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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Related Experiences

    Having Spina Bifida for 21 years has gotten to me really fast.... My depression is worsening. I just want to die. I hate being disabled. I hate not being able to do the things that...
    Lovelybaby18 Lovelybaby18 18-21, F 3 Responses Apr 4

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    I have spina bifida and am afraid i won't find somebody who will truly love me
    bgirl24 bgirl24 22-25, F 1 Response Apr 18

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    This is a long post so prepare accordingly.There's so much to tell that I'm not sure where to start. I'm not sure my story will receive as much attention as I require, either, or...
    somniatorlupus somniatorlupus 18-21, M 2 Responses Mar 29

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    I had a child, a baby boy, from a one night stand with an ex partner who left the country when she found out she was pregnant. Mostly due to her lack of faith in my ability as a...
    JonnoHo JonnoHo 22-25, M 1 Response Apr 9

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    Imagine this. Some guy flies through a stop sign, blind-sighting you. Hits your car, debris and parts all over. He gets out tells you how sorry he his, it's totally his fault, asks...
    buttercup033 buttercup033 26-30, F Apr 15

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    It's been 3 years. I was baptized when I was 12 with my 10 yr. old little sister. Disfellowshipped at 18 during my 1st semester of college my mom brought me my shoes one day didn't...
    MissSirRay MissSirRay 18-21, F 1 Response Mar 31

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    The past several years of my life have been turbulent. The afternoon of December 26th, 2007, my father, younger brother, and I went to my older sister's house to drop off some...
    QOE23 QOE23 18-21, F Apr 14

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    Beware… long post ahoy! In my opinion the DUI machine is nothing but a cash cow with no real intention of promoting public safety. Before I share my thoughts on this I need to...
    MidnightX2 MidnightX2 36-40, M 1 Response 4 days ago

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    we talked to mom today.She criticised the partners I choose. I mean like the previous one was fine but was a bad guy, this one is not good-looking and it's unknown even if he's at...
    darkblue0909 darkblue0909 18-21, F Mar 28

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    I'm not in the middle of a dating relationship breakup but a true friendship breakup My cousin did something stupid with another guy and now the guy she's in love with is...
    JalenFrankie616 JalenFrankie616 13-15, F 1 Response Mar 28

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    My parents split a few years ago. My mom fell in love with a neighbor and eventually moved states away. That was the most difficult depressing time of my life. As soon as she moved...
    Shessolovely Shessolovely 18-21 Mar 30

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    I need help with something. My friends brother just died today. She called me in tears and I have no clue how to help her. We live in different states by the way.
    dabombcono92 dabombcono92 22-25, M 1 Response Apr 6

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    My sister died two weeks ago and we have put her to rest. She was only 67 years old. In the past year and a half I lost another sister (59 years) and her husband. My older brother...
    wuzgnu wuzgnu 61-65, M Apr 13

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    yet another negative test :( so here is some of my story. I have been married almost 10 years we have actively been trying for our first baby for about 7 months, now I say actively...
    karabear1985 karabear1985 26-30, F 1 Response Apr 16

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    How could you tell me you still want me to love you but still choose to walk away from us? How could you let others in your life make the choice to end us without putting up a...
    HeForgotMe HeForgotMe 26-30 Apr 16

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    I'm going through a break up and I'm trying to deal with my heart break by writing how I'm feeling in my notes... Just a background of what happened, my boyfriend had been going...
    odijay odijay 18-21, F a week ago

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    My first post will explain what's happening but anyway, day 5 of breakup... Day 5 14/4 Had a bad cry in the morning. I miss him so much it hurts. But got out of bed and continued...
    odijay odijay 18-21, F 2 Responses a week ago

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    My first post will have a brief explanation of what happened... Day 10 20/4 11:18am oh god, I miss him so much. Went through the photos of us I have on my phone and I miss the...
    odijay odijay 18-21, F 1 Response a week ago

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    Day 11 21/4 8:09am it's pouring raining and I miss him more than ever... I miss hugging him and cuddling him from behind... I feel so depressed and miserable... What do I do? Why...
    odijay odijay 18-21, F 1 Response 6 days ago

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    I am having a hard time coping with my breakup. I get anxious and bouts of depression. I need ideas how to move forward and help myself heal. Thanks
    sunsmiles sunsmiles 36-40, F 4 days ago

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    five deaths in the past 7 months, my husband deployed and a miscarriage....um let's calm down with the drama im tired and need a break.
    zoeyB zoeyB 22-25, F 1 Response 4 days ago

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    Hi just found this group and I'm struggling to cope with the fact that I may never become pregnant again! The future seems so bleak and uncertain and full of disappointment. I feel...
    userlorenzo userlorenzo 31-35, F 1 Response 3 days ago

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    Criticism never bugged me until this year. I guess cause alot of things changed idk but anyone I'm around comments on my weight, how I look, or just me being me. My friends and...
    lilly756 lilly756 18-21, F 1 Response Apr 4

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    3 years. Why can't I forget you... Clearly I'm sick to be in love w someone who's soon to be married.
    dearcarmen dearcarmen 22-25, F Apr 8

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    I would give anything in the world for a hug from him . anything . its the one thing I just can't have .
    sayhashahemm sayhashahemm 22-25, F Apr 9

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    I really miss my ex. Or maybe I just miss having someone there. Either way I'm miserable.
    itsmehere2 itsmehere2 18-21, F Apr 17

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    i need to know what do u do when 2 people ask u out and u like them both but one broke ur heart
    pretty12345678 pretty12345678 13-15, F 2 Responses 6 days ago

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    had a shoulder op sooooo much pain :(((
    ingerz123 ingerz123 61-65, M 1 day ago

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    I love to write. I'm not perfect but my grammar, punctuation, vocabulary, and spelling are fairly decent. I absolutely abhor those with poor writing skills. In fact, I've been...
    SuumCuique SuumCuique 31-35, F 1 Response 12 hrs ago

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    I slept with four people in a week. I'm so mentally unstable.... completing my thesis, dealing with other issues. I'm ruining myself.
    Adam4u Adam4u 22-25, M 1 Response 6 hrs ago

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    Tact - from the dictionary - "adroitness and sensitivity in dealing with others or with difficult issues." There has been an issue in the news recently which must be very...
    Spankerr Spankerr 51-55 3 Responses 21 hrs ago

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    As I'm not a white woman living in Britain I suffer greatly from discrimination and racism and it is intimidating and humiliating to be living around a race of people who...
    restlessuk restlessuk 31-35, F 4 Responses Mar 31

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    When dealing with Aussies, it is important to remain calm and detached. I know that having to deal with them on a daily basis is hard, and they have a confrontational manner about...
    boganbait boganbait 46-50, M 8 Responses 5 days ago

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    It's not always necessary to change someone's mind: Sometimes it's just plain not worth it to try and change someone's mind, best to just agree to disagree and move on. For the...
    CrystalRainsPearls CrystalRainsPearls 41-45, F 5 Responses Apr 16

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    No more Mrs. Nice Girl. You wanna play these games? Fine. But I'm better at them. I loved you. I trusted you. I would have done anything under the sun for you. I'm done...
    KaylaNicole93 KaylaNicole93 18-21, F 3 Responses Apr 3