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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    Related Experiences

    I haven't been on here in awhile.......been dealing with all this DUI struggle. I'm getting ready to have a hearing to get my license back which I'm excited about. But mostly I'm...
    heaven89 heaven89 22-25, F 1 Response May 8

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    How do you deal with a difficult person when that person is your mom?!? Seriously!! I know that we should be kind and tolerant to difficult people since they are fighting their own...
    isch71 isch71 26-30, F 50 mins ago

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    Beware… long post ahoy! In my opinion the DUI machine is nothing but a cash cow with no real intention of promoting public safety. Before I share my thoughts on this I need to...
    MidnightX2 MidnightX2 36-40, M 1 Response Apr 23

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    First with the abusive mom. Why would I want to celebrate the woman who spanked a 2 year old with 2x4 for leaving a toy out? Why would I want to celebrate the woman who set our...
    teadiva teadiva 31-35, F 1 Response May 11

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    I am having a hard time coping with my breakup. I get anxious and bouts of depression. I need ideas how to move forward and help myself heal. Thanks
    sunsmiles sunsmiles 36-40, F Apr 23

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    five deaths in the past 7 months, my husband deployed and a miscarriage....um let's calm down with the drama im tired and need a break.
    zoeyB zoeyB 22-25, F 1 Response Apr 23

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    Hi just found this group and I'm struggling to cope with the fact that I may never become pregnant again! The future seems so bleak and uncertain and full of disappointment. I feel...
    userlorenzo userlorenzo 31-35, F 1 Response Apr 24

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    I still think about my ex, having sex with her being with her. I know she's not thinking about me...and I hate that part, she's over me but I'm still stuck here with these thoughts...
    Experiencezzzz Experiencezzzz 18-21, M May 2

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    ...........After a long day filled with Life's "Stressors" I shower in quietness, calmness and wash those stressors down the drain.;)
    Treasure7 Treasure7 36-40 1 Response May 7

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    I avoid a lot of things in life (such as movies) just to avoid getting too emotional. I don't have very good coping skills, so I avoid things that I'll have to cope with.
    PendulEmPlum PendulEmPlum 18-21, F May 12

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    How does one move on after losing somebody? Somebody that I wasn't sure if I should hate or love? Why does it hurt more than anything? Especially if I barely knew him. Sure we...
    floatingquestionsfallenanswers floatingquestionsfallenanswers 18-21, F 2 days ago

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    had a shoulder op sooooo much pain :(((
    ingerz123 ingerz123 61-65, M Apr 26

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    i have a Breathalizer in my car
    az2sombra az2sombra 46-50, F 1 Response Apr 30

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    My husband hurts me virbully!
    fmhamg fmhamg 41-45, F 1 Response May 3

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    Sobbing hysterically for 35+ min because my mom said I couldn't get my tongue pierced. I know it seems snobbish or whatever but I actually get very little and I was very excited...
    ocdfun123 ocdfun123 16-17 May 11

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    Tact - from the dictionary - "adroitness and sensitivity in dealing with others or with difficult issues." There has been an issue in the news recently which must be very...
    Spankerr Spankerr 51-55 6 Responses Apr 26

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    I am so glad I found this forum. I am glad I am not the only one living the Australian lie (not Australian dream). I am born and grew up in Malaysia to Chinese parents. Everybody...
    malaysianinoz malaysianinoz 26-30, M 9 Responses May 4

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    Here's an example why I really hate living in Australia.Read this article about a young woman refused entry in a jewelry shop in Perth because she had with her a guide dog .https...
    boganbait boganbait 46-50, M 2 Responses 1 day ago

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    When dealing with Aussies, it is important to remain calm and detached. I know that having to deal with them on a daily basis is hard, and they have a confrontational manner about...
    boganbait boganbait 46-50, M 7 Responses Apr 22

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    I sent a request two weeks ago to my HR department for a request to transfer office back to Europe. As week passed. y where my email was unanswered so I resent another email as...
    pulsar78 pulsar78 31-35, M 3 Responses Apr 30

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    Well my wife is stressed with dealing with her mother, she keeps telling her about doctor's appointments that need to be made and just be the typical mom, but with the added stress...
    Fotoman Fotoman 46-50, M 1 Response May 14

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    This is the first time I've ever seen anything like this. If someone told me a few weeks ago I'd need to find support, education, and people in a similar situation to mine for...
    EmmaGuerra EmmaGuerra 22-25, F 2 days ago

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    Hello there, ROOMIES!When  I moved to New York City 5 years ago I realized that finding a good quality and affordable at the same time apartment could be a great challenge. It...
    kabakbay kabakbay 26-30, M May 5

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    I'm 31 years old, and for as long as I can remember I've been dodging the fact that I'm at least bisexual or gay. It's taken up so much of my strength and, looking back, has shaped...
    thanks4listening thanks4listening 31-35, M 4 Responses May 9

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    The trials and tribulations that has happen in my life. I take responsibility of it, because I know the consequences that were going to happen. I'm not perfect, I'm just human that...
    Natashxxs Natashxxs 31-35, F May 13

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    I've been dating my first ever BF for almost 6 months, and at first it was great. But lately I've just been feeling really torn by all the little things that have slowly started...
    SimpleShares SimpleShares 22-25, F Apr 25

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    I wish Narcissists came with warning labels, but since they don't please read the following information. Don't be fooled by a wolf in sheep clothing! Recovering from Narcissistic...
    rescueme99 rescueme99 41-45 10 Responses Apr 29

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    maybe im just a annoying but I don't know what's wrong with me I always liked dealing with people but now that im older and Im not good with people and I find im a very awkward...
    RaynesWorld RaynesWorld 18-21, F Apr 23

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    anyone who would like to friend me, plz do. my son is high functioning autistic....now age 22. I can try to help you guys so much through our experiences. Its been a long, tough...
    Amelia445 Amelia445 46-50, F 2 Responses Apr 25

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    I love to write. I'm not perfect but my grammar, punctuation, vocabulary, and spelling are fairly decent. I absolutely abhor those with poor writing skills. In fact, I've been...
    SuumCuique SuumCuique 31-35, F 2 Responses Apr 27

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    I slept with four people in a week. I'm so mentally unstable.... completing my thesis, dealing with other issues. I'm ruining myself.
    Adam4u Adam4u 22-25, M 2 Responses Apr 27

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    Springtime is especially hard for me. Depression hits hard and antidepressants only make me ultra rapid cycle. My dr has me on a new antidepressant called Brintellix. I've been on...
    SeaOfMonsters SeaOfMonsters 26-30, F Apr 28

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    How to Quiet the Mind - By Gina Lake The mind is a wonderful tool for thinking, but it has a dark side. There is an aspect of the mind that is not useful but pretends to be...
    imurfriend imurfriend 26-30, F May 2

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    my mom doesn't want anything to do with me . I am 26 I don't live at home and I wish she would just talk to me when I need to vent . it's sad when your own mother says to you when...
    backw00dsbarbie88 backw00dsbarbie88 26-30, F 2 Responses May 13

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    Aussies..I have no interest in helping your family on centrelink live off my hard earned money. What have you to say about all those lazy Aussies go start having kids in school...
    malaysianinoz malaysianinoz 26-30, M 1 Response 5 days ago

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