I Had a Pilonidal Cyst

Personal Stories, Advice, and Support 105 People

    Scared, Unsure, In Lots of Pain...

    I just found out four days ago what this horrible, painful swollen thing on my butt is. I've been warring with this problem, not knowing what it was, but now I finally know that it is a pilonidal cyst, and I know how to beat it and pretty soon I'm going to have it removed...
    kami6887 kami6887
    18-21, F
    10 Responses Mar 30, 2008

    Four Surgeries In

    I'm 19 and this started when I was 16. I didn't have the first surgery till winter of 2011. It has taken a toll on me but I'm staying positive through the whole ordeal. In at some point this will be over. I just can't wait to get there.
    HaydenIvins HaydenIvins
    22-25, M
    Jun 11, 2013

    This Is Just Awful

    I had my first flair up almost a year ago. It was a excruciating and terrifying experience. After over a week of losing sleep and suffering through the horrible pain I went to the ER in the middle of the night because I couldn't take it any more when there they informed me they...
    paintgirl89 paintgirl89
    26-30, F
    2 Responses Sep 28, 2013

    Hi. My name is Ashton

    and I'm 17 years old. This is my story. It was my freshmen year of high school; a new school and new adventures with new friends. I was ready for the best years of my life. In October of 2012, I started noticing I wasn't feeling well. I was bleeding every time I went to the...
    fairywarrior211 fairywarrior211
    18-21, F
    3 Responses Sep 27, 2014


    Hey, so iv had my cyst for a while, i was prescribed antibiotics and it did nothing. I saw a plastic surgeon today and i have to have surgery with him and a colon rectal surgeon. Im honestly terrified. Iv seen pics of the aftermath and the scars, im just rllly scared, im hoping...
    jenxoxo21 jenxoxo21
    22-25, F
    1 Response Aug 21, 2013

    The Pain In My A** That Will Not Go Away

    This story is long.  I had a Pilonidal and I am STILL dealing with the aftermath.  I noticed the cyst around November, 2007.  I thought it was an infected hair from the tanning bed.  Man, oh, man was I wrong.  I had surgery...
    DMBdreamingtree DMBdreamingtree
    18-21, F
    15 Responses Oct 24, 2009

    I Have A Pilnodial Cyst

    before i start can i just say that that picture for this group has made me laugh so much its even stopped me crying lol so anyway, i have pilnodial cyst which i think u may have got from the title of this, its the third time this year that i have had it but i think out of all...
    tinyyetlarge tinyyetlarge
    2 Responses Nov 27, 2011

    Once upon a time in my aerobics class,

    I slipped on my own sweat while doing triceps dips and landed hard. It was fine. I got right back up and did what I had to do. All my life I've suffered what I thought was an easily bruised tailbone. This time though, the pain didn't go away. I thought I had fractured it this...
    BuzzFanatic BuzzFanatic
    22-25, F
    Jan 25, 2015

    Monstrosity Of Evil

    My first brush with this horrid thing was when I was 12! I noticed tenderness around my tailbone. The next day I couldn't even move so my mother brought me to my primary care doctor. I couldn't even stand straight. So as my doctor poked at it and I yelled she told me we were...
    Ndac20 Ndac20
    18-21, F
    Sep 5, 2013

    Two Cysts, Three Surgeries Later...

    I had my first pilonidal cyst in 2007 during my senior year of high school. my doctor took a look and sent me to my surgeon, who said it was badly infected, extremely large, and also fairly deep. the thing that was probably the hardest about it was having to do bandage changes...
    kjohnsen21 kjohnsen21
    26-30, F
    1 Response Sep 17, 2013

    I have suffered with a pilonidal cyst issue

    for a few years and have recently found a miracle remedy. It's not a cure and I am still scheduling surgery to remove sinus that formed. Turmeric! I have added 2 teaspoons total a day to my diet and my cyst has reduced to nothing. I have not changed my diet and I just wanted to...
    MoonAngelAsad MoonAngelAsad
    41-45, M
    Feb 13, 2015

    My first experience with this awful disease was

    about 4 years ago. I had a terrible pain that got increasingly worse over the course of a week. I initially went to the doctor and he prescribed me antibiotics. I took them as directed but I think the cyst was too far gone. It ended up swelling to the size of a golf ball. The...
    Imnothomeyet Imnothomeyet
    26-30, F
    2 Responses Apr 3, 2015

    Please help me out I Need Advice Asap Im Scared

    I started out with a small pain that only came when i sat down or got up. Then over the next few days the pain got worse so i went to the doctor and found out i had PILONIDAL CYST they gave me antibiotics and said let it clear up. The next few days the pain got really bad to the...
    esnow92 esnow92
    18-21, F
    3 Responses Jul 13, 2010

    The Excruciating Pain Above My Butt!

    It happened june 2009, i was relaxing at the start of my summer break from school. I was involved in the usual lazy activities of the vacation, when i started to feel a certain acute pain right above my butt. I first thought, "maybe its just because i slept funny, or my muscles...
    ljbizzle42 ljbizzle42
    18-21, M
    5 Responses Feb 23, 2010

    My Pilonidal Experience

    I got a pilonidal cyst three years ago when I was 16. Sense then, my life has never been the same. I am still unable to sit on anything hard and my skin has become extremely sensitive everywhere. It's like what should be a normal recurrence of leakage, is instead leaking under my...
    Beachy4 Beachy4
    2 Responses Aug 3, 2009

    Hi there, I had a pilonidal disease too.

    Two years ago I went all the way from UK to Rome (Italy) to see Dr. Luigi Basso, who performs a minimally invasive procedure (Bascom-Gips Israeli procedure). He sorted me out in a few days, no pain, healed within one week. No scars, back to work in a few days. Excellent English...
    LordLucan15 LordLucan15
    46-50, M
    Mar 10, 2016

    My Own Horrid Experience. :)

    I am a female and mine first showed up at 16 years of age.  I am now 54.  These last 8 years I've gotten them every other year, sometimes back to back. The first serious incidence it got the size of a large lemon and almost covered the entire area of my right...
    lvnbutterfly lvnbutterfly
    51-55, F
    5 Responses Sep 18, 2008

    36 Hours Of Mayhem!!

    My husband developed one of these last year. One day the skin below his tailbone hurt, i looked that night and he had a small lump so we left it. The next day he complained all day about that pain getting very angry and frustrated. I looked at it that afternoon and it had...
    Rocks08 Rocks08
    22-25, F
    1 Response Jul 23, 2011

    Whenever I found myself in pain

    or discomfort, I'd always try to pump myself up by saying, "You've been through worse." It helped keep my spirit up. But I can promise you I have never experienced anything that can trump my dysmenorrhea with flying colors until now. I'm 18 and I just started college a few...
    lovealyssa lovealyssa
    22-25, F
    2 Responses Sep 16, 2014

    A Rare Thing In Common

    I started noticing I had problems with a sore tailbone area when I was 14-15 years old. I immediately thought it started from falling on a hurdle during a track meet. Little did I know.... The pain kept getting worse and I began developing a purple knot right above my bottomcrack...
    chendrix1234 chendrix1234
    22-25, F
    Jun 10, 2013

    My mom has one on her crack

    and it do not hurt her but has been there for like 14 years at one point it got real big and would pop and it smelled like something died in there a couple of years ago we went to Puerto Rico and it was bothering her and it had popped and she smelled like a homeless person who...
    lanenalee lanenalee
    36-40, F
    Sep 7, 2015

    April, 2006

    At the time... I worked for the local humane society. I worked my *** off, scrubbing kennels, cleaning poop from various places, walking dogs, feeding animals... That sort of thing. Well, when the pain in my tailbone started, I just assumed I'd fallen wrong on it, when yanked...
    iFortiTude iFortiTude
    1 Response May 22, 2008

    Just Got It Cleaned And Drained Today

    So I've just went through a very painful experience today. A cyst started to grow in my butt crack, third one I have gotten since I was about 18 or so. They are called pilonidal cysts. They hurt like hell. I don't know how I got it because I am very clean, but whatever. It came...
    Ashley868 Ashley868
    31-35, F
    9 Responses Aug 22, 2011

    Pain In The Butt!!

    I am currently a 28 year old female and had surgery on my PC back in 2008 -  I didn't really know what I was getting myself in to until after the surgery.  I saw my family doctor and was referred to a colon/rectal surgeon for this problem.  He was an amazing doctor and I...
    SweetMisery6783 SweetMisery6783
    3 Responses Jun 16, 2011

    My War With Pilonidal Cyst

    Back in July 2004  after work i came home  with this itchy and painfull small lump in my lower back and it been annoying me all day at work.  So basicly i got that fed up with it and I decided to pop it just by squeezing it with my hands.  Well I quickly found...
    Roperdo Roperdo
    22-25, M
    1 Response Dec 8, 2010

    5th Surgery On My Pilonidal Cyst!!

    Back in 2006 i had my first experience with this monster. I had a pain in the top of my butt crack cleft. It was very annoying and becoming unbearable.  I had no idea what was going on so I visited and ER. The Doctor said I had cellulitis. ( which is just a fancy word for...
    mandotolson mandotolson
    19 Responses Jan 23, 2012

    An Excruciatingly Painful Disease...

    This has been the most painful thing I have ever experienced, by far. I've read some women report that it was worse than childbirth (But I wouldn't know) Like many, I had this for a few years before I found out what it was. It would act up occasionally, but not for long and it...
    BitterParadox BitterParadox
    1 Response Jan 16, 2013

    Mine Is Gone And Here Is Why I Think It Won't Be Coming Back

    So, I've had issues with PC's since I was about 20. I'm a girl, and usually guys get them from what I understand; regardless, it's embarassing. After a really bad experience with an infected PC (I thought it was the flu), I wasn't sure how much longer I could avoid surgery for it...
    SurvivorPC SurvivorPC
    1 Response Aug 11, 2011

    1,5 months ago I noticed some blood coming out

    of a tiny hole near my but, so i went to a doctor and he said it was a Pilonidal sinus and i needed surgery. So two weeks ago I had my surgery, they removed the PC and left the hole open. Now two weeks later the wound is already closed for more than 50% and also during the whole...
    DennisOP DennisOP
    26-30, M
    3 Responses Dec 26, 2013

    Hi im a 21 yr old female,

    and So 2 weeks after giving birth, i noticed a pain in my tailbone area. I thought it was sore due to labor until i woke up 4 days after noticing the pain and there was a bump that hurt so bad i could barely walk. Thats when i went to the ER and they told me I had a pilonidal...
    tally92 tally92
    22-25, F
    1 Response Aug 21, 2014

    When I was 18 I fell down some icy stairs onto

    a concrete pad and landed on my butt. I immediately knew I had broke my tail bone. I suffered for about two weeks until I finally went to the doctors and they told me what I already knew (that I had broke my tailbone). There was nothing they could do... so about six months later...
    Jshort180 Jshort180
    22-25, M
    2 Responses Sep 21, 2015

    Pilonidal Cyst Removed!!

    so i'm 5 days out of surgery, must admit the nurse visiting every day is a pain but its gotta be done! things are looking up, i've only had to take 1 lot of pain killers today which i took 13 hours ago just for the pure fact of 'not so painful when having dressing changed' and i...
    tinyyetlarge tinyyetlarge
    1 Response Dec 3, 2011

    A couple months ago I had a pilonidal cyst

    removed. It's really not something I like talking about. In December I fell on my tailbone and ever since then my tailbone hasn't stopped hurting
    alainaoneill alainaoneill
    18-21, F
    1 Response Feb 3, 2014

    Hi guys. Me again. Yesterday,

    I went to the doctor. The news basically broke me. My plastic surgeon is out of ideas. After 9 surgeries on PC, he doesn't know what else to do. We are all exhausted from this awful disease. I've been getting pretty depressed lately. It's been hard for me, knowing even doctors...
    fairywarrior211 fairywarrior211
    18-21, F
    2 Responses Oct 1, 2014

    Pilonidal Cyst

    my 15 year old daughter was just diagnosed with a pilonidal cyst. we are very new to this and i had no idea so many people suffered from this condition. it is very painful for her and i havent really had alot of instruction from any doctors as what to do next i feel lost in all...
    naynay11 naynay11
    31-35, F
    3 Responses May 25, 2009

    I Have A Piloniodal Cyst

    I have had this condition for 15 yrs. had it drained multiple times. Had surgery about seven yrs ago. It came back. It's super embarrassing. ( I'm a girl) and really interferes with my life. Leaks constantly. I am not dirty Not sure why I have this. Scared it will develop into...
    Cbmum Cbmum
    41-45, F
    Nov 17, 2013

    Scared Of Surgery

    Hi everyone,  Long story, short.  3 years ago I went through 2 total knee replacements about 6 months apart. During recovery I noticed I was having trouble sitting for long periiods of time. I went to acupuncturist because I thought she could help my tailbone pain.  After she...
    dramatyme dramatyme
    1 Response Sep 26, 2011

    Hoping Its Over...

    I dealt with my pilonidal cyst for 15 years before finally getting it surgically removed. It started when I feel off a horse and landed on my tail bone. It hurt for weeks, but i figured it was related to the fall. It went away and I didn't think about it for a few months. Off and...
    psyche5 psyche5
    31-35, F
    Feb 7, 2013

    I Had a Pilonidal Cyst

    that begin to form and develop a small sinus tract in June of 2013. It was very painful to sit for long periods of time. Veterans Day of 2013 I had an outpatient operation done to remove the cyst and track. Weeks later, this previous Monday I went to my first follow-up and had...
    Crissy92 Crissy92
    22-25, F
    Dec 15, 2013

    I had a pilonidal cyst six months ago.

    I read many horror stories, and feared I would have this for the rest of my life. I know that it's still early to tell, but I am confident it is gone forever. It seems that my cyst turned into a huge golf ball over the course of 1 day. One day I was completely normal, and the...
    suzannesummers suzannesummers
    26-30, F
    Mar 12, 2016

    Hi everyone I am 42yrs old female & have

    suffered from this for 20yrs on & off!! Let me tell u I do understand your pain very much. I choose to have surgery last yr because it got so big like a size of a tennis ball & I am not joking it hurt so so much I thought it would burst like many others did,but that never...
    Meliminx Meliminx
    41-45, F
    2 Responses Nov 13, 2014

    Why & Why Not.?

    I just had surgery in the beginning of august, mind you im 16 . Reading these experiences gives me no hope whatsoever from ever leaving this behind, perhaps i'm too much of a pessimist. But gets one frustrated , because its holds one back from enjoying certain parts of life, its...
    lacunto3 lacunto3
    26-30, M
    1 Response Sep 7, 2013

    Theres A First Time For Everything!

    when I first started to notice signs of the cyst it was like a little pimple and I wasn't really sure so I looked up on Google what it could be and it said it was a pilonidal cysty but I thought no that's impossible so when I first figured out that I had something in a weird...
    JasmineIam JasmineIam
    22-25, F
    Sep 10, 2013

    Eddie Bondo

    I had my first Pilonidal cyst, PC about a year ago.  I named it eddie bondo after a character in a book i was reading at the time, it just sounded appropriate.  I had no insurance so I stuck it out.  It lasted about three months, going away and coming back in...
    mr165032 mr165032
    26-30, M
    4 Responses Oct 9, 2009

    Do Antibiotics Help???

    I've had this thing for almost 5 yrs now, on and off. It wasn't really painful in the beginning and still doesn't hurt that bad but it is discharging. I know i need surgery, but this is a bad time, with exams coming up. I just wanted to know if oral antibiotics has helped...
    DrwithPS DrwithPS
    22-25, M
    2 Responses Dec 29, 2011
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