I Am Brca1 Positive

Personal Stories, Advice, and Support 86 People

    Feeling Guilty About Being Scared

    I have known for about 2 years that I was Brca 1 positive, and for a while I forgot about it. Today I had my first appointment with my specialist (where I am they start preventive screening at the age of 25 for high risk patients), which I thought would make me feel better...
    1 Response Jan 21, 2013

    I am 22. I have a beautiful 4 month old baby

    girl. While I was pregnant, my OB suggested I get tested for BRCA. My whole life I knew breast & ovarian cancer was a strong possibility for me. It didn't scare me, because I knew from a young age there were options and women fought this battle everyday. I never thought I'd be...
    StellasMama2464 StellasMama2464
    26-30, F
    2 Responses Dec 28, 2013

    BRCA: Taking Control, I Have The Power: Why I Decided To Have a Mastectomy And Reconstruction.

    What is right for one person may not be right for another. That is what I always tell others when I share my decision to have a prophylactic mastectomy. We are each individuals and the decision is very personal. I also share the importance of doing research about the BRCA (Breast...
    tuscany23 tuscany23
    36-40, F
    1 Response Sep 4, 2011

    My story is like most others.

    I have family history of Breast/ovarian cancer in my family; actually on both sides of my family. I will never forget the words the nurse told me when I was 19 and laying on the exam table for the first time, covered by that paper towel vest and blanket. I was so nervous...
    SweetPea0513 SweetPea0513
    36-40, F
    1 Response May 12, 2015

    Today, I submitted a blood sample to be tested

    for the brca1 genetic mutation. My mother and two of her sisters have had breast cancer and have been positive for brca1. One of my aunts died because a recurrence of her cancer spread to her organs. I am extremely fortunate to live close to one of the top cancer hospitals in...
    n0t4g33k n0t4g33k
    1 Response Jun 20, 2014

    Brca1 Positive And Having Hormones Problems.

    Hi there my name is Vero I had cancer at 26 went trough a partial mastectomy on 1 breast hoping to breastfeed my future babies with my remaining breast. Did chemo and radiation and 4 years later after giving birth to my first daughter I found out I had the gene ( I remember...
    veromasse veromasse
    2 Responses Oct 13, 2011

    I Get It, But I'm Struggling.

    I got tested for the brca gene this spring because my cousin had colon cancer at an early age and was tested. I got the letter in the mail. My aunt, her mother, died at fifty of ovarian cancer. I had no idea about this, because damn immigrant families say nothing, but both of my...
    Annaboshka Annaboshka
    31-35, F
    1 Response Sep 9, 2012

    Part II Let the FORCE be with you. It could save your life.

    Behind the Scenes at a FORCE conference.  What is FORCE? FORCE stands for Facing Our Risk Cancer Empowered, www.facingourrisk.org. FORCE is the only national nonprofit organization devoted to hereditary breast and ovarian cancer. FORCE provides amazing support through message...
    tuscany23 tuscany23
    36-40, F
    Aug 25, 2011

    Okay, You're BRCA Positive, Now What? 7 Things To Do

    1. Talk to a genetic counselor: This is an important first step. A genetic counselor will discuss the ins and outs of the BRCA(Breast Cancer) mutation, from statistics to family history to screening. Talk to your gynecologist about finding one in your area. Check a local cancer...
    tuscany23 tuscany23
    36-40, F
    1 Response Aug 22, 2011

    Do Your Homework And Stay Positive

    I got my tests results back a couple of years ago.  My younger sister (11 yrs my Jr.) also got her results the same day, and she is positive as well.  My mother was sitting with us when we got the "news" and her reaction made me lose it completely.  My mother started crying...
    ladyvictorie ladyvictorie
    31-35, F
    Jan 21, 2012

    Feeling Alone And Brca 1

    Hi my name is leone im 26 years old.  I have a large family from my fathers side which has a strong history of breast and ovarian cancer in woman.  My father tested positive and urged me and my twin sister to be tested for BRCA 1.  We both tested positive 5 months ago, it has...
    weeleone weeleone
    26-30, F
    4 Responses Aug 1, 2011

    Mastectomy Booked For Next Wed

    Hello all. I just wanted to say hello. I am a 37yo with BRCA1 (have known about 10 years now) and next wed (24 April 13) I am having a double mastectomy with DIEP reconstruction. I was wondering if anyone could tell me a bit about how they found the recovery as that is the bit I...
    Considj Considj
    41-45, F
    3 Responses Apr 17, 2013

    I Feel Let Down

    hi everyone, I was diagnosed with breast cancer in 2010 at the age of 38yrs old. I opted for a lumpectomy at the time and recieved chemotherapy and raditherapy after my surgery. My mum and grandmother both had breast cancer at the age of 48yrs old. After my mums diagnosis I was...
    caernarfon caernarfon
    36-40, F
    1 Response Jul 10, 2012

    Being BRCA 1 +

    I was diagnosed BRCA 1+ back in 1998 at the age of 26. Three years after the diagnosis I voluntarily had BPM (bilateral prophylactic mastectomy) at the age if 29. I was single at the time I had the surgery and I elected not to have reconstruction. It felt refreshing to me to...
    SFSue SFSue
    41-45, F
    1 Response Sep 6, 2013

    I recently found out I am BRCA1 positive.

    My mother died at 33 from breast cancer when I was 1 and I watched my sister die in her home in front of her children on her 4th battle of breast cancer at 38. She was first diagnosed when she was just 26. This was about 10 yrs ago when my sis died, neither of them were tested...
    Avajace Avajace
    Apr 22, 2015

    I Am Brac1 Positive And Triple Negitive Breast Cancer At 39

    I found the lump in my breast and went in a few weeks later. Long story short: I had Triple Negative breast cancer; stage IIIA with lymph node involvement. Wow! I was in shock! I just got done with a Triathlon 2 months earlier; raising money for the LLS. I started neoadjavant...
    Iluvmygirl Iluvmygirl
    2 Responses Jun 3, 2011

    BRCA positive? Finding support when you have the BRCA mutation.

    It can pose a challenge to enter the world of breast cancer when you don’t actually have cancer. I found myself often saying to friends and family, ‘I am having a mastectomy but no, I do not have cancer.’  I tried to explain the statistics but often others didn’t...
    tuscany23 tuscany23
    36-40, F
    1 Response Aug 28, 2011

    Me and My Brca1 Gene

    I'm a woman who has lived with a nagging question in her head for 20 years. At only 35 years old that’s a lot of worry. There's been a question that persistently knocked on the door of my rational brain, telling me to pursue the answer. What is the question? Is there...
    MissusJonesy MissusJonesy
    7 Responses Feb 15, 2009

    31, Single, Brca1

    Hi everyone, I'm so glad this community exists. Besides my sister (Also brca1), I don't know anyone else that truly understands what it is like to be told you have such a high percentage of getting cancer. I just found out this summer and I can't say I was surprised at all. My...
    carrot6572 carrot6572
    7 Responses Dec 4, 2010

    Why Me?

    My aunt died of Breast Cancer at age 40. My grandmother died of colon cancer 10 months later. At this point I was just starting high school, I figured out family had been through a lot and nothing else bad could happen. When I was in university, my mother was diagnosed with...
    thenshaw12 thenshaw12
    Aug 31, 2011

    BRCA1 Positive

    I am 24 years old and got married just over a month ago. 2 weeks before the wedding, I found a lump on my breast. Knowing my family history and that my mother is BRCA1 positive, I scheduled an appointment with my doctor, who found a second lump. We ran the gene test, and I did a...
    truebluelady truebluelady
    26-30, F
    Nov 19, 2013

    BRCA: A previvor's story, from discovery to empowerment

    What is a previvor? A previvor is a survivor of a predisposition to cancer.  The term differs from those already diagnosed with cancer.  Previvor was coined in 2000 after a FORCE (Facing Our Risk Cancer Empowered) member felt that she “needed a label.” In 2007, Time...
    tuscany23 tuscany23
    36-40, F
    2 Responses Aug 22, 2011

    I Haven't Had Brca+ Result Because They Can't Find It!

    The background: Hi my story is a little different, my family have a massive history of Breast, Bowel and Ovarian cancer on my Mums side of the family. This all started majorly with my Grandma who had Bowel cancer (although her father also died of cancer in his 40's), and her...
    Noonie1 Noonie1
    31-35, F
    1 Response Jan 25, 2013

    Brca 1 Gene

    Having wondered and wondered for many years about this Gene.....Grandma passed away from Ovarian Cancer aged just 44. Mum had Breast Cancer at 37 years resulting in a mastectomy. Unfortunately Mum passed away from ovarian cancer aged just 50. Auntie also had Breast Cancer at 37...
    suzeharrington suzeharrington
    46-50, F
    2 Responses May 12, 2011

    Me too - my nan died of ovarian cancer in 1984,

    my mum died of breast cancer in 1986, my aunt died of breast cancer in 1994. Now my elder sister has secondary breast cancer, it's spread to her brain and lungs and is terminally ill. Both myself and my younger sister recently had our results from our blood test. She was...
    Jugs1 Jugs1
    May 22, 2015

    My mother passed away this past November.

    She was a servivor of breast and ovarian cancer 10 years ago. This time, lung spread to liver to brain cancer and she was gone in 5 weeks. My sister and I are planning on getting tested very soon. My concern is for my 20 yr old daughter and 18 yr old twin sons. Should they be...
    mrsfirebug mrsfirebug
    46-50, F
    1 Response Mar 30, 2014

    Thirteen And Pregnant

    I was thirteen when i got pregnant for a thirty one year old guy
    mihlan2 mihlan2
    Nov 29, 2013

    "You're Too Young For A Mammogram": Struggles Of Being Young And Brca1 Positive

    When my sister came to LA, I took her out to dinner for some much needed catch up. I was blindsided by her confession that she'd discovered a lump in her breast while shaving her armpits, and that she had it biopsied and that the results would be in soon. I remained strong and...
    natsays natsays
    26-30, F
    3 Responses Sep 23, 2013

    My Plan

    Hi everyone! I found out in 2010 that I am Brca1 positive. My mom's doctor recommended she get screened after being diagnose with breast cancer at age 51 and finding out that my aunt had passed away from breast cancer at age 39. When her test came back positive for the...
    Elaisa Elaisa
    31-35, F
    3 Responses Apr 23, 2012

    21, Brca 1 Positive, Scared Out Of My Wits

    I hate it when the first reaction is "but your young and healthy, you're not going to get cancer". They might be right, I might not. No, there is about a 20-40% I may not. However, turn the table and it's now 60-80% I may. Don't tell me I have nothing to worry about. So far my...
    LadyAdelaide LadyAdelaide
    18-21, F
    5 Responses Sep 21, 2012

    23, In College, And Not Letting This Get Me Down

    Like some of you, I was tested for the BRCA1 gene after my mom was diagnosed with breast cancer. Before she got the bad news, we really didn't think much about our family history. It was only after she made an appointment with a geneticist that made it clear that a mutation may...
    2 Responses Jan 14, 2013

    What's Next?

    BEGINNING: My story starts 7 years ago when I was 15. I came home and my mom sat me down with my little brother saying she had to talk to us. She had found a lump on her chest and saw a doctor a while ago. Earlier that day she had seen him and he told her the lump was breast...
    tricksandtreats tricksandtreats
    22-25, F
    2 Responses Dec 6, 2012

    Brca1 Sucks!

    My Story starts out a few years ago when I was at the fertility doctor. I had tried for 7 years for a second child with one miscarriage. Unfortunately, nothing the doctor tried worked, either. He mentioned doing an exploratory surgery..., that's when I decided to stop. I thought...
    nudemoon nudemoon
    41-45, F
    Jul 26, 2013

    I Am Going To Get Though This? I Am Brca1 Positive

    mbstems mbstems
    26-30, F
    4 Responses Mar 17, 2012

    Brca1 Positive And Fighting Anxiety

    I found a lump and then another and they were both diagnosed as Breast Cancer in December 2011. I had a double mastectomy and genetic testing. I had chemo for 4 months and found out I was BRCA1 positive. I had my ovaries out. Now it is 1 year later. I am cancer free but...
    arnoldl arnoldl
    46-50, F
    Jan 14, 2013

    I found in February 2014

    that I am BRCA 1 positive. So is my father, my aunts, my grandfather, my uncle.....all grandkids, me being one of the grandchildren were tested and everyone was negative but me. I have pent a lot of my life having surgeries....open heart, tonsils, 3 laproscopic, 1 C-section...
    jjfoxy75 jjfoxy75
    41-45, F
    2 Responses May 30, 2014

    I am not Brca positive

    but have a mutation which is serious. Today, I faced the music. I went bravely to take a test which I knew could give me answers to the a question I didn't want answered. Now...I have choices. First of all, I am from a big family filled with females in my generation and...
    spkfrly spkfrly
    51-55, F
    2 Responses Apr 12, 2016

    Facing My Fears

    I think the fear of breast cancer has always been in the back of my mind. In 1975 my mother, who was 49, died 2 months before my 9th birthday. I was 4 years old when she was diagnosed. She fought a difficult battle both physically and emotionally for 5 years. I remember the...
    ladycat43 ladycat43
    46-50, F
    Sep 9, 2012
More Stories