I Have Addison's Disease

A Addison's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Addison's Disease. You're not alone. 185 People

    My Story Living With Addisons

    Hello i was diagnosed at the age of 15 and I'm now 42.all the symtoms started at age 12.Untill new years eve  1983 i was taking to the DR. he thought I was dying and had very little time.The Dr. then called the ambulance and rushed me to the hospital.It took a Dr.that the...
    bones30 bones30
    1 Response Oct 17, 2010

    Addison's Disease..

    My Name is Savanah. I suffered from Addison's Disease just as many of you did. I first started getting sick in January 2013. I thought I had a virus, and nothing more. As my sickness continued I got really worried. I figured I had Leukemia or gallbladder disease. That really...
    Savanah2 Savanah2
    18-21, F
    2 Responses Apr 5, 2013

    Feeling Great

    I was diagnosed with Addisons Disease early summer of 8th grade, 8 years ago roughly After a trip to Mexico, i was feeling bad out of no where, beyond usual, really fatigued which was unusual because i had been playing soccer competively for a while. I was also really dark too...
    TP1010 TP1010
    18-21, M
    1 Response Feb 25, 2011

    822 Acth Level

    restrictions restrictions
    Oct 11, 2012

    Going Out With Addison'S

    So I have come to realize that I can't be like most people my own age due to Addison's. I really want to go out and have fun but unfortunately I can't I'm very afraid to go get my birthday tattoo but I don't know what will happen. I got diagnosed with Addison's after I had my...
    Sydngrey20 Sydngrey20
    26-30, F
    5 Responses Apr 11, 2013

    I Have Addison's And It Scares Me.

    I never even heard of Addison's Disease until I was diagnosed with it on March 19, 2012. My name is Jessy and I am 19; I am also the only person I know with Addison's Disease. This started about the beginning of March when I was hit with what I thought was the flu. After being...
    Jessyfinlayson Jessyfinlayson
    18-21, F
    3 Responses Mar 30, 2012

    My Cheap Therapy: Writing About My Addison's Experiences

    After nearly 15 years with Addison's, I decided it was time to talk about it. My blog now has a fair amount of content, including posts about what I've gone through, how I've managed it and some "how to's" for those learning about the disease. Comments are always appreciated...
    ValentineMichaelSmith ValentineMichaelSmith
    Aug 13, 2013

    Pregnancy With Addison's Disease

    I became pregnant at 30 and had been diagnosed with Addison's Disease about 10 years prior. It had been a long road finding a diagnosis and had several miscarriages trying to get pregnant. I am now thinking about trying to have another child, but know there will be challenges...
    Popcorn25 Popcorn25
    1 Response Jul 24, 2013

    Sometimes A Mother Has To Play Hardball!!

    My son had been treated for reflux since birth. He had tried many different medications to help relieve his symptoms. I knew something else was wrong with my son. Call it mothers intuition..but I just didnt except the diagnosis. He was throwing up after every meal and drink he...
    Prestosmom Prestosmom
    Oct 30, 2012

    My name is Tiffany and I'm a 34 year old mother

    of two. I was diagnosed with Adrenal Insufficiency last year, May 2013. Mine was caused by an emergency Hysterectomy just six months after my second c-section. I was also marathon training in between the two surgeries and it send my adrenals into failure. I am still in denial a...
    tap1979 tap1979
    36-40, F
    3 Responses Mar 13, 2014

    Depression With Addisions Disease

    I am taking hydrocortisone, have gained a lot of weight and now have a problem with anxiety and depression. My doctor wants to put me on Zoloft. I am concerned with the affects it will have on me with this condition. Has anyone tried it?
    Marlys Marlys
    4 Responses Nov 22, 2012

    Hi everyone! My names Karen,

    and I was diagnosed with primary Addison's Disease when I was just 17. I had been sick for years, off and on, starting at age 11. It may not seem like a very long time, but when your a kid it seemed like forever. For me it started off with allergies. My parent's use to take me...
    lopingdeer lopingdeer
    61-65, F
    3 Responses Feb 10, 2014

    It's Not That Bad Is It ???

    Blimey, it sounds like some of you are really struggling with Addisons disease. I've had AD for about 16 years now and came onto this site to get some advice on changing my dosage from time to time but it sounds like I have absolutely no problems compared to some of you guys...
    Jjg123 Jjg123
    3 Responses Aug 22, 2011

    I Was Only Seventeen When I Was Diagnosed With Addison's.

     I had been sick on and off since I was eleven. For me it started with hives. I ended up taking allergy shots for three years. I later had a crisis, not knowing what it was. I was in a coma for four days. Then I was dxed to have Meningitis, and Encephalitis. The days before...
    lopingdeer lopingdeer
    61-65, F
    Nov 5, 2013

    Med Alert Hydrocortisone With "v" Do Not Use!

    Guys... There is a BAD BATCH OF Hydrocortisone going around. This is not a joke. Please read this letter I gave to my doctor. I ENCOURAGE ANYONE to call me if you think this is is BS. It is not. If you are feeling crappy while still taking your meds, this might be why...
    elbrown4183 elbrown4183
    Mar 1, 2013

    Worried! Confused!

    Hello I was diagnosed with adrenal fatigue by a natural therapist. I was told to exercise and watch my diet. now a year later and I'm nauseous of a night, have Brown pigmentation on my face, tummy troubles, feel low and lethargic is it my head going crazy? Or is my adrenal...
    renee77703 renee77703
    41-45, F
    3 Responses Sep 6, 2013

    New To The Board..... I Think I Have Addison's Disease.

    The first symptom (according to internet research i have done) started about 5 years ago. I started getting really sensitive to light. I ALWAYS have a pair of sunglasses on now. If not, i go around squinting everywhere. Night time driving is a real pain. I can hardly see the road...
    2 Responses Jan 16, 2011

    It Wasn't Toxic Shock Syndrome

    I was diagnosed in 1982,it was quite a journey and still is,in and out of the hospital quite a bit...several of other auto-immune diseases have joined Addisons to keep life interesting...The beginning..... I was found on the floor by my 3 year old..he woke up my husband (he...
    Barb82 Barb82
    51-55, F
    1 Response Aug 20, 2012

    I Am Living Proof That Addison's Can Be Cured - Completely!

    Hi, My name is Michelle and I was diagnosed with Addison's Disease in 2009. Prior to that, in 2006, I had been diagnosed with Adrenal Exhaustion and also Fibromyalgia, as well as PTSD, Depression, Anxiety, and Chronic Tendonitis in both of my arms. When my Endocrinologist got my...
    WholeStoryHealth WholeStoryHealth
    27 Responses Sep 10, 2012

    Mom of a Addisons Disease Seeks Help

    I have a 16 yr old daughter who has addisons just wondering if there is any one else that knows what Im going threw wanting to talk to any one with the same life as ours its scary and it would be nice to talk to someone other than to her dr my name is vivie please talk to me
    vivie vivie
    16 Responses Apr 14, 2009

    My Life As A Zombie: My Struggle With Addison'S Disease

    My tale starts 2 years ago. My husband asked for a divorce. Right then and there something went wrong with my body. Over a few months and years, I lost a lot of weight, was not hungry, and most importantly fatigued easily. December 2012, I went to my local ER. I was transferred...
    taramay09 taramay09
    31-35, F
    1 Response Apr 13, 2013

    My father has had Addison's disease

    for over 30 years now and has been doing great on cortisone but now he's been unable to get it. He's tried the prednisone but doesn't work as well and he starts getting sick. Just wondering if anyone else is having this problem.
    bocabchbum bocabchbum
    46-50, M
    Jan 18, 2014

    Adrenal Fatigue Concerns. Please Help!

    Hi, I'm Elizabeth. 36, dental assistant mother of one. I was diagnosed with Addison's disease when I was 15, later on in life (early 20's) I had a goiter and had it removed radioactively. I have been on .1 mg fluordrocortisone, .20 mg hydrocortisone for addisions since diagnosis...
    Faithiskey4me Faithiskey4me
    36-40, F
    3 Responses Sep 18, 2013


      i was diagnosed at age 7. it has been a terrible life wit this disease. my grandma and grandpa got me threw it. but now as i get older there are side affects of this disease. i have to be extremely careful, if i get the smallest cut it heals in a dark pigment. it...
    heffdizzo heffdizzo
    26-30, M
    5 Responses Jan 9, 2010

    Hello. I was diagnosed with A.

    D. 5 years ago, and 5 years before that I was diagnosed with Type 1 Diabetes. I am currently 20 weeks pregnant (and it has been terrible thus far!) I am extremely tired non-stop. All I want to do is sleep. Normal activities such as showering, picking up around the house & getting...
    jenyeaz jenyeaz
    26-30, F
    Jul 21, 2014

    Feeling Like I Could Sleep For Days

    I have addison's disease.  I was diagnosed 7 years ago.   I believe I was in crisis when I finally went to the doctor.  Although taking cortisone acetate 25 mg, I am still feeling VERY Weak.  I have very low blood pressure and feel dizzy everyday. ...
    schoolcounselor schoolcounselor
    41-45, F
    4 Responses Sep 4, 2009

    Reeling From Diagnosis

    I was diagnosed six months ago with hypothyroidism.  My endocrinologist spent nearly an hour carefully explaining what the disease is and how he would be treating me.  I left his office feeling very upbeat about my future.  Within one week, I was feeling great.  Then, about...
    Syvia Syvia
    4 Responses Jan 1, 2011

    What's Your Favorite Salty Addisonian Guilty Pleasure?

    Mines chicken broth with extra salt, onion powder, garlic salt, pepper, and seasoning, with parm reggiano cheese and noodles......or buttered popcorn with extra extra salt
    HealingTreeGirl HealingTreeGirl
    6 Responses Oct 13, 2012

    A Decade Of Addison's And Getting Better And Better

    It's obvious who I am because I made my user name my real name.  I have a blog and a forum if you care to find it.  I'm a 43 year old female who has been diagnosed with Addison's for a decade and hypothyroid for 5 years.  I have various other hormone deficiencies.I was sick...
    DustyHardman DustyHardman
    3 Responses Jan 23, 2012

    Lost My Happy Thought

    Hi I am Carrie and I was diagnosed with Addisons about a year and a half ago, but have been sick for at least 6 yrs prior. I now take Hydrocortisone 20 in the am and 10 in the pm, plus Spironolactone 100 milligrams twice a day for my Addisons. I feel better than I did, but not...
    abluelollypop abluelollypop
    5 Responses Nov 2, 2010

    I Have Addisons Disease

    I Have Addisons Disease sinc 2001 I was fall of life fall of joy after I had this disease it take my sole I fill am just body with no sole Am deeprest always not on the mood I wish my life get bake am still Straggling with a disease
    Uveuve Uveuve
    31-35, F
    Aug 31, 2012

    Dosage Dose-e-doe

    We were hoping for it to be just "Adrenal Fatigue". We tried to see if I had any function and if we could revive any function at all. I have spent years becoming more and more ill. I have seen more Dr.'s over the past 10yrs. While progressively getting worse. I was homeschooling...
    Plum4Got2 Plum4Got2
    46-50, F
    2 Responses May 17, 2013

    Acth Level Of 822

    my son is 30 yrs old. he is adrenal insufficient and hypothyroidism or schmidt's. he was forced into a mental hospital by having his labs ignored. what does an 822 ACTH level mean and how does it effect his body while everything is being masked by a psychotropic drug. please...
    farremoved farremoved
    Oct 12, 2012

    I Was Diagnosed With Addisons

    It all started in the early 2000’s. I was midway in the eighth grade and I had terrible stomach pains. I had been complaining with my stomach forever. I can’t remember what day it was but I was sent to the hospital to have my appendix removed. I was out of school for 2 weeks...
    gculbers gculbers
    Jan 30, 2012

    On Death's Doorstep (an Addison's Disease Survior Story)

    1994 started out fine for me but in August I found myself unable to hold any food down and I wound up in Shady Grove Hospital. After a couple of days they figured out that I was hypothyroid so they gave me some levothyroxine and sent me on my way. What I did not know was that...
    timbo17 timbo17
    41-45, M
    6 Responses Jul 9, 2011

    Near Death Till A Miracle Came In The Mail

    I Have Chronic Lymphatic Leukemia and while undergoing treatments, Cat scans and so on, I went into remission and still did not feel well. Everyone said it would take time, Chronic means it could come back or act up from time to time and you may never feel 100% again. I accepted...
    SandieMayNamaste SandieMayNamaste
    61-65, F
    Sep 22, 2013

    To All Addsison Sufferers

    My name is Dan and I live in NY. About 8 years ago I was diagnosed with Hashimoto's disease (Hypothyroidism) but despite the medication I never really felt myself. Cut to 5 years later and an apendicitis I felt worse than ever. I actualy thought I must have had cancer! My two...
    NYDanny NYDanny
    41-45, M
    8 Responses Nov 21, 2010

    Addison's And Summertime Heat

    Hi, My 24 year old daughter has Addison's and is going into her 4th summer with the disease.We are looking for practical advice on how to handle hot summer days.  Medication doses are always increased during the summer months, but they only do so much. Her response to heat...
    mooreki mooreki
    4 Responses May 5, 2012

    Only 12 Years Old

    I was diagnosed with Addison's in the December of 2012, I was extremely sick, my family never got to celebrate my birthday or Christmas! I had so many shots that it filled over three tissue boxes! Doctors were trying to figure out what was wrong,I was in the ICU for four days. My...
    savannah309 savannah309
    Mar 24, 2013

    No Problems With My Addison's....

    Hi! I have had Addison's disease for 16 years now (diagnosed when I was 10). I was very sick for several months before the doctors finally were able to diagnose Me. Every day since then has been great! I did have to see a few different Endocrinologists before I found one who...
    srbj srbj
    26-30, F
    4 Responses Jan 31, 2011

    Eric Brown - First Time Here.

    In 1997, I was officially diagnosed with Addison's. I was serving in the AirForce in Tampa Florida. Seven of our shop members including myself were taken ill after a faulty batch of Gatorade (It is very hot there on the flight line) made us all extremely ill with stomach...
    elbrown4183 elbrown4183
    1 Response Mar 1, 2013

    Finding Others Like Me...

    I have had type one diabetes since I was 6 years old. At age 28 after a very lengthy illness I was finally diagnosed with hypothyroidism and waited for the synthroid to work. My mom was taking care of a very sick daughter and taking care of my 2 year old. I would have just laid...
    staceylee123 staceylee123
    41-45, F
    Jan 20, 2013

    Diagnosed 3 Years Ago But Have I Really Got Addisons

    31 year old, mother of 3 Was originally diagnosed as borderline Currently taking hydrocortisone and fludricortisone Continually hitting the wall, total stress attacks, think I shouldn't be taking my meds cuz when I take more my stress levels get worse Need someone to help me...
    T1nah T1nah
    2 Responses Dec 8, 2012

    Anyone With Addisons Disease And Pernicious Anemia Out There?

    I have pernicious anemia, and also rheumatoid arthritis, both autoimmune diseases.  I was wondering if anyone else out there with Addisons also has either Pernicious anemia (aka: Addisons Anemia) or rheumatoid arthritis.  I just can't seem to shake the fatigue, muscle weakness...
    leekate leekate
    4 Responses Jun 1, 2011

    I Was Diagnosed With Schmidts Disease(addison's And Hashimotos)

    Hello. I was diagnosed with schmidts disease over 6 months ago. I have been seeing an endocrinologist for it. Sometimes I feel like I am stumbling along in the dark. Is an endocrinologist the right doctor to see? I do not feel like he is helping me much. I am not sure if it is me...
    laketitloe laketitloe
    41-45, F
    2 Responses Nov 24, 2011

    Am I The Only One?

    I have addison's disease and was diagnosed about a year and a half ago. I feel tired, dizzy, sick or achey almost more than I feel good. Especially in the evenings. My question is, is this normal? I thought with addison's I would take the medicine and live a perfectly normal life...
    lesliecoffee37 lesliecoffee37
    3 Responses Nov 27, 2011

    When Life Does Not Go As You Plan It...

    I am a fitness enthusiast who was teaching aerobics part time working in another full-time job in the mental health field, am a single mom raising two kids and 3 months ago my fast paced lifestyle reached a halt when I was diagnosed with Addison's disease.  It is hard for...
    youthamber youthamber
    8 Responses Oct 21, 2010

    Just Got Diagnosed With Addison's Disease

    I had been bone-tired for months and sought my regular doctor out to find answers. The only thing that came up was low sodium, but it has always been low (at least 10 years). She ran tests and more tests and finally sent me for cortisol stimulation test. Then sent me to a...
    tcline tcline
    46-50, F
    5 Responses Jul 29, 2013

    F'N Adrenals - An Ex Adrenaline Junkie'S Tale

    In 2000, at at 25, I started to get very sick. My doctor told me I was just tired and stressed. I rested. I took a vacation. But still I wasted away. Eventually I was bed-ridden, unable to do the basics of life. After over a year, I was finally diagnosed with Addison’s...
    ValentineMichaelSmith ValentineMichaelSmith
    1 Response Jun 25, 2013

    Waiting For Results

    Hello, folks. I was recently seen at Mayo Clinic for a ACTH Stim test. I am able to see my results online but my doc is out of town until next week. I have mixed emotions about what I will find out. To be diagnosed with Addison's would certainly explain some symptoms, but I know...
    nickig73 nickig73
    1 Response Jan 31, 2013

    At The End Of My Rope...

    Hi everyone. I am sorry you guys are going through this, but it's nice to know that we are not alone. I am 33 years old, and the last eighteen years of my life have been a ride. I have always been sick, and I catch everything that goes around. Since I was a teenager I have been...
    MBattle MBattle
    4 Responses Jul 31, 2011

    Addison's Disease And Pregnancy

    Hello everybody! My name is Torey and I was diagnosed with Addison's Disease when I was 22, 4 years ago. My question is for all the women out there who have AD and have also been through a pregnancy. I am currently 22 weeks and everything looks great and healthy with the baby. I...
    Toreylynn3987 Toreylynn3987
    1 Response Aug 12, 2013
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