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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Related Experiences

    my name is natalie. i'm 29 years old with spina bifida myelomeningocele. i could walk until about 13 years old, and then had a cyst in my back that pressed on my spinal cord and...
    sunchick116 sunchick116 26-30, F 1 Response 3 days ago

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    Spina bifida is a birth defect where the spine is not completely formed
    WWYDfan WWYDfan 22-25, M 2 Responses Jan 3

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    My PTSD has been so bad lately that I absolutely can not sleep at night. Ever since I ran out of my medication awhile back, I've been drinking myself to sleep. Its the only way I'm...
    Saithe Saithe 18-21, F Jan 16

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    Currently dealing with that alone time between deciding a divorce is in order and being free. Seems like this could really be a lonely time. I believe I will try to focus on...
    wantadoover wantadoover 56-60, M Jan 21

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    Seeing other people in love, kissing and cuddling with each other makes me really wish my love was still alive. I miss him like crazy an I feel really lonely.
    Knightt15 Knightt15 18-21, F Dec 29, 2014

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    Infertility had changed me as a person. I no longer have the ability to be happy for anyone that becomes pregnant or has a child. I feel selfish and jealous but I can't change the...
    rebecca991 rebecca991 22-25, F Dec 30, 2014

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    i thought he s t one...t one im gonna spend t rest of my life with him but... he s leaving t country..immigrating &he ll never come back &i don't ve enough money to leave with him...
    yasmineyousef yasmineyousef 22-25, F Jan 2

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    my alcoholic father. I cannot say anything more than the fact that I'm so fed up with all of it. All of it.
    itcheru itcheru 22-25, F Jan 14

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    King Arthur was ambushed and imprisoned by the monarch of a neighboring kingdom. The monarch could have killed him but was moved by Arthur's youth and ideals. So, the monarch...
    jml2000 jml2000 56-60, M 3 Responses Jan 14

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    I have been trying for a baby for the last 5 years now and we have had no luck.I don't have a regular cycle so it is hard for me to tell when i am ovulating or not, but we always...
    jessica3322 jessica3322 31-35 Jan 19

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    At least I was ..hopeful ..& Ready? Actually in hindsight I was probably A little (naive) But I guess Well I'm ..Used to that sort of thing and most of all everything...
    Hevss Hevss 16-17, F 5 days ago

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    I'm 19 and I may not be able to have kids I'm not sure how I should feel about that.....having kids is a huge deal to me and my boyfriend.....I feel less of a woman, what if he...
    Missyj3 Missyj3 18-21, F 1 Response 3 days ago

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    my boyfriend said that I was fat today. I don't know what to do it how to feel. I feel broken and hurt. I know I'm fat, but for him to say it.. it got to me bad. now I'm...
    katiena katiena 26-30, F 2 Responses Jan 8

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    Yeah so I probably won't be very active o here for the next few weeks. A family member may have brain cancer.. Although I'm not too close to him it's still a horrible thing to...
    SirTibblesWorth SirTibblesWorth 16-17, M 2 Responses Jan 10

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    People who hurt me! I deserve better and cleaning out my life is the best thing for me
    ElissaAcosta ElissaAcosta 16-17, F Jan 15

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    Update: his most recent surgery got about 90% of the tumor out!!! It's still not 100%, but it's great news anyway!!
    SirTibblesWorth SirTibblesWorth 16-17, M 3 Responses 6 days ago

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    OK,people,I won't be very active on ep for a few weeks,as you all seen it. I am on a check-up and I may have lung cancer,but the doc aren't 100% sure yet.... Result coming in next...
    Amago Amago 13-15, M 2 Responses 1 day ago

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    I was born ing with the birth defect spina bifida and am in a wheelchair
    mattywheels25 mattywheels25 26-30, M 1 day ago

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    II The Blessedness of Possessing Nothing Blessed are the poor in spirit: for theirs is the kingdom of heaven.—Matt. 5:3 Before the Lord God made man upon the earth He first...
    Cootamundra Cootamundra 70+, M Jan 14

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    Since my early childhood I have been the "black sheep" of my family being insulted, left out & called many awful names being human bullied by my older siblings while my mom allowed...
    bubblysunshine bubblysunshine 31-35, F 1 Response Jan 6

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    This is a lengthy post I am about to write and am doing so mainly out of desperation just to vent how I am feeling at this moment because I am drowning in a sea of unhealthy...
    LaGentilleDame LaGentilleDame 26-30, F Jan 6

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    I am 16 now. I have been dealing with depression since maybe the 8th grade. It started when my dad had started being verbally and emotionally abisive towards me. He had already...
    DeadpoolPrincess DeadpoolPrincess 18-21, F Jan 18

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    I haven't bn on this site in a while. I have bn doing a great job with my medication. I now have a T4 cell count of 1466 and undetectable viral load since 2007. I just gave birth...
    Inspirationallady Inspirationallady 31-35, F 1 Response 1 day ago

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    Since I was 18(now 22) I have had problems with telling guys I don't want to have sex. Granted just of the men were boyfriends or dating but I felt as if I was letting them down if...
    Mickey993 Mickey993 22-25, F 1 Response Dec 31, 2014

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    People look at boxes and cans of food every day to see what nutrients they contain. This article can help educate you are reading is full of tips on what they mean.Any supplement...
    waypuma73 waypuma73 31-35, M 1 Response Jan 10

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    I've never posted anything on here before, but at this point I simply don't know what to do. My boyfriend and I have been together for around 2.5 years now, and both of us are in...
    makitath makitath 18-21, F Jan 14

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    Do you ever just have those moments, where you make such monumentally huge mistakes that you know will hurt loads of people? Yeah? As I sit back and think about my life so far, I...
    BeccaLouise40 BeccaLouise40 18-21, F 2 Responses Jan 14

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    I am a sixty plus year old who is now searching for a way to make a positive contribution to my family of those with gender issues. I have a lifetime of experience of dealing with...
    Zofia2014 Zofia2014 66-70 1 Response Jan 14

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    My mother's cousin (I don't know what name that relation has -- second cousin? IDK :P) has schizophrenia. A little while ago, he got in a particularly nasty breakup with his...
    Boulier Boulier 18-21, F Jan 18

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    The twenty-second day of January is the worst date on the calendar for me. It is the day that my older brother took his own life and forever changed mine. It was the New Year’s...
    miryam57 miryam57 56-60, F 1 Response Jan 19

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    I fell in love with my best friend in college. He fell in love with me. We dated, and began a relationship, but soon after, he started having homosexual feelings again (something...
    allyjo allyjo 18-21, F 1 Response a week ago

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    so about a month ago i was speaking to a counselor at my college and told her that i was dealing with a lot of anxiety and that it was keeping me from being able to study for a...
    Degrassi94 Degrassi94 18-21, F 4 days ago

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    Lord have mercy on my soul for dealing with such a rude and arrogant person such as my sister. God knows there is not one day we go without arguing because she likes spewing up...
    marilynnrox marilynnrox 18-21, F 1 Response 2 days ago

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    What a horrible idea, I mean great idea. How can it be this confusing? I have a work partner I got involved with. We are both married and it was so nice. It's over now and dealing...
    bgarib bgarib 36-40, M 1 day ago

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    I love kids, no matter if they are crying and screaming I love them. I mean I babysit! So dealing with my younger sister should be a breeze. Right? Wrong! I can put up with most...
    mcsunshine09 mcsunshine09 13-15, F 1 day ago

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    Hello. Are you still researching on gp. I have idiopathic GP. Or so that what they call it. I am not diabetic. I got diagnosed about 3 years ago. But I went through my past...
    sillyphylli2008 sillyphylli2008 46-50, F 1 day ago

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    I'm a 20 y/o Arabian (not muslim) and I come from a rich cultural back ground and my mother is from the most royal family from my country. I'm going to be 21 in less than 6 months...
    psychedelicblues psychedelicblues 18-21, F 2 hrs ago

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    I understand what you guys are going through. I was extremely bad and it took the doctors a very long time to diagnose what my promblem was. I had lost so much weight I was...
    waiting2emerge waiting2emerge 31-35 Jan 3

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