I Have Albright's Hereditary Osteodystrophy

A Albright's Hereditary Osteodystrophy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Albright's Hereditary Osteodystrophy. You're not alone. 18 People

    I Have A.H.O.

    I was diagnosed over the summer of 2012 with Albright's Hereditary Osteodystraphy. The syndrome is so rare that the Geneticists at Stanford Medical Center don't even know how to treat me. There is no cure and thankfully, I have a mild case so it isn't life impairing that much. It...
    jessymstephens jessymstephens
    22-25, F
    3 Responses Nov 20, 2012

    I Was Born With Albright's Hereditary Osteodystrophy

                    MY MOTHER AND I HAVE ALBRIGHTS HEREDITARY OSYEOSYTROPY AND ITS BEEN MIGHTY HARD ON BOTH MY MOM AND I .        I HAVE GLAUCOMA     ...
    apatch33 apatch33
    31-35
    1 Response Oct 15, 2010

    My 50% Of My Moms Side Has It Including Me

    I was diagnosed at the age of 4 with Pseudohypoparathyroidism. The way we found out is I was constantly breaking bones from just falling once. The doctors became severely concerned at the age of 5 when I broke both of my hips and they required pins in order for them to grow and...
    melgin17 melgin17
    31-35, F
    1 Response Sep 25, 2013

    Aho And Overweight

    I have Albright Hereditary Osteodystrophy and I'm trying to lose weight. It's hard it feels like everyday I gain weight, no matter what I do. I'm not a couch potato. I'm no't like "in love" with exercising but, I like exercising sometimes but, not "all" the time. I want to lose...
    short98 short98
    18-21, F
    1 Response Aug 21, 2012

    I have just recently

    as of yesterday found out i have AHO. I dont know anything about it except that my symptoms match. if you know any thing about what it is or how i can live with it please message me
    sheagirl18 sheagirl18
    18-21, F
    Dec 20, 2013

    AHO My 5 Year Old Daughter

    I am setting a charity up, and I want to know who would benifet from the charity?
    Brendan12 Brendan12
    31-35, F
    3 Responses Aug 18, 2013

    I Have Aho Type 2

    Hi Was dignoised with aho type two yes there are two types.I have the one type that you cant treat there is nothing in the body to treat.I am south african born and the doctors in sa found it when I was just 14.At 14 my world and life turned upside down..I went to main stream...
    cliv135 cliv135
    41-45, M
    1 Response Feb 10, 2013

    I Also Have Albrights Hereditary Osteodystrophy

    I was diagnosed at the age of 8. I have PHP (psuedo pseudo hypoparathyroidism) I have arthritis throughout my whole body and I have some but not all of the symptoms.  At the time I was first diagnosed, I was told there was no treatment for the disease.  I wore hand braces...
    lisamagyarkuti lisamagyarkuti
    41-45
    1 Response Aug 7, 2011

    Does anyone still post on here?

    I was diagnosed almost four years ago and I still don't know much about it. My Husband and I are trying to have a baby and it's very difficult.
    jessymstephens jessymstephens
    22-25, F
    Apr 10

    I Have Aho (albright Hereditary Osteodystrophy

    I was diagnosed with AHO when I was a little baby. My Mom or Dad does not have AHO. I'm the only kid in the family who has it. But, my Mom is short and she's only 5ft. & 2in. and I'm 4ft. & 10 1/4. I have a cognitive problem, eye twitches (barely), i have wide and short feet, i...
    short98 short98
    18-21, F
    2 Responses Aug 13, 2012

    Me And My 2 Kids Have Aho

    I am 35 married and 2 of my 4 kids have aho as well as me I was diagnosed in 08 I have ibs fibromyalgia cataracts I hurt most days neck shoulders ankles my kids have had all kinds of learning issues in school they are on an iep in school
    katt2016 katt2016
    36-40, F
    Sep 14, 2013

    I am 16 years old and got my first job in May

    of 2014. I'm a Server and Cashier at a restaurant. Some days when I work, I feel slow with knowing what's going on. I never had a short drawer and my managers always told me it was good. Sometimes I think I seem a little stupid. I try to work hard still. I know what I'm supposed...
    short98 short98
    18-21, F
    Aug 15, 2014

    My 8 Year Old Daughter Has Albrights Osteodystrophy

    my daughter has been diagnosed with AHO and i would like to talk to anyone with this condition as we know very little about it
    lindy78 lindy78
    31-35, F
    4 Responses Aug 15, 2012

    A.h.o.

    hi everyone i have two children with A.H.O. we live in austraila .my kids also have major weight issue . my son also has autism and sever behavire issue .we find in hard to buy clothes and shoe. sadly due my daughter age she cant get growth meds which may of helped. she struggles...
    claudia96 claudia96
    41-45, F
    2 Responses Aug 26, 2012
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