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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Related Experiences

    I haven't been on here in awhile.......been dealing with all this DUI struggle. I'm getting ready to have a hearing to get my license back which I'm excited about. But mostly I'm...
    heaven89 heaven89 22-25, F 1 Response May 8

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    http://www.popsugar.com/moms/6-Tips-Dealing-Moody-Teens-Tweens-27333756 If most of thie fails or its to slow to impliment then there is spanking and spanking twice
    Sullan Sullan 36-40, M 4 days ago

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    I still think about my ex, having sex with her being with her. I know she's not thinking about me...and I hate that part, she's over me but I'm still stuck here with these thoughts...
    Experiencezzzz Experiencezzzz 18-21, M May 2

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    ...........After a long day filled with Life's "Stressors" I shower in quietness, calmness and wash those stressors down the drain.;)
    Treasure7 Treasure7 36-40 1 Response May 7

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    First with the abusive mom. Why would I want to celebrate the woman who spanked a 2 year old with 2x4 for leaving a toy out? Why would I want to celebrate the woman who set our...
    teadiva teadiva 31-35, F 1 Response May 11

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    I avoid a lot of things in life (such as movies) just to avoid getting too emotional. I don't have very good coping skills, so I avoid things that I'll have to cope with.
    PendulEmPlum PendulEmPlum 18-21, F May 12

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    How does one move on after losing somebody? Somebody that I wasn't sure if I should hate or love? Why does it hurt more than anything? Especially if I barely knew him. Sure we...
    floatingquestionsfallenanswers floatingquestionsfallenanswers 18-21, F May 20

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    How do you deal with a difficult person when that person is your mom?!? Seriously!! I know that we should be kind and tolerant to difficult people since they are fighting their own...
    isch71 isch71 26-30, F May 22

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    I hate being critised, for some reason I can't deal with it and I have no idea why. I honestly do not know why I am like this. I sometimes think it is because I have set the...
    bananabacon bananabacon 26-30, F 1 Response 1 day ago

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    well i finally had my second opinion conducted thursday may 28 2015. this doctor agreed with the doctor i saw on june 19 2014. its officially now i can no longer have kids. my...
    lonelymom1982 lonelymom1982 31-35, F 2 Responses 23 hrs ago

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    My husband hurts me virbully!
    fmhamg fmhamg 41-45, F 1 Response May 3

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    Sobbing hysterically for 35+ min because my mom said I couldn't get my tongue pierced. I know it seems snobbish or whatever but I actually get very little and I was very excited...
    ocdfun123 ocdfun123 16-17 May 11

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    I go to school and everyone makes fun of me and I go home and get yelled at I don't know what to do anymore so I just stay in my room when I get home and don't bother anyone
    hicks234321 hicks234321 18-21, M 6 days ago

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    I am writing this so it may help others in a similar situation. 10 months ago I was attacked by my boss after work, he had set me up and manipulated me. I felt alone and stupid...
    Heather1001 Heather1001 51-55, F 1 Response 5 days ago

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    I am so glad I found this forum. I am glad I am not the only one living the Australian lie (not Australian dream). I am born and grew up in Malaysia to Chinese parents. Everybody...
    malaysianinoz malaysianinoz 26-30, M 9 Responses May 4

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    Here's an example why I really hate living in Australia.Read this article about a young woman refused entry in a jewelry shop in Perth because she had with her a guide dog .https...
    boganbait boganbait 46-50, M 3 Responses May 21

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    I have felt with self harm and being suicidal for a while now and only 3 people know about cutting and once about suicidal thoughts. I'm also dealing with anxiety and I just can't...
    ImTryingMyBest24 ImTryingMyBest24 16-17, F 1 Response 4 days ago

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    I'm tired of living a double life. It's so frustrating. I have to limit my scope with friends. I have to be able to completely trust someone before I dare to reveal myself. I can...
    rizinity rizinity 16-17, F 2 days ago

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    Well my wife is stressed with dealing with her mother, she keeps telling her about doctor's appointments that need to be made and just be the typical mom, but with the added stress...
    Fotoman Fotoman 46-50, M 1 Response May 14

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    This is the first time I've ever seen anything like this. If someone told me a few weeks ago I'd need to find support, education, and people in a similar situation to mine for...
    EmmaGuerra EmmaGuerra 22-25, F May 20

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    how are people dealing with not being able to become a parent?
    sharnells sharnells 26-30, F 1 Response May 24

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    I've been living as an incontinent person for 8 years. I'm used to wearing diapers and dealing with all the extra cost and work it involves. I prefer cloth diapers. I finally had...
    westway westway 61-65, M 1 Response 6 days ago

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    Okay i never struggle with above topic title but wanted to make a post merely. I can only say when struggling on generally speaking on general issues as living in paid...
    cross2play cross2play 31-35 3 days ago

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    Hello there, ROOMIES!When  I moved to New York City 5 years ago I realized that finding a good quality and affordable at the same time apartment could be a great challenge. It...
    kabakbay kabakbay 26-30, M May 5

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    I'm 31 years old, and for as long as I can remember I've been dodging the fact that I'm at least bisexual or gay. It's taken up so much of my strength and, looking back, has shaped...
    thanks4listening thanks4listening 31-35, M 5 Responses May 9

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    The trials and tribulations that has happen in my life. I take responsibility of it, because I know the consequences that were going to happen. I'm not perfect, I'm just human that...
    Natashxxs Natashxxs 31-35, F May 13

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    How to Quiet the Mind - By Gina Lake The mind is a wonderful tool for thinking, but it has a dark side. There is an aspect of the mind that is not useful but pretends to be...
    imurfriend imurfriend 26-30, F May 2

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    my mom doesn't want anything to do with me . I am 26 I don't live at home and I wish she would just talk to me when I need to vent . it's sad when your own mother says to you when...
    backw00dsbarbie88 backw00dsbarbie88 26-30, F 2 Responses May 13

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    Thinking about telling my parents that I do it. I mean they found out like 7th grade... And they weren't happy about it. I mean, I don't think any parent would be happy about it. I...
    SavingLucy17 SavingLucy17 16-17, F 4 days ago

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    The Spoon Theory... An excellent read for anyone dealing with a chronic disease or diseases. Or a family member or friend who suffers from chronic illness. http://www...
    PiercedBBW PiercedBBW 26-30, F 2 days ago

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    Aussies..I have no interest in helping your family on centrelink live off my hard earned money. What have you to say about all those lazy Aussies go start having kids in school...
    malaysianinoz malaysianinoz 26-30, M May 16

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    I'm a woman of late 20's & I'm fed up of living a lie. Okay, I met & fell deeply in love with my now partner of 11 years & settled down pretty quick. Within 6 months I was...
    chellecarina chellecarina 26-30, F 3 hrs ago

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    I'm tired of living. Everything I do is half-assed or a complete **** up. Nothing I do seems to be enough for people. Everything I try doing is criticized and shot down by others...
    1AnonymousUnknown1 1AnonymousUnknown1 13-15, M 1 Response 37 mins ago

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    Im having trouble with my sister. She has always caused trouble with our family and its getting too much. Shes a single mum living on benefits. She lives with my mum who does more...
    Cazz1993 Cazz1993 22-25, F 4 Responses 8 hrs ago

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    I am getting so frustrated with my back. I have had scoliosis for some time now and have gone through a milawaukee brace. The doctors always tell me strengthen your core and it...
    haleydrapeaux haleydrapeaux 18-21, F 6 days ago

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