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I Have A Terminal Illness

Personal Stories, Advice, and Support 27 People

    I have a neurological illness called MSA

    (Multiple System Atrophy), almost nobody has ever heard of it. I am married and have 4 kids. I am 40 yo. The average ligespan is 7-9 years. I am in my fourth year and it is getting harder every day. patients with MSA start to loose the ability to move, and eventually talk...
    tanustt tanustt 41-45, F 3 Responses Feb 10, 2014

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    Diphtheria

    I'm 21 years old and I've had a terrible life and maybe like most people have wished for my life to end. I haven't actually attempted suicide or hurt myself, I've already been physically hurt too many times to want to do that anyway. But I never wanted a terminal illness, I don't...
    InmemoryofLifelessStar InmemoryofLifelessStar 18-21, F 35 Responses Jul 18, 2011

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    My best friend finally returned my call today

    and I did not have the heart to tell him I was unwell. First of all he is a blabber mouth and telling him would mean dozens of people I know would know and that would be a pain in the ***. Secondly I did not want to bum him out. He's had a rough spell that has recently turned...
    onefootoutthedoor onefootoutthedoor 51-55, M 2 Responses Jan 1, 2014

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    I Had A Long Day

    So I thought I'd take a long week to type it hereThe very slow process of my death is, exhausting to say the least.I tried to through myself a celebration party for passing my terimal date, I had to pay for everything lol and all these people I dont really know and invited ended...
    LateNightOwl LateNightOwl 22-25, M Jun 6, 2011

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    Life looks different today.

    I was diagnosed yesterday with a disease expected to destroy my mind and be very painful in the end too. What fun! It's weird the clarity this brings. Every moment counts even though the end is years away still for me, and I am not going down without a fight. I started...
    onefootoutthedoor onefootoutthedoor 51-55, M 11 Responses Dec 12, 2013

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    Finding it hard to deal with.

    I push it to the back of my mind. I don't want this. If I ignore it it will go away wont it??? Maybe the doctors have it all wrong? What am I exactly supposed to do now? Pulmonary fibrosis..... sounds harmless so why is it a killer? I have a three year old... I want to...
    girl1e girl1e 31-35, F 4 Responses May 25, 2014

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    My only remaining kidney has entered stage 3

    failure. I'm not ready to die. Not like this. I continue to fight as I have been. I hope soon I can go home. I really hate it here at the hospital. The people are all really nice here but this place makes me think of pain and death. I have dialysis again tomorrow, but I'm not...
    cartermurrows cartermurrows 18-21, F 8 Responses Apr 17, 2014

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    I have been told I may need heart bypass

    surgery. That is not the hard part. I also may have cardiomyopathy. If I do, I know I have a short time to live. This illness is known to be in my family. More later. This is not good bye.
    oldclerk oldclerk 61-65, M Dec 8, 2014

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    My Story

    i was diagnosed with a (then) non-operable brain tumor in 2001 and was told I had less than a 50% to survive the next 5 years.  it's been 10 years now since the diagnosis and i should be happy to be alive, but i'm not.  I've had at least 4 surgeries and radiotherapy and most...
    omelettegod omelettegod 41-45 6 Responses Jul 16, 2011

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    Party Girl Who Wishes She Could Change The Past

    I was a heavy drinker all my life.  Now, I am terminal.  I come from a family of heavy drinkers and my grandpa lived to be 92.  The thought of cirrhosis never entered my mind.   I recently had warning signs that something was wrong; my nose bled, bruises were all over my...
    11chuleta 11chuleta 46-50, F 1 Response May 9, 2012

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    Leukemia

    I had a bone marrow transplant in 2003 and I am still alive and I am not on any medication.
    Pat111 Pat111 51-55 Dec 8, 2011

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    My body is rejecting itself it's a genetic

    illness that skips some generations in my family first guy to get it so god dam do I feel lucky. I'm 18 and I walk with a cane for gods sake and my body is just gonna decay and break until I can't walk or do anything myself but hey...I'm having a good hair day today so...things...
    lewismurray16 lewismurray16 18-21, M Nov 11, 2014

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    Related Experiences

    I have a chronic illness and feel very lonely. I want to be a wife and share my life but how???
    loveroflife44 loveroflife44 46-50, F 1 day ago

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    I've never been diagnosed with cancer, so from that perspective I cannot relate with many of you. My father died of lung cancer in 2009, and it was devastating for all of us, my...
    Nmajor Nmajor 22-25, F 3 days ago

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    I am having trouble believing that my future will be any different. My family loves me and tells me that this is a minor problem compared to others and I agree. except...I had...
    BeautifullyadoredbyGod BeautifullyadoredbyGod 31-35, F 3 days ago

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    I've been experiencing ptsd over the past 2 years and its left my life in pieces: my whole world came crashing down after I was tortured not once but twice by men of the law the...
    luckbealadytonight luckbealadytonight 36-40, F 1 Response 4 days ago

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    I feel like I'm going insane. My mind is not normal. I have panic attacks constantly but there is never anyone who can help. Everyone looks down on me for it and doesn't understand...
    thissworld thissworld 18-21, F 4 Responses 4 days ago

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    help i have done it again i have been here many times before hurt myself again today and the worst part is there's no one else to blame, ouch i have lost myself again and i am...
    highondarknes highondarknes 16-17, F 1 Response 5 days ago

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    "PAYBACKS ARE A ***** AND SO IS MY MOTHER" Caring for an aging narcissistic mother is hard. As the child of a narcissistic mother, chances are that when your mother needs you...
    rescueme99 rescueme99 41-45 1 Response a week ago

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    ​I'm 21 years old and 5 years ago I got really ill.It started out as rapid-cycling and it was really intense and could switch in a matter of hours. They gave me lamictal and...
    Ennah Ennah 18-21, F 2 Responses Jun 22

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    want some advice.... somebody who knows about mental illnesses or is recognized to that category...?
    cuzzz11 cuzzz11 18-21, F 3 Responses Jun 20

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    I was diagnosed with m.s in 1999 hardest 2 things I had to learn to deal with were 1. Understanding that people without m.s cannot relate to the condition AT ALL!. its not their...
    ledgie1975 ledgie1975 36-40, M 1 Response Jun 20

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    My first mental illness was major depression, it began around the age of 6. I would become withdrawn from social interaction and remain in my bedroom. I didn't want people to come...
    CelticBoxingGuy CelticBoxingGuy 41-45, M Jun 19

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    Hey guys. This is more of a question than an experience. I am seeking as much help I can get. So to summarize, I have been a depressed person since I was a child. I don't know but...
    changemindchangelife changemindchangelife 18-21, F 4 Responses Jun 18

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    Society stopped caring. Why stop. Because too many got sad. Or needy. And pills rarely work. And counselling became moronic But many who cant help say try meds Or...
    Converted Converted 46-50, M Jun 18

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    I am 44 years old I have experienced Bi polar with mixed episodes, Mania and depression Anxiety and panic PTSD and Scizophrenia. never diagnosed but clearly have dealt with...
    smalltownwitch smalltownwitch 41-45, F Jun 18

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    At 18 years old, I was the youngest patient on the ward when I was admitted to the psychiatric floor of a hospital 4 months ago. I had just attempted suicide and I had never been...
    bluerose2218 bluerose2218 18-21, F 1 Response Jun 17

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    I always try to check on my cousin Bradley. He was diagnosed while hospitalized nine years ago (that is a whole other story, believe me). Last week, I went to check on him. I...
    TheGoddessB TheGoddessB 31-35, F Jun 17

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    Dear not mentally ill people trying to give me advice: If I had so much control over my illness that I "wouldn't let it affect me", I wouldn't be ******* ill. That is what...
    Atmosfaerie Atmosfaerie 22-25 8 Responses Jun 17

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    I am laying in bed as the hours that I get to sleep slowing drain away. I was ready to collapse from exhaustion all day until I climbed into bed. Now I cannot seem to catch my...
    DramaBabe94 DramaBabe94 13-15, F 2 Responses Jun 17

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    Sometimes my heart clenches painfully tight and my chest feels like ice is slowly encasing it in a burning sensation that is only felt in association with frostbite, whether it be...
    Hunttheheartofblack Hunttheheartofblack 16-17, F Jun 16

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    It was in 6th grade. At first, it started because I was too stubborn to eat what my aunt and uncle would feed me. After a while, it was a way of punishing myself. I didn't have any...
    leggyshay leggyshay 16-17, F Jun 16

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    When I first got diagnosed with polycystic ovaries my first and instant reaction was to google the syndrome to find out as much as I could about disease I knew very little about...
    cocochanel92 cocochanel92 22-25, F 1 Response Jun 16

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    I've got some questions for those of you that's in a relationship. When did you start talking about your illness? Do you feel that you get enough support and understanding? I've...
    Elisabeth90 Elisabeth90 22-25, F 6 Responses Jun 15

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    I just realized I haven't cut in over 2 years
    Itsssnatalie Itsssnatalie 18-21, F 2 Responses Jun 15

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    I think that living with mental illness is like experiencing life through more than one set of eyes, like when you are checking and when you aren't. you get more than one vantage...
    JaclynAisling87 JaclynAisling87 26-30, F 6 Responses Jun 14

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    Having BPD, depression and social anxiety and trying to be a good wife and good mother is a big struggle. I know I'm not good enough for my husband, he deserves the world, someone...
    queenofdragons8 queenofdragons8 22-25, F 2 Responses Jun 13

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    I can see spirits as well as shadow beings. I can also see energy and can manipulate it. I'm like a magnet to spirits and to people in general. I can make a person do anything in...
    Biowolf25 Biowolf25 16-17, F 1 Response Jun 13

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    Is this the right group to post this? I think I'm messed up mentally. My parents, family and school all think so too. I have like a tiny bit of literally every mental illness as...
    jemeinkraft jemeinkraft 13-15, F 3 Responses Jun 13

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    I am an anxious person with depression. Lost my only 2 friends. I don't know what to do anymore. I wish I could at least have one close friend that I can trust and that won't leave...
    lyricstomyheart lyricstomyheart 18-21, F 1 Response Jun 12

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    I'm a sinner and a saint, a house wife who has a wicked mental illness, I am always alone but not lonely, I think I'm dying but I'll fight for my life. I love all people in all of...
    Jesusfoundme Jesusfoundme 31-35, F 1 Response Jun 12

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    I have major depressive disorder and I'm afraid to be close to anyone because people want you to be fun and happy so I don't wanna say how I really feel.
    wellitmatters2me wellitmatters2me 22-25, F 1 Response Jun 12

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