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I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 23 People

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

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    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

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    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

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    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

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    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

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    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

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    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

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    Related Experiences

    I have spina bifida and am afraid i won't find somebody who will truly love me
    bgirl24 bgirl24 22-25, F 1 Response Apr 18

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    I had a child, a baby boy, from a one night stand with an ex partner who left the country when she found out she was pregnant. Mostly due to her lack of faith in my ability as a...
    JonnoHo JonnoHo 22-25, M 1 Response Apr 9

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    Imagine this. Some guy flies through a stop sign, blind-sighting you. Hits your car, debris and parts all over. He gets out tells you how sorry he his, it's totally his fault, asks...
    buttercup033 buttercup033 26-30, F 1 Response Apr 15

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    The past several years of my life have been turbulent. The afternoon of December 26th, 2007, my father, younger brother, and I went to my older sister's house to drop off some...
    QOE23 QOE23 18-21, F Apr 14

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    Beware… long post ahoy! In my opinion the DUI machine is nothing but a cash cow with no real intention of promoting public safety. Before I share my thoughts on this I need to...
    MidnightX2 MidnightX2 36-40, M 1 Response Apr 23

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    I need help with something. My friends brother just died today. She called me in tears and I have no clue how to help her. We live in different states by the way.
    dabombcono92 dabombcono92 22-25, M 1 Response Apr 6

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    My sister died two weeks ago and we have put her to rest. She was only 67 years old. In the past year and a half I lost another sister (59 years) and her husband. My older brother...
    wuzgnu wuzgnu 61-65, M Apr 13

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    yet another negative test :( so here is some of my story. I have been married almost 10 years we have actively been trying for our first baby for about 7 months, now I say actively...
    karabear1985 karabear1985 26-30, F 1 Response Apr 16

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    I'm going through a break up and I'm trying to deal with my heart break by writing how I'm feeling in my notes... Just a background of what happened, my boyfriend had been going...
    odijay odijay 18-21, F Apr 20

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    My first post will explain what's happening but anyway, day 5 of breakup... Day 5 14/4 Had a bad cry in the morning. I miss him so much it hurts. But got out of bed and continued...
    odijay odijay 18-21, F 2 Responses Apr 20

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    My first post will have a brief explanation of what happened... Day 10 20/4 11:18am oh god, I miss him so much. Went through the photos of us I have on my phone and I miss the...
    odijay odijay 18-21, F 1 Response Apr 20

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    Day 11 21/4 8:09am it's pouring raining and I miss him more than ever... I miss hugging him and cuddling him from behind... I feel so depressed and miserable... What do I do? Why...
    odijay odijay 18-21, F 1 Response Apr 21

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    I am having a hard time coping with my breakup. I get anxious and bouts of depression. I need ideas how to move forward and help myself heal. Thanks
    sunsmiles sunsmiles 36-40, F Apr 23

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    five deaths in the past 7 months, my husband deployed and a miscarriage....um let's calm down with the drama im tired and need a break.
    zoeyB zoeyB 22-25, F 1 Response Apr 23

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    Hi just found this group and I'm struggling to cope with the fact that I may never become pregnant again! The future seems so bleak and uncertain and full of disappointment. I feel...
    userlorenzo userlorenzo 31-35, F 1 Response Apr 24

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    I still think about my ex, having sex with her being with her. I know she's not thinking about me...and I hate that part, she's over me but I'm still stuck here with these thoughts...
    Experiencezzzz Experiencezzzz 18-21, M 4 days ago

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    3 years. Why can't I forget you... Clearly I'm sick to be in love w someone who's soon to be married.
    dearcarmen dearcarmen 22-25, F Apr 8

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    I would give anything in the world for a hug from him . anything . its the one thing I just can't have .
    sayhashahemm sayhashahemm 22-25, F Apr 9

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    I really miss my ex. Or maybe I just miss having someone there. Either way I'm miserable.
    itsmehere2 itsmehere2 18-21, F Apr 17

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    i need to know what do u do when 2 people ask u out and u like them both but one broke ur heart
    pretty12345678 pretty12345678 13-15, F 3 Responses Apr 20

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    had a shoulder op sooooo much pain :(((
    ingerz123 ingerz123 61-65, M Apr 26

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    i have a Breathalizer in my car
    az2sombra az2sombra 46-50, F 1 Response 6 days ago

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    My husband hurts me virbully!
    fmhamg fmhamg 41-45, F 2 days ago

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    Tact - from the dictionary - "adroitness and sensitivity in dealing with others or with difficult issues." There has been an issue in the news recently which must be very...
    Spankerr Spankerr 51-55 6 Responses Apr 26

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    I am so glad I found this forum. I am glad I am not the only one living the Australian lie (not Australian dream). I am born and grew up in Malaysia to Chinese parents. Everybody...
    malaysianinoz malaysianinoz 26-30, M 3 Responses 2 days ago

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    When dealing with Aussies, it is important to remain calm and detached. I know that having to deal with them on a daily basis is hard, and they have a confrontational manner about...
    boganbait boganbait 46-50, M 8 Responses Apr 22

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    I sent a request two weeks ago to my HR department for a request to transfer office back to Europe. As week passed. y where my email was unanswered so I resent another email as...
    pulsar78 pulsar78 31-35, M 2 Responses 6 days ago

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    It's not always necessary to change someone's mind: Sometimes it's just plain not worth it to try and change someone's mind, best to just agree to disagree and move on. For the...
    CrystalRainsPearls CrystalRainsPearls 41-45, F 5 Responses Apr 16

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    Hello there, ROOMIES!When  I moved to New York City 5 years ago I realized that finding a good quality and affordable at the same time apartment could be a great challenge. It...
    kabakbay kabakbay 26-30, M 1 day ago

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    I feel completely alone right now. I've moved to a new country where I dont have any of my own friends or family and I'm so confused with how I feel. I have my amazing boyfriend...
    VictoriaN105 VictoriaN105 18-21, F 2 Responses Apr 7

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    Hello! My name is Tia Evans and I'm with Younique Cosmetics. Some of my team and I are reaching out to families dealing with autism to give back. We are offering 100% of our...
    youniqueviatia youniqueviatia 31-35, F Apr 9

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    Hello! My name is Tia Evans and I'm with Younique Cosmetics. Some of my team and I are reaching out to families dealing with autism to give back. We are offering 100% of our...
    youniqueviatia youniqueviatia 31-35, F Apr 9

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    Hello! My name is Tia Evans and I'm with Younique Cosmetics. Some of my team and I are reaching out to families dealing with autism to give back. We are offering 100% of our...
    youniqueviatia youniqueviatia 31-35, F Apr 9

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    maybe im just a annoying but I don't know what's wrong with me I always liked dealing with people but now that im older and Im not good with people and I find im a very awkward...
    RaynesWorld RaynesWorld 18-21, F Apr 23

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    anyone who would like to friend me, plz do. my son is high functioning autistic....now age 22. I can try to help you guys so much through our experiences. Its been a long, tough...