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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 21 People

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    Related Experiences

    Hello everybody. My name is Heidy. I have spina bifida, (lipomyelomeningocele.) I am in my early twenties and it definitely has been an interesting journey. When I was born my...
    heidyh heidyh 18-21, F 1 Response 1 day ago

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    Spina Bifida a birth defect of the spine that occurs when the baby's spine fails to close during the first month of pregnancy.
    TheKillerShot25 TheKillerShot25 22-25, M 1 Response Dec 6

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    Currently my boyfriend is dealing with some family stuff, and I really want to be there for him, I just don't always know how. I so often feel like my emotions make me vulnerable...
    lillyforever4 lillyforever4 13-15, F 1 Response Dec 2

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    Sometimes deali with a difficult spouse is overwhelming...he has mood swings due to his arthritis n pain. All he likes to do is watch tv n lie in bed on the weekends. IE I mention...
    aradia11 aradia11 51-55, F 5 Responses Nov 29

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    I'm just tired of it. Whether it's some family or friends, I'm done. From now on, my focus is just on the few people who've actually been there for me. I'm tired of letting my...
    ClaireH19 ClaireH19 18-21, F 2 Responses Dec 5

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    I deal with my demons through alcohol. I love the feeling I have after a few shots of brandy. I don't worry about anything as I drink.
    exhibiter1000 exhibiter1000 51-55, M 5 days ago

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    My girlfriend just broke up with me and its possibly the most painful thing ive ever experienced. I try not to think about her but everything reminds me of her. i still wake up...
    TheWickedJester TheWickedJester 26-30, M 1 Response 22 hrs ago

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    i am in grief and don't know how to handle it i have lost everyone in my family and i am the last one alive it is tearing me apart so bad because i have seen all my family members...
    Blackbart1966 Blackbart1966 46-50, M Nov 19

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    I miss my boyfriend all the time. We live a 30-minute drive apart, and it drives me crazy because I can't see him whenever I want to. I know that if we went to the same school and...
    bludye47 bludye47 18-21, F Dec 1

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    The aftermath of breakups really sucks. This feelings and everything freaking sucks. I don't understand guys and why they think it's okay to put us girls through hell. I'm so...
    lizygurl lizygurl 18-21, F 5 days ago

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    My husband has it. I ******* hate it. He says that it is him, not me, but deep down I think he just doesn't want me anymore. He offers oral sex or wants me to go down on him when...
    Nubian1973 Nubian1973 36-40 1 Response 4 days ago

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    It's sucks. I realize it also could have sucked for those I could have harmed. Regardless of the BAC everyone on the road including yourself is in danger. I lost my car, my job. I...
    letha4422 letha4422 26-30, F 1 Response 3 days ago

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    I had a question. And probably should not be here but could not find anywhere else my oh told me that the reason he does not like sex is because it's painful. I want him to see a...
    Pippa131 Pippa131 36-40, F 1 Response 20 hrs ago

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    I am almost 40 years old and have been dealing with horrible headaches for 16 years now. I have tried all kinds of doctors, treatments, medications, even various surgeries...
    JunieMarie JunieMarie 36-40, F 1 Response Dec 7

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    i cannot express the urgency to all ..to please try a chiropractor that uses alignment of the atlas of your spine and also uses an activator to align your spine ....out of the blue...
    derelwebb derelwebb 51-55, F Nov 19

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    Looking for somebody who has genital herpes who I can connect with, talk to, support and listen and in return listen to me. By talking and texting. Distance isn't an issue, I have...
    mrDisexperiencing mrDisexperiencing 26-30, T 1 Response Nov 20

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    I enlisted for the military in early March. I had wanted to join since the 8th grade despite the depression and anxiety I suffered again and again. I worked hard to lose weight and...
    KeiKeiChan KeiKeiChan 18-21, F 1 Response a week ago

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    There are some awesome people in my circle. All have been through things and still have a sense of humor. I would love to have dinner and drinks with any of them. All have...
    SilverPagan SilverPagan 51-55, M 1 Response Nov 18

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    Two years ago, I moved to a new city for a great job; it was there I met the titular engaged woman (she wasn't engaged at the time, but was in a relationship with the guy). Things...
    jowe79 jowe79 31-35, M Nov 21

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    I deal with boredom in a good way. I write. I spend time with friends. I pace myself. I learn more things that are good for me and good for others. I try to be a better man...
    tryingagainII tryingagainII 56-60, M 1 Response Nov 21

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    My name is Afraa, and I would like to write about the climax of my life… falling in love with my teacher. This particular teacher had a great impact on my life. In fact, I fell...
    TheLoneRaven TheLoneRaven 18-21, F 5 Responses Nov 21

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    I've been having recurring nightmares about the day I was raped... Its gotten so bad I have a phobia of sleeping and I get anxiety attacks... I've been dealing with this for 8...
    EbbyLeve EbbyLeve 16-17, F 3 Responses Nov 22

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    This is a difficult one and one I am dealing with right now. I have been dating this guy for a few months and he is practically perfect. The only problem is that I don't find him...
    Elpis2012 Elpis2012 26-30, F 3 Responses Nov 25

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    Torn Between Two Lovers by Mary MacGregor, cool song about all of those that have been dealing with loving more than one person.
    johnny048 johnny048 46-50, M Nov 26

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    she is very selfish and it is hard to accept, she only thinks about herself and doesnt care who she hurts in the process as long as she gets what she wants. i want to learn...
    sophiejon sophiejon 18-21 Nov 30

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    Just discovered this diagnosis but have known for years his brain does not work like most people's. He is 22 and on house arrest so we are stuck dealing with him on a day to day...
    c1265 c1265 46-50, F 3 days ago

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    I just got in a physical fight with my mom . I'm just so stressed out . I'm tired of dealing with this... She always start with me and talk **** first then make me seem like I'm...
    lilstar233 lilstar233 18-21, F 3 days ago

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    Hello, ok first off let me explain why at my age I still live with my parents. I moved back in with my parents 4 years ago because my husband and I got separated. Basically he...
    BrokenAngel1201 BrokenAngel1201 26-30, F 2 Responses 3 days ago

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    So tonight I saw neighbors for the first time. Zac Efron was in the movie if you didn't know. My obsession is getting worse each time I see him. I am literally crying over how ugly...
    RY0RY RY0RY 18-21, M Dec 7

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    Please tell me I'm not alone... For as long as I can remember I've always been super sensitive with emotions. I've just known things were gonna happen, and they did. I used to see...
    Floo64 Floo64 22-25, F 2 days ago

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    I had a spinal fusion many years ago when I was 18. I had severe scoliosis. About a 50 degree curvature. Long story short(The longer version being how scary it was and the fact...
    AvgDudeJ AvgDudeJ 26-30, M 1 hr ago

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    I was electrocuted 21/2 years ago, fell and broke my spine in 3 places. I had to have a spinal fusion from t-9 to t-11 with a titanium cage. The cage shifted and the edge is...
    kidkilowatt kidkilowatt 31-35, M 1 Response Dec 1

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    I have lived in Australia for over 12 years and I know somethings are good here but I overall hate this place. I live in Sydney. My country is not very good either but I do not...
    kkkkt kkkkt 41-45, F 1 Response 7 hrs ago

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    itried all the surgery route and ended up with a metal plate in my neck with no change in my condition..suffer with numbness in my whole body...with spinal stenosis...finally a...
    derelwebb derelwebb 51-55, F Nov 19

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    "Jazz... isn't that just a series of mistakes diguised as musical composition?” —David St. Hubbins of Spinal Tap
    jml2000 jml2000 56-60, M 1 Response 16 hrs ago

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    I hate waking up everyday knowing that I'm going to have to deal with people and listen to yet another fight. When I'm upset I can't even depend on my mother to make sure I'm okay...
    speaklikeachild speaklikeachild 16-17, F 3 hrs ago

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    Saturday, 13 December 2014 A Message To All And Sundry! This forum has become home to a boxing ring. Those who "Hate Living In Australia" (like myself) and those that "Do Not...
    sickness18 sickness18 61-65, M 1 Response 5 days ago

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    im tired of living, in a world of cheaters, liers, users, abusers, what's there to be happy about? When ppl can backstab you with a smile while shaking your hand in friendship, or...
    GoldGuard GoldGuard 36-40, M 3 Responses Nov 20

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    I'm going to tell a story, so prepare for a lengthy read. Read it if you like, or not, I just need to write it down. I'm going to start at a very important part of my experience...
    soulrebel78 soulrebel78 36-40, F Nov 30

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