Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Am Waiting For a Liver Transplant

Personal Stories, Advice, and Support 41 People

    My Mom Needs A Liver Transplant And I Want To Be Her Ltd

    My mother has had AIDS and cirrhosis of the liver for a long time now. She is 54 and I will be 27 next month. I have severe agoraphobia and trouble being alone. I want to give my mother part of my liver. I'm very scared of hospitals, leaving my city, and anesthesia, But of all...
    jessicapaulinepratt jessicapaulinepratt 26-30, F 3 Responses Mar 4, 2012

    Your Response

    Cancel

    Finally Im On "stand By"

    im 29 married with 2 girls 7 and 2 and was born with hep c. i found out when i was in high school trying to donate blood to the redcross realized i had hep c. i have had a few biopsies and numerous liver labs done and was told i was fine check back infive years. 1 year later 6...
    livin42day livin42day 26-30, F 7 Responses Nov 24, 2009

    Your Response

    Cancel

    It Saved My Moms Life

    my mom was diagnosed with hep c with cirrhosis. in 2008 she got really sick, i was 20 then. the local hospitals would not do anything to help her, then we found out about the mayo clinic in jacksonville florida. we got my mom there as soon as we could once we got there she spent...
    anonymus1109 anonymus1109 22-25 2 Responses Jan 18, 2012

    Your Response

    Cancel

    Don't Know How Much Longer..

    Hello, i'm 17 years old and 14 months ago my grandmother was diagnosed with stage 3 cirossis (spelling?) of the liver. She has recently been getting progressivly worse, and i feel absolutly helpless. A few days ago she was sent to the hospital for acute kidney failure and has...
    mknsymrdth123 mknsymrdth123 16-17 1 Response Jun 1, 2011

    Your Response

    Cancel

    Liverserum, Waiting For A Liver, Meld 19 And Hep C

     I've fust recently been listed in New England and am thinking about getting listed in Inide. Does anyone have experience with that? Also, I'm working on a manuscript for a book about my experience with Hep C, the medical system and how I got here. Please check it out at www...
    liverserum liverserum 46-50 Aug 15, 2011

    Your Response

    Cancel

    Our daughter who just turned 20 was diagnosed

    with Wilson’s Disease at the age of 5. When she was 17 years old she wasn’t feeling well and was taken to see specialists. We live in a rural area 2 hours away from the hospital. After consulting with the pediatric specialists at the children’s hospital, the decision...
    rckdarnell rckdarnell 56-60, M 2 Responses Jan 13, 2014

    Your Response

    Cancel

    Received A Liver In 1993

    I have been searching for a forum like this. It is my desire to provide and get support from people that have been touched my organ donation in some way. I needed a liver transplant after being diagnosed with Hep in 1993. I believe I contracted in from contagious blood while...
    Gene929 Gene929 41-45, F May 21, 2012

    Your Response

    Cancel

    My Husband Is Waiting For A Liver Transplant

    My husband is a Viet Nam veteran, & a victim of Agent Orange. He has been on the list for a liver transplant to save his life, but we were recently told that Washington, DC who makes the final determination, declined him as a candidate for transplant, because of a small blockage...
    Shelbysue Shelbysue 56-60 3 Responses Jun 9, 2010

    Your Response

    Cancel

    Waiting Patiently, Lol.

    I have had hep c since before they called it hep c. I was diagnosed in 1989 and monitored it off and on until April of 2011. I knew the treatment was not easy so I continued to put it off the last few years. Funny how God and the Universe work but last March I met a guy skiing...
    skiier skiier 56-60 Dec 19, 2011

    Your Response

    Cancel

    1 Week Phone Call

    hi... my name is jason 33year old man. i have liver cirrosis with cancer 4.7cm..i don't have hepatitis but have iron overload problem called sidero blastic anemia.too much iron is deposited into my liver and got cancer.i can not find anyonw who has same reason as me....all...
    seungp1978 seungp1978 31-35 1 Response Aug 10, 2011

    Your Response

    Cancel

    Finally Getting On The List

    Hi , I am 52 and I was diagnosed in 2000 with Hep C, when I did my first biopsy I had fatty liver, I was pretty stunned and upset. Then around 2006 I was diagnosed with cirrhosis and the also thought I had liver cancer, which was totally devastating, but ended up not being...
    angelb2013 angelb2013 51-55, F 1 Response May 18, 2013

    Your Response

    Cancel

    Don't Know For Sure Yet

     We got the call from UCSF on Sunday that they wanted previous test images for the tumor board. We sent everything overnight and had a new CT from chest to groin, now we're just waiting until Tuesday's outcome.  We don't even know if my husband will be put on the list...
    YosoyRosa YosoyRosa 41-45 3 Responses Sep 27, 2008

    Your Response

    Cancel

    Success At Last And Talk To A Guy Who Had A Liver Transplant

    I was diagnosed with hep c in 94, but seeing as I didn't drink or engage in other high risk activities I basically ignored it. I started getting regular blood work in 2000 and the liver enzymes started going up, I finally went to a gastro guy in 2006 and he told me I was high and...
    heygee67 heygee67 61-65 Jul 21, 2013

    Your Response

    Cancel

    My Dad Needs A Liver ( Liver Donor Must Be A+ve, A-ve,o+ve Or O-ve)

    hi..this is Rohit. My dad needs 2 have a liver transplant surgery but we have not been able to find a potential donor with the same blood group in the family. His blood group is A+ and mine is B+. So, if anyone is in the need of a liver transplant swap, so that I can donate my...
    rohitsarewar rohitsarewar 22-25 3 Responses Aug 9, 2011

    Your Response

    Cancel

    Finally.....

    Sorry I haven't been with you for a while, but I finally got my liver transplant!!! YAY!!! My new liver was quite a bit larger than my other one, but has taken a liking to my body (knock on wood). I had my transplant on April 3rd and am doing quite well. Lots of meds though...
    lowplt lowplt 36-40 1 Response Apr 25, 2013

    Your Response

    Cancel

    On The List!!!

    I am 25 yrs old and have had a life marked and shaped by illness. I was born with Porphyria, a hereditary disease which causes severe photosensitivity (all UV light creates physical pain when it hits the skin) and leads to liver disease. By 18months old my liver function was...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 1, 2010

    Your Response

    Cancel

    Made It.

    I was diagnosed with hep-c in 1993, it more than likely came from a blood transfusion back in 1980 as I do not inject or snort drugs and never was a drinker, I f smoking pot a half dozen times if that will give it to you then I am guilty. I basically ignored the hep-c until...
    snakepit456 snakepit456 61-65 Jul 16, 2013

    Your Response

    Cancel

    Recently Put On Liver Transplant List

    hello.  i was soo happy to come across this website as i was searching for some way to connect with others who have or who are experiancing the same kind of issues i am.  i just turned 30 on 09/23/80 and was born with biliartresia which is were your bile ducts are...
    jencross jencross 26-30 4 Responses Sep 29, 2010

    Your Response

    Cancel

    Waiting For A Liver Transplant

    I was diagnosed with cirrhosis in 2001. Not put on list till 2008 waiting four and a half years now. Hospitalized three time in last two years for bleeding varicies. And bad infection with ascities. Symptoms extremely bad, can't drive can't work exhausted itching always...
    jnords jnords 41-45 5 Responses Apr 26, 2012

    Your Response

    Cancel

    I Wanto To Be A Liver Donor.

    My name is Ricardo Antor, blood type -   O POSITIVE,  - which from what I know it make me almost an universal donor.   I am sorry to intrude, but I would like to be a liver donor. Hoppe I can help.   I am a caucasian spanish male from Venezuela, 48...
    v8s50vqgu8 v8s50vqgu8 41-45 1 Response May 20, 2010

    Your Response

    Cancel

    Related Experiences

    thats exactly. whats going on with me. i am patiently waiting for my emotions to come back. i thought theyd be back by now but i guess thats to much to ask for. im waiting to get a...
    Ang012685 Ang012685 26-30, F 1 Response Apr 9

    Your Response

    Cancel
    I feel like im waiting for my grandmother to come back but she won't until theres some way she can I am pretty sure im stuck feeling this way
    mythlover mythlover 13-15, F 1 Response Apr 9

    Your Response

    Cancel
    Its not like I never had chances. I had so many chances but I chosed to stay away. I am waiting for the right person.
    faisal6309 faisal6309 22-25, M 2 Responses Apr 16

    Your Response

    Cancel
    I'm waiting for her to reply me, or she just don't want to chat with me anymore :(
    vitnesse vitnesse 18-21, M Apr 18

    Your Response

    Cancel

    Your Response

    Cancel
    "Waiting can be a form of bondage, sometimes the ropes are not necessary because time can be a chain all of its own."
    NewBeginnings77 NewBeginnings77 31-35, F 3 Responses Apr 9

    Your Response

    Cancel
    Seven years since I've got success in my study life. I am eagerly waiting and trying my best for it, and I'm sure this time I'll get it!
    kks456 kks456 22-25, M 2 Responses Apr 13

    Your Response

    Cancel
    Aw my poor uncle. I know you've only got the next 24 to 48 hours. I Probly won't get to see you again. I forgive you and I love you. May the great spirit rest your soul. Say hi to...
    katariffik katariffik 31-35, F Apr 8

    Your Response

    Cancel
    If you want something to last forever, you treat it differently. You shield and protect it. You never abuse it. You don't expose it to the elements. You don't make it common or...
    Angeleyes789 Angeleyes789 46-50, F 4 Responses Apr 15

    Your Response

    Cancel
    I have not experienced true love meant for me. I have had friends good bad people who took advantage of me yet I loved them but never someone who loves me. I have faith there is...
    lesbianrva lesbianrva 31-35 Apr 24

    Your Response

    Cancel
    MCR, or My Chemical Romance, are following the same path as smashing pumpkins. Smashing pumpkins were together for 12 years, broke apart for 6, and got back together. 2019 would be...
    HarleyHart HarleyHart 13-15, F 2 days ago

    Your Response

    Cancel
    Will never locate sanctuary. Or a caring society. Or a true mentor. Sigh.
    convertihd convertihd 46-50, M Apr 9

    Your Response

    Cancel
    I feel like I'm supposed to do something, but I'm scared when I do it I'll die
    beyondalone beyondalone 31-35, M 2 Responses Apr 10

    Your Response

    Cancel
    When's this whole online *** coming back I'm bored
    lovemylife4u lovemylife4u 41-45, F 1 Response Apr 10

    Your Response

    Cancel
    Like bringing back the past ??
    Althea12 Althea12 13-15, F 1 Response Apr 10

    Your Response

    Cancel
    Screw the lying and blame game. You wouldn't change even if it'd help everyone in the end.
    Kkgunny Kkgunny 16-17, F Apr 15

    Your Response

    Cancel
    As i had one month semester break so today was the day when i started my journey from my home country to Kuala Lumpur (Malaysia) I took some selfies let me try to upload some of it...
    CrushedBrainLovesMarmalade CrushedBrainLovesMarmalade 22-25, M 1 Response Apr 17

    Your Response

    Cancel
    I've put lots of true feeling and now it gave me disappointment and depression.
    vitnesse vitnesse 18-21, M Apr 19

    Your Response

    Cancel
    How cool is that hein!..............................
    SADNG SADNG 18-21 Apr 20

    Your Response

    Cancel
    I tried everything to be the last one in the parking lot but he beat me to it. plus my friend started to talk to me. no hints either...
    TammyDRadke TammyDRadke 31-35, F Apr 20

    Your Response

    Cancel
    Complete the sentence. Will u
    babyswag101 babyswag101 16-17, F 2 Responses Apr 26

    Your Response

    Cancel
    short story full of advices what it may change your life . A husband married to very kind wife .. he was treating her so bad but by her kindness she accepted him as he is because...
    ThePoet1 ThePoet1 31-35, M 1 Response 27 mins ago

    Your Response

    Cancel
    About a year ago , I got really drunk after receiving some bad news , I then got it into my head to sleep with a man I did not know without using protection During our encounter...
    babina8 babina8 31-35, F 4 hrs ago

    Your Response

    Cancel