I Have A Baby Girl With Heterotaxy Syndrome

Personal Stories, Advice, and Support 8 People

    My Dream Accompanied By A Nightmare

    I'm 20 y.o. this is my second child. We had wanted a girl so badly and at our routine 22 week ultrasound, our wish came true! Followed by, "wait something doesn't look right." At that point we were told are daughter had a condition called situs inversus (all her organs are on the...
    NoRain3 NoRain3
    18-21, F
    1 Response Aug 28, 2012

    My Little Fighter!!!

    Here's a little update! My Daughter Alahna Angeles was born October 31st....tho she has a severe heart deformations (we were warned she'd be purple) she came out kicking and screaming....She had the chubbiest rosy pink cheeks....Her oxygen levels were stable so I was able to see...
    NoRain3 NoRain3
    18-21, F
    Nov 8, 2012

    Natalie

    She was born on May 11th 2011. Weighing only 4lbs and the size of my hand. She isn't my daughter, but might as well be. She is my niece and I learned through her that life is way to precious to take Anything for granted. Today she is about 18lbs and struggling to put the...
    Kmwoody123 Kmwoody123
    16-17, F
    Oct 18, 2012

    Tehya Joy Emmons- Heterotaxy

    This was our third pregnancy, our older girls are very healthy. I did not know about Tehyas anomalies until after she was 4 days old. And even then, nothing was clear. It was like we had walked into a dark closet and that was cluttered with old coats. Felt very unaware of what...
    Angelkisssd Angelkisssd
    26-30
    1 Response Apr 17, 2011

    My Daughter Was Born 6th Jan 2011 With Heterotaxy Syndrome

    My beautiful baby daughter Lacey was born yesterday, we had known from about 3months into the pregnancy that our baby had irregularities with her internal organs and with her heart. we live in new zealand and something like this is extremely rare. specialists had told us they...
    tompy121 tompy121
    22-25
    10 Responses Jan 7, 2011

    Alahna Update

    It's been a long time since I've updated about Alahna! Her official diagnoses is pulmonary artesia, hypoplastic left ventricle (HLHS), asplenia, and of course situs inversus totalis (suspected malrotation).She stayed in the hospital for 3 months after her first operation. She had...
    NoRain3 NoRain3
    18-21, F
    May 30, 2013

    My Miracle Baby Girl...a Testimony

    On August 28,2009 I gave birth to a 7 lb 2 oz. Angel on earth. I had an extremely hard pregnancy that included several hospitalizations and weekly visits to the Perinatologist. I was induced and delivered at 38 weeks gestation. She spent the night in NICU because of low oxygen...
    Godhasaplan Godhasaplan
    31-35, F
    3 Responses Nov 1, 2009
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