I Am Living In A Body With A Broken Autonomic Nervous System

Personal Stories, Advice, and Support 76 People

    POTS and Chiari have taken over my life.

    .I used to feel like any other person until my symptoms hit..now it's hard for me to be able to do anything..I feel like a burden on my loved ones..and it pains me to see them dealing with me in this situation. I often think it would be better for them if I wasn't around.
    katelynchildress katelynchildress
    18-21, F
    Aug 27, 2015

    It's Bad

    Runs in my family.  My youngest brother died at age 10.  My sisters have it worse than I do.  Mines mild.  I don't faint too much as long as I take the Florinef.  Sick a lot though.
    InvisibleRodney InvisibleRodney
    26-30, M
    Jan 30, 2010

    I Tend To Call It "Autonomic Stupidity"

    I'm twenty-five years old, and have dealt with chronic illness for most of my life. I was diagnosed with Dysautonomia shortly after puberty, and my symptoms have slowly progressed. I have take approximately thirty to forty pills on the daily bases to control my symptoms. Even...
    HalBashes HalBashes
    4 Responses Feb 16, 2010

    Want To Share Your Story?

    For any of you who have a Facebook, I found out that there is an Annual Invisible Illness Awareness Week. This year starting on September 9th. It is a great way to share your story, get to know others situations, and get some genuine support. To get started is a "30 things about...
    nikkij216202 nikkij216202
    18-21, F
    Sep 3, 2013

    CALLING ALL POTSIES and anyone

    who suffers from any form of Dysautonomia...there is a national conference AND lobby day being held in Washington, DC July 11th-14th!!!!! It is so important that we all try to go and raise awareness, get educated about our afflictions, lobby for more research to be done...but...
    Ktglisson87 Ktglisson87
    26-30, F
    1 Response Jun 1, 2014
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