I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 12 People

    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79
    26-30, F
    Sep 24, 2009

    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom
    22-25, F
    Nov 11, 2011


    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79
    26-30, F
    Sep 24, 2009

    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea
    36-40, F
    1 Response Dec 19, 2011

    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem
    3 Responses Sep 18, 2011

    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79
    26-30, F
    Sep 24, 2009

    Sometimes when I talk about it,

    I would always get someone who would step away from me, asking if it was contagious and I'm like "no! You dumbass! Its not! It's not like it's a STD or a damn virus. it's a malformation. Malformation aren't contagious." Chiari is a malformation of the Pon tonsils of the spinal...
    deleted deleted
    Sep 24, 2015
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