I Am Battling Hidradenitis

Personal Stories, Advice, and Support 30 People

    My skin is rotting away.

    My movement is very restricted because of it. I take pain meds everyday to deal with the pain. I am on my bed most of the time and I don't like it. It makes me so depressed. This illness ruined my life and devastated me beyond any repairs.
    SoulCoffee SoulCoffee
    26-30, M
    Aug 14, 2015

    Hello! I also suffer with HS

    and have suffered for over 2 decades now. I've lived my life in so much pain and agony that now i want to uplift and support other HS family to be strengthen and made aware of this horrific disease. I wanted to inform you that I manage a page on Facebook named "Thru the...
    tjuane tjuane
    31-35, F
    Nov 10, 2015

    I am a 22 year old living with HS.

    I was diagnosed in 2011 but have been dealing with the disease since 2004. I have had 7 majors surgeries and approx 100 minor surgeries, removals & drainages. I get the cysts in my groins, right axilla, in between my breast & pilonidal cysts as well (on my tailbone). I have used...
    HSBrittany HSBrittany
    22-25, F
    3 Responses Nov 11, 2014

    Hello Family. I'm promoting my new page on

    Facebook name "Thru the Outbreaks". Hidradenitis Suppurativa. Please support and like the page, this is my way of empowering us and not the disease. Redirecting our attention on Interesting topics and Playful conversations is my motivation. I'm tired of feeling like no one...
    tjuane tjuane
    31-35, F
    May 13, 2015

    I been swelling for a few days

    and it was time to get cut I went to the ER and was seen I was fine until the doctor told me that she couldn't get me numb and continues to cut cut me anyways I have never felt some much pain in my life I cried and yelled to have her stop and she didn't stuff like this would...
    CamDew87 CamDew87
    22-25, F
    Nov 15, 2015

    As I lay in this hospital bed

    and think to myself for the last 15 years I had infection after infection I been cut over and over tried a lot of different medications surgeries even changed my lifestyle they kept me in the hospital for surgery and treatment why have I never gotten care I needed until now it's...
    CamDew87 CamDew87
    22-25, F
    Oct 8, 2015
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