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I Have Achalasia

A Achalasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Achalasia. You're not alone. 198 People

    Never before knowing this existed even

    after going to EMT school, I was diagnosed earlier this year, though the onset of complications really started to take effect a year prior. I know it's not known what causes nerve cell death but I've heard, that it's an auto-immune issue. Whether that's true my sister has an...
    kr3393 kr3393 18-21 Aug 9

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    A list of food for Achalasia (updated

    as my Achalasia is worsening) -tuna can packed in oil with shredded cheddar on top. -chicken soup -Senegalese peanut soup -Thai tom yum or tom kha soup with chicken -Japanese miso soup -Chinese hot and sour soup -gyro meat (or schwarma meat) -hot chocolate (or any flavored...
    RedViolet43 RedViolet43 36-40, F Mar 21

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    I'm currently 17 years old

    and I've had achalasia for 7 years now. Due to all my hospital visits and surgery and a lot of pain and procedures I never experienced going to high school. I've been doing independent studies for all this time. It's supposed be my senior year and I'm supposed to be looking...
    deleted deleted 26-30 1 Response Apr 30

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    Fresh Diagnosis Of Achalasia

    For the past several months, I've had increasingly difficult swallowing. I assumed it was just part of having GERD and kept putting off going to the Doctor. BAD idea. For the past month, it's moved on to difficulty swallowing water let alone food. Yet still, dude to a fear of the...
    bosephus63098 bosephus63098 36-40, M 2 Responses Mar 12, 2012

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    I have Achalasia, but it's new to me.

    Meaning, I have achalasia this year. Meaning, I had GERD the year before. Meaning, I had an iron gut the year before that. Meaning, two years ago, I ate a cheesesteak with jalepenos, and it was awesome. I remember thinking "that's what I'm talking' about". I remember thinking...
    RedViolet43 RedViolet43 36-40, F 1 Response Mar 3

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    I Am An Achalasia Victim

    Hi! I am 47 years old. I was diagnosesed with Achalasia almost 4 years ago, now! I started with symptoms back in 2002 had a EGD and was told I had GERD. Was put on Prilosec and it helped my symptoms to some degree but I progessively got worse and in 2009 was diagnosed with...
    GiaMia7 GiaMia7 46-50, F Feb 24, 2013

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    Readers Digest

    This month's readers digest features a story of someone who has Achalasia--and I think I now may finally have a term for it as well! I am hoping so anyway. I often feel strictures in the upper part of my esophagus, like in the area of the "hollow" of my throat (looking at it...
    noodlebugs2 noodlebugs2 36-40, F 1 Response Mar 12, 2013

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    Trying To Be Strong

    I first started having Achalasia symptoms when I was about 12 years old. It was misdiagnosed until I was 22. In February of 2008 the symptoms got out of control. I got to the point where I could not even swallow a drink of water. My family doctor send me in to have an EGD because...
    mck26 mck26 26-30, F 7 Responses Jun 22, 2012

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    Achalasia And Body Image - An Ironic Combination

    I first experienced difficulty eating when I was 12. It wasn't enough to get me to eat less, as I was 4'11" and 125 lbs., but it was enough that eating a sandwich or a piece of steak felt a little uncomfortable. I had no idea what it was, and assumed what I was feeling was normal...
    CleverDoll CleverDoll 18-21 1 Response Jun 24, 2013

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    Healing Achalasia Naturally

    I have come to believe our bodies will act out, in individual ways, when our lives become out of balance for too long. Maybe it is the weakest link in our chain that breaks. For me, after a decade plus of 7-100 hour work weeks (salaried so no extra pay or other compensation) I...
    Carmah Carmah 46-50, F 7 Responses Dec 28, 2011

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    Living With Achalasia

    I have had Achalasia ever since I can remember (7 or 8 years old?) and had always put up with it as I didn't recognise that I was any different from anyone else. Things got harder when I turned 13 and I began choking in my sleep, I would lay down and food stuck in my oesophagus...
    brirack brirack 36-40, M May 21, 2013

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    Perhaps Acupuncture

    I was back into the frey of 12 and 16 hour days for a few months on this big project with my work partner out sev mos on maternity leave. Right as I was easing into a lovely Friday evening of a 3 day holiday week-end, sitting down to a gorgeous meal, it hit with a vengeance and...
    Carmah Carmah 46-50, F 1 Response Feb 27, 2013

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    Achalasia & Me

    I didn't know what Achalasia was until six months ago, about two weeks after I had a barium swallow, when I received my test results. The results told me I had "Stage 3 Achalasia." My family doctor did not even know what Achalasia really was. And even though I had not known what...
    saerakehoe saerakehoe 22-25, F 3 Responses Feb 24, 2011

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    Misdiagnosis And I Nearly Died.

    My story started when I was thirteen years old. It started with a feeling like there was a chicken bone or something in my throat. I had terrible pain when I ate and coughed constantly. I started to lose weight and my gp referred me to a paediatrician for a referral to get a...
    lellylives09 lellylives09 22-25 4 Responses Oct 27, 2011

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    Diagnosed At 35 Years Of Age And Now Living With Achalasia

    I suffered from heartburn since my first pregnancy when I was 19, but I just put up with it. Some attacks I would drink water or milk to ease the symptoms but I never sought medical or pharmaceutical help for it. However the heartburn got progressively worse in my late 20's and...
    SharonHume SharonHume 31-35, F 1 Response Jan 27, 2013

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    My Life After Achalasia

    I was diagnosed with achalasia in feb 2005. almost a year after i had my symmtpoms for doctors thought it was GERD. had the operation dec 2005. Things didnt go bak to normal right away.Though i can swallow without difficulty anymore,still couldnt eat anything. Too much will make...
    mjis mjis 36-40 3 Responses Jul 5, 2009

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    Update! :)

    Hello all! I know my last post I mentioned I need to get on here more... there has just been so much going on it's been hard to! So here is a little update on my Achalasia. Last September, I saw yet another GI specialist. He was GREAT might I add, also the last one for me to see...
    AlxandriaNicole AlxandriaNicole 18-21, F 1 Response Apr 10, 2013

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    Achalasia and weight gain.

    I have had troubles all my life with eating, regurgitating etc. I have primary Achalasia. I also have been diagnosed with Fybromyalgia, arthritis, IBS, anxiety, depression, OCD and panic disorder. Needless to say I am a mess. I was misdiagnosed most of my life, finally at...
    RosyJae RosyJae 46-50, F 1 Response Jun 22

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    Concerned And Confused

    i was diagnosed with alchalsia about 4 wks ago. i have irritable bowel which was diagnosed when i was 22 years old i am now 38. i have had my gallbladder removed after the doctor told me that i had polyps in my gallbladder at the age of 35 which gave me terrible stomach pains i...
    nicola38 nicola38 36-40, F 5 Responses Apr 5, 2010

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    2 1/2 yrs ago I was eating a regular meal

    when all of a sudden I thought I was choking to death. I was able to spit the food out and could not eat any solid food for about 9 months. After the first 9 months I was finally able to eat an egg. It is now over two years later and I can still only eat very soft things, and...
    susieqz00 susieqz00 41-45, F 1 Response Mar 1

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    This Works For Me

    Diet for Achalasia Main ideas: A. Drink at least a pint each of very warm and very cold water with each meal (not "sips"). Alternate hot and cold to relax the lower esophageal sphincter (LES) between large bites or when the throat feels full. B. Oily or greasy foods (water...
    achalasia2006 achalasia2006 61-65, M 1 Response Oct 3, 2013

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    135lbs Lost!

    My story begins when I was 25. I was always a big guy throughout my childhood years. my top weight was 280lbs. I was working one day at my hotel and was eating lunch and I felt I was going to throw up. From that point on I was throwing up everything. Food, Liquids even my own...
    sfish020 sfish020 26-30 Aug 29, 2012

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    Still Suffering Despite Surgery

    Hi All, Was wondering if anyone else is going through the same thing? I was diagnosed with Achalisia in 08 and had a Heller myotomy in the same year. I had lost 41 % of my body weight and was really suffering with the weight loss, couldnt lift my arms, weak and pretty run down...
    DeniseS42 DeniseS42 41-45, F 3 Responses May 20, 2013

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    Starving!

    Hi everyone...my names jade and I'm 25 years old..I was diagnosed with achalasia when I was 21 years old! It's started out with bad heartburn and a total weight loss of 40 lbs and a misdiagnosis of GERD! 5 months later I got a heller myotomy. The treatment has helped but I still...
    Jadeybaby15 Jadeybaby15 26-30, F 1 Response Mar 17, 2013

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    Winning The Battle Of Achalasia By Accident

    It was 13 yrs ago, six months of slowly losing the ability to swallow food completely till not even water would pass down. I lost half my body weight and losing the fighting battle to live. Finally they found a name for the horrible disease Achalasia I had a balloon dialation...
    allbetter allbetter 46-50, F 4 Responses Jan 9, 2013

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    Looking For A Surgeon In Bay Area

    Hi Everyone, I was diagnosed with achalasia type 2 a couple of months ago. After considering different options - dilation, POEM and LHM - I have almost made my mind to go with Laparoscopic Heller Myotomy and have talked to a couple of surgeons in bay area (Stanford hospital...
    H4HL H4HL 31-35, M 1 Response Jul 8, 2013

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    Me In A Nutshell

    I have achalasia. I found out yesterday I need to have surgery again. 4 1/2 years ago, I had a hiatal hernia repair with a Nissan fundlipication. That now has to be undone, a hillar myometry done, fix the paraesophagial hernia I have now, and then do a partial wrap again to try...
    gingerlypenny gingerlypenny 46-50 2 Responses May 31, 2013

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    We Are Not Alone

    It's good to read of other people's experiences with Achalasia.  I don't personally know anyone that has it besides myself.  It has been difficult and I find most people are not that understanding when you regurgitate unexpectedly.  My boss told me to take it to the bathroom...
    leedee55 leedee55 51-55, F Apr 14, 2012

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    Achalasia

    Hi everyone, the reason why I joined to this group is to help every person who are suffering to this condition. I have it also but I wouldn't let this condition control my body in whole life and I want to share my experienced about it. Thus, if do u hav any questions, just make a...
    efram efram 22-25, F 2 Responses Nov 28, 2013

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    Been Living With Achalasia For 28 Years!

    Wow so excited!! I will finally be getting surgery and know what it will feel like to eat like a normal person!! =)
    fatimadelgado01 fatimadelgado01 36-40, F 2 Responses May 7, 2013

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    Managing A Few Years After The Myotemy

    I was diagnosed in about 2008 after about a year of trying to work out what the problem was - along with all the symptoms you would expect and all the possibilities - until the manometry test clinched the deal and helped to finalise the diagnosis. I had chest pain, was unable to...
    Lori43 Lori43 41-45, F Oct 26, 2012

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    I Have Achalasia As Well

    I am 13 and i was diagnosed with Achalasia when i was 8 years old. When i was in 2nd grade i was in and out of the hospital multiple times for a period of about 4 or 5 days doing tests and trying to figure out what was wrong with me. Later in the year i was diagnosed with...
    pinkdvp pinkdvp 13-15 1 Response Jul 19, 2013

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    It started while still in high school one of

    the worse things ever to go through! Everyone thought I was throwing up on purpose! A lot of judgment was passed onto me through out that! Thank god I graduated! By the time I got my surgery I was choking on my own spit! Horrible!The surgery changed my life for the good for now...
    Datsme2 Datsme2 26-30 Jul 29

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    I've been looking to talk to people

    who have experienced similar ****, as I'm currently in the soft diet recovery part of my Heller Myotomy. It gets annoying to explain why I can't eat certain things to everyone, although I admit my health problems could be much worse. I'm not dying or anything. I started...
    meljo33 meljo33 22-25, F 2 Responses Feb 1

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    Hi everyone, I wanted to join to tell everyone

    about my experience with achalasia. I was officially diagnosed in the summer of 2011 but due to other health complications, didn't seek treatment until late 2012!!! I ended up doing the POEM procedure (peroral endoscopic myotomy) in December 2012 and what an absolute lifesaver...
    ambika2582 ambika2582 31-35, F 2 Responses Dec 18, 2013

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    Achalasia And Acupuncture

    I have been asked about the point combinations used to treat me and I am posting my Acupuncturists response, which makes a lot of sense and should help you all. "Regarding the point combinations I used with you, unfortunately it is not as simple as just sticking needles in...
    Carmah Carmah 46-50, F 2 Responses Oct 4, 2013

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    Achalasia Started While Pregnant

    I'm 32 I've had Achalasia for about 6 years now.  It started when I was pregnant with my son, I thought I was just having heartburn and burping a lot(I had never had it before so I was unsure what it felt like) later I found out it was esophegal spasms.  After my son was born I...
    pamiejo pamiejo 31-35 1 Response Oct 12, 2011

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    Mother Of 90 Years Just Diagnosed With Achalsia

    HELLO TO ALL, My mom was just diagnosed with this illness. Since 10/19/2013 she has been on a feeding tube and upon discharge from the hospital was informed that the medical nutrition is not covered financially for patients who go home. She refused rehab and my father is burdened...
    wwleaderlydia wwleaderlydia 70+, F Nov 9, 2013

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    Would Love Friends For Support.

    After months of not being able to eat solid food and weight loss.I found out I have Achalasia. I am 65 years old. I am so weak and frustrated. How do i live with this until the Doctors decide what to do ?
    BobbiefromBunnNC BobbiefromBunnNC 61-65, F 1 Response Aug 5, 2013

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    I Feel Great!

    i was diagnosed with achalasiain may of '08 after tests were run. I was throwing up several times a day. Not throwing up stomach contents. what was in my esophagus. At night i would dream, and in my dream i would be throwing up. I would awake throwing up in bed. i was losing...
    tco707 tco707 41-45 10 Responses Jan 17, 2009

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    Wow! There Are Others That Feel Like I Do...

    My story in a nutshell: At the age of nine I started having trouble swallowing but for whatever reason I was too embarassed to tell my mom. So, for about a year I would excuse myself from all meals and silently slip into the restroom to regurgigtate my undigested food. At some...
    kittenleo13 kittenleo13 41-45, F 1 Response Jan 22, 2013

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    Going For It!

    Hi everyone! This is the first group I've ever joined. I've had achalasia for about 8 years now. It's oddly comforting to read stories about peoples experiences with this disease, usually nobody has ever heard of it! Finally going to have a Heller Myotomy and pretty nervous as it...
    Talula8 Talula8 36-40 2 Responses Feb 15, 2013

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    Last week, I was diagnosed with achalasia,

    although in retrospect, I have experienced symptoms leading up to this diagnosis for years. I wanted to share my story and hope that my experiences can help someone else. I can pinpoint my first symptom that happened 35 years ago when I asked my husband to pull the car over...
    debbiecoiro debbiecoiro 46-50, F 1 Response Apr 24

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    Achalasia the Mystery

    Feb.07 I was told I have chalasia. I could not keep food and lost 52 lbs I did not choose the options offered but am doing massage,accupunture and chiroprctor. There are good days and bad. Sometimes I can eat chicken and sometimes not. I have spasms where I cannot breath. With...
    gbv1 gbv1 46-50 6 Responses Mar 19, 2009

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    I am 20 years old and was diagnosed with

    Achalasia this morning. For the past two months I have been choking on water, not able to swallow pills with ease, experiencing the sensation of food being caught in my chest and throat and throwing up my food. I did the barium swallow test this morning and my x-rays showed the...
    KelleyWard KelleyWard 18-21 1 Response Jul 25

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    I'm Only 19!

    I was diagnosed with achalasia when i was 17. It took the doctors ages to find out what it was and i was going back and forth to the doctors all the time. A few months away from my 18th birthday, i had the hellers myotomy surgery. It has definatley improved the cnodition. I can...
    LizzieGx LizzieGx 18-21, F Sep 15, 2012

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    Achalasia For 25 Years

    I found out that have Had for achalasia for 25 yrars. I have been to six different doctors and th all scoped me and then they said I had gerd and take medications I had been taking all Long. I finally went to a new doctor and he performed an esophageal gram. You drink barium and...
    Jsduchak Jsduchak 66-70, F 1 Response Aug 17, 2013

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    I Have Achalasia

    I was always a thin person always eating slowly and was the last one to finish my meal. Taunted all the time by all around me.My symptoms started happening 10-12 years ago when I used to get up with severe chest pain. As if a belch is stuck in the chest and can not get out. In...
    scrared scrared 46-50 3 Responses Feb 26, 2012

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    Related Experiences

    Here’s something that I am sure that not most of you would think about. And don’t go saying I have no life now. I just think of things and put them into my own theory about...
    Artz4Life Artz4Life 16-17, F 1 Response 17 hrs ago

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    It's been awhile friends... Ive been in no contact for over a year. It's been GREAT. I waited to share this story until I was ok, and then came a period of not wanting to talk...
    Misstaco Misstaco 26-30, F 1 Response 12 hrs ago

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    Since i was a little girl i have had nothing but trouble. I'm 18 now i have issues but if i say i need help my brother tells me there's nothing wrong and i just want something...
    EmoNekoNiki EmoNekoNiki 18-21, F 1 Response 12 hrs ago

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    Not that i want a relationship with the piece of Sh1t ...but i really wish i could have a father...Any kind of figure that is like a father to me...I have always been without a...
    EmoNekoNiki EmoNekoNiki 18-21, F 11 hrs ago

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    I have a Narcissistic Mother-In-Law who is such a piece of work! My husband and I have endured blatant rejection at her hands. He was the scapegoat in her little manipulative world...
    springstarbaby springstarbaby 31-35, F 9 hrs ago