I Had Arnold Chiari Malformation

Hi Im Cyndi, I have been suffering awfully for many years but up until this past 6 months I had chalked the memory loss, scatter-brained, headaches, light sensitivity, nausea all up to different things. I also have back issues so my Drs...

My mum had the decompression surgery in 2006. She is in constant pain, the right side of her body never lets up. Her arms and back are always in agony. I try to help her to the best I can to make life more comfortable to her.

After...

My name is Chilo. I was dx with Chiari & Syringomyelia in 1994. I've had the surgeries, done the whole gammit of everything we can think of. I even went as far as to have two neuralstimulators implanted for pain mgt. About a yr ago I...

Im Nikki and I'm 18 years old. I found out I had this Malformation in Oct. of 2010. I went to the doctors about my shoulder because it always hurt and it was diffucult to move it. I went into have a MRI of my neck and...

This entry made for those browsing the internet for information on symptoms matching: headache, neck pain, back pain, dizziness, vertigo, fainting, weakness, nausea, vomiting, arm or hand tingling, short term memory loss, confusion...

     Growing up I had bad hand-eye coordination, my eye sight kept getting worse, and I couldn't walk a straight line. Other symptoms I had included a constantly runny nose and I was told when snored it sounded like I was drowning...

I have been living in pain since I was 13, however I only found out about my CM in 2010. My doctors won't really listen to me and I have a lot of anxiety. I am in pain everyday. I also have scoliosis, which in turn comes with muscle and...

Just diagnosed last week, waiting to see a neurologist again this week. Last week my family doctor conferred with another neurologist who told him that "chiari does not cause slurred speech, stumbling, memory loss, or confusion. She has...

My name is Kellie and was diagnosed with Arnold Chiari Malformation in 2005 at age 27. I had symptoms since I was a teenager. I was diagnosed with "inner ear syndrome" for the ringing in my ears, clumsiness, and dizziness; migraines for...

After severe headaches, nosebleeds and feeling the back of my head at the neck swell I went to the doctor and was diagnosed with Arnold chiari Malformation.  When I first noticed pain I was about 16 but never paid much attention...

Hi. My name is Crystal. I am 25 years old and I was diagnosed with Chiari 1 Malformation. I was Rear end 3 years ago and almost exactly a year after that accident is when i started experiencing headaches. In February of 2010 i was...

So a cpl of days ago i was told that i have arnold-chiari malformation......Im scared........I dont know what to expect or what is expected of me

Okay, I was diagnosed with Chiari at age 19 (important to note that I was diagnosed bipolar I, panic disorder, and ADHD and treated, or I should say over medicated). I went to college after multiple inpatient hospitalizations (including...

I was so relieved to finally be diagnosed with something that answered all of my symptoms. Yesterday I was told by a neurologist that my chiari is not causing my symptoms of all over pain, muscle weakness, confusion, dizziness...

I was diagnosed in April of this year after a long bought of headaches, pressure in my head, ringing ears, losss of fine motor skills, hoarse voice, stiff neck, extreme fatigue, trembling hands, dizziness - the list goes on.  So...

I had another condition first caused by a stroke and while trying to stop that pain and other symptoms, I was blessed with an informed doctor who wanted me to endure yet another mri, so I said o.k. and sure enough there it was. Yes, I...

hello my name is emily i am 26 and i was originally diagnosed with a brain tumor when i was 10 in 1996 and that was taken out and then in 1998 i started having alot of headaches and nausea and vomiting and my voice got very horse and i...

Hi Everyone,

I have had a very long difficult Journey with CM1.

Briefly:

I became ill in 2001. Four years and 52 Specialists later I was sent to an incredible Neurosurgeon & was diagnosed with Bi Lateral Geniculate Neuralgia. I...

and dont seem to have made much improvement since my initial operation.I now have a shunt to help with abnormal pressure.My surgeon has chosen not to drain my syrinx in the spine saying it will move itself.I have since lost more...

After a car accident in 2002, I was found to have Arnold Chiari Malformation. It seems that the lack of knowledge in the neurological field on this disorder is widespread. I spiraled downhill for 2 years before I found the Chiari...