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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Related Experiences

    A Spina bifida is when your spine has not completely develop and the spinal cord (popped out) where the spine has not joined.
    bikerbos bikerbos 36-40, M Jul 31

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    I'm 25 years old and I have spina bifida
    Kierstyne Kierstyne 22-25, F 2 Responses Aug 14

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    I am feeling very depressed with my infertility I just need some support from any if you who understands as even my husband is avoiding talking to me about it. My boss at work has...
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    I am really tired of dealing with impatient and stupid people. I'd like to be able to tell them exactly what I think of them, but I can't and it sucks.
    thoughtsthatstray thoughtsthatstray 41-45, M 1 Response Aug 1

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    So I finally had the courage to ask for a divorce but I feel like ****. The marriage was never going to work out as we both had different values and beliefs, and there was nothing...
    invisiblesoul invisiblesoul 22-25, F Aug 4

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    I definitely am not good at it. I try to act strong but I cannot handle it. I responded to a post here and misunderstood her statement about a guy on EP. I said that I thought he...
    deleted deleted 26-30 1 Response Aug 2

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    My mother isn't even 60 years old and has early onset altzheimers. I can only work 30 hours a week while I go to trade school, so I can't move out. I would have more sympathy for...
    BleuGardenia BleuGardenia 26-30, F 1 Response Aug 4

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    So my girlfriend broke up with me, and says she wants to be friends and doesn't want commitment, but still wants to have sex with me and hangout and stuff...she still texts me...
    Experiencezzzz Experiencezzzz 18-21, M Aug 5

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    10 months ago today I lost my boyfriend to a car wreck. I currently have a new boyfriend, and friends, but no one seems to understand the real pain I feel. I was supposed to be...
    meganmartinez11 meganmartinez11 16-17 Aug 13

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    Hi...I have long history with my big time ex for about 5 years and still going on because we are working together... Here is my story in short before I need advises and comments...
    LongtimeEx LongtimeEx 31-35, F Aug 16

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    My ex fiancé and I had been together for years prior to the break up which was initiated by her. I had my own insecurities while dating her and I took out my issues on her. We...
    LCCD LCCD 26-30, F Aug 18

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    I am a recovering Alcoholic and currently in a program. It is basically a place where you rent an apartment with other people in recovery and attend groups and meetings. The men in...
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    I read this about a year ago when my dad passed away and it was unbelievably helpful. Thank you whoever wrote it! Alright, here goes. I'm old. What that means is that I've...
    bigsar bigsar 22-25, F 3 days ago

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    My husband and I moved to Ohio 11 years ago when I was pregnant with our son ... Because he was "going with or with out me " and I wanted our son to know his dad so I went to live...
    melissa4eva melissa4eva 31-35, F 2 Responses Aug 7

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    Yeah I just want people to understand it, I'm tired of explaining it.
    TheKillerShot TheKillerShot 22-25, M 2 Responses 12 hrs ago

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    I have had it since birth. I use my wheelchair everywhere outside my house. It was only found out in 2008, message me for more :)
    Nickstar13 Nickstar13 13-15, F Aug 10

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    Hard things are put in our way, not to stop us, but to call out our courage and strength.
    aj32792 aj32792 22-25, M Aug 11

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    When everyone else says you can’t, faith & determination says,”Yes you can”
    aj32792 aj32792 22-25, M Aug 15

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    When everyone else says you cant, faith & determination says,Yes you can
    aj32792 aj32792 22-25, M Aug 15

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    I can't get over my first love ..
    delgadom000 delgadom000 16-17, F 1 Response 14 hrs ago

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    Yeah, the weight upon my heart, the problems you face seemed so big , i think i have to let myself go through it.
    ActuallyGrace ActuallyGrace 13-15, F Aug 4

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    My grandma is going crazy and she blames it on everyone and everything but herself (as usual) and she murdered animals now like normal house pets. There's been a lot of problems in...
    katd1234 katd1234 13-15, F 2 Responses Aug 8

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    im like really really sensitive. someone once commented on my book that I posted on this website and they said I spelled a word wrong and I deleted it straight away. I cant handle...
    silentgirl1234 silentgirl1234 13-15, F 2 Responses Aug 9

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    Family problems, friend problems, stress for starting high school, personal problems, sports problems. Stress stress stress.
    emgg emgg 13-15, F Aug 12

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    So I had a stress fracture in my shin from track and field and it finally just healed like a week ago, but I just jumped down to the ground from a 15 foot drop and my shin hurts...
    Alexis117 Alexis117 18-21, T 1 Response Aug 19

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    I put myself together and run 5 km this pain is still in my chest.
    agreathouse agreathouse 26-30, F 1 Response 5 days ago

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    The large windows and total-length glass door enable for your seamless movement of Place from indoor to The ocean-dealing with terrace. An outside daybed soaked in all-natural...
    Burtctk215 Burtctk215 31-35, M 1 Response 9 mins ago

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    I'm real tired of dealing with the same **** everyday.. I'm really at a point where I'm almost done with living. I'm almost to my limit I hate my life.
    Born2Inspire Born2Inspire 18-21, M Aug 12

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    Do we really need this forum ? Possibly not. We just need to read the news ! http://www.theguardian.com/world/2014/aug/05/-sp-australias-detention-regime-sets-out-to-make-asylum...
    InRetrospect InRetrospect 51-55 1 Response Aug 3

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    I utilize it day to day for all my kitchen appliances.Really convenient with large Areas involving Every socket.Certainly suggest the power surge protector board.Specifics & Specs...
    Newtonys505 Newtonys505 31-35, M 1 Response Aug 22

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    Until now, I have felt completely lost when it comes to understanding certain aspects of my significant other. We are in a committed, long-term relationship, and I love and care...
    nic225 nic225 22-25, F 2 Responses 3 days ago

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    The loss of my best friend. My now ex fiancé has PTSD. Since February of this year I have been dealing with his slow decline into a person no one close to him knows. Memory loss...
    XSharpxEdgex XSharpxEdgex 26-30, F Aug 16

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    My experience began while I was pregnant. Like many of the stories ive read, I was happy. I was actually happier than I should have been at 17. I wanted a boy, and on my 18th...
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    I really need someone who can relte, I have been dealing with this since I was 9 and trying so hard to stop. Please help me. Please don't jdge and I won't judge you.
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