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I Have Adams Oliver Syndrome

A Adams Oliver Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Adams Oliver Syndrome. You're not alone. 10 People

    AOS

    www.aosupport.org/anouk.htm
    Anouk021008 Anouk021008 26-30 1 Response Aug 16, 2009

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    My Daughter Has Adams Oliver Syndrome...only One In the U.s.a?

    Yesterday, my 6 week old baby girl and I went to the hospital for more testing. She has a bald scar on the top of her head that no one could identify. Also the Doctors were curious about her Tiny toes and short fingers.  Her doctor called and said they might know what is the...
    taylorisabellasumner taylorisabellasumner 26-30 10 Responses Apr 26, 2008

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    Hi There

    hi there i am a female born with adams oliver syndrome 46 years ago now lives in calgary alberta canada
    bg454 bg454 46-50, F Feb 23, 2013

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    The Search Is Over

    I have been finding ways to find people that have a similar condition as I have.  I am 37 years old and it was just yesterday that I dedicated a whole day at searching over the net for images and facts about my disability.   It's either  Adams Oliver Syndrome or Amniotic Band...
    tatz tatz 36-40 Oct 8, 2011

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    Related Experiences

    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 1 Response 6 hrs ago

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    All my life, I’ve felt different, like I just don’t quite belong in any group that I’m a part of. Trying to fit in has led to me to trouble. I’ve drank heavily, smoked weed...
    empoweredh22 empoweredh22 22-25, M 1 Response Aug 16

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    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

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    I have been diagnosed with Asperger syndrome. Sometimes it just seems like it doesn't fit at all except the unsocial part as most of my routines has fallen apart well I guess this...
    Joiss Joiss 18-21, M 1 Response Aug 10

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    I actually don't know for sure if I have Sjogren's; my second appt with the rheumy isn't until the 19th. I've had horrible dry mouth, throat, eyes, etc., for a while now (3+yrs). I...
    Notasouthernbelle Notasouthernbelle 36-40, F 3 Responses Aug 6

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    Calling all women with POS!!! I haven't had a period in a year. The past week or so I have been lightly spotting with severe cramps. Yet still no period! Has this happened to...
    TheUnpredictable9 TheUnpredictable9 18-21, F Aug 11

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    I have had raynauds since at least 4 years old, but I didn't know what it was until about 13yrs old. This disease has been so frustrating because I feel like nobody understands it...
    allisondela allisondela 18-21, F Aug 14

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    My doctor put me on levelen and told me to skip the white pills, so that I wouldn't ovulate. She told me to take the while pills once every six months to allow my body to keep...
    ChloeMaay ChloeMaay 18-21, F Aug 16

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    https://www.kickstarter.com/projects/2084036675/artistic-autistic-awareness?ref=email My Kickstarter application is finally live. I have autism and I find the preconceptions...
    TheNakedPoet TheNakedPoet 41-45, M Aug 18

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    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 2 Responses Aug 20

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    I have had RLS for about 5 years. It started after I tore my hamstring from my sits bone. At first it was constant. I couldn't sleep, I couldn't stand in one place for long or...
    debbiedee623 debbiedee623 51-55, F 1 Response 4 days ago

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    I am always looking for ways to meet up with other people who have aspergers in public sessions but here in Cheshire the only options are specialist social events such as the...
    gc12091985 gc12091985 26-30, M 2 Responses 2 days ago

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    I was diagnosed at 27 due to tadpole pupil episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new...
    telltalelemon telltalelemon 31-35, F Jul 29

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    I was at this 12½ year wedding day anniversary today. Way to many people. Couldn't focus on anything. Too much noise. And my phone died after the first 4 hours, but I was there...
    leejoonnieoppa leejoonnieoppa 18-21, F 6 Responses Aug 2

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    Do any of you keep like dairy/journal
    shadowfluffy6 shadowfluffy6 18-21, F 2 Responses Aug 16

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    I'm quite shy and have Asperger's syndrome, and I desperately want to find someone who loves me for who I am. I doubt it'll be easy, but I hope I find them someday.
    Juri17 Juri17 16-17, F 1 Response Aug 5

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    Please help! Could someone clarify whether my symptoms could be endometriosis? I have been ill for over a year now and though many other conditions have been ruled out by my GP, a...
    NattieC NattieC 22-25, F 4 days ago

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    I'm on hols in camp near Studland an its night time so I was getting ready for bedness an I only went to clean my teeth buh there was a fly on the mirror so I had a chat with him...
    hanntiger1 hanntiger1 18-21, F 1 Response Aug 11

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    I am 13 years old. My life has been all messed up because of aspergers syndrome. Aspergers syndrome is incurable. I dont like being bullied by anyone and if people bully me to my...
    Konerko555 Konerko555 13-15, M 8 Responses Aug 2

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     I don't actually have Aspergers Syndrome myself(that I am aware of). I am posting this story becauseI would like...
    Jugemu Jugemu 31-35, M Aug 3

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    This guy.. Why haven't I met anyone like this?!? Oliver Sykes is just perfect ^_^
    marvelherogirl marvelherogirl 13-15, F 2 Responses 3 days ago

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    In April 2012 I was officially diagnosed w/POTS Syndrome after several months of symptoms of worsening symptoms. I was one of the fortunate few who came across a neurologist at the...
    Jill73 Jill73 41-45, F Aug 6

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    This turned out to generally be a perfect final decision. I can't advise sufficient upgrading for the Select All Inclusive. The typical All Inclusive about the Island was good...
    Wendigmn Wendigmn 31-35, M 1 Response 6 days ago

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    Having Aspergers Syndrome is quite challenging for me. I have always felt like a ghost or a being living in another world in high school. Because of my particular interests, I have...
    loveVictorandDumas loveVictorandDumas 16-17, F 1 Response a week ago

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    I'm 18 and every time I look at myself in my bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my...
    ardorzie ardorzie 18-21, F 1 Response 6 days ago

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    Just recently I began researching on middle child traits. I've found out that middle child syndrome is very real and it's not only me who suffers from it. Growing up, I have...
    123eat 123eat 22-25, F 1 Response 5 days ago

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    I have started a new tech blog for any techy geeks not got a lot of views really so the more the better and hopefully will get more with time feel free to visit it at http...
    adamridges adamridges 18-21, M Aug 17

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    My nightmare was it was Gore In it I had a sister who was with down syndrome . we are in the house , the bunkbed room off from that was a room that was supposed to be of a...
    Organia Organia 46-50, F Jul 30

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    I am named after a syndrome? Im special :] lol.
    xMikayla xMikayla 13-15, F 2 Responses Aug 12

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    After my first bad concussion I became much more susceptible to them. Post concussion syndrome is terrible.
    Kingshelman Kingshelman 31-35, M 2 Responses 4 days ago

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    I have had POTS as a definite diagnosis for two years now, however I have had it for many years. I am 18 now, an have recently graduated May 24, 2014. During my junior year of...
    TheForestChild TheForestChild 18-21, F 3 Responses Jul 29

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    Anybody who has POTS have photophobia (sensitivity to light)? Mine is really bad and worsening. I don't know if it's another symptom of POTS or should I get checked out
    december789 december789 16-17, F 3 Responses Jul 30

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    After a childhood filled with severe pain, day after day in bed..... countless visits to Hospitals...Mri scans...specialist appointments which amounted to nothing, no one could pin...
    thedayyouwentaway thedayyouwentaway 36-40, M 2 Responses Jul 31

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    I'm beginning to think I have it. I've been craving nail polish lately. I love the smell of it. And now I want to taste it. I don't get why I suddenly got this craving, but it's...
    oathtoorder oathtoorder 18-21, F Aug 1

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    Do anybody have worse symptoms POTS at night.. I how 5 time harder symptom of POTS at night. How evening is coming my symptoms are getting much worsen. How day is ending my blood...
    Drybrain Drybrain 26-30, M 1 Response Aug 3

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    I have wasting syndrome and dementia but I'm currently taking medications for it and hopefully it helps me a bit so I won't have any of it anymore. & Yes it sucks a whole lot and I...
    jacedrew jacedrew 16-17, M 7 Responses Aug 3

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    Two days ago my 20 yr old son(my youngest)told me he was going to become a father, this I told no one( at my sons request) today my 24 yr old son ( eldest) told me he was going to...
    Memamsdaughter Memamsdaughter 36-40 1 Response Aug 3

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    In 2009 I was diagnosed with pandysautonomia - POTS after getting ill from having a flu shot. It has completely taken everything away from me. I have had problems with my blood...
    Buffy2014 Buffy2014 31-35, F 1 Response Aug 5

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    I have a 7 yr old adopted daughter that I'm very concerned about. She and her twin sister were abandoned at the hospital, born 3 mos. premature, and positive for methamphetamine...
    mama27kidz mama27kidz 56-60, F Aug 5

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    Hi all! I too have Pica. It all started wen i was at college. My frnds used to eat small pieces of slate pencil. And one day i too tasted them and liked them from then. I was...
    CuteCat21 CuteCat21 18-21, F Aug 7

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    I have suffered from pica since i can remember. REMEMBER IT IS AN EATING DISORDER AND YOU SHOULD GET HELP. It started in primary school eating pencils and the grit off the pavement...
    xsamanthaclaire xsamanthaclaire 18-21, F 1 Response Aug 8

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    Hello I am 14 and I've had POTS since I was 10. It's been really hard for me and no one really understands what I'm going through. My friends and family try and help but they don't...
    TavynSantee TavynSantee 13-15 2 Responses Aug 8

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    Hey to all the young potsies out there struggling thru this as I am still.....seriously I just want you to know that you're not in this alone. And whenever you start to feel that...
    Ktglisson87 Ktglisson87 26-30, F 2 Responses Aug 9

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