I Have A Rare Medical Condition

Personal Stories, Advice, and Support 15 People

    I have a rare medical disorder.

    Chances of getting it are like winning the lottery in every state -- that rare. It's really difficult when you're completely alone and the docs have no idea what to tell you about your prognosis and there's no one who understands what you go through.
    ossibus ossibus
    46-50, F
    1 Response May 24, 2014

    I Can Not Be Around Teenagers

    yes being a teenager this is difficult for me. i cannot go to highschool because everytime i get around teenagers i shut off and cannot talk to them.also my legs get all restless and i start walking back and forth. i could never concentrate in school and i had a hard time because...
    act4 act4
    18-21, M
    1 Response Nov 9, 2011

    The last time I was in hospital I remember a

    man being seen by a physician, the man was covered in blood. He had an entire roll of loo paper resting under his nose that was blood soaked and a bucket sitting on his lap which appeared to be full of dark liquid. His wife who I got to know had been holding onto to blood soaked...
    deleted deleted
    26-30
    1 Response Dec 22, 2014

    But you can't tell by looking at me.

    Even my doctor had never heard of it before. It affects every moment of every day and no one has ever been cured of it. Several people who have suffered from it for 10-12 years have committed suicide because of the way it takes over your life. And I can't bring myself to...
    deleted deleted
    26-30
    1 Response Nov 12, 2015
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