Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Am Waiting For a Liver Transplant

Personal Stories, Advice, and Support 42 People

    Waiting For A Liver Transplant

    I was diagnosed with cirrhosis in 2001. Not put on list till 2008 waiting four and a half years now. Hospitalized three time in last two years for bleeding varicies. And bad infection with ascities. Symptoms extremely bad, can't drive can't work exhausted itching always...
    jnords jnords 41-45 5 Responses Apr 26, 2012

    Your Response

    Cancel

    Liverserum, Waiting For A Liver, Meld 19 And Hep C

     I've fust recently been listed in New England and am thinking about getting listed in Inide. Does anyone have experience with that? Also, I'm working on a manuscript for a book about my experience with Hep C, the medical system and how I got here. Please check it out at www...
    liverserum liverserum 46-50 Aug 15, 2011

    Your Response

    Cancel

    Recently Put On Liver Transplant List

    hello.  i was soo happy to come across this website as i was searching for some way to connect with others who have or who are experiancing the same kind of issues i am.  i just turned 30 on 09/23/80 and was born with biliartresia which is were your bile ducts are...
    jencross jencross 26-30 4 Responses Sep 29, 2010

    Your Response

    Cancel

    My Mom Needs A Liver Transplant And I Want To Be Her Ltd

    My mother has had AIDS and cirrhosis of the liver for a long time now. She is 54 and I will be 27 next month. I have severe agoraphobia and trouble being alone. I want to give my mother part of my liver. I'm very scared of hospitals, leaving my city, and anesthesia, But of all...
    jessicapaulinepratt jessicapaulinepratt 26-30, F 3 Responses Mar 4, 2012

    Your Response

    Cancel

    It Saved My Moms Life

    my mom was diagnosed with hep c with cirrhosis. in 2008 she got really sick, i was 20 then. the local hospitals would not do anything to help her, then we found out about the mayo clinic in jacksonville florida. we got my mom there as soon as we could once we got there she spent...
    anonymus1109 anonymus1109 22-25 2 Responses Jan 18, 2012

    Your Response

    Cancel

    1 Week Phone Call

    hi... my name is jason 33year old man. i have liver cirrosis with cancer 4.7cm..i don't have hepatitis but have iron overload problem called sidero blastic anemia.too much iron is deposited into my liver and got cancer.i can not find anyonw who has same reason as me....all...
    seungp1978 seungp1978 31-35 1 Response Aug 10, 2011

    Your Response

    Cancel

    Waiting Patiently, Lol.

    I have had hep c since before they called it hep c. I was diagnosed in 1989 and monitored it off and on until April of 2011. I knew the treatment was not easy so I continued to put it off the last few years. Funny how God and the Universe work but last March I met a guy skiing...
    skiier skiier 56-60 Dec 19, 2011

    Your Response

    Cancel

    Finally.....

    Sorry I haven't been with you for a while, but I finally got my liver transplant!!! YAY!!! My new liver was quite a bit larger than my other one, but has taken a liking to my body (knock on wood). I had my transplant on April 3rd and am doing quite well. Lots of meds though...
    lowplt lowplt 36-40 1 Response Apr 25, 2013

    Your Response

    Cancel

    Finally Im On "stand By"

    im 29 married with 2 girls 7 and 2 and was born with hep c. i found out when i was in high school trying to donate blood to the redcross realized i had hep c. i have had a few biopsies and numerous liver labs done and was told i was fine check back infive years. 1 year later 6...
    livin42day livin42day 26-30, F 7 Responses Nov 24, 2009

    Your Response

    Cancel

    My Dad Needs A Liver ( Liver Donor Must Be A+ve, A-ve,o+ve Or O-ve)

    hi..this is Rohit. My dad needs 2 have a liver transplant surgery but we have not been able to find a potential donor with the same blood group in the family. His blood group is A+ and mine is B+. So, if anyone is in the need of a liver transplant swap, so that I can donate my...
    rohitsarewar rohitsarewar 22-25 3 Responses Aug 9, 2011

    Your Response

    Cancel

    Made It.

    I was diagnosed with hep-c in 1993, it more than likely came from a blood transfusion back in 1980 as I do not inject or snort drugs and never was a drinker, I f smoking pot a half dozen times if that will give it to you then I am guilty. I basically ignored the hep-c until...
    snakepit456 snakepit456 61-65 Jul 16, 2013

    Your Response

    Cancel

    Don't Know For Sure Yet

     We got the call from UCSF on Sunday that they wanted previous test images for the tumor board. We sent everything overnight and had a new CT from chest to groin, now we're just waiting until Tuesday's outcome.  We don't even know if my husband will be put on the list...
    YosoyRosa YosoyRosa 41-45 3 Responses Sep 27, 2008

    Your Response

    Cancel

    Don't Know How Much Longer..

    Hello, i'm 17 years old and 14 months ago my grandmother was diagnosed with stage 3 cirossis (spelling?) of the liver. She has recently been getting progressivly worse, and i feel absolutly helpless. A few days ago she was sent to the hospital for acute kidney failure and has...
    mknsymrdth123 mknsymrdth123 16-17 1 Response Jun 1, 2011

    Your Response

    Cancel

    Received A Liver In 1993

    I have been searching for a forum like this. It is my desire to provide and get support from people that have been touched my organ donation in some way. I needed a liver transplant after being diagnosed with Hep in 1993. I believe I contracted in from contagious blood while...
    Gene929 Gene929 41-45, F May 21, 2012

    Your Response

    Cancel

    Our daughter who just turned 20 was diagnosed

    with Wilson’s Disease at the age of 5. When she was 17 years old she wasn’t feeling well and was taken to see specialists. We live in a rural area 2 hours away from the hospital. After consulting with the pediatric specialists at the children’s hospital, the decision...
    rckdarnell rckdarnell 56-60, M 2 Responses Jan 13, 2014

    Your Response

    Cancel

    On The List!!!

    I am 25 yrs old and have had a life marked and shaped by illness. I was born with Porphyria, a hereditary disease which causes severe photosensitivity (all UV light creates physical pain when it hits the skin) and leads to liver disease. By 18months old my liver function was...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 1, 2010

    Your Response

    Cancel

    My Husband Is Waiting For A Liver Transplant

    My husband is a Viet Nam veteran, & a victim of Agent Orange. He has been on the list for a liver transplant to save his life, but we were recently told that Washington, DC who makes the final determination, declined him as a candidate for transplant, because of a small blockage...
    Shelbysue Shelbysue 56-60 3 Responses Jun 9, 2010

    Your Response

    Cancel

    Success At Last And Talk To A Guy Who Had A Liver Transplant

    I was diagnosed with hep c in 94, but seeing as I didn't drink or engage in other high risk activities I basically ignored it. I started getting regular blood work in 2000 and the liver enzymes started going up, I finally went to a gastro guy in 2006 and he told me I was high and...
    heygee67 heygee67 61-65 Jul 21, 2013

    Your Response

    Cancel

    Finally Getting On The List

    Hi , I am 52 and I was diagnosed in 2000 with Hep C, when I did my first biopsy I had fatty liver, I was pretty stunned and upset. Then around 2006 I was diagnosed with cirrhosis and the also thought I had liver cancer, which was totally devastating, but ended up not being...
    angelb2013 angelb2013 51-55, F 1 Response May 18, 2013

    Your Response

    Cancel

    I Wanto To Be A Liver Donor.

    My name is Ricardo Antor, blood type -   O POSITIVE,  - which from what I know it make me almost an universal donor.   I am sorry to intrude, but I would like to be a liver donor. Hoppe I can help.   I am a caucasian spanish male from Venezuela, 48...
    v8s50vqgu8 v8s50vqgu8 41-45 1 Response May 20, 2010

    Your Response

    Cancel

    Related Experiences

    I just feel like I'm waiting for something to happen in my life but I don't know what it is. All I know is that i'm not going to find it in this country or with these people. Does...
    Rambuchi Rambuchi 18-21, F 3 Responses 15 hrs ago

    Your Response

    Cancel
    Every time I have bad dreams, on way or another they come true. It's like my dreams point out the obvious things that I seem to miss when I'm awake. I feel really sad after the...
    oddpodd oddpodd 22-25, F 16 hrs ago

    Your Response

    Cancel
    I'm so f***ing tired of the sorrys, the goodbyes and having to beg you to stay. You said you love me, then stay and love me dammit! Why make it complicated?! You love me but just...
    IWillGo IWillGo 18-21, F 18 hrs ago

    Your Response

    Cancel
    Where are you? I am waiting for you to invade my life and make me happy again
    Sexymom2 Sexymom2 36-40, F 2 Responses 18 hrs ago

    Your Response

    Cancel
    Sometimes i wish i'll just disappear. I'm dreaming of a boyfriend who will take me away. I feel like living in prison.
    Samthaelaina Samthaelaina 18-21, F 1 Response 20 hrs ago

    Your Response

    Cancel
    I am waiting for the love I have always wanted the man who will sweep me off my feet and show me true love. I want some one to take me away from it all and show me that dreams can...
    disneygal81 disneygal81 31-35, F 1 Response 23 hrs ago

    Your Response

    Cancel
    In my fantasy world,I would have a soulmate and we could stick on each other side by side like the both of us who against the world but that's just fantasy.In reality,I just hoping...
    felicia123angel felicia123angel 18-21, F 3 Responses 23 hrs ago

    Your Response

    Cancel
    The love of a guy that loves God the way I do and could sere I am sad with out asking any questions and thing hold me on the couch with a blanket and a cup of tea in front of a...
    geminigirl54 geminigirl54 36-40, F 1 Response 1 day ago

    Your Response

    Cancel
    You say you'll quit but you never do. More and more I grow indifferent to those words. Why bother saying them when its not true?
    GrinchFairy GrinchFairy 16-17 1 Response 1 day ago

    Your Response

    Cancel
    Sometimes you have to just let the thoughts go.. The thoughts that you keep wishing will happen.. The thoughts that keep you up at night that you know you will never get.
    SubmissiveKitty09 SubmissiveKitty09 18-21, F 1 Response 1 day ago

    Your Response

    Cancel
    I am tired of waiting for someone who would really love me... After all the things I went through last year, I hope the next woman would not make a fool out of me! I let someone...
    QueenCersei08 QueenCersei08 31-35, F 1 Response 1 day ago

    Your Response

    Cancel
    Now I am in my son's place. He kept on calling up without any urgent matter to discuss, a sign that he missed me, a cue for me to go visit him. I am actually surprised to see his...
    Solegne Solegne 41-45, F 2 Responses 2 days ago

    Your Response

    Cancel
    We were the sun and moon, catching glimpses of each other and always waiting for an eclipse.
    AA87A AA87A 26-30, M 2 days ago

    Your Response

    Cancel
    I just today stopped talking to him definitely, I'm so sorry things didnt work out for us 😔😔 it was meant to be , supposed to me. It still breaks my heart a little now to...
    sweeter944 sweeter944 18-21, F 2 Responses 2 days ago

    Your Response

    Cancel
    Unchained Melody The Righteous Brothers Oh, my love, my darling I've hungered for your touch A long, lonely time Time goes by so slowly And time can do so much Are you still mine...
    TulipBaby TulipBaby 41-45, F 3 Responses 3 days ago

    Your Response

    Cancel
    I think I may have found someone to share things with. Not sure if she is a soulmate yet, but she is really amazing. We have been dating for 3 months now and last night we kissed...
    TryingToLoveLifeNow TryingToLoveLifeNow 18-21, F 2 Responses a week ago

    Your Response

    Cancel
    I was diagnosed with lymphoma in 04 and given 3 years. Managed to push it away for a year then just managed to get rid again with radiotherapy. Was given stem cells from my brother...
    sjs57049386 sjs57049386 46-50, M a week ago

    Your Response

    Cancel
    Yeah! Come on, 'love of my life!' Where the devil are you? I don't know! You work hard. Make yourself available. Polish the best bits of your personality. And STILL they keep you...
    picklebobble picklebobble 46-50, M 2 Responses Jan 30

    Your Response

    Cancel
    "Everyone you meet has a part to play in your story. And while some may take a chapter, others a paragraph, and most will be no more than scribbled notes in the margins, someday...
    ishqelahasil ishqelahasil 26-30, M 1 Response Jan 29

    Your Response

    Cancel
    It has come to the point where I'll burst into tears over one strand of my hair falling out, where I'll start gritting my teeth because I have to get out of bed for the day, just...
    SadlySafe SadlySafe 13-15, F 5 Responses Jan 28

    Your Response

    Cancel
    For entertainment purposes only. Not to be taken seriously. My theory of how we evolved to who and what we are now. EVOLUTION One day, a few years ago, maybe a few million...
    Serenitree1 Serenitree1 70+, F 3 Responses Jan 28

    Your Response

    Cancel
    I'm in the middle of epilepsy surgery evaluation and I have been for the past 2 to 3 months there's just so many tests and so many doctors appointments before the panel of doctors...
    Leo2015 Leo2015 26-30, M Jan 27

    Your Response

    Cancel