I Have a Brain Tumor

Personal Stories, Advice, and Support 83 People

    You're So Brave...

    I'm so brave, at least that's what I kept hearing for 3 years straight. I graduated college may 10th, '10 and had brain surgery the next day. What can I say I move quickly. In February 2010 I was trying to get senior projects and papers completed and submitted for graduation...
    agnesfern agnesfern
    26-30, F
    1 Response Sep 11, 2012

    PLZ Help Me! Give Me Advice.Help Me Help My Friend?

    My best friend has a brain tumor, she is only 31 and has a little boy who is 2 (my Godson). I just got the news this morning. She is gonna have surgery. We don't know when yet! What can I do to help? Is there anything I shouldn’t do? I'm flying to be with her soon and I'm so...
    sleepynana sleepynana
    36-40, F
    2 Responses Jun 19, 2013

    My names Tyler I just turned 18

    and I have cancer. I have a tectal plate glioma and some long name of a tumor on my spinal cord. I have been battling hydrocephalus for a but caused by the tectal plate glioma(brain stem tumor) I have had several brain surgeries which aren't as bad as they sound. But I have had...
    Tyler1995 Tyler1995
    22-25, M
    6 Responses Jan 7, 2014

    I'm 14. i have an oligodendroglioma.

    Doctors said that it doesn't need surgery since it's fairly small but I get headaches and vertigo a lot. Dad even say it's probably just psychosomatic and just brushes it away. Still kinda sad though
    hanncalma hanncalma
    18-21, F
    3 Responses Jul 20, 2014

    I Have A What?!

    Lets rewind and start from the beginning shall we? Well it all started about 3 and a half years ago, out of nowhere I started getting these severe migraines every day as well as these occasional blackouts (I wouldn't lose consciousness my eyesight would just go black for about 10...
    guin327 guin327
    22-25, F
    1 Response Jun 6, 2013


    I just found out 3 days ago I have a brain tumor! I had been having some strange symptoms when I went in for an MRI but never thought in a million years the results would come back that I had a brain tumor. I do not know very much right now, other than it is the...
    okiegirl76 okiegirl76
    31-35, F
    1 Response Dec 16, 2009

    Overcoming Fatigue???

    ddoes anyone have any tips on how to help overcome the fatigue following radiation?  I went through 6 weeks of radiation at the start of the year and still I'm so fatigued every day that it's a major struggle to just keep going.  what to do?  I'm taking the meds I...
    notalostcause notalostcause
    36-40, M
    Jun 28, 2010

    Don't Know What To Do Anymore - Most Days Are Just Too Much

    I'm having problems remembering what I've done any what I haven't - which is maybe not so terribly important when we're talking about if the coffee is finished or the tee kettle is done - but if it's about did I request original untranslated documents from my wife's registered...
    notalostcause notalostcause
    36-40, M
    1 Response Jul 5, 2010

    Diffuse Astrocytoma (brain Cancer)

    Just a few hours ago my Dr. called my big brother and told us the news that I have a brain tumor, it's cancer and it is so lodged in my cerebellum that removel with surgery is impossible. So I have to go through several rounds of radiation. But I'm 14 years old, I don't know what...
    EttaScout EttaScout
    13-15, F
    1 Response Nov 28, 2012

    I'M Not Just Clumsy, I Have A Brain Tumor!

    For the first time in my 37 years, I had the most amazing experience thanks to work -- got to travel to a not-so-quite-third-world-country for a project -- Bangalore, India. AMAZING trip! After I got back from India, I thought I brought an ear infection back with me – I had...
    heycarriea heycarriea
    1 Response Feb 2, 2013

    I Keep Feeling Like I'm the Punchline From Kindergarten Cop

    It IS a brain tumor. It all started out innocently enough when I started getting really horrible headaches about two years ago.  I have had migraines since I was eleven, so intense headaches weren't out of the norm, but I'd never had any quite like this.  Six months...
    dreeemr2 dreeemr2
    36-40, F
    8 Responses Oct 9, 2008

    A Choroid Plexus Papilloma

    Two years ago August, I went to the Neurologist because I was having problems walking and kept falling. He decided to do a Brain MRI because he thought I might have MS. He was quite shocked when a suspicious spot was noticed. So he gave me a referral to two doctor's. The one he...
    deleted deleted
    4 Responses Mar 24, 2012


    found a tumor in my temporal lobe im scared i wont wake up i the morning i tried killingmyslef almost 2 years ago i failed a few times and now i think this is a punishmnet i think im supposed to die i escaped it more then once why should i excape it again im hopelesss im...
    misstayy misstayy
    18-21, F
    2 Responses Dec 19, 2011

    Help Me With My Symptoms.

    I'm 17 years old and have been suffering from migraines for about 5 years now, but over the past year they have begun to be unbearable. I have recently started to wear glasses as my doctor and optician think my eyes may be the cause for my persistant headaches. I get a headache...
    chan645 chan645
    18-21, F
    3 Responses May 24, 2011

    My Brain Tumour Story

    I had two brain tumours 20 years ago. I was a teacher and am experiencing memory/mood issues that affect my career badly. I wish people would get it, but they fail to empathize.
    midget38 midget38
    36-40, F
    1 Response May 1, 2012

    I Am Scared Everyday...

    I had a brain tumor 5 years ago that almost killed me and 2 weeks ago they found a large pineal cyst that is inoperable. I am scared everyday that I will be on my death bed like I was 5 years ago. I just have to trust that God will get me through this just like he did back then...
    BFutrell BFutrell
    18-21, F
    1 Response Oct 15, 2010

    Just shy of 16 years old,

    a junior in high school. I had it all going for me...my friends, my grades, my extra curricular activities, even my future...& I never thought a game of hide & seek could change that, but it did...QUICK. OCTOBER 2010-- A normal Friday at school, we had a volleyball game & a...
    22-25, F
    1 Response May 21, 2014

    9 Years So Far With A Benign Tumor

    hi all, so I was dx'ed in 2001 after many years of unbearable headaches and other probs.  At the time of the diagnosis they told me it was inoperable and all we could do was watch it grow and slowly kill me.  two years later it was operable, so they operated twice...
    notalostcause notalostcause
    36-40, M
    3 Responses Feb 22, 2010

    Brain Tumor As Silver Lining On Stormcloud

    I was 21 years old and newly married. About 6 months into the marriage, I had pregnancy symptoms and was quite nauseous every morning. I was thrilled with the thought that a baby was on the way. The only worrisome thing was that the home pregnancy tests kept being negative.  I...
    chocolate32 chocolate32
    2 Responses Feb 1, 2012

    Head Hurts So Bad It Feel Like It's Gonna Explode

    last night around midnight - i was in bed since 9.oo or so, my head starting hurting really bad.  I'm on 8 mg dexamethaomesone to reduce radiation caused swelling (just finished 6 weeks radiation) which should help against headaches like what I have right now, but anyways...
    notalostcause notalostcause
    36-40, M
    4 Responses Apr 6, 2010

    God's Test!

    History of growth in the USA after coming from Horn of Africa.After traveling far from home land because of political and financial problem landing in the USA would make you want to grow and give back the benefit earned from God in the new country. Coming as a young person is...
    chal1 chal1
    Mar 25, 2012

    I Have An Ependymoma

    i have what is called an ependymoma. it is at the base of my brain. we found this and a mengioma when i developed tremors, sporadic movements of my hands and head, memory loss and stuttering and confusion. my physician at first thought i had had a stroke. my first mri showed a...
    Curiouscee Curiouscee
    51-55, F
    3 Responses Jul 22, 2013

    Weathered The Storm, And Am So Happy To Be Alive.

    When I was 15, I encountered some troubling physical and psychological symptoms. I'd always been thin, but I suddenly put on 30 pounds in one month, while eating well and exercising regularly. I started to have headaches, which were often accompanied by blurry vision. I also...
    OfFansAndFlames OfFansAndFlames
    8 Responses Jun 4, 2011

    There Is Something Wrong With Me...... Help?

    I do have a brain tumor. I wrote a story about it a while ago that gives more details and everything... But, I have been having what my boyfriend calls "head rushes". I don't know.. The word seems way too common. I don't feel right. There is seriously something wrong with me and...
    oceaneyedkay oceaneyedkay
    22-25, F
    1 Response Aug 22, 2013

    I Want Answers

    June 2008 i hade a friend in my bedroom i was writing on the back of photos the next thing i knew i was on my side crying my husband next to me and my friend looking at me strange i had no idea what had happened. Latter on i was told i had a seizure so i went to the doctors who...
    gypsymae gypsymae
    31-35, F
    9 Responses Jan 21, 2010

    Walkin In My Shoes.

    In 2005, i was living my life as any ordinary teenager. I had started my final year of elementry school, i was president of the SRC, and had just begun playing hockey. Life was good for this thirteen year old. We had our first big hockey tournament in Minot and i had just...
    Shar18 Shar18
    18-21, F
    1 Response Apr 6, 2010

    My Life Changing Experience

    Hi I am a 36 years old housewife, who was diagnosed with brain tumor last August of 2012. When I learned about it. I was really shocked and it broke my heart knowing that I might die and leave my loveones so early. After 3 long nights of thinking, praying and crying in the...
    Mariemar26 Mariemar26
    36-40, F
    3 Responses Feb 11, 2013

    So Scared

    I was diagnosed with a tumour 6 days ago.  I have seen the MRI and the neurosurgeon and he says he's "almost" 100% sure it's benign and he thinks it's been there for years.  He doesn't know what type of tumour it is but it's 2.7 cm x 1.9 cm in the fourth ventricle...
    cubicledweller cubicledweller
    46-50, F
    9 Responses Feb 28, 2010

    I Have A Brain Tumor

    We found out about it at the beginning of this summer. I didn't have any energy to do anything.. And I was having a bunch of pregnancy symptoms. I kept taking home pregnancy tests and went in for a couple of tests at my OB docter. I was having migraines and such.. And then...
    oceaneyedkay oceaneyedkay
    22-25, F
    3 Responses Aug 3, 2013

    One Thing After Another.

    I had a strole 6 months ago do to a burst blood clot and had a shut put in to help relieve the pressure. I had an MRI done to see if the shunt could be removed and on the pictures they saw 2 dark areas near where the clot burst, I had surgery yesterday to remove the tumors and...
    Jerseyjetgirl246 Jerseyjetgirl246
    46-50, F
    2 Responses Jul 18, 2012


    November 2011 I've went to the doc cause I had these headaches for a long time now, feeling of dizziness and visual defects. I've prayed for god it wasent what I've expected cause the two times my grandfather was diagnosed with a brain tumor he had the same. So I went to get my...
    ElizabethCJH ElizabethCJH
    18-21, F
    4 Responses Nov 6, 2012

    I am 35 and was diagnosed with a left frontal

    lobe meningioma brain tumor in May. I was completely scared when first diagnosed but I have been living successfully with my invader. I'm on watch and wait status and go in next week for my biannual MRI. The worst is the anti seizure meds and the fear they will stop working. I...
    toolatefate toolatefate
    36-40, F
    1 Response Nov 13, 2014

    Something Is Wrong Me I Just Don't Know What, Someone Please Help By Commenting Your Thoughts

    Over the past year or so, I've experienced serious mood swings as well as depression. I am an 18 year old male, and I have had headaches before, even optical migraines (my vision went blurry, followed by an extremely long, painful headache). I don't get headaches daily, but I do...
    ravensfreak104 ravensfreak104
    Dec 24, 2012

    I have my next MRI this coming week to make

    sure the inter-ventricular neurocytoma in my left lateral ventricle is not growing. We haven't done a biopsy due to the complications it could endure. It was found last year after my first grand mal seizure. Haven't ever felt the same since. First 6-month follow up MRI showed no...
    llventricle123 llventricle123
    26-30, F
    Jan 25, 2015

    Things Will Work Out

    Where do I start. I'm in the navy and in the process of getting separated. I passed out on march 30th went to the ER and they told me I should drink more water. In mid april i got in serious trouble because one of the girls i work with got really drunk and showed up at my room...
    rbfh rbfh
    26-30, F
    Jun 24, 2012


    I found out today that i have a brain tumor. I don't know how i feel about it... My bf is really upset. I'm worried about him. I'm worried about the fact that everyone else is more concerned than me. I don't think its sunk in yet. What if when it does hit, it hits me hard...
    IntoxicatedDesire IntoxicatedDesire
    18-21, F
    23 Responses Jul 8, 2008
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