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I Am Waiting For a Liver Transplant

Personal Stories, Advice, and Support 41 People

    Don't Know How Much Longer..

    Hello, i'm 17 years old and 14 months ago my grandmother was diagnosed with stage 3 cirossis (spelling?) of the liver. She has recently been getting progressivly worse, and i feel absolutly helpless. A few days ago she was sent to the hospital for acute kidney failure and has...
    mknsymrdth123 mknsymrdth123 16-17 1 Response Jun 1, 2011

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    I Wanto To Be A Liver Donor.

    My name is Ricardo Antor, blood type -   O POSITIVE,  - which from what I know it make me almost an universal donor.   I am sorry to intrude, but I would like to be a liver donor. Hoppe I can help.   I am a caucasian spanish male from Venezuela, 48...
    v8s50vqgu8 v8s50vqgu8 41-45 1 Response May 20, 2010

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    My Mom Needs A Liver Transplant And I Want To Be Her Ltd

    My mother has had AIDS and cirrhosis of the liver for a long time now. She is 54 and I will be 27 next month. I have severe agoraphobia and trouble being alone. I want to give my mother part of my liver. I'm very scared of hospitals, leaving my city, and anesthesia, But of all...
    jessicapaulinepratt jessicapaulinepratt 26-30, F 3 Responses Mar 4, 2012

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    Received A Liver In 1993

    I have been searching for a forum like this. It is my desire to provide and get support from people that have been touched my organ donation in some way. I needed a liver transplant after being diagnosed with Hep in 1993. I believe I contracted in from contagious blood while...
    Gene929 Gene929 41-45, F May 21, 2012

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    Liverserum, Waiting For A Liver, Meld 19 And Hep C

     I've fust recently been listed in New England and am thinking about getting listed in Inide. Does anyone have experience with that? Also, I'm working on a manuscript for a book about my experience with Hep C, the medical system and how I got here. Please check it out at www...
    liverserum liverserum 46-50 Aug 15, 2011

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    Waiting Patiently, Lol.

    I have had hep c since before they called it hep c. I was diagnosed in 1989 and monitored it off and on until April of 2011. I knew the treatment was not easy so I continued to put it off the last few years. Funny how God and the Universe work but last March I met a guy skiing...
    skiier skiier 56-60 Dec 19, 2011

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    Waiting For A Liver Transplant

    I was diagnosed with cirrhosis in 2001. Not put on list till 2008 waiting four and a half years now. Hospitalized three time in last two years for bleeding varicies. And bad infection with ascities. Symptoms extremely bad, can't drive can't work exhausted itching always...
    jnords jnords 41-45 5 Responses Apr 26, 2012

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    Recently Put On Liver Transplant List

    hello.  i was soo happy to come across this website as i was searching for some way to connect with others who have or who are experiancing the same kind of issues i am.  i just turned 30 on 09/23/80 and was born with biliartresia which is were your bile ducts are...
    jencross jencross 26-30 4 Responses Sep 29, 2010

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    My Dad Needs A Liver ( Liver Donor Must Be A+ve, A-ve,o+ve Or O-ve)

    hi..this is Rohit. My dad needs 2 have a liver transplant surgery but we have not been able to find a potential donor with the same blood group in the family. His blood group is A+ and mine is B+. So, if anyone is in the need of a liver transplant swap, so that I can donate my...
    rohitsarewar rohitsarewar 22-25 3 Responses Aug 9, 2011

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    Finally Getting On The List

    Hi , I am 52 and I was diagnosed in 2000 with Hep C, when I did my first biopsy I had fatty liver, I was pretty stunned and upset. Then around 2006 I was diagnosed with cirrhosis and the also thought I had liver cancer, which was totally devastating, but ended up not being...
    angelb2013 angelb2013 51-55, F 1 Response May 18, 2013

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    Made It.

    I was diagnosed with hep-c in 1993, it more than likely came from a blood transfusion back in 1980 as I do not inject or snort drugs and never was a drinker, I f smoking pot a half dozen times if that will give it to you then I am guilty. I basically ignored the hep-c until...
    snakepit456 snakepit456 61-65 Jul 16, 2013

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    My Husband Is Waiting For A Liver Transplant

    My husband is a Viet Nam veteran, & a victim of Agent Orange. He has been on the list for a liver transplant to save his life, but we were recently told that Washington, DC who makes the final determination, declined him as a candidate for transplant, because of a small blockage...
    Shelbysue Shelbysue 56-60 3 Responses Jun 9, 2010

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    Don't Know For Sure Yet

     We got the call from UCSF on Sunday that they wanted previous test images for the tumor board. We sent everything overnight and had a new CT from chest to groin, now we're just waiting until Tuesday's outcome.  We don't even know if my husband will be put on the list...
    YosoyRosa YosoyRosa 41-45 3 Responses Sep 27, 2008

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    Success At Last And Talk To A Guy Who Had A Liver Transplant

    I was diagnosed with hep c in 94, but seeing as I didn't drink or engage in other high risk activities I basically ignored it. I started getting regular blood work in 2000 and the liver enzymes started going up, I finally went to a gastro guy in 2006 and he told me I was high and...
    heygee67 heygee67 61-65 Jul 21, 2013

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    It Saved My Moms Life

    my mom was diagnosed with hep c with cirrhosis. in 2008 she got really sick, i was 20 then. the local hospitals would not do anything to help her, then we found out about the mayo clinic in jacksonville florida. we got my mom there as soon as we could once we got there she spent...
    anonymus1109 anonymus1109 22-25 2 Responses Jan 18, 2012

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    1 Week Phone Call

    hi... my name is jason 33year old man. i have liver cirrosis with cancer 4.7cm..i don't have hepatitis but have iron overload problem called sidero blastic anemia.too much iron is deposited into my liver and got cancer.i can not find anyonw who has same reason as me....all...
    seungp1978 seungp1978 31-35 1 Response Aug 10, 2011

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    Our daughter who just turned 20 was diagnosed

    with Wilson’s Disease at the age of 5. When she was 17 years old she wasn’t feeling well and was taken to see specialists. We live in a rural area 2 hours away from the hospital. After consulting with the pediatric specialists at the children’s hospital, the decision...
    rckdarnell rckdarnell 56-60, M 2 Responses Jan 13, 2014

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    On The List!!!

    I am 25 yrs old and have had a life marked and shaped by illness. I was born with Porphyria, a hereditary disease which causes severe photosensitivity (all UV light creates physical pain when it hits the skin) and leads to liver disease. By 18months old my liver function was...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 1, 2010

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    Finally.....

    Sorry I haven't been with you for a while, but I finally got my liver transplant!!! YAY!!! My new liver was quite a bit larger than my other one, but has taken a liking to my body (knock on wood). I had my transplant on April 3rd and am doing quite well. Lots of meds though...
    lowplt lowplt 36-40 1 Response Apr 25, 2013

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    Finally Im On "stand By"

    im 29 married with 2 girls 7 and 2 and was born with hep c. i found out when i was in high school trying to donate blood to the redcross realized i had hep c. i have had a few biopsies and numerous liver labs done and was told i was fine check back infive years. 1 year later 6...
    livin42day livin42day 26-30, F 7 Responses Nov 24, 2009

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    Still waiting. I'm sure it'll happen eventually.
    wolfgirl202 wolfgirl202 13-15, F 2 Responses 5 days ago

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    In the words of Ted Mosby, "Shouldn't we hold out for the person who doesn't just tolerate our little quirks but actually kinda likes them?" I like who I am, and I can only be...
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    I used to pray for this every night even though I don't believe in god. I feel disconnected from life. We are too sheltered I want to survive not to merely live. After months of...
    bieverything bieverything 16-17, F 3 Responses 3 days ago

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    Or a venemous reptile bite. Or proof that caring gains power. And society gets caring like we should.
    convertihd convertihd 46-50, M 4 days ago

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    This way. http://youtu.be/UtBsl3j0YRQ
    convertihd convertihd 46-50, M 3 days ago

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    I doubt that it will ever happen, but I have a good plan just in case.
    Ellytheoutcast Ellytheoutcast 13-15, F 3 Responses 3 days ago

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    I await Ragnarok. I amongst my brothers and sisters will defend the universe.
    ValhallaAwaits ValhallaAwaits 18-21, M 2 days ago

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    Waiting for someone/something to happen to you whereas it has happened for everybody in your group ... and me ... stil wating ... and waiting .... and. ... It is painful to realise...
    spssbkp spssbkp 31-35 Mar 6

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    Usually I do, like if someone says alright well I have to go, talk to you some other time? Or talk to you tomorrow? I'll be like yeah sure sounds good. And then I wait, and wait...
    wedgieshurtalot wedgieshurtalot 16-17, F 1 Response Mar 9

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    Now a month has passes since we decided to be apart and it hurts more everyday, and I see you walk in and out of the house but barley any recognition to me. It just breaks my heart...
    l2adios l2adios 18-21 Mar 19

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    BE CAREFUL WHAT YOU WISH FOR. First of all this story is 100% true even though I wish it wasn't. I got WAY more then I bargained for and if anyone has a way to possibly go back to...
    JTam2090 JTam2090 22-25, M Mar 4

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    Daddy is waiting for you!!!!!!!!
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    My dad has been a Liverpool fan all his life and when I was a little kid I told him I wanted a blue scarf. 'You want to be a blue noser?' 'What's a blue noser?' 'Everton supporter...
    ladyPlum ladyPlum 26-30, F 5 Responses Mar 18

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    ZENALOBI ZENALOBI 22-25, F 1 Response Mar 18

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    Waiting, wanting, needing, believing. Time together, time apart always waiting always needing. Time stands still,time flys by, time is immaterial as long as it's spent with you...
    Hm3454 Hm3454 41-45, M 1 Response Mar 18

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    Quoting from Dr. Suess: You can get so confused that you'll start in to race down long wiggled roads at a break-necking pace and grind on for miles cross weirdish wild space...
    amyo33 amyo33 22-25 Mar 19

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    A friend shared a song with me from their teenage years, a song that inspired them, that lead them in a direction in life.Then they asked me to share a song from my younger days...
    dancingWATERz dancingWATERz 51-55, F 6 Responses Mar 21

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    How long is too long to wait? I've been in love with somebody for a few years now, and even though I've tried to let go time after time, I keep coming back. It's not like he's a...
    WinterIncandescence WinterIncandescence 16-17, F a week ago

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    i hate someone make me waiting... gosh..losing my patience now:-/
    Juri0902 Juri0902 31-35, F 1 Response