I Eosinophilic Esophagitis

Personal Stories, Advice, and Support 157 People

    My son was diagnosed

    when he was 19 months old (just under a year ago). When he was diagnosed his eosinophils numbered greater than 100/hpf in the area of greatest concentration. In his mid-esophagus, his eosinophils number 40/hpf. Allergy testing indicated allergies to chicken, beef, pork, soy...
    tgirl523 tgirl523
    36-40, F
    1 Response Jan 24, 2014

    I'm A 25 Year Old Mom Of 2 And What Is This????

    Ok so it has been 2 weeks since I found out that I have EE and quite honestly I have no idea what the the FREAKIN world is going on with me. It started after having my hubby go away and me being very stressed which brought on horrible acid reflux which i kind of let go till my...
    TheMrsF TheMrsF
    26-30, F
    9 Responses Sep 24, 2010

    Hi my name is Mel and just been told I have EE.

    It all started a month ago choking and problems swallowing food ended up in emerge and had a endoscopy, the G.I doctor said it was from caused from acid-reflex but I wonder allergies told? I've always had problems since a child digesting food with sharp pains, bloating and...
    Mel444 Mel444
    46-50, F
    1 Response Nov 14, 2014

    Adult Onset Eoe

    I have what I consider a "mild" case of EoE. Although I am forced to think about it nearly every time I eat anything, my case is not nearly as severe as most of the ones I have read about or that of the one other person I have met who has EoE (he is 2 yrs old). I guess you could...
    AndrewE27 AndrewE27
    36-40, M
    4 Responses Oct 19, 2011

    I No Longer Have Eosinophilic Esopphagitis

    I was diagnosed with Eosinophilic Esophagitis 4 years ago by a gastrointestinal doctor. My symptoms included my esophagus spasming, acid gurgling up my throat, and at one point, I even had bile coming up to my mouth. I was a wreck. The doctor perscribed Nexium like medicine and...
    behealed behealed
    4 Responses Sep 26, 2012

    Eosinophilic At 16

    While i was growing up i always would choke on food but no one ever thought it was that big of a deal. Then when i was 7 i started becoming allergic to many foods, starting with all raw fruits and vegetables. Every year i would get a new allergy. I went to my regular doctor about...
    hessica1516 hessica1516
    18-21, F
    Nov 12, 2012

    I have been dealing with swallowing difficulties

    for about 3 years. I had a barium X-ray done 3 years ago which must have come back normal as no one called me to say otherwise. Lately in the past 6 months the swallowing foods has become more and more frequent. I finally went to my family doctor (a different one) and she...
    AngelaDT AngelaDT
    1 Response Jul 24, 2015

    Scared With Eosinophilic Esophagitis

    I'm a 22 year old woman who was just diagnosed with EE about 6 weeks ago. For at least 5 years, I had been experiencing acid reflux with occasional trouble swallowing solid foods. I didn't find it to be enough of a problem to be seen by a doctor and I was treating the reflux on...
    gmary gmary
    2 Responses Jul 23, 2011

    Found Out I Had EE Two Weeks Ago

    Hi all.  I'm a 57 year young lady diagnosed with EE two weeks ago.  I started with acid reflux years before but ignored it for a long time.  I finally got medication to help that, but the damage to my esophagus had already been done.  I noticed about 4 years...
    deleted deleted
    7 Responses Sep 12, 2009

    I Was Diagnosed Years Ago, But Seem To Be In A Lull?

    My whole life, I was never allergic to anything. Poison oak and ivy meant nothing to me. Then, all of the sudden, around ninth grade I became allergic to the world. Most foods (including lettuce) were off limits. This involved 3 surgeries to remove food from my throat when it...
    molloyce molloyce
    Jun 27, 2011

    One Year And Four Months With E.E. and back on the Flovent

    In Feb 2010 I was eating lunch at work, of course it was steak, and I suddenly couldn't swallow. I tried for a half hour forcing small ammounts of water down, only to have it back up until it tripped my gag reflex. I finally drove myself to the urgent care, and they wouldn't...
    ic3ss ic3ss
    41-45, M
    3 Responses Jun 17, 2011

    My Little Man Has Eosinophilic Esophagitis

    At six months old one of my twin sons started vomiting continuously, he was admitted to hospital and diagnosed with rota virus, milk and egg allergy and reflux. He was put on a dairy and egg free diet and given medicine for his reflux. The vomiting continued daily for 16 months...
    mummyx4 mummyx4
    1 Response Aug 21, 2012

    Diagosed With Ee At 27

    Hello to anyone reading this. I know you will understand me here. I am a 27yr old female and I was diagnosed with Eosinophilic Esophagitis in April 2009. I am currently on an elmination diet and I also take Flovent and Prilosec to help with the awful symptoms of food getting...
    FreedomK FreedomK
    26-30, F
    9 Responses Sep 8, 2009

    Looking for help!! I feel very overwhelmed at

    this new diagnoses. It really seemed to come out of no where. I was having difficultly swallowing like most etc. The whole processes was fast.. got the endoscopy done (biopsies, two preulcers, and dialation). The biopsies came back as ee and I was put on prilosec, flovent and...
    jclewis33 jclewis33
    26-30, F
    1 Response Jan 25, 2014

    Hello! I was diagnosed with EoE at the age of 6

    and I've been coping with it ever since. If anyone has recently been diagnosed or needs help dealing with their EoE feel free to ask me!
    amwinterrowd amwinterrowd
    18-21, F
    Dec 18, 2014

    Ee...confused And Dazed!

    Hi All, I have a son with a complicated story......and I am hoping to get some input. My son is 8 and has anaphylaxis to dairy, eggs, peanuts and tree nuts. We have managed his food allergies by strict avoidance and have learned to carry on with life in a somewhat normal...
    mcleanl mcleanl
    6 Responses Aug 1, 2012

    New Ee Diagnosis... Several Questions??

    Happy New Year! I have a few questions and I am hoping anyone can help me out. I was was given the diagnosis of EE on Christmas Eve. I had a biopsie done the week before and they wanted to give me the result before the long weekend. They told me the doctor would be in contact...
    jbkerr04 jbkerr04
    31-35, F
    7 Responses Jan 1, 2011

    The Situation With My Eosinophilic Esophagitis

    I am 14 years old now and I was diagnosed with EE when I was 11. Every meal I had complained of chest pain and hard to swallow food. I was luckily not vomiting, but every once in a while I would choke, but it was not often enough for me to realize a pattern. My mom got really...
    azamericangirl azamericangirl
    18-21, F
    1 Response Sep 27, 2013

    Hi I was Diagnosed with EOE last February at

    the age of 17. Now looking back more on my childhood I am noticing the throat problems, allergic reactions and GERD from a young age. Right now I have had 3 Endoscopys and of course the allergy test which proved positive on tomatoes, strawberry, egg, milk, beef, tree nuts, and...
    Helenelenitsa Helenelenitsa
    18-21, F
    1 Response Dec 23, 2014

    Elemental Diet

    I recently got skin ***** food allergy testing and am allergic to 90% of the 50 foods tested. My allergist also believes I have Eosinophilic Esophagitis, and he is probably right because food gets stuck in my throat for a few hours after eating. He referred me to get tested for...
    Kathrynscreation88 Kathrynscreation88
    26-30, F
    1 Response Apr 28, 2013

    My Story Living With Eosinophilic Esophagitis

    I can remember the day I started getting choked my mom would say stop eating so fast and make sure to chew your food up good. Then I would have bad chest pain. I would say I am not eating fast and I am chewing it up good MOM. Then one day I was at work when I was sixteen and had...
    blessedwithtwo blessedwithtwo
    22-25, F
    2 Responses May 15, 2012

    Gm Foods And Allergies

    please look into GM foods as i think there may be a link with them and allergies . the time line adds up ie this illness has only been seen in the last 15 year just when gm foods have been put out into the poulation .do some research about the heath problems that go with gm...
    traceyconnor traceyconnor
    1 Response Feb 3, 2013

    I Am On It

    I am 15 years old and I am on this new treatment. I have had EE for 3 years now and they just switched me to this last month after another endoscopy. So far it has been really good for me. My condition is getting better and I have finally gained some weight(I lost 30 pounds from...
    rkelly2014 rkelly2014
    2 Responses Jul 5, 2013

    My Story About Ee

    I have sever difficulty swallowing solid foods. Bread is difficult to eat but rice is manageable. I also get intermittent chest pain which radiates through to upper portion of my chest and to the throat. When pain occurs, if I eat anything (I usually keep apple or banana around...
    robert124 robert124
    4 Responses Jul 4, 2011

    Eosinpohilic And Esophagitis

    My son was diagnosed with EE when he was 18 months. At that time he was allergic to milk, eggs, soy and peanut butter. His GI recommended Pulmicort Respules with Splenda. He takes .5 mg two times daily then and still does currently. The initial endoscopy revealed three main...
    Etotty01 Etotty01
    3 Responses Jun 3, 2012

    Struggling On Elimination Diet

    I have had problems all my life, I barely remember them as a child but I do remember craving sweet foods and still being very small. In my teenage years I craved sweet foods so badly I was obese. I had no energy and anything else made me vomit. But this was all in my head...
    Boringfood Boringfood
    41-45, F
    1 Response Jan 25, 2013

    'random' Ee

    Hi there. Writing about my husband and interested to know if anyone has any similiar story. He has had issues his whole life (without knowing what it was) and was told to not eat so fast etc. He does have a severe anaphylactic allergy to sesame seeds but seems to find with the EE...
    Trev70 Trev70
    1 Response Aug 3, 2012

    12 Month Old With EE

    My son was diagnosed with EE when he was 9 months old. We have seen a GI specialist and an allergist. He had skin ****** done but everything came back negative. I'm starting him on the 6 food elimination diet. Does anyone have any experience with this? I just don't know what else...
    alisha05 alisha05
    4 Responses Jun 7, 2013

    My son will be 6 years old next month.

    In August it will be 4 years since he was diagnosed with Eosinophilic Esophagitis. It all started out as vomiting a lot, it's the only symptom he has had. He had his first scope done which resulted in the diagnosis. We were sent to an allergy Doctor for skin testing, nothing...
    candacej52 candacej52
    31-35, F
    3 Responses Jun 18, 2014


    I have always had a problem with swallowing for as long as I can remember. Everything I eat gets caught in my throat. Even back when I was young and going to school my family would always ask why I would push on my throat to get food down. Now I am 42 and a few years back my...
    kmf405 kmf405
    41-45, M
    3 Responses Feb 22, 2011

    My Eoe Story - Need Elemental Diet Suggestions

    Where to start.. I guess the beginning... I was diagnosed with EoE in April 2010 at age 24(female if you're wondering). My entire life I have had the pleasure of not enduring any kinds of gastro problems including reflux ever. I have always been able to eat whatever I want, when...
    tonijones1134 tonijones1134
    22-25, F
    23 Responses Feb 16, 2011

    Furious About What Is Going In Our Foods

    I'm 25 and was diagnosed with EE 2 years a ago. I was a vegetarian for over a year at the time and my first reactions were to sugar free gum. By the third day of it I stoped becaue it went from annoying to painful. By then it was to late and I started getting sick no matter what...
    luv4boxing luv4boxing
    1 Response Aug 19, 2010

    Daugher Diagnosed At Age 20

    My daughter was recently diagnosed with EE and is unable to eat any solid food. She hasn't eaten anything solid for 2 months now. She has list over 20 lbs and weighs on 88 lbs now. She has had 2 scopes and biopsies, allergy testing and is currently on 3 different medicines. I...
    please123 please123
    5 Responses Sep 3, 2012

    Ee And A Food Avoidance List I Laugh At...

    http://www.apfed.org is an excellent organization that has some good info on EE/EGID. First, I don't react to Histamine. We realized I had EE due to the many symptoms I had, and the unusual amount of foods that just "wouldn't stay down". Also, food and pills would get stuck. I...
    AllergicVegetarian AllergicVegetarian
    46-50, F
    Jan 28, 2011

    Someone out there please help,

    I am having a lot of trouble breathing with E.E and I'm scared im going to die please can someone tech out to me . I'm 13 and scared
    Dane4210 Dane4210
    1 Response Jun 28, 2015

    Recently Diagnosed, I Think...

    I am a 32 year old female that was just recently diagnosed with Eosinphilic esophagitis.  I began having problems maybe 2 years or so ago but it was very infrequent.  I would be eating or drinking something and it would get stuck in my throat.  I learned that I can't force it...
    fresh09 fresh09
    31-35, F
    3 Responses Jan 18, 2012

    My Poor Son!

    My son has been showing signs of EE since 2 months. Projectile vomiting, poor weight gain, colicky, very poor gag reflex, and till this day, currently 12 months will not open his mouth to eat solids one does he sleep through the night. He's been on Zantac from when he was 6...
    Reenaar Reenaar
    26-30, F
    1 Response Oct 14, 2013

    I was diagnosed with EOE a few weeks ago.

    I am 38 yrs old and just got my Dr to address my choking on foods.
    alexad alexad
    41-45, F
    1 Response Jan 22, 2014

    A Ray Of Hope

    My son, who just turned 3, was diagnosed with EoE in June of 2011. He has an incredibly rare chromosomal abnormality (he is one of 5 people in the world diagnosed with it), is intellectually disabled and severely speech delayed, so between dealing with therapists, geneticists...
    Abby318 Abby318
    26-30, F
    1 Response Jul 11, 2012

    My daughter was diagnosed with EE at 20 months.

    We are still struggling with finding all the foods she is allergic to. She has had ***** testing and that has been helpful, but not completely telling. Because she can't communicate a lot to us we are wondering about another form of testing. My doctor has had a lot of...
    jessi979 jessi979
    36-40, F
    3 Responses May 11, 2014

    Eosinophilic Esophagitis

    I have been off work since May of 2009 - suffering from vomiting, severe central chest pains, inability to eat, fatigue, weakness and dizziness. I've had 4 EGD's (1 in '00 - 1 in '08 and 2 in '09) and the doctors in my city did biops on the first egd in 09 and found nothing. I...
    drak68 drak68
    36-40, M
    6 Responses Aug 29, 2009

    Hello, I am 37 years old!

    I was diagnosed with EE several years ago. I am still having issues! I am taking 40 mg of Prilosec and swallowing pulmicort and Splenda. I was had a scope a couple of weeks ago. They did not have to dialate at all which is a good thing. The problem I am having is after I eat my...
    cplace55 cplace55
    36-40, M
    1 Response Jan 4, 2016


    I was diagnosed about a month ago. I'm taking QVAR (beclomethasone) inhaler and swallowing it. I have been having problems swallowing for about 3-4 years now and this has gotten worse over time, ut I did nothing about it until I got a tablet stuck in my throat and my wife called...
    fraser1234 fraser1234
    1 Response Sep 16, 2008

    Eoe And Me

    I was diagnosed with EoE about two weeks ago after suffering dysphasia for over twelve years. My doctor has me on antacids twice a day but they make me feel nauseous. He wanted me to take them for two weeks then call him. Well, I do not want to continue something that doesn't...
    klol828 klol828
    36-40, F
    1 Response Sep 22, 2012

    Eosinophilic Esophagitis And Gastric Bypass Surgery

    I am trying to see if anyone out there has had Weight Loss Surgery that has Eosinophilic Esophagitis. I had the lap band placed February 2012, but due to complications with the EE and my band I had to have it removed. My surgeon is reluctant to do bypass surgery without knowing...
    mykkyee mykkyee
    26-30, F
    2 Responses Oct 2, 2012

    Son With Ee

    Hello all. I have a five your old son who was diagnosed with EE about a year ago. He was always the chubby baby who loved to eat. When he was about 18 months to 2 years old we noticed that he became a very picky eater and was choking a lot. We took him to his PC and he put him on...
    mommyme2305 mommyme2305
    26-30, F
    1 Response Aug 4, 2012

    Was watching the news

    and heard a story about EE and realized I had been suffering from it for years. Would come and go and hard to pinpoint what caused it (protein seemed to be suspect). Food would clump up with mucus in my Esophagus. Could not swallow. Only way to relieve was to vomit up the clump...
    Cedar13 Cedar13
    70+, M
    May 10, 2014

    What Are Your Symptoms???

    July 2012 I was hospitalized with severe chest pain/stomach pain and diagnosed with gastritis and ee. I had never heard of ee and my GI doc wasn't very knowledegable about it. He put me on Prilosec and sent me to get allergy testing. I had a very, very low positive blood test...
    leom0910 leom0910
    2 Responses Aug 10, 2013

    In Remission

    I am 53, I was diagnosed with EE about 3 years ago.  I went through food allergy testing and was allergic to over 25 foods.  I went through the rotation diet etc. to verify what I was allergic to and what I wasn't, and I find new foods quite often.  I eliminated...
    joyster joyster
    5 Responses Oct 5, 2010
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