I Am Afflicted By Rsd

This group is for those who suffer from RSD or CRPS as well as family members of those who have this horrific diagnosis to share their experiences. 85 People

    Has Any One Heard Of Or Tried Calmar Pain Relief Therapy?

    Found this site tonight...has any one tried it? From their web site... Calmar Pain Relief Therapy is a revolutionary, non-invasive, non-narcotic method for rapid treatment of severe, chronic,high-intensity oncologic, and neuropathic pain, resistant to morphine and other drugs...
    RSD1999 RSD1999
    51-55
    Apr 8, 2012

    Hope

    I don't want to get into my whole story but I do want to let you know about something that has helped me.  I am by no means better but I can function well on a low to medium level without pain.  I can do things that I could never have done a...
    SuzanneBaron SuzanneBaron
    41-45
    1 Response Mar 7, 2009

    "i Have Rsd Its Reflex Sympathetic Dystrophy".............

    I have RSD! or RSDS is a neurological problem and one of the systems is constant chronic burning pain. My own personal experience with  RSD is a long story and one for another time. Remission is very uncommon but not un heard of. It does spread to other parts of the body and...
    Anto815 Anto815
    46-50, F
    Mar 15, 2011

    Rsd Sucks!!! Who (as In Doctors) Knows Jack About It???

    The FIRST neurologist I saw, who said I didn't have RSD, but "neurogenic pain from a PSYCHOLOGICAL disorder." Why? Oh, my history of bipolar means I couldn't POSSIBLY have RSD!!!! She pats me on the affected leg and says that (as I about hit the ceiling and threw up at the...
    beatnrsd beatnrsd
    36-40, F
    Oct 23, 2011

    New Hopes, New Year With Crps

    Happy New Year to all and for all those with rsd/crps may your troubles be lighter, your pain lessened and your burdens easier! Let's hope for a brighter and better 2011!!!!! New year, new treatments, attitudes and more......I hope I can keep this up into tomorrow!! Best wishes...
    easyloper easyloper
    41-45
    2 Responses Jan 1, 2011

    Hope you will like this Youtube video.

    It has with CRPS/RSD to do... : https://m.youtube.com/watch?v=LyB1p2nKHR8
    kristhy kristhy
    22-25, F
    Jan 29, 2015

    Now, I Don't Like The Good Doctor: Just The Mug

    I know only one person who can summmon enough venom to be nasty before 7am. That would be my mother, and my brother with a close second. I awoke, she flagged an email that was little more than whining about how if I don't invite her into my messy apartment--which she will...
    beatnrsd beatnrsd
    36-40, F
    Nov 26, 2011

    Acupuncture Saved Me.

    I was diagnosed with RND when i was 14 (in children RSD is sometimes called RND but they are pretty much the same) I had terrible pain in all most all my joints and at one point was on medicine for the terrible swelling i was getting. (dont ask what medicine it was, i can't...
    Jcat1006 Jcat1006
    16-17, F
    Jan 4, 2013

    My Whole Life Changed In An Instant

    It all started on April 20, 2008 when I fell down one step and hurt my ankle. make a long story short, was treated for a sprain and a tear, finally on June 12, 2009 I was told I have RSD. I am now in the care of a wonderful  pain mang. DR. I am on 600 mg of lyrica, and a...
    mareb66297 mareb66297
    36-40, F
    1 Response Sep 22, 2009

    RSD In All It's Glory...

    i was in the best shape of my life.  i'd always been a fit woman, having always participated in sports.  i played sports in highschool and on leagues throughout my life.  i went to the gym every other day after work.  despite my active youth and fixation on my...
    AbbyNormal AbbyNormal
    31-35, F
    33 Responses May 28, 2007

    Can'T Escape

    I thought it was over but the pain keeps coming back. I do everything I can I exercise everyday and eat right I don't know why it keeps coming back.
    Jcat1006 Jcat1006
    16-17, F
    1 Response Mar 16, 2013

    "i Have Rsd Its Reflex Sympathetic Dystrophy".............

    I have RSD! or RSDS is a neurological problem and one of the systems is constant chronic burning pain. My own personal experience with  RSD is a long story and one for another time. Remission is very uncommon but not un heard of. It does spread to other parts of the body and...
    Anto815 Anto815
    46-50, F
    1 Response Mar 15, 2011

    Help! I Have Rsd!

    On June 9, 2010 I fell in our basement.  I had already been struggling with plantar fascitis in my left foot, which was painful enough in itself.  With the plantar fascitis came quite a bit of swelling, so dumb me kicked off my shoes (to give me swollen feet a break...
    lizzard1 lizzard1
    46-50, F
    1 Response Aug 18, 2010

    Rsd=hell

    ii first injured my r knee in 2004, then again in 2005, then yet again in 2006. soon after that i had knee surgery (2006), then in 2007 i injured it again. the ortho suspected it in 2008, pain management confirmed it. they've done about 50 LSNB at L4 since 2008 (good), they've...
    catgroomer5 catgroomer5
    22-25, F
    May 26, 2012

    RSD Twice And Other Things.

    My name is Ashlee. I grew up in a small town of Waterloo, Nebraska. My whole 23 years of life I have loved being active with sports and I love animals. My family and friends also mean the world to me. I have been bowling now for almost 19 years, I danced for about 14, and I...
    ashleewhitney ashleewhitney
    26-30, F
    Oct 8, 2013

    Rsd = End Of Normal Life As You Knew It.

    I am tom and I have RSD/CRPS. I had my right hand crushed in a gate in 1999. I was working as a correction officer in a prison when we had roits. I went on light duty for weeks before I had shocks over the top of my hand. The doctors told me it was in my head and x-rays were fine...
    staticline4 staticline4
    46-50, M
    3 Responses Jun 29, 2011

    I am an artist, seamstress,

    business owner, mother of a three year old. I started my own business a few years ago making jewelry, accessories, and clothing out of repurposed materials (also known as upcycling). A year and a half ago I was diagnosed with Crps/Rsd (in both of my hands and arms) and in that...
    IndieAnnie IndieAnnie
    31-35, F
    1 Response Feb 9, 2015

    Rsd = End Of Normal Life As You Knew It.

    I am tom and I have RSD/CRPS. I had my right hand crushed in a gate in 1999. I was working as a correction officer in a prison when we had roits. I went on light duty for weeks before I had shocks over the top of my hand. The doctors told me it was in my head and x-rays were fine...
    staticline4 staticline4
    46-50, M
    Jun 29, 2011

    Living With Rsd

    Hi my name is sharon and im here to get more information about rsd.I have read a few stories and thought it would be nice to share mine too.Well i will start by tell you i worked building truck mannifolds and worked with all guys,i got along with all of them very well till one...
    puppylove35 puppylove35
    41-45, F
    9 Responses May 9, 2010

    No One Understands!

    Hi my name is becky. Can anyone tell me why in the hell its hard to find good care for our condition! Today im so depressed and tired of being in pain! I dont think anyone can help me you name it ive had it done! And yes i have had ketamine which went terribley wrong now drs...
    4everburn 4everburn
    31-35, F
    2 Responses Sep 6, 2012

    A Bit About My Rsd Story

    Hi everyone. I have has rsd since i was 12 and nearly had it for 8 years. It started in my left foot after a sport injury and since then it has spread to; my whole left side, right foot, stomach, chest, back and now is starting in my right hand. Its been a weird journey, full of...
    RSDxGirlie RSDxGirlie
    18-21, F
    2 Responses Jan 23, 2013

    The Day My Life Changed Forever

    The day that I will never forget was the 5th of February 1999. I had a P.E lesson at school and felt afterwards that my right foot was hurting. The pain in my toes didn't go away, in fact it continued to get more painful. I went to A&E and was told that I had bruised the...
    Tamwood Tamwood
    26-30, F
    Aug 7, 2012

    Rsd: Three Little Letters = So Much Destruction, Change, And Re-building-i Hope...for Now

    I was going through what I now refer to as "Medical Waste," otherwise known as the stack of papers that seems to be on my table by the end of the week, whereas before, while still suffering chronic pain, it would take a month or two. Think of it like being used to cleaning the...
    beatnrsd beatnrsd
    36-40, F
    1 Response Nov 25, 2011

    The Most Recent In the Ongoing Saga 8/07

    Yesterday I contacted my independant disability agent to inform him of my upcoming appointments - something I have to do with each appointment so he can send the doctor a medical evaluation questionnaire for my disability claim file.  To me I was calling with...
    AbbyNormal AbbyNormal
    31-35, F
    4 Responses Aug 22, 2007

    Got Screwed Over By Nuero #2, Referred To Neurosurgery

    If RSD loves to grab onto one thing and spread, it's ANY KIND OF INVASIVE PROCEDURE!!!!!! But this supposed genius has a ceiling for being told his treatments are making me droollllll Or just not working. I've apparently offended him, because the neurosurgeon said, "Oh, no-you...
    beatnrsd beatnrsd
    36-40, F
    Nov 21, 2011

    This Mug Reads: "my Own Experience With A Chronic Painful Medical Condition Exceeds Your Percieved Medical Knowledge"

    It doesn't matter what you call it, a day in the life looks much like this (assuming it's a good day) Okay, I don't get Physical Therapy--I'm not even close to ready, so keep this in mind..... I used to rise at 5am to go to work. Now, my alarm sounds at 5 so the pills that...
    beatnrsd beatnrsd
    36-40, F
    2 Responses Oct 23, 2011

    My Wife Has Rsd

    My wife has RSD; started in 1999 she has had all the surgery’s recommended by the Dr's. PNS, SCS, both a stimulator placed on the Dura of the brain and a deep brain stimulator. So far nothing has helped, I knew she was diagnosed with RSD when we married, and I signed on for...
    RSD1999 RSD1999
    51-55
    2 Responses Mar 26, 2012

    Rsd = Really Sucky Disease

    Being recently diagnosed with RSD, I think I'm still in denial and this all feels like a nightmare I can't awake from. On June 12, 2010, I was walking down the road in a pair of flip-flops and slipped off the shoe and the side of the road falling to all fours. My left ankle had...
    RSDLindaLou RSDLindaLou
    41-45
    4 Responses Oct 10, 2010

    I was delivering mail in Vacaville,

    Ca in 1992 when some steps leading to a mobile home collapsed beneath me dropping down on the big toe of my right foot. The mobile home owners had been warned prior, but chose to hide the issue rather than fix it. I followed procedure, called my supe who took me to a...
    ARMamawolf ARMamawolf
    46-50, F
    1 Response Dec 4, 2013

    Question For The Group - Laughing Gas

    Question for the group.....My wife has been on all the drugs they do not help unless she is so doped up that she sleeps…we have found one thing that helps laughing gas from the dentist it almost takes it away for the treatment. Has anyone had that experience?
    RSD1999 RSD1999
    51-55
    1 Response Mar 31, 2012

    This Place Seems Ok--so Far...i Have To Say I Am Waryy

    I am so afflicted with RSD, I am pretty much stuck in the house. And the doctors' offices, it seems, though many of them are happy with a phone appointment--my PM doc does; but I hate those stupid "support sites" that are "DRAMA CENTRAL." They shred you from the inside out, as...
    beatnrsd beatnrsd
    36-40, F
    1 Response Oct 24, 2011

    Out Of The Blue

    On a beautiful, warm, sunny, Sunday afternoon, after auditioning for an extra on the TV. series MVP and having lunch with my sister and my boyfriend, I went home and felt pain in my right knee and noticed swelling of the entire knee area. It was June 2007, one week left at...
    actressjewelrsd actressjewelrsd
    46-50, F
    4 Responses Dec 29, 2009
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