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I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 10 People

    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

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    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

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    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

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    Related Experiences

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    Dandelionsblowinginthewind Dandelionsblowinginthewind 41-45, F May 4

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    This title says it all, really :)
    Taurusedi Taurusedi 31-35, M 1 Response May 10

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    Parenting thoughts #4642: I wish there was a "rolling eyes" emoticon or "gag me with a spoon" emoticon so I can freely use it whenever I see my niece's boyfriends comments on FB...
    jbm1984 jbm1984 31-35, F Apr 25

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    i have a 6 year old that i think is getting out of control he throws fits to get his way he tries to hit me and screams at me he wont do his home work and he got a note sent home...
    beavers6 beavers6 36-40, F 4 Responses May 12

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    parents who let teens drink at their house! INFURIATING. I thought I only had to worry about bad influence kids, not the "cool mom". anyone run into this kind of crap?
    amydextrous1 amydextrous1 41-45, F a week ago

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    it kinda urks me when I get home and they are already in bed taking a "nap" ..must be hard going to school for less than 6 hours...
    jbm1984 jbm1984 31-35, F 1 Response 3 days ago

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    Our grandson got home from school and told me we needed to talk. He was standing there with his chin on his chest looking down and his shoes. Then he told me I needed to be at his...
    marriedup marriedup 56-60, M 1 Response 2 days ago

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    My son is bilingual. On weekends, we used to do Spanish ONLY. But we have moved away from that as he's become more involved in sports and activities that require English. Now we...
    BGethrogan BGethrogan 31-35, F 1 day ago

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    After a nearly decade in politics, Brandon Brice has decided to help veterans, school reformers, and small business owners through his work in media. As a 19 year-old college...
    brandonbrice brandonbrice 41-45, M Apr 24

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    This link gave me hope and later bought the book written by Dr Kevin White. Recommend reading this book if you know someone close with fibromyaglia, or are a sufferer yourself...
    debbie913 debbie913 31-35, F 1 Response Apr 26

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    ⌂ Home Debbie Avatar Debbie ⚙ Forgive my spelling errors (was very hard to write) Also forgive how long winded this is, but fellow FM sufferers can relate to how...
    debbie913 debbie913 31-35, F 1 Response Apr 26

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    Tracii Show is a very hard-working and dedicated entrepreneur with more than two decades of experience in the entertainment and services industry. Started her career as a model in...
    stepenjovs stepenjovs 31-35, M May 6

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    Go check out this website: http://greatnonprofits.org/org/p-luna-foundation. The P. Luna Foundation focuses on fighting against and raising awareness of male abuse. Right now we...
    CoriWilson CoriWilson 18-21 2 days ago

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    What has been going on in my life over the past couple of years....a lot. Being a single father, raising a ( teenage ) daughter, life has had its moments. I remember with fond...
    free2bare free2bare 51-55, M 4 Responses 5 hrs ago

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    Hi I go by fruitypunch on here.I would like to vent a little bit and share personal experience.Well I hate being Ignored by everyone that cares about me.I am Ignored by my cousin...
    Fruitypunch15 Fruitypunch15 31-35 1 Response 4 hrs ago

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    Life has to be the greatest gift that humans have, and on top of this, our awareness multiplies every wealth. Ironically, sleep and patience is how we got to this point: as babies...
    Taurusedi Taurusedi 31-35, M Apr 26

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    How to Quiet the Mind - By Gina Lake The mind is a wonderful tool for thinking, but it has a dark side. There is an aspect of the mind that is not useful but pretends to be...
    imurfriend imurfriend 26-30, F May 2

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    Control...Letting the Curves Take You...The answer to control is practicing surrender.Trying to maintain control in this life is a bit like trying to maintain control on a roller...
    anghel77 anghel77 36-40, F Apr 27

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    In my adventurous soul-searching labyrinth, I’m following the leads of transforming my shadows into light with much devotion and focus, for the sake of ease and peace. I imagine...
    Injoy1767 Injoy1767 46-50, F 1 Response May 4

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    Contemplation You are not what you do. You are not what you don’t do. You are not the job title. You are not a labeled societal sub group. You are not your personality; You...
    Femmeheartsoul Femmeheartsoul 36-40, F May 13

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    Your Needs and Our Offerings: A one stop solution at SRV Media Today your business booming with hefty sensex points and tomorrow a bang, if your competitor creates an easy to use...
    srvmedia srvmedia 18-21, M May 16

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    I'm reading this book that's talking about intelligence in dolphins and apes and they're specifically mentioning the self-awareness test, where they find out through various...
    PinkMellow PinkMellow 18-21, F 1 Response a week ago

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    This is a video I made about my TN experience: http://ireport.cnn.com/docs/DOC-1032817 (and also https://www.youtube.com/watch?v=R12rJd7BlvU re;ated to my medical misadventure(s...
    leejcaroll leejcaroll 56-60 20 hrs ago

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    Happy Mothers Day to all mothers!!! A much more special Happy Day to men out there like my Father raising children on their own without the help of a parent. A mother is given the...
    EyeDontGiveAHoot EyeDontGiveAHoot 36-40, F May 10

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    No onw who reaches the level of higher awareness and has a chill and happy relationship with cigarettes like me and people like me have, we love smoking as much as we want and know...
    smokingrocks1 smokingrocks1 56-60, M 1 Response Apr 24

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    I am currently writing a play am looking for help from anyone who would be willing to share their story with me. I was hoping someone could share their coming out story with me if...
    Kayceyy Kayceyy 16-17, F 1 Response Apr 24

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    It's been roughly a year since I chose to terminate the life of what could've been my child. For the most part, I've accepted my decision and gotten over the feelings of guilt and...
    dmr0212 dmr0212 18-21, F 7 Responses Apr 25

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    I woke up this morning with an awareness of how hard I am on my self. And I decided to change that and a couple hours later I got into a situation where I would normally lay it on...
    Wbyogimaso Wbyogimaso 26-30, M 1 Response Apr 25

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    Self-awareness is such a pain in the ***.
    shadowx1224 shadowx1224 22-25, M 2 Responses Apr 26

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    Ever since my family moved from their countries in Africa, they have came to the USA to settle and now it has been 16 years. I have been here for 16 years and here is my...
    SpiritualStoner SpiritualStoner 16-17, M 2 Responses Apr 26

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    Awareness is so important. I was hiking along this river today, it's a pretty dangerous hike and if your not paying attention you can easily fall to your death. Well I came across...
    Wbyogimaso Wbyogimaso 26-30, M Apr 26

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    its kinda funny, all sophomores have to go to a suicide prevention/awareness thing, which is going to make me miss a class of French which I'm struggling in. so they're making me...
    ablonddude ablonddude 16-17, M Apr 27

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    I am trying to promote Constitutional awareness for those who may not understand that your have rights in this country. They are not privileges, they are rights! Please share and...
    oconchobhair oconchobhair 26-30, M Apr 27

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    I bless you with the awareness of God's presence. I bless you with the great joy that comes from experiencing the presence of God, sensing Him watching over your life. I bless you...
    kayblue kayblue 36-40, F Apr 28

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    In some ways, the urban atmosphere grew to become a lens through which communities re-evaluated their very own connection with the town, the effect of urbanization in a global...
    Michael0962opo3 Michael0962opo3 31-35, M 1 Response Apr 28

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    Prayers for the Supreme Court Case on Redefinition of Marriage I believe, according to the Supreme Court website, that the oral arguments on whether the Court will ban states from...
    conceptualclarity conceptualclarity 51-55, M 5 Responses Apr 28