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I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 9 People

    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

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    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

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    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

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    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Related Experiences

    Well, I've always had headache and back issues. We just kind of assumed it was genetic or something. Finally, about 4 months ago, my headaches became unbearable along with my back...
    jfernau jfernau 18-21, F Jul 20

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    I have chiari. I had surgery when I was 16 but the symptoms are coming back.... I might be the only one on this group or whatever idk. If I'm not let's talk about experiences.
    Njhc856 Njhc856 22-25, M 1 Response Jul 6

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    I've always supported breast cancer awareness but now I have breast cancer. I'm staying really positive and have a lot of support from friends and family. The treatment is hell and...
    here444you here444you 41-45, F Jul 13

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    Hi my gorgeous babes, I would love some help with getting my band some proper recordings done. Check out my fund raising campaign Www.gofundme.com/bx97sk Or our site www...
    SeptembersAshes SeptembersAshes 22-25, F Jul 22

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    Our daughter passed away suddenly in March. I am now raising her daughter. I would really like to talk to someone who is doing this themselves or has done this. It would be...
    FavoriteGardenia FavoriteGardenia 51-55, F 18 hrs ago

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    Because it's only the centre of my personal life experience.
    SolitaryFriend SolitaryFriend 31-35, M Jul 2

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    My sister suffered with meant health issues and the help she was given was terrible, mental health needs to be something we can talk about freely.
    leanneemma leanneemma 13-15, F Jul 2

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    I have such fond memories of childhood. I was the last of four children, 14 years behind my oldest sister and the only boy in the family. I have only scant memories of a father...
    Varience Varience 70+, M 1 Response Jul 9

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    Up, down, fine one minute and a black cloud has come to stay, 3 hours later said black cloud had disappeared. I know in some warped place in my life, I prayed for patience, what...
    Hugmybear Hugmybear 46-50, F 1 Response Jul 14

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    There are days when I desperately want to be pregnant and have a baby. I'm 34 and would like 3 or 4 kids. I already have them named and everything (potentially). You see, these are...
    DarkwingGoslyn DarkwingGoslyn 31-35 Jul 16

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    Hello,my name is jacob but i like to go by zoey. I have spent the last seventeen years of my life alone because I am a girly-boy. Now I have the Internet and sites like this...
    zoey764 zoey764 18-21 1 Response a week ago

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    Hoping you will move out of my MIND!
    WoundedSwan WoundedSwan 31-35, F 6 Responses 1 day ago

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    I have a dream and that dream goes with my passion for children. I really hate watching videos or seeing pictures of children living in poverty, being abused, starving to death...
    RavenS45 RavenS45 18-21, F 4 Responses Jul 6

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    Babies As awareness is increasing about persecution and psychological games, now the persecutors will go a step further. The public is at last opening its eyes to games and set...
    aproudwoman aproudwoman 41-45, F 5 hrs ago

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    It's been a while since I have been truly active in EP. I have used this site as a place to vent out for years and it has helped me a lot in my journey for my personal growth and...
    LackofabetterName LackofabetterName 22-25, M 1 hr ago

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    I've been with my airman for almost 2 years. I've always said I'll never date a military man, but you can't help who you fall in love with... He is currently in Columbus, MS for...
    trevino2b trevino2b 22-25, F 10 hrs ago

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    I woke up this morning feeling worse than I did yesterday. I haven't talked to my fiance about any of this and I really want too. I worry that he will dismiss my feelings and tell...
    Bekka311 Bekka311 22-25, F 3 hrs ago

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    Whenever laws are passed, I always try to imagine the pros and cons of each one. There are some I can understand, however, there is one law that is in the process of being passed...
    PrincessKayleigh PrincessKayleigh 16-17, F 1 Response Jul 1

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    Hey guys, it's past midnight over here and I've been trying to fall asleep but I got stuck reading posts, articles, etc. of HPV. I'm only 20 and not even two weeks ago I received...
    sunny1993 sunny1993 18-21, F 3 Responses Jul 7

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    My therapist has been very helpful in helping me do three things. 1) Identify causes for my current plight and 2) uncovering areas for personal growth and 3) develop an action plan...
    NWTruthSeeker NWTruthSeeker 51-55, M 6 Responses Jul 13

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    Polarized Pendulum: Expulsion - relaxation flirts with drowsiness. my heart slows down to a steady drum. blood pressure begins to drop, and breaths become shallow and rhythmic. I...
    1nverse 1nverse 31-35, F 5 days ago

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    My health anxiety has gotten so much worse, heartbeat awareness three trips to the er because of the heartbeat awareness because I'm afraid if I don't go my heart will stop. I've...
    Woahitsmeg Woahitsmeg 18-21 Jul 1

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    Hawk Spirit Animal When you have the hawk as a spirit animal, you may have an inclination towards using the power of vision and intuition in your daily life. The hawk totem...
    Skylar2000 Skylar2000 13-15, F 6 days ago

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    Wolf Spirit Animal The wolf offers some of the most striking animal meanings in the realm of spirit animals. The power of the wolf brings forth instinct, intelligence, appetite...
    Skylar2000 Skylar2000 13-15, F 6 days ago

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    "Despite the political rhetoric from both parties and constant agitation of numerous advocacy groups, Nevadans really don’t value education much at all. Consider these facts...
    grayday104 grayday104 26-30, M Jul 4

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    This world we live in becomes colder and colder everyday, I hate turning on the tv or even looking at facebook because all I see tragedy. I see husband's killing wifes , mother...
    imperfectbeauty imperfectbeauty 18-21, F 2 Responses Jul 9

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    I am the oldest child of 3 children. We all share the same drug addict mother, however we each have different drug addict parents. I was Taken away from my mother right before my 1...
    secretdestiny secretdestiny 18-21, F Jul 11

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    I have two wonderful boys and two girls. I had my first son when I was 20 my second when I was 22, When I was 24 yrs old I had my first daughter and my last when I was 29. In my...
    mamabutterfly mamabutterfly 36-40, F 2 Responses Jul 19

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    I'm definitely not the person I used to be. I was married for 20 years. I thought I was happy, and I really did love raising my kids. They are 18 and 21 now, and they are awesome...
    lovesandybeaches lovesandybeaches 46-50, F Jul 20

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    It became lucid when the story changed. I stepped through a doorway into the midst of a new one. There were a group of people, maybe eight or more in the room who all turned when I...
    macabrEnigma macabrEnigma 18-21, T Jul 20

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    Its been 4 years since my last post. If anyone has read my previous post then a quick update, I finalized my divorce 3 years ago and have sole custody of my 3 kids. The mother is...
    nirmus nirmus 36-40, M 2 Responses a week ago

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    I will not rant or moan and I no longer hate my mother as much as I use to,but I hope I NEVER see her again and haven't since the last time I went before a judge aged 10 and her...
    Selah94 Selah94 18-21, F 3 Responses 6 days ago

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    Despite my scientific credentials I have a spiritual need. Awareness of it is half the remedy. I study as an Asatru.
    Silfverberg Silfverberg 26-30, F 2 Responses Jun 30

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    I've been with a widower for over a year now. Ups and downs, always about the past-I bring it up, don't know why. Maybe I'm insecure (I'm 25, he is 32). His wife and 6 month old...
    Lalalunacy Lalalunacy 22-25, F 1 Response Jun 30

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    The BlueCat Screenwriting Workshops UPCOMING SCHEDULE http://www.bluecatscreenplay.com/workshops/ Gordy Hoffman, the Sundance award-winning writer/director (LOVE LIZA, A COAT OF...
    Bluecat42 Bluecat42 22-25, M Jun 30

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    Warfield and AssociatesAt Warfield & Associates, we have developed a range of services that can assist your organisation reduce the likelihood of fraud and corruption occurring and...
    charlietheron2 charlietheron2 26-30, M Jun 30

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    At Warfield & Associates, we have developed a range of services that can assist your organisation reduce the likelihood of fraud and corruption occurring and when it does, identify...
    ashleyweeks ashleyweeks 31-35, F Jun 30

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    Finally a new law passed by modi govt today. As per Indian penal code 233. If a girl is suspected to be raped or getting raped,then she has the supreme right to kill the man,injure...
    lovelyguy143333 lovelyguy143333 22-25, M 1 Response Jul 3

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    Finally a new law passed by modi govt today. As per Indian penal code 233. If a girl is suspected to be raped or getting raped,then she has the supreme right to kill the man,injure...
    lovelyguy143333 lovelyguy143333 22-25, M 5 Responses Jul 3

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    Update: Divorce. I hope you're all doing well, and wanted to give you an update, since we've all considered divorcing our asp. spouse (or many of us at least). I got lucky in a...
    Mannon Mannon 36-40 3 Responses Jul 4

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    I had a fantastic time this evening doing cocaine - so much so that i'm writing this at 5 in the morning! Me and a group of friends at work all did it together, and it was...
    howmanyseanwalshsarethere howmanyseanwalshsarethere 22-25, M 1 Response Jul 4

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