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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Related Experiences

    Having Spina Bifida for 21 years has gotten to me really fast.... My depression is worsening. I just want to die. I hate being disabled. I hate not being able to do the things that...
    Lovelybaby18 Lovelybaby18 18-21, F 2 Responses Apr 4

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    This is a long post so prepare accordingly.There's so much to tell that I'm not sure where to start. I'm not sure my story will receive as much attention as I require, either, or...
    somniatorlupus somniatorlupus 18-21, M 2 Responses Mar 29

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    I had a child, a baby boy, from a one night stand with an ex partner who left the country when she found out she was pregnant. Mostly due to her lack of faith in my ability as a...
    JonnoHo JonnoHo 22-25, M 1 Response Apr 9

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    In a way! I've Ben doing really well for myself following my breakup....but sometimes I catch myself thinking about him and often his friends approach me and ask what happened...
    madusand madusand 18-21, F Mar 18

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    Imagine this. Some guy flies through a stop sign, blind-sighting you. Hits your car, debris and parts all over. He gets out tells you how sorry he his, it's totally his fault, asks...
    buttercup033 buttercup033 26-30, F 3 days ago

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    It's been 3 years. I was baptized when I was 12 with my 10 yr. old little sister. Disfellowshipped at 18 during my 1st semester of college my mom brought me my shoes one day didn't...
    MissSirRay MissSirRay 18-21, F 1 Response Mar 31

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    The past several years of my life have been turbulent. The afternoon of December 26th, 2007, my father, younger brother, and I went to my older sister's house to drop off some...
    QOE23 QOE23 18-21, F 4 days ago

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    we talked to mom today.She criticised the partners I choose. I mean like the previous one was fine but was a bad guy, this one is not good-looking and it's unknown even if he's at...
    darkblue0909 darkblue0909 18-21, F Mar 28

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    I'm not in the middle of a dating relationship breakup but a true friendship breakup My cousin did something stupid with another guy and now the guy she's in love with is...
    JalenFrankie616 JalenFrankie616 13-15, F 1 Response Mar 28

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    My parents split a few years ago. My mom fell in love with a neighbor and eventually moved states away. That was the most difficult depressing time of my life. As soon as she moved...
    Shessolovely Shessolovely 18-21 Mar 30

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    I need help with something. My friends brother just died today. She called me in tears and I have no clue how to help her. We live in different states by the way.
    dabombcono92 dabombcono92 22-25, M 1 Response Apr 6

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    My sister died two weeks ago and we have put her to rest. She was only 67 years old. In the past year and a half I lost another sister (59 years) and her husband. My older brother...
    wuzgnu wuzgnu 61-65, M 5 days ago

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    yet another negative test :( so here is some of my story. I have been married almost 10 years we have actively been trying for our first baby for about 7 months, now I say actively...
    karabear1985 karabear1985 26-30, F 2 days ago

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    How could you tell me you still want me to love you but still choose to walk away from us? How could you let others in your life make the choice to end us without putting up a...
    HeForgotMe HeForgotMe 26-30 2 days ago

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    I found out I'm intersex when I was 12 that meant I can't have children. Ever. I don't have ovaries. Probably don't have uterus either. I can't have sex because my vagina is too...
    lunardarya lunardarya 22-25, F Mar 19

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    I went to study abroad for 9 months and while I was gone my fiancé felt like I was cheating on him so when his ex moved back to town they got back together. I found out and...
    Ppwincess1901 Ppwincess1901 18-21, F 2 Responses Mar 23

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    I ended things due to an abusive relationship. For several months he tried anything to get me back and I ignored him Eventually he found a new gf and now they're expecting. Years...
    dearcarmen dearcarmen 22-25, F 1 Response Mar 26

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    Criticism never bugged me until this year. I guess cause alot of things changed idk but anyone I'm around comments on my weight, how I look, or just me being me. My friends and...
    lilly756 lilly756 18-21, F 1 Response Apr 4

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    3 years. Why can't I forget you... Clearly I'm sick to be in love w someone who's soon to be married.
    dearcarmen dearcarmen 22-25, F Apr 8

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    I would give anything in the world for a hug from him . anything . its the one thing I just can't have .
    sayhashahemm sayhashahemm 22-25, F Apr 9

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    I really miss my ex. Or maybe I just miss having someone there. Either way I'm miserable.
    itsmehere2 itsmehere2 18-21, F 1 day ago

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    As I'm not a white woman living in Britain I suffer greatly from discrimination and racism and it is intimidating and humiliating to be living around a race of people who...
    restlessuk restlessuk 31-35, F 4 Responses Mar 31

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    It's not always necessary to change someone's mind: Sometimes it's just plain not worth it to try and change someone's mind, best to just agree to disagree and move on. For the...
    CrystalRainsPearls CrystalRainsPearls 41-45, F 5 Responses 2 days ago

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    Hello everyone, I just want to start off by saying i'm not looking for pitty or anything, its just that a lot of things you guys are going through with your mothers i am going...
    Doctorwhodat Doctorwhodat 13-15, F 2 Responses Mar 23

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    No more Mrs. Nice Girl. You wanna play these games? Fine. But I'm better at them. I loved you. I trusted you. I would have done anything under the sun for you. I'm done...
    KaylaNicole93 KaylaNicole93 18-21, F 3 Responses Apr 3

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    I've been dating this girl for 5 months, we are both 20, and we said we love each other after 2 months. But the problem is, I found out she's slept with 12 guys by age 19 soon...
    Fatality2013 Fatality2013 18-21, M 2 Responses Apr 3

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    I feel completely alone right now. I've moved to a new country where I dont have any of my own friends or family and I'm so confused with how I feel. I have my amazing boyfriend...
    VictoriaN105 VictoriaN105 18-21, F 2 Responses Apr 7

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    Hello! My name is Tia Evans and I'm with Younique Cosmetics. Some of my team and I are reaching out to families dealing with autism to give back. We are offering 100% of our...
    youniqueviatia youniqueviatia 31-35, F Apr 9

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    Hello! My name is Tia Evans and I'm with Younique Cosmetics. Some of my team and I are reaching out to families dealing with autism to give back. We are offering 100% of our...
    youniqueviatia youniqueviatia 31-35, F Apr 9

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    Hello! My name is Tia Evans and I'm with Younique Cosmetics. Some of my team and I are reaching out to families dealing with autism to give back. We are offering 100% of our...
    youniqueviatia youniqueviatia 31-35, F Apr 9

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    I had spinal fusion surgery April, 2013. Not all roses afterward. But much improved compared to the suffering prior to surgery. L-2 to S-1 spinal fusion isn't any joke. And when...
    TJSpine TJSpine 56-60 Apr 1

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    I had spinal fusion c2-c6 on January 12. Inpatient rehab and was in the hospital until 3/6. I have worked hard throughout this process doing everything I can to get better...
    Stevegriffey3 Stevegriffey3 41-45, M 1 Response Apr 6

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    I work in a nursing home and I absolutely love it. I was hired there last August in 2014 and there I began taking classes to train as a nurses aid. When I began my classes I was...
    mamabutterfly mamabutterfly 36-40, F 10 hrs ago

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    Check my YouTube channel + outcast-all.com for all new comers as reference for any transgender person on topics dealing in factual realities of living, working & media limelight as...
    cross2play cross2play 31-35 1 Response Mar 20

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    I have congenital cervical stenosis (more about lumbar spine later) with severe degenerative disc disease. Saw a Neurosurgeon Monday and he says I need surgery. Problem is, I have...
    VixBux VixBux 56-60, F 1 Response Mar 31