I Have Acrodysostosis

A Acrodysostosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acrodysostosis. You're not alone. 7 People


    my  8 year old daughter has this syndrome and wanted others advise and experience as she gets older
    hawkley hawkley
    3 Responses May 10, 2012

    Facebook Group

    For anyone looking, I have recently started a Facebook group for people and families with Acrodysostosis. I have a 12 y/o son with this disorder. I am also currently looking to get back in touch with my original group (The @ Team)  from about 10 years ago. Please come join!!!
    chatty656 chatty656
    4 Responses Jul 15, 2012
More Stories