Post

I Have Acute Biphenotypic Leukemia

A Acute Biphenotypic Leukemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Biphenotypic Leukemia. You're not alone. 22 People

    My 4 Year Old Daughter Has It Too!

    My daughter was diagnosed the 13 of June with Biphenotypic leukemia and we are very confused since there is not a lot of research on this. She is being treated at Kaiser and the plan is to have a bone marrow transplant after the AML type chemo treatment. She does have the...
    gabrielaaguirre gabrielaaguirre 31-35 5 Responses Jul 9, 2008

    Your Response

    Cancel

    I Was Given Two Diagnoses In 1997, One Was Abl

     Hi, After a harrowing year of going to doctors for help with a range of symptoms, all the bones in my body hurt so much that I could barely move without help.  A 10+ on the pain scale.   At USC through a series of miraculous interventions with kind and smart...
    Natashalq Natashalq 51-55, F Dec 17, 2009

    Your Response

    Cancel

    Life After Biphenotypic Leukemia

    It was two weeks after my 20th birthday that I was diagnosed with biphenotypic leukemia (AML and ALL). This was in 1990, which means that it was a miracle to have been diagnosed properly before any treatment had began. Immediately I was admitted into Stanford University's...
    anjanettea anjanettea 41-45, F 1 Response Aug 11, 2011

    Your Response

    Cancel

    My 2 Year Old Daughter Has Abl

    She was diagnosed April 26th, 2011. We are on day 68 in the hospital and on round 4 of chemotherapy. We plan to get a bone marrow transplant after her treatment. I'm very scared about the entire thing. I thought I had it tough already has a teen mother. Now I have this. I would...
    RaesofSunshine RaesofSunshine 18-21 3 Responses Jun 22, 2011

    Your Response

    Cancel

    Physicians That Saved My Life....

     Finding a cure for ABL in 1990 had to have been something unheard of, and I don't mean maybe. And even more so when there is no sibling match for the transplant. Yet despite those odds, not to mention those of post transplant with gvhd, etc... I am here and I am alive 21 yrs...
    anjanettea anjanettea 41-45, F 2 Responses Aug 27, 2011

    Your Response

    Cancel

    My Adult Kid Beat Bal

    I'm the father. My son has BAL, or biphenotypic acute leukemia. He is a survivor of the disease. And that in itself is remarkable. Leukemia is white cell blood cancer, and represents the failure of the body's immune system. You can't live without an immune system. Even so-called...
    nobarking nobarking 66-70 11 Responses Jun 1, 2008

    Your Response

    Cancel

    ABL

    And I want information
    brettto73 brettto73 61-65 May 27, 2008

    Your Response

    Cancel

    My Teenage Daughter Is A Recent Survivor Of Biphenotypic Leukemia

    Early July last year our whole world came crashing down. My daughter who was then 19 had been suffering with tiredness and swelling in her neck. We were told it was mumps but after a further week of her symptoms persisting and her feeling generally unwell she was admitted to...
    mum1967 mum1967 41-45, F 2 Responses Mar 15, 2012

    Your Response

    Cancel

    Abl Case In Singapore Nuh

    Hi all, my brother had just been diagnosed with ABL at the university hospital of Singapore. Anyone been treated there before? I need information on the disease and the treatment. Please help if you can and any information is greatly appreciated. Thank you.
    joolz03 joolz03 31-35, M 2 Responses Jul 13, 2012

    Your Response

    Cancel

    My Beautiful Niece Has Acute Biphenotypic Leukeamia

    My 19 year old niece has just been diagnosed with this condition. She has been in hospital for 6 wks and has had a 5 day bout of chemotherapy,unfortunately we have just found out it is not working. She is home for a couple of days before they try a new chemotherapy. Its very...
    sherb sherb 41-45 6 Responses Aug 20, 2011

    Your Response

    Cancel

    My Son Has BAL

    My son is now almost 8 months old and was diagnosed with BAL when he was 3 months old. We are getting ready to undergo a bone marrow transplant. If anyone has any experiences for a child of this age group or for bone marrow transplant I would enjoy hearing from them.
    Kaylah915 Kaylah915 22-25, F Feb 28, 2013

    Your Response

    Cancel

    My Daughter Has Bal and Is a Year Into Maintenance

    My daughter was diagnosed with Biphenotypic Acute Leukemia (pre-B) at 22 months and we are 75 weeks into treatment since diagnosis. This is a rarer type of Leukemia and thank God, she is doing well although treatment has on occasion been interrupted by neutropenia and a...
    sloman sloman 31-35 2 Responses Aug 27, 2008

    Your Response

    Cancel

    My Son Was Diagnosed Sept. 10 2011. With Acute Biphenotypic Leukemia

    My son had a stem cell transplant on Nov. 30 2011, and has been leukemia free since the transplant. However, he continues to go to outpaitient to deal with his grafters host disease. He is currently taking a whole lot of medications to help ease, but its not helping. He recently...
    canadiangirl67 canadiangirl67 41-45 1 Response Feb 21, 2013

    Your Response

    Cancel

    I am a 48 year old Catholic Priest

    and I was diagnosed with Biphenotypic Leukemia last February. I am currently convalescing in Singapore and have undergone a stem cell transplant in July last year. Some GVHD had caused the doctor to increase my steroid intake and I have now a 'moon face' but the GVHD's...
    Padreluca Padreluca 46-50, M Jan 14

    Your Response

    Cancel

    Related Experiences

    I just posted something here but dont know how to at something to that post. So I start again. I am a Dutch woman of 54 yo. I am diagnosted with HCL last tuesday. I have been...
    jolandamariette jolandamariette 51-55, F 1 Response 1 day ago

    Your Response

    Cancel
    Hi, I am a 54 year old female and I am Dutch. I live near Amsterdam in the Netherlands. I got diagnosed with HCL on 22-07-2014.
    jolandamariette jolandamariette 51-55, F 1 day ago

    Your Response

    Cancel
    I'm going through very tough times. I suffer from major depression and have just been diagnosed with a very hard to treat variation of leukemia. I'm only 13, and have been told I...
    Theicemario21 Theicemario21 22-25, M Jul 17

    Your Response

    Cancel
    I have had 2 acute episodes of warm body AIHA, both with liver & kidney failure. I am currently on Rutuxin every 8 weeks. I am 55 years old and live in Flagstaff, AZ. I was at...
    TerriUnk43 TerriUnk43 51-55, F Jun 29

    Your Response

    Cancel
    After my pancreas suffered severe damage from acute pancreatitis I was left with diabetes...
    AmaiXAshuri AmaiXAshuri 26-30, F 1 Response Jul 2

    Your Response

    Cancel
    I know i am dreaming i always know i feel it yet i can't control it. Just when i realize that in fact i am dreaming y start to feel cramps in my back, the hurt a lut and i feel...
    VictorFernando18 VictorFernando18 18-21, M Jul 14

    Your Response

    Cancel
    My story started in January 2014. I underwent gastric surgery and my Surgeon accidentally severed my Splenic Artery. I had a splenic infarction - it is now completely dead...
    MaxieFranklin MaxieFranklin 41-45, F 5 days ago

    Your Response

    Cancel
    I am a extremely secret person so I think I enjoy this site most of all because I have a place I can let things off my chest yet still be anonymous to some degree. Anyways; with...
    Chicgeekgal Chicgeekgal 22-25, F 15 mins ago

    Your Response

    Cancel
    I don't know how I let this happen and my heart wants to be hopeful but reality just doesn't make it seem likely! We live half a world apart and every opposite in our social...
    starstuff79 starstuff79 31-35, F 2 Responses 5 hrs ago

    Your Response

    Cancel
    I have red hair. I've been told I look like a leprechaun but that was the day after I kicked my elementary school bully's *** at Walmart... It was thru text messaging also lol...
    Mechawaffle Mechawaffle 13-15, M 1 Response 5 hrs ago

    Your Response

    Cancel
    Projectgwyn101 is so fuking sexy please have me or I'll have you.
    hate4life hate4life 16-17, M 1 Response 3 hrs ago

    Your Response

    Cancel
    Well, its my wifes family. They're ok , just, I have NOTHING in common with them. Whenever there is a get-together I feel SO out of place. One sis-in-law and her husband are very...
    boxersoff4u boxersoff4u 51-55, M 3 hrs ago

    Your Response

    Cancel
    I'm part Greek and Italian, so genetically I have a god tier big nose. A lot of people, both men and women, are often embarrassed or at least self concious about their big noses...
    LisaBella88 LisaBella88 18-21, F 1 Response 2 hrs ago

    Your Response

    Cancel
    I lost my Dad 2012 and I have recently lost my Mom on June 7 it's been a little over a month and I am just now starting to feel depressed. They both passed from cancer and I don't...
    toripiercy toripiercy 13-15, F 1 Response 5 hrs ago

    Your Response

    Cancel
    Okay so I'm not sure If I did but there wasn't a right experience for my case! I have sprained the same foot 3 times before today! So today I was on a rope swing and I tried to...
    pinklover76 pinklover76 16-17, F 1 Response 5 hrs ago

    Your Response

    Cancel
    Just got home from work, want to sleep but have insomnia. This sucks!
    bananarama1 bananarama1 41-45, F 1 Response 4 hrs ago

    Your Response

    Cancel
    I have scars! Plural. Several .... and all from my breast cancer. One is from my port and two are on my breasts from my mastectomies. But they are beautiful because they are...
    lagatta lagatta 41-45, F 3 Responses 3 hrs ago

    Your Response

    Cancel
    I know it's not a big deal or anything but I haven't had my first kiss but I'm scared of actually kissing someone. Is that normal or am I being paranoid ?
    Smiles1997 Smiles1997 16-17, F 3 Responses 2 hrs ago

    Your Response

    Cancel
    Whoever claims this is guilty of paving the way for pedophiles. Of course love has an age. Of course there is no true love without some maturity. This group is promoting a lie and...
    Soniador1963 Soniador1963 46-50, M 2 hrs ago

    Your Response

    Cancel
    I have a blog about my life and everything I've lived through. It is dark but I am a survivor and proud of the lady I am today http://chanellehaffenden.wordpress.com
    Kissedbyarose Kissedbyarose 22-25, F 1 hr ago

    Your Response

    Cancel
    But I can never have to many panties.. I'm a sucker for a pretty panty
    kysatinman kysatinman 41-45, T 2 Responses 1 hr ago

    Your Response

    Cancel
    Do any of you have animal alters? -Shar
    TheDylanWorld TheDylanWorld 13-15, M 1 hr ago

    Your Response

    Cancel
    A series of incidents have let me to leave from EP. In a matter of hours I felt depressed didn t know exactly what was i thinking about , like fell in an illusion. I left and...
    prince35xxx prince35xxx 31-35, M 1 Response 11 mins ago

    Your Response

    Cancel
    Crossed the finish line of a marathon last week and within 10 mins I was in an ambulance. Hives, throat closed up, tongue swollen, eyes and hands swollen...I was surprised to say...
    MPLS1973 MPLS1973 41-45, F Jun 28

    Your Response

    Cancel
    I have been having sex with my daughters mum for years. I think it's time to stop.
    usernamesareashame usernamesareashame 46-50, M 1 Response Jun 28

    Your Response

    Cancel
    Well it has been about 17 years for me and the agony of this is sometimes just too much. I have resisted any medication but now I take as needed 2 mg daily (usually .5 - 1mg at a...
    njfeds njfeds 51-55 Jun 28

    Your Response

    Cancel
    Once upon a time my social anxiety was so bad that I couldn't ask the time, couldn't order a pizza... I still have a little problem making phone calls... I had panic attacks at...
    Drechavo Drechavo 26-30, F 2 Responses Jun 28

    Your Response

    Cancel
    I have a genetic form of thyroid cancer. My chances of living past 60 increase once I do some stupid surgery.
    kat990 kat990 13-15 2 Responses Jun 28

    Your Response

    Cancel
    I can't do this. I can't let anyone get close to me. Lately, I've met some people. People I really connect with. People who are excited to talk with me, hang out with me. And I...
    AlleywayGospel AlleywayGospel 26-30, F 2 Responses Jun 28

    Your Response

    Cancel
    I have had a grand total of 13 concussions. I believe it has taken a toll on me. Mostly in the form of terrible headaches. Also, I'm not sure if it's related, some muscle twitches...
    AlleywayGospel AlleywayGospel 26-30, F 1 Response Jun 28

    Your Response

    Cancel
    I am so happy right now one of my friends is engaged after 8 years of a relationship... I couldn't be more happier for her, she really deserves the up most happiness. Things have...
    lilygeorge12 lilygeorge12 22-25, F Jun 28

    Your Response

    Cancel
    Mind you I like to drink and all but you don't need drugs or alcohol to have fun. Get some friends and go on a hike through wood you don't know. Do something adventurous and...
    shadowlike shadowlike 26-30, M Jun 28

    Your Response

    Cancel
    If you don't know, I have some pet peeves about EP. Here is but another one. When I log into my account. It is annoying that I see mostly stories from people that are not in my...
    OnewithJC OnewithJC 36-40, F Jun 28

    Your Response

    Cancel
    It gets bright in the summer and I have orange sunbursts going around my pupils of my blue eyes
    Fishscaledreams Fishscaledreams 22-25, M Jun 28

    Your Response

    Cancel