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I Eosinophilic Esophagitis

Personal Stories, Advice, and Support 135 People

    One Year And Four Months With E.E. and back on the Flovent

    In Feb 2010 I was eating lunch at work, of course it was steak, and I suddenly couldn't swallow. I tried for a half hour forcing small ammounts of water down, only to have it back up until it tripped my gag reflex. I finally drove myself to the urgent care, and they wouldn't...
    ic3ss ic3ss 41-45, M 2 Responses Jun 17, 2011

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    12 Month Old With EE

    My son was diagnosed with EE when he was 9 months old. We have seen a GI specialist and an allergist. He had skin ****** done but everything came back negative. I'm starting him on the 6 food elimination diet. Does anyone have any experience with this? I just don't know what else...
    alisha05 alisha05 22-25 3 Responses Jun 7, 2013

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    Treatement

    I was diagnosed about a month ago. I'm taking QVAR (beclomethasone) inhaler and swallowing it. I have been having problems swallowing for about 3-4 years now and this has gotten worse over time, ut I did nothing about it until I got a tablet stuck in my throat and my wife called...
    fraser1234 fraser1234 46-50 1 Response Sep 16, 2008

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    Diagnosed a Month Ago....

    I was diagnosed about a month ago with EE.  I don't know anyone else who has this!  I've had problems since I was a kid, but about three years ago started having impaction problems.  I'm currently on Flovent, but can't really tell if it's doing anything.  I...
    Ali72 Ali72 51-55 3 Responses Aug 10, 2008

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    My Story About Ee

    I have sever difficulty swallowing solid foods. Bread is difficult to eat but rice is manageable. I also get intermittent chest pain which radiates through to upper portion of my chest and to the throat. When pain occurs, if I eat anything (I usually keep apple or banana around...
    robert124 robert124 41-45 4 Responses Jul 4, 2011

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    My Poor Son!

    My son has been showing signs of EE since 2 months. Projectile vomiting, poor weight gain, colicky, very poor gag reflex, and till this day, currently 12 months will not open his mouth to eat solids one does he sleep through the night. He's been on Zantac from when he was 6...
    Reenaar Reenaar 22-25, F 1 Response Oct 14, 2013

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    My Husband Has Ee

    He was diagnosed a few months ago after getting sicker from gall bladder surgery and having an endoscope.  He is on flovent, singulair, and prevacid solutabs.  It really makes life miserable for him and myself seeing him go through how sick he is everyday.  The...
    farmr farmr 51-55 1 Response Dec 28, 2008

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    Advice

    It sounds like i mite have EE. ive started having trouble swallowing fiborous foods or just large bites of food ten years ago, im 37 now. it is abosolutely frustrating when food hangs up, having to find a bathroom and spit or constantly spit in a napkin until the food gradually...
    trooper1 trooper1 36-40 2 Responses Apr 24, 2009

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    Son With Ee

    Hello all. I have a five your old son who was diagnosed with EE about a year ago. He was always the chubby baby who loved to eat. When he was about 18 months to 2 years old we noticed that he became a very picky eater and was choking a lot. We took him to his PC and he put him on...
    mommyme2305 mommyme2305 26-30, F 1 Response Aug 4, 2012

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    Help, I'm Almost Alone In This.

    I was diagnosed 2 years ago with EE after having repeated troubles with swallowing worsening from 3 or 4 times a month to about once or twice a day.  I didn't realize until the diagnosis that I had been living with this for a very long time.  Recently I read about more...
    buckleygirl buckleygirl 18-21 5 Responses Aug 4, 2008

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    Adult Onset Eoe

    I have what I consider a "mild" case of EoE. Although I am forced to think about it nearly every time I eat anything, my case is not nearly as severe as most of the ones I have read about or that of the one other person I have met who has EoE (he is 2 yrs old). I guess you could...
    AndrewE27 AndrewE27 36-40, M 4 Responses Oct 19, 2011

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    'random' Ee

    Hi there. Writing about my husband and interested to know if anyone has any similiar story. He has had issues his whole life (without knowing what it was) and was told to not eat so fast etc. He does have a severe anaphylactic allergy to sesame seeds but seems to find with the EE...
    Trev70 Trev70 41-45 Aug 3, 2012

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    Eosinpohilic And Esophagitis

    My son was diagnosed with EE when he was 18 months. At that time he was allergic to milk, eggs, soy and peanut butter. His GI recommended Pulmicort Respules with Splenda. He takes .5 mg two times daily then and still does currently. The initial endoscopy revealed three main...
    Etotty01 Etotty01 26-30 2 Responses Jun 3, 2012

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    Ee And A Food Avoidance List I Laugh At...

    http://www.apfed.org is an excellent organization that has some good info on EE/EGID. First, I don't react to Histamine. We realized I had EE due to the many symptoms I had, and the unusual amount of foods that just "wouldn't stay down". Also, food and pills would get stuck. I...
    AllergicVegetarian AllergicVegetarian 46-50, F Jan 28, 2011

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    My Story Living With Eosinophilic Esophagitis

    I can remember the day I started getting choked my mom would say stop eating so fast and make sure to chew your food up good. Then I would have bad chest pain. I would say I am not eating fast and I am chewing it up good MOM. Then one day I was at work when I was sixteen and had...
    blessedwithtwo blessedwithtwo 22-25, F 1 Response May 15, 2012

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    A Ray Of Hope

    My son, who just turned 3, was diagnosed with EoE in June of 2011. He has an incredibly rare chromosomal abnormality (he is one of 5 people in the world diagnosed with it), is intellectually disabled and severely speech delayed, so between dealing with therapists, geneticists...
    Abby318 Abby318 26-30, F 1 Response Jul 11, 2012

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    Eosinophilic At 16

    While i was growing up i always would choke on food but no one ever thought it was that big of a deal. Then when i was 7 i started becoming allergic to many foods, starting with all raw fruits and vegetables. Every year i would get a new allergy. I went to my regular doctor about...
    hessica1516 hessica1516 16-17, F Nov 12, 2012

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    Furious About What Is Going In Our Foods

    I'm 25 and was diagnosed with EE 2 years a ago. I was a vegetarian for over a year at the time and my first reactions were to sugar free gum. By the third day of it I stoped becaue it went from annoying to painful. By then it was to late and I started getting sick no matter what...
    luv4boxing luv4boxing 22-25 1 Response Aug 19, 2010

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    Eoe And Me

    I was diagnosed with EoE about two weeks ago after suffering dysphasia for over twelve years. My doctor has me on antacids twice a day but they make me feel nauseous. He wanted me to take them for two weeks then call him. Well, I do not want to continue something that doesn't...
    klol828 klol828 36-40, F Sep 22, 2012

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    Recently Diagnosed, I Think...

    I am a 32 year old female that was just recently diagnosed with Eosinphilic esophagitis.  I began having problems maybe 2 years or so ago but it was very infrequent.  I would be eating or drinking something and it would get stuck in my throat.  I learned that I can't force it...
    fresh09 fresh09 31-35, F 2 Responses Jan 18, 2012

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    Diagosed With Ee At 27

    Hello to anyone reading this. I know you will understand me here. I am a 27yr old female and I was diagnosed with Eosinophilic Esophagitis in April 2009. I am currently on an elmination diet and I also take Flovent and Prilosec to help with the awful symptoms of food getting...
    FreedomK FreedomK 26-30, F 8 Responses Sep 8, 2009

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    My Daughter And Ee

    My now 24 year old daughter has been diagnosed with EE. She got a smallbite of meat (burger for sloppy joes) lodged in her throat a year ago. After 6 hours, and the ER trying all their tricks, she was taken to emergency surgery to get it removed. She was told she had a stricture...
    Mom8687 Mom8687 51-55 Mar 1, 2012

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    My son was diagnosed

    when he was 19 months old (just under a year ago). When he was diagnosed his eosinophils numbered greater than 100/hpf in the area of greatest concentration. In his mid-esophagus, his eosinophils number 40/hpf. Allergy testing indicated allergies to chicken, beef, pork, soy...
    tgirl523 tgirl523 31-35, F 1 Response Jan 24

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    I No Longer Have Eosinophilic Esopphagitis

    I was diagnosed with Eosinophilic Esophagitis 4 years ago by a gastrointestinal doctor. My symptoms included my esophagus spasming, acid gurgling up my throat, and at one point, I even had bile coming up to my mouth. I was a wreck. The doctor perscribed Nexium like medicine and...
    behealed behealed 41-45 2 Responses Sep 26, 2012

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    Eosinophilic Esophagitis And Gastric Bypass Surgery

    I am trying to see if anyone out there has had Weight Loss Surgery that has Eosinophilic Esophagitis. I had the lap band placed February 2012, but due to complications with the EE and my band I had to have it removed. My surgeon is reluctant to do bypass surgery without knowing...
    mykkyee mykkyee 26-30, F Oct 2, 2012

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    Scared With Eosinophilic Esophagitis

    I'm a 22 year old woman who was just diagnosed with EE about 6 weeks ago. For at least 5 years, I had been experiencing acid reflux with occasional trouble swallowing solid foods. I didn't find it to be enough of a problem to be seen by a doctor and I was treating the reflux on...
    gmary gmary 22-25 2 Responses Jul 23, 2011

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    Ee

    My allergy specialist is now sending me back to my GI.  I am thoroughly confused because I tested positive for EE.
    Becca1974 Becca1974 36-40 May 24, 2012

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    3 Kids With Eoe

    I have three children diagnosed with eoe in 2006. They have been taking Flovent which has been controlling the inflammation. Nine months ago they were weaned off Flovent and began the 6 food elimination diet (NO wheat, soy, milk, eggs, fish, or nuts) Two children are now in...
    marks090 marks090 46-50 1 Response Mar 12, 2012

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    An Uncommon Disease

    When I was 12 I started having problems throwing up, everything would just come up-including water. So after 4 years and 4 scopes of not knowing what was going on I was diagnosed with EE. They've tried everything, prednisone, flovent, advair and an array of allergy medicines to...
    allisonkay allisonkay 16-17 3 Responses Sep 8, 2010

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    I'm A 25 Year Old Mom Of 2 And What Is This????

    Ok so it has been 2 weeks since I found out that I have EE and quite honestly I have no idea what the the FREAKIN world is going on with me. It started after having my hubby go away and me being very stressed which brought on horrible acid reflux which i kind of let go till my...
    TheMrsF TheMrsF 26-30, F 8 Responses Sep 24, 2010

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    New Ee Diagnosis... Several Questions??

    Happy New Year! I have a few questions and I am hoping anyone can help me out. I was was given the diagnosis of EE on Christmas Eve. I had a biopsie done the week before and they wanted to give me the result before the long weekend. They told me the doctor would be in contact...
    jbkerr04 jbkerr04 31-35, F 7 Responses Jan 1, 2011

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    A Long Story

    When I was about 13, I got really sick. I've never been a healthy person, but all of a sudden it got really bad. I couldn't keep anything down. I was puking 8-10 times a day, and there was nothing I could do to stop it. I started staying home from school a lot, and coming home...
    neverstopsmiling neverstopsmiling 18-21, F 2 Responses Mar 31, 2012

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    The Situation With My Eosinophilic Esophagitis

    I am 14 years old now and I was diagnosed with EE when I was 11. Every meal I had complained of chest pain and hard to swallow food. I was luckily not vomiting, but every once in a while I would choke, but it was not often enough for me to realize a pattern. My mom got really...
    azamericangirl azamericangirl 13-15, F 1 Response Sep 27, 2013

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    My Eoe Story - Need Elemental Diet Suggestions

    Where to start.. I guess the beginning... I was diagnosed with EoE in April 2010 at age 24(female if you're wondering). My entire life I have had the pleasure of not enduring any kinds of gastro problems including reflux ever. I have always been able to eat whatever I want, when...
    tonijones1134 tonijones1134 22-25, F 20 Responses Feb 16, 2011

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    Struggling On Elimination Diet

    I have had problems all my life, I barely remember them as a child but I do remember craving sweet foods and still being very small. In my teenage years I craved sweet foods so badly I was obese. I had no energy and anything else made me vomit. But this was all in my head...
    Boringfood Boringfood 41-45, F Jan 25, 2013

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    Elemental Diet

    I recently got skin ***** food allergy testing and am allergic to 90% of the 50 foods tested. My allergist also believes I have Eosinophilic Esophagitis, and he is probably right because food gets stuck in my throat for a few hours after eating. He referred me to get tested for...
    Kathrynscreation88 Kathrynscreation88 22-25, F 1 Response Apr 28, 2013

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    What Are Your Symptoms???

    July 2012 I was hospitalized with severe chest pain/stomach pain and diagnosed with gastritis and ee. I had never heard of ee and my GI doc wasn't very knowledegable about it. He put me on Prilosec and sent me to get allergy testing. I had a very, very low positive blood test...
    leom0910 leom0910 31-35 1 Response Aug 10, 2013

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    Eoe.

    I was diagnosed with EoE January 9th, 2013. My life changed forever the day we got the call. It's never been the same. I've had to grow up fast and learn responsibility because EoE is not my only medical problem.
    BrittneyJean15 BrittneyJean15 16-17, F 3 Responses Oct 22, 2013

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    I Am On It

    I am 15 years old and I am on this new treatment. I have had EE for 3 years now and they just switched me to this last month after another endoscopy. So far it has been really good for me. My condition is getting better and I have finally gained some weight(I lost 30 pounds from...
    rkelly2014 rkelly2014 16-17 Jul 5, 2013

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    Looking for help!! I feel very overwhelmed at

    this new diagnoses. It really seemed to come out of no where. I was having difficultly swallowing like most etc. The whole processes was fast.. got the endoscopy done (biopsies, two preulcers, and dialation). The biopsies came back as ee and I was put on prilosec, flovent and...
    jclewis33 jclewis33 26-30, F 1 Response Jan 25

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    Question

    I was just diagnosed. I have asthma and allergies, too. Does anyone else have any other medical problems? I was diagnosed out of the blue with peripheral artery disease earlier this year. I don't know what caused it, and I wonder if this is related at all.
    amy5 amy5 31-35 1 Response Sep 20, 2008

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    Gm Foods And Allergies

    please look into GM foods as i think there may be a link with them and allergies . the time line adds up ie this illness has only been seen in the last 15 year just when gm foods have been put out into the poulation .do some research about the heath problems that go with gm...
    traceyconnor traceyconnor 36-40 Feb 3, 2013

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    Ee...confused And Dazed!

    Hi All, I have a son with a complicated story......and I am hoping to get some input. My son is 8 and has anaphylaxis to dairy, eggs, peanuts and tree nuts. We have managed his food allergies by strict avoidance and have learned to carry on with life in a somewhat normal...
    mcleanl mcleanl 41-45 6 Responses Aug 1, 2012

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    Found Out I Had EE Two Weeks Ago

    Hi all.  I'm a 57 year young lady diagnosed with EE two weeks ago.  I started with acid reflux years before but ignored it for a long time.  I finally got medication to help that, but the damage to my esophagus had already been done.  I noticed about 4 years...
    suntashie suntashie 56-60, F 10 Responses Sep 12, 2009

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    In Remission

    I am 53, I was diagnosed with EE about 3 years ago.  I went through food allergy testing and was allergic to over 25 foods.  I went through the rotation diet etc. to verify what I was allergic to and what I wasn't, and I find new foods quite often.  I eliminated...
    joyster joyster 51-55 4 Responses Oct 5, 2010

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    I was diagnosed with EOE a few weeks ago.

    I am 38 yrs old and just got my Dr to address my choking on foods.
    alexad alexad 36-40, F Jan 22

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    My Son & Daughter Have Ee

    My name is Jackie and both my children have EE.  When my daughter was 5 years old she started having problems and getting real sick.  The Dr.s were very confused about what was going on.  Then one day her pcp said I should take her to see an allergist and the allergist sent...
    JackieGermano JackieGermano 31-35, F 1 Response May 16, 2012

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    My Little Man Has Eosinophilic Esophagitis

    At six months old one of my twin sons started vomiting continuously, he was admitted to hospital and diagnosed with rota virus, milk and egg allergy and reflux. He was put on a dairy and egg free diet and given medicine for his reflux. The vomiting continued daily for 16 months...
    mummyx4 mummyx4 31-35 1 Response Aug 21, 2012

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    I've Had Ee All My Life

    I have found out that I have pass ee on to may son we have had a couple of very hard years trying to pin point his allergies but we are getting there.  I have always had problems with eating but have a great gi doc. My son also has problems he is on a 3 year program with...
    kaz70 kaz70 36-40 1 Response Mar 21, 2009

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    My 20 Month Old Son Was Diagnosed With Food Allergies And Eosinophilic Esophagitis

    My son Cody, 20 months old, was diagnosed with severe food allergies 9 months ago. He is allergic to milk, soy, eggs, wheat, tomatoes, corn, rice, lentils, beans, peanuts, tree nuts, and oranges. 7 months ago he was diagnosed with Eosinophilic Esophagitis or to shorten it, EE...
    Codysmama Codysmama 26-30 4 Responses Mar 30, 2011

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    Daugher Diagnosed At Age 20

    My daughter was recently diagnosed with EE and is unable to eat any solid food. She hasn't eaten anything solid for 2 months now. She has list over 20 lbs and weighs on 88 lbs now. She has had 2 scopes and biopsies, allergy testing and is currently on 3 different medicines. I...
    please123 please123 18-21 4 Responses Sep 3, 2012

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    Eosinophilic Esophagitis

    I have been off work since May of 2009 - suffering from vomiting, severe central chest pains, inability to eat, fatigue, weakness and dizziness. I've had 4 EGD's (1 in '00 - 1 in '08 and 2 in '09) and the doctors in my city did biops on the first egd in 09 and found nothing. I...
    drak68 drak68 36-40, M 6 Responses Aug 29, 2009

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