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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    life is really tough for me right now. dont really want to be here any more. fed up with exsisting and dealing with ****, nothing goes right so there is no purpose to being here
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    Living with a person who has chronic pain means that for the rest of my marriage my pain never counts. I don't count, and I find this incredibly lonely. I am my only sounding...
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    I have Hypospadias! What girls know about it?
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    Some people don't like the term "battle" but it is a apt description when dealing with M/D, and you are in it for the long haul. I was diagnosed with it long before " bipolar" was...
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    PART TWO SO THIS IS HEAVEN, HE THOUGHT, AND HE HAD TO SMILE at himself. It was hardly respectful to analyze heaven in the very moment that one flies up to enter it. As he came...
    TheRisingPhoenix54 TheRisingPhoenix54 61-65, M 2 days ago

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    POSTING IN THREE PARTS. THIS IS PART ONE IT WAS MORNING, AND THE NEW SUN SPARKLED GOLD across the ripples of a gentle sea. IT WAS MORNING, AND THE NEW SUN SPARKLED GOLD across the...
    TheRisingPhoenix54 TheRisingPhoenix54 61-65, M 1 Response 3 days ago

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    And the investigations start again. my nerve pain is going higher up my back. My sensation is reducing and tingling in my hands arms etc. so havs a Spinal lumber xray scedualed...
    thesunshineparty thesunshineparty 22-25, F 4 Responses 4 days ago

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    My folks separated when I was 11. We stayed with my mother and my grandfather. The remainder if my childhood was taken up with a medical problem. New school, and all that teenage...
    picklebobble picklebobble 46-50, M 2 Responses 6 days ago

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    My bf has it @ 41. How does it not make you feel less than? How arousing can you get when you get no response from him yet he seems to get excited by pics of guns (no, just an NRA...
    jules021775 jules021775 36-40, F 10 Responses 6 days ago

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    Park429 Park429 18-21 1 Response 6 days ago

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    Had spinal fusion Monday the 17th anterior and some screws , pedicles posteriorly . L5 S1 Got home last night . Trying to get comfortable in my own bed , it's hard , feel my legs...
    zoezoejayne zoezoejayne 46-50, F 1 Response a week ago

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    I haven't written anything in a while and although I think of this website as somewhat a diary of my actions and experiences, I really haven't had much to say until today. This...
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    I don't know what to do anymore, my wife is a real life Katy Perry song, she is always hot and cold then yes and no. A little bit about us, we have been married for 3 years now...
    NvPantieLVR NvPantieLVR 26-30, M Aug 19

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    Tonight I'm just the shell you left behind Missing the beast who stole my life What am I without you? Lonely and afraid, the way you want me crying for my dear narcissistic...
    cloudedsky cloudedsky 26-30 1 Response Aug 17

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    I'm finding rhe nerve pain almost impossible the last 4 days I don't know what's happened. But the pain is traveling up my spinal chord in feels bigger and higher. now the lump...
    thesunshineparty thesunshineparty 22-25, F 1 Response Aug 17

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    I can't believe I got a DUI😫. I'm so disappointed and ashamed at how inconsiderate and immature I was or am😔. After all the times my father would lecture me and now I'm in...
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    I think I might be addicted to sex. I have always been preoccupied by it, but over the last several years things have progressively got worse. If I don't get my needs satisfied...
    kirby19055 kirby19055 26-30, M 2 Responses Aug 16

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    I've lived a lot, seen a lot, been through too much...gives one some knowledge and wisdom to work off of. Probably the voyeur in me too, but I do like helping others that are...
    Extant1 Extant1 51-55, M 9 Responses Aug 16

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    My boyfriend is a 48 year old married man. He's 25 years my senior and was my former boss. I now work in the same industry in the same vicinity so I'm still able to see him. He is...
    catsmp catsmp 22-25, F Aug 16

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    I read this in the book 'Living with a PA man'.. it's a real/scarey/enlightening insight into the dynamics of the PA ...now I know it's actually both a relief, as I had no idea...
    Londonylady Londonylady 46-50, F Aug 16

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    well, not technicall yet but i will be having spinal surgery on the 25th. i am getting screws and bone graft (from my hip) into the two fractures i have. i am wondering uf anyone...
    sweetiepee101 sweetiepee101 18-21, F Aug 15

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    Crazy how a persons life can go from everything quite fine an well to hectic and remorseful.
    LivingLife93 LivingLife93 18-21, M Aug 15

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    Former case manager spoke today. Trying to refute facts. We are screwed But she refuted that. Without living it. We have gone comodity. She debated With few facts...
    Converted Converted 46-50, M Aug 14

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    >What is a bogan?For me, a bogan can be defined as someone who leaves you feeling reduced, confused, disorientated, anxious, annoyed, angry or impatiently bored with.Bogans...
    boganbait boganbait 46-50, M Aug 14

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    Thousands of collectible vinyl records on offer for collectors.Full details at spinauctions dot com
    000spinauctionsdotcom 000spinauctionsdotcom 56-60, M Aug 14

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