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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    ladies: remember to never tell other women friends about your infertility, there's always a woman out there that will find away to use it against you and hurt you.
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    So, when I was about 10 my dad got remarried to my now Step-mom, at first she acted like she liked me. She was trying to be my best friend or whatever, but I noticed that she...
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    I don't known how to feel when my mom acts like I'm always against her I'm dealing my own way with my family , and my husband is in prison in have my own things happening am I...
    raejel50 raejel50 18-21, F a week ago

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    Grief is not linear. It comes back around. Loss is one of the hardest things I've had to deal with.
    cloudedsky cloudedsky 26-30 1 Response a week ago

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    I've been homeschooled all my life, and never been around teenagers except for once a year at camp.. So this spring I played futbol for the first time ever, right as my anxiety...
    violentsneezes violentsneezes 16-17, F 1 Response a week ago

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    It's okay to be quiet... It's okay to be shy.. I just want to overcome the fear.. I just want to be able to do the things I need to do.
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    What's it mean when ur ex (dated 8 months) wants to keep you in his life as "friends" even when he's moved on to someone new? This has never happened to me before.
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    The hardest part about going to the gym for me is checking-in and leaving. I really, really, reallyyyy don't like it. When I get to the door my heart starts pumping a bit. I walk...
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    what’s happening is that some deep, inner part of me finally feels safe and stable enough to address the leftover emotional fallout that’s been patiently waiting. In the years...
    hospitalrooms hospitalrooms 31-35, F Jul 23

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    Latest Blog post I talk about Flying, Airports and the TSA and dealing with incontinence. I also go through my first experience and how you can make yours go smoothly. Ask me any...
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    Latest Blog post I talk about Flying, Airports and the TSA and dealing with incontinence. I also go through my first experience and how you can make yours go smoothly. Ask me any...
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