I Have a Child With a Disability

Personal Stories, Advice, and Support 78 People

    Aspergers Teen Who Grew To Be A Fine Young Man

    My oldest son Bobby has Aspergers syndrome with secondary ADHD, he is 18 years old now, he lives independently by himself from the age of 17 having his own flat, he was a child who struggled being helped in school, many teachers over the years would look at him with there noses...
    missjune missjune
    36-40, F
    2 Responses Jul 4, 2011

    Forgive me for being

    so winded but this is the first time I've reAlly talked about this:My daughter was born at 30 weeks due to a placental abruption. I had to have a crash C-section we both just about died. She was airlifted to a major children's hospital ( yes I was separated until I was well...
    Ashley3085 Ashley3085
    31-35, F
    Sep 4, 2015

    I Have A Child With A Disability....

    My eldist daughter has never walked properly, i went to the doctors for years with her and was always told it was nothing!!The dr.s told me it was growing pains, or something minor!! Finally last year they dignosed her with juvinile arthriris. We have struggled, as a family, with...
    susan2008uk susan2008uk
    31-35
    1 Response May 15, 2011

    My 7yr Old Son

    My son was born with Hyrdocephalus and Dandy Walker Malformation. Two days after he was born they had to do surgurey to place a VP Shunt into his head. He has had 5 of those surguries since it either needed to be revised or replaced. He also has a seizure disorder known as Lennox...
    nikki79 nikki79
    26-30
    1 Response Mar 19, 2009

    Can Anyone Help?

    Skyler is also known as my sunshine. Skyler is 9 1/2 yrs old and has Asperger Syndrome which is on the lower end of the Autism spectrum. Along with Asperger's Skyler also has PDD, ADD, ADHD,OCD, and a few other learning disorders. All this being said he can be a challenge at...
    angelzevil angelzevil
    26-30, F
    4 Responses Mar 19, 2010

    My son and daughter are

    both type 1 diabetics.
    Chelsea1973 Chelsea1973
    41-45, F
    Nov 16, 2015

    The Answer

    after 4 years of waiting...one wrong turn and forcing the issue twice, we've finally figured out what Brit's fainting spells are. As I suspected, but was denied by our doctor, Brit was having seizures.  A bit of the late back story... Sunday she had another spell, then one...
    gdgtgrl gdgtgrl
    41-45, F
    1 Response Apr 28, 2009

    Fine Motorskills

    my son has a problem with his fine motor skills. When he was a child i noticed that he had problems gripping things like his knife and fork and also with tying his shoelaces he just couldnt do it. When he showed me his hands instead of them stopping when you bend your fingers...
    thehippy thehippy
    41-45, F
    3 Responses Apr 7, 2009

    My Sister

    People often ask me what it's like to live with someone with a disability? I find myself asking what's it like to live without someone with a disability? My sister completes my family, without her we wouldn't be who we are. My sister Olivia has down-syndrome. When she was born...
    ameliacatherine ameliacatherine
    18-21, F
    Sep 26, 2013

    I Have An Adult Child

    Who is developmentally challenged, schizophrenic, epileptic, hypertensive and has arrhythmia.  He is 21 now and will be 22 in April but he will be a child forever.  I hope to be of support to those who have younger children with these types of disabilities.
    Rayhawk Rayhawk
    36-40, F
    5 Responses Jan 24, 2008

    Son With A.s., Ocd and Adhd

    I have a 12 year old son.  Genius IQ.  He was in public school and in the gifted program.  After four years of trying we finally got him an IEP (Individualized Educational Plan).  We decided if it didn't work we would pull him out to home school him. ...
    Pia Pia
    51-55, F
    2 Responses Apr 4, 2007

    Autism

    I don't really consider autism a disability but most of society does.  I have 16 year old autistic son who has a difficult time getting around in what we call the typical world.  According to him, we nuero typicals (nt) are the ones with the problem. He feels we get...
    goddessone goddessone
    41-45, F
    9 Responses Feb 23, 2008

    My 6 month old son has a genetic disorder

    called Neurofibromatosis or NF1. He has tumor under his ear in his neck that has grown rapidly. he has an MRI in the morning and I am terrified! they have to put him under for it. he can't eat anything after midnight tonight, his appointment isn't until 12:30 tomorrow. They are...
    Trinity2356 Trinity2356
    26-30, F
    Dec 15, 2014

    My Twins

    I have two sets of twins. One set are 5 and the others are 2. They have ADHD, and autism. The first set had severe brain damage.At birth the first set was born around 3 pounds. The second set was born around 6. The doctor said they won't live past 6.
    hannahcasey1 hannahcasey1
    26-30, F
    Apr 21, 2013

    How I Deal

    We knew what we were getting into when we met her on Boxing Day 1994.  She was this cute little thing with curly blond hair, just beginning to sign & the apple of everyone's eye.  She had rough past, but we had skills and background to give her the best life...
    gdgtgrl gdgtgrl
    41-45, F
    2 Responses May 5, 2008

    Mr Hollands Opus

     Most memorable is the kitchen scene and the wife is crying. The child is deaf and she is upset because she cannot communicate with her son... The most important theing with can teach a disabled child is learn to communicate with their surrondings.
    retiredfather retiredfather
    61-65, M
    2 Responses Apr 22, 2009

    What To Do?

    my sun is my world my life he is not spoilt but if he wants something he usually gets it within reason this last few weeks hehas been a bit light fingered but i was silly stuff badges for charites patches for jeans buttons that sort of thing he has been told off but its not...
    soapdodger soapdodger
    36-40, F
    1 Response Mar 31, 2010

    Aspergers Syndrome and Adhd

    I have a 14 yr old son with asperger syndrome and secondary adhd. he is a very intelligent lad with a high I.Q. Life has not been easy and ive had terrible problems with schools and not understanding how to deal with children with these disabilities. I even trained as a...
    missjune missjune
    36-40, F
    7 Responses Apr 3, 2007

    My Baby Girl Has Lgs

    My daughter at the age of 5 months started having seizures she was than diagnosed with Infantile spasms..  bout a year and half ago she was then diagnosed with Lennox gastuat syndrome..  She will be 4 next week and is a very happy little girl.. She goes to a special day class...
    escoy2010 escoy2010
    26-30, F
    1 Response Jan 4, 2011

    My Little Solider

    I have a 3 year old daughter called Elly. When she was 1 her daddy took her out in his car and they were in a car crash so from her waist below she is paralyzed. So she cant walk of feel anything from her waist below. She also does not know when she is going to pee or poo. So she...
    mummy4life mummy4life
    22-25, F
    Jan 1, 2013

    Social Leper

    Hi We have two lovely boys with severe disabilities, they are 18 years apart and despite many frustrations and difficulties we wouldn't have it any other way. Having said that, I feel totally disillusioned with most people and have become an increasingly angry person as a result...
    exoticbird8 exoticbird8
    51-55, F
    Nov 3, 2012

    My Oldest Son

    My oldest son, who is now 17, is legally blind. He wrestles on the high school team, and is also one of the kindest most caring kids I know. Even with his disability, he is more concerned about how others are doing or feeling then himself. He has struggled at times, but always...
    boredinlight boredinlight
    41-45, M
    Jul 1, 2013

    Vision Impaired

    My son has been blind since birth. He has a guide dog and is always cheerful. He acts cute. So he can't see. It doesn't slow him down at all.
    deleted deleted
    26-30
    Oct 22, 2012

    My Son And His Gdd

    I class myself as lucky to have my son i suffered carbon monoxide poisoning when i was 20 weeks into my pregnancy it really affected his growth in the womb, i had to have weekly scans and see the doctor after each scan. then there was the dreaded appointment when i was told i...
    Dee2408 Dee2408
    26-30, F
    Oct 13, 2012

    Two With a Fatal Disability....

    I have two each with a fatal disability.  My ex and I have been dealing with it for 12 years now.... All I can recite is: Shock-Anger-Denial-Bargaining-Depression-Acceptance any order, any time, repeatable steps....
    DancesWithDolphins DancesWithDolphins
    41-45, M
    3 Responses Feb 20, 2008

    I Get Uptight When I Take My Child To Play Centers

    i knw these play center places are good for kids ,motor skills ,social interaction,and all that but i find usually when i take my son im treated like i shouldnt be there he shouldnt be there he is 10yrs old should be playing with kids but because you cant see his dissability...
    soapdodger soapdodger
    36-40, F
    3 Responses Mar 29, 2010

    His Story

    My younger boy has been one of those extra special little guys. The day he was born he pretty much came out screaming at the top of his lungs...something every parent wants to hear. Mom's pregnancy seemed very normal as far as pregnancies go. My boy stayed cooped up inside mom...
    Grubsknif Grubsknif
    41-45
    1 Response Jun 9, 2012

    Found An Awesome Web Site I Wanted To Share

    This site is an educational one that offers things like abc's, learn to read, its fun to read, im reading, downloads, and tons of other stuff too... and the best part is its free! Check it out go to   www.starfall.com   We hope you like it as much as...
    angelzevil angelzevil
    26-30, F
    Mar 22, 2010

    My 1 year old son was diagnosed last month with

    Williams Syndrome. It is a genetic disorder caused by a deletion of 26 genes on the long arm of chromosome 7. We found out after he was entered into a failure to thrive program, he was so thin you could count his vertebrae. It was bad enought the admitted him same day to...
    cthuluwhovian cthuluwhovian
    22-25, F
    Aug 13, 2015

    Looking For Fun

    I have a child with severe autism.  It was our first child and the last seven years have been fairly low.  He is however a beautiful little boy and I can't spend enough time with him and my other young son.  My relationship has been real tough. I love my wife, but...
    abaker abaker
    31-35
    Jul 24, 2009

    Social Leper

    Hi We have two lovely boys with severe disabilities, they are 18 years apart and despite many frustrations and difficulties we wouldn't have it any other way. Having said that, I feel totally disillusioned with most people and have become an increasingly angry person as a result...
    exoticbird8 exoticbird8
    51-55, F
    1 Response Nov 3, 2012

    Jessica My 27 Year Old Daughter.

    Hi, Four months after my daughter was born we knew something was amiss. We had been told by a genetics resident ( my daughter born at a major university hospital) shortly after her birth that because of the fact that she had smaller than normal ears and an upturned nose there...
    Bethb2348 Bethb2348
    51-55
    2 Responses Oct 18, 2012
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