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    My 3 Year Old Daughter Also Has Acc - Sitting here reading the stories posted by mothers who have children diagnosed with Agenesis of the Corpus Collosum really touched my heart...
    Tonya30 Tonya30 26-30, F 2 Responses Mar 19, 2009

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    22 Weeks Pregnant Doc Says Absent Corpus Collosum - I'm 22 weeks pregnant with a baby girl. When I was about 19 weeks my doc did a sono and he couldn't locate the corpus collosum...
    Mackenziesmommy Mackenziesmommy 31-35 2 Responses Dec 27, 2012

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    My Best Friend - My best has no or very little corpus collosum. We have been friends since 9th grade. Our families have been close since 10th grade. I never knew until today there...
    rpipergirl rpipergirl 36-40, F Aug 9, 2012

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    I Have A Daughter With Agenesis Of The Corpus Collosum - I FOUND OUT THAT MY DAUGHTER HAD AGENESIS BACK IN 2005.SHE WAS COMPLAINING OF HEADACHES.SO I TOOK HER TO THE ER AND THEY...
    nking1508 nking1508 31-35 1 Response Oct 6, 2010

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    My Son 13 Has Agenesis Of Corpus Collosum - Long Story short....He was born with 1/2 a brain, had a shunt placed at 1 month and had early intervention, therapy and has had an IEP...
    dempsey0427 dempsey0427 46-50 1 Response Oct 19, 2011

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    One Month To Go - Our story was a real shocker for us, and leaves us with more questions than answers. We feel, however, that we are blessed and could not love our child any more...
    balverts balverts 41-45, M 3 Responses May 28, 2013

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    Dear Friends - my name is rosemary. and my daughter emarie, who is almost three years old. was born with an absent corpus collosum. my pregnancy was normal. even though she doesn't...
    MsArtemis87 MsArtemis87 22-25, F Aug 24, 2012

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    My Little Angel - My 1 year old daughter has just been diagnosed with agenesis of the corpus collosum.  Since I don't even speak medical terms, it basically means that the...
    mattysmom mattysmom 26-30, F 14 Responses Oct 24, 2007

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    Finding Out Was Hard - We found out that our two month old daughter had agenesis of the corpus callosum around two weeks ago. She was in the hospital for an unspecified swelling on...
    harris731 harris731 26-30 Oct 20, 2011

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    My Baby Escaped From Agenesis Of Corpus Collosum - Dear friends! Here, I have to share with you a wonderful experience occurred in my life. My name is Jose and I am an Engineer...
    JOSEMANAYANI JOSEMANAYANI 31-35 3 Responses Jul 20, 2011

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    My Youngest Has Acc - It was Christmas 1999 when I received a phone call from Dr. Lubarsky. “I’m sure it is nothing, but I wanted to let you know that there was an...
    ldybth ldybth 36-40, F 7 Responses Nov 2, 2007

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    20 and Pregnant-how Do I Handle This? - February of 1999, I found out that I was 8 weeks pregnant, I was overcome with joy. March of 1999, went for my regular routine check up, and...
    scooby79 scooby79 26-30, F 1 Response Apr 15, 2008

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    I Do Not... - I am joining this group, not because I have a child with this medical issue, but because I want to support those who do...especially mattymom.
    ColorMeReal ColorMeReal 41-45, F Oct 25, 2007

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    My Girl By The Support Worker - Hi, i.m a support worker who is looking after a girl with agenesis of the corpus callosum, I think she is absolutley fabulous and has so much...
    Jan 30, 2013

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    Our 31 Year Old Daughter Has Acc - We have a wonderful daughter who was diagnosed with Agenesis of the Corpus Callosum at around 2 1/2 years of age. Back then, there was...
    lakevue lakevue 51-55 Sep 13, 2010

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    Kayleigh's Story - My first pregnancy was, without a doubt, the most life-altering and humbling experience of my life. I think that most people take for granted that they will...
    cntmeyer cntmeyer 26-30, F 5 Responses Mar 28, 2009

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    Our 8 Year Old Daughter - I have a daughter with complete agenesis of the corpus callosum.   We knew early on that Jessica had ACC, we didn't  know at the time...
    mtnbiker45310 mtnbiker45310 46-50, M 9 Responses Aug 14, 2008

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    Question About Feeding My Son With Acc - My 11 month old son was formally diagnosed with ACC shortly after birth while spending a month in the NICU at Children's Hospital in Boston...
    RyGuysMom RyGuysMom 31-35, F 1 Response Apr 30, 2012

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    Mackenzie'S Story So Far... - Hi Everyone! Some of you may be a little familiar with my story from a few months ago. My baby girl was diagnosed with ACC or Agenesis of the Corpus...
    Mackenziesmommy Mackenziesmommy 31-35 3 Responses May 14, 2013

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    My Son Has Acc...but He Doesn't Let It Stop Him! - When my son was 7 years old he started having headaches on the left side of his head, always in the same spot. He started having...
    Tam707 Tam707 36-40 3 Responses Jun 9, 2009

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    9-11-01 Changed Our Lives More Than Just From The Bombings - On 9/11/2001 we also found out that our Daughter was going to have some type of brain issues.  I was approx 24...
    MomofAurora MomofAurora 36-40, F 3 Responses May 10, 2010

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    4th Birthday And Going Well - Dear All I actually have to confess that I feel somewhat sceptical about even posting but I think as encouragement for those like Melly1019...
    LilisesDad LilisesDad 41-45 2 Responses Mar 25, 2013

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    At 19 Year Old, Found Out I Had Acc - I will start at the begining. When I was born I was born with a cleft palate. Then when I was in Kindergarten my teacher along with my...
    ktyoung05 ktyoung05 26-30, F 1 Response Jan 13, 2012

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    My 3 Yo Has Complete Acc - when i was roughly 6 months pregnant we were sent to morgantown, wv to be followed at the high risk ob unit there. now this being my 3rd pregnancy and...
    aiden2009 aiden2009 26-30, F Dec 15, 2012

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    No One Expected... - My daughter is five years old now and we just recently found out that she has Agenesis of Corpus Collosum.  She started having nighttime seizures when she...
    kristyeischen kristyeischen 26-30 1 Response Sep 29, 2008

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    I Have Four Dc Two of Whom Are Missing Their Cc - i have a daughter with acc, i also have a sone with acc. our son is 4 and our daughter is 8 months. we also have a seven and two...
    frog99701 frog99701 26-30, F Jan 16, 2008

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    Acc - Thank you for sharing your stories. I am so scared of whats to come. I am 36 weeks pregnant with our second child and up until 6 weeks ago everything seemed to be perfect as...
    Melly1019 Melly1019 26-30, F 5 Responses Jan 27, 2013

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    False Diagnosis - My 3rd son, now 14 years old is profoundly disabled both physically and mentally. He is severe CP and also has epilepsy which is being controlled by 2 drugs. At...
    Drumraymond Drumraymond 51-55 4 Responses Nov 22, 2008

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