Disease Story

    I have been diagnosed with Meniere's Disease for about 5 years now but think I might have had it before I was officially diagnosed. I have vertigo attacks daily and sometimes it acts up bad and sometimes it doesn't. I'm on maxide once a day and take florical, which is a calcium...
    apsugurl28 apsugurl28 31-35, F 3 Responses Dec 10, 2010

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    Tired All The Time

    About early March 2012, I was at work and my hearing in my right ear shut down and I got a little dizzy. It lasted only 5 minutes. Then it continued doing the same thing again for another 3 days. The following week it shut down for 5 minutes. Then the next week it was perfectly...
    lanakarin lanakarin 61-65, F May 19, 2012

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    Is Ever Going to End?

    I have been diagnosed with Meniere's Disease.  I started experiencing symptoms in my seventh month of pregnancy.  I had two severe attacks of vertigo and missed a fair amount of work.  I thought everything would go back to normal once I delieverd but here I am...
    JSpence JSpence 31-35 2 Responses Jul 25, 2009

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    Not The Same Me

    I am 74 years old and was diagnosed with Meniere's when I was 70. Apparently this is a late onset. My first and most horrible experience was in my living room, just sitting on the sofa when the world around me began to swirl. It was the most frightening thing that I could...
    outtopasture outtopasture 70+, F 1 Response Mar 8, 2013

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    Tom 55 Yrs Old,life Destroyed By Meniers

    I started having wierd spinning sensation at work one day. Over the next few painfull years, ambulance rides,hospital stays and my life going down the tube. They finally figured out it was meniers. They tried the tubes and the machine which helped me get a few more years out of...
    TG27 TG27 51-55 1 Response Dec 24, 2012

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    Newly Diagnosed With Menieres

    I have been suffering from vertigo for the last 23 years, just diagnosed this week with Menieres. I work full time as a Physical Therapist working with children and I have been working full time for the last 23 years and I'm beginning to struggle keeping up with everything. I'm...
    gabbycam gabbycam 41-45, F 2 Responses Jun 30, 2012

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    Sick And Tired

    Hi my name is Caroline, I have gotten out of a domestic violence sistuation a few years ago. I have gotten hit in the head and the ears so many times. Now i have this disease I have under went two shunt operations for both of my...
    curlyfrie curlyfrie 41-45 4 Responses Oct 8, 2012

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    I Am Not Alone

    I'm female, 23. I had my first attack in 2000 (when I was only 10, pretty rare at that early age) on my left ear, and second attack in 2006 (when I was 16) on my right ear. Fortunately I haven't had any attack since then. I haven't had vertigo or vomiting but I still have...
    Kiseki46 Kiseki46 22-25, F 2 Responses Aug 20, 2013

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    Back In The Swirl: Coping With Meniere'S Disease, Migraine, Chronic Depression, And Baffled Doctors.

    Hello fellow Menierians, I am a bilateral Meniere sufferer since my early youth. My heart goes to all of you. I know first-hand the devastating consequences of this devilish illness. Nevertheless, although Meniere does not have a cure ...yet; it is possible to treat it, overcome...
    mercylk mercylk 51-55 Feb 21, 2013

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    Meniere's Destroyed My Life

    My husband has Meniere's disease, and he has not been able to work for a year now.  He's been in and out of work, we are broke, we have no life anymore.  The doctors keep trying new meds all the time but nothing seems to work.  He gets dizzy and "woozy"...
    TawnyaoRbY TawnyaoRbY 32, F 20 Responses Jun 26, 2008

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    Doctor Recommendation

    Hi, I live in Silver Spring, MD near Rockville and Olney. I have seen a doctor who specializes in dizziness at Washington Hosptital Center. He diagnosed me with Meneires. I would love to find another doctor closer to me. I would like a second opinion and would rather not have...
    Monnie45 Monnie45 66-70 Jun 11, 2013

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    Young And A Mess

    i am 19 years old, and ive had menieres disease in my right ear since i was 16. i was actually diagnosed when i was 18 after many visits from two doctors. i had my very first vertigo attack at age 13 or 14, but it had only happened once until i turned 16. so far this sickness has...
    d0theunthinkabl3 d0theunthinkabl3 18-21 5 Responses Oct 30, 2011

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    Back In The Swirl: Coping With Meniere'S Disease, Migraine, Chronic Depression, And Baffled Doctors.

    Hello all, This is a recommendation/ endorsement of my book by Dr. Herbert Silverstein in his Institute News Letter. Dr. Silvesrtein is a world-renowned clinician, who has devoted 41 years of his life to study and research Meniere. He is the founder- director of the Silverstein...
    mercylk mercylk 51-55 1 Response Feb 21, 2013

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    Drives U Crazy

    my name is adam,, ive had MD for over 35 yrs. it went bilateral 2 years ago. my heart and prayers are with u all. i soo agree with dr mercy,, we need lots more research and dev on this insane problem. since it went bilateral,, my life has been a total wreck,, dealing with one ear...
    delta9420 delta9420 56-60 Apr 10, 2013

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    My Meniere's Battle Has Just Begun.

    When the Consultant asked his colleague what she thought my problem was and she said Meniere's Disease without any hesitation all I remember thinking was awww for F***s sake, I'd read online about Meniere's on sites such as NHS online and remember thinking that it sounded such a...
    Mark165 Mark165 36-40, M 3 Responses May 15, 2012

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    Please Try This. I Cant Believe It Works.

    Hi there. I am a new member and this is my first group. I signed up just to share my story and so far success in stopping my wicked vertigo attacks. It started 3 years ago with the fullness in my ear with tinitus. Shortly after that i had my first vertigo attack, I thought i...
    davsharnais davsharnais 36-40, M Nov 16, 2012

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    Please Let Me Know If I Can Help U

    GM ALL MY LOVED & BLESSED FBF/F, I HAVE A QUESTION IF ANYONE CAN ANSWER FOR ME I WOULD LOVE TO KNOW. I AM DISABLED HAVE BEEN FOR 2 YRS WITH A ILLNESS CALLED MENIERS DISEASE I AM STAGE II I NEVER KNEW WHAT IS WAS TILL I GOT IT, MY SISTER & FAMILY RESEARCHED ONLINE IN BOOKS AND IT...
    angel242go angel242go 51-55, F Feb 6, 2013

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    Living With Meniere's Disease

    I was diagnosed with Meniere's over 25 years ago. At the time I was having periodic bouts of dizzyness and tinnitus. Many years have passed. I now wear hearing aids which has stopped the ringing in my ears. The dizzy spells were gone until this year. I have had a few minor ones...
    diamondman25 diamondman25 61-65 2 Responses Nov 27, 2012

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    Living With Ménière's

    I've had Ménière's since June at first the medication worked but the I had a reaction to it so now I'm on another medication. I'm still having a hard time. The symptom are not as bad but still there. I Really am hoping some one can help maybe you have a miracle treatment out...
    Ospunky Ospunky 51-55, F 1 Response Dec 16, 2012

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    Ménière's

    I was told I had Ménière's in June of this year. It hit me out of no where I had no signs at all. I have been put on three different medication but the problem is that I'm allergic to sulfa drugs and all the medication they put me on has Sulfa in it...I've seen three different...
    Ospunky Ospunky 51-55, F Dec 18, 2012

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    Meniere's Success Story

    Hello,I was diagnosed about 3.5 years ago and wanted to share how I stopped/manage my symptoms.  I am not selling anything, just want to help anyone if possible.  At the time I had a 2 year old and was 6 months pregnant.  The room began spinning and would not stop for 10-14...
    ivyskies ivyskies 36-40, F 2 Responses Mar 3, 2012

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    I Am 35 Years Old And Feel So Much Older

    I am still waiting for my official diagnosis, but since June 26, 2012 been battling BPPV Vertigo, or so they say. It started with a rollercoaster ride at Six Flags America that Saturday and by that Monday, I was getting a ride home from work, leaving my car behind, because I was...
    Ariez28 Ariez28 31-35, F Sep 10, 2012

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    It's been 5 years since I was diagnosed with

    Meniere's Disease. I was diagnosed younger than most people at 24 years of age. I was a college student working in the restaurant business which meant little income and no insurance. When my symptoms initially hit I thought it was allergies. Quite literally overnight my ear...
    UpShift UpShift 26-30, F 1 Response Jan 8

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    Sixth International Symposium On Meniere's Disease

      PRESS RELEASE   Michael T. Burcon, DC started researching Meniere’s disease (MD) ten years ago after having three MD patients quickly recover from their vertigo under upper cervical specific chiropractic care. His papers have been published in the Journal...
    drburcon drburcon 56-60 Sep 6, 2010

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    Meniere's - 6 Months And Counting

    I was diagnosed with Meniere's (MM) back in August of 2012. I have had a history of fullness and hearing loss in my right ear most of my life. The appearance of these episodes would usually show up during winter stormy weather. I have always been affected by minor changes in...
    Cicadas Cicadas 56-60, M 5 Responses Feb 25, 2013

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    www.experienceproject.

    com/stories/Have-Good-News-About-Meniere-S-Disease/3963113
    rodolfoap rodolfoap 41-45, M Feb 9

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    Hearing Aid Dilemma

    I have Meniere's disease and am extremely sensitive to sounds. I am a church goer and have problems when music is played. I am looking for a hearing aid that I can put in and control with a remote so that I can turn my hearing completely off when caustic sounds occur and turn...
    indyaanna indyaanna 70+ 2 Responses Mar 6, 2013

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    This story has a happy ending

    so please read! I was diagnosed three years ago with Meneire"s. My first attack lasted for 2 days. Everyone on this blog knows how miserable that feeling is so I won't go into the details. I did all the testing and it wasn't my blood pressure, or blood sugar levels, or a...
    hshbahrain hshbahrain 46-50, F 1 Response Jan 20

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    Having A Good Meniere'S Diary

    Hi All, My name is Maximo and also has Meniere's since 2009. I am at the early stages of the disease and I am able to handle it (so far) with diet, diuretics and no salt and alcohol. I have a bachelor in Computers for this reason with a friend we have created an application for...
    MaximusT79 MaximusT79 31-35 1 Response Jan 27, 2013

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    Meniere's And Superior Canal Dehiscence

    Hello. I am new here and trying to cope with two disorders. I had a crainotomy 2 years ago for Superior Canal Dehiscense on my left side. I also have on my right but have not had surgery due to the fear of what is still going on with my left side. I had really bad tinnitus...
    AmherstNY AmherstNY 36-40, F Oct 23, 2012

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    Never Give Up! I'Ve Had MD For 7 Yrs

    I was diagnosed 7 yrs ago when i started having dizzy episodes and hearing loss. I refused to believe i had it for a couple years even though i had symptoms about every 3 months. Things that have helped me: Lots of rest Ginger root Gingko biloba Meclazine (i use Rugby brand...
    Stroft1 Stroft1 46-50, M May 28, 2013

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    I Was Diagnosed With Menier's Disease Associated With Vertigo

    I didnt know that I have this disease though once in a while i have ringing in my ears. I had a fall last April 14, 2010 which banged my head big time (already cleared by my neuro). But then the dizziness still with me, affecting my day  to day life, i have this ringing in...
    magicaldoll magicaldoll 31-35, F Jun 2, 2010

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    Dealing With A Vestibular Disorder Like Meniere's Disease

    Hi Guys, Read your story and I know how you feel. I have suffered from hearing loss for over 25 years and 3 Years ago I started suffering from Vertigo, Nausea, sudden falls and Vomiting lasting a couple of hours at a time. I went to a GP up the road but he thought I had a virus...
    sharpebradley sharpebradley 36-40 3 Responses Nov 15, 2010

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    I Guess I'm Not Alone Dealing With This Brutal Disease

    Hi, I am 54, very active and have a great wife and 3 amazing boys. I suffered my first attack during an Indoor soccer game (oldtimers) in April, 2009 in Peterborough, Ontario Canada. I felt something real bad & unusual was happening. Anyhow, after a very rough night and lots of...
    SHERIDAD SHERIDAD 51-55, M Sep 18, 2013

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    A Long Struggle With Meniere's

    I've had meniere's now for just over 8 years and it has also destroyed my life. One of the worse things is that I'm living alone with no one to help me through the darkest to times. One thing that I was taking for quite some time that really did help is called VINPOCETINE...
    mondo mondo 56-60 10 Responses Sep 23, 2008

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    Meniere's And Me

    I have been living with Meniere’s disease for nearly a decade. In that time, i have struggled to find the ability to not only manage the effect of this debilitating disease but also to sustain a functional purpose for my life. In the last few months, my hope for a new beginning...
    detectivescotty detectivescotty 46-50, M 1 Response Feb 10, 2013

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    I want to share the idea

    that aspartame -- found in diet drinks, most chewing gum, and lots of other foods -- is a trigger for my Meniere's. I have "experimented" by leaving it out of my diet, and then adding it back in, and the results are conclusive. If nothing else works, try cutting off the supply...
    MeniereRover MeniereRover 61-65, M 1 Response Dec 22, 2013

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    Battling This Disease For 12 Yrs

    Ive been battling this disease for 12 yrs now.  Some days are worse than others.  Mine was caused by a head injury.  I was a pedestrian, in a hit and run MVA.  In the beginning, when i had a attack, i prayed for death, because i couldnt handle the vomiting...
    golfnana golfnana 46-50 2 Responses Aug 7, 2010

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    Meniere's and My Social Security Medical Review

    Last Wednesday I had a Social Security medical review to determine if Social Security would accept my disability for Meniere's. I had applied back in April of 2013 for Social Security Disability at the same time I filed a claim on a supplemental disability insurance policy I had...
    Cicadas Cicadas 56-60, M 1 Response Aug 26, 2013

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    Waiting And Watching

    I have had full menieres for2&1/2 years. I have been on medications and had 3 surgeries since Feb.2011. I can say I have more good days than bad ones. I just wait and watch for signs and symptoms. Can't work cause driving 20 miles one way really scares me. I am afraid I could...
    cdwyrick cdwyrick 51-55, F 2 Responses Jan 6, 2013

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    I Have Menieres

    I suffer from menieres and would like to more people about it I lost the only job I ever knew how to do now I find it realy hard to learn anything new I am a single mom of a 4 year old I am sick everyday I hear the ocean 24 hours a day it is hard to sleep wich makes everything...
    natalie29 natalie29 26-30 7 Responses Nov 18, 2008

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    www.experienceproject.

    com/stories/Have-Good-News-About-Meniere-S-Disease/3963113
    rodolfoap rodolfoap 41-45, M Feb 9

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    Serc (betahistine dihydrochloride) Will Cure Meniere's

    Available in Canada and Europe by prescription under the brand name Serc or generic betahistine dihydrochloride. About 11 years ago Meniere's struck me... for weeks I had a rushing sound in my left ear and much hearing loss. One morning I woke up and the room spun like I was...
    lexrex lexrex 31-35, M 3 Responses Dec 2, 2012

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    I was diagnosed with Meniere’s Disease over

    20 years ago. Fortunately I only have attacks about 2 times a year. But when I do they last for several weeks at a time. The last few years the attacks have been more severe. Last week it I felt the tinnitus starting. As always it’s the tinnitus is always in my left ear...
    Loud123 Loud123 56-60, M 2 Responses Jan 11

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    This Has Totally Changed My Life

    It started in Dec. of 2000, I was at work and out of no where I had a bad vertigo attack. It lasted 9 hours. Not knowing what was going on, my coworkers called 911 and I was taken to the hospital. It was the worst feeling I have ever had. Like getting really drunk and getting...
    deleted deleted 26-30 3 Responses Mar 5, 2012

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    Dizzy, I'm So Dizzy

    I have the dizziness/vertigo and tinnitus. Mine flares up this time of year. For some reason - probably the weather - Jan-March are my worst times (not that it doesn't flare other times - just not anywhere near as much). So in the winter/spring I always miss more work...
    imabear imabear 51-55, F 3 Responses Jan 19, 2011

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    Bevy2

    I have had Meniere's for the last 30 +years but later it has severely affected my lifestyle and I ca barly keave the house and then on my husband's arm - and he is a home lover and hates leaving the house. I WANT to talk to someone
    bevy2 bevy2 66-70 3 Responses May 26, 2012

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    Something That I Found To Help Keep Symptoms Away - Menieres ...

    Dear Sir/Madam, I would like to share what I found works for me to keep the Menieres symptoms away - About a year ago I had my first attack of Meniers - the vertigo, nausea couldn't get up to walk ... not nice at all! Went to the doctor and they gave me cortizone and stugeron it...
    DeonHerbst DeonHerbst 51-55, M 4 Responses May 25, 2012

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    Related Experiences

    Unlike everyone else, I didn't (or haven't) have a bad experience with the witnesses. So this is not going to be a long rant about being brain washed because I honestly don't...
    themusician001 themusician001 13-15, F 1 Response Mar 24

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    Once upon a time in a far away land, groceries seemed very expensive at the great grocery store chain, Pubdixie-Krogerson’s. At $125 a week per family it seemed that something...
    JustAGuyinFL JustAGuyinFL 36-40, M Mar 28

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    For the new AX1 a variation on XAVC has been developed called XAVC / S. This format differs from XAVC in that it uses Long GOP compression. There are a few issues when it comes to...
    vipchenyingsoft vipchenyingsoft 22-25, M Mar 30

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    Please somebody out there please read this...it would mean so much. It sucks when you're ignored by the person whose attention is the only thing you want in the world. Ever...
    elugo123456789 elugo123456789 18-21, M 2 Responses Apr 1

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    I have noticed increasingly how people behave or make you feel exactly what you think about them or perceive them. It works in reverse too as I tend to come off as people perceive...
    v33rh0ra v33rh0ra 26-30, M 1 day ago

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    I can't do this anymore. I really can't. I feel so useless, annoying, stupid, and that I'm just a burden on everyone I know. I hate myself and everything about me. I can't find any...
    sleevesandbracelets sleevesandbracelets 16-17, F 2 Responses Mar 19

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    This is exactly what happens to me and gets mis-labelled as 'anxiety' or whatever. http://www.bcepilepsy.com/files/Information_Sheets/All_About_Partial_Seizures.pdf All About...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 7

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    I would go back and change two things that have totally affected me today. If I could Change those two things I would be living so much easier now. Ugh. It's whatever.
    Girlinthefloweredskirt Girlinthefloweredskirt 16-17, F 21 hrs ago