I Have Achalasia

A Achalasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Achalasia. You're not alone. 226 People

    Achalasia And Body Image - An Ironic Combination

    I first experienced difficulty eating when I was 12. It wasn't enough to get me to eat less, as I was 4'11" and 125 lbs., but it was enough that eating a sandwich or a piece of steak felt a little uncomfortable. I had no idea what it was, and assumed what I was feeling was normal...
    CleverDoll CleverDoll
    1 Response Jun 24, 2013

    Hi everyone this is my first time in a group my

    story started when i was 8 yrs old i was unable to eat with out throwing up everything i ate my doctor tried all sorts of things but nothing seem to work after 4 yrs my doctors had a plan to operate they cut all the way down the outside of my esophagus to kill the nerves that...
    feltitall feltitall
    1 Response Feb 24, 2016

    Diagnosed At 35 Years Of Age And Now Living With Achalasia

    I suffered from heartburn since my first pregnancy when I was 19, but I just put up with it. Some attacks I would drink water or milk to ease the symptoms but I never sought medical or pharmaceutical help for it. However the heartburn got progressively worse in my late 20's and...
    SharonHume SharonHume
    31-35, F
    1 Response Jan 27, 2013

    135lbs Lost!

    My story begins when I was 25. I was always a big guy throughout my childhood years. my top weight was 280lbs. I was working one day at my hotel and was eating lunch and I felt I was going to throw up. From that point on I was throwing up everything. Food, Liquids even my own...
    sfish020 sfish020
    Aug 29, 2012

    The summer after 5th grade,

    i started to choke on all my food. i thought it was maybe something that would go away, and i didn't want to tell my mom because i hated going to the doctor. Then, i started experiencing sharp, unbearable pains in my chest. Obviously, as a 12 year old little girl, this really...
    moonmermaid moonmermaid
    22-25, F
    Nov 19, 2014

    I have not posted since 2013.

    .. This post is kind of an update and also a weight question for fellow Achalasia/Gastroparesis/GI Dysmotility sufferers. It is a bit of a long read so apologies, I do try to write as entertaining as possible though! For those who don't know my particular story, I was first...
    AlxandriaNicole AlxandriaNicole
    18-21, F
    2 Responses May 21, 2015

    We Are Not Alone

    It's good to read of other people's experiences with Achalasia.  I don't personally know anyone that has it besides myself.  It has been difficult and I find most people are not that understanding when you regurgitate unexpectedly.  My boss told me to take it to the bathroom...
    leedee55 leedee55
    51-55, F
    Apr 14, 2012

    Been Living With Achalasia For 28 Years!

    Wow so excited!! I will finally be getting surgery and know what it will feel like to eat like a normal person!! =)
    fatimadelgado01 fatimadelgado01
    41-45, F
    2 Responses May 7, 2013

    Sorry if this is a repeat post.

    . I am still learning the ropes of this site. I have Achalasia in the form of severe chest pain (I can swallow food for now). I use a Kavinace supplement to ease the pain and relax my esophagus. An alternative medicine doctor recommended the Kavinace after speaking with a...
    NCAchalasia NCAchalasia
    41-45, F
    1 Response Dec 10, 2014

    Wow! There Are Others That Feel Like I Do...

    My story in a nutshell: At the age of nine I started having trouble swallowing but for whatever reason I was too embarassed to tell my mom. So, for about a year I would excuse myself from all meals and silently slip into the restroom to regurgigtate my undigested food. At some...
    kittenleo13 kittenleo13
    41-45, F
    2 Responses Jan 22, 2013

    Achalasia the Mystery

    Feb.07 I was told I have chalasia. I could not keep food and lost 52 lbs I did not choose the options offered but am doing massage,accupunture and chiroprctor. There are good days and bad. Sometimes I can eat chicken and sometimes not. I have spasms where I cannot breath. With...
    gbv1 gbv1
    6 Responses Mar 19, 2009

    Winning The Battle Of Achalasia By Accident

    It was 13 yrs ago, six months of slowly losing the ability to swallow food completely till not even water would pass down. I lost half my body weight and losing the fighting battle to live. Finally they found a name for the horrible disease Achalasia I had a balloon dialation...
    allbetter allbetter
    46-50, F
    5 Responses Jan 9, 2013

    I'm currently 28 healthy-ish ( just had a

    physical and all was well :) ) and was diagnosed at age 10. Every night I would go to sleep I would wake up vomiting I would aspirate my food constantly had aspiration pneumonia, it's extremely rare in young kids so when they did a chest x ray it look like my heart was absolute...
    nighthawkra nighthawkra
    31-35, M
    Aug 28, 2015

    Achalasia For 25 Years

    I found out that have Had for achalasia for 25 yrars. I have been to six different doctors and th all scoped me and then they said I had gerd and take medications I had been taking all Long. I finally went to a new doctor and he performed an esophageal gram. You drink barium and...
    Jsduchak Jsduchak
    70+, F
    1 Response Aug 17, 2013

    Last week, I was diagnosed with achalasia,

    although in retrospect, I have experienced symptoms leading up to this diagnosis for years. I wanted to share my story and hope that my experiences can help someone else. I can pinpoint my first symptom that happened 35 years ago when I asked my husband to pull the car over...
    debbiecoiro debbiecoiro
    51-55, F
    1 Response Apr 24, 2014

    I just received my diagnosis.

    5 years ago I almost died from aspirated pneumonia...hospital for 23 days and surgery on my lung. During that time, I got the botox shot and it seemed to last for about 3 years (guess I was lucky). I am really nervous about the surgery and am a relatively healthy person who...
    stevecplnd stevecplnd
    4 Responses Mar 26, 2015

    A list of food for Achalasia (updated

    as my Achalasia is worsening) -tuna can packed in oil with shredded cheddar on top. -chicken soup -Senegalese peanut soup -Thai tom yum or tom kha soup with chicken -Japanese miso soup -Chinese hot and sour soup -gyro meat (or schwarma meat) -hot chocolate (or any flavored...
    RedViolet43 RedViolet43
    41-45, F
    1 Response Mar 21, 2014

    Trying To Be Strong

    I first started having Achalasia symptoms when I was about 12 years old. It was misdiagnosed until I was 22. In February of 2008 the symptoms got out of control. I got to the point where I could not even swallow a drink of water. My family doctor send me in to have an EGD because...
    mck26 mck26
    26-30, F
    7 Responses Jun 22, 2012

    I experienced discomfort

    for years. I several doctor's and was misdiagnosed, so their treatments never did anything to relieve my symptoms. I was prescribed antacids of various kinds, and got a general diagnosis of Esophogeal Dysmotility. The Antacids rarely offered any relief and certainly did not...
    Dhawkinbird Dhawkinbird
    41-45, F
    2 Responses Jan 8, 2016

    I was finally diagnosed with achalasia a little

    over a year ago. It's been and up and down journey. But it has never been as bad as it is now. I cannot keep food or liquids down. Plus I wake up choking most nights. I'm a big girl, but have lost over 16 lbs in the past 3-1/2 weeks. I have the constant taste of salt in my mouth...
    Conley2010 Conley2010
    46-50, F
    1 Response Jan 29, 2016

    Misdiagnosis And I Nearly Died.

    My story started when I was thirteen years old. It started with a feeling like there was a chicken bone or something in my throat. I had terrible pain when I ate and coughed constantly. I started to lose weight and my gp referred me to a paediatrician for a referral to get a...
    lellylives09 lellylives09
    5 Responses Oct 27, 2011

    Achalasia & Me

    I didn't know what Achalasia was until six months ago, about two weeks after I had a barium swallow, when I received my test results. The results told me I had "Stage 3 Achalasia." My family doctor did not even know what Achalasia really was. And even though I had not known what...
    saerakehoe saerakehoe
    22-25, F
    3 Responses Feb 24, 2011

    I am a 36 years old female with 2 young kids,

    I was diagnosed with achalasia 2 yrs ago and had heller myotomy before one and half year.I do understand people suffering with achalasia and their painful life.I got successful surgery of esophagus and do not have any other problem except slow swallowing and living totally...
    Npat1 Npat1
    36-40, F
    Mar 17, 2016

    I Have Achalasia

    I was always a thin person always eating slowly and was the last one to finish my meal. Taunted all the time by all around me.My symptoms started happening 10-12 years ago when I used to get up with severe chest pain. As if a belch is stuck in the chest and can not get out. In...
    scrared scrared
    3 Responses Feb 26, 2012

    I am 20 years old and was diagnosed with

    Achalasia this morning. For the past two months I have been choking on water, not able to swallow pills with ease, experiencing the sensation of food being caught in my chest and throat and throwing up my food. I did the barium swallow test this morning and my x-rays showed the...
    KelleyWard KelleyWard
    1 Response Jul 25, 2014

    Achalasia and weight gain.

    I have had troubles all my life with eating, regurgitating etc. I have primary Achalasia. I also have been diagnosed with Fybromyalgia, arthritis, IBS, anxiety, depression, OCD and panic disorder. Needless to say I am a mess. I was misdiagnosed most of my life, finally at...
    RosyJae RosyJae
    51-55, F
    1 Response Jun 22, 2014

    I Feel Great!

    i was diagnosed with achalasiain may of '08 after tests were run. I was throwing up several times a day. Not throwing up stomach contents. what was in my esophagus. At night i would dream, and in my dream i would be throwing up. I would awake throwing up in bed. i was losing...
    tco707 tco707
    11 Responses Jan 17, 2009

    I have had achalasia

    for the last 20+ years. Unfortunately when I was first diagnosed the condition was relatively unknown in the UK and it has been trial and error ever since. At the point of diagnosis I weighed around 90 pounds - not a pretty sight, I was also at the point of multi organ failure...
    alliefine alliefine
    46-50, F
    2 Responses Jun 1, 2015

    Going For It!

    Hi everyone! This is the first group I've ever joined. I've had achalasia for about 8 years now. It's oddly comforting to read stories about peoples experiences with this disease, usually nobody has ever heard of it! Finally going to have a Heller Myotomy and pretty nervous as it...
    Talula8 Talula8
    2 Responses Feb 15, 2013

    I am 51 years old. I am newly diagnosed with

    this disorder and scheduled for the POEM procedure in April. This all began with with having to clear my throat constantly about 6 months ago. Then the difficulty swallowing and the regurgitation started. The first time it hit me really hard was, i got thirsty, so as is my habit...
    ravenquills ravenquills
    51-55, F
    Mar 22, 2016

    Hi everyone, I wanted to join to tell everyone

    about my experience with achalasia. I was officially diagnosed in the summer of 2011 but due to other health complications, didn't seek treatment until late 2012!!! I ended up doing the POEM procedure (peroral endoscopic myotomy) in December 2012 and what an absolute lifesaver...
    ambika2582 ambika2582
    31-35, F
    4 Responses Dec 18, 2013

    My mom has Achalasia

    and was diagnosed about 3 years ago. She is 81. She has had problems eating for many, many years but never had it checked out. I have been on line looking for support groups and I am surprised at how rare and unheard of Achalasia is and the lake of support groups. Like most of...
    hikerpal hikerpal
    1 Response Oct 3, 2014

    Achalasia Started While Pregnant

    I'm 32 I've had Achalasia for about 6 years now.  It started when I was pregnant with my son, I thought I was just having heartburn and burping a lot(I had never had it before so I was unsure what it felt like) later I found out it was esophegal spasms.  After my son was born I...
    pamiejo pamiejo
    3 Responses Oct 12, 2011

    My story is a long one.

    I was diagnosed with Achalasia in 1990 at 6 years old. Long before all of the keyhole entry surgeries were created. It took 8 months and dozens of trips to the emergency room for us to find a doctor who was able to diagnose me. Thank God I was diagnosed when I was because by...
    livingtestimony83 livingtestimony83
    31-35, F
    5 Responses Feb 27, 2015

    Managing A Few Years After The Myotemy

    I was diagnosed in about 2008 after about a year of trying to work out what the problem was - along with all the symptoms you would expect and all the possibilities - until the manometry test clinched the deal and helped to finalise the diagnosis. I had chest pain, was unable to...
    Lori43 Lori43
    41-45, F
    Oct 26, 2012

    I have Achalasia, but it's new to me.

    Meaning, I have achalasia this year. Meaning, I had GERD the year before. Meaning, I had an iron gut the year before that. Meaning, two years ago, I ate a cheesesteak with jalepenos, and it was awesome. I remember thinking "that's what I'm talking' about". I remember thinking...
    RedViolet43 RedViolet43
    41-45, F
    1 Response Mar 3, 2014

    I am 40 and started developing swallowing

    problems over the last few months. Progressed to throwing up at night and then progressed to not being able to eat without throwing up shortly thereafter. I am getting scheduled for surgery soon and look forward to it. I've lost about 40 lbs in 6 months. Feel constantly...
    rparis74 rparis74
    41-45, M
    3 Responses Feb 20, 2015

    Went into my family Dr

    for a persistent cough. The tickle in my throat that led to coughing just wouldn't go away and I was having a time swallowing. Doc was more worried about the "not swallowing" bit. Hydration & nutrition being important and all... So he refered me to a specialist . She then did a...
    majidifan majidifan
    46-50, F
    Sep 21, 2015

    Would Love Friends For Support.

    After months of not being able to eat solid food and weight loss.I found out I have Achalasia. I am 65 years old. I am so weak and frustrated. How do i live with this until the Doctors decide what to do ?
    BobbiefromBunnNC BobbiefromBunnNC
    66-70, F
    1 Response Aug 5, 2013

    Never before knowing this existed even

    after going to EMT school, I was diagnosed earlier this year, though the onset of complications really started to take effect a year prior. I know it's not known what causes nerve cell death but I've heard, that it's an auto-immune issue. Whether that's true my sister has an...
    kr3393 kr3393
    1 Response Aug 9, 2014

    I've been looking to talk to people

    who have experienced similar ****, as I'm currently in the soft diet recovery part of my Heller Myotomy. It gets annoying to explain why I can't eat certain things to everyone, although I admit my health problems could be much worse. I'm not dying or anything. I started...
    meljo33 meljo33
    26-30, F
    3 Responses Feb 1, 2014

    i am a 40 yrs old person diagonized with

    achalasia in 2008. initially from march 2008, to december -2008, i was running from pillars to pillars to find the reason for difficulty in swallowing , belching , disturbed sleep due to GERD , etc. i went thru one ENT SPECIALIST , ONE NEURO SPECIALIST , TWO GENERAL SURGEONS but...
    lakshman75 lakshman75
    41-45, M
    1 Response Aug 6, 2015

    See my book at www.livingwithachalasia.

    org. It is a FREE download!
    drachalasia drachalasia
    56-60, M
    1 Response Jun 22, 2015

    Healing Achalasia Naturally

    I have come to believe our bodies will act out, in individual ways, when our lives become out of balance for too long. Maybe it is the weakest link in our chain that breaks. For me, after a decade plus of 7-100 hour work weeks (salaried so no extra pay or other compensation) I...
    Carmah Carmah
    46-50, F
    10 Responses Dec 28, 2011

    Hi! I am about to have my 34th birthday

    and have achalasia. I also have ridiculous chest pain from the esophageal spasms (i.e. curled up in the fetal position, crying and heaving). Does anyone have any experiences or suggestions on how to deal with the pain? My story: I was diagnosed in September 2014 (symptoms...
    notquitezen notquitezen
    36-40, F
    1 Response Sep 9, 2015

    **I was diagnosed last year,

    after a 2 yr battle of being sick, and being told it was in my head, and numerous tests, and being pushed pills for this or that or try this and we'll see.... **Being told it was all in your head was on of the most hurtful things I had to work through. After awhile, you begin...
    liltinkerbell1585 liltinkerbell1585
    31-35, F
    1 Response Feb 19, 2016

    Perhaps Acupuncture

    I was back into the frey of 12 and 16 hour days for a few months on this big project with my work partner out sev mos on maternity leave. Right as I was easing into a lovely Friday evening of a 3 day holiday week-end, sitting down to a gorgeous meal, it hit with a vengeance and...
    Carmah Carmah
    46-50, F
    2 Responses Feb 27, 2013

    2 1/2 yrs ago I was eating a regular meal

    when all of a sudden I thought I was choking to death. I was able to spit the food out and could not eat any solid food for about 9 months. After the first 9 months I was finally able to eat an egg. It is now over two years later and I can still only eat very soft things, and...
    susieqz00 susieqz00
    41-45, F
    1 Response Mar 1, 2014

    Fresh Diagnosis Of Achalasia

    For the past several months, I've had increasingly difficult swallowing. I assumed it was just part of having GERD and kept putting off going to the Doctor. BAD idea. For the past month, it's moved on to difficulty swallowing water let alone food. Yet still, dude to a fear of the...
    bosephus63098 bosephus63098
    36-40, M
    3 Responses Mar 12, 2012

    I'm Only 19!

    I was diagnosed with achalasia when i was 17. It took the doctors ages to find out what it was and i was going back and forth to the doctors all the time. A few months away from my 18th birthday, i had the hellers myotomy surgery. It has definatley improved the cnodition. I can...
    LizzieGx LizzieGx
    18-21, F
    Sep 15, 2012

    Fortunately for me, I've had my surgery (heller

    myotomy) to fix my achalasia. However, I still suffer from the occasional back pain, which feels like a build up of gas inside me. I can't seem to get rid of it and just have to ride it out - it's really uncomfortable. Has anyone else experienced similar problems (pre or post...
    BenitoNoone BenitoNoone
    26-30, M
    1 Response Nov 10, 2015

    I'm currently 17 years old

    and I've had achalasia for 7 years now. Due to all my hospital visits and surgery and a lot of pain and procedures I never experienced going to high school. I've been doing independent studies for all this time. It's supposed be my senior year and I'm supposed to be looking...
    deleted deleted
    2 Responses Apr 30, 2014

    It started while still in high school one of

    the worse things ever to go through! Everyone thought I was throwing up on purpose! A lot of judgment was passed onto me through out that! Thank god I graduated! By the time I got my surgery I was choking on my own spit! Horrible!The surgery changed my life for the good for now...
    Datsme2 Datsme2
    1 Response Jul 29, 2014

    I was diagnosed for achalasia last year by my

    GI. Have been trying acupuncture for several months since I am scared about surgery. The acupuncture did help some especially when I had difficulties to have any liquid down to my stomach.Did not see a specialist for what I need to do for my achalasia. Scheduled an appointment...
    Achaliasia2014 Achaliasia2014
    46-50, F
    2 Responses Nov 5, 2015
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