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I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 24 People

    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

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    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14, 2014

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    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

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    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

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    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 3 Responses Mar 15, 2012

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    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

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    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

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    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

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    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

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    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

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    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

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    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 22-25, F Feb 28, 2013

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    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

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    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 11 Responses Jun 1, 2008

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    Related Experiences

    I personally feel as though this needs to be said. Please do not demean those with clinical anxiety by claiming that you, too, have anxiety. As human beings, we all experience...
    Blizzardpaw Blizzardpaw 16-17, F 58 mins ago

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    I have anxiety and am not afraid to admit it in case my life depends on it. I have always been sort of anti social. But ever so recently anxiety has kicked in making life difficult...
    SmileyFaceJenn SmileyFaceJenn 18-21, F 1 hr ago

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    I would love to own a little coffee shop where people could sit and relax, drink my coffee, have pasteries and goodies and shoot the breeze in a relaxed comfortable place. Id...
    smilesarefree smilesarefree 51-55, M 1 hr ago

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    PLEASE READ! I have just started a charity. I am 17 years old, and this is my story: I was born with a heart condition called Aortic stenosis, which is narrowing of the exit of the...
    amylouexoh amylouexoh 16-17, F 1 hr ago

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    I just recently had the surgery done and I can't sit up straight or put my shoulders back because it hurts. the doctor said that I need to otherwise I will be hunched over and I...
    emmabutler12 emmabutler12 13-15, F 2 hrs ago

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    SRI'S - well I have had one experience in my life where I was given anti depressant by mistake a time. I had gone to the pharmacy that day and locally over here , sometimes we...
    Stephenrko Stephenrko 36-40, M 1 Response 2 hrs ago

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    I was just recently diagnosed with schizoaffective disorder along with OCD, generalized anxiety disorder, and PTSD....I've kept silent about my issues my whole life due to things...
    ambercano ambercano 26-30, F 3 hrs ago

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    Today I cut all ties with my family . I have learned of things that were said that were unforgiveable. I have always been very close to my family but now feel they are not who I...
    Dancemomisme Dancemomisme 46-50, F 10 Responses 4 hrs ago

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    It should be a crime to have kids if you have a family history of this disease. Around age 39 I contracted Epstein Barr virus which triggered SLE. My quality of life is very...
    dharmafox dharmafox 36-40, M 5 hrs ago

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    This is not the way my conscious mind works.. but I suppose there is usually a reason for our dreams.Last night my mind forced me into the public square near my old highschool. I...
    AphroditeComplex AphroditeComplex 22-25, F 3 Responses 5 hrs ago

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    Especially those who have gone through difficult times and have read lots of 'self-help', 'super positive' books and have swallowed the pamphlet and therefore, lose empathy with...
    usernameinneed usernameinneed 26-30, M 6 hrs ago

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    As some of you may know, I am a published author. I work from my home; therefore, I must practice time management. I also have Bi-Polar I and Severe Anxiety Disorders. Through a...
    Olivia1962 Olivia1962 51-55, F 4 Responses 6 hrs ago

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    Well another one bites the dust! So I've been talking to this guy I met online, He doesn't have HSV or anything (that I know of) and we've never met before in Person. He swore...
    ydnacybab ydnacybab 22-25, F 2 Responses 6 hrs ago

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    I can't wait until I move out in 3 weeks. Won't have people watching what I'm eating all the time, or have to worry about someone hearing me in the bathroom if I purge. I can do...
    itssmee itssmee 22-25, F 1 Response 8 hrs ago

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    I have kids, but I would like to have more in a future relationship. I <3 being a dad.
    flawl3ssvictory flawl3ssvictory 31-35, M 9 hrs ago

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    My best friend is female. She and I have been best friends since Kindergarten. Things have never been weird between us. we have always been there for each other. she's dated guys...
    xtremside xtremside 36-40, M 1 Response 9 hrs ago

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    I've always been a fan of playstation. I have a PS vita too. For PS4 multiplayer gaming, I have GTA 5, Littlebigplanet 3, nba 2k15, call of duty advanced warfare. I don't really...
    Zaxel Zaxel 18-21, M 9 hrs ago

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    I have it as finally had a version work on Windows. It is just if any decent want to talk through. I will give the nickname to them after getting to know them as well here.
    Egyptianguy34 Egyptianguy34 36-40, M 10 hrs ago

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    if u wanna see me I have pics in my album but private so add me x)
    Jibeisan Jibeisan 18-21, F 1 Response 10 hrs ago

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    I ******* hate it all I do is work and school. I have only one friend
    Waqasauce01 Waqasauce01 18-21, M 10 hrs ago

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    I am so lost. I unfortunately don't have any real friends I can turn to. I am in a situation of potential life destruction. Not sure how to hang in there anymore.
    samgirl1029 samgirl1029 41-45, F 47 Responses 10 hrs ago

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    It irks me that my friends go to the hospital for everything . They are not rich and I guess they think because help insurance covers most of the payment that the little money they...
    Alylovespuppies Alylovespuppies 18-21, F 2 Responses 11 hrs ago

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    So I decided to share my story with you all, because I can't find a solution anymore... I'm sorry for my bad english. I'm almost 18 years old, my boyfriend is 19 years old. We...
    1brokenwing 1brokenwing 16-17 1 Response 11 hrs ago

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    I have many times! I've never been as smart as my twin and my uncle use to say he got all the good genes and I got the leftovers! My older brother heard him say that and punched...
    lovewins2123 lovewins2123 18-21, M 1 Response 11 hrs ago

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    i think sometimes i was better not knowing i had all these -isms. i am tired of feeling broken and not worthy. i have to talk myself up every day sometimes hundreds of times a day...
    LITVET LITVET 41-45, F 12 hrs ago

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    Words are all I have ... Your the reason I feel so aliveThankyou Hypnotia :) XXXX
    mintybear2 mintybear2 46-50, F 1 Response 12 hrs ago

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    That one person think I am a psychopath. But then, I have friends who knew me so well and understood me that my weird sense of humor is part of me. I am thankful that though others...
    ivzy2208 ivzy2208 22-25 12 hrs ago

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    I am 23 years old and need a place to stay until I get on my feet. I'm in prince George's county Maryland. My mothers husband hit me and I fought back. He ended up getting a...
    homelesspgcountygirl homelesspgcountygirl 22-25, F 2 Responses 12 hrs ago

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    I have both ears pierced since I was 12. I talked my mother into letting me get them pierced. My dad was not happy when he found out.
    Kamryn83 Kamryn83 31-35, M 13 hrs ago