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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 21 People

    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 44 Responses Feb 12, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Related Experiences

    I have lived with Spina Bifidafor the past 22 years, for the majority of that time I have seen my disability as a burden on my life because I wasn't 'normal' like everyone else. My...
    lukecampbell22 lukecampbell22 22-25, M 2 Responses Apr 2

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    I am still waiting on my court appearance but dealing with what I have done is becoming more and more bearable each day. I have learned to forgive myself for the mistake I made and...
    anonymously3737 anonymously3737 22-25, F Mar 18

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    I have written on here once before, about a comment my husband had made awhile ago about our marriage. Now, within a short week, everything has completely crumbled. First let me...
    mbackman678 mbackman678 22-25, F 5 Responses Mar 18

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    I have been single for about four months now and my body/mind is starting to realize that there is something missing. I am not the type of girl to sleep around with someone unless...
    katastrofic katastrofic 26-30, F 1 Response Mar 30

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    My boyfriend of almost 6 years left me almost 8 months ago. I am having still the hardest time to move on. I recently started counseling to help with the whole talking aspect. I...
    jsummerboy jsummerboy 18-21, M Mar 19

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    I am looking for a support group, a community of people that I can connect with. I hope I have come to the right place. I feel so alone. there is a deep ache inside my gut. I am...
    ode2joy14 ode2joy14 41-45 1 Response Mar 23

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    Myself and my husband have been trying for 6 years to get pregnant. I have had 2 miscarriages and 2 failed attempts at IVF. I have had every test and so hast husband and we have...
    Tombes Tombes 36-40, F 3 Responses Mar 24

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    My friend has been gone for a month or so. I feel it my fault. No, it WAS my fault. We were arguing over something stupid. It was the last thing we said to each other. THIS is...
    jennamarie210 jennamarie210 13-15, F 2 Responses Mar 24

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    I was blessed at 21 with a beautiful baby girl. Getting pregnant at 20 was not easy. It took 13 months to make it happen. The pregnancy wasn't easy. Spotting every month. Couldn't...
    lilmetalhead lilmetalhead 36-40 1 Response Mar 25

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    I can't get over my ex, I told her I was done and that we weren't gunna get back together again. I sorta regret it, I'm so used to her being here, and talking to her every single...
    Experiencezzzz Experiencezzzz 18-21, M Mar 29

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    I treated my girlfriend pretty badly during our relationship, and then she asked for space a slept with another guy. I can't help but feel guilty, but at the same time I didn't...
    Experiencezzzz Experiencezzzz 18-21, M 2 Responses 6 days ago

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    Another cycle started... 😕 Can't help but feel like when is it gonna be my time???
    highhopes4baby highhopes4baby 26-30, F 1 hr ago

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    I've been married to my wife for 30+ years and lately I don't know who she is. She was a Virgin when we met at 16. Were married after graduation and began our family. Sex has...
    Allen2014 Allen2014 51-55, M 4 Responses Mar 22

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    Kinda glad we are over. Xx
    GaleJake GaleJake 13-15, M Mar 22

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    Trying to have a child, but no luck... 😕 have been trying for 2 years now. Month after month when my period starts I am heartbroken...sometimes I'll be a week late and it will...
    highhopes4baby highhopes4baby 26-30, F 6 Responses Apr 8

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    Just had a friend of mine find out she was pregnant who was going through some of the same things as me...this gives me hope for myself. I need lots of baby dust sent my way!!!
    highhopes4baby highhopes4baby 26-30, F a week ago

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    Does anyone know how accurate a urine test is at the doctors if you are a good 9-10 days away from your period?
    highhopes4baby highhopes4baby 26-30, F 4 days ago

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    Has anybody tried clomid? Just wondering if it's really as good as I've heard, and what, if any, side effects there are...
    highhopes4baby highhopes4baby 26-30, F 1 Response 4 days ago

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    I'm really struggling at the moment to find a reason to keep on living or to look to the future. I split from my ex a while ago but we have been on and off since. We have a...
    isthereanypoint isthereanypoint 26-30 Apr 8

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    First let me say that I am the Man that is married to a wonderful woman and I was just recently initially diagnosed with Borderline Personality Disorder. Reason I am on this post...
    Piercer7132 Piercer7132 41-45, M 2 Responses Mar 19

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    Iam dealing with a lot internally. I try not to show it, but I know it will eventually blow up. I try to pretend to be happy with my life and relationship and sometimes I am, but...
    soulsearching84 soulsearching84 26-30, F Mar 20

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    My adult son has binge eating disorder. We have four children, all living at home, and this problem puts a gigantic shadow over the whole family. My son is totally obsessed with...
    perseverer perseverer 51-55, F 2 Responses Mar 21

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    I typed other stories before and deleted them as I keep trying to start fresh, to no avail. I sit here crying. I cry out of so much frustration; with God and myself. I don’t...
    myownproblem13 myownproblem13 31-35, F 4 Responses Mar 21

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    I don't understand it. I met this guy while I was in high school on MySpace (yes I had a myspace.) We talked for a solid year through messaging and on the phone. I finally agreed...
    purple91girl purple91girl 22-25, F Mar 23

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    I do every time I wake up. It can be quite annoying if I've got to put underwear on, cos its so difficult to get dressed with a stiff one. But the times I'm not in a rush I have...
    1DBarns 1DBarns 13-15, M 1 Response Mar 24

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    For THREE months now... I've been dealing with this dude. You got a old *** 38 year old that you claim you are using only for her money, car and you claim she take care of you. I'm...
    NeneTaurean NeneTaurean 18-21, F 1 Response Mar 27

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    I was watching the movie 300 with my mom and outta nowhere the craziest, longest sex scene I've seen in a movie in a whil just pops on! Wasn't dealing with that I just said...
    kim95164 kim95164 18-21, F 1 Response Mar 28

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    I truly am. I hate the way I look, I hate the way I act and treat people. I hate that I can say one thing, than won't even end up doing it. I hate that I tell all my friends that I...
    NYSlilAngel NYSlilAngel 26-30, F 1 Response Mar 28

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    I don't think you can be a good friend to someone else until you are comfortable dealing with yourself.
    mwessley mwessley 41-45, M 1 Response Mar 30

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    There is a fine line between fighting for the love of your life and giving them the space they need to determine whether they truly love you back. My wife and I are separated and I...
    Allboutmykids Allboutmykids 31-35, M Apr 1

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    I am 24 years old and just got out of a four year relationship with a 46 year old man. I met this guy in college when I was a fresh faced 20 year old. It was infatuation at first...
    freebird24 freebird24 22-25, F Apr 1

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    It's not hard for me to get satisfied from people, actually I tend to be too innocent in this matter and it usually ends up with me getting hurt but again I can take too little...
    PiecingMeBackTogether PiecingMeBackTogether 18-21 Apr 4

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    Throughout my younger teenage years I dealt with bulimia really bad. I had no idea what to do with my life anymore, I didn't want that for myself, I didn't want to be that way, no...
    bxttlebxrn bxttlebxrn 16-17, F Apr 6

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    Okay, so it's been a really long time since I've been on here. And mostly that's because of doing so much in school with singing and all. It's been a tough time. ;w; Anyways, the...
    LauraEMacias LauraEMacias 18-21, F 2 Responses Apr 8

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    They pull you in with their attention and sweet words. Make you feel like you actually matter to them. But the moment something else comes into their sight, they are 'too busy' to...
    CactusHugger CactusHugger 18-21, F 2 Responses Apr 9

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    Really, I wrote this because I wanted to find people out there who also have partners with autism but whenever I search things I only ever find negative stuff. Like they had to get...
    CherrypopCheer CherrypopCheer 18-21, F 5 days ago

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    It seems supremely ironic to me that a society that reveres big breasts routinely ostracizes women who, through no fault of their own, have “too much of a good thing.” I don...
    ronnkron ronnkron 22-25, F 6 Responses 5 days ago

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    Hi... I just broke up with my boyfriend of 3 1/2 years and it's taking a toll on me, especially since I helped him get a job where I work and we broke up last week when he...
    lanaturalesa82 lanaturalesa82 31-35, F 3 Responses 5 days ago

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    I am dealing with a bad break up and i need advice from anyone who has been through a bad break up i just need someone to talk who has gone through a heart break like me im tired...
    rosemary1285 rosemary1285 22-25, F 4 days ago

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    I hate her, I shoudnt but I do. She's crazy and everyone has left her because of it, I'm the only one left and now I have depression because of no support, and all my other family...
    badsideoflifeeventhough134 badsideoflifeeventhough134 16-17, F 4 days ago

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    It's going on 4 months since we have separated and I am starve for intimacy and attention. I am home all alone all the time, he works at night and sleeps during the day, which I...
    LovelyOne84 LovelyOne84 26-30, F 1 Response 1 hr ago

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    I have spinal stenosis, degenerative disc and arthritis at L 4 and L5. Am allowed to have 3 shots for pain, then may be told that I need surgery. Am very leary of surgery, but...
    gibsoel gibsoel 66-70, F 1 Response Apr 9

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    I had a spinal fusion surgery from T-4 to L-5 6 months ago. The pain was pretty intense for the first few months. As of now, the pain is bearable but only if I take Percoset. The...
    babygirl8832 babygirl8832 31-35, F 2 Responses Mar 25

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    Hi, I suffer from BIH or Pseudo tumor Cerebri. I was diagnosed in April of 2013 through a MRI and Spinal Tap. I can understand how all of u suffer from this rare disease as well as...
    Chocolatebabe33 Chocolatebabe33 31-35, F Mar 26

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    I have been diagnosed with Spinal Stenosis and degenerative disc disease. Also I seem to have a bulging disc. My lower back is in a lot of pain. Meds and the epidural shots did not...
    markemark03 markemark03 51-55, M Mar 28

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