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I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 24 People

    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

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    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

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    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

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    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14, 2014

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    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

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    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

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    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

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    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

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    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 11 Responses Jun 1, 2008

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    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

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    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

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    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

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    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 3 Responses Mar 15, 2012

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    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 22-25, F Feb 28, 2013

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    Related Experiences

    I have been dealing with all the symptoms since I was 13. Especially the joint pain. It wasn't until my 18th birthday that I was diagnosed. I have my good days and my bad days...
    Deborah1001 Deborah1001 18-21, F 24 mins ago

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    I have low self esteem because of the way people treated me especially people I was in relationships with mainly guys I feel like I have to settle because I probably won't find...
    spiritualvirgo82 spiritualvirgo82 31-35, F 40 mins ago

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    I have just recently stopped smoking weed (another bad habit down the dunny). The main reason I stopped because I can't dream when I was smoking, it was always a black sleep, and I...
    WokenandOpen WokenandOpen 31-35, M 46 mins ago

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    I often read about people who are in dysfunctional families, who have or are suffering from emotional, physical, mental abuse. I can tell you that you cannot continue to function...
    stormy1012003 stormy1012003 51-55, M 50 mins ago

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    I have a crush On my brothers friend omg he is sooooooo sexy! He has a six pack! I don't love him I just have a crush on him because omg sooooooo sexy!
    butterflybaby123 butterflybaby123 13-15, F 2 Responses 1 hr ago

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    NOTE: I already wrote this and posted it a while ago but I wanted to edit it, and EP's edit feature is bunk right now, so I deleted and posted againOk, y'all ready for another rant...
    BlueMetalChick BlueMetalChick 18-21, F 1 hr ago

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    I really do. See I'm noticing a pattern with my Last couple of partners. 1. Kendall - Absent Father. Overbearing mother. 2. Tara - Super close to her Father, Abusive Mother. 3. My...
    ManifestoOfThePhoenix ManifestoOfThePhoenix 26-30, M 2 hrs ago

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    I've finally come out of my trials and tribulations and found a better place. For 2 1/2 years I suffered through condemnation, demonic possession, abuse, and exploitation and...
    Jesusfoundme Jesusfoundme 31-35, F 1 Response 2 hrs ago

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    I have taken my two daughters to a nude beach since they were born. They have always gone nude at the beach. Even at the textile beaches they had always gone without a swimsuit...
    davebuckley davebuckley 41-45, M 3 Responses 2 hrs ago

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    I wonder what my life would have been like if I didn't have to move to a new school.
    Andyg99 Andyg99 22-25, M 2 hrs ago

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    Idk if I should bother writing this.. as it's to people who might rather not hear about it... I once wanted to apologize to some of the nice people I had blocked on here (I'm...
    PastelLime PastelLime 31-35 2 hrs ago

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    I finally feel so much better now that he's long gone. He was my family doctor, I prayed that he would see one of my worlds, and he did.....but when he did he condemned me for it...
    Jesusfoundme Jesusfoundme 31-35, F 2 Responses 2 hrs ago

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    Hello there, I have the same problem a neighbour that lives above my flat and follows me where I go If I'm on my living room he is there banging drop things in floor heavily and...
    marciolupusella marciolupusella 41-45, M 3 hrs ago

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    A broken heart again I've had my heart broken twice in a row. First time I have been dumped and I felt sad, angry and disappointed. It was 3 years ago. Now, it was a mutual break...
    grunf grunf 26-30, M 1 Response 5 hrs ago

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    Hello! If any of you are desperate to lose weight, I would love to help you! I'm a certified life coach and a brand promoter for THRIVE. My job is to be there every step of the...
    trustingtheprocess trustingtheprocess 31-35, F 6 hrs ago

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    Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all -Dale Carnegie
    jameswertman12 jameswertman12 26-30, M 6 hrs ago

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    I have previously been on and off with my ex girlfriend who has aspergers. we both were a perfect personality match but along with college work and her clingy ness I become overly...
    ryanhorne94 ryanhorne94 18-21, M 7 hrs ago

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    Before I go to bed I just wanna say thanks to the man in the big house lol you know who i mean the Lord. I just wanna say thanks for the life I have I know that my life is a...
    mowerben mowerben 18-21, M 7 hrs ago

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    The title is pretty self explanatory. I have a confession to get off my chest. What is the meaning of friendships or family, if everyone around you act so fake? I'm so tired of...
    BekLove123 BekLove123 22-25, F 7 hrs ago

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    I'm 21 and have been away at college the past 3 years. This is the first summer I've come home, and now I know why. My mom tells me everything I can and can't do, who I can and can...
    hazel9 hazel9 18-21, F 7 hrs ago

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    I recently wrote about how drinking 100% coconut water 3x's a day and eating 1 tablespoon of coconut oil 3'xs a day had been helping me treat the psoriasis that recently flared all...
    clopez247 clopez247 31-35 8 hrs ago

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    I've just recently accepted my year old diagnosis as being on the Autism Disorder Spectrum with what is usually called Asperger's. I've learned a lot about myself by accepting my...
    ExtrovertedAspie ExtrovertedAspie 31-35, M 8 hrs ago

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    My mother loved me. My father loved my sister. My sister was very competitive with me and wanted always to top me. When my mother died, my advocate died. My father still likes...
    cb934586 cb934586 46-50, F 1 Response 8 hrs ago

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    I am really anxious. No one to turn to, I do not want to be a bother to the people who are always there for me. I am afraid they would get sick of my drama and constant feeling...
    FreeyourSoul FreeyourSoul 70+ 1 Response 9 hrs ago

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    My work involves addiction treatment and recovery, though, as many are in my field, I have never been an addict. HA! I was once addicted to gambling in small sweepstake parlors...
    BuckeyeBill48 BuckeyeBill48 66-70, M 1 Response 10 hrs ago

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    My boyfriend doesn't believe me that I have eczema. I have had it since I was a toddler, I had it pretty bad but it eventually got better. and now I have only have it a little bit...
    Dreamprojector Dreamprojector 18-21, F 10 hrs ago

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    I would like address the people that have supported, defended, and voted for Obama. This is a serious question and only serious answers will remain; all others will be deleted. I...
    noksa noksa 46-50, M 2 Responses 11 hrs ago

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    Well wtf this **** sucks. You can't control who you like and it's messed up. The guy doesn't even know I exist and I can't stop liking him. I wish if I could just forget about him...
    beautifulpain96 beautifulpain96 18-21, F 1 Response 12 hrs ago