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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    Related Experiences

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    highhopes4baby highhopes4baby 26-30, F 1 Response Sep 12

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    Would like to become friends with people who have SB.
    Kierstyne Kierstyne 22-25, F 3 Responses Aug 31

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    I have this inherent sadness inside me and i feel it has been in me since time immemorial , ages , I miss living in a family I miss my gramma , parents , i miss viditin my...
    anasteel2 anasteel2 41-45, F Sep 10

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    Knock, knock... Who's there? Aunt Flo. Go away!! Today marks yet another cruel joke Mother Nature has become quite fond of the last couple years of us trying to have a baby. It...
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    I read this about a year ago when my dad passed away and it was unbelievably helpful. Thank you whoever wrote it! Alright, here goes. I'm old. What that means is that I've...
    bigsar bigsar 22-25, F Aug 28

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    Really pissed off at my mom right now. I wanted to try to open up to people, and I joined a choir group today. The whole time, my mom was being extremely rude about it, asking when...
    Kenz42 Kenz42 16-17, F Sep 12

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    I feel like I can't do it. Make the change I desperately need to survive. I feel paralyzed. The sadness just comes in like a vapor I'm forced to inhale. Any progress I make gets...
    Ludavin Ludavin 46-50, F 2 Responses a week ago

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    Yeah I just want people to understand it, I'm tired of explaining it.
    deleted deleted 26-30 2 Responses Aug 30

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    I put myself together and run 5 km this pain is still in my chest.
    agreathouse agreathouse 26-30, F 1 Response Aug 25

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