I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 24 People

    ABL

    And I want information
    brettto73 brettto73
    61-65
    May 27, 2008

    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea
    41-45, F
    2 Responses Aug 27, 2011

    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915
    26-30, F
    Feb 28, 2013

    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea
    41-45, F
    1 Response Aug 11, 2011

    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman
    31-35
    2 Responses Aug 27, 2008

    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca
    51-55, M
    Jan 14, 2014

    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67
    41-45
    1 Response Feb 21, 2013

    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine
    18-21
    3 Responses Jun 22, 2011

    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03
    31-35, M
    2 Responses Jul 13, 2012

    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre
    31-35
    5 Responses Jul 9, 2008

    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967
    41-45, F
    3 Responses Mar 15, 2012

    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb
    41-45
    6 Responses Aug 20, 2011

    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq
    51-55, F
    Dec 17, 2009

    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking
    66-70
    11 Responses Jun 1, 2008

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    I have no idea what a social life is anymore :(
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    I would wish that on nobody. I have done this more than I have wanted to, when will it stop?
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    I'm looking for a boyfriend in the uk long distance if fine I'm 18 all I ask is that you have a good personality
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    i hate this thing a lot :( like A LOT. ive never had daytime attacks but ive always been having panic attacks at night. i could sleep in the first 30 minutes and then woke up...
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    I'm a solvent abuser. I have been for over a year.
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    Has anyone here ever taken Abilify and if so, what are your thoughts? I have just started this new med along with what i'm already taking, and so far, i feel sick to my stomach...
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    Apr 1
    I've had crushes on a handful of men here coz they just seem to have substance and have their thinking caps on most of the time. Sadly, they'll never know who they are and I'd like...
    WynterSolstice WynterSolstice
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    3 Responses Apr 1
    One of the feelings I hadn't really acknowledged as being part of my anxiety until now are the intense feelings of anger I often get over small issues. When something small happens...
    ThunderWaffles ThunderWaffles
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