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I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 23 People

    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

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    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

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    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

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    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 11 Responses Jun 1, 2008

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    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

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    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14, 2014

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    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

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    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 22-25, F Feb 28, 2013

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    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

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    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

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    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 2 Responses Mar 15, 2012

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    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

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    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

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    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

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    Related Experiences

    (1980) I was born while my parents were getting divorced. I saw my dad a handful of times. (1983) my mom remarries a man who likes little girls. My mom knew what was going on but...
    wingedvalkyrie7 wingedvalkyrie7 31-35, F 1 Response Apr 24

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    It started off with a "cold" I caught from my 14 years daughter. I had gone to the hospital and they treated it like the flu. After fainting once in the shower and laying around...
    jenniejennjen jenniejennjen 36-40, F 1 Response Apr 28

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    What people who don't have SA fail to understand is that anxiety is physical. "Your chest tightens, your head feels cloudy & you are acutely aware of the effort behind every breath...
    BasAllah BasAllah 13-15, F 7 Responses Apr 30

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    This is easily one of the most horrific nocturnal events of my life so far. It happened at 3am today and I haven't been back to sleep since. It's also going to be a rather long...
    minokay minokay 22-25, F 3 days ago

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    My father is the one that i lost when i was sixteen. My father was visiting me in hospital for a stomach operation that i was about to have, strangely enough dad was having...
    Alanuin Alanuin 26-30, F 2 hrs ago

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    The only thing I have to do is not listen. It's as simple as that. Don't talk to him, don't listen to what he has to say, it's all lies. But I'm dumb. And weak. And I told Azriel...
    PinkMellow PinkMellow 18-21, F 1 Response 2 hrs ago

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    I just merely have acquaintances. I never had a true friend and if I were to count one then I guess it was with that one girl in high school. It sucks to know that a friendship I...
    Xemplefied Xemplefied 26-30, M 1 hr ago

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    I have 12 hour shifts all this weekend, back to back. I work on a ferry that takes passengers to and from the isle of wight. The job isn't hard really, everythings pretty...
    Skin0Man1 Skin0Man1 18-21, M 49 mins ago

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    I had a wonderful Grammy who had Alzheimer's. She was my second mom, and the best there ever was. Alzheimer's is a nasty disease, I remember about a month before she passed I sent...
    DancesWithUnicorns DancesWithUnicorns 22-25, F 38 mins ago

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    my skin never feels clean to me and i always feel absolutely disgusting. i spend about half an hour looking at the mirror at least a couple times a day, just trying to get the dirt...
    gemmed gemmed 13-15, F 2 hrs ago

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    To me the thought of having sex with another human being is as disturbing as having sex with dog, or a child. It seems wrong. I'm not supposed to. Bad. Bad!! No! These things...
    PinkMellow PinkMellow 18-21, F 2 Responses 2 hrs ago

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    I have never eaten healthy. It's always been just random stuff I liked. (I'm terribly picky with food.) If I eat a bag of chips and some ice cream, out they go. I know I'm...
    CyanideY CyanideY 70+, F 1 hr ago

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    I have a special person in my life that I actually met here on EP. After countless conversations we then had an amazing getaway together. I very much enjoyed our time together and...
    hadyourchance hadyourchance 36-40, F 1 hr ago

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    I would love to kiss my best friend, but she doesn't have the same feelings about me, even though we are both Bi.
    Alanuin Alanuin 26-30, F 1 hr ago

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    Ihave had PE my whole life. So three years ago I got the nuss bar put in. But my PE caused scoliosis. so one year after I got the nuss bar put in, I had to get a spinal fusion with...
    lundell94 lundell94 18-21, M 1 hr ago

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    to be honest i really dont know if i can love anymore i just dont feel like before perhaps my heart is way too scared i am not coward just telling you people who are reading it...
    Mdesires Mdesires 18-21, M 1 hr ago

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    I was just whining, I am sorry. I was wrong. Thank you for being there for me mother. I can see it was me now. I believe my spirit is being tested, this is the storm I was talking...
    MayaKing MayaKing 31-35, F 50 mins ago

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    Always tempted to drink before I have to do something that gives me anxiety. But I don't. I believe the mind has amazing power and I'm trying to use it in more positive ways. Even...
    starling156 starling156 18-21, M 4 Responses Apr 22

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    I was 17 when I was diagnosed with endometriosis. I'm 19 now and in college. It's so hard to pretend like everything is fine, when my biggest fear is that I will never be able to...
    ashtonmallory ashtonmallory 18-21, F 3 Responses Apr 22

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    I posted my experience in another group. I just have a big question for people who are on Depo Provera and a side effect in having. I have been on depo for one month now after my...
    ashtonmallory ashtonmallory 18-21, F Apr 22

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    I have Sjogren's with Lupus overlap and heading toward minted connective tissue. Autoimmune is a *****
    aliceblu24 aliceblu24 46-50, F Apr 22

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    Aquagenic Pruritus I usually can't find the words to express the torment of living with Aquagenic Pruritus. Basically it is an "allergy" to water. About 5 min after bathing I am...
    aliceblu24 aliceblu24 46-50, F Apr 22

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    Hi I'm 35 and was born with a lot of birth defects that cause me to have no muscle or nerves or anal control.. so I am completely bowel incontinent. I work as a hair stylist and it...
    Leapyearstorm Leapyearstorm 31-35 2 Responses Apr 22

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    I have got wake up at five in the morning, brew coffee, and stare at the birds drowning in the darkness of the dawn. I have got to sit next to the girl in the uni who’s reading...
    deephuman deephuman 22-25, F 2 Responses Apr 22

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    I am attracted to people i can't have. When i find someone who i want to close to,i'm very happy. But once they literally close to me,i push them away due to fear. Fear of love...
    deleted deleted 26-30 Apr 22

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    Hypocrit'sPeople on EP are always crying and whi'ning and bi'ching and p'ssing and mo'aning about the p'ervs and how all the men are p'ervs and everyone just wants s'x and sends...
    TheSilentChampion TheSilentChampion 22-25 1 Response Apr 22

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    I failed an exam, went to sleep, woke up, watched a movie and then walked around aimlessly for awhile in the middle of the night. It was almost cold. I was wearing shorts, but see...
    Fuzzies Fuzzies 56-60, M 1 Response Apr 22

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    I have the kind of obsessive compulsive disorder that is often, but not always hidden. The kind that keeps me in bed thinking for ages instead of getting up in the morning, the...
    carolina99 carolina99 22-25, F Apr 22

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    I have so many regrets in life.
    Abdulaziz94 Abdulaziz94 18-21, M Apr 22