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I Have a Sick Spouse

Personal Stories, Advice, and Support 66 People

    it is true it is hard to spend many days

    and nights at the hospital watching my husband suffer. Wondering if today will be the day he dies. However nothing is worse than him pushing me away. The anger it has brought him. The fact that everything becomes my fault because he doesnt know how to deal with it. Lonliness...
    deleted deleted 26-30 2 Responses Mar 13

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    Robbed By Illness

    My husband has so many ills, all brought on by diabetes that he had for years; serious heart problems, strokes (thankfully not too physically debilitating, but caused a lot of deficits), hearing problems that can't be helped by hearing aids because of the way his brain interprets...
    GretelB GretelB 56-60 2 Responses Jan 19, 2012

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    Husband Has Parkinsons

    My husband was diagnosed 7 years ago. As he gets worse, he gets angry, agitated at me, at the kids. He can't help around house. I work to pay bills, he creates debt. He doesn't know how to laugh or joke. Every moment is sucked unto his endless misery. His medications...
    Bleu48 Bleu48 46-50, F May 16, 2013

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    Don't Know What To Think Anymore

    My fiancé of 7 years is so sick he had to get major surgery. He is very lucky to be alive. They told me he had 80% change of dying. He came out ok. He came home for one day had to go right back he's worst than last time. I feel so alone and depressed. I need some people to talk...
    Smc86 Smc86 22-25, F Sep 20, 2012

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    Splice Of Life

    Today I looked up. I have been looking down for several months now. In the last few years, I have done all the right things... raised my children... Took care of my parents various times.... Took care of his parents until they died... Next week I turn 49 and I am lost. I cut my...
    Vio64 Vio64 46-50 2 Responses Dec 31, 2012

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    My wife's fibromyalgia has virtually destroyed

    her life and turned me into a full time caretaker at 41. So truly difficult!
    Jacob1972 Jacob1972 41-45, M 2 Responses Jul 2

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    The Illness Has Taken So Much...

    My wife has a chronic illness. She is in pain. She struggles with daily tasks. She does not work. I take care of the basic household tasks, and I support us both. And that's OK... But now, I am the one who goes to work. Who takes out the garbage. Who handles the finances. Who...
    Perigrination Perigrination 51-55, M 9 Responses Aug 15, 2012

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    Harder Than I Thought It Would Be

    My wife and I have been married for over 28 years. During the last three, she has been physically disabled. I love her dearly, but our relationship has changed. I feel, I am more of a security blanket and less a partner. I have become more like a butler and less like  a help...
    strayarrow strayarrow 46-50, M 5 Responses Dec 17, 2010

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    Medicaid

    My wife will be in a nursing home rest of her life and insurance only covers 120 days a year.  So now Medicaid is paying for it but now they want $2,240 a month from me.  Talk about hitting a guy when he's down.  Looks like I'm workign for 45 cents on a dollar.  Going to try...
    French378 French378 51-55, M Jun 14, 2012

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    My Husband Is Dying Of Renal Failure And Lung Issues

    My husband has been sick for years, on dialysis and bedbound, but now he is in the hospital on a ventilator, unable to breath on his own. His living will stresses that he wants to be kept alive no matter what, but the doctors are pressuring me to disconnect his vent, which would...
    kimgreatmom kimgreatmom 46-50, F Aug 25, 2013

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    Psoriatic Arthritis Hurting Us All

    My husband starting developing terrible arthritis from psoriasis about 6 years ago. For me, it started about 6 years ago when he wanted me to massage his hand. My husband is a musician and his hands are very important since he plays piano, trombone and bass guitar. Soon he was...
    trf81 trf81 31-35, F 1 Response Nov 16, 2012

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    I Have a Sick Spouse

    I knew my marriage wasnt going to be easy nothing ever is, but I never knew just how hard until my hubby got sick. It seemed to happen all at once his blood pressure was to high he got diabetes hie kiddneys started to fail it was like a nightmare that didnt end. To make things...
    nync333 nync333 36-40, F 13 Responses Jan 2, 2009

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    he has been sick for about 20 years he had ptsd

    from vietnam, the his huntington chorea came in early. his cad numbers are so low the an uncle of his at 90 something just had the test. He had the same cag numbers. His mother brothers want nothing to do with me, thus they want nothing ti do with him. In realty. I get...
    duchness10 duchness10 51-55, F Jan 12

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    My Partner

    My partner,Not well,Hope it's over soon,Hospital appointment tomorrow,Please, please,Let it end soon,We wanna live!
    lazycrazybasket lazycrazybasket 46-50, M 3 Responses Jul 1, 2012

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    Husband Ill And Dr's Still Have No Definite Answer

    i know I've written before, I don't really like leaning on anyone and I always put up a good positive front. But, from time to time, I just break down-while I'm alone and no one will know. Now a PET Scan shows activity in the gastric curvature region....and still no answers. They...
    blueyedrdhd blueyedrdhd 46-50, F 3 Responses Jul 12, 2012

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    I May Have To Grin An Bare It :(

    After close to one year after my wife lit our house on fire smoking with oxygen, her health has improved a bit.  She is finally breathing without a respirator to help her breath althoguh still on oxygen.  Normally that woudl be good news but I am now afraid, as mean as it may...
    French378 French378 51-55, M 1 Response Mar 26, 2012

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    Cancer Ain't All Of It Part 3

    My wife spent most of the day at a hospital again. She was in radiology where they replaced a temporary stent in a bile duct to a permanent one and removed the bag that was collecting the excess fluid. While she was out they also removed the Hickman device from her chest and...
    deanekone deanekone 66-70, M 1 Response Apr 11, 2013

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    Congestive Heart Failure And Ideopathic Pulmonary Fibrosis

    My husband has been sick since may of last year.. we thought he was just having a flare of his sarcoidosis. His lung dr treated it as such for awhile but then advised us that this was not his issue and could not determine his problem.After watching him decline steadily we decided...
    galady2 galady2 56-60, F Jun 11, 2013

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    Never Coming Home?

    I just had an update at the nursing home my wife is living at, I thought temporarily, and found out she is so ill she will never be able to come home. :(  Just got off the respirator a few weeks ago but they cant remove the trake tube.  She can't get up out of bed.  And shes...
    French378 French378 51-55, M 2 Responses Apr 23, 2012

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    End Of My Dreams?

    When I met my husband, he was in remission and had been for 15 years. He has Crohn's disease. Three years after we met, he had a relapse. After spending 7 days in the ER, he went on short term disability waiting for a surgery date to remove the sick part of his bowel. After about...
    HarshReality101 HarshReality101 31-35, F 1 Response Aug 16, 2013

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    Separated But Living Under The Same Roof

    I don't think I can stay married. I think the illness is just an excuse for my husband getting to behave badly with impunity. Last week, he ruined a close friend's wedding for me. I was in the wedding. He was a jerk all weekend, which resulted in me finally breaking down right...
    JenX73 JenX73 36-40 1 Response Jul 7, 2012

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    Cancer Ain'T All Of It Final Chapter

    My wife of forty-six years has died. She fought the good fight but pancreatic cancer, TTP and many other complications were too much for her. She is now resting on a shelf in our closet waiting to be scattered about the grounds of the resort we have been members of for over...
    deanekone deanekone 66-70, M 2 Responses Jun 5, 2013

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    My Husband Is Sick.....has Been For A Long Time....

    It's a long story, and I really don't know where to begin. His health started to take a nose dive right before his 40th birthday. Driving home (16 hrs) he had a appendix attack. a few months after that he had a few TIA's, that caused some seizures. The recovery took years to...
    blueyedrdhd blueyedrdhd 46-50, F 3 Responses Apr 17, 2012

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    Haven't posted here in a while.

    After spending 2 years in a nursing home my wife passed in March of 2013. Little over a year ago already. I think I was lucky to have had so much time to prepare. The end was better for her I think living in a nursing home on a ventillator. Now just trying to rebuild my...
    French378 French378 51-55, M Jul 2

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    My Husband Has Superior Mesenteric Artery Syndrome (sma Or Wilkie's)

    My husband and I have been together for five years, married for three and a half years. It's his first marriage, and my second. I have three kids from my previous marriage, two of whom (ages 16 and 15) live with me full time. My husband has always been underweight and soon after...
    JenX73 JenX73 36-40 3 Responses Jun 16, 2012

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    My Wife Lives In A Nursign Home (i Think I Posted This Already In Its Own Group By Accident Sorrry Newbie:(

    She became so sick from having lupus for 24 years but also not taking care of her health properly that she had two seizures that we're similar to strokes. Had to have her artificial knee taken out in order to have heart valve replacement. After that she fell and broke her hip...
    French378 French378 51-55, M Mar 21, 2012

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    Cancer Ain't All Of It, Part Two.

    There is the cancer and the TTP. Since then she developed a cyst in her abdomen the size of a grapefruit. They cut her open and the cyst is draining. She also has a blockage, probably from a tumor, that is blocking a bile duct from her liver. (She turned a bright shade of yellow...
    deanekone deanekone 66-70, M 1 Response Jan 20, 2013

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    No End In Sight

    My husband had a stroke just over 2 years ago, luckily not a traditional stroke with weakness on one side . What he has instead is chronic pain. He has had a headache everyday for the last 2 years in varying degrees of severity from 3 to 10 on the pain scale. We have tried at...
    somiserable somiserable 31-35, F 3 Responses Apr 25, 2011

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    She's Finally Realizing Shes Not Coming Home

    We never told her but yesterday she saw the doc and started askign whats goign on?  When am I comign home.  So I had to start explaining a little that once you;ve had the trake tube ino your throat for so long they usually can't take it out.  Plus she still cant get up out of...
    French378 French378 51-55, M Jun 14, 2012

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    :-(

    I just wrote something. I just feel so alone. I wish I had more people in my life. Life is so hard I wish it was easier. I need some support thru this whole thing.
    Smc86 Smc86 22-25, F Sep 20, 2012

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    Don't Know What To Do

    My wife was an athlete suffering from numerous ailments due to a sporting accident that almost broke her neck, ACL too on her knee. We've only been married for a year and her health is taking a toll on me, and lately on us. We recently took a trip with friends and we had a whole...
    ThisisHarry ThisisHarry 26-30, M 1 Response Sep 3, 2013

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    The Doctors Don't Know What Is Wrong With Him........

    It has been a long 3 years. About 2 months before our third child was born(only girl) my husband became sick. He has been in and out of the hospital every month since. I went from being a stay at home mom to a full time employee, nurse for my hisband and mother to our 3 kids...
    safe01 safe01 31-35 3 Responses May 19, 2012

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    We Are Divorcing.

    My husband moved out on July 27, 2012. I haven't seen him since. Having him leave was so difficult, that while he was packing his things, I hid in the backyard and didn't say goodbye or let him say goodbye to me. He took most of what he needed (clothes, toiletries) when he left...
    JenX73 JenX73 36-40 1 Response Oct 26, 2012

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    Trying To Survive My Husbands Copd/possible Lung Transplant

    I think the worst is a tie between his anger and selfishness. We have been married 29 years. He has always been a little on the selfish side but, it wasn't so bad that it had a big effect on me or the kids. He was a good husband and a great father to our kids. That man is now...
    tr003 tr003 46-50, F 4 Responses Feb 21, 2013

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    On It Goes

    My wife has been sick for the last six years.  We have been together for 10 and married for 7.  She has suffered from a variety of illnesses which have affected her liver, kidneys and brain.  I believe that behind it all, she may be suffering from some sort of...
    Rabbitrob99 Rabbitrob99 31-35, M 5 Responses Oct 4, 2009

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    My Wife Is Still Hanging In There

    She entered the nursing home in August 2011 after our house fire in April 2011. I was told in March of 2012 she would never be coming home.  Since she had been seriously ill for so long before the fire it was easier to accept.  But before the fire she still had a slight chance...
    French378 French378 51-55, M 1 Response Feb 17, 2013

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    Cancer Ain't All Of It.

    We found out in October that my wife has pancreatic cancer. She had surgery to remove the tumors but they couldn’t get all of it. While in the hospital she became ill with TTP (a blood disorder she’s had before). She returned to the hospital this week because of the TTP and...
    deanekone deanekone 66-70, M 2 Responses Dec 13, 2012

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    Husband Ill And Dr's Still Have No Definite Answer

    i know I've written before, I don't really like leaning on anyone and I always put up a good positive front. But, from time to time, I just break down-while I'm alone and no one will know. Now a PET Scan shows activity in the gastric curvature region....and still no answers. They...
    blueyedrdhd blueyedrdhd 46-50, F Jul 12, 2012

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    Related Experiences

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    My husband and I have been together for 18 years and now due to traumatic childhood event that he just remembered a year ago he now has multiple personality disorder (mod) or...
    apryljeff apryljeff 41-45, F 3 Responses Jul 11

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    I have been having a particularly hard weekend dealing with the loneliness of living with a spouse with chronic pain so I searched the web and found this site. As I read some of...
    hispainismypain hispainismypain 61-65, F 3 Responses Jul 12

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    recently i went to see my doc well the GYN....and she and i were chatting before the exam and then after the exam she told me everything was fine and not to worry but that she...
    inevertoldne1 inevertoldne1 22-25, F 2 Responses 2 hrs ago

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    For about a year I've been considering divorcing my wife of nearly 8 years. Our relationship has never been great. We are great friends, but horrible lovers/spouses. We do things...
    randomtiger45 randomtiger45 31-35, M 1 Response Jul 1

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    I'm very worried currently. Delusions have returned full force and I keep slipping in and out of awareness of them. My raised anxiety levels and low levels of sleep is bringing it...
    PinkMellow PinkMellow 18-21, F 1 Response 11 hrs ago

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    Snapchat name: sicklittleshit
    sicklittleshit sicklittleshit 22-25, T 1 Response 10 hrs ago

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    I'm just sick of fake friends. I'd rather be alone than having fake friends around. My best friend back stabbed me by spreading some disgusting rumors about and i lost so many...
    Jay198z Jay198z 18-21, F 1 Response 3 hrs ago

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    Update: Divorce. I hope you're all doing well, and wanted to give you an update, since we've all considered divorcing our asp. spouse (or many of us at least). I got lucky in a...
    Mannon Mannon 36-40 3 Responses Jul 4

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    if an officers spouse wants to be saluted simply apologize, walk up to that blue decal as near it as possible and salute the decal. Don't forget the greeting of the day. Good...
    coolcalv coolcalv 26-30, M 6 days ago

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 Jul 1

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 1 Response Jul 1

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    Really not liking feeling sick all the time. It's like only 2 or three days I actually feel great. Most of my life I get horribly nauseous and get sick. I'm mostly bed ridden...
    SpilledTea SpilledTea 18-21, F Jul 7

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