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I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 10 People

    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

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    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

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    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

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    Related Experiences

    it is like a bad dream....opening my eyes to noise which refused to die down in the house....i shut my eyes again and pray...it is all a bad dream and when i would wake up again it...
    snuffal snuffal 26-30, F 1 hr ago

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    I don't call it selfish, I call of self awareness and taking care of yourself. nobody is going to take care of "you" but "you". I'm actually not selfish at all. I'm very giving and...
    craigslist504 craigslist504 36-40 4 hrs ago

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    I like the peer environment more than the family environment. I like peers, people of the similar professional fields, getting together to make effort for some project of common...
    ExileMyself ExileMyself 26-30, F 10 hrs ago

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    I thought he was the man I was going to spend my life with at 21 and 5 years into our relationship I knew that was no longer a possibility. Me and T. Had an amazing relationship...
    2015dao 2015dao 22-25, F 3 Responses 15 hrs ago

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    Didn't think of writing something about the way I am thinking right now. But I got some inspiration from inside to write something so that it can be remembered for ever. Last day...
    tacitpas tacitpas 31-35, M 16 hrs ago

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    There are many fund raising ideas available on the market to-day for anyone who is looking for them. Fund-raising a few ideas are easy to come up with and are very effective...
    shieldpint95 shieldpint95 26-30, M 21 hrs ago

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    Ok. I want to just talk about how horrible this rubs me the wrong way. When older women or women in general tear young girls down for having children. I've seen older women call...
    DeIuxedEdition DeIuxedEdition 18-21, F 2 Responses 1 day ago

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    top ten answers from teens I hate #688: "I don't know"
    jbm1984 jbm1984 31-35, F 1 day ago

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    None there is only one God and he only has one name no name
    fattenedforthanksgivingdiner fattenedforthanksgivingdiner 61-65, M 2 Responses 2 days ago

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    POTS and Chiari have taken over my life..I used to feel like any other person until my symptoms hit..now it's hard for me to be able to do anything..I feel like a burden on my...
    katelynchildress katelynchildress 18-21, F 1 Response 2 days ago

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    I raised my two children alone after a seven year marriage ended. I worked a job in retail as a store manager. I had to work 50 hour 6 day work weeks. I had no help raising my two...
    thebustierthebetter thebustierthebetter 46-50, M 3 Responses 4 days ago

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    school clothes shopping #689: if I don't survive, tell my family I love them
    jbm1984 jbm1984 31-35, F a week ago

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    I'm a dad of two boys and I spank them regulary. My Ex-Wife often told me, I should have a strict dad or uncle, because I'm often rude to other people and I deserve a spanking, too...
    BadBoySpanking BadBoySpanking 36-40, M 2 Responses Aug 21

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    I want to hear about how your spiritual path is going. What have you been learning? What changes have you made and how are you maintaining those changes? Are you still haunted by...
    AquariusLife AquariusLife 26-30, F 1 Response Aug 21

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    If you have facebook, go check out the page called Project With A Purpose. Someone is taking orders from anyone who would like to buy a custom paracord bracelet. You can ask for...
    jsoaps2 jsoaps2 22-25, M Aug 21

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    I am a man, 45 years old. I have through the years got some experience in spanking. I have had contacts with several moms, needing help with spanking from time to time. Most of...
    Michaelme Michaelme 41-45, M 1 Response Aug 16

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    Sometimes I worry about them and their "full house" addiction
    jbm1984 jbm1984 31-35, F 1 Response Aug 15

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    If you are raised nudist then you are raised to see that the body ant just a sex object. You see it, as like, a beautiful masterpiece that comes in different races, shapes, and...
    theguywiththeredhair theguywiththeredhair 18-21, M 2 Responses Aug 15

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    Here is another article from the archives of Christian Home: ROLE MODELS FOR BOYS The male supremacists are at it again. This time their target is single mothers. Their...
    TeachingRespect TeachingRespect 51-55, F 3 Responses Aug 14

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    I loved my dog growing up, and sure it was work to take care of him, but now days I hear people talk about their dog as if raising a dog is just as much work as raising a kid...
    Jjboss2011 Jjboss2011 26-30, M 2 Responses Aug 13

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    https://www.youtube.com/watch?v=_hCXfRlxz8c&list=PLZWjhpTlxjpgA-Y8tiogmzGiKH-sbvHP1&index=4
    poiemajeremiah poiemajeremiah 36-40, M Aug 13

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    What is enlightenment ? Well its dictionary meaning is the action of being well informed abt smthg. Here i m talking abt Self. So one can say that when i got to know my self i m...
    Ohm13 Ohm13 36-40, F 2 Responses Aug 13

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    Meditation What is meditation? Why it is required? In general we think meditation is concentration, awareness or steadiness etc. Meditation is neither concentration nor...
    Ohm13 Ohm13 36-40, F 1 Response Aug 12

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    When I was a child, there was this old lady who told me to treasure my childhood because time goes by fast. Now that I think about it, it felt just like yesterday and I want to go...
    seasondiesonebyone seasondiesonebyone 16-17, F Aug 10

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    I believe that things "come into your awareness" as a potential opportunity. For example; if suddenly I am aware that how I grew up was not ok. How my parents treated me is...
    DreamChristine DreamChristine 31-35, F 3 Responses Aug 9

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    It's funny that the same parents who fear raising kids as nudists, are the same ones who have no problems letting them see all sorts of gratuitous violence on TV and in the movies...
    BLACKTIGER75 BLACKTIGER75 36-40, M 5 Responses Aug 6

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    Any single nudist mums wanna chat? Pm me
    peeguy31 peeguy31 31-35, M Aug 6

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    It has only been a little over a year that I have known that I have Hypothyroidism. I had previously had several spine and brain surgeries due to a birth defect that didn't affect...
    MSW64 MSW64 46-50, F 1 Response Aug 5

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    I have a mild chiari malformation that causes severe headaches and neck pain and also limits my dancing
    OIGirl18 OIGirl18 18-21, F Aug 5

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    My favourite time of the day, or rather, the 24-hour period we sometimes call a day. I dunno, there is just something so serene and peaceful about that time. Everything is just...
    Jugemu Jugemu 31-35, M 1 Response Aug 5

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    I'd like to meet decent people who are friendly and non-judgmental. Someone who has no trouble with introverted personalities and may also be seeking higher awareness, meaning, out...
    serenity044 serenity044 26-30, M 7 Responses Aug 4

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    Warning has cutting and possibly triggers/ Okay well in math I was doing my work while Anna was talking about how she felt sorry for this guy Richard who was cutting because he's...
    Darkprincess24 Darkprincess24 13-15, F Aug 3

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    When you are in a relationship that drains your emotions, you become a prisoner or a slave.
    softspokenman softspokenman 41-45, M 1 Response Aug 3

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    I am different I march to the beat of my own drum.
    softspokenman softspokenman 41-45, M Aug 3

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