I Have a Special Needs Child

Personal Stories, Advice, and Support 146 People

    So it turns out my son has autism spectrum

    disorder, he had originally been labeled special needs due to speech and developmental delays, but now he's showing other signs as well. I wonder if there's anyone else who has a kid with this. need someone to talk to.
    submissivenurse submissivenurse
    31-35, F
    2 Responses Feb 4, 2016

    I Have 3 Children With Special Needs

    I have a 12 year old that is diagnosed with asperges syndrom.  He is a high functioning autistic.  The hard part is that he looks normal but has a high IQ and no social skills.  He is most comfortable talking with adults as an equal more that kids his own age. ...
    soundman soundman
    36-40, M
    4 Responses Jul 17, 2007

    ~ Identity Theft ~

    DS has severe OCD.  So much to the point where he has emptied the checking acct out to the tune of thousands of dollars over the past 6 months.  Some was refunded, but sadly much was not.  It's like raising a 12 y/o compulsive gambler.    
    Sabrina0202 Sabrina0202
    41-45, F
    8 Responses May 8, 2008

    Need Help Desparately - Boyfriend Has Daughter With Severe Downs Syndrome

    She is 18 years old and is completely helpless.  She cannot walk, talk, see, hear or do anything on her own.  She has a G/J tube for feedings and medication.  She always has a diaper and a pad under her.  She also seems autistic as she usually spends the time she is awake...
    Katherine241 Katherine241
    May 27, 2011

    My Daughter My Silent Hero

    My daughter is hearing impaired and everything has been a struggle. She is getting better and starting to hear better although she has a long way to go. When I am sad she is my protector my solace. She always knows to give me a hug and tell me she loves me. She is the worlds best...
    deleted deleted
    1 Response Mar 22, 2008

    My Sister

      Adhd and developmental problems. I think it was a brain haemorrhage at birth. She has the mental age of about a 7 year old in a 13 year olds body, and she is not catching up. She was a very premature baby as well. I feel so sorry for my Mum. She doesn't deserve the...
    smebro smebro
    22-25, M
    12 Responses Dec 5, 2007

    Welcome to Holland by Emily Perl Kingsley

    When you are going to have a baby, it's like planning a fabulous vacation to Italy.  You buy a bunch of guide books and make all your wonderful plans: the Coliseum, Michelangelo's David, the gondolas in Venice.  You may even learn some handy phrases in Italian.  It...
    Lilt Lilt
    57 Responses Mar 13, 2009

    Found A Awesome Web Site I Wanted To Share

    This site is an educational one that offers things like abc's, learn to read, its fun to read, im reading, downloads, and tons of other stuff too... and the best part is its free! Check it out go to www.starfall.com   We hope you like it as much as we do!
    angelzevil angelzevil
    26-30, F
    Mar 22, 2010

    August 10, 2010

    Today, as often the case, was a very trying 'little man' day. He had an appointment with a new psychologist and honestly I don't think he even looked at her. It was mostly to discuss the upcoming school year, the challenges and any new news with him. My son has been to...
    mysplitpersonality mysplitpersonality
    36-40, F
    5 Responses Aug 10, 2010

    Sometimes I Miss

    the predicable life and comforts that I had. The corporate paycheck, my 3 bedroom 3 bath house, volunteer work and spiritual community. I was integrated into an accepting community. There was always something to do and a friendly face. After moving back to my hometown, I'm more...
    zeeva70 zeeva70
    41-45, F
    1 Response Nov 20, 2013

    Home For Christmas Vacation

    Here is a excerpt from an email to a friend.  It describes our life living with a Bi Polar child: "It was good to get so much sleep yesterday and avoid the in and out confrontations with ****.  He gets so combative at just the slightest thing, whenever he's...
    Sabrina0202 Sabrina0202
    41-45, F
    3 Responses Dec 21, 2007

    The Life That's Chosen Me (written by Karen

    Taylor-Good and Lisa Aschmann) We had such expectations, we would soon be giving birth To the next Chopin, the next Einstein, the greatest child on earth And we'd be the perfect family, soon we'd have the perfect kid We'd never have a challenge or a problem, God forbid Oh but...
    mmaaix mmaaix
    36-40, F
    2 Responses Jan 10, 2014

    If You Think My Hands Are Full You Should See My Heart

    Hello. My name is Anni and I have 3 wonderful children.   My oldest, Nicole-14, is of course trying to find herself in the teen world. Pretty average for her age, but made harder because of Bipolar disorder. Constantly bordering on extreme highs and lows...
    AnniAngel AnniAngel
    41-45, F
    Sep 6, 2007

    You Know You Have a Special Needs Child When...

    you reach into your pocket and think, "i forgot i had a nose in there" (my daughter has a trach. nose= thermovent) you have your child's complicated condition boiled down to a 3 sentence explanation that any new doctor or nurse can understand you can...
    bluros bluros
    31-35, F
    5 Responses Feb 8, 2009
    zeeva70 zeeva70
    41-45, F
    2 Responses Nov 18, 2014

    Another "Milestone"

    we finally had to put a port in my daughter. i was hoping that we would be able to use it for blood draws and iv access, but it is positioned in such a way that the catheter is against the vein wall and drawing blood could draw the wall as well and potentially rupture the vein...
    bluros bluros
    31-35, F
    2 Responses Jul 22, 2009

    Baby Mine

    Hi all - my first post. Found this site today through a friend of mine. Here is something I wrote a long time ago. My special girl is almost 9 now. She has learned to walk. Every day is still part of the journey.I hope she will talk one day. Hope you like it. **********I am...
    Elizhc Elizhc
    1 Response May 8, 2011

    Can Anyone Help?

    Skyler is also known as my sunshine. Skyler is 9 1/2 yrs old and has Asperger Syndrome which is on the lower end of the Autism spectrum. Along with Asperger's Skyler also has PDD, ADD, ADHD,OCD, and a few other learning disorders. All this being said he can be a challenge at...
    angelzevil angelzevil
    26-30, F
    1 Response Mar 19, 2010

    My Angels of Love

    I am new to this website. I hope everyone is doing well.  I am a mother of 3 special need children. 2 of my children have ADHD and my other child has cerebral palsy along with a list of other medical problems. All of my children are girls. My oldest is 25yrs old and she has...
    cas32060 cas32060
    46-50, F
    3 Responses Apr 21, 2008
    itskismet itskismet
    41-45, F
    6 Responses Mar 19, 2014

    I do not have a special needs child,

    but I work with them and I love them as if they were my own. I know it is very stressful at times. I sometimes often think about how difficult it must be. I want to say that I admire each and every parent of a special needs child. You rock!!
    SailorsAngel SailorsAngel
    41-45, F
    Sep 6, 2015

    I do - and she's been the most amazing gift I

    have ever received. She was diagnosed at 3 months with Cerebral Palsy and has intellectual and developmental delays. The prognosis back then was so grim as they don't really know how the brain will compensate and develop with each circumstance. For the first 5 years I was so...
    Emc2221 Emc2221
    51-55, F
    1 Response Mar 26, 2016

    A Snapshot of What It's Like For Me..

    Having a Bi Polar child has been a consumate roller coaster ride for 12 1/2 years.  Their presentation is so different from the adults.  Kids tend to rapid cycle several times a day, while adults (typically) only cycle over weeks or months. ...
    Sabrina0202 Sabrina0202
    41-45, F
    7 Responses Jan 5, 2008

    I Always Wanted A Child Of My Own, Now Im Concidering Adoption!?

    I am a mother of a special needs child. Im now 22. My daughter will be 2 next month. I was not planning on having a baby this young. I have been with my boyfriend for 4 years. (Ive known him since grade school) Me and my boyfriend were stupid... drinking and having sex. Well...
    br3ana br3ana
    22-25, F
    1 Response Apr 10, 2010

    My Boys..

    My 11yo was given a medical diagnosis of ADHD the year before he started kindergarten.  I was a single mom of two boys back then, and worked full time as well as went to school full time.  I was working towards a degree in Child Development.  I knew something was...
    Jennaflower Jennaflower
    36-40, F
    4 Responses Jan 23, 2008

    yes I do! my child need me

    and that makes me feel special. he is special. he isn't going to have a life like I did growing up.
    Evenflo95South Evenflo95South
    22-25, F
    1 Response Sep 6, 2015

    He's Back

    Gosh - It's been a while since I've posted a story here..  EP is mostly my escape from this group.  I've had a perfectly good weekend..  Woke early today.. good coffee..  good conversations.  I was taking a glorious nap not long ago only to be awoken by...
    Sabrina0202 Sabrina0202
    41-45, F
    5 Responses Mar 30, 2008

    Living In Survival Mode

    A year ago my son was diagnosed with hydrocephalus caused by an inoperable brain tumor. He is on chemo, has a vp shunt and a feeding tube. We have been so wrapped up in chemo work the last year, we are just now starting to deal with the long term affects of the hydrocephalus. He...
    Holdinghappiness Holdinghappiness
    26-30, F
    1 Response Apr 27, 2012


    today, we learned that our current nursing agency is pulling out of the area. i can't say it was entirely unexpected though. this leaves me feeling uncertain about our future. there is just so much that's going to be changing that this has happened at almost the worst...
    bluros bluros
    31-35, F
    1 Response Apr 9, 2008

    Some days it's bliss,

    but others I really feel challenged. My 2 year old daughter has speech and developmental delays. They believe it might be her hearing that's causing it. She is also being screened for autism. It can be frustrating for both of us when she can't get her message across to me. I...
    gazlove17 gazlove17
    26-30, F
    1 Response Jun 3, 2015

    Music Transforms You

    Hello...my name is Daniela and I am a single mom with 4 kids. My little Christina was born with Downsyndrome.I have traveled that steep and loney road of a mother who has a child with special needs and like to help, support and educate other moms who have a special needs child.I...
    DanielaClapp1234 DanielaClapp1234
    1 Response Apr 13, 2011

    Love & Guilt- Raising A Special Needs Daughter

    My daughter was born with cerebral palsy. The doctors say there are a lot of things she'll never do, but I try not to let that worry me. She's already done so many things they said she couldn't! True she can't speak, walk, or sit up, but she has a smile that lights up a room & a...
    KNeedsHelp KNeedsHelp
    18-21, F
    1 Response Dec 4, 2011

    My Daughter Has Schizencephaly An Cerebral Palsy

    Hi my name is Marissa. I’m a single teen mom of my beautiful daughter Alenni. When I was 28 weeks I was having severe breathing issues and I was sent to the hospital. They wanted to do an ultrasound of my daughter and that's when they spotted her brain deformity. When they told...
    a13m94 a13m94
    22-25, F
    2 Responses Nov 5, 2013

    Constant Struggle W/ Special Needs Child

    my son is 7 1/2 yrs.old w/ downs syndrome and autism.he has severe mental retardation and severe delays.Every time I reach out for help I am sorely dissapointed.  i  have been let down by the school,doctors,support organizations that say they're going to help and pass...
    jojo07 jojo07
    36-40, F
    1 Response Feb 25, 2010

    I Feel So Alone.

    I'm 20 I got pregnant when I was 17 and turned my life around. Everything seemed normal. Then I started to notice things my daughter wasn't doing. I kept thinking oh she'll just skip that and then months later she would do it. No one else seemed to notice. When she was 18 months...
    trappedintime trappedintime
    18-21, F
    3 Responses Apr 27, 2011

    My Little Alien

    i have a special needs child. she was born with a congenital birth defect called alobar holoprosencephaly. in simple terms, her brain did not fully develop while she was in the womb. her brain stem is intact and fully functioning. she just doesn't have enough grey matter to...
    bluros bluros
    31-35, F
    12 Responses Mar 4, 2008

    My Angel

       My daughter was diagnosed as ADHD when she was 5. I was so in denial that it wasn't funny. I even accused her Kinderden teacher not knowing how to work with 5yr olds.    The essesment or questionaire they had the teachers to fill out, And the parent fills...
    mommatrish mommatrish
    46-50, F
    7 Responses Mar 7, 2008

    I Have 2

    We got custody of my two step children who were severely sexually abused, as well as having learning dissabilities, my step son was diagnosed with ADHD, Oppositional Defiance disorder, and Mood disorder, he can be a handful, but he is stable right now, my step daughter has strong...
    Mystic44 Mystic44
    41-45, F
    2 Responses Sep 5, 2007
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