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I Am An Adult Living With Agenesis of the Corpus Callosum

Personal Stories, Advice, and Support 5 People

    Living With Acc

    "I was first aware that I was different when doctors came round to assess me when I was little; I had to do things like shape sorting and walking, etc.   It was all part of research into what they now call Agenesis of the corpus callosum. In my Family this disability...
    charlotte1981 charlotte1981
    26-30
    Sep 26, 2008

    What's Wrong With Your Eyes?

    This one is a bit hard to explain to a 4 yr old kid staring you in the face just as you've come OUT of an absence seizure, with your eyes rolling. Kid poked me as I "came to" and asked.. HEY! what's wrong with your eyes?? That bothers me ALOT when anyone gawks at my face during...
    grettagrids grettagrids
    36-40, F
    Sep 18, 2012

    Dealing With Idiots And Spreading Knowledge To End Ignorance....

    I sure do get some stupid questions even by doctors about my ACC and they often either label me or blame everything that goes haywire with my health on my agenesis of corpus callosum. like having a massive hand injury, i fail to see how ACC is related to that! So what I have been...
    grettagrids grettagrids
    36-40, F
    1 Response Sep 13, 2012

    Living With Acc

    "I was first aware that I was different when doctors came round to assess me when I was little; I had to do things like shape sorting and walking, etc. It was all part of research into what they now call Agenesis of the corpus callosum. In my Family this disability is...
    charlotte1981 charlotte1981
    26-30
    Sep 26, 2008
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