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I Am Waiting For a Liver Transplant

Personal Stories, Advice, and Support 42 People

    Our daughter who just turned 20 was diagnosed

    with Wilson’s Disease at the age of 5. When she was 17 years old she wasn’t feeling well and was taken to see specialists. We live in a rural area 2 hours away from the hospital. After consulting with the pediatric specialists at the children’s hospital, the decision...
    rckdarnell rckdarnell 56-60, M 2 Responses Jan 13, 2014

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    It Saved My Moms Life

    my mom was diagnosed with hep c with cirrhosis. in 2008 she got really sick, i was 20 then. the local hospitals would not do anything to help her, then we found out about the mayo clinic in jacksonville florida. we got my mom there as soon as we could once we got there she spent...
    anonymus1109 anonymus1109 22-25 2 Responses Jan 18, 2012

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    Don't Know For Sure Yet

     We got the call from UCSF on Sunday that they wanted previous test images for the tumor board. We sent everything overnight and had a new CT from chest to groin, now we're just waiting until Tuesday's outcome.  We don't even know if my husband will be put on the list...
    YosoyRosa YosoyRosa 41-45 3 Responses Sep 27, 2008

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    On The List!!!

    I am 25 yrs old and have had a life marked and shaped by illness. I was born with Porphyria, a hereditary disease which causes severe photosensitivity (all UV light creates physical pain when it hits the skin) and leads to liver disease. By 18months old my liver function was...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 1, 2010

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    Success At Last And Talk To A Guy Who Had A Liver Transplant

    I was diagnosed with hep c in 94, but seeing as I didn't drink or engage in other high risk activities I basically ignored it. I started getting regular blood work in 2000 and the liver enzymes started going up, I finally went to a gastro guy in 2006 and he told me I was high and...
    heygee67 heygee67 61-65 Jul 21, 2013

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    Waiting Patiently, Lol.

    I have had hep c since before they called it hep c. I was diagnosed in 1989 and monitored it off and on until April of 2011. I knew the treatment was not easy so I continued to put it off the last few years. Funny how God and the Universe work but last March I met a guy skiing...
    skiier skiier 56-60 Dec 19, 2011

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    Finally.....

    Sorry I haven't been with you for a while, but I finally got my liver transplant!!! YAY!!! My new liver was quite a bit larger than my other one, but has taken a liking to my body (knock on wood). I had my transplant on April 3rd and am doing quite well. Lots of meds though...
    lowplt lowplt 36-40 1 Response Apr 25, 2013

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    I Wanto To Be A Liver Donor.

    My name is Ricardo Antor, blood type -   O POSITIVE,  - which from what I know it make me almost an universal donor.   I am sorry to intrude, but I would like to be a liver donor. Hoppe I can help.   I am a caucasian spanish male from Venezuela, 48...
    v8s50vqgu8 v8s50vqgu8 41-45 1 Response May 20, 2010

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    Received A Liver In 1993

    I have been searching for a forum like this. It is my desire to provide and get support from people that have been touched my organ donation in some way. I needed a liver transplant after being diagnosed with Hep in 1993. I believe I contracted in from contagious blood while...
    Gene929 Gene929 41-45, F May 21, 2012

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    Liverserum, Waiting For A Liver, Meld 19 And Hep C

     I've fust recently been listed in New England and am thinking about getting listed in Inide. Does anyone have experience with that? Also, I'm working on a manuscript for a book about my experience with Hep C, the medical system and how I got here. Please check it out at www...
    liverserum liverserum 46-50 Aug 15, 2011

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    Finally Im On "stand By"

    im 29 married with 2 girls 7 and 2 and was born with hep c. i found out when i was in high school trying to donate blood to the redcross realized i had hep c. i have had a few biopsies and numerous liver labs done and was told i was fine check back infive years. 1 year later 6...
    livin42day livin42day 26-30, F 7 Responses Nov 24, 2009

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    My Husband Is Waiting For A Liver Transplant

    My husband is a Viet Nam veteran, & a victim of Agent Orange. He has been on the list for a liver transplant to save his life, but we were recently told that Washington, DC who makes the final determination, declined him as a candidate for transplant, because of a small blockage...
    Shelbysue Shelbysue 56-60 3 Responses Jun 9, 2010

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    My Mom Needs A Liver Transplant And I Want To Be Her Ltd

    My mother has had AIDS and cirrhosis of the liver for a long time now. She is 54 and I will be 27 next month. I have severe agoraphobia and trouble being alone. I want to give my mother part of my liver. I'm very scared of hospitals, leaving my city, and anesthesia, But of all...
    jessicapaulinepratt jessicapaulinepratt 26-30, F 3 Responses Mar 4, 2012

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    Finally Getting On The List

    Hi , I am 52 and I was diagnosed in 2000 with Hep C, when I did my first biopsy I had fatty liver, I was pretty stunned and upset. Then around 2006 I was diagnosed with cirrhosis and the also thought I had liver cancer, which was totally devastating, but ended up not being...
    angelb2013 angelb2013 51-55, F 1 Response May 18, 2013

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    My Dad Needs A Liver ( Liver Donor Must Be A+ve, A-ve,o+ve Or O-ve)

    hi..this is Rohit. My dad needs 2 have a liver transplant surgery but we have not been able to find a potential donor with the same blood group in the family. His blood group is A+ and mine is B+. So, if anyone is in the need of a liver transplant swap, so that I can donate my...
    rohitsarewar rohitsarewar 22-25 3 Responses Aug 9, 2011

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    Made It.

    I was diagnosed with hep-c in 1993, it more than likely came from a blood transfusion back in 1980 as I do not inject or snort drugs and never was a drinker, I f smoking pot a half dozen times if that will give it to you then I am guilty. I basically ignored the hep-c until...
    snakepit456 snakepit456 61-65 Jul 16, 2013

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    1 Week Phone Call

    hi... my name is jason 33year old man. i have liver cirrosis with cancer 4.7cm..i don't have hepatitis but have iron overload problem called sidero blastic anemia.too much iron is deposited into my liver and got cancer.i can not find anyonw who has same reason as me....all...
    seungp1978 seungp1978 31-35 1 Response Aug 10, 2011

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    Don't Know How Much Longer..

    Hello, i'm 17 years old and 14 months ago my grandmother was diagnosed with stage 3 cirossis (spelling?) of the liver. She has recently been getting progressivly worse, and i feel absolutly helpless. A few days ago she was sent to the hospital for acute kidney failure and has...
    mknsymrdth123 mknsymrdth123 16-17 1 Response Jun 1, 2011

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    Waiting For A Liver Transplant

    I was diagnosed with cirrhosis in 2001. Not put on list till 2008 waiting four and a half years now. Hospitalized three time in last two years for bleeding varicies. And bad infection with ascities. Symptoms extremely bad, can't drive can't work exhausted itching always...
    jnords jnords 41-45 5 Responses Apr 26, 2012

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    Recently Put On Liver Transplant List

    hello.  i was soo happy to come across this website as i was searching for some way to connect with others who have or who are experiancing the same kind of issues i am.  i just turned 30 on 09/23/80 and was born with biliartresia which is were your bile ducts are...
    jencross jencross 26-30 4 Responses Sep 29, 2010

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    Related Experiences

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    Joshua8383gcy4 Joshua8383gcy4 31-35, M 1 Response 40 mins ago

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    “The meeting of two personalities is like the contact of two chemical substances: if there is any reaction, both are transformed.” “Everything that irritates us about others...
    Idolovemostofyourthoughts Idolovemostofyourthoughts 70+ 2 Responses 2 hrs ago

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    i want to loose it now,tired of waiting,cant wait anymore
    kashif112 kashif112 22-25, M 5 hrs ago

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    Why? Please some take a moment to read and be honest. What's the point in taking a 14 year old girls virginity, having her devote her life to you, lie, beg, and bribe for you...
    therainberry therainberry 18-21, F 1 Response 1 day ago

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    Until then, I'll be waiting
    lovleyroses lovleyroses 13-15, F 3 days ago

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    The love of my life arrived in Texas June 29th for BMT. The last thing he said was "I'm in Texas" I haven't heard from him since. I'm sure they toke his phone away before he even...
    shakursqueen shakursqueen 16-17, F 4 days ago

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    It's feeling rather unlikely given I'm a GreyRomantic and Love just Doesn't happen for me often at all, Like I'm attracted to people and I see most girls and Go "ooh She's...
    rainyraven rainyraven 31-35, T 2 Responses 4 days ago

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    Playing a script. Waiting for X to happen so that I finally can move on... say and do the next thing.. Maybe the script calls for a lover... Someone whom will be angry at me.. A...
    mirkwood86 mirkwood86 26-30, M 4 days ago

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    Im Waiting To Be Breastfed Next
    bfan78 bfan78 31-35, M 5 days ago

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    I am a 26 year old lady, currently in a relationship with a 41 year old divorcee. We have been dating for the past 6 years and I love this man with all I’ve got, he has been...
    namein namein 26-30, F 1 Response 5 days ago

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    Day 2: It's my day off. Not doing much of anything, but for comforting myself. Going swimming, and going on the motor scooter after months of waiting for the broken foot to...
    jaymepopejoy jaymepopejoy 56-60, F 4 Responses a week ago

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    Well I must say EP has been an amazing and whirlwind and at times less than perfect experience for me. I met some really awesome people, who I am proud to call my friends. I met...
    rana3434 rana3434 36-40, F 1 Response Jun 28

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    Hello, my name is Laurentiu and I'll be 18 next mounth on the 16 of july. My father abandoned me and my mom since my birth, so I grew up without the leading of a father. Since I...
    b16laurentiu b16laurentiu 16-17, M 3 Responses Jun 27

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    Hello, my name is Laurentiu and I'll be 18 next mounth on the 16 of july. My father abandoned me and my mom since my birth, so I grew up without the leading of a father. Since I...
    b16laurentiu b16laurentiu 16-17, M 2 Responses Jun 27

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    It's so awful waiting for things! time seems to go slower and things take forever to happen! :P I hate waiting for someone to call me. I hate waiting for people to get ready to go...
    Raptax231 Raptax231 18-21, M 1 Response Jun 27

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    Im 26 and have been in a relationship for about 4 years. Waiting has been really difficult which leads to frustration and anger and fights. it'll probably be another 10 years...
    Shadowbolt89 Shadowbolt89 26-30, M Jun 27

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    Keep giving evidence too us.....
    stonedalex123 stonedalex123 51-55, F Jun 25

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    He leaves today. Last night saying goodbye was so hard. I cried like a baby with each word we said. We kinda danced around the idea of it for a while but then it became time. Both...
    AllyB12 AllyB12 18-21, F 1 Response Jun 25

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    This was written by a friend. Thank you Indigo Sigh. As always you nailed it. By Indigo Sigh 1) Why don’t you tell me about it? I dislike this because he does it in such a...
    enchantress4ever2 enchantress4ever2 41-45, F 4 Responses Jun 25

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    Waiting for that special person ❤️
    adriana0102 adriana0102 16-17, F Jun 23

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    They say that every girl dreams about their prince or knight and shining armor, but I dream of someone that shows me what true love really means and I dream of him helping me grow...
    learningtobeatruechristian learningtobeatruechristian 16-17, F Jun 23

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    It is unreal how hard I've looked for other people like me online, but damn if most people like me don't keep it to themselves. I just want to find one real person who thinks how I...
    justcallmesonic justcallmesonic 16-17, M Jun 23

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    To the man I've loved like no one else I remember the day I first saw you, We were sophomores back then, I was sitting near the window staring at the door waiting for my friends...
    officialwanderer officialwanderer 18-21, F Jun 22

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