Post

I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 21 People

    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

    Your Response

    Cancel

    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

    Your Response

    Cancel

    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

    Your Response

    Cancel

    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

    Your Response

    Cancel

    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

    Your Response

    Cancel

    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14

    Your Response

    Cancel

    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 2 Responses Mar 15, 2012

    Your Response

    Cancel

    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

    Your Response

    Cancel

    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

    Your Response

    Cancel

    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

    Your Response

    Cancel

    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

    Your Response

    Cancel

    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 22-25, F Feb 28, 2013

    Your Response

    Cancel

    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

    Your Response

    Cancel

    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 10 Responses Jun 1, 2008

    Your Response

    Cancel

    Related Experiences

    I need help, my friend is really sick. She's only 17 and her immune system is really bad, and she has a big chance to get leukemia. I just want to prevent that from happening. Yes...
    HadesUnderworld HadesUnderworld 18-21, M 2 Responses Mar 26

    Your Response

    Cancel
    Interview with Kevin Fonseca, Paranormal Experiencer Interviewed conducted by HPI Journalist / HPI Co-Owner Deanna Jaxine Stinson HPI (Hegelianism Paranormal Intelligence...
    PaulDaleRoberts PaulDaleRoberts 51-55, M 3 days ago

    Your Response

    Cancel
    Interview with Kevin Fonseca, Paranormal Experiencer Interviewed conducted by HPI Journalist / HPI Co-Owner Deanna Jaxine Stinson HPI (Hegelianism Paranormal Intelligence...
    PaulDaleRoberts PaulDaleRoberts 51-55, M 3 days ago

    Your Response

    Cancel
    I was never sick as a child-actually, quite the opposite. I was strong, rambunctious, energetic, and was constantly getting in to this I wasn't supposed to. Lol. So, fast forward...
    RustyJames2130 RustyJames2130 31-35, F Mar 23

    Your Response

    Cancel
    I have one very serious allergy to Paraphenylenediamine (PPD) which is a mordent found in dye. Most people are at risk of developing this allergy, it's an exposure allergy and the...
    SmashedUpSanity SmashedUpSanity 26-30, F Mar 26

    Your Response

    Cancel
    My name is Tracy, I am 49 years old and have had HS since I was about 17, but this disease was only diagnosed with a name about 10 years ago. I honestly did not realize just how...
    pech0252 pech0252 46-50, F 1 Response 9 hrs ago

    Your Response

    Cancel
    I have HH since I was born. My parents say I used to drip from my feet and arms ever since I was a baby. This is a horrible condition which not many Drs know about. I don't have...
    3Cinderella0 3Cinderella0 31-35, F 1 Response 10 hrs ago

    Your Response

    Cancel
    every words thato comes from our mouth has different vibrations and frequencies. i came across this theory when i was browsing books at the bookstore yesterday, but didn't read...
    byul1004 byul1004 18-21, F 6 hrs ago

    Your Response

    Cancel
    I love my mom and my grandma but growing up was sometimes really hard for me. I remember waking up in the middle of the night when I was really little so i could bury my head under...
    bsmirror bsmirror 22-25, F 1 Response 5 hrs ago

    Your Response

    Cancel
    I've been with my husband for 8 years, we've been married for 3. We were high school sweethearts. He's a great guy, but not the most attentive... We don't share many interests or...
    oddbluebird oddbluebird 22-25, F 1 Response 1 hr ago

    Your Response

    Cancel
    Travel is a great way of changing your perspectives. I was becoming involved in some directions I didn't really want to go in, with so many aspects of my life at home in France. I...
    aoutdouze aoutdouze 18-21, F 1 Response 10 hrs ago

    Your Response

    Cancel
    Swag swag swag. I have no life, I'm sure most people expect the least from me but one day my laziness, hunger, awkwardness and antisocial skills will come to use.. I mean they have...
    12blueunicorns 12blueunicorns 13-15, F 10 hrs ago

    Your Response

    Cancel
    I have this horrible, painful, embarrassing disease as well. I just recently discovered that there was a support group for this. Even though I have my friends and family as a...
    pech0252 pech0252 46-50, F 1 Response 10 hrs ago

    Your Response

    Cancel
    I used to have them from about the age of four to eight or nine. I feel terrible about what I must of done to my parents. I used to scream in the middle of the night like something...
    cheley cheley 13-15, F 9 hrs ago

    Your Response

    Cancel
    My best friend is a guy and we've known each other for almost 9 years already. We constantly get into stupid arguments but they are serious that's just us. I stopped talking to him...
    AlwaysHaveDreams AlwaysHaveDreams 16-17, F 9 hrs ago

    Your Response

    Cancel
    I have finally told my parents I have Asperger's! Well, I sent them a brief email, I'm still a tad angry that they weren't the ones telling me, 40 years ago. I shall see what...
    Teab Teab 41-45, M 1 Response 7 hrs ago

    Your Response

    Cancel
    I'm 24 and i have never been kissed. I'm a bit of a hopeless romantic... Meaning i'm feeling hopeless about finding romance. Haha. But seriously i'm both the romantic and the...
    mynameisdreamer mynameisdreamer 22-25, F 17 Responses 6 hrs ago

    Your Response

    Cancel
    What do I do now because I have a serious crush on my male cousin , I thought he likes me because his actions speak louder then words . We flirt around etc ... But now he is...
    Juiceyangel333 Juiceyangel333 22-25, F 1 Response 5 hrs ago

    Your Response

    Cancel
    Grade school is one of the unpleasant years of my life, I have been frequently bully no friends at all just by myself always. During this year, I have found a safe heaven for me it...
    alx99 alx99 36-40, F 1 Response 4 hrs ago

    Your Response

    Cancel
    I have friends. And I love them. The fact that I wanted to make friends at all surprised me. I literally spent the last few years avoiding people because I didn't want to be hurt...
    BleedingOrchids BleedingOrchids 13-15, F 2 hrs ago

    Your Response

    Cancel
    I don't really have a religion. Although my family are huge Christians. But religion in my opinion is a huge hypocrisy in its self. Like hating something that doesn't hurt people...
    EmotionaLila EmotionaLila 13-15, F 2 hrs ago

    Your Response

    Cancel
    it frustrates me. i have so many friends who are super shy and embaresed and don't understand just how beautiful they are ! i have this friend Tanika . she is so beautiful ! she...
    MiskaMaskedOne MiskaMaskedOne 18-21 1 Response 54 mins ago

    Your Response

    Cancel
    I once was married 9 years to a drug addict alcoholic who blatantly refused help..I tried desperately to help him, until I heard this quote from a professional nurse. Swim for the...
    cinnamonrose cinnamonrose 56-60, F 1 Response 11 hrs ago

    Your Response

    Cancel
    Seriously. For nearly two years. Then he attempted suicide a few months ago by slitting his throat because I refuse communication with him. Now I found out he's getting out of...
    Safia Safia 31-35, F 1 Response 10 hrs ago

    Your Response

    Cancel
    I'm twenty and my friends are all pregnant or too occupied with there boyfriends to have a decent friendship, I get things change and people change and move on but my whole life I...
    brielladivine brielladivine 18-21, F 2 Responses 10 hrs ago

    Your Response

    Cancel
    I have long hair. I've always had long hair. It grows obnoxiously fast. And I've wanted to cut it short for years. Problem is how. By that I mean how I'll cut it and how I'll deal...
    BleedingOrchids BleedingOrchids 13-15, F 1 Response 9 hrs ago

    Your Response

    Cancel
    So I just moved into these apartment, and it seems like all the people around here do is have sex. Lol!!! Every time I step outside, all I hear is like people 2-5 apartments, going...
    Subbie4Her Subbie4Her 36-40, M 9 hrs ago

    Your Response

    Cancel
    I have been to Europe on several separate occasions for work and pleasure with my family. I love to sight see, visit castles, shop, eat different types of foods, going to...
    femalesimplybeautiful femalesimplybeautiful 41-45, F 9 hrs ago

    Your Response

    Cancel
    This month I thought I might be lucky,as I normally get pms and pain for a week before it even starts.Well...it turns out,my period is at least 10 days late (no,I'm not pregnant...
    SparklyRain SparklyRain 18-21, F 9 hrs ago

    Your Response

    Cancel
    Hi everybody! When I logged in today I saw that this site has deleted all my experiences and stories, because they were to sexual or something. Guess I'm a freak after all, huh...
    Abbabebba Abbabebba 22-25, F 2 Responses 9 hrs ago

    Your Response

    Cancel
    I am so destroyed, 8 months ago I lost my older sister to cancer. She was 21, she had just had her first child and was so excited to be a mother. She had a full week with her until...
    beccah1234 beccah1234 18-21, F 1 Response 6 hrs ago

    Your Response

    Cancel
    Ever since I kicked my roommates out life has become so dull! I miss having people to come home to everyday and it seems like most of my friends left along with my roommates. I...
    Mackas14 Mackas14 18-21, F 5 hrs ago

    Your Response

    Cancel
    Liking someone you can't Have sucks..
    beccah1234 beccah1234 18-21, F 4 hrs ago

    Your Response

    Cancel
    Looking for somebody to have fun with. (Female)
    Miguel1987 Miguel1987 26-30, M 1 Response 4 hrs ago

    Your Response

    Cancel
    It's imabeautifulninja I have no idea why but hey what done is done. You can add me to your contact list. Yeah… you can talk to me there it's easier for me. So yeah bye :3
    AnimeGeek AnimeGeek 13-15, F 4 hrs ago

    Your Response

    Cancel
    if you wanna chat you'll have to inbox me for my username first though.
    natessecret natessecret 18-21, M 3 hrs ago

    Your Response

    Cancel
    Because I have a learning disability my class mates treat me like I'm five and it's really annoying because I just want to be treated like everyone else is :-/
    thequietone1000 thequietone1000 13-15, F 1 Response 1 hr ago

    Your Response

    Cancel
    I have a brain tumour & epilepsy.
    sassyfrazz sassyfrazz 31-35, F 2 Responses 45 mins ago

    Your Response

    Cancel