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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    Related Experiences

    A Spina bifida is when your spine has not completely develop and the spinal cord (popped out) where the spine has not joined.
    bikerbos bikerbos 36-40, M Jul 31

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    I have Spina bifida myelomeningocele. It affects my L4 L5 region. I walk with the assistance of braces and I occasionally use my wheelchair. I don't know many people with Spina...
    HaleyP HaleyP 18-21, F 4 Responses Jul 24

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    I'm 25 years old and I have spina bifida
    Kierstyne Kierstyne 22-25, F 1 Response Aug 14

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    I am feeling very depressed with my infertility I just need some support from any if you who understands as even my husband is avoiding talking to me about it. My boss at work has...
    surfiehall surfiehall 31-35, F 3 Responses 23 hrs ago

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    I am really tired of dealing with impatient and stupid people. I'd like to be able to tell them exactly what I think of them, but I can't and it sucks.
    thoughtsthatstray thoughtsthatstray 41-45, M 1 Response Aug 1

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    So I finally had the courage to ask for a divorce but I feel like ****. The marriage was never going to work out as we both had different values and beliefs, and there was nothing...
    invisiblesoul invisiblesoul 22-25, F Aug 4

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    We now have my step-kid every other Thursday-Sunday. We just (Wednesday at 5pm) got an email saying that step-kid was going to Florida in the morning and would be back in a week...
    Stepmom212 Stepmom212 31-35, F Jul 30

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    I definitely am not good at it. I try to act strong but I cannot handle it. I responded to a post here and misunderstood her statement about a guy on EP. I said that I thought he...
    deleted deleted 26-30 1 Response Aug 2

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    My mother isn't even 60 years old and has early onset altzheimers. I can only work 30 hours a week while I go to trade school, so I can't move out. I would have more sympathy for...
    dolceharajuku dolceharajuku 26-30, F 1 Response Aug 4

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    So my girlfriend broke up with me, and says she wants to be friends and doesn't want commitment, but still wants to have sex with me and hangout and stuff...she still texts me...
    Experiencezzzz Experiencezzzz 18-21, M Aug 5

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    10 months ago today I lost my boyfriend to a car wreck. I currently have a new boyfriend, and friends, but no one seems to understand the real pain I feel. I was supposed to be...
    meganmartinez11 meganmartinez11 16-17 Aug 13

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    Hi...I have long history with my big time ex for about 5 years and still going on because we are working together... Here is my story in short before I need advises and comments...
    LongtimeEx LongtimeEx 31-35, F 6 days ago

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    My ex fiancé and I had been together for years prior to the break up which was initiated by her. I had my own insecurities while dating her and I took out my issues on her. We...
    LCCD LCCD 26-30, F 4 days ago

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    I am a recovering Alcoholic and currently in a program. It is basically a place where you rent an apartment with other people in recovery and attend groups and meetings. The men in...
    allenhinton allenhinton 41-45, M 21 hrs ago

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    My husband and I moved to Ohio 11 years ago when I was pregnant with our son ... Because he was "going with or with out me " and I wanted our son to know his dad so I went to live...
    melissa4eva melissa4eva 31-35, F 2 Responses Aug 7

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    I have had it since birth. I use my wheelchair everywhere outside my house. It was only found out in 2008, message me for more :)
    Nickstar13 Nickstar13 13-15, F Aug 10

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    Hard things are put in our way, not to stop us, but to call out our courage and strength.
    aj32792 aj32792 22-25, M Aug 11

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    When everyone else says you can’t, faith & determination says,”Yes you can”
    aj32792 aj32792 22-25, M 6 days ago

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    When everyone else says you cant, faith & determination says,Yes you can
    aj32792 aj32792 22-25, M 6 days ago

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    He surprised me and his daughter yesterday and came home 2 days early!!!! He had a banquet last night so we didn't get to see him long but I woke up in the middle of the night to...
    callijojohnson callijojohnson 22-25, F Jul 27

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    Yeah, the weight upon my heart, the problems you face seemed so big , i think i have to let myself go through it.
    ActuallyGrace ActuallyGrace 13-15, F Aug 4

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    My grandma is going crazy and she blames it on everyone and everything but herself (as usual) and she murdered animals now like normal house pets. There's been a lot of problems in...
    katd1234 katd1234 13-15, F 2 Responses Aug 8

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    im like really really sensitive. someone once commented on my book that I posted on this website and they said I spelled a word wrong and I deleted it straight away. I cant handle...
    silentgirl1234 silentgirl1234 13-15, F 2 Responses Aug 9

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    Family problems, friend problems, stress for starting high school, personal problems, sports problems. Stress stress stress.
    emgg emgg 13-15, F Aug 12

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    So I had a stress fracture in my shin from track and field and it finally just healed like a week ago, but I just jumped down to the ground from a 15 foot drop and my shin hurts...
    Alexis117 Alexis117 18-21, T 1 Response 3 days ago

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    I'm estranged from my family, so the only family I really have is my wife and her mother. My father in law died 3 years ago, and for some prior to that my wife and her dad were...
    BJH72 BJH72 41-45, M Jul 29

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    I'm real tired of dealing with the same **** everyday.. I'm really at a point where I'm almost done with living. I'm almost to my limit I hate my life.
    Born2Inspire Born2Inspire 18-21, M Aug 12

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