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I Am Waiting For a Liver Transplant

Personal Stories, Advice, and Support 41 People

    My Husband Is Waiting For A Liver Transplant

    My husband is a Viet Nam veteran, & a victim of Agent Orange. He has been on the list for a liver transplant to save his life, but we were recently told that Washington, DC who makes the final determination, declined him as a candidate for transplant, because of a small blockage...
    Shelbysue Shelbysue 56-60 3 Responses Jun 9, 2010

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    My Mom Needs A Liver Transplant And I Want To Be Her Ltd

    My mother has had AIDS and cirrhosis of the liver for a long time now. She is 54 and I will be 27 next month. I have severe agoraphobia and trouble being alone. I want to give my mother part of my liver. I'm very scared of hospitals, leaving my city, and anesthesia, But of all...
    jessicapaulinepratt jessicapaulinepratt 26-30, F 3 Responses Mar 4, 2012

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    Don't Know How Much Longer..

    Hello, i'm 17 years old and 14 months ago my grandmother was diagnosed with stage 3 cirossis (spelling?) of the liver. She has recently been getting progressivly worse, and i feel absolutly helpless. A few days ago she was sent to the hospital for acute kidney failure and has...
    mknsymrdth123 mknsymrdth123 16-17 1 Response Jun 1, 2011

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    Recently Put On Liver Transplant List

    hello.  i was soo happy to come across this website as i was searching for some way to connect with others who have or who are experiancing the same kind of issues i am.  i just turned 30 on 09/23/80 and was born with biliartresia which is were your bile ducts are...
    jencross jencross 26-30 4 Responses Sep 29, 2010

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    Waiting Patiently, Lol.

    I have had hep c since before they called it hep c. I was diagnosed in 1989 and monitored it off and on until April of 2011. I knew the treatment was not easy so I continued to put it off the last few years. Funny how God and the Universe work but last March I met a guy skiing...
    skiier skiier 56-60 Dec 19, 2011

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    Waiting For A Liver Transplant

    I was diagnosed with cirrhosis in 2001. Not put on list till 2008 waiting four and a half years now. Hospitalized three time in last two years for bleeding varicies. And bad infection with ascities. Symptoms extremely bad, can't drive can't work exhausted itching always...
    jnords jnords 41-45 5 Responses Apr 26, 2012

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    Success At Last And Talk To A Guy Who Had A Liver Transplant

    I was diagnosed with hep c in 94, but seeing as I didn't drink or engage in other high risk activities I basically ignored it. I started getting regular blood work in 2000 and the liver enzymes started going up, I finally went to a gastro guy in 2006 and he told me I was high and...
    heygee67 heygee67 61-65 Jul 21, 2013

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    Finally Getting On The List

    Hi , I am 52 and I was diagnosed in 2000 with Hep C, when I did my first biopsy I had fatty liver, I was pretty stunned and upset. Then around 2006 I was diagnosed with cirrhosis and the also thought I had liver cancer, which was totally devastating, but ended up not being...
    angelb2013 angelb2013 51-55, F 1 Response May 18, 2013

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    Finally.....

    Sorry I haven't been with you for a while, but I finally got my liver transplant!!! YAY!!! My new liver was quite a bit larger than my other one, but has taken a liking to my body (knock on wood). I had my transplant on April 3rd and am doing quite well. Lots of meds though...
    lowplt lowplt 36-40 1 Response Apr 25, 2013

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    Liverserum, Waiting For A Liver, Meld 19 And Hep C

     I've fust recently been listed in New England and am thinking about getting listed in Inide. Does anyone have experience with that? Also, I'm working on a manuscript for a book about my experience with Hep C, the medical system and how I got here. Please check it out at www...
    liverserum liverserum 46-50 Aug 15, 2011

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    Our daughter who just turned 20 was diagnosed

    with Wilson’s Disease at the age of 5. When she was 17 years old she wasn’t feeling well and was taken to see specialists. We live in a rural area 2 hours away from the hospital. After consulting with the pediatric specialists at the children’s hospital, the decision...
    rckdarnell rckdarnell 56-60, M 2 Responses Jan 13, 2014

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    1 Week Phone Call

    hi... my name is jason 33year old man. i have liver cirrosis with cancer 4.7cm..i don't have hepatitis but have iron overload problem called sidero blastic anemia.too much iron is deposited into my liver and got cancer.i can not find anyonw who has same reason as me....all...
    seungp1978 seungp1978 31-35 1 Response Aug 10, 2011

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    My Dad Needs A Liver ( Liver Donor Must Be A+ve, A-ve,o+ve Or O-ve)

    hi..this is Rohit. My dad needs 2 have a liver transplant surgery but we have not been able to find a potential donor with the same blood group in the family. His blood group is A+ and mine is B+. So, if anyone is in the need of a liver transplant swap, so that I can donate my...
    rohitsarewar rohitsarewar 22-25 3 Responses Aug 9, 2011

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    Finally Im On "stand By"

    im 29 married with 2 girls 7 and 2 and was born with hep c. i found out when i was in high school trying to donate blood to the redcross realized i had hep c. i have had a few biopsies and numerous liver labs done and was told i was fine check back infive years. 1 year later 6...
    livin42day livin42day 26-30, F 7 Responses Nov 24, 2009

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    Received A Liver In 1993

    I have been searching for a forum like this. It is my desire to provide and get support from people that have been touched my organ donation in some way. I needed a liver transplant after being diagnosed with Hep in 1993. I believe I contracted in from contagious blood while...
    Gene929 Gene929 41-45, F May 21, 2012

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    It Saved My Moms Life

    my mom was diagnosed with hep c with cirrhosis. in 2008 she got really sick, i was 20 then. the local hospitals would not do anything to help her, then we found out about the mayo clinic in jacksonville florida. we got my mom there as soon as we could once we got there she spent...
    anonymus1109 anonymus1109 22-25 2 Responses Jan 18, 2012

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    On The List!!!

    I am 25 yrs old and have had a life marked and shaped by illness. I was born with Porphyria, a hereditary disease which causes severe photosensitivity (all UV light creates physical pain when it hits the skin) and leads to liver disease. By 18months old my liver function was...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 1, 2010

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    Don't Know For Sure Yet

     We got the call from UCSF on Sunday that they wanted previous test images for the tumor board. We sent everything overnight and had a new CT from chest to groin, now we're just waiting until Tuesday's outcome.  We don't even know if my husband will be put on the list...
    YosoyRosa YosoyRosa 41-45 3 Responses Sep 27, 2008

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    I Wanto To Be A Liver Donor.

    My name is Ricardo Antor, blood type -   O POSITIVE,  - which from what I know it make me almost an universal donor.   I am sorry to intrude, but I would like to be a liver donor. Hoppe I can help.   I am a caucasian spanish male from Venezuela, 48...
    v8s50vqgu8 v8s50vqgu8 41-45 1 Response May 20, 2010

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    Made It.

    I was diagnosed with hep-c in 1993, it more than likely came from a blood transfusion back in 1980 as I do not inject or snort drugs and never was a drinker, I f smoking pot a half dozen times if that will give it to you then I am guilty. I basically ignored the hep-c until...
    snakepit456 snakepit456 61-65 Jul 16, 2013

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    Related Experiences

    Little dreams escape out the backyard overgrown and neglected grey skies overhead herald the start of a new season beginning with heartbreak and souls die a thousand little deaths...
    wishingicouldlovemore wishingicouldlovemore 36-40, F Jan 9

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    As corny as the experience says... im not a great looking person, and my junk is only a bit below average, i suck, im terrible, i know, i cant do anything about it though, but, im...
    image2fite image2fite 18-21, M Jan 11

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    I had it once but it couldn't work out. I am waiting for it again but have not experienced it.
    SelfIsImportant SelfIsImportant 18-21, M a week ago

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    I waited for marriage, as did my husband. No regrets. It was worth waiting to share ourselves only with one another. Beautiful, pure, and intense. As it still is to this day.
    TheLittleMrs TheLittleMrs 31-35, F 2 Responses Dec 26, 2014

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    I'm just having a tough time dealing with unexpected situation. It's hard because I have no control over this and I have to deal with this all alone. I have to wait a year and six...
    TyThe90sKid TyThe90sKid 22-25, F Jan 1

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    If I send you a Snapchat, text, or email and you don't respond fast I will be upset. Especially if it's for something important.
    hondurananonymous hondurananonymous 13-15, F 1 Response 6 days ago

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    my best friend used to tell me that I'm sooner or later gonna meet someone who is much like me... lol... I'm not sure if I'll wait, but I'll just see
    pitchy28 pitchy28 13-15, F 1 Response Dec 26, 2014

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    i guess i am moving in a wrong direction. I had enough , guess am troubling all the one around me with my wrong decisions.
    yashwith yashwith 22-25, M 1 Response Dec 28, 2014

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    who will talk to me and understand me :)
    confusePLLady confusePLLady 16-17, F Dec 30, 2014

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    I will wait... I will travel... I will do what it takes to find that person and be with them....
    catho catho 18-21, F 1 Response Dec 30, 2014

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    Any one is online to chat here
    shoyebm shoyebm 22-25, M Jan 7

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    Five years (or is it six now? Almost seven?) and counting. I'd still run away with you, if you asked.
    AzuraSkies AzuraSkies 16-17 Jan 10

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    Any Transplant in India is the inexpensive as compared to the western countries. We have state of the art equipment and well trained experienced doctors to match the best...
    priyaThakur1 priyaThakur1 26-30, F Jan 12

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    When I was six years old, my family and I took a trip to visit my grandfather who was sixty years old. He was ill so everyone in the family gathered to talk with him while the my...
    TheSallyGirl TheSallyGirl 16-17, F 3 days ago

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    If you are in love with someone that you agreed to do a friends with benefits thing with and they know. STOP that crap right now because they don't really care about you. Or if you...
    mypawshaveprints mypawshaveprints 18-21, F Dec 29, 2014

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    Waiting for a company to call for a job feels like a guy whos waiting for a girl at some fancy restaurant for hours and hours. Then the waiter (my dad) keeps on asking whether your...
    Grimmface Grimmface 22-25, M 1 Response Jan 5

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    A few of us (contestants) went out on to the audience floor to meet with the residents. Most of the "girls" left. I think they were maxed out and just wanted to get out of their...
    phylisst phylisst 70+, M 3 Responses 5 days ago

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    Each Day I am Holding a Hope to Welcome the Next Day. You know Why? Because I am Waiting for You. Even though I'm Laughing But you didn't Try to See My Feelings. My Pains...
    rogi4u rogi4u 36-40, M Jan 14

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    Love ash or my id in fb ( Loveash81@yahoo.com my sweet friends I will be waiting for your response I just made this id for you friends
    khanarmani khanarmani 22-25, M Dec 25, 2014

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    So Kyle leaves for basic in February, I'm not quite sure what to expect when there is not much communication those 7 1/2 weeks. I've read other forums basically saying stay busy...
    AHK2015 AHK2015 22-25, F 4 Responses Dec 25, 2014

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    First of, I'd like to say Merry Christmas and I hope you all are having a wonderful Christmas. I don't really mean to complain because I know I have a lot of things already, but...
    theultimatesashacourtney theultimatesashacourtney 13-15, F Dec 25, 2014

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    The majority of the time my forehead is covered with my fringe. It was really cold and windy one day when we were waiting for the bus and I was cuddling into my best friend for...
    Gemz2411 Gemz2411 18-21, F Jan 2

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    I have 2 son's one, the youngest, 27 years old, is wonderful, loving, caring and we love and support each other. However my oldest son, 34 years old, has been cold, distant...
    hardworkingmom88 hardworkingmom88 51-55, F 1 Response Jan 2

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    i have sleeping problems. so i often think i wish i could sleep more.. now i'm really depressed. i hate night time. i have to go to hospital to get the result of cancer on 7th...
    juryandrews juryandrews 31-35, F 3 Responses Jan 4

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    This also occurred under the initial amnesty program where the IRS printed online, a string of questions and answers which became guideposts for completing and correctly entering...
    Georgebankssi1 Georgebankssi1 31-35, M 1 Response Jan 5

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    Even though you're a being a jerk face and I don't know where our friendship stands right now since you're giving me the silent treatment and ignoring my snaps when really I'm the...
    LilahWolf LilahWolf 16-17, F Jan 6

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    I'm waiting for anyone to message me because Im really bored and horny
    josh1459 josh1459 18-21, M Jan 6

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    Endeavor to a minimum of know who particularly is the Web optimization provider you can be hiring, this will likely lessen somenworries in supporting you select who you ought to be...
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