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I Am Waiting For a Liver Transplant

Personal Stories, Advice, and Support 41 People

    Recently Put On Liver Transplant List

    hello.  i was soo happy to come across this website as i was searching for some way to connect with others who have or who are experiancing the same kind of issues i am.  i just turned 30 on 09/23/80 and was born with biliartresia which is were your bile ducts are...
    jencross jencross 26-30 4 Responses Sep 29, 2010

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    1 Week Phone Call

    hi... my name is jason 33year old man. i have liver cirrosis with cancer 4.7cm..i don't have hepatitis but have iron overload problem called sidero blastic anemia.too much iron is deposited into my liver and got cancer.i can not find anyonw who has same reason as me....all...
    seungp1978 seungp1978 31-35 1 Response Aug 10, 2011

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    Finally Getting On The List

    Hi , I am 52 and I was diagnosed in 2000 with Hep C, when I did my first biopsy I had fatty liver, I was pretty stunned and upset. Then around 2006 I was diagnosed with cirrhosis and the also thought I had liver cancer, which was totally devastating, but ended up not being...
    angelb2013 angelb2013 51-55, F 1 Response May 18, 2013

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    My Mom Needs A Liver Transplant And I Want To Be Her Ltd

    My mother has had AIDS and cirrhosis of the liver for a long time now. She is 54 and I will be 27 next month. I have severe agoraphobia and trouble being alone. I want to give my mother part of my liver. I'm very scared of hospitals, leaving my city, and anesthesia, But of all...
    jessicapaulinepratt jessicapaulinepratt 26-30, F 3 Responses Mar 4, 2012

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    Waiting For A Liver Transplant

    I was diagnosed with cirrhosis in 2001. Not put on list till 2008 waiting four and a half years now. Hospitalized three time in last two years for bleeding varicies. And bad infection with ascities. Symptoms extremely bad, can't drive can't work exhausted itching always...
    jnords jnords 41-45 5 Responses Apr 26, 2012

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    Finally Im On "stand By"

    im 29 married with 2 girls 7 and 2 and was born with hep c. i found out when i was in high school trying to donate blood to the redcross realized i had hep c. i have had a few biopsies and numerous liver labs done and was told i was fine check back infive years. 1 year later 6...
    livin42day livin42day 26-30, F 7 Responses Nov 24, 2009

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    On The List!!!

    I am 25 yrs old and have had a life marked and shaped by illness. I was born with Porphyria, a hereditary disease which causes severe photosensitivity (all UV light creates physical pain when it hits the skin) and leads to liver disease. By 18months old my liver function was...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 1, 2010

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    Liverserum, Waiting For A Liver, Meld 19 And Hep C

     I've fust recently been listed in New England and am thinking about getting listed in Inide. Does anyone have experience with that? Also, I'm working on a manuscript for a book about my experience with Hep C, the medical system and how I got here. Please check it out at www...
    liverserum liverserum 46-50 Aug 15, 2011

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    Don't Know For Sure Yet

     We got the call from UCSF on Sunday that they wanted previous test images for the tumor board. We sent everything overnight and had a new CT from chest to groin, now we're just waiting until Tuesday's outcome.  We don't even know if my husband will be put on the list...
    YosoyRosa YosoyRosa 41-45 3 Responses Sep 27, 2008

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    I Wanto To Be A Liver Donor.

    My name is Ricardo Antor, blood type -   O POSITIVE,  - which from what I know it make me almost an universal donor.   I am sorry to intrude, but I would like to be a liver donor. Hoppe I can help.   I am a caucasian spanish male from Venezuela, 48...
    v8s50vqgu8 v8s50vqgu8 41-45 1 Response May 20, 2010

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    It Saved My Moms Life

    my mom was diagnosed with hep c with cirrhosis. in 2008 she got really sick, i was 20 then. the local hospitals would not do anything to help her, then we found out about the mayo clinic in jacksonville florida. we got my mom there as soon as we could once we got there she spent...
    anonymus1109 anonymus1109 22-25 2 Responses Jan 18, 2012

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    Received A Liver In 1993

    I have been searching for a forum like this. It is my desire to provide and get support from people that have been touched my organ donation in some way. I needed a liver transplant after being diagnosed with Hep in 1993. I believe I contracted in from contagious blood while...
    Gene929 Gene929 41-45, F May 21, 2012

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    Made It.

    I was diagnosed with hep-c in 1993, it more than likely came from a blood transfusion back in 1980 as I do not inject or snort drugs and never was a drinker, I f smoking pot a half dozen times if that will give it to you then I am guilty. I basically ignored the hep-c until...
    snakepit456 snakepit456 61-65 Jul 16, 2013

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    Finally.....

    Sorry I haven't been with you for a while, but I finally got my liver transplant!!! YAY!!! My new liver was quite a bit larger than my other one, but has taken a liking to my body (knock on wood). I had my transplant on April 3rd and am doing quite well. Lots of meds though...
    lowplt lowplt 36-40 1 Response Apr 25, 2013

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    Our daughter who just turned 20 was diagnosed

    with Wilson’s Disease at the age of 5. When she was 17 years old she wasn’t feeling well and was taken to see specialists. We live in a rural area 2 hours away from the hospital. After consulting with the pediatric specialists at the children’s hospital, the decision...
    rckdarnell rckdarnell 56-60, M 2 Responses Jan 13, 2014

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    My Dad Needs A Liver ( Liver Donor Must Be A+ve, A-ve,o+ve Or O-ve)

    hi..this is Rohit. My dad needs 2 have a liver transplant surgery but we have not been able to find a potential donor with the same blood group in the family. His blood group is A+ and mine is B+. So, if anyone is in the need of a liver transplant swap, so that I can donate my...
    rohitsarewar rohitsarewar 22-25 3 Responses Aug 9, 2011

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    Waiting Patiently, Lol.

    I have had hep c since before they called it hep c. I was diagnosed in 1989 and monitored it off and on until April of 2011. I knew the treatment was not easy so I continued to put it off the last few years. Funny how God and the Universe work but last March I met a guy skiing...
    skiier skiier 56-60 Dec 19, 2011

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    Success At Last And Talk To A Guy Who Had A Liver Transplant

    I was diagnosed with hep c in 94, but seeing as I didn't drink or engage in other high risk activities I basically ignored it. I started getting regular blood work in 2000 and the liver enzymes started going up, I finally went to a gastro guy in 2006 and he told me I was high and...
    heygee67 heygee67 61-65 Jul 21, 2013

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    Don't Know How Much Longer..

    Hello, i'm 17 years old and 14 months ago my grandmother was diagnosed with stage 3 cirossis (spelling?) of the liver. She has recently been getting progressivly worse, and i feel absolutly helpless. A few days ago she was sent to the hospital for acute kidney failure and has...
    mknsymrdth123 mknsymrdth123 16-17 1 Response Jun 1, 2011

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    My Husband Is Waiting For A Liver Transplant

    My husband is a Viet Nam veteran, & a victim of Agent Orange. He has been on the list for a liver transplant to save his life, but we were recently told that Washington, DC who makes the final determination, declined him as a candidate for transplant, because of a small blockage...
    Shelbysue Shelbysue 56-60 3 Responses Jun 9, 2010

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    Related Experiences

    No matter what I do to try and improve things, it ends in waiting. I'm afraid that I'll spend my whole life waiting... but I'm also afraid that if I'm not patient, I could miss out...
    PendulEmPlum PendulEmPlum 18-21, F 1 Response May 12

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    I have had many problems with this by far. Hate waiting. But if it's real and going to last I guess it will be worth it.
    space4rent space4rent 36-40, F 1 Response May 13

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    MCR, or My Chemical Romance, are following the same path as smashing pumpkins. Smashing pumpkins were together for 12 years, broke apart for 6, and got back together. 2019 would be...
    HarleyHart HarleyHart 13-15, F May 3

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    My head tells me "move on", my stubborn heart says "hold on"... *sigh* I can't enjoy life lately anymore.. this "not-knowing-what-he-really-wants" definitely doesn't help make it...
    Faith0615 Faith0615 26-30, F 2 Responses May 16

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    If you don't believe in Jesus, then I am not the woman for you.
    RealmRunner RealmRunner 22-25, F 3 Responses May 21

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    I am ugly that's y cuz idk
    ridleyswaq ridleyswaq 13-15, M May 14

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    Everytime I feel over whelmed, I always have this calming feeling deep inside. Everynight I feel an energy rest with me. In my chest. Its like someones soul connects with mine. I...
    KaeDeville KaeDeville 22-25, F 1 Response 6 days ago

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    i just cant find you no matter where i look i often call for you while looking at the moon i say often i am waiting for you on this side of the moon spent many nights talking to...
    Mdesires Mdesires 18-21, M 4 hrs ago

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    When you are waiting for that one person. The one who makes your heart race. Takes your hand gently. Erasing any trace of doubt in your mind. Waiting for the loving I looked...
    deleted deleted 26-30 1 Response May 11

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    Recently, I have had to find a rescue or a home for my neighbor's cat. My neighbor acquired the cat through a friend. She said that she was going to have her cat euthanized if...
    capehope3 capehope3 41-45 2 days ago

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    I feel like I'm on the edge of a cliff waiting for that gust of wind so I can jump. I feel very...anticipatory of something huge...perhaps it's wishful thinking
    catnip9 catnip9 36-40, F 1 Response May 19

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    People talk to me and say things I don't expect and I don't know how to respond then they seem to talk over the top and to start to get get really angry and excited. And I am told...
    AnnonymousNum3 AnnonymousNum3 22-25, F May 6

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    About a year ago , I got really drunk after receiving some bad news , I then got it into my head to sleep with a man I did not know without using protection During our encounter...
    babina8 babina8 31-35, F 1 Response May 6

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    I need to be trained. I am waiting for you
    LonesomeBuffalo LonesomeBuffalo 26-30, M May 8

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    I took the pain just to love you, but maybe it was never worth it. I hope you're not ignoring me, then I realized I'm hopeless from the start. Those late night thoughts I'm...
    kurtxxi kurtxxi 13-15, M May 8

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    I really live in a depression and a sense of always sad do not know the reason became not sleep and become not eat too much and become thinking a lot and became a hate my life and...
    Taheraz10 Taheraz10 18-21, M May 8

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    waiting for my first letter ..
    yellowtopp yellowtopp 22-25 1 Response May 11

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    So far I've sent out three letters. A lot of people have been getting letters already, so I'm just waiting for mine :)
    Katiemaryxoxo Katiemaryxoxo 16-17 1 Response May 12

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    I'm looking for a girlfriend. fun, kindness , younger , and loves anime. age between 15 - 20 I'm waiting for you honey. PM okay ??
    6moemoe9 6moemoe9 18-21, M May 15

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    This a shot story about you, true that we are two people that have never met..And it may be just in passing on the net of Ep. The date and time may not be correct that is fine...
    Keith490 Keith490 46-50, M 1 Response May 17

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    so I met up with someone yesterday from craigslist. we texted for three days prior to actually meeting up. wasn't worth it honestly. idky I keep thinking my soulmate is waiting for...
    deadgirl89 deadgirl89 22-25, F 2 Responses May 18

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    guys always flirting on me in office constantly i feel uncomfortable with my co-workers in office..they always flirting on me constantly..i tried to refused make any personal...
    myselfhere myselfhere 22-25, F May 19

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    Hey everyone! I have a recurring dream about wounds on my body. Different dream-books provide different interpretations. I don't know which one is correct. I just wanted to ask...
    AmandaKuper41 AmandaKuper41 36-40, F May 21

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