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I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 8 People

    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

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    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

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    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

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    Related Experiences

    My names Alaina, I'm 17, and about three years ago I was diagnosed with Chiari Malformation Type 1. So freshman year of high school I started having really bad headaches, and found...
    burtala burtala 16-17, F Mar 27

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    I'm here trying to spread awareness about chiari. Because it is serious and not many people/doctors know about it. It effects 1 in every 1000 people. Including me. It is caused...
    Mayleehawkeye Mayleehawkeye 18-21, F Mar 28

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    Thought this was funny and had to share!
    Mayleehawkeye Mayleehawkeye 18-21, F Apr 2

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    Daily Awareness Project. Don't forget to stop and smell them too!
    Jeggo Jeggo 31-35, F 1 Response Apr 7

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    Slowly but surely, you'll get there. Trust the process.
    Jeggo Jeggo 31-35, F Apr 3

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    My mom and dad are both alive and fine but they work 12-15 hours a day. And there schedules are nuts. So I wake up my little sister and get her ready for her day at first grade...
    TrustMeBitch TrustMeBitch 13-15, F Mar 26

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    Well, child. Today he asked me why we don't go to church. So I said because I don't believe what they teach. He replies what do they teach? Response along the lines of heaven, hell...
    Goodbadladywoman Goodbadladywoman 26-30, F 2 Responses Apr 6

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    I was once a clueless teenager who thought I was invincible. Always took things for granted. Was living life extremely short sighted. And then on June 14, 2004 my life was forever...
    trentdubb05 trentdubb05 26-30, M Apr 8

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    5 Minutes A Day While we lay in bed at night, waiting to fall asleep, we could easily spend what could be the best 5 minutes of the day. I wrote the following breathing...
    gsparky22 gsparky22 41-45, M 2 Responses 5 days ago

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    Just for fun I again used both my real name and my username Wraithorn. Again I received rather similar results. The first is for Wraithorn, although i must say that i do not...
    wraithorn wraithorn 41-45, M Mar 26

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    April is Child Abuse Awareness Month (at least it is here in the USA). I've made a plan to post a status every day this month on Facebook with information about child abuse. I hate...
    RuthieAnja RuthieAnja 18-21, F 2 Responses Apr 2

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    Hello and Greetings to you. Here are the facts of my experience: Medical Facts From 1998-2005 I was on a daily dose of anti-depressants. I had 4 stays in a psychiatric unit for...
    mcmzenith mcmzenith 36-40, M 1 Response Mar 24

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    Walk for Lupus is coming up and so is World Lupus Day. I am excited to go walk for myself and others that have those horrible invisible illness that we have. Living here in Canada...
    Young24Lupus Young24Lupus 22-25, F Mar 27

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    Child Abuse April is Child Abuse Awareness Month (at least in the USA, I don't know about other places). The one thing EVERYBODY can do to combat the evil that is child abuse is...
    RuthieAnja RuthieAnja 18-21, F Apr 2

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    Happy April! April is Child Abuse Awareness Month. Today, I was reminded of a status I wanted to make while on Spring Break but never got around to. You'll get the connection to...
    RuthieAnja RuthieAnja 18-21, F Apr 2

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    It's April 2! Still Child Abuse Awareness Month. Did you know that child abuse kills four or five children every day in the United States alone? Such a sad statistic. Child abuse...
    RuthieAnja RuthieAnja 18-21, F 2 Responses Apr 2

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    It's April 2! Still Child Abuse Awareness Month. Did you know that child abuse kills four or five children every day in the United States alone? Such a sad statistic. Child abuse...
    KortneeAnne KortneeAnne 22-25, F 5 Responses Apr 2

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    Ok so my story of mercury poisoning has been my entire lifes experience, and is still affecting me to this day. I just really wanted to connect with others who share this story so...
    awakekiwi awakekiwi 41-45, M 1 Response Apr 2

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    April 3. I think we often forget the little boys affected by child abuse. We only really think about the boys when there are big cases like Michael Jackson or Jerry Sandusky are in...
    RuthieAnja RuthieAnja 18-21, F 4 Responses Apr 3

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    “I would not like to live in a world without cathedrals. I need their beauty and grandeur. I need them against the vulgarity of the world. I want to look up at the illuminated...
    Daveokay Daveokay 22-25, M Apr 5

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    There is so much to an individual. We all have our preferences and likes and dislikes. I am in a state of forgetting and remembering. Having a discussion with someone else...
    todayalways todayalways 46-50, F 1 Response Apr 5

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    This is exactly what happens to me and gets mis-labelled as 'anxiety' or whatever. http://www.bcepilepsy.com/files/Information_Sheets/All_About_Partial_Seizures.pdf All About...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 7

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    Services Basics & Fundamentals These are the basic services, the titles are self-explanatory. If you wish to learn how to heal for example then we give you the proper information...
    Soulburst Soulburst 18-21 Apr 8

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    Who am I? 1 Who am I You are not the body, you are not the senses, you are not the thoughts, you are not the unconscious state in which objects do not appear. 2 If I am none of...
    Camouflage Camouflage 18-21, M 1 Response Apr 10

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    Who am I? 1 Who am I You are not the body, you are not the senses, you are not the thoughts, you are not the unconscious state in which objects do not appear. 2 If I am none of...
    Camouflage Camouflage 18-21, M Apr 10

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    Who am I? 1 Who am I You are not the body, you are not the senses, you are not the thoughts, you are not the unconscious state in which objects do not appear. 2 If I am none of...
    Camouflage Camouflage 18-21, M 2 Responses Apr 10

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    hi currently having and living through syndenham chorea its been a struggle, if you ever had it you know how i must be feeling, i really think their should be more awareness for...
    zander98al zander98al 13-15 5 days ago

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    April 16. Letting Things Happen. We do not have to work so hard at gaining our insights. Yes, we're learning that painful and disappointing things happen, often for a reason and a...
    zeeva70 zeeva70 41-45, F 4 days ago

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    April 16. Letting Things Happen. We do not have to work so hard at gaining our insights. Yes, we're learning that painful and disappointing things happen, often for a reason and a...
    zeeva70 zeeva70 41-45, F 4 days ago

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    April 16. Letting Things Happen. We do not have to work so hard at gaining our insights. Yes, we're learning that painful and disappointing things happen, often for a reason and a...
    zeeva70 zeeva70 41-45, F 4 days ago

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    April 16. Letting Things Happen. We do not have to work so hard at gaining our insights. Yes, we're learning that painful and disappointing things happen, often for a reason and a...
    zeeva70 zeeva70 41-45, F 1 Response 4 days ago

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    April 16. Letting Things Happen. We do not have to work so hard at gaining our insights. Yes, we're learning that painful and disappointing things happen, often for a reason and a...
    zeeva70 zeeva70 41-45, F 4 days ago

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    April 16. Letting Things Happen. We do not have to work so hard at gaining our insights. Yes, we're learning that painful and disappointing things happen, often for a reason and a...
    zeeva70 zeeva70 41-45, F 4 days ago

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    April 16. Letting Things Happen. We do not have to work so hard at gaining our insights. Yes, we're learning that painful and disappointing things happen, often for a reason and a...
    zeeva70 zeeva70 41-45, F 4 days ago

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    So...I had a bad day. Typed this fast sorry if there is errors. This really hit me hard today. Our school did a drinking and driving thing today for awareness. And tomorrow. And it...
    Mikesmithg1 Mikesmithg1 16-17, M 2 Responses 4 days ago

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    Read an article today about a man who had been unwittingly raising a child that wasn't his and paying child support. He only found out when the boy, now a man, told him and now he...
    DantheManNot DantheManNot 36-40, M Mar 21

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    I am not a parent at the present time and not sure I will ever be one. I know all the trouble my mother went through raising five kids and I see my brother's and sister's trouble...
    asert12345678 asert12345678 31-35, M 2 Responses Mar 26

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    Kinder, Kirche, Kuche (Children, Church, Kitchen) Part Three - Chapter Twenty-Three The world celebrated the flag-raising on Iwo Jima, and the end of the war was in sight - but...
    MaryJanine MaryJanine 56-60, F Apr 5

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    Raising a child that isn't your own. Such fun! When things get tough, there are no sweet memories of them being cute because you weren't around for that part. No biological love...
    Countrychicky Countrychicky 26-30 4 Responses Apr 10

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    I don't think parents should raise their children to follow their religion if they are indeed religious. I think they should just let their children grow to be open minded and let...
    LameyC LameyC 18-21, F 1 day ago

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    Hello everyone, I came across this group and have read through some really interesting and remarkable stories. It sounds like some of you have come on a real journey. I am a...
    littlestar89 littlestar89 22-25, F Mar 21

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    Before I fell asleep earlier today, I again saw one of my favorite movies that has what to me is a nice cast since I recognize Drew Seeley, Kim Zimmer and Annie Potts. Freshman...
    blossomingbeauti blossomingbeauti 36-40, F Mar 21

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    I recognize that there have been situations where I've given someone cause to feel annoyed, though this was never my intention. For the strain & stress, I apologize. I too, am...
    jenga1 jenga1 41-45, F Mar 22

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    For reasons that will become obvious I have spent some time looking to see what information there is on the net about what happens if you elect not to have surgery to attempt to...
    planetzarg planetzarg 61-65, M Mar 22

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    I feel like my boyfriend doesn't love or care about although he says he does. I was abused as a teen and now in my late twenties I've been able to have my first relationship. The...
    Tillnow Tillnow 26-30, F Mar 22

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