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I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 10 People

    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

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    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

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    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

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    Related Experiences

    I have two Autistic children in my circle of friends and those two little boys mean the world to me. I don't know if this is correct grammar but one is mildly severe, he is 15...
    youniqueviatia youniqueviatia 31-35, F Apr 5

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    Like many mental health issues, eating disorders are simply not recognized as severe public health problems and carries a great stigma. But there is POWER in collective...
    MSWatUSC MSWatUSC 22-25, F 6 days ago

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    I really didn't have an awareness of my heart until I was 26. I repressed everything and didn't really share anything about myself, nor care to look into who I was. It was what I...
    Wbyogimaso Wbyogimaso 26-30, M 1 day ago

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    I think it already has much awareness. It doesn't really need much more. It sucks though! <3
    SoftNappy SoftNappy 13-15, M 1 Response Mar 24

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    April 2nd is World Autism Awareness Day.
    Kman4You Kman4You 36-40, M Apr 1

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    Light it up blue peeps! Autistic awareness day xx
    butterflywings00001 butterflywings00001 31-35, F Apr 2

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    I don't know if there is an awareness day for autism. Either way I support as I am mildly autistic myself.
    Profweird Profweird 22-25, M 4 Responses Apr 4

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    i support autism AWARENESS but i dont support the *** hats who think it should be cured or treated like a crippling disability. autistic people are wonderful the way they are and...
    kinkystapler kinkystapler 18-21, F 2 Responses 6 days ago

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    I am going to start this as my first post on this website because it is what made me become the person who I am today. I have autism. I was diganosed when I was about three...
    RainbowMind RainbowMind 16-17, T 2 Responses Mar 23

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    These last couple of days have been the worst of my life, I found a lump in my underarm, I was worried but enough to go to the doc, but not that much. Cancer goes in my family, but...
    lily449 lily449 18-21, F 1 Response Mar 27

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    An update!! http://bipolar2medstudent.blogspot.com/2015/03/update.html
    lily449 lily449 18-21, F 1 Response Mar 29

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    Actually I believe equality should go both ways. The social construct that boys must adhere to the rough and tumble, as well as the allowance of girls legitimacy into those things...
    MrsJoanieBNH MrsJoanieBNH 56-60, T 8 Responses Mar 20

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    Just FYI, wetsec is a fake profile. Idk this person's motive but be careful when talking to her or to any stranger online. The pic the profile used in the message to me can be...
    Allforaview Allforaview 18-21, F 1 Response Mar 26

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    today the 15 year old asked if I would let her get a nose ring, of course my answer is "no"...I told her when she is 18 she is free to put as many holes in her head as she wishes...
    jbm1984 jbm1984 31-35, F 3 Responses Mar 30

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    moment of dread #6556: my husband asked his daughter what she wanted for her 13th birthday...she told him she wanted ..... make-up ... guess we can't buy her polly pockets anymore
    jbm1984 jbm1984 31-35, F Apr 4

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    parenting hack #6578: when talking to teenage girls about boys...just start saying the lyrics to "no scrubs" ... this will surely make them understand about the opposite gender.
    jbm1984 jbm1984 31-35, F 1 Response Apr 6

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    Was married for 11years most of other was gone military. I staid faithful to him while he was gone. But while I was gone from him he wasn't. We have three great kids which now don...
    Countrymomsd Countrymomsd 36-40, F 7 hrs ago

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    WHO DIES? According to Venkataraman (soon to be known as Sri Bhagavan Ramana Maharshi), at age 16, he initiated a process of self-enquiry that culminated, within a few minutes, in...
    thatwhichsees thatwhichsees 26-30, M Mar 29

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    something happened, trapped, almost, holding my breath, feels so close but if we take memory as ‘real’, past as an indicator of what might happen in the future, it will...
    thatwhichsees thatwhichsees 26-30, M Mar 29

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    Today , i choose awareness. I choose to be aware of the beauty of life and living. I choose to be aware of the simple pleasures in life. I choose awareness of joy, awareness of...
    Zelaleme Zelaleme 46-50, F Mar 21

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    Whatsoever you do, do it with deep alertness; then even small things become sacred. Then cooking or cleaning become sacred; they become worship. It is not a question of what you...
    nudemom nudemom 31-35, F 1 Response a week ago

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    I function properly if I don't dream My family has been in chaos for 10 years. I have become a second mother to my two autistic brothers and an exhausted, overworked mother. I...
    BrainLoading BrainLoading 18-21, F a week ago

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    Up down spinning all around Fly high falling to the ground Sometimes dreams can feel so far away Time keeps skipping out a beat Left right tripping on your feet Life is like a...
    blankcheck4urhart blankcheck4urhart 36-40, F Mar 20

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    Ba, I'm sorry. Sorry for everything. Ever since you got full custody of me at the age of 12, I've been giving you such a hard time. I was close to you before all that. I was "daddy...
    SweetRose22 SweetRose22 22-25, F 1 Response Mar 25

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    Do you ever get one of those weeks you wonder why did this happen to me? For me it started on Easter Sunday. I raise chickens and ducks. Most people in the area buy their eggs...
    yooper01 yooper01 56-60, F 2 Responses 2 days ago

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    "Once in India I was traveling in a car. There was a chauffeur driving and I was sitting beside him. There were three gentlemen behind discussing awareness, and unfortunately at...
    JAFO8 JAFO8 26-30, M Apr 6

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    The amazing Sufi poet called Rumi once said that “Love cannot be described. It must be tasted”. He said these words over 700 years ago, yet people still spend time and energy...
    nudemom nudemom 31-35, F 3 Responses Apr 6

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    April is Sexual Assault Awareness and Prevention month i want to do something to raise awareness but i don't know what it has to be something that won't involve much planning or...
    mylife1998 mylife1998 16-17, F 1 Response Apr 8

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    Ok, I stopped what I was doing just now, to put this down. I had taken notes on this a very long while ago. Now I'm at a point where I fully grasp what it means and how differently...
    Injoy1767 Injoy1767 46-50, F 6 Responses Apr 8

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    I recently started therapy for self-esteem issues that I should have sought help for many years ago. What started as a journey of self discovery has opened my eyes to the...
    ludix ludix 41-45, M 3 Responses Apr 9

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    I have been in counseling since I was 8 for these problems, I like to call them episodes where all of a sudden extreme emotion and sadness comes over me almost like a physical pain...
    goldfishcrackers123 goldfishcrackers123 18-21, F Apr 10

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    “Kindness and awareness work together. Through awareness we understand the underlying beauty of everything and every being.”
    rescueme99 rescueme99 41-45 6 days ago

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    I'm still alive... It's been 2 months since I shared my experience about being vamp. It's been a pretty rough time, and I've had a lot going on. Working 6 days a week and taking...
    BlackRaven2015 BlackRaven2015 31-35, M 2 Responses 4 days ago

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    hi guys. is anyone obsessed with the life and death concept? my mind is filled with circulating questions I know will never be answered. the thought of a consciousness or awareness...
    diefok diefok 22-25, M 3 Responses 4 days ago

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    Mama~ That's what I wanted more than anything in this world... Was to have someone that I could hold and love and I knew would always be mine... I'm sitting here tonight looking...
    SleepyPrincessK SleepyPrincessK 31-35, F 2 Responses Apr 2

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    LOVE THIS SONG!!! http://youtu.be/Tw0DVp71zAU I'm not happy Feeling low It's so hard these days to play my cards right It's about time To start the show I got tickets for my...
    HotMessExpress101 HotMessExpress101 31-35, F 2 Responses Apr 4