Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Amniotic Band Syndrome

A Amniotic Band Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amniotic Band Syndrome. You're not alone. 2 People

    Hello: My daughter has Parkes Weber Syndrome. I'm wondering if anyone in this group is from Ontario?
    Momofgirl Momofgirl 41-45, F Feb 5

    Your Response

    Cancel
    One year ago is when I started getting sick. It's started out as maybe an hour in the morning I would feel extremely nauseous and most of the time I would get sick and then go on...
    kateyrose98 kateyrose98 16-17, F Feb 9

    Your Response

    Cancel
    I have it. Mayve yes or maybe no. I dont know but there are signs. Although I wasnt diagnosed coz going to a psychiatrist or something has a negative stigma in my place. When I was...
    WifeOfVegeta WifeOfVegeta 26-30, F 1 Response Feb 4

    Your Response

    Cancel
    Dear CFS: **** you! I hate not being able to think clearly. I hate not being able to play with my kids Saturday *and* Sunday. Instead, I have to pick one day and then use the...
    LookingForIt987 LookingForIt987 41-45, M 2 Responses Feb 11

    Your Response

    Cancel
    Hi, I'm 21. I slipped a disc in December 2014. I had CES symptoms for 2 weeks before having my disc removed as I was on a cruise ship. I guess I'm lucky as I can walk normally with...
    sdavis313 sdavis313 18-21, F 1 Response Feb 15

    Your Response

    Cancel
    Hi everyone! So I'll be posting my full story later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being...
    Abbyrk Abbyrk 16-17, F 1 Response Feb 15

    Your Response

    Cancel
    I can't say 100% that I have this (just 98%) I wish I knew how to get better because I also have pseudotumor cerebri and the two are going in circles with each other right now...
    lu7998 lu7998 31-35, F Feb 16

    Your Response

    Cancel
    Hi I'm 24 years old and currently being diagnosed with pts. 5 months ago I had my first symptom which came out of no where and was severe! I have had sooo many tests as you would...
    megzeee megzeee 22-25, F 1 Response Feb 18

    Your Response

    Cancel
    As an Aspie, I get very tired having to socialize and talk to people. I'm often accused of being aloof, standoffish, or downright rude. It's not my intention to be mean or...
    Sorgun Sorgun 26-30, M 3 Responses Feb 21

    Your Response

    Cancel
    I was born weighing two pounds and couldn't eat on my own. I wasn't eating food of any kind and was diagnosed with RSS when i was an infant. At first i was put on a N G tube (a...
    RTKDcarmichael1stdegree RTKDcarmichael1stdegree 18-21, M 1 Response 5 days ago

    Your Response

    Cancel
    Have any of you kept up with news recently? Apparently, there are studies now that show this is a disease and the medical community will start treating it as a disease. Looks like...
    awesomesauce2 awesomesauce2 22-25, M 3 Responses 5 days ago

    Your Response

    Cancel
    It's so tough to get exercise. I want to exercise so much...but I can't because it hurts and my joints pop every time i do:(
    Enpfor12 Enpfor12 18-21, F Feb 10

    Your Response

    Cancel
    i am aspie and i am proud of it. it makes me who i am and ucan all say like it makes some things i know i was diagnosed last year with this and high functioning augism and this is...
    prodemonz prodemonz 13-15, M 3 Responses a week ago

    Your Response

    Cancel
    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
    Cryx Cryx 16-17, F 1 Response 2 days ago

    Your Response

    Cancel
    My sister does, and I'm that sibling. I have asperger's syndrome, a form of high-functioning autism. When I was younger I would get angry at the littlest things. I remember...
    ftmFreddy ftmFreddy 18-21, T 1 Response Feb 9

    Your Response

    Cancel
    I work in customer service (phone and email). I have been told before that I put too much pressure on myself, and I agree that I do. But I just don't know how NOT to. Well...
    enigma19020 enigma19020 46-50, M 1 hr ago

    Your Response

    Cancel
    Hi call me Sean. I'm 21 years of age and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit...
    Life1sinteresting Life1sinteresting 18-21, M 2 days ago

    Your Response

    Cancel
    I manage two young bands. A manchester based band called "don't stop! Go!"who's roots are in pop punk but have integrated gothic, emo, post hardcore and Rock into their sound...
    jakedorian jakedorian 26-30, T 3 days ago

    Your Response

    Cancel
    Quite a few, actually. Let's see: Velo Cardio Facial Syndrome Asperger's syndrome Depression Obsessive Compulsive Disorder That's me.
    ftmFreddy ftmFreddy 18-21, T 5 Responses Feb 9

    Your Response

    Cancel
    The ever present question, are we being manipulated? If you say, well yeah, duh. Then you ask yourself the next question, who is manipulating us? Welcome to the mind of all tin...
    everydayisagoodone everydayisagoodone 31-35 2 Responses Feb 13

    Your Response

    Cancel
    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 1 Response 4 days ago

    Your Response

    Cancel
    just wondering about others experiences with POTS syndrome. I have lost all strength in my legs and im in a nursing home. Therapist says ill be in a wheelchair for a month. was in...
    Jzimo Jzimo 22-25, M 2 days ago

    Your Response

    Cancel
    Pretty much self explanatory. Additional info for the clueless: http://www.urbandictionary.com/define.php?term=White+Knight+Syndrome
    aberrations aberrations 22-25, M 1 day ago

    Your Response

    Cancel
    In my imaginary world I am a rockstar. I am the vocalist of a band with completely imaginary band members but we live in a big mansion where other bands visit and stay with us...
    jakedorian jakedorian 26-30, T Feb 23

    Your Response

    Cancel
    Babes in Toyland..Dum Dum Girls.. Vivian Girls..****... What are some of your favourite girl bands or bands with a female singer?
    Fierrrrce Fierrrrce 18-21, F 1 Response Feb 15

    Your Response

    Cancel
    well haha im not talented and i cant sing well (doesnt mean i dont sing tho, i sing a lotttt) and i only can play like a little song on the piano WHO WANTS TO BE IN MY BAND or take...
    rthbs rthbs 16-17, F 1 Response Feb 15

    Your Response

    Cancel
    Who has heard of the band Black Veil Brides? I've listened to them since late 2005/early 2007 and they are amazing live. I met the band quite a few times, and I know their ex...
    Christain94 Christain94 18-21, M 6 days ago

    Your Response

    Cancel
    I play in a swing band unimaginatively named 'SwingCats Orchestra'. We're a community jazz band in a little town in northern Alberta. We've started to do some recordings at our...
    BarvoDelancy BarvoDelancy 31-35, M 4 days ago

    Your Response

    Cancel
    My Feelings for them.That beyond description.... They've taught me a lot of things which i've never learned at school or feckin sick mad criminal parents. They were only my savior...
    Juri0902 Juri0902 31-35, F 4 days ago

    Your Response

    Cancel
    I am sick and tired of seeing this picture everywhere. I have had 4 friends text me this image asking me what colors I see. Blue/black or white/gold? I am a realistic, down to...
    WrongPage WrongPage 18-21, F 1 Response 3 days ago

    Your Response

    Cancel
    Here are mine: 1. Within Temptation 2. Portugal. The Man 3. The Killers 4. A Perfect Circle 5. Freezepop As you can see my music taste vary. Lol, Top favorite songs from the...
    UnfinishedStar UnfinishedStar 18-21, F Feb 4

    Your Response

    Cancel
    i am a Christian. I go to a christian school, and a baptist church, connected with the school. I am in the school band. i made it to first chair in trumpet and Nate ( my crush) is...
    LegolasLover159 LegolasLover159 13-15, F 2 Responses Feb 4

    Your Response

    Cancel
    Dude, I'm obsessed with this band, like really. Anyone else?
    MissPeruvian MissPeruvian 18-21, F Feb 4

    Your Response

    Cancel
    Sooo like I'm in marching band And I play da flute l, I honestly think its so awesome when we perform the halftime shows because everyone looks at you, and cheers you on its...
    texanguy13 texanguy13 22-25, M Feb 5

    Your Response

    Cancel
    i dont know what to do. i am in volleyball an love it exceedingly. i want to tryout for the freshman team but there is only an 80% chance i make it. i play the oboe in band...
    oboepride oboepride 13-15, F 9 Responses Feb 9

    Your Response

    Cancel
    I love music and have always wanted to sing in a band but always thought I wasn't good enough so I didn't even try. I want to try and see if I could actually accomplish my dream...
    xXchaos71Xx xXchaos71Xx 13-15, F Feb 10

    Your Response

    Cancel
    my best friend since 4th grade traded our friendship to be in a band, ever since he did that he pretends like I dont exist, too busy playing in a rich jews/son of a senatora band...
    Dissociator Dissociator 13-15, M Feb 18

    Your Response

    Cancel
    Not really a band but Eric Clapton/Cream and Pink Floyd. ;-)
    Stonaman Stonaman 22-25, M Feb 20

    Your Response

    Cancel
    Not a lot of bands...just these: Sepultura, Linklin Park,Metallica,Slipknot,Drowning Pool and Motorhead...my favote singers are Max Cavalera(Sepultura) , Corey Taylor(Slipknot...
    anderlr anderlr 13-15, M Feb 20

    Your Response

    Cancel
    I'm in a hardcore / holy terror band called Dead Drop we are based in northern New Jersey we wilk be recording a few tracks in the late spring! follow us on facebook! https://m...
    eggman667 eggman667 26-30, M Feb 21

    Your Response

    Cancel
    I love playing the guitar and with so many different sub-genres and messages that Punk Rock projects, I'm finally looking to start a band and get my moshin spirit back!(:
    jgirany2013 jgirany2013 18-21 Feb 21

    Your Response

    Cancel