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I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 22 People

    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

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    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

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    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

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    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 11 Responses Jun 1, 2008

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    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

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    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

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    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

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    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

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    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 2 Responses Mar 15, 2012

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    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

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    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

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    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

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    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14

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    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 22-25, F Feb 28, 2013

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    Related Experiences

    Five months ago, my father was diagnosed with Leukemia. The doctor told him that if he hadn't come into the hospital then we would had lost him within 38 days. My father has always...
    Untamablespark Untamablespark 22-25, F 3 Responses Jun 25

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    We found out today that my father is in remission from his Leukemia. Last time he was in remission, he had 1 percent blast cells but now he has 4 percent. (Under 5 is considered in...
    Untamablespark Untamablespark 22-25, F 1 Response Jun 25

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    I'm going through very tough times. I suffer from major depression and have just been diagnosed with a very hard to treat variation of leukemia. I'm only 13, and have been told I...
    Theicemario21 Theicemario21 22-25, M a week ago

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    I have had 2 acute episodes of warm body AIHA, both with liver & kidney failure. I am currently on Rutuxin every 8 weeks. I am 55 years old and live in Flagstaff, AZ. I was at...
    TerriUnk43 TerriUnk43 51-55, F Jun 29

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    After my pancreas suffered severe damage from acute pancreatitis I was left with diabetes...
    AmaiXAshuri AmaiXAshuri 26-30, F 1 Response Jul 2

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    I know i am dreaming i always know i feel it yet i can't control it. Just when i realize that in fact i am dreaming y start to feel cramps in my back, the hurt a lut and i feel...
    VictorFernando18 VictorFernando18 18-21, M Jul 14

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    My story started in January 2014. I underwent gastric surgery and my Surgeon accidentally severed my Splenic Artery. I had a splenic infarction - it is now completely dead...
    MaxieFranklin MaxieFranklin 41-45, F 1 day ago

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    Not a lot of people seem to have heard about BDD. I've even had a few psychiatrists and therapists who had not heard of it. To quickly explain it before I really talk about how it...
    SailingwithSparrows SailingwithSparrows 22-25, F 1 Response 8 hrs ago

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    September 2010: Sometime this month, without knowledge, I conceived my second child. I was living in Dodge City, KS with my ex fiancé and his son. We were constantly fighting and...
    Krissysheart Krissysheart 22-25, F 2 Responses 16 hrs ago

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    I am Lisa new here. I don't know how to describe myself. I am a sentimental but optimistic girl. I feel so lone and helpless when I was told that I had affected with herpes.I have...
    herpesltr herpesltr 31-35 1 Response 16 hrs ago

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    Welp so it looks like I'm the first post here. *takes a deep breath* okay, so my mom who is now 37 years old is a drug addict, more specifically meth, speed, heroine and whatever...
    Cryingsmile Cryingsmile 16-17, T 2 Responses 15 hrs ago

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    It all started when I got really bad pains in my joints every day it was a new pain somewhere else. To be honest everyone thought I was crazy I knew something was wrong. So a few...
    HannahdawnK HannahdawnK 18-21, F 1 Response 14 hrs ago

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    I don't quite know where to begin. I am feeling that there is absolutely no point in being so close to anybody anymore. It just hurts too much when they are gone. I have lost...
    SteelPearl SteelPearl 46-50, F 1 Response 13 hrs ago

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    After 21 years of marriage, my wife wanted me to take another woman out to dinner and a movie. She said, “I love you, but I know this other woman loves you and would love to...
    sapphire601 sapphire601 31-35, F 12 hrs ago

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    Me too., i have terrible memories of school .. I feel i missed a lot of my education dealing with bullies n meanies that i couldnt comcentrate on my studied. I was made to feel...
    Janeysunshine Janeysunshine 36-40, F 2 Responses 9 hrs ago

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    I don't enjoy the career path I chose. I'm not that good at it either. I'm 32 and have no clue what to do with myself. 3 years ago I started college. My plan was to get an...
    Roxvox Roxvox 31-35, F 2 Responses 6 hrs ago

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    I havent been diagnosed yet but Im pretty sure I have it. Doctors say I have disorder. It sucks. I started feeling this way almost at the end of my first year in college. I had a...
    flight12 flight12 18-21, M 3 Responses 4 hrs ago

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    Well my boyfriend does! He falls asleep most nights we are together on the couch and I come and 'collect' him when I wake up at crazy o'clock and he isn't there. I have asked him...
    Starz3060 Starz3060 26-30, F 2 Responses 3 hrs ago

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    I think I've been told a few times even though I personally don't like my voice since my voice is a little deep and I have been called, "Sir" and "Bro" over the phone a few times...
    texaschic35 texaschic35 31-35, F 2 hrs ago

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    I have worked hard in school for my entire life. I have never gotten anything below straight A's and take all honor classes available. I have never done anything bad such as...
    brokeninsidesmilingoutside brokeninsidesmilingoutside 13-15, F 2 hrs ago

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    For guys. I just saw that spreadsheet a guy made for all the "excuses" a guy's wife had for not having sex. And it made me think of stuff like how my friend's boyfriend wanted them...
    PinkMellow PinkMellow 18-21, F 1 Response 1 hr ago

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    How To Stop Loving Someone Who Does Not Love You. 1. When he starts distancing himself from you, do not restring bridges with your own sinew. You will find yourself two months...
    butterfliesndut butterfliesndut 18-21, F 21 mins ago

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    It is a friend with benefits rather than multiple like the title suggests. I have never done it before. Probably wouldn't do it again. But now I feel trapped and I think he does...
    starflower1 starflower1 26-30, F 2 Responses 16 hrs ago

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    Okay this is something sorta crazy I know. Back when I was 13 I was raped on my way home from school and I didn't tell anyone and it broke me and ripped me apart still today I...
    Finniees Finniees 16-17, F 14 hrs ago

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    I am repulsed by them. I have encountered many and our personalities don't mesh. I try to tolerate them but sometimes I feel we speak in different language and live in a different...
    Susana1985 Susana1985 26-30, F 1 Response 13 hrs ago

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    I don't know why but ever since i was little i have peeled my skin and its only gotten worse over the years. I want help with it but i don't know if anyone can help me. Right now i...
    Caitlinsmith1636 Caitlinsmith1636 18-21, F 3 Responses 12 hrs ago

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    A couple of nights ago, I woke up from a deep sleep and had a weird epiphany about myself. I've always really enjoyed taking and being in pictures, but as of late, I've really...
    ohjoyousone ohjoyousone 26-30, F 9 hrs ago

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    I just want to have some fun. the rules are simple: 1. keep this clean. 2. respect others religious beliefs. 3. have fun. this is a learning argument. keep it light!! if you feel...
    DracovNasser DracovNasser 18-21, M 1 Response 8 hrs ago

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    I've been cooking up a storm -- since I no longer have jet lag. I've been cooking a lot of steak, and that is quite unusual because I'm not a big beef-eater. I made fajitas with...
    aepteewS aepteewS 41-45, F 2 Responses 7 hrs ago

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    And I'm bipolar with ADHD and Psychosis. I take meds and I feel pretty good but I notice that my mood swings now are circumstantial. I find it difficult to cope with life. My...
    Roxvox Roxvox 31-35, F 1 Response 5 hrs ago

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    I've been injured since April 2, 2014. I smash my left index finger. Got let go the same day. I became jobless and things started to go down hill. Several doctors check only my...
    rukifuiai rukifuiai 22-25, F 5 Responses 5 hrs ago

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    Recently on EP , I have met a girl who is the best person I have ever known , I can tell her anything , she helps me overcome soo much and I am so grateful that I met her , I know...
    Theworldismyhell Theworldismyhell 18-21, F 3 hrs ago

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    I try to have a close relationship with my mom and sister but they never want to talk. My sister doesn't keep any secrets I tell her neither does my mom. I want to have a close...
    lonelygypsy lonelygypsy 13-15, F 1 Response 2 hrs ago

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    I've just found out today I have Carpal Tunnel Syndrome .. it's hard for me to participate in Color Guard ..and soon I feel like I would have to stop ..bc the pain is crucial
    lynn1497 lynn1497 16-17, F 2 hrs ago

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