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I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 9 People

    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

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    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

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    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

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    Related Experiences

    I'm a 53 year old female I had chiari malformation surgery on July 11th 2014. I'm still recovering my head is numb and the tips of my fingers on my right hand is numb. I get tired...
    sj112760 sj112760 51-55 Aug 8

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    Srimission is an N.G.O,social service organization, doing service to the entire humanity of preaching “ART OF AWARENESS LIVING”. Art of awareness living is nothing but guiding...
    srimission srimission 61-65, M Aug 14

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    Daily awareness thought for excellence by SRIMISSION Prospective cautions from real stories. Everyone thought will save and secure hundreds of lives daily somewhere in the world...
    srimission srimission 61-65, M 2 days ago

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    Daily awareness thought for excellence by SRIMISSION Prospective cautions from real stories. Everyone thought will save and secure hundreds of lives daily somewhere in the world...
    srimission srimission 61-65, M 2 days ago

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    Was a single mom raising two beautiful boys & dealing with a deadbeat dad!! Now my 19 son leaves home to live with dad!!😢very disrespectful towards me his mom... I think he's...
    drycleaners drycleaners 46-50, F Aug 15

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    I have a disability, a mental one. And some people may think that I'm a bit arrogant or obsessive. That I care too much for people with the same disability because they are 'just...
    CheeseBomb500 CheeseBomb500 13-15, M 3 Responses Aug 3

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    Why are some people so messed up about autism? You know people with autism don't understand social situations, why get mad at them when they make a social mistake?. Like it's easy...
    Ameliaaaa Ameliaaaa 26-30, F 1 Response Aug 9

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    Be happy as I am and stop talking, I'm tired of trying to live up to society's expectations when my efforts are not good enough! Besides most of the world live to please them selfs...
    Ameliaaaa Ameliaaaa 26-30, F 8 Responses Aug 10

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    Join the society! EPZeus is a programmer I think who does a lot of work for EP (I hope). For example, he posted the first title-less story! Check his profile, it's true! Anyway, I...
    InternationalDarkness InternationalDarkness 13-15, F 5 Responses Aug 16

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    Hands off our smalls! (part 2) http://www.cbc.ca/news/world/russia-s-underwear-trade-ban-incites-panty-protests-1.2541062 It is good to know that when the Russian parliament is...
    bethturner bethturner 26-30, F 2 Responses 3 days ago

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    When I'm on EP there are some who object to others who they are calling out to be fakes, then there are others who also remark that outwardy appearance doesn't really matter. J...
    ValR ValR 41-45, F 2 Responses 3 days ago

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    Hoping you will move out of my MIND!
    MzPhoenix MzPhoenix 31-35, F 6 Responses Jul 29

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    So, if you have read my profile my mother was murdered in 1992. I am trying to raise money for a small headstone to represent her life as my grandparents and family didn't have...
    SoberJessica SoberJessica 31-35, F 1 Response Aug 5

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    For humans to be happy and generous, they must feel trusted. No-one is happy if they feel their good intentions are constantly denied, questioned. Of course good intentions are not...
    EarthlingWise EarthlingWise 41-45 5 Responses Aug 6

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    I have recently been selected to serve for Americorp is Memphis, TN. I will be working with ex offenders, helping them reenter society. I will help them create small businesses and...
    BClements BClements 22-25, F Aug 12

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    I have 4 children, aged 3, 7, 8 and 10 and I feel like all I do is argue with them! My 10 year old back chats, is defiant, blames everyone else for his actions, lies, sneaks around...
    mummagoincrazy mummagoincrazy 31-35, F 2 Responses Aug 15

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    Depressed!!! After doing so much as a single mom for my son he then decides to leave me & live with his dad...😓
    drycleaners drycleaners 46-50, F 2 Responses Aug 15

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    I did the ALS Ice Bucket Challenge today and I am damn proud of it too! I didn't do it because of the fad. I did it because I truly care about raising awareness of (ALS). Anyways...
    agathashelly agathashelly 26-30, F 1 day ago

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    Hello, I am writing from a production company based in London, UK. My team and I are creating a documentary to create greater awareness around blood borne diseases and tackle...
    BespokeProductions BespokeProductions 22-25, F 1 Response 18 hrs ago

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    "The ocean at Mombasa is as blue like a cornflower,and, outdoors the inlet on the harbour, the lengthy breakers in the Indian Ocean draw a skinny crooked white line, and give out a...
    David1112yik4 David1112yik4 31-35, M 15 hrs ago

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    I was rejected. This is hard for me to accept, let alone write a story about. But I guess awareness and acceptance are both ingredients to overcome this, to which I have vowed to...
    adjustedfocus adjustedfocus 31-35 1 Response 12 hrs ago

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    I honestly cried when I heard of his death. Such sadness over whelmed me. I've never been a fan for anyone else besides him and Steve carrell. He was my favorite actor and I posted...
    morgan2054 morgan2054 18-21, F 12 hrs ago

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    I do not need you to comment or rate my attractiveness. I am far above calling myself 'ugly' in prying desperation for an opposing compliment. I have never proclaimed to be a draw...
    YouMayWorshipMyFeet YouMayWorshipMyFeet 22-25, F 2 Responses 7 hrs ago

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    Recently i've been growing, shifting into a fuller or higher awareness or understanding of alot of aspects of my life. Reoccurring images of a past life are showing up more and...
    summerdaniella summerdaniella 18-21, F 4 hrs ago

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    Today was a tough day. I went in for a really great on campus job. The job not only paid a little but it also involved in raising community awareness and educating my peers. The...
    enlightenyoursoul enlightenyoursoul 26-30, F 1 Response Aug 15

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    Why Did We Get Married? - My STBX continues to struggle with my decision to divorce him, yet my conviction to break free grows stronger everyday since I triggered our divorce...
    CherishMe2 CherishMe2 51-55, F 18 Responses Aug 17

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    ENVIRONMENTAL, INC. can make offered the expertise and capabilities of our specialists and subcontractors frequently on an assignment or per challenge foundation, where a person...
    Lyndoni8 Lyndoni8 31-35, M 1 Response Aug 19

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    I have been married for 10 years, together for 14. My husband and I have two children together. Almost our entire relationship he has worked two jobs, almost never home and even...
    dragonflydreams dragonflydreams 26-30, F 1 Response 13 hrs ago

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    Things that I'm passionate about... My boys. They are my true heart and soul. Of all the things I've done in my life, raising them, knowing them and learning from them has made me...
    Indigolesbian70 Indigolesbian70 41-45, F 1 Response 12 hrs ago

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    Things that I'm passionate about... My boys. They are my true heart and soul. Of all the things I've done in my life, raising them, knowing them and learning from them has made me...
    Indigolesbian70 Indigolesbian70 41-45, F 2 Responses 12 hrs ago

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    HAPPY ANNIVERSARY!!!! To my amazing mom and dad:) you guys have done a great job raising your kids and we all love you very much:) Wish I was able to celebrate with you guys but I...
    BlondyBabe BlondyBabe 22-25, F 1 Response 9 hrs ago

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    This is fairly long. And true as I can recall. As I wrote it many of the things I lived connected with this bit of autobiography reminded me of other material I need to make time...
    givupardey givupardey 56-60, M 5 hrs ago

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    My parents say there at the end of there wicket. I've put them through enough, but I don't know how to improve because I keep ruining things again. They don't deserve this, I've...
    wei1ner wei1ner 13-15, F 4 Responses 4 hrs ago

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    I know there are people that will disagree with me but it is how I feel. I am 49 years old but never looked my age. I have always looked at least 10 years younger which always...
    NoOneImportantNow NoOneImportantNow 46-50, M 1 Response 4 hrs ago

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    I've been trying to understand consciousness and awareness, because I am certain there is a difference. I was having trouble but then something came to me that seemed to make...
    PurpleGlassPalace PurpleGlassPalace 26-30 1 Response Aug 4

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    In eighth grade, I got what I thought was my first crush. It was on a guy, so I had no reason to believe I was outside of the norm. Basically, my fantasies included reading in the...
    TheOneWhoNose TheOneWhoNose 13-15, F 1 Response Aug 15

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    Obviously this doesn't apply to everyone out there, but seriously? Recently, everywhere I turn I see posts about the ice bucket challenge. Yes, I think it's amazing that people are...
    whassupoldlady whassupoldlady 16-17, F 1 Response Aug 19

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    When your raising you kids to me the raising stops when they graduate & be on their own.. Thats the time for you to sit back and watch & see if you failed or not raising them.!
    HeyyBarkerr HeyyBarkerr 18-21, F 3 Responses 3 days ago

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    I have PCOS. There's not a lot of awareness for it and I've noticed that PCOS is different for every girl/woman who suffers from it. I feel like a lot of women are embarrassed to...
    Bird488 Bird488 26-30, F 1 Response Aug 1

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    Okay. not a Funeral one. But a Persuasive one. I'm worried to death it is not good enough. On why 'Freedom Of Speech' shouldn't be used for Negative purposes. I don't know if I...
    InnerEgo InnerEgo 13-15, F 1 Response Aug 10

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    Steampunk clothing hasn't been extra preferred in Australia and New Zealand, and world wide. In fact, steampunk by itself is every one of the rage at the moment. It is really in...
    Joshua603a4yn8 Joshua603a4yn8 31-35, M 1 Response Aug 14

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