I Battle With Pots

Personal Stories, Advice, and Support 143 People

    Just Diagnosed With Pots...maybe

    I am a 49 year old MOM andin the last months have had some strenge things happening. Low Blood Pressure, weakness, difficulty climbing stairs.The doctors ignored my reports . In the past weeks I have become very weak, cant stand for more then minutes, breathless, cant walk my...
    miajnt miajnt
    46-50, F
    1 Response Jul 7, 2012

    I Have Ncs And I Think Pots

    Hey Everyone!! I'm back again!! Now cancer free, but now out of work for the past two months. I was punched in the head several times at work and suffered a concussion, from that, I had my first syncope three days later. I didn't have any other symptoms or another syncope for a...
    ekreile1 ekreile1
    22-25, F
    Jun 2, 2013

    Please help ): I'm really struggling,

    this illness is life changibgb
    shybutkindd shybutkindd
    18-21, F
    2 Responses Mar 18, 2014

    Please Share Your Story!

    For any of you who have a Facebook, I found out that there is an Annual Invisible Illness Awareness Week. This year starting on September 9th. It is a great way to share your story, get to know others situations, and get some genuine support. To get started is a "30 things about...
    nikkij216202 nikkij216202
    18-21, F
    Sep 3, 2013

    I was just wondering

    if any fellow potsies have any careers advice? I unfortunately had to stop mainstream school (as many of us have had to) as well as home education so consequently have no exams or qualifications. Obviously, as well as dealing with pots this makes it increasingly hard to know...
    justhollyjayne justhollyjayne
    18-21, F
    1 Response Jul 22, 2015

    Well I've been out of school

    for a very long time. I would like to start homeschooling, but my mom says that's not an option she's willing to take. I'm currently failing my junior year of high school... I've lost all of my friends except my boyfriend. I'm limited in what I can do so I don't ware myself out...
    xMayesx xMayesx
    18-21, M
    4 Responses Dec 8, 2015

    I am exhausted emotionally

    and physically from POTS. I am tired of everyone saying "things will get better" when i just need to hear that its ok to feel upset and sad :( i feel like no one understands....
    AshhBashh92 AshhBashh92
    22-25, F
    2 Responses May 29, 2014

    You're Not Sick...

    Well...2 1/2 years, 50+ Doctors, Hospitals and "Specialists", 3 Surgery's, Countless Tests and Medications, 10,000 miles traveled, Lost many friends and family / Gained a few new POTS friends, Still feel the same to worse as day 1 (with new "symptoms" arriving daily it seems...
    g04th g04th
    41-45, M
    5 Responses Mar 1, 2011
    december789 december789
    18-21, F
    4 Responses Jun 20, 2014

    Here I Am

    Here I am with terrible pressure in my head and eyes I feel like it's all going to squeeze to death up there. Here I am back in bed.. The place I hate most
    Gabycastellano Gabycastellano
    18-21, F
    1 Response Sep 28, 2013

    Sometimes You Just Gotta Laugh......potsy Comedy

    Hello my fellow POTSy soldiers :0)   Ok so one of the first things I found in my research after being diagnosed with POTS is that your mood definitely affects your symptoms. We are known for having hormonal imbalances so we tend to be a little more moody. I have to...
    anniem84 anniem84
    22-25, F
    9 Responses Mar 11, 2011

    Poor health can have a huge impact on one’s

    career or academic aspirations, and one's personal life. Thus, I try to stay very tuned in and educated on all things health related, especially when something hits close to home. I wanted to create some awareness of a little known, but very debilitating autoimmune disorder...
    Neyda7 Neyda7
    36-40, F
    Nov 1, 2015

    My joints hurt so bad today.

    And my muscles :/
    december789 december789
    18-21, F
    2 Responses Jul 30, 2014

    Keep It Together

    In general, I am rather capable of keeping my composure. I don't get angry or frustrated often. But lately, especially after being diagnosed with POTS, I find it very difficult to stop myself from breaking into tears when asked about the illness. I'm reminded of all the things I...
    GraceLife GraceLife
    22-25, F
    Sep 5, 2013

    Im so sick and tired of being sick

    and tired. Pots is in complete control of my life and im Not okay with that. Its really upsetting that i cant just go do normal things like the average person. Its restricting. I dont know how to deal with this.. I dont wish my life on anyone, its extremely difficult.
    hannah0428 hannah0428
    22-25, F
    2 Responses Aug 13, 2014

    I'm A Lawyer But I Can't Argue With My Poys

    Stay strong my fellow Potsians. I was diagnosed with POTS last year and boooyyy is it kicking my butt. I am thankful That I've been able to continue working (lord knows I need the insurance). Til this day I don't know what caused my body to go out of whack like this. I took a...
    Carterlovely Carterlovely
    31-35
    1 Response Apr 5, 2012

    Busy Mom Of 4

    It all started one morning when I nearly passed out when I got out of bed. Everything became more complicated about two weeks later when I passed out at 29 weeks pregnant with #4 I found myself on modified bed rest. Three weeks later on complete bed rest after spending an...
    Coppertone80 Coppertone80
    31-35
    1 Response Jan 4, 2012

    Yeah. I battle with them.

    I battle using them. When I attack the enemy, I use pots. I throw pots at the enemy. It hurts a lot. Pots are the best weapons since the invention of gunpowder!
    deleted deleted
    26-30
    1 Response Jan 1, 2014

    Does anyone else suffer with blood pooling in

    their abdomen as a result of their POTS? If so what do you do to help it?
    justhollyjayne justhollyjayne
    18-21, F
    1 Response Apr 12, 2015

    CALLING ALL POTSIES and anyone

    who suffers from any form of Dysautonomia...there is a national conference AND lobby day being held in Washington, DC July 11th-14th!!!!! It is so important that we all try to go and raise awareness, get educated about our afflictions, lobby for more research to be done...but...
    Ktglisson87 Ktglisson87
    26-30, F
    Jun 1, 2014

    POTS !! I believe I can help.

    My daughter was diagnosed April 2015. UCLA medical center is rated top 100 Hospital on the West Coast. They could not help. We got a new second opinion from an infectious disease doctor. Dr. John Chia in Torrance California. He is treating us with gamma globulin IV IG. We're on...
    Neyda7 Neyda7
    36-40, F
    1 Response Nov 1, 2015

    #potsie I deal with a heart condition,

    Postural Orthostatic Tachycardia Syndrome, better known as POTS. I'd like to connect with some other potsies because I don't know that many!
    harliemo harliemo
    18-21, F
    5 Responses Dec 30, 2013

    My 14 year old daughter was recently diagnosed

    with POTS. It's been very disrupting to her system. She suffers from shortness of breath, daily. Doctors tell us her lungs are normal. And that's it's related to POTS. Does anyone else experience shortness of breath or chest pain?
    Neyda7 Neyda7
    36-40, F
    1 Response Jul 16, 2015
    december789 december789
    18-21, F
    1 Response Jun 24, 2014

    I am exhausted :/ i feel like there is no one

    to talk to about pots...my friends truly dont understand and i hate coming off as a "downer" to them..but they dont understand the daily struggle just to get up and walk around. I wish i could be active and feel normal :( and seriously getting a guy to understand our sickness...
    AshhBashh92 AshhBashh92
    22-25, F
    6 Responses May 29, 2014

    First Happend When I Was 14 And They Just Diagnosed Me With Pots 2 Months Ago!

    it happend when i was 14, the summer before high school and i walked outside with no shoes on and stepped on a pieace of glass...i ran inside and all i can remember is my mom yelling at me for going outside with no shoes on then i wake up on the floor and my mom running into the...
    19yrguy 19yrguy
    18-21
    1 Response Mar 27, 2012

    i wanted to know about getting a possible

    service dog for my POTS. it has been progressively getting worse and now it prevents daily functions. i dont have a feeding or breathing tube but i feel a dog could seriously help me. Anyone have any suggestions
    sierraboo214 sierraboo214
    18-21, F
    1 Response Dec 7, 2015

    I Deal With POTS

    I have had such a rough week…my symptoms are getting worse and I am already on two medications. My chest hurts and I get a flushed chest and I even have some palpitations. My vision has also gotten to the point where it is hard to do homework. My ears are also so sensitive to...
    Cassidyjeanbute Cassidyjeanbute
    18-21, F
    3 Responses Nov 26, 2013

    There Is A Cure

    I have POTS and I hope I have seen the worse of it. I came across a post in which a young lady said she was completely cured of the racing heart, foggy brain, dizziness everything after participating in a reasearch study at the Univ. of Texas Southwestern Medical Center and...
    Carterlovely Carterlovely
    31-35
    May 8, 2012

    Hi I have recently been diagnosed with POTS

    and I have hyper-mobility syndrome. I am kinda just trying to come to terms with it at the moment. I have a son with EDS and autism and a step son with Downs syndrome so I have my hands full too! I have just had to give up my part time job as I keep feeling so rough and money is...
    Naddybelles Naddybelles
    31-35, F
    3 Responses Oct 14, 2014

    Pots Sux =(

    Ive suffered with autonaumic dysfunction since I was 6. I used to pass out in school on a daily basis. I took meds and somewhat outgrew it in my teens. Until about 6 months ago I only had dizzy spells and minor symptoms. I started having gi issues and lost 35 lbs in 3 months, and...
    sarahvb sarahvb
    31-35, F
    Nov 18, 2012

    Has anyone with pots syndrome ever passed out?

    I felt dizzy when I got out of bed but that's usually usual... And then I was reaching for a pen for my sister and I don't remember anything after that. I ended up going to urgent care and getting some tests done. My brother and sister saw this. Is it normal to pass out?
    deleted deleted
    26-30
    1 Response May 7, 2015

    When I was getting trained at work I had an

    hour long episode. At the end the girl that trained me was like I know you had a ****** day but you haven't been paying attention at all and have been completely zoning me out. I had nothing to say. But I did speak up and say.. You can't imagine, it's hard to control the outside...
    december789 december789
    18-21, F
    Aug 19, 2014
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