I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support from 19 Members

Founder: jenq2006

Members

paragraph feeling anxious
boypower feeling bored
Nirbhai
KristinaFL81
heatherxoxo
czaristacrystals feeling appreciated
mandyashby
alisha459777 feeling chill
peachfuzz68 feeling Lazy
sw3522939

mandyashby

I Am Dealing With Bi Polar

hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did not think you could fear that much,i have lost...

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Written on February 16th, 2012
0 Comments 1 Rate Up 110 Views
peachfuzz68

Running Was A Way Of Life

I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me...

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Written on February 12th, 2012
47 Comments 16 Rate Ups 1148 Views
alisha459777

My Bodies Broke But My Heads Held High!

My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around...

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Written on April 8th, 2012
1 Comment 3 Rate Ups 206 Views
heatherxoxo

Its Not Me Who Has Spina Bifida Its My Nephew :(

hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my...

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Written on February 26th, 2012
1 Comment 1 Rate Up 91 Views
peachfuzz68

Spina Bifida

I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.

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Written on January 15th, 2012
4 Comments 2 Rate Ups 176 Views
KristinaFL81

Newcomer

Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where...

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Written on March 4th, 2012
1 Comment 1 Rate Up 76 Views

6 stories by 6 authors

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This Experience at a Glance

Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:

"hello, im heather and my nephew logan has spina bifida and hydrocefilis - i dont no how to spell it: L, when he was born the doctors said he was never going to make it they were wrong..."
" be able to walk but we dont belive him, we support a group named asbah, a group to help children with spina bifida, they have taught him makaton a sign lianguage for babys and he cant speek but he knows words in makaton like ; crisps, trains, mummy, daddy, sister, brother, car and more he is a very bright child and is learning well i hope that this will inspire you and please donate to the carrity..."
"I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness..."

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And the Story Awards Go to...

Most Popular: Running Was A Way Of Life

Most Recent: My Bodies Broke But My Heads Held High!

Statistics:

32% of people who have this experience are in their thirties, 26% are in their forties, and 21% are in their teens. 79% of people who have this experience are women.

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