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I Am Raising Awareness of Chiari Malformation

Chiari Malformation Support, Awareness and Research 10 People

    My Chiari Story

    My Chiari Story I was diagnosed with Chiari Malformation type1 in 1999 aged 19. I had suffered with headaches for a number of years before my diagnosis which were considered to be migraines, my Mum also has Chiari but we were told as 'Chiari isn't hereditary' there was no...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Plinthed!

    Plinthed! After setting off at 6am on a grey Saturday morning I arrived in London at 9.45am, 15 minutes later than I was due at the One & Other offices, I was panicking about being late and not having remembered to take the emergency contact number with me until I received...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Just Diagnosed With Chiari 1

    I was just finally told last week that the cause of my symptoms is an 8mm Chiari 1 malformation. However, I was then also told that it could not possibly cause the slurred speech, brain fog, short term memory loss, confusion or weakness/stumbling in my left foot...Interesting...
    shydrangea shydrangea 36-40, F 1 Response Dec 19, 2011

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    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom 22-25, F Nov 11, 2011

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    Chiari Awareness On the 4th Plinth

    Chiari Awareness on the 4th Plinth On August 15th 2009 from 11am-12noon I will be standing on the fourth plinth in Trafalgar Square, London as part of Antony Gormley's One & Other project www.oneandother.co.uk. It all started when I received this email...
    Cymraes79 Cymraes79 26-30, F Sep 24, 2009

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    Nadia's Chiari 1 Malformation

    My story begins when I was fourteen years old which is a guess at best. This is when the vomiting started. I was 17 when the misdiagnosis of the vomiting started. The dizzy spells also started when I was nineteen. I have had a weird history of headaches that are not painful...
    nsalem nsalem 31-35 3 Responses Sep 18, 2011

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    Related Experiences

    Me and my boyfriend have been togethor for 2 years now. We have a blended famity, me with my 4 kids to a previous marriage and him to a previous relationship. The mother to his...
    Bevynn11 Bevynn11 31-35, F 1 hr ago

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    If I close my eyes, I can hear the distant strain of his beloved piano piece Pachebel in canon D....it comforts me to know he is there. I look out at the azure sky and think of...
    FalconsLair FalconsLair 70+, M 3 Responses 2 hrs ago

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    My daughter signed them over march 27 she does not call any more. Beautiful children that I am raising.
    wolfeeegirl wolfeeegirl 41-45, F 5 hrs ago

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    you remember those family reunions ? and all the parents exchanged how they raising their kids, like its a competition. oh how i hated it when my mum announced that i had gotten...
    AllSilence AllSilence 18-21, F 8 Responses 5 hrs ago

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    Today makes six months, a full half a year, since I threw away my razors. I did make a mistake, shortly after I got in a wreck and didn't know how to deal with the aftermath of...
    SunnysBlueForever SunnysBlueForever 18-21, F 2 Responses 8 hrs ago

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    I do not have the power or conversational prowess to convince other people to stop caring about how other people are living. But I do have the power to ensure that my son will grow...
    ChemicalMouse ChemicalMouse 26-30, F 9 hrs ago

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    Sharing is loving : D 10 practical tips to start being more mindful right now Take a couple of minutes to notice your breathing. Sense the flow of the breath, the rise and fall of...
    littlelittlepooky littlelittlepooky 22-25, F 1 Response 10 hrs ago

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    I really need to get this off my chest oMG I don't even know where to start so my mom has been addicted to drugs my whole life I was her first born and she had my brother then she...
    LuvLostSoul LuvLostSoul 26-30, F 1 Response 11 hrs ago

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    People become dependent on it to make themselves feel good. It Leads to the need for stronger amounts ( those little bottles of higher levels sold everywhere ) You need it to wake...
    knightedone1 knightedone1 41-45, M 1 Response 12 hrs ago

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    There is seriously no cure for stupid... This is our first year raising chickens and my kids have loved every minute of it. We live in a small area with very few homes, farm land...
    HotMessExpress101 HotMessExpress101 31-35, F 18 Responses 13 hrs ago

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    I'm a virgin and proud of it. While most girls my age are raising kids,I'm studying so I can get a good job.
    kristykums kristykums 18-21, F 8 Responses 15 hrs ago

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    i want to share my story. haha. My Mom left my dad when she was pregnant with me. My mother told me, she leaved my dad because my dad still studying that time. When I was born, she...
    hawkeye000027 hawkeye000027 22-25, M 2 Responses 16 hrs ago

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    It's like this invisible force field that's wrapped around me that no one else can see, feel, touch...but I can. It keeps me from speaking out. It keeps me from raising my hand...
    ShyButterfly04 ShyButterfly04 26-30, F 20 hrs ago

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    Walking the dog or trail riding a horse. It puts me in a state were I'm one with the creatures. Also playing guitar or listening to music deeply.
    equusrider equusrider 56-60, M 1 Response 1 day ago

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    7 Habits that will help your child become bilingual Raising bilingual children starts with a few small steps, a few minutes per day. It should not be overwhelming. We are all busy...
    underconstruction underconstruction 41-45, F 3 Responses 1 day ago

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    Dating a D-bag #939: So my 16 year old has this boyfriend who is a total d-bag. I don't trust that kid one bit, met him once and immediately did not like him. He was 'dating' her...
    jbm1984 jbm1984 31-35, F 1 Response 2 days ago

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    I got a few breast kits for the women in my life. After my aunt passed away, I believe women should check themselves often and early detection can make all the difference. Get one...
    PlexusSlimChick PlexusSlimChick 22-25, F 1 Response 2 days ago

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    dreaded summer 2015: thanks for ruining my blissful week by going into my room and using your confiscated phones and then act like we won't find out that you were using your phones...
    jbm1984 jbm1984 31-35, F 1 Response 3 days ago

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    One of the best article I came across ... Do you often engage in conversations with your narcissist that leave you feeling like you were talking to a brick wall or worse, maybe...
    koh72 koh72 41-45, M 8 Responses 3 days ago

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    I became a widow at 29 years young. I lost the love of my life on Sept. 24, 2014 after he fought so hard for six months to heal from a severe brain bleed in his right frontal lobe...
    MarleighJane MarleighJane 26-30, F 5 Responses 4 days ago

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    I am the youngest of six girls. When I was 3 months old my dad disappeared I have never met him face to face in my life and never will. I've only talked to him on the phone two or...
    KristanDanyelle KristanDanyelle 26-30, F 7 Responses 5 days ago

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    Hi! I am a mother raising 2 young sons, 2 preteenagers that are twin girls and 2 more daughters one is two almost 3 and the other is my step daughter who Is 8 yrs old. I want to...
    MemesMama MemesMama 26-30, F 6 days ago

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    profound realization #570: I realize that kids will make stupid choices in life...it's what they do and as an adult I guess it's my job to enforce and make sure that they learn...
    jbm1984 jbm1984 31-35, F 2 Responses a week ago

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    I have read this article online and thought it might help somebody. I myself suffer from this amazing thing called depression and I feel that I am not safe and not comfortable with...
    listenup listenup 26-30, M 1 Response Jun 25

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    Today, while talking to a co worker about chickens he was raising, we jumped from chicken raising, to Silence of the Lams, to the French military, to yellow jackets, to the Beach...
    BillMyRoom BillMyRoom 18-21, M 2 Responses Jun 24

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    I was a divorced single mother of one when I met my current husband. From all appearances he was very responsible, had goals, wanted a family and loved my child as his own. He...
    Trapped4toolong Trapped4toolong 46-50, F 5 Responses Jun 24

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    So... I'm new here... Has anybody out there actually experienced a true narcissistic relationship? I am a licensed practitioner of mental health, I know, I know... But I am...
    journeyhome3 journeyhome3 46-50, F 1 Response Jun 23

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    I was sitting on the patio while my brothers were BBQing. My parents were going to be late tonight. My brothers were talking about some girls on the cheer team. "Chelsea is...
    Ginger1313 Ginger1313 13-15, F 1 Response Jun 21

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    A big help in transforming a boy into a girl is the testosterone blocker cypreterone acetate. You can google it to find out more. Once the boy has his testosterone reduced he will...
    TeachingRespect TeachingRespect 51-55, F 1 Response Jun 19

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    No matter what it always cheers me up. If you haven't watched it you should give it a try. :)
    katariffik katariffik 31-35, F Jun 19

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    I like the fact that teens think that "adults are stupid"...little do they know I got their "tricks" figured out
    jbm1984 jbm1984 31-35, F 1 Response Jun 16

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    I'm raising my teenage half-sister. We have the same father, & different mothers. Our father is a drug addict, & so is her mother. I was raised by an amazing, loving, devoted...
    sistermom sistermom 41-45, F Jun 15

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    I got a few breast kits for the women in my life. After my aunt passed away, I believe women should check themselves often and early detection can make all the difference. Get one...
    PlexusSlimChick PlexusSlimChick 22-25, F Jun 15

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    I got a few breast kits for the women in my life. After my aunt passed away, I believe women should check themselves often and early detection can make all the difference. Get one...
    PlexusSlimChick PlexusSlimChick 22-25, F Jun 15

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    I don't think it's right forcing a baby to be one gender or the other. I don't think it right to say a person can't do something or another because of gender. The only things...
    Maybeincubus Maybeincubus 22-25, M Jun 15