Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Adams Oliver Syndrome

A Adams Oliver Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Adams Oliver Syndrome. You're not alone. 11 People

    My Daughter Has Adams Oliver Syndrome...only One In the U.s.a?

    Yesterday, my 6 week old baby girl and I went to the hospital for more testing. She has a bald scar on the top of her head that no one could identify. Also the Doctors were curious about her Tiny toes and short fingers.  Her doctor called and said they might know what is the...
    taylorisabellasumner taylorisabellasumner 26-30 11 Responses Apr 26, 2008

    Your Response

    Cancel

    Hi There

    hi there i am a female born with adams oliver syndrome 46 years ago now lives in calgary alberta canada
    bg454 bg454 46-50, F Feb 23, 2013

    Your Response

    Cancel

    The Search Is Over

    I have been finding ways to find people that have a similar condition as I have.  I am 37 years old and it was just yesterday that I dedicated a whole day at searching over the net for images and facts about my disability.   It's either  Adams Oliver Syndrome or Amniotic Band...
    tatz tatz 36-40 Oct 8, 2011

    Your Response

    Cancel

    AOS

    www.aosupport.org/anouk.htm
    Anouk021008 Anouk021008 26-30 1 Response Aug 16, 2009

    Your Response

    Cancel

    Related Experiences

    I'm writing this now because I need to get it out. I'm having trouble deciding what to do. School's been out for a few months and since then I've tried a 30 day free trial period...
    ftmFreddy ftmFreddy 18-21, T 1 Response Oct 24

    Your Response

    Cancel
    I learned I had it at age 5 and they said I was lucky to be alive. The only downside is that I have trouble learning in school
    metalchick18 metalchick18 18-21, F 1 Response Nov 4

    Your Response

    Cancel
    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    PsychedelicSmile PsychedelicSmile 18-21, F 3 days ago

    Your Response

    Cancel
    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses 2 days ago

    Your Response

    Cancel
    Its harmed me a lot. I was bullied mercilessly up until the end of high school, and I'm still worried that people would want to exclude me socially. Although I now appear to be...
    Almostanonymous Almostanonymous 22-25, M 2 Responses Nov 9

    Your Response

    Cancel
    Had it for around six hours now :(
    TreeHuggingHippie000 TreeHuggingHippie000 41-45, F 2 Responses Nov 5

    Your Response

    Cancel
    Honestly, learning I had it destroyed my hopes of being able to belong in society. Sorry i'm not being positive about my experience but that doesn't make it any less real. Let me...
    Darknessisgrowing Darknessisgrowing 18-21, M 4 Responses Nov 6

    Your Response

    Cancel
    Do any of get to do anything alone?
    shadowfluffy6 shadowfluffy6 18-21, F 5 Responses Nov 11

    Your Response

    Cancel
    I've suffered with RLS most of my 55 years. Found out gluten is a huge trigger. Especially at night. Take Requip 4mgs at night also. Definitely helps avoiding gluten.
    Sirkutter Sirkutter 51-55 Nov 15

    Your Response

    Cancel
    It turns out I have polycystic ovary syndrome and that causes my testosterone levels to be dangerously high, estrogen to be dangerously low, insulin to be really screwed up...
    polyglotparrot polyglotparrot 13-15, F Nov 14

    Your Response

    Cancel
    So glad to have found a forum on which to share my experience with Aspergers. I'm hoping for some ideas and strategies to better cope. Both my Husband and Stepson are afflicted...
    Aspierollercoasterride Aspierollercoasterride 36-40, F 1 Response 10 hrs ago

    Your Response

    Cancel
    Hi, Im new to this site, and anything like this. I recently found out that my BF, and as of last month, Husband has AS. I am not a Doctor, but he has all the characteristics and...
    Metalmissys Metalmissys 46-50, F 1 Response 5 hrs ago

    Your Response

    Cancel
    So, when we get our dogs as puppies, we're technically kidnapping them in a way, right? Since they have no inkling as to what is happening, to them it's kidnapping I suppose. (Or...
    LiveForAnotherDay LiveForAnotherDay 13-15, F 1 Response 7 hrs ago

    Your Response

    Cancel
    I don't remember a day where I actually felt normal. Could run. Didn't have my parents yell at me for "not controlling my symptoms". People asking why my legs are all red and...
    HebBay HebBay 18-21, F 1 Response 2 hrs ago

    Your Response

    Cancel
    I have been self-diagnosed with rumnation syndrome and am 100% sure that I have diagnosed correctly. This syndrome is making me refuse to eat. I am disgusted with my subconscious...
    sassyanus sassyanus 18-21 Nov 3

    Your Response

    Cancel
    ** I do not have Timothy Syndrome, my baby sister does, but she's too little to share her story ** My little sister was born a year and a month ago, premature. She was tiny and...
    allydoe allydoe 18-21, F 5 days ago

    Your Response

    Cancel
    WILL POWER. HAVING A POSITIVE ROLE, RESPECT, FUNDAMENTAL ETHICS ARE A GOD GIVEN RIGHT, SCARRY TO THINK SOME ARE LACKING...
    JEM404 JEM404 41-45, M Oct 24

    Your Response

    Cancel
    Hi, I was diagnosed with Limited Crest Syndrome around twelve years ago, having asked what it was I was told, too complicated, look it up on the internet....Anyway have the usual...
    gillybee77 gillybee77 66-70, F Nov 1

    Your Response

    Cancel
    In year 1992, I came down with Ramsay-Hunt Syndrome. Its been a long battle. My face first paralyzed on one side and three months later, the other. This has affected my vision...
    Gustavp Gustavp 70+, M Nov 16

    Your Response

    Cancel
    My life will never be the same. In 2011, an extremely traumatic event happened to me and since then my life had never been the same. It's easiest to just list the thingsthat were...
    XxAlphaCentaurixX XxAlphaCentaurixX 26-30, T 1 Response 5 days ago

    Your Response

    Cancel
    I have been told recently I look like Amy Adams, Isla Fisher, Leanne Rimes, and Catherine Zeta-Jones (but blonde). I don't see it lol!
    kristin8227 kristin8227 31-35, F Nov 2

    Your Response

    Cancel
    I started out wanting to prove a point. I don't know why exactly. what did Bryan Adams ever do for me? Why should I defend his honor? So.......this isn't about proving a point,it's...
    diggler diggler 41-45, M 2 Responses Nov 10

    Your Response

    Cancel
    I may not have gone where I intended to go, but I think I have ended up where I intended to be. - Douglas Adams
    expressomarkie expressomarkie 46-50, M 4 days ago

    Your Response

    Cancel
    Considering that when I was at school no one had heard of Asperger's it doesn't surprise me that not many people my age have been diagnosed. So their must be thousands wandering...
    Homejames Homejames 51-55, M Oct 25

    Your Response

    Cancel
    I'm learning to deal with Asperger since my partner and his son moved with me and my son; his son has asperger and we have just known about it, it helps us to explain things... now...
    moniperu moniperu 46-50, F Oct 25

    Your Response

    Cancel
    I have been married to a man with undiagnosed Aspergers for 10 years. For the first 5 years of our marriage he was out to sea (Navy) the majority of the time ; it's not until he...
    njleoladye njleoladye 36-40, F 3 Responses Oct 25

    Your Response

    Cancel
    yeah it's called being better than you. B.T.Y. syndrome
    NotBiasedBAM NotBiasedBAM 18-21, M Oct 29

    Your Response

    Cancel
    I was only diagnosed at 16. It's been really hard for me though. I nearly failed out of high school. I can't focus. And pretty much have all the symptoms that show I have it...
    yourbrowneye yourbrowneye 18-21, M 1 Response Nov 1

    Your Response

    Cancel
    Shock is obviously the first reaction but having then seen and spoke to her in a strange way I feel relief for her. This might help people who know anyone that is suffering with...
    NihilImpetus NihilImpetus 31-35, F Nov 2

    Your Response

    Cancel
    I was diagnosed with CIDP when I was 12 (year 7) and I laughed when they told me because even though I had no idea what it was and the name was such a mouthful, I was relieved to...
    AlexPeyton AlexPeyton 18-21, F Nov 2

    Your Response

    Cancel
    I have had a college soccer career ending concussion. It's frustrating yes. Days are hard and few understand. But I am blessed and when I get frustrated I take a deep breath and...
    am0116 am0116 18-21, F Nov 2

    Your Response

    Cancel
    I got a really bad call from the school yesterday. He's been supposedly acting out in class. He says his teacher never believes when he says another student is picking on him. My...
    flypiggie flypiggie 26-30, F 1 Response Nov 4

    Your Response

    Cancel
    My whole life, I've been attracted to dry, dusty things. As a child, I used to volunteer to clean erasers at school so I could inhale the dust, but I never had a craving to...
    FaceFaceFace2 FaceFaceFace2 18-21, F Nov 9

    Your Response

    Cancel
    I had a nervous breakdown 20 years ago and wasn't hospitalized. I lost my children to rich people and was homeless for 20 years. I have OCD< ADD, Fatherless Daughter Syndrome...
    growth60 growth60 61-65, F 1 Response Nov 9

    Your Response

    Cancel
    Does anyone have anything other than POTS?
    december789 december789 16-17, F 1 Response Nov 10

    Your Response

    Cancel
    I suffer from ibs (irritable bowel syndrome) I am 13 years old and it sucks and hardly anyone has it at my age and honestly no one understands me it affects my everyday life I can...
    emilycatherine emilycatherine 13-15, F 1 Response Nov 11

    Your Response

    Cancel
    I started having symptoms at age twelve but I had a complete brake down my junior year of high school. I was trying to balance high school, cosmetology school, and my pots symptoms...
    alyssaanna alyssaanna 18-21, F Nov 13

    Your Response

    Cancel
    Anyone else here have this illness?
    leyla29 leyla29 26-30, F Nov 15

    Your Response

    Cancel
    I eat every type of soap anyone I can get my hands on sometimes my tongue is yellow and I have really bad side pains but I cant stop. I eat a bar of soap a month n it relaxes me...
    semorec semorec 18-21, F Nov 16

    Your Response

    Cancel
    Marfan syndrome is the cause.
    MiddleSister45 MiddleSister45 41-45, F a week ago

    Your Response

    Cancel
    I found out when i was 13 years old and found out i cant have kids i tried Treatments gels tablets everything nothing worked so i went to anabolic steroids like dbol and it was...
    chris0478 chris0478 22-25, M 6 days ago

    Your Response

    Cancel