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I Have Adams Oliver Syndrome

A Adams Oliver Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Adams Oliver Syndrome. You're not alone. 11 People

    Hi There

    hi there i am a female born with adams oliver syndrome 46 years ago now lives in calgary alberta canada
    bg454 bg454 46-50, F Feb 23, 2013

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    The Search Is Over

    I have been finding ways to find people that have a similar condition as I have.  I am 37 years old and it was just yesterday that I dedicated a whole day at searching over the net for images and facts about my disability.   It's either  Adams Oliver Syndrome or Amniotic Band...
    tatz tatz 36-40 Oct 8, 2011

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    My Daughter Has Adams Oliver Syndrome...only One In the U.s.a?

    Yesterday, my 6 week old baby girl and I went to the hospital for more testing. She has a bald scar on the top of her head that no one could identify. Also the Doctors were curious about her Tiny toes and short fingers.  Her doctor called and said they might know what is the...
    taylorisabellasumner taylorisabellasumner 26-30 12 Responses Apr 26, 2008

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    AOS

    www.aosupport.org/anouk.htm
    Anouk021008 Anouk021008 26-30 1 Response Aug 16, 2009

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
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    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F Apr 30

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    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response May 1

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    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 2 Responses May 5

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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
    JoyJoy7 JoyJoy7 22-25, F 8 Responses May 11

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    I don't understand eye contact or facial expression I remember Making friends with someone once we talked for a while and eventually the topic somehow went into disability's, When...
    Autumnflowers Autumnflowers 18-21, F 8 Responses May 13

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    I often use my imagination in a way to create or recreate the reality to better understand some situations or to comfort my insecurities when needed. Sometimes I find myself into...
    RichardAndon RichardAndon 22-25, M May 16

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    Nowadays I blend in with society pretty well, but in kinder garden my symptoms were showing a lot and I got humiliated over and over by the sixth graders telling me "you should do...
    ortwin ortwin 16-17, M 1 Response May 17

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    It's the mild variant which just means people don't realize that I actually have a problem and thus hate me. It causes a lot of problems including with social interaction, and...
    omutsukimi omutsukimi 18-21, M 3 Responses May 19

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    Hi this is my first time on here, just cane on to get some peoples real experiences. I'm sick of reading threw endless pages of things I don't understand with all the long words...
    pinklady2989 pinklady2989 22-25, F 4 days ago

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    I had a terrible experience the day before i had emergency surgery...i woke up one morning not being able to get out of bed because of the pain so i called an ambulance was taken...
    jszymecki1234 jszymecki1234 31-35, F 3 days ago

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    Hi I wanted to post that I am with a company in the US for all natural products for various medical conditions, one product that helps inflammatory issues, another product that...
    carolgem carolgem 46-50, F 2 days ago

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    Hi wanted to share my facebook page www.facebook.com/healthyproductswithcarol where I try to keep up often with testimonials from past users to show how our products have helped...
    carolgem carolgem 46-50, F 1 day ago

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    Live near NYC, does anyone know a hospital that specializes in PTS? Two rotator cuff surgeries on left shoulder, 15 months of PT and now have PTS. In pain frequently and wake up...
    satsmo satsmo 46-50, M 14 hrs ago

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    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F May 1

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    When I was a kid I never felt the same as any of my peers. They were always too loud, too rude, or too confusing for me to want to interact with. Most would bully me for my...
    Wandering2 Wandering2 18-21, F 1 Response May 4

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    my Dr is trying to eliminate stuff before he diagnosis me with cfs. he recently did a mono test and drug test (which was my psychiatrist idea). I wonder what he'll try next...
    kareenmarie kareenmarie 36-40, F 1 Response May 4

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    i want every cytomegalo patient to please read my testimony,my name is Tee Tee. i was cytomegalo (CMV) positive since 2013 and it affected my life. I would like to advise people...
    teeteebaby teeteebaby 31-35, F May 12

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    I started with pain in right shoulder blade on April 2, 2015 and diagnosed on May 15, 2015 with PTS. The pain is severe on the right arm, elbow, forearm, hand and fingers...
    hankvankat hankvankat 56-60, M 1 Response May 18

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    I'm a bit hesitant to add this to my experiences as I don't know for sure if I suffer from it, but due to my habit of checking the internet whenever something is not right...
    RealLifePerson RealLifePerson 26-30, M 1 Response a week ago

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    Hi, I've had CFS for many years. I go out when I'm feeling ok but on the whole I'd prefer to be able to speak to people online. I'm happy and upbeat. CFS doesn't mean all we...
    LizardW13 LizardW13 46-50, F 2 days ago

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    Cure to PTS Go to GNC and buy viamin b, fish oil, lecithin, and arginine supplements. Get the tablets. Take a dose of two tablets of each every morning and every night. Once the...
    ljade18 ljade18 26-30, M 1 day ago

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    It's more of a tourette's of the mind for me. If I'm around certain people, all these unwanted thoughts come to my mind but I never actually vocalize them.
    zarpanzur zarpanzur 26-30, M 17 hrs ago

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    moose73630 moose73630 16-17, M 1 Response May 7

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    QuanMarquis QuanMarquis 22-25, M 1 Response May 17

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    I'm being such a **** baby right now.. Wahh everything is annoying life is hard wahhh Ah but I should probably get this checked out before school starts. The whole point of waiting...
    junedew junedew 18-21, F 15 hrs ago

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    Ok so I read my palms for fun but basically I have really weird palms ...because if u can see my head and heart lines are connected...I just have one line instead of 2... I looked...
    ERMAHGERD1 ERMAHGERD1 22-25, F 1 Response May 10

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    Can anyone help me with sapho syndrome. .....
    agha1234 agha1234 31-35, M 1 Response 3 hrs ago

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    Feel a nostalgic 80's vibe.What is it about a song that draws you to those memories of that time.I had such a girl crush on Bryan Adams.....he's my definition of a gorgeous man...
    lass1 lass1 41-45, F 1 Response Apr 29

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    Hmmmm, I seem to be having a Bryan Adams moment....thanks to youtube.Which age is the best, do you think?The one on the left has him as a ginger and rougher looking, but the right...
    lass1 lass1 41-45, F 2 Responses Apr 29

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    grindhound grindhound 22-25, T May 12

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    Incorrect13 Incorrect13 13-15, F 1 Response May 19

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    I invite you all to come over to my Poland Syndrome Suppport (USA) Facebook page, this is a closed group and we are very open and willing to lend advise.
    Gene47 Gene47 46-50, M May 1

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    I invite you all to come over to my Facebook group page, Poland Syndrome Support (USA).
    Gene47 Gene47 46-50, M May 1

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    MelissaM98 MelissaM98 16-17, F