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I Have Amyloidosis

A Amyloidosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyloidosis. You're not alone. 5 People

    I Might Have It

    I am 18 years old. Just a couple days ago my doctor called me and informed me that they think I have Amyloidosis. Sad news? Of course! Who wants this?! But I am ever thankful for possible answers. I have been sick for nearly a year now with no answers, so having one is definitely...
    BriDery BriDery 18-21, F Jul 3, 2011

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    Grateful

    I have recently been diagnoised with Amyloidosis and I am in kidney failiure. I have limb pain and have amyloid lesions on my neck. I was diagnosised with atrial flutter and am praying the amyloid is not in my heart. I will got to Bostonnext month formore info. Anyone else...
    grateful grateful 41-45 4 Responses Aug 25, 2008

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    Related Experiences

    Other people would have absolutely no problem with casual encounters with someone they know. But not me. For example, this morning, I bumped into a colleague at the grocery. I...
    mareliberum mareliberum 26-30 28 mins ago

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    I didn't even know this was a thing up until like a few mins ago but reading everyones posts about it, I'm absolutely sure I have it to. the people I want most in my life, for...
    dathglas dathglas 13-15, M 53 mins ago

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    The way you feel is unique. No one has ever lived a life flawlessly identical to yours. You have a right to the way you feel
    skywalker9 skywalker9 18-21 1 hr ago

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    I just realized something. If you are focusing on your desires a lot when falling asleep, especially sexual desires or something involving a lot of stimulating your sense of...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 2 Responses 1 hr ago

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    I have a dark side. It is rarely seen. But if you ever saw my darkest side. It means you have gone to far. Trust me let's not go there 😅
    Gayprince1234 Gayprince1234 13-15, M 4 Responses Jan 14

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    Hey everyone! I have a friend who could really benefit from getting some emotional support to keep their spirit lifted. Would you be so kinda to click on their link, and read their...
    NaomiSunshineJourney NaomiSunshineJourney 31-35, F 3 Responses Jan 14

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    This is no longer the person I loved, this is someone else. We no longer walk the same road, and I can carry my feelings alone only so far. I've been afraid in the last year, that...
    trancexpress trancexpress 22-25, M Jan 14

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    I am 13 years old, almost 14, and I weigh 505 lbs because I have hypothalamic obesity. When I was 10 years old, I started getting really bad headaches, and I started getting sick...
    nudestacy nudestacy 13-15, F Jan 14

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    When my parents ask me do I want to... (and then they give me a long bill of things that mostly don't interest me, then)... and go to supper with us? So I have to either endure a...
    GreatWhiteBird GreatWhiteBird 26-30, M 1 Response Jan 14

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    looking for my distance relatives who have this named Gerber or is a off spring around Albany NY
    tswheel tswheel 66-70, M Jan 14

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    I know I have a lot of growing up to do. But I do not want to grow up. I am only thirteen. But someday I will grow up.
    Gayprince1234 Gayprince1234 13-15, M 1 Response Jan 14

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    dear everyone, I have feared taxidermy like someone fears falling off a cliff or being lit on fire since as LOOOONNNGG as I can remember. I found a support group on facebook for it...
    vettie1994 vettie1994 18-21, F Jan 14

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    My parents are strict abut some things because they know I need structure and rules in my life. And I know that they really love me and care for me Something happenned to me a...
    AGirlNamedKim AGirlNamedKim 18-21, F 4 Responses Jan 14

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    Continuation of the last I have a secret. The thing about my brother, my mom and dad know about it. They found out and they told me not to tell anyone, that I couldn't tell anyone...
    Montana2002 Montana2002 13-15, F 3 Responses Jan 14

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    It's been over 4 years now. I'm at the point now where I don't know if I want to wait for a decent woman to date or just have a random encounter work someone.
    pcandymand pcandymand 31-35, M Jan 14

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    Last night I was almost sexually assaulted. What makes it even worse? It was my own roommate. How do I live with someone who could possibly think that **** is okay? I sat him down...
    HollyMaria954 HollyMaria954 18-21, F 8 Responses Jan 14

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    In my country, dogs are treated horribly. The streets are full of strays and so they are either beaten up or poisoned by the municipality. Recently, few people tried to open up a...
    NancyRK NancyRK 18-21, F 2 Responses Jan 14

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    "One of the saddest things in the world is watching a child that believed so completely in fairytales, learn to accept that they are not real. " Nikita Gill, Fairytale Child I...
    Diablessse Diablessse 46-50, F 7 Responses Jan 14

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    The IAAF reported today on the grand scale of corruption and or incompetence in the governance of world athletics. This comes hot on the heels of the FIFA scandal in the...
    PickledPete PickledPete 51-55, M Jan 14

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    I have trouble trying to form any kind of friendship on here. When I answer a message I don't always get a reply. People are not out to make or want any friend. I experience more...
    Gambler715 Gambler715 51-55, M 1 Response Jan 14

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    I have ever pai r sexonne or othewise. el thexchange o money chepenshe deep eotionabn o trut that re created by twopeople, bto each his own. what dyou think?
    capivated88desires capivated88desires 51-55, M Jan 14

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    I don't think anyone really understood just how much Dr. Wilder meant to me. Or maybe they did and that's why things had to change. Maybe it was I who just didn't understand how...
    deleted deleted 26-30 1 Response Jan 14

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    Has anyone had lumbar fusion surgery to correct the curvature in the spine? I have and it's been wonderful.
    Mariahehe Mariahehe 22-25, F 5 Responses Jan 14

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    Good morning everyone hope you have a blessed day
    eman2016 eman2016 31-35, M 1 Response Jan 14

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    I was Bobby2go, which stood for my name Bobby (short for Bobilina) and always on the go. but changed my name when reminiscing with some family members of the following embarrassing...
    z00bie z00bie 26-30, F 5 Responses Jan 14

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    The worst thing about having anxiety and depression is that it's never easy to tell anyone how it really feels to have a war in your head. You end up pushing every single person...
    Lilythehuman Lilythehuman 26-30, F 2 Responses Jan 14

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    Is it just me or does my dog rexie have a vague resemblance to snoopy
    smitlord smitlord 16-17, M 2 Responses Jan 14

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    My Snickers Commercial: Person: Here have a Snickers Bar, You are not you when you are hungry Me: *turns into Glenn Danzig* Moooothhhhhherrr Totally original script by MLGecko.
    MLGecko MLGecko 36-40, M 1 Response Jan 14

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    If you send me a penis pic, I'll block you. I've blocked 220 people so far. And I'll block more if I have to
    DiamondAuthority DiamondAuthority 18-21, F 1 Response Jan 14

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    I like people. I'm good at talking to them and connecting to others. I accept the shifting dynamics of relationships, etc. But I have few friends, some of which are members of my...
    Clairnite Clairnite 22-25, F 2 Responses Jan 14

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    My Snickers Commercial: Person: Here have a Snickers Bar, You are not you when you are hungry Me: *turns into Glenn Danzig* Moooothhhhhherrr
    DesiredUserNameandStuff DesiredUserNameandStuff 31-35, F 3 Responses Jan 14

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    So anyway this morning I sign in and I have a message. I`d rather have a massage......... but I digress. All it`s says is "hi" Not even a capital H in hi... So the first thing I...
    DEGBEME DEGBEME 61-65, M 8 Responses Jan 14

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    So there I am walking my dog, it's muddy in the field and she hates it. I have her following single file behind me, and I can hear her tags jingling away. I get to a point where I...
    Supermassive93 Supermassive93 22-25, M 7 Responses Jan 14

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    If life is so fair,then why do roses have thorns? What do you think about this quote?
    sievert sievert 13-15, F 3 Responses Jan 14

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    ?"I have never been on a date" My family and relatives are pushing me to go on a date because among us; sisters, I am the only one left that have never been on a date. I would...
    MarvelousMe MarvelousMe 16-17, F 1 Response Jan 14

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    Yeah yeah. We've established that. You don't have to keep telling me. Actually you do, I never get tired of hearing it.
    savoy2 savoy2 46-50, M Jan 14

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    I have curves and am proud of it. Didn't caused me any prob at all because all the people that surrounds me made me feel loved.
    tseng tseng 26-30, F 5 Responses Jan 14

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    Sometimes I complain about not having time, but actually when I look around myself I am thankful. It is better than to have too much time and keep thinking.. Working and school and...
    deleted deleted 26-30 2 Responses Jan 14

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