Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Am Dealing With Living With Spina Bifida

Personal Stories, Advice, and Support 22 People

    Newcomer

    Hi Everyone! My name is Kristina and I am new to EP. I have never joined a support group, nevermind an online support group. I must admit I am a little embarrassed to be joining such a site, but I don't know what else to do or where else to turn. I am a 31 y/o intelligent woman...
    KristinaFL81 KristinaFL81 31-35 1 Response Mar 4, 2012

    Your Response

    Cancel

    And Not Doing A Very Good Job At It

    i am so ******* lonely, i just want to be loved, is that so wrong? i really hate life, nothing ever seems to go the way i want it too.
    drippy72 drippy72 41-45, M Jul 6, 2012

    Your Response

    Cancel

    Its Not Me Who Has Spina Bifida Its My Nephew :(

    hello, im heather and my nephew logan has spina bifida and hydrocefilis- i dont no how to spell it :L, when he was born the doctors said he was never going to make it they were wrong! logan is the best think to happen to my family my sister is wrighting a book about him called...
    heatherxoxo heatherxoxo 16-17, F 1 Response Feb 26, 2012

    Your Response

    Cancel

    My Bodies Broke But My Heads Held High!

    My name is Alisha. I'm 30 years old and I was born with Spina Bifida Myelomenglocele.. I have Arnold Chiari Malformation and teathering of the spinal cord as a result of the Spina Bifida.. I am very much so amblitory and can get around the house very well but have trouble out at...
    alisha459777 alisha459777 26-30, F 1 Response Apr 8, 2012

    Your Response

    Cancel

    Running Was A Way Of Life

    I was the best sprinter my high school ever promoted, and cheered for. I always wanted to be good at something nobody else could measure up to. I was either first or second crossing the yellow line, confidence in my abilities brought me great happiness. The last lap was my...
    peachfuzz68 peachfuzz68 41-45, F 43 Responses Feb 12, 2012

    Your Response

    Cancel

    I Am Dealing With Bi Polar

    hi, yes i am dealing with bipolar.It all started many years ao, i have fallen from the highest mountain,in my mind and crawled to the very depts of hell.i have been so frightened, i did  not think you could fear that much,i have lost all hope, in life, and have spent many...
    mandyashby mandyashby 41-45 Feb 16, 2012

    Your Response

    Cancel

    Spina Bifida

    I was born with it, and it has added to my life a lot of suffering, i just want to be pain free and walk right for once. For me it's emotionally draining, can't wait for my surgery.
    peachfuzz68 peachfuzz68 41-45, F 3 Responses Jan 15, 2012

    Your Response

    Cancel

    Related Experiences

    I'm fed up of dealing with infertility. I wish I could not want a baby anymore, how do I make it stop?
    rebecca991 rebecca991 22-25, F 1 Response Nov 4

    Your Response

    Cancel
    I have been dealing with this for a long time being very depressed behind it and have not been really able to talk to anybody about it. I feel like it have really altered a piece...
    lostndasauce lostndasauce 31-35, M Nov 9

    Your Response

    Cancel
    Three months ago, I thought I would be in The Channel Islands already. Here I sit, in my North Hollywood apartment, in tears of frustration regarding my visa application process...
    wodie88 wodie88 22-25, F Oct 23

    Your Response

    Cancel
    People say I have a beautiful smile. I put it on a lot. Things look good on the outside but inside I'm in so much pain at times. It can cripple me and steal from me. I know I'm...
    Ludavin Ludavin 46-50, F 1 Response Oct 26

    Your Response

    Cancel
    I left my husband 3 years ago because of abuse. Most of it had been directed at me, but I left because it started to be directed towards our daughters. He followed me to my new...
    anxietyabounds anxietyabounds 26-30, F 2 Responses Oct 29

    Your Response

    Cancel
    This is an update from my previous experience with this matter. Here's what has happened. I had my meetings with my attorney before my arraignment hearing and what was supposed to...
    bluefireball4949 bluefireball4949 36-40, M Oct 30

    Your Response

    Cancel
    I find gender dysphoria can be very hard to cope with. I cringe at being called Mister. I feel sick when someone mentions the word 'man'. To be shoehorned into a gender role that I...
    tesseract49 tesseract49 18-21, T 1 Response Oct 31

    Your Response

    Cancel
    Finally down to almost two weeks left till I can be with him again. I've felt really alone in this whole process and I'm sad that I just know found this site... I wish I could...
    Manndachristine Manndachristine 18-21 1 Response Nov 7

    Your Response

    Cancel
    Just need to rant a lil ^^, i am usually outgoingly caring for my friends, i jogged about 4 miles to see someone who was emotionally hurt and needed comforting but someone who i...
    septlaxer septlaxer 16-17, M 1 Response Nov 12

    Your Response

    Cancel
    My fiancé has betrayed my trust. I have no evidence he's ever cheated on me, however I found one earth-shattering e-mail from him to his ex a week after our engagement. The letter...
    msdice msdice 22-25, F 1 Response Nov 14

    Your Response

    Cancel
    I held my dad's hand as he passed away....
    DoesNotFeelHuman DoesNotFeelHuman 41-45, M 1 Response Oct 25

    Your Response

    Cancel
    So I got told that I may not be able to have a family of my own as I am infertile was has sent my depression spiralling out of control
    DarkestCub DarkestCub 18-21, M 2 Responses Oct 30

    Your Response

    Cancel
    Working in an unforgiving environment in a male dominated industry is tough for a young executive like me. There is absolutely no room for any mistake. I have been working in...
    LovelyEdith LovelyEdith 18-21, F 5 Responses Nov 1

    Your Response

    Cancel
    I need help. Im so low and afraid all the time. I need it to stop now
    rachlin50 rachlin50 22-25, F 2 Responses Nov 10

    Your Response

    Cancel
    My shock was finding out how far this person was willing to go to get their way. Elaborate lies ! The enjoyment in their facial expressions when they pulled something over on...
    andi0507 andi0507 56-60 5 days ago

    Your Response

    Cancel
    So upset. I have a stress fracture in my foot. I have such bad anxiety about gaining weight and not being able to exercise like I use to.
    sbarry5 sbarry5 22-25, F 5 days ago

    Your Response

    Cancel
    i am in grief and don't know how to handle it i have lost everyone in my family and i am the last one alive it is tearing me apart so bad because i have seen all my family members...
    Blackbart1966 Blackbart1966 46-50, M 3 days ago

    Your Response

    Cancel
    It has taken many years but I think I am finally becoming comfortable with my body. I've always had issues with my body. Hated the scoliosis I have from my spina bifida, hated the...
    mattywheels25 mattywheels25 26-30, M 1 Response Oct 27

    Your Response

    Cancel
    As a person with a disability myself ( I have spina bifida and am in a wheelchair because of it) I totally understand how hard some days can be. But we rise to the challenge and...
    mattywheels25 mattywheels25 26-30, M Nov 5

    Your Response

    Cancel
    I'm a high school student. I'm a junior and I've seen a lot in my life. Its a long complicated story. As a child I had to grow up quickly in my household. My brother always told me...
    Hiddenshadow88 Hiddenshadow88 16-17, M Oct 25

    Your Response

    Cancel
    i cannot express the urgency to all ..to please try a chiropractor that uses alignment of the atlas of your spine and also uses an activator to align your spine ....out of the blue...
    derelwebb derelwebb 51-55, F 3 days ago

    Your Response

    Cancel
    So I've been friends with my housemate for a while before we moved in together. I knew she had depression and was having a hard time. But I've been overseas for the last six...
    babushka212 babushka212 18-21, F Nov 9

    Your Response

    Cancel
    Looking for somebody who has genital herpes who I can connect with, talk to, support and listen and in return listen to me. By talking and texting. Distance isn't an issue, I have...
    mrDisexperiencing mrDisexperiencing 26-30, T 1 Response 2 days ago

    Your Response

    Cancel
    As you guys can tell I'm not a teenager anymore. But the depression part I get because I have been dealing with mental illness most of my life at least since the 4th grade when I...
    mlcockrell mlcockrell 36-40, M 1 Response Oct 24

    Your Response

    Cancel
    Intolerance, bigotry and racism are all signs of low intelligence and this entire thread is nothing more than a festival of hate. As an educated white Australian from a privileged...
    EmperorJulian EmperorJulian 46-50, M 5 Responses Nov 9

    Your Response

    Cancel
    well it had only been 2 months of dealing with a lonely relationship with a workaholic. I had to make calls for us to get to speak I had to visit him for us to see each other so...
    pussss pussss 22-25, F Oct 27

    Your Response

    Cancel
    I moved in with my boyfriend who had twins at the age of 19 (boy and girl). Their mother and him dated but broke up once the kids were born. He didn't love her and did not want to...
    pinapie pinapie 22-25, F 1 Response Oct 28

    Your Response

    Cancel
    How to start dealing with these pain attacks :(
    S4491 S4491 22-25, F Oct 30

    Your Response

    Cancel
    There's this girl who always ask me for advice,, so maybe I could get other feedback on this!! She has a boyfriend and the person she was dealing with (a girl) has a girlfriend...
    kbberry kbberry 26-30, F Nov 1

    Your Response

    Cancel
    I have been in love with a heroin addict for as long as I can remember. I met him when I was 15 before his addiction. we dated for 2 1/2 years before he started using, he we my...
    justwanttobehappy1 justwanttobehappy1 18-21 2 Responses Nov 1

    Your Response

    Cancel
    I seldom have difficulty dealing with my own feelings, negative or otherwise. Only on the rare occasion I'm having trouble identifying emotion or source does this give me pause...
    niklb niklb 41-45, F Nov 9

    Your Response

    Cancel
    There are many things with the arrangement I have with Charles and Alexandra that are troubling me. I know it seems a dream job, just be here and oblige for £2000 a week and...
    Skjeggstad Skjeggstad 22-25, F 2 Responses Nov 12

    Your Response

    Cancel
    My grandfather was diagnosed with colon cancer about a year ago. My father's side of the family has a history of alcoholism and when this bomb was dropped on them, they all...
    justanothersteph justanothersteph 22-25, F 2 Responses Nov 14

    Your Response

    Cancel
    We're all in the same game just different levels. Dealing with the same hell just different devils.
    maxifel maxifel 18-21, M a week ago

    Your Response

    Cancel
    I stayed in a mental hospital almost two and a half years ago, in which I gave up alcohol with the help of a best friend. I had attacked my mother, not slept for four days and just...
    camdenb camdenb 18-21, M a week ago

    Your Response

    Cancel
    Hello All. I am new to this site, but its such a wonderful idea. I am 24 years old, and up until October 2013, I was blessed enough to have a happy, weird, complete family. It was...
    xXTheDorknessXx xXTheDorknessXx 22-25, F 6 days ago

    Your Response

    Cancel
    There are some awesome people in my circle. All have been through things and still have a sense of humor. I would love to have dinner and drinks with any of them. All have...
    SilverPagan SilverPagan 51-55, M 1 Response 5 days ago

    Your Response

    Cancel
    Two years ago, I moved to a new city for a great job; it was there I met the titular engaged woman (she wasn't engaged at the time, but was in a relationship with the guy). Things...
    jowe79 jowe79 31-35, M 1 day ago

    Your Response

    Cancel
    I deal with boredom in a good way. I write. I spend time with friends. I pace myself. I learn more things that are good for me and good for others. I try to be a better man...
    tryingagainII tryingagainII 56-60, M 1 Response 1 day ago

    Your Response

    Cancel