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I Have Adams Oliver Syndrome

A Adams Oliver Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Adams Oliver Syndrome. You're not alone. 11 People

    Hi There

    hi there i am a female born with adams oliver syndrome 46 years ago now lives in calgary alberta canada
    bg454 bg454 46-50, F Feb 23, 2013

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    The Search Is Over

    I have been finding ways to find people that have a similar condition as I have.  I am 37 years old and it was just yesterday that I dedicated a whole day at searching over the net for images and facts about my disability.   It's either  Adams Oliver Syndrome or Amniotic Band...
    tatz tatz 36-40 Oct 8, 2011

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    My Daughter Has Adams Oliver Syndrome...only One In the U.s.a?

    Yesterday, my 6 week old baby girl and I went to the hospital for more testing. She has a bald scar on the top of her head that no one could identify. Also the Doctors were curious about her Tiny toes and short fingers.  Her doctor called and said they might know what is the...
    taylorisabellasumner taylorisabellasumner 26-30 11 Responses Apr 26, 2008

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    AOS

    www.aosupport.org/anouk.htm
    Anouk021008 Anouk021008 26-30 1 Response Aug 16, 2009

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    Related Experiences

    Ok so this is important for anyone who has CFS or anything like it. I have had this illness for 4 1/2 years now, and I've been to a fair number of doctors. But it took awhile to...
    Invisibleninja12 Invisibleninja12 18-21, F 1 Response Jan 14

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    I'm a 21 year old female with possible hypermobility syndrome/EDS Type 3 or fibromyalgia. My mum has hypermobile joints but hasn't been diagnosed with HMS/EDS but has been...
    Kari9349 Kari9349 18-21, F Jan 1

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    A new information website has been developed for stiff-person syndrome to educate, empower, and advocate. www.thetinman.org
    TheTinManOrg TheTinManOrg 51-55 Jan 2

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    My partner was diagnosed with Stiff Person Syndrome in July 2014. Due to my own ignorance about the illness and my own selfish needs of refusing to accept her sudden disability, i...
    GeekyGirl82 GeekyGirl82 31-35, F Jan 12

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    Hello there! I'm currently making some researches about Maladaptive Daydreaming Disorder. A disorder in which the person uses daydreaming as a defense mechanisme to escape from...
    RichardAndon RichardAndon 22-25, M 4 Responses 4 days ago

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    Can someone please tell me they're symptoms of polycistic ovarian syndrome x
    iwantababy111 iwantababy111 16-17, F 4 days ago

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    I have had CFS for about 12 years and am sick of people either not believing that I have it or giving me "helpful" advice (such as: oh, just push yourself a little more each day...
    TealGirl TealGirl 31-35, F 1 Response Dec 26, 2014

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    I hate that I am incompetent. Alright, so basically, my mom expects me to be able to do all kinds of things without being taught, because she thinks they're obvious. Well, they...
    sethdots sethdots 18-21, T 1 Response Dec 29, 2014

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    I have it. My favorite symptom is that people with it prefer nonfiction over fiction which I do.
    bobherry bobherry 16-17, M 1 Response Jan 6

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    Having more problems with my right bicept, I guess I'll talk to my doctor about it, Still under stress from an unsuccessful consult about my neck injury, Doctors seem to judge me...
    JEM404 JEM404 41-45, M a week ago

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    I had my diagnosis at 19, I have several other medical problems which have resulted in very limited mobility. I have good bouts where I can move much more easily but I have 'flare...
    noonespecial44 noonespecial44 26-30, F 6 days ago

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    Post diagnosis things went sour, my carefully constructed world started collapsing around me. Everything I had done to cope with a condition I didn't realise I had became...
    Teab Teab 41-45, M 5 days ago

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    It's all a question of precision .. F84.5 but that was then .... So we notice detail .. I walk into a room and notice a paper clip on the floor .. What is he doing ???? Hunter...
    TheRebelFaction TheRebelFaction 51-55, M 1 Response Dec 29, 2014

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    Got in trouble at school so many times because of it. Its ruining my life to be honest.
    idfwuu idfwuu 13-15, M 4 Responses Jan 1

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    How do you guys manage CFS? Seems like I can't live a normal life like I used to.
    awesomesauce2 awesomesauce2 22-25, M 3 Responses Jan 8

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    This is an oddly specific group
    Gabbi97 Gabbi97 18-21, F 2 Responses Jan 12

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    Which explains why everybody hates me. :D
    Symbiopsychotaxiplasm Symbiopsychotaxiplasm 26-30, F 4 Responses Jan 16

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    Found a very good read! Check it out http://www.drmyhill.co.uk/wiki/CFS_-_The_Central_Cause:_Mitochondrial_Failure#Explanation_of_the_Fatigue_Problems_in_CFS_Patients
    awesomesauce2 awesomesauce2 22-25, M 6 days ago

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    Asperger's symdrome is something thats gives me a lot and takes a lot too, I can recite 100 digits of pi easily, dolve a rubix cube in 1 min 13 seconds, and tell you anything about...
    Kringle95 Kringle95 18-21, F 2 Responses 5 days ago

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    I always wanted to meet someone with aspergers like me wish I knew someone near :(
    kittyanthony kittyanthony 22-25, M 2 Responses 4 days ago

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    I have Asperger's Syndrome and am depressive as well, I would love new friends
    deanratzloff deanratzloff 13-15 1 Response 1 day ago

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    So, I've been thinking... and I've realised that I won't be able to watch Arrow if my darling Oliver is dead. I just can't. Seeing Felicity deal with the heartbreak of losing...
    OlicityShipper OlicityShipper 70+, F 6 days ago

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    Would someone like to play? Fit hung male looking for female or male adams1990bd
    adams1990bd adams1990bd 26-30, M 9 hrs ago

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    Follow me @detrius_adams No ghost followers👻👻👻👻👻
    detrius150 detrius150 13-15, M 6 hrs ago

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    The Journey One day you finally knew what you had to do, and began, though the voices around you kept shouting their bad advice – - - though the whole house began to tremble...
    sophrai sophrai 61-65, M Jan 9

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    Hello, Im a 15 year old boy and live in Finland, since i havent told anyone ever about my duane's syndrome type 1 i tought it would be a good idea to share my story here. I was...
    thundercoolmint thundercoolmint 13-15, M Jan 11

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    Does singing the same thing over and over again actually makes you sing it better? I'll explain: There's a note I can't hit, and I keep messing it up over and over again each...
    or19937 or19937 18-21, M Jan 9

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    She is beyond amazing! As Oliver once told her - she is remarkable! I would love to be like her. She's sassy, sexy, beautiful, fearless, soooo funny! Extremely intelligent. Kind...
    OlicityShipper OlicityShipper 70+, F 1 Response Jan 11

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    It's coming up to 2 years since it was suggested that I have Turner Syndrome... and one thing that I'm really struggling with is gender identity. Obviously, I have all the girly...
    LoneSouls LoneSouls 26-30, F Dec 31, 2014

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    My little boy (4years old) was diagnosed with Jacobs syndrome yesterday. Anyone else out there with experience of this chromosome disorder?
    rqs1983 rqs1983 31-35, F Jan 5

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    i am 26 and i have pica...am addicted to the smell of sand,cement,chalk,car fumes and dirt.i always enjoy sweeping dusty areas because of the smell.I've been doing it since...
    Efyamansa Efyamansa 26-30, F Jan 8

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    Hi there! My son is 3 months old and he has wpw syndrome. Since he was born he had SVPT two times in 2months...and when the doctors changed the therapy to Amiodarone he is stable...
    snegulka123 snegulka123 26-30, F 1 Response Jan 9

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    Hi Everyone, I just wanted to share my story with everyone! My story is a lot similar to a lot of yours out there. But I just found out that I have Swyer Syndrome. It was one of...
    kaylababy95 kaylababy95 18-21, F 1 Response Jan 13

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    I respect the sanctity of marriage. honor the vows and the ever after.It never occurred to me that my marriage will go to the drain. We had great sex. I thought it was the core of...
    4BlackForest 4BlackForest 36-40, F 2 Responses Jan 14

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    Funny life I live...I married a woman just like my mother. She was recently diagnosed with Asperger's Syndrome after my son was diagnosed. I realize now that I am a NT who has an...
    Traveler316 Traveler316 41-45, M 2 Responses Jan 16

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    Hi, my name is Sally. I am 45 years old and all through childhood was simply told I just had an eye condition. The doctors never knew how to diagnose it or what to call it so it is...
    ssimpson69 ssimpson69 41-45, F 21 hrs ago

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    I was diagnosed with POTS when I was around ten. I have been on fludrocortisone (florinef) and atenelol ever since. My husband and I are wanting to get pregnant, and my...
    kdav12 kdav12 22-25, F 2 Responses Dec 27, 2014

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    I don't have a sibling with Asperger's . I was the sibling with Asperger's . When it was necessary my sister did what was necessary . She loved me and corrected me .. She knew that...
    TheRebelFaction TheRebelFaction 51-55, M 1 Response Dec 29, 2014

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    It's called "DMS" or Dirty mind syndrome, when everything you hear your brain automatically thinks of something dirty. Heart this if you have DMS
    chasetheweirdo8 chasetheweirdo8 13-15, M 2 Responses Jan 2

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    My son was diagnosed with myelodysplastic syndrome in 2012 during the summer before his senior year of high school. He had a bone marrow transplant and nearly died twice in the...
    lynnieruns lynnieruns 41-45, F Jan 4

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    I'm 21 and I have pica. I love the taste and texture of paper from cardboard, some types of tissue paper and other types of paper. It started when I was a baby, my mom noticed me...
    bunny413 bunny413 18-21, F 1 Response Jan 5

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