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I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 24 People

    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

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    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

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    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

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    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

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    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

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    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14, 2014

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    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

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    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 26-30, F Feb 28, 2013

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    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

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    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 3 Responses Mar 15, 2012

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    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

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    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

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    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 11 Responses Jun 1, 2008

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    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

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    Related Experiences

    Do any of you have empathy?
    Idontwanttosendyouapic Idontwanttosendyouapic 18-21, F 1 Response 47 mins ago

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    No I havent but would be cool to see this ep ghost I have read about in the stories here.
    Rmasters1 Rmasters1 18-21, M 58 mins ago

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    I am so happy and grateful that I have a wonderful sense of calm with a smile so big it touches my ears while having tears of joy and a heart so full of love it feels like it's...
    Nocloudshere Nocloudshere 31-35 2 Responses 1 hr ago

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    hey guys it's have a small youtube channel I create music called nightcore link here https://m.youtube.com/#/channel/UCQsSwR1FoQcJdwXHkQZkq9Q if you could check it out that would...
    prodemonz prodemonz 13-15, M 1 hr ago

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    Guys to be honest I don't know which group to tag on this post, but anyways. Do you ever just sit down and think about all the stuff you've been through in life, and think; gee...
    TeRiiFiiC TeRiiFiiC 18-21, F 2 Responses 17 hrs ago

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    I'm back on a psych ward after being gone for just over a year. Initially I was on an "intensive care" unit where most things were restricted, including camera phones, which was...
    SolitaryFriend SolitaryFriend 36-40, M 1 Response a week ago

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    I am brain damaged cause my my mom drink alcohol with me while she was carrying me. And her mom drink while she was having my mother. I did not ask for this or ask to be born . I...
    Brandon15shawana Brandon15shawana 18-21, M Jan 24

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    Since childhood, I've had crush on guys. 5th grade, a guy was just cute, yet without understanding about it, I was mad because he often joked around. Then I stopped having a crush...
    Bunnie486 Bunnie486 22-25, F 2 Responses Jan 18

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    I have leukemia at the age of 16. I've been fighting for 9 months, i feel like every time i get closer to remission it slips away from me. It's like my life is one step forward...
    DarbyW DarbyW 16-17, F 2 Responses Jan 18

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    my story October last year I woke up and had lost my speech I knew what I wanted to say but I couldn't form words my now ex partner still went to work I then tried to get up and...
    binxxy binxxy 22-25, F 3 Responses Jan 17

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    "Miracle" is a word we like to throw around a lot. Phrases like "It was a miracle." or "Pray for a miracle." slips easily off our tongues. While the fact that we are acknowledging...
    Solegne Solegne 41-45, F 2 Responses Jan 15

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    I'm feel like I'm crazy many times. One time I have this crazy idea of skinny dipping a late summer night when me and my wife was out alone driving the car. I trow all my cloth...
    realcomplicated realcomplicated 26-30, M 2 Responses Jan 10

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    Just had to block someone . First time for everything. I'm not the type to get disrespected on a post that I made ... No time for it . That's what they have the block button for...
    reddmarie reddmarie 18-21, F Jan 10

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    Actually, I cannot wait to have more kids. I already have five boys. I would really love to have a couple girls, if possible. I am married and off the pill and my husband never...
    susanfromamerica susanfromamerica 36-40, F 4 Responses Jan 10

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    This is my life story . I have family having 5 family members, mom dad elder sis elder bro than youngest me . Like every family i have normal family till i am 10 year old, than i...
    Elzielle Elzielle 22-25, F 1 Response Jan 10

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    My room is so messy that I have to watch were I walk to avoid stepping on important items. Normally that isn't an issue. But when other people are in my room I have to watch them...
    Windseer Windseer 26-30, M Jan 10

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    I am sixteen years old and I have always pictured myself having a family of my own. Two months ago I was told I would never be able to support a child of my own due to damage of my...
    Kristina771 Kristina771 16-17, F 1 Response Jan 10

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    I have to say there is one thing I have always wanted to do is be involved in a charity event .where I am the victim where it is drown a hiker .i am excited that they have chosen...
    Leeswalking Leeswalking 41-45, M 1 Response Jan 10

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    I have some friends, a few wonderful and lovely friendships. But too often I'm alone and lonely. I don't blame anyone but myself, though. I never seem to find the right way to open...
    PauliesWalnuts PauliesWalnuts 56-60, M Jan 10

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    I always have been a good human, I always have helped people whenever they needed it the most, no matter if they were not close to me, but whenever I needed some favour nobody had...
    friendsseeker friendsseeker 18-21, M Jan 10

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    Since there's no cake I'm going to be strong and not feel sorry for myself for once! I've been f*cked over for the last time... I'm not dating anymore. Self preservation is...
    rememberthegirl rememberthegirl 26-30, F 1 Response Jan 10

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    As I make it known how many countries I have been too.my count encluding South America and Cetral America . Not to.mention the United States i saw. the things I did like sleeping...
    MsOracle MsOracle 66-70, F 1 Response Jan 10

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    At school we were talking about starting a career for me. And they called my uncle to tell him I did good and when I got home by uncle asked me to get comfortable at he had to talk...
    CreepypastaFan2016 CreepypastaFan2016 16-17, F Jan 10

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    I have had severe neck pain the last week. I had a major car crash in '99 I wash it at 80 kph whilst stationery, I was sitting in traffic minding my own when out of nowhere a P...
    ladypenelope62 ladypenelope62 51-55, F 4 Responses Jan 10

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    I was staying at a Best Western Hotel and woke up early, around 4 AM. It seemed like a good time to go try out their pool/hot tub/exercise area. I got down to the pool area and...
    Earthbob Earthbob 66-70, M 4 Responses Jan 10

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    I have grapheme-color synesthesia, and I can't tell whether I'm an associator or projector. I mean, I don't have to look through colors to tell what the actual text color is, yet...
    PrincessFrankie PrincessFrankie 13-15, F 2 Responses Jan 10

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    Throughout the day I question the meaning of life. What's my purpose here? Why was I born? Why do I keep waking up every morning? I've been depressed most of my life. I can...
    ThomasAnderson04 ThomasAnderson04 26-30, M 2 Responses Jan 10

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