A Acute Intermittent Porphyria anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Intermittent Porphyria. You're not alone.
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Members Sharing the Experience "I Have Acute Intermittent Porphyria"
27 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- " my symptoms are right upper abdominal pain it feels like someones burning my insides vomiting, constipation, low grade fever, redish - brown urin, troubles urinating, my shoulders feel heavy and weak during an attack and also pain through my fingers and arms, when im in the sun for even five minutes during an attack my arms turn red get bumpy and start to blister, i also get swollen lymph nodes..."
- "I was on birth control pills to help even out my mentrual cycle as it was very irregular..."
And the Story Awards Go to...
Most Popular: Aip???
Most Recent: Diagnosed In 2006 With Acute Intermittent Porphyria
Statistics:
56% of people who have this experience are in their teens, 52% are in their thirties, and 37% are in their twenties. 100% of people who have this experience are women.
You may cite any I Have Acute Intermittent Porphyria statistics, provided you link back to this page
Check out this group's What Is It Like To Have Acute Intermittent Porphyria guide, where people with this experience share their tips and hints.
Here are a few tips...
- Its like having the FLU TIMES 20 when in an attack. I would not wish this on my worst enemy.
Members said this page is also related to:
Do You Have Acute Intermittent Porphyria? , What is it like to Have Acute Intermittent Porphyria? ,Have Acute Intermittent Porphyria personal stories, Have Acute Intermittent Porphyria personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Acute Intermittent Porphyria. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
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