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I Have Addison's Disease

A Addison's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Addison's Disease. You're not alone. 171 People

    When Life Does Not Go As You Plan It...

    I am a fitness enthusiast who was teaching aerobics part time working in another full-time job in the mental health field, am a single mom raising two kids and 3 months ago my fast paced lifestyle reached a halt when I was diagnosed with Addison's disease.  It is hard for...
    youthamber youthamber 31-35 8 Responses Oct 21, 2010

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    Only 12 Years Old

    I was diagnosed with Addison's in the December of 2012, I was extremely sick, my family never got to celebrate my birthday or Christmas! I had so many shots that it filled over three tissue boxes! Doctors were trying to figure out what was wrong,I was in the ICU for four days. My...
    savannah309 savannah309 31-35 Mar 24, 2013

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    Waiting For Results

    Hello, folks. I was recently seen at Mayo Clinic for a ACTH Stim test. I am able to see my results online but my doc is out of town until next week. I have mixed emotions about what I will find out. To be diagnosed with Addison's would certainly explain some symptoms, but I know...
    nickig73 nickig73 41-45 1 Response Jan 31, 2013

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    Lost My Happy Thought

    Hi I am Carrie and I was diagnosed with Addisons about a year and a half ago, but have been sick for at least 6 yrs prior. I now take Hydrocortisone 20 in the am and 10 in the pm, plus Spironolactone 100 milligrams twice a day for my Addisons. I feel better than I did, but not...
    abluelollypop abluelollypop 36-40 5 Responses Nov 2, 2010

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    Addsions

      i was diagnosed at age 7. it has been a terrible life wit this disease. my grandma and grandpa got me threw it. but now as i get older there are side affects of this disease. i have to be extremely careful, if i get the smallest cut it heals in a dark pigment. it...
    heffdizzo heffdizzo 26-30, M 5 Responses Jan 9, 2010

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    I Know I Have Addisons,but Cannot Get Doctor To Test Me In Uk

    hi everyone,my name is tabbi,i am 42 years old,i have been on armour thyroid for 11 years,for autoimmune hypothyroidism,since june this year i have had several attacks of what can only be discribbed as addisons crisis,but no doctor here knows how to test for it,or is willing to...
    tabbipearl tabbipearl 41-45 3 Responses Sep 26, 2010

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    Addison's And Summertime Heat

    Hi, My 24 year old daughter has Addison's and is going into her 4th summer with the disease.We are looking for practical advice on how to handle hot summer days.  Medication doses are always increased during the summer months, but they only do so much. Her response to heat...
    mooreki mooreki 46-50 4 Responses May 5, 2012

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    Reeling From Diagnosis

    I was diagnosed six months ago with hypothyroidism.  My endocrinologist spent nearly an hour carefully explaining what the disease is and how he would be treating me.  I left his office feeling very upbeat about my future.  Within one week, I was feeling great.  Then, about...
    Syvia Syvia 51-55 4 Responses Jan 1, 2011

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    Feeling Like I Could Sleep For Days

    I have addison's disease.  I was diagnosed 7 years ago.   I believe I was in crisis when I finally went to the doctor.  Although taking cortisone acetate 25 mg, I am still feeling VERY Weak.  I have very low blood pressure and feel dizzy everyday. ...
    schoolcounselor schoolcounselor 41-45, F 2 Responses Sep 4, 2009

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    Worried! Confused!

    Hello I was diagnosed with adrenal fatigue by a natural therapist. I was told to exercise and watch my diet. now a year later and I'm nauseous of a night, have Brown pigmentation on my face, tummy troubles, feel low and lethargic is it my head going crazy? Or is my adrenal...
    renee77703 renee77703 36-40, F 3 Responses Sep 6, 2013

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    Addison's Disease..

    My Name is Savanah. I suffered from Addison's Disease just as many of you did. I first started getting sick in January 2013. I thought I had a virus, and nothing more. As my sickness continued I got really worried. I figured I had Leukemia or gallbladder disease. That really...
    Savanah2 Savanah2 16-17, F 1 Response Apr 5, 2013

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    Adrenal Fatigue Concerns. Please Help!

    Hi, I'm Elizabeth. 36, dental assistant mother of one. I was diagnosed with Addison's disease when I was 15, later on in life (early 20's) I had a goiter and had it removed radioactively. I have been on .1 mg fluordrocortisone, .20 mg hydrocortisone for addisions since diagnosis...
    Faithiskey4me Faithiskey4me 36-40, F 3 Responses Sep 18, 2013

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    My name is Tiffany and I'm a 34 year old mother

    of two. I was diagnosed with Adrenal Insufficiency last year, May 2013. Mine was caused by an emergency Hysterectomy just six months after my second c-section. I was also marathon training in between the two surgeries and it send my adrenals into failure. I am still in denial a...
    tap1979 tap1979 31-35, F 1 Response Mar 13

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    My Story Living With Addisons

    Hello i was diagnosed at the age of 15 and I'm now 42.all the symtoms started at age 12.Untill new years eve  1983 i was taking to the DR. he thought I was dying and had very little time.The Dr. then called the ambulance and rushed me to the hospital.It took a Dr.that the...
    bones30 bones30 41-45 1 Response Oct 17, 2010

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    Diagnosed 3 Years Ago But Have I Really Got Addisons

    31 year old, mother of 3 Was originally diagnosed as borderline Currently taking hydrocortisone and fludricortisone Continually hitting the wall, total stress attacks, think I shouldn't be taking my meds cuz when I take more my stress levels get worse Need someone to help me...
    T1nah T1nah 31-35 2 Responses Dec 8, 2012

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    Med Alert Hydrocortisone With "v" Do Not Use!

    Guys... There is a BAD BATCH OF Hydrocortisone going around. This is not a joke. Please read this letter I gave to my doctor. I ENCOURAGE ANYONE to call me if you think this is is BS. It is not. If you are feeling crappy while still taking your meds, this might be why...
    elbrown4183 elbrown4183 46-50 Mar 1, 2013

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    Hello. I was diagnosed with A.

    D. 5 years ago, and 5 years before that I was diagnosed with Type 1 Diabetes. I am currently 20 weeks pregnant (and it has been terrible thus far!) I am extremely tired non-stop. All I want to do is sleep. Normal activities such as showering, picking up around the house & getting...
    jenyeaz jenyeaz 22-25, F Jul 21

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    Am I The Only One?

    I have addison's disease and was diagnosed about a year and a half ago. I feel tired, dizzy, sick or achey almost more than I feel good. Especially in the evenings. My question is, is this normal? I thought with addison's I would take the medicine and live a perfectly normal life...
    lesliecoffee37 lesliecoffee37 36-40 3 Responses Nov 27, 2011

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    It Wasn't Toxic Shock Syndrome

    I was diagnosed in 1982,it was quite a journey and still is,in and out of the hospital quite a bit...several of other auto-immune diseases have joined Addisons to keep life interesting...The beginning..... I was found on the floor by my 3 year old..he woke up my husband (he...
    Barb82 Barb82 51-55, F 1 Response Aug 20, 2012

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    To All Addsison Sufferers

    My name is Dan and I live in NY. About 8 years ago I was diagnosed with Hashimoto's disease (Hypothyroidism) but despite the medication I never really felt myself. Cut to 5 years later and an apendicitis I felt worse than ever. I actualy thought I must have had cancer! My two...
    NYDanny NYDanny 41-45, M 6 Responses Nov 21, 2010

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    F'N Adrenals - An Ex Adrenaline Junkie'S Tale

    In 2000, at at 25, I started to get very sick. My doctor told me I was just tired and stressed. I rested. I took a vacation. But still I wasted away. Eventually I was bed-ridden, unable to do the basics of life. After over a year, I was finally diagnosed with Addison’s...
    ValentineMichaelSmith ValentineMichaelSmith 36-40 1 Response Jun 25, 2013

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    Going Out With Addison'S

    So I have come to realize that I can't be like most people my own age due to Addison's. I really want to go out and have fun but unfortunately I can't I'm very afraid to go get my birthday tattoo but I don't know what will happen. I got diagnosed with Addison's after I had my...
    Sydngrey20 Sydngrey20 22-25, F 5 Responses Apr 11, 2013

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    Depression With Addisions Disease

    I am taking hydrocortisone, have gained a lot of weight and now have a problem with anxiety and depression. My doctor wants to put me on Zoloft. I am concerned with the affects it will have on me with this condition. Has anyone tried it?
    Marlys Marlys 70+ 4 Responses Nov 22, 2012

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    I Have Addisons Disease

    I Have Addisons Disease sinc 2001 I was fall of life fall of joy after I had this disease it take my sole I fill am just body with no sole Am deeprest always not on the mood I wish my life get bake am still Straggling with a disease
    Uveuve Uveuve 31-35, F Aug 31, 2012

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    Eric Brown - First Time Here.

    In 1997, I was officially diagnosed with Addison's. I was serving in the AirForce in Tampa Florida. Seven of our shop members including myself were taken ill after a faulty batch of Gatorade (It is very hot there on the flight line) made us all extremely ill with stomach...
    elbrown4183 elbrown4183 46-50 1 Response Mar 1, 2013

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    At The End Of My Rope...

    Hi everyone. I am sorry you guys are going through this, but it's nice to know that we are not alone. I am 33 years old, and the last eighteen years of my life have been a ride. I have always been sick, and I catch everything that goes around. Since I was a teenager I have been...
    MBattle MBattle 31-35 4 Responses Jul 31, 2011

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    I Am Living Proof That Addison's Can Be Cured - Completely!

    Hi, My name is Michelle and I was diagnosed with Addison's Disease in 2009. Prior to that, in 2006, I had been diagnosed with Adrenal Exhaustion and also Fibromyalgia, as well as PTSD, Depression, Anxiety, and Chronic Tendonitis in both of my arms. When my Endocrinologist got my...
    WholeStoryHealth WholeStoryHealth 41-45 11 Responses Sep 10, 2012

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    Mom of a Addisons Disease Seeks Help

    I have a 16 yr old daughter who has addisons just wondering if there is any one else that knows what Im going threw wanting to talk to any one with the same life as ours its scary and it would be nice to talk to someone other than to her dr my name is vivie please talk to me
    vivie vivie 41-45 16 Responses Apr 14, 2009

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    Sometimes A Mother Has To Play Hardball!!

    My son had been treated for reflux since birth. He had tried many different medications to help relieve his symptoms. I knew something else was wrong with my son. Call it mothers intuition..but I just didnt except the diagnosis. He was throwing up after every meal and drink he...
    Prestosmom Prestosmom 31-35 Oct 30, 2012

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    Just Got Diagnosed With Addison's Disease

    I had been bone-tired for months and sought my regular doctor out to find answers. The only thing that came up was low sodium, but it has always been low (at least 10 years). She ran tests and more tests and finally sent me for cortisol stimulation test. Then sent me to a...
    tcline tcline 41-45, F 5 Responses Jul 29, 2013

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    Feeling Like I Could Sleep For Days

    I have addison's disease.  I was diagnosed 7 years ago.   I believe I was in crisis when I finally went to the doctor.  Although taking cortisone acetate 25 mg, I am still feeling VERY Weak.  I have very low blood pressure and feel dizzy everyday. ...
    schoolcounselor schoolcounselor 41-45, F 4 Responses Sep 4, 2009

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    No Problems With My Addison's....

    Hi! I have had Addison's disease for 16 years now (diagnosed when I was 10). I was very sick for several months before the doctors finally were able to diagnose Me. Every day since then has been great! I did have to see a few different Endocrinologists before I found one who...
    srbj srbj 26-30, F 4 Responses Jan 31, 2011

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    Mam, Thrown Into Addisons By An Operation

    Hi im new here so ill tell u a litle about myself, i went into hospital june 17th this year for an operation to have both adrenal glands removed for a condition called phaeochromacytoma, i was told this operation would improve my life, then to be told oh u now have addisons...
    haloring haloring 46-50, F 5 Responses Jul 1, 2009

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    Finding Others Like Me...

    I have had type one diabetes since I was 6 years old. At age 28 after a very lengthy illness I was finally diagnosed with hypothyroidism and waited for the synthroid to work. My mom was taking care of a very sick daughter and taking care of my 2 year old. I would have just laid...
    staceylee123 staceylee123 41-45, F Jan 20, 2013

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    Near Death Till A Miracle Came In The Mail

    I Have Chronic Lymphatic Leukemia and while undergoing treatments, Cat scans and so on, I went into remission and still did not feel well. Everyone said it would take time, Chronic means it could come back or act up from time to time and you may never feel 100% again. I accepted...
    SandieMayNamaste SandieMayNamaste 56-60, F Sep 22, 2013

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    New To The Board..... I Think I Have Addison's Disease.

    The first symptom (according to internet research i have done) started about 5 years ago. I started getting really sensitive to light. I ALWAYS have a pair of sunglasses on now. If not, i go around squinting everywhere. Night time driving is a real pain. I can hardly see the road...
    BRATHERBEHUNTING BRATHERBEHUNTING 31-35 2 Responses Jan 16, 2011

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    I Was Only Seventeen When I Was Diagnosed With Addison's.

     I had been sick on and off since I was eleven. For me it started with hives. I ended up taking allergy shots for three years. I later had a crisis, not knowing what it was. I was in a coma for four days. Then I was dxed to have Meningitis, and Encephalitis. The days before...
    lopingdeer lopingdeer 56-60, F Nov 5, 2013

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    My Cheap Therapy: Writing About My Addison's Experiences

    After nearly 15 years with Addison's, I decided it was time to talk about it. My blog now has a fair amount of content, including posts about what I've gone through, how I've managed it and some "how to's" for those learning about the disease. Comments are always appreciated...
    ValentineMichaelSmith ValentineMichaelSmith 36-40 Aug 13, 2013

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    I Was Diagnosed With Addisons

    It all started in the early 2000’s. I was midway in the eighth grade and I had terrible stomach pains. I had been complaining with my stomach forever. I can’t remember what day it was but I was sent to the hospital to have my appendix removed. I was out of school for 2 weeks...
    gculbers gculbers 22-25 Jan 30, 2012

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    Pregnancy With Addison's Disease

    I became pregnant at 30 and had been diagnosed with Addison's Disease about 10 years prior. It had been a long road finding a diagnosis and had several miscarriages trying to get pregnant. I am now thinking about trying to have another child, but know there will be challenges...
    Popcorn25 Popcorn25 31-35 1 Response Jul 24, 2013

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    I Was Diagnosed With Schmidts Disease(addison's And Hashimotos)

    Hello. I was diagnosed with schmidts disease over 6 months ago. I have been seeing an endocrinologist for it. Sometimes I feel like I am stumbling along in the dark. Is an endocrinologist the right doctor to see? I do not feel like he is helping me much. I am not sure if it is me...
    laketitloe laketitloe 41-45, F 2 Responses Nov 24, 2011

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    My father has had Addison's disease

    for over 30 years now and has been doing great on cortisone but now he's been unable to get it. He's tried the prednisone but doesn't work as well and he starts getting sick. Just wondering if anyone else is having this problem.
    bocabchbum bocabchbum 41-45, M Jan 18

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    A Decade Of Addison's And Getting Better And Better

    It's obvious who I am because I made my user name my real name.  I have a blog and a forum if you care to find it.  I'm a 43 year old female who has been diagnosed with Addison's for a decade and hypothyroid for 5 years.  I have various other hormone deficiencies.I was sick...
    DustyHardman DustyHardman 41-45 3 Responses Jan 23, 2012

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    I Have Addison's And It Scares Me.

    I never even heard of Addison's Disease until I was diagnosed with it on March 19, 2012. My name is Jessy and I am 19; I am also the only person I know with Addison's Disease. This started about the beginning of March when I was hit with what I thought was the flu. After being...
    Jessyfinlayson Jessyfinlayson 18-21, F 3 Responses Mar 30, 2012

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    Anyone With Addisons Disease And Pernicious Anemia Out There?

    I have pernicious anemia, and also rheumatoid arthritis, both autoimmune diseases.  I was wondering if anyone else out there with Addisons also has either Pernicious anemia (aka: Addisons Anemia) or rheumatoid arthritis.  I just can't seem to shake the fatigue, muscle weakness...
    leekate leekate 26-30 4 Responses Jun 1, 2011

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    Acth Level Of 822

    my son is 30 yrs old. he is adrenal insufficient and hypothyroidism or schmidt's. he was forced into a mental hospital by having his labs ignored. what does an 822 ACTH level mean and how does it effect his body while everything is being masked by a psychotropic drug. please...
    farremoved farremoved 26-30 Oct 12, 2012

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    Hi everyone! My names Karen,

    and I was diagnosed with primary Addison's Disease when I was just 17. I had been sick for years, off and on, starting at age 11. It may not seem like a very long time, but when your a kid it seemed like forever. For me it started off with allergies. My parent's use to take me...
    lopingdeer lopingdeer 56-60, F 3 Responses Feb 10

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    Dosage Dose-e-doe

    We were hoping for it to be just "Adrenal Fatigue". We tried to see if I had any function and if we could revive any function at all. I have spent years becoming more and more ill. I have seen more Dr.'s over the past 10yrs. While progressively getting worse. I was homeschooling...
    Plum4Got2 Plum4Got2 41-45, F 2 Responses May 17, 2013

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    What's Your Favorite Salty Addisonian Guilty Pleasure?

    Mines chicken broth with extra salt, onion powder, garlic salt, pepper, and seasoning, with parm reggiano cheese and noodles......or buttered popcorn with extra extra salt
    HealingTreeGirl HealingTreeGirl 26-30 6 Responses Oct 13, 2012

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    822 Acth Level

    WOULD ANYONE HAVE INFO ON THE AFFECT THAT RESULTS WILL HAVE ON MY SON. HE IS 30, HAD BEEN OFF HIS AI MED FOR 3 MOS.
    restrictions restrictions 26-30 Oct 11, 2012

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    It's Not That Bad Is It ???

    Blimey, it sounds like some of you are really struggling with Addisons disease. I've had AD for about 16 years now and came onto this site to get some advice on changing my dosage from time to time but it sounds like I have absolutely no problems compared to some of you guys...
    Jjg123 Jjg123 41-45 3 Responses Aug 22, 2011

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    Addison's Disease And Pregnancy

    Hello everybody! My name is Torey and I was diagnosed with Addison's Disease when I was 22, 4 years ago. My question is for all the women out there who have AD and have also been through a pregnancy. I am currently 22 weeks and everything looks great and healthy with the baby. I...
    Toreylynn3987 Toreylynn3987 26-30 1 Response Aug 12, 2013

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    Feeling Great

    I was diagnosed with Addisons Disease early summer of 8th grade, 8 years ago roughly After a trip to Mexico, i was feeling bad out of no where, beyond usual, really fatigued which was unusual because i had been playing soccer competively for a while. I was also really dark too...
    TP1010 TP1010 18-21, M 1 Response Feb 25, 2011

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