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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    Hello. I get confused with my feelings sometimes. For example, when I'm joyful and having fun I love everything and go against everything bad like cruelty. But when I'm anger or...
    ImConfusedSo ImConfusedSo 13-15, F 11 hrs ago

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    Grief is not linear. It comes back around. Loss is one of the hardest things I've had to deal with.
    cloudedsky cloudedsky 26-30 1 Response 2 days ago

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    I've been homeschooled all my life, and never been around teenagers except for once a year at camp.. So this spring I played futbol for the first time ever, right as my anxiety...
    violentsneezes violentsneezes 16-17, F 1 Response 3 days ago

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    It's okay to be quiet... It's okay to be shy.. I just want to overcome the fear.. I just want to be able to do the things I need to do.
    chaekowski chaekowski 26-30, M 1 Response 3 days ago

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    What's it mean when ur ex (dated 8 months) wants to keep you in his life as "friends" even when he's moved on to someone new? This has never happened to me before.
    Merrmaid Merrmaid 36-40, F 2 Responses 3 days ago

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    I really really need to work on overcoming, dealing with, or at least managing it.. And I feel like the more I talk about it, the more likely I am to overcome it. It's really been...
    chaekowski chaekowski 26-30, M 3 days ago

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    Its 4:37am so this won't be my best writing, so please don't judge me and if you do...do it silently (please). Anyhow, I had this friend. He and I grew very close. Had an intense...
    LanaKane LanaKane 70+, F 3 Responses 4 days ago

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    Going home everyday is irritating and really gets to me . Either the house is so messy and there's crap laying around everywhere or my mums in a crap mood which makes everyone else...
    epsarah94 epsarah94 18-21, F 1 Response 5 days ago

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    The hardest part about going to the gym for me is checking-in and leaving. I really, really, reallyyyy don't like it. When I get to the door my heart starts pumping a bit. I walk...
    chaekowski chaekowski 26-30, M 1 Response 5 days ago

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    For all you people who don't know what it is, it's when a baby is born with a hole in their back and the backbone is sticking out. I have a better good life your sympathy is not...
    OrochimaruSama92 OrochimaruSama92 22-25, F 1 Response 5 days ago

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    When not sure about extremes in life...remember you will go most safely in the middle.
    000Camilla 000Camilla 31-35, F a week ago

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    Well rather I am not dealing with them, I have identified 3 narcs in my life. I have very little to do with any of the 3. In my experience it's the only thing you can do with...
    LilyLangtree LilyLangtree 56-60, F a week ago

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    I walk through the grocery store and I realize all the people I am passing are going to die and dissolve and be scattered in every direction of the universe.. And all that...
    chaekowski chaekowski 26-30, M a week ago

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    People are always so judgemental.I feel like showing my impatience in dealing with them.I keep quiet only because it is not worth bothering about them so much.
    whitesunshine87 whitesunshine87 51-55, F 5 Responses a week ago

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    No matter who you are and what happens in your life, you still have the chance to turn your life around and be great.
    aj32792 aj32792 22-25, M 1 Response a week ago

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    Hey there! I'm looking for other military girlfriends , because my boyfriend is deployed right now and it's pretty hard.... It would be nice to find other girls who are in the same...
    deployedboyfriendsgirl deployedboyfriendsgirl 26-30, F 2 Responses a week ago

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    what’s happening is that some deep, inner part of me finally feels safe and stable enough to address the leftover emotional fallout that’s been patiently waiting. In the years...
    hospitalrooms hospitalrooms 31-35, F Jul 23

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    To whom this may concern I'm not dealing with any bullshit this year so stay out of my way and let me do me. No drama. No fake *******. No bad vibes. No bad situations. I'll do me...
    Indicudsarah Indicudsarah 18-21, F Jul 23

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    I was just wondering if any fellow potsies have any careers advice? I unfortunately had to stop mainstream school (as many of us have had to) as well as home education so...
    justhollyjayne justhollyjayne 16-17, F Jul 22

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    Latest Blog post I talk about Flying, Airports and the TSA and dealing with incontinence. I also go through my first experience and how you can make yours go smoothly. Ask me any...
    archerstaley archerstaley 26-30, M Jul 20

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    Latest Blog post I talk about Flying, Airports and the TSA and dealing with incontinence. I also go through my first experience and how you can make yours go smoothly. Ask me any...
    archerstaley archerstaley 26-30, M Jul 20

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    Latest Blog post I talk about Flying, Airports and the TSA and dealing with incontinence. I also go through my first experience and how you can make yours go smoothly. Ask me any...
    archerstaley archerstaley 26-30, M Jul 20

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    After many years on my own, mistakes, bad relationships, failed marriage and bad financial decisions, my daughter and I find ourselves living with my father again. We were...
    BebeMac BebeMac 36-40, F 1 Response Jul 19

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    I just found out I need to have spinal fusion surgery in my lower spine for a ruptured disk. I'm a bit nervous after reading all the stories. How long were people off work after...
    par2day par2day 41-45, F 1 Response Jul 18

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    My life has been altered, or, as one woman I met told me, "transformed." I liked that word because something positive can be associated with it. It reminded me that even in the...
    christina1219 christina1219 26-30, F 1 Response Jul 18

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    My boyfriend is a nightmare and he has been treating me so badly for the past 6 months, we've been together for nearly 3 years now and I'm about to end it with him tomorrow.. He...
    Victoriaa95 Victoriaa95 18-21, F Jul 17

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    On the outside, I laugh/shrug it off, but inside I'm dying. I know you can't please everyone, but criticism still upsets me.
    usernameinneed usernameinneed 26-30, M 2 Responses Jul 16

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    I can't lie, I just don't feel right. I have be honest. Always.
    usernameinneed usernameinneed 26-30, M 1 Response Jul 16

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    I fear people who let the little things about you really bother them. Who let one or two minor mistakes ruin their whole image & impression of you. I wish I was better about...
    saundra04 saundra04 26-30, F 1 Response Jul 16

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    Hello I have never reached out before to ask for advise however I want to thank you for giving me this opportunity to express my thoughts on an experience I have been through...
    SleeplessinHouston23 SleeplessinHouston23 36-40 Jul 14

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