I Have Adenomyosis

A Adenomyosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Adenomyosis. You're not alone. 125 People

    Adenomysis

    I have adenomysis, diagnosed a few weeks ago . I'm terrified I never had a problem before I had my daughter . I'm 21 and was diagnosed w endo and then he said I also had adenomysis . I knew something was wrong because sex had become painful . I don't want a hysterectomy I'm too...
    Kim5671 Kim5671
    22-25, F
    Jul 31, 2013

    Eight years ago, My classmate Monica,

    she began to have symptoms like increased menstrual flow, prolonged menstrual cycle, menstrual cramps and so on. She did not care much about this at that time because she thought it was normal. However, left untreated, the symptoms aggravated: vaginal bleeding lasted for 18...
    antonellamessi antonellamessi
    26-30, F
    Jan 14

    Left To Suffer

    Hi everyone. Last year i was diagnosed with adenomyosis its extremely painful and to make it worse i have blocked tubes which i found out 10years ago. I been hospital had scans for the adenomyosis all i got told by the specialist and doctor is that theyre only going to keep me on...
    sammmxx sammmxx
    26-30, F
    Sep 19, 2013

    Frustrated To Say The Least

    I'm 31 and  was diagnosed with Adenomyosis in July, as well as severe endomitrosis removed in April. Treatment for Adenomyosis has been Birthcontrol pills, and I started heavly bleeding, so on to drugs for hemphilia and now a progesterone, nothing has stopped my bleeding for...
    classicrunner classicrunner
    31-35
    3 Responses Nov 17, 2011

    Different Experience

    I have recently been diagnosed with adenomyosis. I don't mind the diagnoses as it finally put to rest my confusion at a lack of a diagnoses. My experience doesn't sound similar to anything I've read so far. My symptoms started after an ectopic pregnancy and a tubal ligation...
    zephy11 zephy11
    36-40, F
    3 Responses Oct 22, 2013

    Adenomyosis!!!!!!!!!!!!!

    im 29- went to Vitlab after 7 gynaes- found out I had adenomyosis- had a major operation- waited 4 months to start ivf- had a failed ivf only to have another scan to find out the adenomyosis had returned and even worse- my doc recc I have the surgery again to try another ivf- on...
    Leighswanepoel1 Leighswanepoel1
    31-35, F
    Oct 1, 2013

    Hey guys, I was wondering

    if someone could help as my specialist is not too helpful with what I am experiencing and I don't think she really knows exactly herself. Since i was 17 my pain started, i had a hospital record largest ovarian cyst which burst and caused me alot of pain. After that I went on...
    ashtoneno ashtoneno
    26-30, F
    Dec 3, 2015

    Eight years ago, my roomate Monica began to

    have symptoms like increased menstrual flow, prolonged menstrual cycle, menstrual cramps and so on. She did not care much about this at that time because she thought it was normal. However, left untreated, the symptoms aggravated: vaginal bleeding lasted for 18 days per month...
    antonellamessi antonellamessi
    26-30, F
    Jan 3

    I am 18 years old and have been diagnosed with

    Adenomyosis after a long process of finding what was causing my severe pelvic pain. I also have Endometriosis which was removed through laproscopy surgery. But this didn't fix the pain. I can't insert tampons or have sex, due to the excruciating pain i get when my uterus gets...
    Georgiasg Georgiasg
    18-21, M
    1 Response Sep 4, 2014

    Help!

    so ive been to my doctor at the beginning of the week and hes told me i have to have a hysterectomy im 26 and have no children i have less than a week to let my doctor know if i want the op. i know its a choice between the rest of my life not knowing if i can have a child or a...
    sammmxx sammmxx
    26-30, F
    3 Responses Sep 27, 2013

    Questions

    Hello, I went to my ob/gyn today because I have been having issues with my cycle. They did a vaginal ultra sound and a pap smear. At the end of the appointment, my nurse informed me that I had adenomyosis and gave me a paper with a paragraph explaining what it was. She had me...
    krodman82 krodman82
    31-35, F
    1 Response Oct 23, 2013

    I just want to wake up with energy.

    Dragging myself everyday to work but I just feel like I want to sleep. Tired all the time and another day where my stomach and hips are killing me. I'm in a fog I just zoned out at the gas station staring into space. I need to be me again.
    M00Z13 M00Z13
    36-40, F
    Jan 12

    I'm 27 with no children I've had 2 miscarriages

    and I'm scared I won't be able to have kids. Please can anyone share with me if they've been able to have kids after being diagnosed.
    balejandra balejandra
    26-30, F
    2 Responses Sep 18, 2015

    Ugh This Sucks

    Hi! I'm 36..37 next month. I've always had nasty periods. I have been trying to get pregnant for over a year and in the process of doing that..I found out that I have adenomyosis. It's explains everything that has been going on with me for years now. I've been taking Demerol...
    dazzoli dazzoli
    36-40
    3 Responses Jan 14, 2011

    Adenomyosis

    Hi everyone I have been diagnosed with adenomyosis on 2005, at the age 25. Nw 33. I have found out a procedure that cures adenomyosis as for the doctors. I did this procedure on 6/8/2013 and it was pain free and no anestesia and no cuts. Please visit this site us.insightec...
    Marshif Marshif
    36-40, F
    Aug 20, 2013

    Finally A Diagnosis

    Hi my name is Lainey, I'm 48. I have 4 daughters, the youngest being 21, my periods got worse after each child and then about 6 years ago the Dr suggested I get a Marina implanted because I was suffering from heavy and painful periods. I didn't need it for birth control as I...
    Lainey65 Lainey65
    51-55, F
    2 Responses Sep 23, 2013

    Is It Too Early?

    I am 43 and was diagnosed with Adenomyosis today.  My mother suffered with Endometreosis for years, so I guess it does not come as a surprise.  I do not have the pain like so many of you do, although I do have the vaginal pressure during my period which I did not know was...
    gsowerwine gsowerwine
    41-45
    3 Responses Feb 20, 2012

    I Have Adenomyosis

    I am 42 years old and just been diagnosed with Adenomyosis, I don't want to lose my uterus but that may not be an option.   I have really heavy periods each month, I am reduced to planning activites around my period for fear of an accident.   I take the...
    DiedreT63 DiedreT63
    41-45
    7 Responses Apr 11, 2009

    Omg today is bad I have to go to work I can

    barely walk from the pain I didn't sleep much and I can't stop crying. This disease is horrible ... I just want my self back
    M00Z13 M00Z13
    36-40, F
    Jan 14

    I guess for the most part I always had a

    suspicion that something was off. I always had heavy and extremely painful and long periods. But these ran in my family so I figured it was something genetic that I would just have to live with. When I turned 17 the pain got so bad my parents finally agreed to let me see an...
    rosered312 rosered312
    26-30, F
    1 Response Apr 20, 2015

    Diagnosed With Adenomyosis at 21 years old

    Yesterday I was diagnosed with adenomyosis, I am currently 21 years old and in may 2011 I had a miscarrage that ended in a dnc. Ever since my surgery my periods have not been the same, I begun to bleed in between periods or go a month or 2 with out a period also have had sharp...
    needanswers2013 needanswers2013
    18-21, F
    2 Responses Jan 8, 2013

    On A Mission For Baby With Adenomyosis

    I was diagnosed with Adenomyosis in January and was told my only options were mass hormones or a hysterectomy. I have 2 children from my previous marriage and my husband does not have any children of his own, this is something we wanted to share together. In March of 2009, I...
    mrskv mrskv
    31-35, F
    5 Responses Mar 20, 2012

    The self-care measures of adenomyosis include:

    1. Keep a balanced and proper diet When you take some medicine, you need to be on a strict diet control. Do not have spicy food and alcohol. Chicken, fish, beef, shrimp, seafood, pickled vegetables, and milk should be avoided. Do not eat too much chocolate, coffee, coke...
    antonellamessi antonellamessi
    26-30, F
    Feb 18

    Doctors Failed To Listen To Me

    It has taken almost 10yrs to finally be told that what I was experiencing what in fact endometriosis and adenomyosis. The endo has been treated (burned and cut out) but unfortunately they are not able to do anything about adenomyosis. They would like to do a hysterectomy but...
    CheekyChocolate CheekyChocolate
    36-40, F
    Sep 20, 2013

    I Adenomyosis Adenomyosis Hi everyone I have

    been diagnosed with adenomyosis on 2005, at the age 25. Nw 33. I have found out a procedure that cures adenomyosis as for the doctors. I did this procedure on 6/8/2013 and it was pain free and no anestesia and no cuts. Please visit this site us.insightec.com/medicare-exablate...
    Marshif Marshif
    36-40, F
    1 Response Dec 8, 2013

    Just looking for help

    and seeing if other people have had to deal with what i have.
    carrieann2 carrieann2
    26-30, F
    1 Response Mar 3, 2014

    My Long Journey To Now

    I was diagnosed with adenomyosis yesterday. It was a bittersweet relief. But lets go back to the beginning. Before yesterday. I have always had rough periods and they have always been crazy. From the time I started having a period I was off. When I was 14 my mom had to...
    chef2b1day chef2b1day
    36-40
    4 Responses Mar 30, 2011

    I Have Adenomyosis

    I am now 34. I had problematic period since teenagers. But after my delivery of my son 7 years ago, my period problem became worse. Menses is heavy, prolonged and painful. I was admitted to hospital and gynae scan but they said nothing... I'm anaemic as well. My hb and I always...
    gigila gigila
    31-35
    1 Response Sep 8, 2012

    Diagnosed With Adenomyosis

    I was diagnosed with adenomyosis in February this year after seeing a consultant. Previous to that I'd had a scan done of my womb etc.................this is how the consultant knew it was adenomyosis. When I saw him he advised me not to have a hysterectomy, he didn't want to do...
    activegirl activegirl
    46-50, F
    1 Response Jun 10, 2013

    33 No Children Adenomyosis Dx

    Hi I was diagnosed with adenomyosis last week after my 4th laproscopic surgery in twelve years. Was diagnosed with endo ten years ago severe pain heavy periods and not much time in between. Met my husband the love of my life 8 years ago and seemed to be ok for a few years no...
    Cairnsgirl Cairnsgirl
    31-35, F
    1 Response Nov 15, 2012

    So I am 17 about to turn 18

    and I have recently been diagnosed with adenomyosis. My doctors and specialists cannot figure out why I have gotten this considering my history of never having children or any internal surgeries as well as being so young. I am extremely worried that I will never be able to...
    emmybeth18 emmybeth18
    18-21, F
    2 Responses Dec 28, 2013

    Worries About The Future- 22 Yrs Old With Adenomyosis

    Hi everyone! I'm 22 yrs old and was diagnosed with adenomyosis one year ago. I had been having uncontrolled, heavy periods for the last 7 years. When I got my first period I bled for 6 months, and was placed on high doses of birth control pills(4/day) and recieved the Depo shot...
    Lil88 Lil88
    22-25, F
    3 Responses Mar 28, 2011

    Feeling Alone And Guilty

      Im a 28 yr old female and after years of pain and bleeding, its gotten progressively worse the last two years and I finally got a tentative diagnoses: andeomyoma/myosis and endometriosis. I don't know a lot about it yet, but I do know that it hurts always, and hurts so...
    JLK28 JLK28
    31-35, F
    1 Response Oct 5, 2013

    Female - Age 44 (Two Children) - Adenomyosis - 4th Straight Month Of Bleeding !!

    Hello, my name is Denise and I'm 44. I have had regular periods LIKE CLOCK WORK until the fall of 2011 (a year and a half ago as it's currently February 2013). That being said, all of a sudden I had gotten my October 2011 period and suddenly had a 'panic attack' (which I've...
    TheCruiseMermaid TheCruiseMermaid
    41-45
    5 Responses Feb 11, 2013

    Can You Get Pregnant With Adenomyosis?

    I have a 3 will be 4 year old daughter. Been trying for a few months to get pregnant. In February I missed my period but in March I had a miscarriage. Has anyone gotten pregnant and had a healthy baby with adenomyosis ?
    Mlm0755 Mlm0755
    31-35
    2 Responses Mar 17, 2012

    Hi everyone I have been diagnosed with

    adenomyosis on 2005, at the age 25. Nw 33. I have found out a procedure that cures adenomyosis as for the doctors. I did this procedure on 6/8/2013 and it was pain free and no anestesia and no cuts. Please visit this site http://us.insightec.com/medicare-exablate.html http...
    Marshif Marshif
    36-40, F
    Dec 8, 2013

    Prep Work

    I am have just finally been diagnosed with Adenomyosis, after a 30 years of suffering and seeing every doctor I could find a sono tech diagnosed me. I have recently began having depilating pain that has me in bed for 3 or more days. My blessing is I have three great children, My...
    rwoodberry rwoodberry
    41-45, F
    Aug 16, 2013

    My wife has been diagnosed with adenomyosis

    after years of trying to figure out her pains. She suffers constantly from pain and and fatigue. The timing comes at at a bad time right now as we are dealing with a lot in our marriage(. Reason I joined Ep) my question is how can I make her more comfortable I feel useless not...
    Solostsobroken Solostsobroken
    41-45, M
    Jan 21

    How long should it take

    for progesterone tablets to start working? It has been 2 weeks and my pain is much much worse :(
    ashtoneno ashtoneno
    26-30, F
    Dec 3, 2015

    43 And Just Diagnosed

    Hi! I'm 43 and was just diagnosed this week with Adenomyosis. I suspect I have had this for at least 5+ years now. I have had 2 vaginal births with no complications. I have been suffering for over five years with debilitating cycles every month. I pass huge clots, excessive...
    pamelasue23 pamelasue23
    46-50, F
    2 Responses Jun 14, 2013

    I have had period problems

    for years and pain with intercourse since after I had my first child. During my first pregnancy I had surgery to remove a cyst and my left ovary which is possibly when my adenomyosis started, 26 years ago, or when I had my 'c' section 19 years ago. either way I have had...
    MastersPussyCAT MastersPussyCAT
    41-45, F
    1 Response Nov 18, 2015

    Please Tell Me I'm Not Alone

    I was recently diagnosed with adenomyosis. Facing hysterectomy soon. I feel so many emotions along with the pain and frustration of years of dr visits and no answers. I have gained so much weight, i cant lose no matter what i do i just gain, I'm extremely fatigue, I feel bloated...
    Krisi79 Krisi79
    36-40, F
    4 Responses Jul 28, 2013

    Hi! I'm 29, have two boys

    and horrrrrrible periods. I went to Dr. yesterday to discuss having an ablation. well ultrasound showed adenomyosis so instead I'll be having a hysterectomy in a month...July 6th. I'm really nervous and anxious and just need to hear others' stories and know that the quality of...
    MallyC MallyC
    26-30, F
    Jun 10, 2015

    Adenomyosis, Hashimoto's and Grave's....Hmmm

    Hi I'm Madi (I live on the Sunshine Coast, Australia), I was diagnosed with Adenomyosis 2 years ago at 46 & went against the Specialist's recommendations of having a full hysterectomy; as I want to heal it naturally & keep my insides! When I was first diagnosed I kept fainting...
    trix11 trix11
    46-50
    2 Responses Feb 12, 2013

    No Children, But Feeling The Pressure...

    I am an Aferican American woman who just turned 30 in June. I am a teacher and I am in a long term relationship.About 3 yrs ago my period became very heavy. I would soak through pads, tampons, overflow instead cups and be misreable for the week. There was very heavy clotting and...
    tonitouch tonitouch
    26-30
    2 Responses Oct 9, 2011

    Every morning I wake up stiff

    and with pain it takes everything I have to make it out of bed. Some days the pain is in the center of my uterus all the way down to my vagina. Some days the pain is in my hips and feels like metal screws are being drilled into my bones. Some days it's my stomach, like a...
    M00Z13 M00Z13
    36-40, F
    Jan 11

    I Had Adenomyosis

    Hi, I'm a 42 years old and I was diagnosed with adenomyosis in 2007. The pain was unbearable and the solutions were either removing the uterus or taking contraceptive pills. I have been on contraceptive pills for 5 years now. They helped with the pain but so many side effects...
    JACKIEEYDER JACKIEEYDER
    41-45, F
    2 Responses May 14, 2012

    Mrs. Zhang has been infected with ureaplasma

    urealyticum since 10 years ago. Main symptoms in recent 4 years is dysmenorrhea. She has been diagnosed with a adenomyosis caused by ureaplasma urealyticum infection. There was a persistnt pain in low abdomen and the waist before menstruation and the pain stoped after menstrual...
    antonellamessi antonellamessi
    26-30, F
    Jan 15
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