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I Have A Terminal Illness

Personal Stories, Advice, and Support 23 People

    I have a neurological illness called MSA

    (Multiple System Atrophy), almost nobody has ever heard of it. I am married and have 4 kids. I am 40 yo. The average ligespan is 7-9 years. I am in my fourth year and it is getting harder every day. patients with MSA start to loose the ability to move, and eventually talk...
    tanustt tanustt 36-40, F 3 Responses Feb 10

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    Life looks different today.

    I was diagnosed yesterday with a disease expected to destroy my mind and be very painful in the end too. What fun! It's weird the clarity this brings. Every moment counts even though the end is years away still for me, and I am not going down without a fight. I started...
    onefootoutthedoor onefootoutthedoor 51-55, M 10 Responses Dec 12, 2013

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    Party Girl Who Wishes She Could Change The Past

    I was a heavy drinker all my life.  Now, I am terminal.  I come from a family of heavy drinkers and my grandpa lived to be 92.  The thought of cirrhosis never entered my mind.   I recently had warning signs that something was wrong; my nose bled, bruises were all over my...
    11chuleta 11chuleta 46-50, F 1 Response May 9, 2012

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    Diphtheria

    I'm 21 years old and I've had a terrible life and maybe like most people have wished for my life to end. I haven't actually attempted suicide or hurt myself, I've already been physically hurt too many times to want to do that anyway. But I never wanted a terminal illness, I don't...
    InmemoryofLifelessStar InmemoryofLifelessStar 18-21, F 35 Responses Jul 18, 2011

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    Leukemia

    I had a bone marrow transplant in 2003 and I am still alive and I am not on any medication.
    Pat111 Pat111 51-55 Dec 8, 2011

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    My only remaining kidney has entered stage 3

    failure. I'm not ready to die. Not like this. I continue to fight as I have been. I hope soon I can go home. I really hate it here at the hospital. The people are all really nice here but this place makes me think of pain and death. I have dialysis again tomorrow, but I'm not...
    cartermurrows cartermurrows 18-21, F 8 Responses Apr 17

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    Finding it hard to deal with.

    I push it to the back of my mind. I don't want this. If I ignore it it will go away wont it??? Maybe the doctors have it all wrong? What am I exactly supposed to do now? Pulmonary fibrosis..... sounds harmless so why is it a killer? I have a three year old... I want to...
    girl1e girl1e 31-35, F 4 Responses May 25

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    I Had A Long Day

    So I thought I'd take a long week to type it hereThe very slow process of my death is, exhausting to say the least.I tried to through myself a celebration party for passing my terimal date, I had to pay for everything lol and all these people I dont really know and invited ended...
    LateNightOwl LateNightOwl 22-25, M Jun 6, 2011

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    My best friend finally returned my call today

    and I did not have the heart to tell him I was unwell. First of all he is a blabber mouth and telling him would mean dozens of people I know would know and that would be a pain in the ***. Secondly I did not want to bum him out. He's had a rough spell that has recently turned...
    onefootoutthedoor onefootoutthedoor 51-55, M 2 Responses Jan 1

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    My Story

    i was diagnosed with a (then) non-operable brain tumor in 2001 and was told I had less than a 50% to survive the next 5 years.  it's been 10 years now since the diagnosis and i should be happy to be alive, but i'm not.  I've had at least 4 surgeries and radiotherapy and most...
    omelettegod omelettegod 41-45 6 Responses Jul 16, 2011

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    Related Experiences

    I have a friend, who I will call Melissa (not her real name) who has more than her share of challenges in life. I have known her most of my life as we attended the same grade...
    ginger1979 ginger1979 41-45, F 1 Response 5 days ago

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    So I was sitting in the waiting room at the doctors office, the other day. And as I'm sitting there a woman with Down's syndrome came in and sat down. She must have been in her...
    Skywalker1979 Skywalker1979 31-35, M 3 Responses Aug 29

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    We have a terminal there. Were moving into another terminal soon.
    OzarksTrucker OzarksTrucker 36-40, M Aug 17

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    Those of us who suffer BPD know where hell really is. It's inside us. No escaping the agony, pain and torture. No reprieve. It's in every moment of our day, our dreams and our...
    AussieAZ AussieAZ 41-45, M 3 Responses Aug 28

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    Stigma is a self-perpetuated cycle. We cry out for awareness and understanding from the shadows of our self-imposed closet. We bang our heads against the walls, wailing songs of...
    o0capricious0o o0capricious0o 31-35, F 1 Response Sep 3

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    I was the 1st person ever in Britain to get the adult ttp as a child at the age 4. I was 1 in 6 million and the 1st person to get it. If the doctors gave me a blood transfusion I...
    tiashepherdx tiashepherdx 13-15, F Aug 18

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    Why is it so hard for those of us who are suffering to get access to proper treatment. Not to mention the treatments available suck, the therapies are not as effective as...
    Kingshelman Kingshelman 31-35, M 1 Response Aug 26

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    I live with MS and I've never really had to deal with serious illness before. I'm also in the process of being tested for Anemia. It is quite stressful to just get on with my life...
    Beyala Beyala 22-25, F 1 Response Sep 3

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    I've got ADD and OCD and the **** affects my life in ways that most people can't understand. I guess I'm just looking for support but there is a stigma about mental illness and...
    fiendforlife fiendforlife 31-35, M 2 Responses Sep 3

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    I was diagnosed about 3 years ago. Been sick for at least 5 years, probably longer. I have tried many meds and still can't get my disease out of an active state. Not sure what...
    Enaed Enaed 46-50, F Aug 29

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    I'm starting to feel defeated. I am not allowed to attend college due to my mental disorders. Mainly my dissociativeness. And the frequency of my lows - borderline. I want...
    iMinnow iMinnow 18-21, F 1 Response Sep 5

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    Totally new to this..... So here you go! I've been struggling with mental illnesses for well over 18 years now. At first I was diagnosed as manic-depressive which the psychiatrist...
    accaliaraynne accaliaraynne 26-30, F 3 Responses 5 days ago

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    A big problem for me is that I've let the illness define me. Whether I have a good day or not is determined by what I'm thinking not what I'm doing. I can't enjoy the things I...
    somethingx3 somethingx3 31-35, M 1 Response 2 days ago

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    My wife of 29 years died on the 4th of August and was cremated yesterday 15th of August. She had terminal pancreatic cancer Is there anyone who's been through the same...
    Rogerrowley1947 Rogerrowley1947 66-70, M 3 Responses Aug 16

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    I'm completely lost. I've been playing the Irish sport of hurling since I was four years old and fell in love with it. I even played for my county. Over the years I've had...
    aliken98 aliken98 16-17, F 4 Responses Aug 21

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    I know what you're going through and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to...
    smgreen1703 smgreen1703 22-25, F Aug 24

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    I hate visiting her. But she is really almost terminally sick. This woman is very negative and draining. Any advice on having limited contact with a mother who is gravely ill? She...
    milanmilan milanmilan 36-40, F 3 Responses Sep 2

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    I just got diagnosed two weeks ago with ulcerative colitis. I'm lucky I caught it early, my brother had a lot of complications when he was diagnosed with crohns disease. I'm 22...
    cmandel cmandel 18-21, F 1 Response 1 day ago

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    I'm 19 i have suffered from mental illness since i was thirteen. I have borderline personality disorder, anxiety, depression and psychosis. Everyday it is hard to know what's real...
    saucepan95 saucepan95 18-21 1 Response 14 hrs ago

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    It's Hard To Kill A Dead Man I wrote this story, got some great comment but then deleted it by accident while trying to edit it. Here it is again: Back in the 90s, I had been...
    Brainyblonde Brainyblonde 66-70, F Aug 19

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    I have a type of leukemia, Acute Lymphoblastic. Pretty much cancer in bone marrow. I'm a high risk. It gets you thinking about stuff. I had to quit my job and can't go to high...
    Btimez3 Btimez3 13-15, M 1 Response 5 days ago

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    I am 40 have 3 children and a nurse. I had a lot of stress in my life 2013 and found a lump on my arm which was quite painfully, my dr just brushed it off. Then my hands became...
    nessie41 nessie41 41-45, F Aug 17

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    I am writing a journal of my research of fear & what I'm still experiencing of my Depersonalization Disorder Fear Very few people don't understand...
    Joman9 Joman9 16-17, M 4 Responses Aug 18

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    Unrequited love. What does one do when the cure is the illness?
    BlackCatBoy BlackCatBoy 41-45, M 1 Response Aug 19

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    Well i should say i 'had' not i have. My mom lost her battle with the disorder in 2010, that's the way i prefer to word it. She was mentally ill and she fought for many years. If...
    bridgetdarcy998 bridgetdarcy998 18-21, F 2 Responses Aug 20

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    I was diagnosed with HS when I was about 3 months old. I started having blood transfusions soon after. I became very ill and after each blood transfusion I would get a little...
    KathrynRobyn KathrynRobyn 22-25, F Aug 21

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    Have any of you seen, or broken out in a rash that looks anything like this? This rash was on my right leg, on the side of the knee. Not pictured is another rash (same leg) that...
    catsmeow59 catsmeow59 51-55, F Aug 23

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    My Two Precious Miracles! Due to my health issues / illnesses I was pretty much informed by my OB/GYN that my chances of becoming pregnant was nearly impossible! Not saying I...
    Blackbarbie27 Blackbarbie27 26-30, F Aug 23

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    I contracted q fever while visiting farms looking for a baby goat for my son for Easter in the spring of 2012. I was fatigued and my joints hurt something terrible. When it was...
    myfamilymatters myfamilymatters 36-40 Aug 27

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    It's not even a feeling anymore. I know I will die young. It's either because of illness or intentional. But then again I've been trying to make myself sick so I guess whatever the...
    bhabhablacksheep bhabhablacksheep 22-25, F 1 Response Aug 29

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    My lawn guy had to retire do to illness. I placed and add and the only response I got was from a girl just out of HS. I am not sure this is an appropriate business setup. I am I...
    shyandwild99 shyandwild99 46-50, M 3 Responses Aug 29

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    For some reason, I've always thought I would die in my twenties or early thirties. Not intentionally, but through either illness or accident. Hoping my gut is wrong! Maybe it's...
    Seblett Seblett 13-15, F 1 Response Aug 29

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    I could so use some help and advice if some of you could take the time to try and help someone who is suffering and needs the help. GUILT IS...
    Altruistrick Altruistrick 56-60, M 5 Responses Aug 29

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    I have unclean thoughts. I'm scared of myself. I'm sadistic. And I don't want to be. "Change your thoughts, you change your life" Yeah. Not that easy. I swear I'm psychotic...
    iMinnow iMinnow 18-21, F 2 Responses Aug 29

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    Hi, I'm Eden, and I have problems: depression, schizophrenia, OCD, and symptoms seen in psychopaths and sociopaths. I feel terrified of myself. I can't believe that my brain...
    FlyingToHell FlyingToHell 13-15, F 6 Responses Aug 30

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    I have Asperger's Syndrome It helps me find it difficult to talk to girls in the real world that probably why I'm single but I can't change it I was born with it but it upsets me...
    JonnyBurrows10 JonnyBurrows10 18-21, M 3 Responses Aug 31

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    You cannot understand how ******* stupid you look saying that weed is an acceptable drug. I have seen peoples lives destroyed by a marihuana addiction. I've seen the kindest people...
    ChloeMaay ChloeMaay 18-21, F 8 Responses Aug 31

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    Dealing with mental illness is a *****. And nobody can really understand it unless they have it. I have major depression, severe anxiety, and as of one year panic attacks the...
    ibelovinhimnher ibelovinhimnher 26-30, F 1 Response Sep 2

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