Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 12 People

    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

    Your Response

    Cancel

    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

    Your Response

    Cancel

    Sometimes when I talk about it,

    I would always get someone who would step away from me, asking if it was contagious and I'm like "no! You dumbass! Its not! It's not like it's a STD or a damn virus. it's a malformation. Malformation aren't contagious." Chiari is a malformation of the Pon tonsils of the spinal...
    odessa94 odessa94 18-21, T Sep 24, 2015

    Your Response

    Cancel

    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

    Your Response

    Cancel

    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

    Your Response

    Cancel

    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

    Your Response

    Cancel

    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

    Your Response

    Cancel

    Related Experiences

    Characteristics Of Narcissistic Mothers 1. Everything she does is deniable. (Most of the time) 2. She violates your boundaries. (Odd time and doesn't respect my wishes) 3. She...
    1lonelydaisy 1lonelydaisy 46-50 2 hrs ago

    Your Response

    Cancel
    here is my experience: I was in relationship with a person with NPD, fortunately i realized that he was a narcist in an early phase of oir relationship, when I was trying to break...
    nataliawww nataliawww 26-30, F 4 hrs ago

    Your Response

    Cancel
    Valentine's day is often referred to as "singles awareness day" ***** I'm aware that I'm single everyday. Because I don't have some douche lying to me, cheating on me and messes on...
    Alonely0987 Alonely0987 22-25, F 2 Responses 5 hrs ago

    Your Response

    Cancel
    I've been looking for a group like this for a while. My wife suffers from chronic pain due to Chari Malformation and other issues in her back and neck. Chronic pain has been a part...
    scummins1964 scummins1964 51-55, M 1 Response 18 hrs ago

    Your Response

    Cancel
    I have an EXTREAMLY rere autism calld creeptisim its a form of autism that grows with you.
    theinland theinland 22-25, M 1 Response 1 day ago

    Your Response

    Cancel
    i support everyone with autism were all good people autism doesn't change us at all
    autism1011 autism1011 22-25, M 1 Response 1 day ago

    Your Response

    Cancel
    Any Ohio, Pennsylvania, West Virginia, Michigan, Indiana,Deleware or Maryland mom , mommy, daughter, aunt, sister sisters,niece looking for a boy trapped in a lesbian pretty girl...
    Str8boypantyme Str8boypantyme 13-15, T 1 Response 2 days ago

    Your Response

    Cancel
    I don't think we are nudists but we aren't full dressed all the time and it's never ever been a hassle. Like my brother is 16 and I'm 18 and it's never caused problems. Usually we...
    BishDontKillMyVibe BishDontKillMyVibe 18-21, F 7 Responses 5 days ago

    Your Response

    Cancel
    Your thoughts, indeed, create your own reality. But, it's much deeper than that... always been even deeper, much, much deeper. When it comes to frequency, the majority, including...
    AmethystCluster AmethystCluster 26-30, F 1 Response 5 days ago

    Your Response

    Cancel
    'It may be that we are puppets-puppets controlled by the strings of society. But at least we are puppets with perception, with awareness. And perhaps our awareness is the first...
    Serena6669 Serena6669 18-21, F 2 Responses 6 days ago

    Your Response

    Cancel
    i do support others with autism, i have autism too i want too learn more about my autism too
    autism1011 autism1011 22-25, M 1 Response 6 days ago

    Your Response

    Cancel
    My two teen boys were at each others throat this morning. It was almost a frightening scene, I was scared for them and I was in tears. How can two brothers who were best friends...
    TulipBaby TulipBaby 41-45, F 7 Responses a week ago

    Your Response

    Cancel
    https://crowdfunding.justgiving.com/charlie-skinner Hi guys! I'm fundraising only £350 so I can buy a 3D micrphone to make theraputic video's for all who suffer with anxiety...
    Skin0Man1 Skin0Man1 18-21, M a week ago

    Your Response

    Cancel
    fi fr i am members of ep . i m happy to live in my home
    Boobs36 Boobs36 46-50 1 Response Jan 31

    Your Response

    Cancel
    One of my favorite forms of relaxation is meditating in front of my altar at home. When I'm home, I'm already nude, but if I wasn't a nudist I would still be sure to be clothesfree...
    da426cs da426cs 31-35, M Jan 30

    Your Response

    Cancel
    submissive men have much more respect for themselves and for others, in fact, another cliche about us is that we are submissive because it is one of our congenital characteristics...
    ParisHiltonfan ParisHiltonfan 26-30, M Jan 29

    Your Response

    Cancel
    My name is Kristen Phelan and I'm a casting director working with Watercooler Casting. We are currently in development of a new TV project that is looking to document and bring...
    thekp129 thekp129 41-45, F Jan 25

    Your Response

    Cancel
    i would like to be i have great social media skills in always a huge asset to A Team no matter where
    Gwriter90 Gwriter90 22-25, M Jan 25

    Your Response

    Cancel
    I never imagined the turn of events my life would go thru 2015. I truly believe that my new years resolution , i had set for myself that year, might have trigger a ticking time...
    4rmSin 4rmSin 26-30, F Jan 24

    Your Response

    Cancel
    I'm exactly the same I have a 2 year old daughter and I'm a nudist of sorts and want to let her join me but I'm to scared of what people will think
    benjaminbi benjaminbi 22-25, M 2 Responses Jan 24

    Your Response

    Cancel
    1. boys that haven't grown up yet or at least have a sense of self awareness 2. anyone who doesn't have self awareness 3. being limited in the way I express myself 4. Males taking...
    Deathgodsimple Deathgodsimple 16-17, F 1 Response Jan 23

    Your Response

    Cancel
    Be careful! Some charities support horrible animal tests! There are some who don't test on animals though- so support them & never support a foundation that uses& abuses innocent...
    XXLovelyPoisonXX XXLovelyPoisonXX 18-21, F Jan 23

    Your Response

    Cancel
    Well, I dont have a brother but like why not. I know my dad would really approve.
    mydadshorny mydadshorny 13-15, F 3 Responses Jan 22

    Your Response

    Cancel
    Like many people with psychological disorder, I do have dreadful emotional memories about my childhood. And these rocked memories have even been worse as my defense mechanism was...
    belleverano belleverano 22-25, F 2 Responses Jan 21

    Your Response

    Cancel
    Sometimes Precocious Sometimes,...inside the will of misguided determination lies the precociousness of a child, and that child has the strength of a thousand men and persistence...
    LadyGallivanter LadyGallivanter 41-45 2 Responses Jan 21

    Your Response

    Cancel
    I support Autism, primarily due to being in the same boat albeit not technically Autistic, having only 2 pathways, whereas you need 3 to be technically classed as Autistic. I also...
    CaptainPampers CaptainPampers 22-25, M 1 Response Jan 20

    Your Response

    Cancel
    OK listen everyone.... U are all special.... with autism or not... being gay or not... being a boy or a girl... It doesn't matter... we are all humans... and we are all special and...
    Dem52 Dem52 13-15, M Jan 19

    Your Response

    Cancel
    I know several survivors. Brave strong women. My mom is the newest.
    grower629 grower629 51-55, M 1 Response Jan 19

    Your Response

    Cancel
    on the outside I'm a quite,calm,and smart person.....but inside I'm clueless,lost in all sense of direction,feel abandoned,insane slowly losing sanity until I snap. I'm strong for...
    anthrowolf1245 anthrowolf1245 13-15, M Jan 19

    Your Response

    Cancel
    I remember the way those cushions felt underneath me - the ones that were supposed to be a mattress, but served also as sofa cushions. They were spongy but not supportive and I...
    DreamChristine DreamChristine 31-35, F 2 Responses Jan 18

    Your Response

    Cancel
    She always fills my days with joy and passion. after my sisters boyfriend had been chased off by myself (caught him cheating on her) it had been I who had raised her. though being...
    SladeTheLegend SladeTheLegend 18-21, M 1 Response Jan 18

    Your Response

    Cancel
    So we meet again you caught me unawares as I began to convince myself I had forgotten I begin to slip into old patterns falling in step to our age old dance As we move slowly...
    painterchick painterchick 36-40, F 2 Responses Jan 18

    Your Response

    Cancel
    deep in a grave, dreams of getting far away with ashes i play, knowing the living always betray some star comes my way, softly whisper in my grave bittersweet memories made me...
    anotherclone anotherclone 31-35, M 2 Responses Jan 18

    Your Response

    Cancel
    COMUNICATION AND EMPATHY SKILLS. As a lecturer and trainer in the health care sector I am very, very concerned with comunication skills of my students as I try to inculcate in...
    LozzyFromRome LozzyFromRome 46-50, M Jan 18