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I Have Achalasia

A Achalasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Achalasia. You're not alone. 186 People

    Going For It!

    Hi everyone! This is the first group I've ever joined. I've had achalasia for about 8 years now. It's oddly comforting to read stories about peoples experiences with this disease, usually nobody has ever heard of it! Finally going to have a Heller Myotomy and pretty nervous as it...
    Talula8 Talula8 36-40 2 Responses Feb 15, 2013

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    Readers Digest

    This month's readers digest features a story of someone who has Achalasia--and I think I now may finally have a term for it as well! I am hoping so anyway. I often feel strictures in the upper part of my esophagus, like in the area of the "hollow" of my throat (looking at it...
    noodlebugs2 noodlebugs2 36-40, F 1 Response Mar 12, 2013

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    New To Achalasia.

    I was diagnosed 2 weeks before Christmas and was told to go away and liquidise everything. I have tried to eat soft food, but over Christmas it has been hard not to drink alcohol. I do find that the odd glass helps me to sleep, but one too many has the opposite effect.
    dandragon dandragon 61-65, F 2 Responses Jan 15, 2013

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    Achalasia For 25 Years

    I found out that have Had for achalasia for 25 yrars. I have been to six different doctors and th all scoped me and then they said I had gerd and take medications I had been taking all Long. I finally went to a new doctor and he performed an esophageal gram. You drink barium and...
    Jsduchak Jsduchak 66-70, F 1 Response Aug 17, 2013

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    Still Suffering Despite Surgery

    Hi All, Was wondering if anyone else is going through the same thing? I was diagnosed with Achalisia in 08 and had a Heller myotomy in the same year. I had lost 41 % of my body weight and was really suffering with the weight loss, couldnt lift my arms, weak and pretty run down...
    DeniseS42 DeniseS42 41-45, F 3 Responses May 20, 2013

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    Mother Of 90 Years Just Diagnosed With Achalsia

    HELLO TO ALL, My mom was just diagnosed with this illness. Since 10/19/2013 she has been on a feeding tube and upon discharge from the hospital was informed that the medical nutrition is not covered financially for patients who go home. She refused rehab and my father is burdened...
    wwleaderlydia wwleaderlydia 70+, F Nov 9, 2013

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    I have Achalasia and here is a list of food I

    feel goes down and stays down. -Cheeseburger without the bun. Can be eaten in public without removing the bun, just eat the burger out of it. -Milkshake, melted ice cream, or melted frozen yogurt. -7-11 nacho chips, smothered and softened with liquid cheese. -potato leek soup...
    RedViolet43 RedViolet43 36-40, F Mar 21

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    Diagnosed 10 Years Ago And Had 2 Hm Operations

    I feel for all of you going through this very strange illness. We all have similarities but not the same outcomes. My experience started gradually 20 years ago, but came to a head 10 years ago when I could barely swallow water. I was working full time and was slowly loosing...
    TMAP TMAP 51-55, F 2 Responses Jul 23, 2011

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    Looking For A Surgeon In Bay Area

    Hi Everyone, I was diagnosed with achalasia type 2 a couple of months ago. After considering different options - dilation, POEM and LHM - I have almost made my mind to go with Laparoscopic Heller Myotomy and have talked to a couple of surgeons in bay area (Stanford hospital...
    H4HL H4HL 31-35, M Jul 8, 2013

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    Wow! There Are Others That Feel Like I Do...

    My story in a nutshell: At the age of nine I started having trouble swallowing but for whatever reason I was too embarassed to tell my mom. So, for about a year I would excuse myself from all meals and silently slip into the restroom to regurgigtate my undigested food. At some...
    kittenleo13 kittenleo13 41-45, F 1 Response Jan 22, 2013

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    I Have Achalasia

    Achalasia - You're definitely not alone!! Back in 2000, I noticed I started to feel like I was having issues with my throat, almost like something was stuck in at the very back (right below where the 'Adam’s apple is'). Now where I'm from, there is a shortage of family...
    Hruby Hruby 36-40 1 Response Sep 28, 2012

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    I'm Only 19!

    I was diagnosed with achalasia when i was 17. It took the doctors ages to find out what it was and i was going back and forth to the doctors all the time. A few months away from my 18th birthday, i had the hellers myotomy surgery. It has definatley improved the cnodition. I can...
    LizzieGx LizzieGx 18-21, F Sep 15, 2012

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    2 1/2 yrs ago I was eating a regular meal

    when all of a sudden I thought I was choking to death. I was able to spit the food out and could not eat any solid food for about 9 months. After the first 9 months I was finally able to eat an egg. It is now over two years later and I can still only eat very soft things, and...
    susieqz00 susieqz00 36-40, F 1 Response Mar 1

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    I have Achalasia, but it's new to me.

    Meaning, I have achalasia this year. Meaning, I had GERD the year before. Meaning, I had an iron gut the year before that. Meaning, two years ago, I ate a cheesesteak with jalepenos, and it was awesome. I remember thinking "that's what I'm talking' about". I remember thinking...
    RedViolet43 RedViolet43 36-40, F 1 Response Mar 3

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    Poem Surgery Success

    I had POEM surgery to relieve the symptoms of Achalasia 9 days ago and can not recommend it highly enough. My surgeon teaches at IRCAD in Strasbourg France so I ended up following him there for the surgery which was a fantastic decision on so many levels. I had pretty severe...
    griffincreek griffincreek 41-45, M 2 Responses Jan 27, 2013

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    Been Living With Achalasia For 28 Years!

    Wow so excited!! I will finally be getting surgery and know what it will feel like to eat like a normal person!! =)
    fatimadelgado01 fatimadelgado01 36-40, F 2 Responses May 7, 2013

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    Would Love Friends For Support.

    After months of not being able to eat solid food and weight loss.I found out I have Achalasia. I am 65 years old. I am so weak and frustrated. How do i live with this until the Doctors decide what to do ?
    BobbiefromBunnNC BobbiefromBunnNC 61-65, F 1 Response Aug 5, 2013

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    Achalasia Started While Pregnant

    I'm 32 I've had Achalasia for about 6 years now.  It started when I was pregnant with my son, I thought I was just having heartburn and burping a lot(I had never had it before so I was unsure what it felt like) later I found out it was esophegal spasms.  After my son was born I...
    pamiejo pamiejo 31-35 1 Response Oct 12, 2011

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    Misdiagnosis And I Nearly Died.

    My story started when I was thirteen years old. It started with a feeling like there was a chicken bone or something in my throat. I had terrible pain when I ate and coughed constantly. I started to lose weight and my gp referred me to a paediatrician for a referral to get a...
    lellylives09 lellylives09 22-25 4 Responses Oct 27, 2011

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    It Has Been A Rough 26 Years

    I have had Achalasia for 26 years. It came upon me suddenly a couple of years after my 10 year old daughter was murdered. Several time I had a baloon put down my esopagus but with no success. I also had a operation where I had the muscles cut and stretched. It has not helped much...
    diji0310 diji0310 70+ 7 Responses Dec 11, 2011

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    Achalasia the Mystery

    Feb.07 I was told I have chalasia. I could not keep food and lost 52 lbs I did not choose the options offered but am doing massage,accupunture and chiroprctor. There are good days and bad. Sometimes I can eat chicken and sometimes not. I have spasms where I cannot breath. With...
    gbv1 gbv1 46-50 6 Responses Mar 19, 2009

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    We Are Not Alone

    It's good to read of other people's experiences with Achalasia.  I don't personally know anyone that has it besides myself.  It has been difficult and I find most people are not that understanding when you regurgitate unexpectedly.  My boss told me to take it to the bathroom...
    leedee55 leedee55 51-55, F Apr 14, 2012

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    Starving!

    Hi everyone...my names jade and I'm 25 years old..I was diagnosed with achalasia when I was 21 years old! It's started out with bad heartburn and a total weight loss of 40 lbs and a misdiagnosis of GERD! 5 months later I got a heller myotomy. The treatment has helped but I still...
    Jadeybaby15 Jadeybaby15 26-30, F 1 Response Mar 17, 2013

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    Update! :)

    Hello all! I know my last post I mentioned I need to get on here more... there has just been so much going on it's been hard to! So here is a little update on my Achalasia. Last September, I saw yet another GI specialist. He was GREAT might I add, also the last one for me to see...
    AlxandriaNicole AlxandriaNicole 18-21, F 1 Response Apr 10, 2013

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    Winning The Battle Of Achalasia By Accident

    It was 13 yrs ago, six months of slowly losing the ability to swallow food completely till not even water would pass down. I lost half my body weight and losing the fighting battle to live. Finally they found a name for the horrible disease Achalasia I had a balloon dialation...
    allbetter allbetter 46-50, F 2 Responses Jan 9, 2013

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    Looking For Any Support, Knowledge And Or Hope

    My 8 year old princess was just recently diagnosed with pseudoachalasia. They Are currently running all the tests to rule out/ confirm and I Am anxious about not knowing how to Guide my angel through this. I can only imagine how she is feeling about all this as Literally half...
    Siyara Siyara 26-30, F 8 Responses Jan 18, 2011

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    Achalasia

    Hi everyone, the reason why I joined to this group is to help every person who are suffering to this condition. I have it also but I wouldn't let this condition control my body in whole life and I want to share my experienced about it. Thus, if do u hav any questions, just make a...
    efram efram 22-25, F 2 Responses Nov 28, 2013

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    Trying To Be Strong

    I first started having Achalasia symptoms when I was about 12 years old. It was misdiagnosed until I was 22. In February of 2008 the symptoms got out of control. I got to the point where I could not even swallow a drink of water. My family doctor send me in to have an EGD because...
    mck26 mck26 26-30, F 6 Responses Jun 22, 2012

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    Achalasia And Acupuncture

    I have been asked about the point combinations used to treat me and I am posting my Acupuncturists response, which makes a lot of sense and should help you all. "Regarding the point combinations I used with you, unfortunately it is not as simple as just sticking needles in...
    Carmah Carmah 46-50, F 2 Responses Oct 4, 2013

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    Achalasia & Me

    I didn't know what Achalasia was until six months ago, about two weeks after I had a barium swallow, when I received my test results. The results told me I had "Stage 3 Achalasia." My family doctor did not even know what Achalasia really was. And even though I had not known what...
    saerakehoe saerakehoe 22-25, F 2 Responses Feb 24, 2011

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    My Life After Achalasia

    I was diagnosed with achalasia in feb 2005. almost a year after i had my symmtpoms for doctors thought it was GERD. had the operation dec 2005. Things didnt go bak to normal right away.Though i can swallow without difficulty anymore,still couldnt eat anything. Too much will make...
    mjis mjis 36-40 3 Responses Jul 5, 2009

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    Healing Achalasia Naturally

    I have come to believe our bodies will act out, in individual ways, when our lives become out of balance for too long. Maybe it is the weakest link in our chain that breaks. For me, after a decade plus of 7-100 hour work weeks (salaried so no extra pay or other compensation) I...
    Carmah Carmah 46-50, F 6 Responses Dec 28, 2011

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    I Feel Great!

    i was diagnosed with achalasiain may of '08 after tests were run. I was throwing up several times a day. Not throwing up stomach contents. what was in my esophagus. At night i would dream, and in my dream i would be throwing up. I would awake throwing up in bed. i was losing...
    tco707 tco707 41-45 10 Responses Jan 17, 2009

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    Achalasia Miss Diagnosis And Now Post Heller Myotomy

     My journey with achalasia started about 2.5 years ago and as all that are experiencing this disorder, just simply could not swallow any foods without huge amounts of water, and quickly worsened to the point that I had trouble even wth swallowing liquids. I vomited every...
    kah1 kah1 31-35 2 Responses Apr 26, 2011

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    After More Than 20 Years, Am Finally Getting Relief.

    I first felt the symptoms of achalasia over 20 years ago in a Chinese restaurant in Allentown, PA. Fortunately I was familiar with this restaurant and when I was suddenly choking from food that would not go down I abruptly left the table, unable to excuse myself, and got to the...
    bluesmangene bluesmangene 61-65 1 Response Feb 5, 2013

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    Fresh Diagnosis Of Achalasia

    For the past several months, I've had increasingly difficult swallowing. I assumed it was just part of having GERD and kept putting off going to the Doctor. BAD idea. For the past month, it's moved on to difficulty swallowing water let alone food. Yet still, dude to a fear of the...
    bosephus63098 bosephus63098 36-40, M 2 Responses Mar 12, 2012

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    Diagnosed At 35 Years Of Age And Now Living With Achalasia

    I suffered from heartburn since my first pregnancy when I was 19, but I just put up with it. Some attacks I would drink water or milk to ease the symptoms but I never sought medical or pharmaceutical help for it. However the heartburn got progressively worse in my late 20's and...
    SharonHume SharonHume 31-35, F 1 Response Jan 27, 2013

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    Living With Achalasia

    I have had Achalasia ever since I can remember (7 or 8 years old?) and had always put up with it as I didn't recognise that I was any different from anyone else. Things got harder when I turned 13 and I began choking in my sleep, I would lay down and food stuck in my oesophagus...
    brirack brirack 36-40, M May 21, 2013

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    Diagnosed Yesterday

    I'm currently 55 years old.  At 35, I started having severe abdominal pains, always the same area, my left upper abdomen, just below the rib cage.  That sharp pain, along with pressure in my entire digestive tract.   At that time I was diagnosed with a small...
    Trishl2255 Trishl2255 51-55 4 Responses Oct 8, 2010

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    I Have Achalasia

    I was always a thin person always eating slowly and was the last one to finish my meal. Taunted all the time by all around me.My symptoms started happening 10-12 years ago when I used to get up with severe chest pain. As if a belch is stuck in the chest and can not get out. In...
    scrared scrared 46-50 3 Responses Feb 26, 2012

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    I Am An Achalasia Victim

    Hi! I am 47 years old. I was diagnosesed with Achalasia almost 4 years ago, now! I started with symptoms back in 2002 had a EGD and was told I had GERD. Was put on Prilosec and it helped my symptoms to some degree but I progessively got worse and in 2009 was diagnosed with...
    GiaMia7 GiaMia7 46-50, F Feb 24, 2013

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    I Have Achalasia As Well

    I am 13 and i was diagnosed with Achalasia when i was 8 years old. When i was in 2nd grade i was in and out of the hospital multiple times for a period of about 4 or 5 days doing tests and trying to figure out what was wrong with me. Later in the year i was diagnosed with...
    pinkdvp pinkdvp 13-15 1 Response Jul 19, 2013

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    I've been looking to talk to people

    who have experienced similar ****, as I'm currently in the soft diet recovery part of my Heller Myotomy. It gets annoying to explain why I can't eat certain things to everyone, although I admit my health problems could be much worse. I'm not dying or anything. I started...
    meljo33 meljo33 22-25, F 2 Responses Feb 1

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    Achalasia And Body Image - An Ironic Combination

    I first experienced difficulty eating when I was 12. It wasn't enough to get me to eat less, as I was 4'11" and 125 lbs., but it was enough that eating a sandwich or a piece of steak felt a little uncomfortable. I had no idea what it was, and assumed what I was feeling was normal...
    CleverDoll CleverDoll 18-21 1 Response Jun 24, 2013

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    Perhaps Acupuncture

    I was back into the frey of 12 and 16 hour days for a few months on this big project with my work partner out sev mos on maternity leave. Right as I was easing into a lovely Friday evening of a 3 day holiday week-end, sitting down to a gorgeous meal, it hit with a vengeance and...
    Carmah Carmah 46-50, F 1 Response Feb 27, 2013

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    A Bit Of Advice Needed Here

    Hi folks. I have recently been diagnosed with Achalasia, I won't bore you with the symptoms as you will all be familiar with them anyway. However, over Christmas I had a really bad cough and cold and since then I have had an uncomfortable 'ball' in my chest, pain that goes...
    1 Response Feb 6, 2013

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    Me In A Nutshell

    I have achalasia. I found out yesterday I need to have surgery again. 4 1/2 years ago, I had a hiatal hernia repair with a Nissan fundlipication. That now has to be undone, a hillar myometry done, fix the paraesophagial hernia I have now, and then do a partial wrap again to try...
    gingerlypenny gingerlypenny 46-50 2 Responses May 31, 2013

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    Managing A Few Years After The Myotemy

    I was diagnosed in about 2008 after about a year of trying to work out what the problem was - along with all the symptoms you would expect and all the possibilities - until the manometry test clinched the deal and helped to finalise the diagnosis. I had chest pain, was unable to...
    Lori43 Lori43 41-45, F Oct 26, 2012

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    This Works For Me

    Diet for Achalasia Main ideas: A. Drink at least a pint each of very warm and very cold water with each meal (not "sips"). Alternate hot and cold to relax the lower esophageal sphincter (LES) between large bites or when the throat feels full. B. Oily or greasy foods (water...
    achalasia2006 achalasia2006 61-65, M 1 Response Oct 3, 2013

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    Hi everyone, I wanted to join to tell everyone

    about my experience with achalasia. I was officially diagnosed in the summer of 2011 but due to other health complications, didn't seek treatment until late 2012!!! I ended up doing the POEM procedure (peroral endoscopic myotomy) in December 2012 and what an absolute lifesaver...
    ambika2582 ambika2582 31-35, F 2 Responses Dec 18, 2013

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    Concerned And Confused

    i was diagnosed with alchalsia about 4 wks ago. i have irritable bowel which was diagnosed when i was 22 years old i am now 38. i have had my gallbladder removed after the doctor told me that i had polyps in my gallbladder at the age of 35 which gave me terrible stomach pains i...
    nicola38 nicola38 36-40, F 5 Responses Apr 5, 2010

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    Related Experiences

    Achalasia is a disorder of the esophagus that prevents normal swallowing.
    Michael820 Michael820 41-45, M Mar 31

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    i was diagnosed of hep b in 2009 while i was in the university.. i constantly felt sick in the year 2006, when and how i had it i dont know. since 2011 i have been having series of...
    nanacquah nanacquah 26-30, M 1 Response 15 hrs ago

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    I'm not in anyway socially, financially, or mentally deprived. I live with an average family. Thinking I have nothing to complain because some were even less fortunate than me...
    DreamerCost DreamerCost 16-17, M 8 hrs ago

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    The truth is: I dont like my boyfriend. We have known each other for 5 years and yet I havent caught one inch of feelings for him. I was forced into this relationship because he...
    AnimeFan90210 AnimeFan90210 18-21, F 1 Response 19 hrs ago

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    So apparently I have what's considered a "big butt". I have a 94cm hips and People at my school, especially the guys, tell me I have a nice a$$ and some girls tell me that they...
    kalaniesmommy143 kalaniesmommy143 13-15, F 2 Responses 11 hrs ago

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