Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

    Your Response

    Cancel

    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

    Your Response

    Cancel

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

    Your Response

    Cancel

    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

    Your Response

    Cancel

    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

    Your Response

    Cancel

    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

    Your Response

    Cancel

    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

    Your Response

    Cancel

    Related Experiences

    my name is natalie. i'm 29 years old with spina bifida myelomeningocele. i could walk until about 13 years old, and then had a cyst in my back that pressed on my spinal cord and...
    katiefanatic katiefanatic 26-30, F Feb 8

    Your Response

    Cancel
    I was born with spina bifida. I've never walked, I've always used a wheelchair to get around
    mattywheels25 mattywheels25 26-30, M Feb 15

    Your Response

    Cancel
    So for a few years now I've been dealing with my manic-depression and it's gotten better and worse through time. I began taking mediciation to help when I was 12 though it didn't...
    13nanna 13nanna 18-21, F 4 days ago

    Your Response

    Cancel
    This is REALLY long, but I feel I have to share my experience. My fiance and I met when I was in 9th grade and he was in 10th grade. We went to the same high school and met through...
    NewMommy2015 NewMommy2015 18-21, F Feb 17

    Your Response

    Cancel
    My brother's fiance has him living in the basement and is controlling how much he gets to see his baby (which was very much the biggest reason he wanted to stay in this...
    ResidentGoddessAstraea ResidentGoddessAstraea 18-21 4 days ago

    Your Response

    Cancel
    why is it that , I'm such an outcast to the family. even though I am the second born , I am a leftover . No seriously I am , I'm always the damn target. I clean the kitchen most of...
    GoAskBetty GoAskBetty 18-21, F 1 Response Jan 31

    Your Response

    Cancel
    I've suffered from some kind of guilt complex. If someone is missing their wallet or money and I know I didn't take it I feel guilty, in the back of my mind I think that maybe I...
    LadyIndiscretion LadyIndiscretion 31-35, F 2 Responses Feb 9

    Your Response

    Cancel
    My boyfriend is a longtime sufferer of depression. As am I. As now, is his 17 year old son. My boyfriend and I have been in "remission" (I guess you'd call it) for a little while...
    megwolitzer megwolitzer 26-30, F 1 Response Feb 10

    Your Response

    Cancel
    Why can't I do anything the correct way. Why must I pretend as though all my problem are mere puffs of smoke that will eventually disperse and go away. I want to be able to...
    Danlor9991 Danlor9991 22-25, M Feb 17

    Your Response

    Cancel
    Charges were dropped and I got my license back today! Never ever will I do that again. Worst mistake of my life. Here's to a new chapter!
    gonegirl7575 gonegirl7575 26-30, F 1 Response Feb 18

    Your Response

    Cancel
    I was super depressed on verge to suicide an someone was nice enough to make me feel even worse i was close to tears an reaching for death then all of a sudden my mood is all giddy...
    SweetGazePup SweetGazePup 18-21, M a week ago

    Your Response

    Cancel
    My boyfriend passed on 1 month and two days ago in a hit and run accident and it has been a very emotional roller coaster. And sometimes feel like I'm losing my mind! Need someone...
    shemisseshim shemisseshim 22-25, F 6 days ago

    Your Response

    Cancel
    I was born ing with the birth defect spina bifida and am in a wheelchair
    mattywheels25 mattywheels25 26-30, M Jan 27

    Your Response

    Cancel
    I haven't bn on this site in a while. I have bn doing a great job with my medication. I now have a T4 cell count of 1466 and undetectable viral load since 2007. I just gave birth...
    Inspirationallady Inspirationallady 31-35, F 1 Response Jan 28

    Your Response

    Cancel
    I will graduating in June that is only five months away I thought it is my time to say goodbye GOODBYE MY LOVE 16 weeks left actually less than...
    blackbunny97 blackbunny97 16-17, F 2 Responses Jan 30

    Your Response

    Cancel
    Where do I begin? I have been with a narcissist for 3 and a half years. All of that time was so confusing. This could easily turn into pages, but I will be vague as possible. Even...
    hazelwoodd hazelwoodd 26-30, F 3 Responses Feb 17

    Your Response

    Cancel
    Lord have mercy on my soul for dealing with such a rude and arrogant person such as my sister. God knows there is not one day we go without arguing because she likes spewing up...
    marilynnrox marilynnrox 18-21, F 1 Response Jan 27

    Your Response

    Cancel
    I love kids, no matter if they are crying and screaming I love them. I mean I babysit! So dealing with my younger sister should be a breeze. Right? Wrong! I can put up with most...
    mcsunshine09 mcsunshine09 13-15, F Jan 28

    Your Response

    Cancel
    Hello. Are you still researching on gp. I have idiopathic GP. Or so that what they call it. I am not diabetic. I got diagnosed about 3 years ago. But I went through my past...
    sillyphylli2008 sillyphylli2008 46-50, F Jan 28

    Your Response

    Cancel
    God, help me! I honestly have no clue about what to do anymore! The only thing that I'm sure of is, I am head over heels for a man and it's breaking my heart. I didn't know that...
    thatkid1195 thatkid1195 18-21, F 4 Responses Feb 2

    Your Response

    Cancel
    I really am, honestly sweartogod :-P. I'm past the reflection phase after dealing with some life tragedies, so in short, when my life was shattered and during the process of...
    earlycrisis earlycrisis 31-35, M 1 Response Feb 9

    Your Response

    Cancel
    I don't even know where to begin. My ex-girlfriend/ now close friend whom I have been in love with for over a year now and have talked to everyday for the past year until 3 weeks...
    zenwolf27 zenwolf27 26-30, F Feb 10

    Your Response

    Cancel
    I dont know why. I have experienced things they've gone through and I needed someone at that moment but i didn't have anyone. So, I want to be there for them. Even though they...
    fuglygirlonthebench fuglygirlonthebench 22-25, F 1 Response Feb 11

    Your Response

    Cancel
    Why not, Herpes is a common infection which doesn’t end your life. Herpes in no way can stop you from having a lovely life like many other uninfected people. Herpes is very...
    smitha143 smitha143 26-30, F Feb 11

    Your Response

    Cancel
    I broke up with him today. Of course I'm hurt, but I was constantly accused of being a liar, a manipulator, a deceiver, and a cheater. I am not any of those things. He was always...
    Dreambrother Dreambrother 18-21, F 5 Responses 6 days ago

    Your Response

    Cancel
    Well, I understand that dealing with one's own sexuality can take time, but I feel like I really can't deal with it alone, or just ignore it, for that matter. It all started at...
    MarioT96 MarioT96 18-21, M 1 Response 6 days ago

    Your Response

    Cancel
    I would like to write about the climax of my life… falling in love with my teacher. This particular teacher had a great impact on my life. In fact, I fell in love with him. For...
    FloristGirl FloristGirl 18-21, F 3 Responses 3 days ago

    Your Response

    Cancel
    My son had choked on a piece of candy corn in December and that is when our roller coaster ride started. Two months later the biopsies taken from his first endoscopy provided us...
    Bbisvctk Bbisvctk 36-40 1 Response 3 days ago

    Your Response

    Cancel
    It is going on two months since we met on that sparkling day. I started several months ago when we thought it a good idea to meet and see if the feelings we have online for one...
    uncorkyoursoul uncorkyoursoul 56-60, M 14 Responses 2 days ago

    Your Response

    Cancel
    I have been dealing with anxiety for the last four years. I think that I always had it but I self medicated with weed and whiskey. Since I got sober four years ago, I have had to...
    OhShucksGoDucks OhShucksGoDucks 36-40, F 1 day ago

    Your Response

    Cancel
    I really love spinach. I am amazed by how such an enourmous bunch of spinach can become such a tiny amount in my bowl. I love how it tastes, and how good it makes me feel...
    meowmermaid meowmermaid 36-40, F 4 Responses Feb 11

    Your Response

    Cancel
    Not Since A Fateful Day When I Was 15- My stepfather(since I was a baby) arrived home earlier than expected and happened upon my younger siblings doing homework in front of the tv...
    SexyRicana SexyRicana 22-25, F 3 hrs ago

    Your Response

    Cancel
    I am mischelli, aged 22yrs. Sudden i came to know that affected with herpes. My mind is blank and feel like there is no life! One Day my close friend suggested me to join in Herpes...
    wkellylaura wkellylaura 22-25, F 10 hrs ago

    Your Response

    Cancel
    in general, my roommate is a peach. but I am getting so F#C%ING tired of finding week-old spinach clinging to dishes that she and her visiting mother have "cleaned" and put away...
    MycelialAjna MycelialAjna 22-25, M 1 Response Feb 7

    Your Response

    Cancel
    If you have been feeling tired and don't seem to have the energy that you need to carry you through your busy day, consider what you eat. Good nutrition is so important, and you're...
    waypuma73 waypuma73 31-35, M 1 Response Feb 13

    Your Response

    Cancel
    My husband and I have been together for almost 8 years now. We have no kids together, and he has 1 son from a previous marriage. When I moved in to my husbands house (8 years ago...
    bbstorm bbstorm 26-30, F Feb 13

    Your Response

    Cancel
    I moved across country to live with my POS father after breaking up with my long time boyfriend back home and shortly after moving here, I had grown tired of living with my father...
    xxkay410 xxkay410 18-21, F Feb 3

    Your Response

    Cancel
    https://m.youtube.com/watch?v=awHWColYQ90 "Sprawl II (Mountains Beyond Mountains)" They heard me singing and they told me to stop Quit these pretentious things and just punch...
    NatCat84 NatCat84 26-30, F 1 Response Feb 4

    Your Response

    Cancel
    It is said that charity begins at home. Working on this principle we decided to raise our kids in cloth free milieu, like ourselves. My wife appreciated and loves staying without...
    friendsfriend friendsfriend 41-45, M Feb 14

    Your Response

    Cancel