I Had Open Heart Surgery

Personal Stories, Advice, and Support 232 People

    I am so glad I found this site!

    I have a thoracic aortic aneurism that needs to be repaired. Its just a matter of when, I am still waiting for the appointment with the surgeon. Anyways I have googled myself into this state of panic. I am high anxiety in general and this news has made me crazy. I seemed to be...
    Ladytruee Ladytruee
    51-55, F
    2 Responses Aug 11, 2015

    I Have Had Open Heart Surgery

    3 months after my first son was born I had open heart surgery. It was something I was not prepared for and never expected. Before I had my surgery I'd see other people with their scar and think "holy **** that's scary, I couldn't imagine having to get that done". One night I...
    gidget696 gidget696
    31-35, F
    1 Response Sep 25, 2013

    Hello. I've just found this group

    and I haven't posted anything yet. But I really think this is the perfect way of starting. I was a newborn when I had my first surgery, and I've had four in all my life; two of them were heart surgery (the other two kidney and oesophagus surgery). I am very proud of my scars...
    yeja88 yeja88
    26-30, F
    Jan 2, 2016

    Widow Maker

    I started to have problems with shortness of breath, chest pain, arm and neck pain and breaking out in a cold sweat and shaking when I was 38 years old. my father had stints put in on several occassions and I suppose to be honest I feared the day I may have to do the same. I put...
    everydayjoe everydayjoe
    41-45, M
    3 Responses Nov 24, 2012

    I had an emergency triple bypass on June 16,

    2015. I'm having a very difficult time with this. So depressed and no one to talk with about it. I've had 2 setbacks , the most recent was a car accident only 5 weeks after surgery. I was at red light and hit from behind. All the progress I made is gone. Now along with the aches...
    sandylro sandylro
    56-60, F
    5 Responses Aug 7, 2015

    I had a thrombectomy in the ascending aorta of

    the heart. Had my surgery on January 6th. Still recovering and trying to get back to normal life. Would love to talk to someone going thru the same thing
    Narkaa Narkaa
    46-50, F
    1 Response Feb 19, 2014
    Jadewaves Jadewaves
    31-35, F
    2 Responses Feb 27, 2014

    I had my surgery done in January of 2014.

    I had a quadruple by-pass and an aortic valve replacement at 56. No stitches which makes it nice. Have been in and out of the hospital since surgery with chest pain but was told everything will get better as time passes. For the last week and a half I have been having chest and...
    spr52 spr52
    56-60, F
    2 Responses Apr 6, 2014

    hello!! please help!!

    I'm so glad I found all of you to ask my questions too! I am a 25 yr old female now and I was born about 4 Mnths premature so couple days after my birth I had open heart surgery. I'm not sure yet what specific one but my scar is on the left side of my body. when I was 16 I...
    croezoe croezoe
    26-30, F
    2 Responses Jan 7, 2016

    Ive Had Two Open Heart Surgery By The Age Of Twenty

    When i was sixteen years old i was diagnosed with endocarditis. Its a bacteria that atacks the mitral valve and then it turns into a veggie (basically its a piece of a virus growing on the mitral valve) its caused by black mold. At first the hospitial thought i had a...
    lildaddysdevil lildaddysdevil
    22-25, F
    3 Responses Jun 25, 2010
    Jadewaves Jadewaves
    31-35, F
    Feb 27, 2014


    i had a mild heart attack a few days ago, ended up in the hospital and now theyve kept me until my surgery scheduled for 11/29/11, and I am scared. Although the fear comes and goes, deep down I am afraid of the what could happen if things do not go right.  I am afraid of the...
    chezy60 chezy60
    4 Responses Nov 27, 2011

    I've Had Two Open Heart Surgeries...

    I was born with aortic inefficiency.  I had my first surgery at the age of 17.  The Ross procedure where my pulmonary valve was put where my aortic was and a pig valve in the other.  After the surgery a small aneurysm was spotted and checked yearly until I was 29 when the...
    jeremichi jeremichi
    Feb 14, 2011

    I had one three years ago

    but now I'm carrying a heartware pump on my left heart
    Comicfangirl Comicfangirl
    18-21, F
    Jan 4, 2015

    Right Ventricle Heart Tumour

    Hi everyone, Last year I found out I had a heart tumour. From the accidental diagnosis to lying on the surgeon's table was a matter of months. I was confused, scared and had no idea what was going on. I had the tumour removed from the right ventricle. It was a benign haemangioma...
    chickwithscars chickwithscars
    26-30, F
    2 Responses Sep 4, 2012

    I'm writing this because reading peoples

    stories on this blog really helped me prepare for my operation, and I feel it's time for me to share mine. I'm 17 years old. I had my first operation as a baby and I had my second open heart surgery just over 6 months ago. Before my operation I was among the top ten 800 runners...
    samgerken samgerken
    18-21, M
    1 Response Jan 13, 2015

    What is coronary artery disease?

    Can anyone explain me
    Sanvi1995 Sanvi1995
    26-30, F
    Sep 16, 2014

    Had Open Heart Surgery 8 Days Ago

    Hello just wanted to share my experience with open heart surgery I was born with VSD other wise a hole in the heart live with it for 47 years until 8 days ago they closed it I didn't want to have because I felt okay but when they got in there it was a different story the hole was...
    william47 william47
    46-50, M
    16 Responses Oct 7, 2009

    I was Seventeen, Diagnosed with an ASD.

    The surgery was preformed at Doernbechers Childrens hospital. I nearly died twice with in post op care because of complications. A-fib and a pericardial infusion of 776 cc's of fluid surrounding my heart. Currently i am slightly over weight, and have been diagnosed with...
    deleted deleted
    May 1, 2015

    Need Some Info

    I had open heart surgery in 1972 when I was 4 y/o. It was a congenital mitral valve repair (a hole in the valve) and was patched with a graft. Today at 42, almost 40 years later I can tell you that my life has been quite normal and honestly as much as I abused my body with...
    Rainieflagg Rainieflagg
    1 Response Aug 4, 2010

    Actually, I'm scheduled

    for open heart surgery on March 27th. I have a congenital defect: apical hypertrophic cardiopathy, which has caused AF and aflutter to the point where I can't enjoy the activities I enjoy -- hiking, skiing, snowboarding. So they are going to perform a Cox IV Maze procedure...
    nwWarbler nwWarbler
    66-70, F
    1 Response Mar 17, 2014

    Nothing Special...just Surgery

    I was 15 when I had my surgery. It was to repair an Atrial Septal Defect (ASD). My parents divorced when I was 7 and I guess I did not really start to be angry about it until I was 13/14. I was mad at my parents and I hated my school. So, I started to pretend like I was...
    likeliness likeliness
    41-45, F
    Oct 31, 2012

    Tonight I am really tired

    and a little worried. I had my aortic valve replaced in 2013 and I now have a very good pig valve. For the most part I have more energy, but I do struggle with Afib. I am a runner and I run everyday and they say my heart is strong. I was taken off blood thinners after my...
    runningsage runningsage
    56-60, M
    4 Responses Jan 7, 2016


    I am Danielle I am 19 I live in Harrisburg Pennsylvaina I had 2 open heart suguries back in 1991 when I was born and I had my second sugurey in 2007.. I also had Sugurey on my right eye but I do not remember when I had it done.. And I just had a stint put in my leg this past July...
    DanielleLovesSteelers DanielleLovesSteelers
    4 Responses Feb 18, 2011

    My mom will undergo open heart surgery,

    1week ago when we confine her at the Manipal Hospital, thanks to PlacidWay who help us find this great heart hospital. My family are praying for her success surgery.
    gretchenhill gretchenhill
    31-35, F
    2 Responses Jan 8, 2014

    I also had open heart surgery shortly

    after I was born but the doctors just told my parents to leave me there, forget about me, and try again because there was no way I was going to live. I had a hole between the upper chambers (ASD), a hole between the lower chambers (VSD), my arteries carrying blood away were...
    EnigmaticYoshi EnigmaticYoshi
    22-25, M
    1 Response Oct 9, 2014

    I Had Open Heart Surgery

    Hi, Im 24 years and just recently had my 3rd open heart. I was what they call the "blue baby", when i was 8 days old i had my first open heart. I had trasnposition of the great arteries, i also have two holes in my heart and vsd. My 2nd open heart was when i was 6 because my...
    kitkat0688 kitkat0688
    2 Responses Feb 7, 2013

    I was only 2 months older the time of my

    operation. I'm looking for someone who had the surgery around 1990.
    Lizsiri Lizsiri
    26-30, F
    1 Response Mar 10, 2014

    Strange Behavior

    Well, I was a classic heart attack. 4 sprays of nitro got me to the ER and a stent. The other 3 arteries needed a bypass ASAP. So 2 weeks later they sawed me open and snagged a vein from my leg and did a remarkably artistic job of sewing my heart some new irragation. It all went...
    betterred betterred
    Oct 8, 2010

    I am 19 years old and have had 3 major heart

    surgeries one of them being open heart.
    Klcataldo Klcataldo
    22-25, F
    3 Responses Aug 15, 2014

    Ive had 2 Open Heart Surgeries (congenital)

    (scimitar syndrome) i was lucky enough to be married to a very strong loyal husband that put up with my moods and his mother flew over both times from sao paulo to help before the surgeries to help during recovery, its making me think of a change in careers... my next mri is...
    wherethewildthingswere wherethewildthingswere
    31-35, F
    1 Response Aug 9, 2014

    It is almost six weeks

    since my CABG procedure, I had two arteries bypassed.
    ryksteman ryksteman
    56-60, M
    Mar 3, 2015

    Experiencing OHS As A Teen

    After years of waiting for the right day to be announced for my surgery, the cardiologists said stated October of 2011 would be the time frame for my life changing event. Unfortunately, due to some difficulties, that didn't quite happen. Who knew an allergy could arise from an...
    deleted deleted
    1 Response Sep 20, 2013

    My name is Fatima Sharif.

    I am an open-heart surgery survivor. I was born with a heart defect and had corrective surgeries at 6 and 7. To be honest, my parents thought all was fixed and so I never went to a cardiologist again. Then one day at work as a Financial Advisor my heart started racing. I felt...
    FatimaSharif FatimaSharif
    41-45, F
    1 Response Aug 19, 2014

    Coarctation Of The Aorta

    I was born with coarctation of the aorta. Aortic coarctation is a narrowing of part of the aorta (the major artery leading out of the heart). It is a type of birth defect. When I was born I wasn't breathing so immediately they gave me medicine and got me stabilized. I had surgery...
    deleted deleted
    8 Responses Feb 13, 2013

    I had Open Heart Surgery last year to correct

    an ASD, a couple valve issues, and a membrane that was growing and redirecting blood flow. Because of my surgery, I missed one of my favorite bands, Of Mice and Men, in concert. Their lead singer, Austin Carlile, had open heart surgery to to correct issues caused by Marfan's...
    sarahcamille sarahcamille
    18-21, F
    Jul 11, 2015

    hey soooo im a 23 year old ASD survivor.

    i was born 3 of 5 in my family. my mother had Preeclampsia with everyone of her children (having had 11 miscarriages over the years). all of us were c-sections. and because of the high risk pregnancy given a full run down, checked head to toe right after birth. that's when they...
    thescaronlyprovesimafighter thescaronlyprovesimafighter
    22-25, F
    Oct 16, 2015

    I've had this too 3 times one

    when I was a day old the 2nd when I was 4 and the last when I was 6 and I almost died I actually did die on the table and was in a coma for a year and had to relearn everything over again my condition is pulmonary atresia and I have to get a heart transplacement next and I don't...
    Sharkbite31 Sharkbite31
    31-35, F
    1 Response Jul 13, 2014

    :i Had Open Heart Surgery :

    AH years ago when not much was known compared to now i had heart surgery i was 5 years old i still have the scar today it did not really alter my life that much i played football tackle, baseball basketball the only thing was iwould get tired fast the doctors told me to rest...
    mycuzinvinni mycuzinvinni
    46-50, M
    3 Responses Apr 29, 2012

    Severe Aortic Stenosis

    On July 3, 2013 I found out that I had severe aortic stenosis. On Aug 2, 2013 Dr David Adams performed OHS on me and replaced my calcified bicuspid aortic valve. It is now 15 weeks later and I feel great. I am exercising daily and thinking about running the NYC marathon in...
    jkwol jkwol
    61-65, M
    4 Responses Nov 2, 2013

    Nurses Curse

    Hi In May of this year (2009) I had emergent cabg.  three jumps. I am a Registered Nurse who has worked in Open heart units and in Surgical and Mecical ICU for about 18 years. I swear because I knew what was going on it went a whole lot worse than it should have. ...
    Deanswork Deanswork
    51-55, M
    Nov 14, 2009

    I was having a lot of chest pain,

    and growing up with Marfan's syndrome I was told that a little chest pain here and there was normal but yearly they kept an eye on my heart since I was 2 by doing EKGs and Echocardiograms. When I was a teenage my heart doctor actually told us my heart was doing better, little...
    healingheart13 healingheart13
    26-30, F
    Mar 6, 2014

    My Wife Called Me A Big Baby

    After 13 stents my Doctor told me I could not just keep eating nitro pills like M&Ms and expect to stay alive. My first few times of having stents put in was not bad. You lay on the little table as the Dr.says something like "big stick comming now".It was not too bad and  when...
    marriedup marriedup
    56-60, M
    Mar 30, 2013

    I had a massive heart attack at age 43.

    my LDA was 100% blocked and the only symptoms I had was the night it happened..ache/heavy left arm, sweaty, vomiting for about 3 he's before I had my mom drive me to the ER. ( the cardiologist told my family had I waited 20 more minutes I wouldn't have lived). I am/was normal...
    wendyc506 wendyc506
    46-50, F
    1 Response Mar 30, 2015

    My 3rd Surgery

    I never realize that many people had heart surgeries at their young ages. I am going to have my 3rd heart surgery in less than 2 weeks, I am not worried or scared of death, it seems like i am well prepared, trying to do everything, write down everything that if i die in the...
    michellie1214 michellie1214
    1 Response Dec 29, 2012


    I was very young when I was told there was a whole in my heart, but my parents were told it could fix it self because it was such a small defect and I was so young. Years past now im about 13 years old and I was noticing that I couldn't run around like all my friends and was...
    5 Responses Jan 19, 2013

    hi I had open heart surgery about 7 weeks ago

    and having a sharp pain where they cut the 2 wires from and left the rest in me .wires are pushing in my stomach what can I do
    popcars1 popcars1
    Dec 21, 2014
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