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I Have Adams Oliver Syndrome

A Adams Oliver Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Adams Oliver Syndrome. You're not alone. 12 People

    Hi There

    hi there i am a female born with adams oliver syndrome 46 years ago now lives in calgary alberta canada
    bg454 bg454 46-50, F Feb 23, 2013

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    My Daughter Has Adams Oliver Syndrome...only One In the U.s.a?

    Yesterday, my 6 week old baby girl and I went to the hospital for more testing. She has a bald scar on the top of her head that no one could identify. Also the Doctors were curious about her Tiny toes and short fingers.  Her doctor called and said they might know what is the...
    taylorisabellasumner taylorisabellasumner 26-30 12 Responses Apr 26, 2008

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    AOS

    www.aosupport.org/anouk.htm
    Anouk021008 Anouk021008 26-30 1 Response Aug 16, 2009

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    The Search Is Over

    I have been finding ways to find people that have a similar condition as I have.  I am 37 years old and it was just yesterday that I dedicated a whole day at searching over the net for images and facts about my disability.   It's either  Adams Oliver Syndrome or Amniotic Band...
    tatz tatz 36-40 Oct 8, 2011

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    Related Experiences

    I used to play a video game a lot called World of Warcraft and in the last 8 or so months I was playing I raided with an amazing guild that felt like a second family. I sorta kinda...
    midnightkid43 midnightkid43 18-21 37 mins ago

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    My wife and I have both done this and didn't really enjoy it. I have an Aunt who loves it!
    CindyCD478 CindyCD478 46-50, T 15 Responses 1 hr ago

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    You have done so many bad things to me. Asking you to try to be real with me, my trying to get closure, forgiving you and asking for you to think about how you have affected my...
    JessygotaBooBoo JessygotaBooBoo 22-25, F 1 hr ago

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    To 'Love' yourself, may sound idiotically stuck up and stupid, especially as it reeks with a range of different implications. To love yourself can be ugly when you are treating...
    Trainedheart Trainedheart 31-35, F 1 hr ago

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    Is this ART or THERAPY? 25-Jun-06 5 stages 08-Oct-14 a gift of god 06-Jan-10 A Log in the Sea 07-Aug-08 A Piece of Advice 19-Nov-12 Again Someday 04-Jun-07 Another suicidal...
    nivanvc nivanvc 36-40, M 3 hrs ago

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    So I gotta’ get this outta’ my system. I don’t know if there’s anyone I can really talk to or anyone who’ll really listen without spouting off some cheap catchphrase...
    FluttershyLabeouf FluttershyLabeouf 18-21, M 6 hrs ago

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    It was during the summer. I was out of school and house hopping since I had no stable home to go back to. It was a difficult year. I felt like dying every day. I had bouts of...
    starsheepie starsheepie 22-25, F 2 Responses 6 hrs ago

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    I'm tired of everything. I'm horny and annoyed at the same time. I never get what I want. I have a depressive mindset which I wish I could kill. I am interested in women but have...
    Jordbaerbonnie Jordbaerbonnie 31-35, F 7 hrs ago

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    So right now I have my two little dogs, a terrier/poodle mix and a possible shiba inu mix. And our big dog, a Great Dane/blue tick coonhound mix and oh yeah, her 16 3 week old...
    Env06 Env06 26-30, F 1 Response 8 hrs ago

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    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T 1 day ago

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    Thick blood (also known as hypercoagulability, Antiphospholipids, and Hughes Syndrome) is a condition where the blood is more viscous (thicker and stickier) than normal. The...
    topcap2017 topcap2017 41-45, M 1 Response 2 days ago

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    So I have a question. For me, when I am about to faint, I become really incoherent. I forget what I am talking about, I say off the wall things, and I can barely walk straight. It...
    imstrongerthanyouthink imstrongerthanyouthink 18-21, F 2 days ago

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    There's the oldest There's the youngest There's the only boy And then there's me...
    DreamRiver DreamRiver 18-21, F 2 Responses 2 days ago

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    Another bout has struck me down, looks like another few days of severe rest. Lucky me(!)
    ProjectExperienceNameUser ProjectExperienceNameUser 26-30, M 3 days ago

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    I don't understand why they are subjecting me to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of...
    LoneSouls LoneSouls 31-35, F 3 days ago

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    i have several mental illnesses. i have been hospitalized many times and in rehabs. i take medication every day. i hate stigma and discrimination. it is wrong. i have...
    cosmosdrift cosmosdrift 31-35, F 1 Response 3 days ago

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    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
    endlessl0ve endlessl0ve 26-30, F 2 Responses 4 days ago

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    Any way to stop feeling fatigued? Anyone had any luck gaining energy back?
    WhiskeyT WhiskeyT 22-25, F 1 Response 5 days ago

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    i'm 40 years old and have polands syndrome.i was always told that i just had a birth defect and that was it but finally a doctor diagnosed me.i was fine when i was younger but for...
    Brewdogg Brewdogg 36-40, M 1 Response 6 days ago

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    Homeschooled my entire life I suck at Math Still don't have a driver's license (and haven't practice-driven since last summer) I missed out on pretty much everything cool in the 9...
    FluttershyLabeouf FluttershyLabeouf 18-21, M 1 Response 6 days ago

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    I have the pais syndrome an intersex condition. I am a FTM/Libragender and I have bottom dysphoria and I am happy though that I'm intersex, though worried too.
    Yviroc Yviroc 22-25, T 6 days ago

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    Does anyone else experience a great feeling of anxiety and impending constant doom from this? Like something is terribly wrong...does anyone else feel this horrific panic deep in...
    myreality1 myreality1 36-40, M a week ago

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    My husband and I have been trying to get pregnant for the past year. Nothing. I have two beautiful twin daughters. Natural conception, first pregnancy. I finally went to see a...
    Butterflykiss707 Butterflykiss707 22-25, F Jan 30

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    Is there anyone out there who has scleroderma of their organs? I now have it in my esophagus and lungs. Is this a death certainty. All I read is no cure and short life span. 3-5...
    jojosig jojosig 46-50, F Jan 28

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    I have had scleroderma of the esophagus for @ years now. I have woken up on respirators more than once. Now I have been told its in my lungs. I have Lupus and CREST. I feel like I...
    jojosig jojosig 46-50, F Jan 28

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    New low: as some of my friends may know, I was violently abused, raped and borderline tortured my my stepmother and stepsister following my fathers passing, and I left when I was...
    Nihl Nihl 18-21, M 1 Response Jan 26

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    My 10yo son has a missing right pec muscle, but no other symptoms of Poland. He's very sporty and it has made no difference to what he can do, in fact he has developed a huge...
    TKDmum TKDmum 41-45, F Jan 26

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    I have had this for at least two years. Always had insomnia and higher than average need for sleep, but when I started drinking I began to sleep later to avoid the hangovers. Add...
    tophertime22 tophertime22 18-21, M Jan 25

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    My name is Kristen Phelan and I'm a casting director working with Watercooler Casting. We are currently in development of a new TV project that is looking to document and bring...
    thekp129 thekp129 41-45, F Jan 25

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    I was born with it. This disorder has really changed my life. All my symptoms of it: ----I tend to be socially anxious at times, not know what to say, I am not very good at...
    RainbowBlaze RainbowBlaze 13-15 2 Responses Jan 25

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    Update on my pica syndrome. I have been clean for 6 months now and it's was very difficult for the first couple of months, but now the only time I crave uneatable things is when it...
    666x1 666x1 16-17, F Jan 23

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    Hello! I have Goldenhar but unfortunately my parents were told I had congenital atresia and microtia. After 14 surgeries as a baby, child, teenager and recently as an adult, I can...
    khaireng khaireng 36-40, F Jan 22

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    You know it doesn't matter if your a straight A student, never cause any problems, on a scholarship offering/grand champion team.... Your still less wanted... And can't get what...
    Norial Norial 13-15, F Jan 22

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    Ive had pica for about 8 years but it's been on and off. It started when I was 8 and was going through abuse.I smelled toilet paper in the cupboard and was immediately attracted to...
    Savannah98 Savannah98 16-17, F 1 Response Jan 20

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    But this isn't about me feeling sorry for myself because of it. It's just that often times I feel very lonely, and I sometimes wonder why it's been so hard for me to make lasting...
    TeacupCat TeacupCat 16-17, F Jan 19

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    I would love to hear from someone who has had a similar story and a positive outcome! My doctor was not really forthcoming with information, and to be fair, I had so many...
    3Es1A 3Es1A 31-35, F Jan 19

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