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I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 23 People

    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

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    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

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    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

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    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 22-25, F Feb 28, 2013

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    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

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    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

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    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

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    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 2 Responses Mar 15, 2012

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    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

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    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14

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    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

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    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

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    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 11 Responses Jun 1, 2008

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    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

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    Related Experiences

    So in 2010 I was diagnosed with a extremely rare disease named Dercums' Disease aka Adiposis Dolorosa. For many years after surviving cancer (Acute Lymphotic Leukemia), I had what...
    johnnystar4u johnnystar4u 41-45, M Nov 8

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    I have a podcast called Laughing with cancer go to www.laughingwithcancerpodcast.com and check it out. I'm on ITunes and Facebook as well. I would love for you to leave a comment...
    elvisrico elvisrico 41-45, M 4 days ago

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    This is it. As of this day, I am going to actively strangle my inner romantic. Why? Because I'm 24 and never had a gf ever. Being a hopeless romantic at heart, I keep waiting that...
    JourneyOfLife JourneyOfLife 22-25, M 1 Response Oct 27

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    I have been dealing with this illness Since the age of 16. I am 33 now. It was a HUGE turning point in my life. It changed EVERYTHING. I had 3 Head injuries, the 3rd one was a...
    Crazy4capoeira Crazy4capoeira 31-35, M Nov 7

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    The first 4 years of my life were spent in and out of hospitals, at one point I had to stay for 6 straight months. I was diagnosed with acute pancreatitis. Don't ask how I got it...
    lightningTroubadour lightningTroubadour 13-15, F 1 Response Nov 5

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    yes i have and i still have got it. i got bronchitis 4 and a half months ago i was given some antibiotics for about 5 days which did not get rid of it completely i was left with a...
    pussyboots pussyboots 31-35 a week ago

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    yes i have and i still have got it. i got bronchitis 4 and a half months ago i was given some antibiotics for about 5 days which did not get rid of it completely i was left with a...
    pussyboots pussyboots 31-35 a week ago

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    yes i have and i still have got it. i got bronchitis 4 and a half months ago i was given some antibiotics for about 5 days which did not get rid of it completely i was left with a...
    pussyboots pussyboots 31-35 a week ago

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    My third anniversary on EP was in August 2014. I am a bit behind. You know how life keeps you busy. So it is time for me to share what I have learned in this past year. I hope you...
    PoetryNEmotion PoetryNEmotion 51-55, F 6 Responses 7 hrs ago

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    Please help. I'm currently experiencing dark thoughts, dark thoughts about just running away. I love all my Children but they have no respect for anything I have ever done for...
    RockingLikeAFetus RockingLikeAFetus 31-35, F 1 Response 13 hrs ago

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    It's been a few months since joining The Experience Project, thank you to all who have visited and those who have kindly left comments & hearts. To be honest I lost the link and...
    Darklydancing Darklydancing 56-60, F 7 hrs ago

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    My mother is such a hypocrite. Usually I can just shrug it off but lately it's been getting to me. Today she yelled at me for finishing a bottle of root beer that she bought a...
    midnightdahlia midnightdahlia 22-25, F 5 hrs ago

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    i have cheated on my husband multiple times. we have been married for 3 and half year and I started cheating since last year. It was an arranged marriage and I got married really...
    idontknowwhatiwant idontknowwhatiwant 26-30, F 1 Response 5 hrs ago

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    you know what I don't understand? why people think JUST because someone gets pregnant, they HAVE to marry the father... This thought came up because my grandpa said since Miley...
    sugarcakes143 sugarcakes143 18-21, F 1 Response 4 hrs ago

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    Hey my names Alex, I'm 20 years old. I found out I have had Cholesteatoma in my right ear for YEARS now, I noticed this lump behind my ear Years ago I'm thinking maybe 6-8 years...
    alex123098 alex123098 18-21, M 2 Responses 4 hrs ago

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    Hey my names Alex, I'm 20 years old. I found out I have had Cholesteatoma in my right ear for YEARS now, I noticed this lump behind my ear Years ago I'm thinking maybe 6-8 years...
    alex123098 alex123098 18-21, M 3 hrs ago

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    I think i have an aura that pushes people away from me. Or maybe there is something about my appearance i don't know. Somehow people always think i don't like them , or that i don...
    antoneli antoneli 18-21, M 2 Responses 2 hrs ago

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    I think deep down all I have ever wanted was to have a special female friend I was in love with. Really sex without feeling has not interested me. I do enjoy being adored or found...
    Podcast Podcast 18-21, M 1 hr ago

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    My life is so upside down, I fear for my own safety and sanity. I left my wife for a girl, I was wrong, I know this.. I left on promises that her feeelings were real, I told my...
    lerz2000uk lerz2000uk 31-35, M 46 mins ago

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    At first he happen to be caught in her glance, she had not noticed him her eyes were only focused on a friend as they whispered. Then slowly his existence started to grow, her eyes...
    Moonlight94 Moonlight94 18-21, F 17 hrs ago

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    Apparently I have an accent or speak odd to people. Apparently I don't pronounce my words correctly... I guess sometimes they don't come out correctly. Like haven't = 'aven't or he...
    InvaderGashloog InvaderGashloog 70+, F 7 Responses 17 hrs ago

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    I have liked this girl for 4 and a half years now. Actually it's much passed "like". I've had so many chances to make a move on her, but I was to cowardly to do so. I was too...
    yoomyman yoomyman 18-21, M 17 hrs ago

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    I hate my aunt tomorow she is going to maried but i have to go eventhough at monday i"m going to have last semster test i mean what the hell her wedding going to take 2 days in a...
    reginacs reginacs 16-17, F 1 Response 16 hrs ago

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    It borders on a year now, that I have had nightmares almost every night. My mind has been plagued by insecurity... And with it, came the nightmares. I wish I had the typical...
    Lullacus Lullacus 22-25, F 1 Response 15 hrs ago

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    Has anyone ever faced discrimination for having a tattoo? I have one down the side of my forearm, just some dainty writing (lyrics). Anyway, I had a job interview one hot day a few...
    Enna87 Enna87 26-30, F 4 Responses 13 hrs ago

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    A few : -I don't know how to forgive, even if I say I forgive someone. I always have this passive aggressive behavior towards you if you've got on my bad side -I would NEVER cheat...
    akaShaun akaShaun 16-17, M 1 Response 13 hrs ago

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    to be honest i don't know how my life got this far off track. one minute im happily married the next i going thru a divorce and living with this "gift" that she gave me.... forever...
    livingpositively livingpositively 22-25, M 3 Responses 12 hrs ago

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    so, be and my mother have decided to do Black Friday for the first time... and well, K Mart opens up at 6:30 AM - and they have a sale : buy one pair of shoes/boots and get the...
    sugarcakes143 sugarcakes143 18-21, F 6 Responses 11 hrs ago

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    You have to be a pretty good friend to stand my tests. However, I attempt to make incompatible people at least feel better or find a better life. Admittedly, I have done a lot of...
    FunnyLookingCorpse FunnyLookingCorpse 18-21 1 Response 9 hrs ago

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    Have you ever noticed that front doors usually don't have a handle on the outside, but in TV series regular guests often walk in without using a key?
    Uncertain153 Uncertain153 26-30, M 9 hrs ago

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    Numerous times, actually. One of the first times was about 4 years ago when I arranged to have a Mary Kay consultant give me a lesson on which products to use, which shades, and...
    debbienc debbienc 61-65, T 1 Response 8 hrs ago

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    Holidays are just big jokes. It's like any other day of the year. Many families are so fake. I can understand if some have issues and rather be somewhere else. But i'm talking...
    Justadarkhole Justadarkhole 22-25, M 1 Response 8 hrs ago

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    The CDC is owned by the big pharmaceutical companies. They have no clue about Ebola. But they want you to get a flu shot. The Patriot Act is the worst thing to happen to our...
    mslvr01 mslvr01 46-50, M 7 hrs ago