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I Have Amyloidosis

A Amyloidosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyloidosis. You're not alone. 5 People

    I Might Have It

    I am 18 years old. Just a couple days ago my doctor called me and informed me that they think I have Amyloidosis. Sad news? Of course! Who wants this?! But I am ever thankful for possible answers. I have been sick for nearly a year now with no answers, so having one is definitely...
    BriDery BriDery 18-21, F Jul 3, 2011

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    Grateful

    I have recently been diagnoised with Amyloidosis and I am in kidney failiure. I have limb pain and have amyloid lesions on my neck. I was diagnosised with atrial flutter and am praying the amyloid is not in my heart. I will got to Bostonnext month formore info. Anyone else...
    grateful grateful 41-45 4 Responses Aug 25, 2008

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    Related Experiences

    There we go again...This is my more detailed 25 facts, welcome back! 1. I am still a virgin. 2. I am not a tomboy, but neither am I very feminine. I'm just like, a girl that loves...
    iTetraZazicII iTetraZazicII 18-21, F 3 hrs ago

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    Alright, where to begin? I hope only those with BPD read this. It's incredibly incredibly insensitive and very damaging to a Borderline person when someone who doesn't understand...
    Vaecia Vaecia 22-25, F 3 Responses 11 hrs ago

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    i was just recently diagnosed with hs. in the last year this disease has completely ruined my life. i have lost my job, my children have to watch me suffer. i am about to loose...
    htoure21 htoure21 31-35, F 4 hrs ago

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    Almost everyone I have met, tells me that I have a radio voice, and I agree to a point, my voice is deep but really calm and relaxing
    roby23 roby23 18-21, M 1 Response 10 hrs ago

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    When you love someone beyond the limits you could have ever imagined. When nothing or no one else can compare. When you want the best for them, no matter what. When you are...
    Stickwithmebaby Stickwithmebaby 36-40, F 8 hrs ago

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    Its true I have never seen you and we have never met, never shaken hands or even truly hugged and yet! I know for sure you care for me by the kindness that you give. And our...
    rachhappyville rachhappyville 31-35, F 1 Response 4 hrs ago

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    Revised. I have a Up-to-date. I have since the last experienced learned that age does count. If you get involved with a older man or woman who do not mean you well? You are heading...
    Babeondwy Babeondwy 41-45, F 1 Response 2 hrs ago

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    I have a best friend, we first met at the tio Cruz concert. From then on we became friends and one thing led to another and we became close. We got into an accident and from then...
    zulff92 zulff92 22-25, M 2 hrs ago

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    An easy one as I used to have my own swimming pool at home and seldom wore a bathing suit. I have also skinny dipped with others at public pools. I can highly recommend this to...
    wanker1953 wanker1953 61-65, M 11 hrs ago

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    If I never hung around drug dealers all my life. And instead of getting all this money at once have a really good job as a accountant because I'm really good with numbers. but...
    La247 La247 31-35, M 1 Response 8 hrs ago

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    If I never hung around drug dealers all my life. And instead of getting all this money at once have a really good job as a accountant because I'm really good with numbers. but...
    La247 La247 31-35, M 8 hrs ago

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    I have anxiety and my parents get mad at me when I have an attack.. Like its my fault I'm like this. I used to call them because they would be able to calm me down and make me feel...
    kristen1993 kristen1993 22-25, F 1 Response 7 hrs ago

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    I would like to know why almost everyone fears death. I am not suicidal, I have always been this way. I want to understand this fear to help someone who is terrified. I have...
    lonewolf41 lonewolf41 41-45, F 6 hrs ago

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    I met someone last night, and I'm glad they were imaginary, it felt nice to have someone listen for a while and not have to worry about any of the mistakes I made.
    justalittlewallflower justalittlewallflower 16-17, F 1 Response 4 hrs ago

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    i have two jobs again. before i was working subway n walmart but walmart unexpectedly let me goo...so now im at a smoothie place. im stressing the fact how i work so hard for ao...
    amariebonitaa amariebonitaa 18-21, F 3 Responses 3 hrs ago

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    I wish I could change how every time I make a response or comment I have to be reminded to respond with authenticity, support, and respect like I am a kid. Shame it has to be this...
    Babeondwy Babeondwy 41-45, F 1 Response 2 hrs ago

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    My mother is emotionally abusive and I’ve only just began to see it. My mother is a sole parent to me and my younger brother. She left my father taking me and my brother with...
    throwawaybro throwawaybro 22-25, M 2 hrs ago

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    If you have ever been PASSED OUT DRUNK... Take one of these Polls, and get all your friends to take the polls too! Copy & Paste the link into your browser to take you directly to...
    kinkyboi67 kinkyboi67 41-45, M 12 hrs ago

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    If you have ever been PASSED OUT DRUNK... Take one of these Polls, and get all your friends to take the polls too! Copy & Paste the link into your browser to take you directly to...
    kinkyboi67 kinkyboi67 41-45, M 12 hrs ago

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    Really... Really. Oh my god. I seriously can't believe I have a crush on someone right now. I hate liking someone when you know they don't feel the same and you will never be with...
    Elossia Elossia 18-21, F 1 Response 12 hrs ago

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    I still like my ex who is dating one of my best friends cousins and I am happy for them but I cant help but smile every time I see him because I think of everything we did together...
    cuttergirl16 cuttergirl16 13-15, F 9 hrs ago

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    I second guess myself at every turn. People tell me am pretty but I don't see that sure am not overweight but am not model tipe either I have vampire teeth too am the weird girl...
    maleeny maleeny 18-21, F 1 Response 9 hrs ago

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    I have a LOT of guy friends cause girl friends are a lot of drama
    kayeheyII kayeheyII 13-15, F 7 hrs ago

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    You're never too old to have a crush on someone. It's nice that a person can feel that way about another.
    dirtydarkness dirtydarkness 26-30, F 4 Responses 7 hrs ago

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    I wonder what it'd be like to have girl talk with a guy?
    Viviq66 Viviq66 18-21, F 4 Responses 6 hrs ago

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    I didn't have autism and ashburgers
    MinerMan5678 MinerMan5678 13-15, M 6 hrs ago

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    I have a problem when pronouncing Schick, I always pronounce it myself as S_chick
    vitnesse vitnesse 18-21, M 1 Response 4 hrs ago

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    I am way too excited about moving out with my darling. We are basically never apart unless we have to anyway, and it'll just be living with my most favourite person in the entire...
    koshikoibito koshikoibito 18-21, F 1 Response 4 hrs ago

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    The secret I have to share is, I don't why I keep fantazing about every girl I come across. It's bad, I want to get rid of it. It's just the version of me, I don't want to be
    GhulamMustafaJr GhulamMustafaJr 18-21, M 3 hrs ago

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    I met this guy on hear and we be became good friends until two weeks ago we started going out and I fell deeply in love with him and I still am but Saturday night we had a argument...
    thelittlekidindiapers thelittlekidindiapers 13-15, M 2 Responses 3 hrs ago

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    Yes I have met some on E.p who is really nice.
    sroonaka616 sroonaka616 18-21 3 hrs ago

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    When I die, I hope I have enough time to point at a complete stranger and whisper "You did this."
    Thevy29 Thevy29 31-35, M 3 hrs ago

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    I have done this with school and scouting movement.
    sroonaka616 sroonaka616 18-21 3 hrs ago

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    Maybe people would have better lives if they had a better attitude. It makes sense. If you think positive, your life will be more positive. If you think negatively, your life...
    PsychGirl94 PsychGirl94 18-21, F 6 Responses 3 hrs ago

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    My bladder is been a pain today, literally. In addition to my usual urge issues, I'm burning really bad and I feel a constant need to pee. I think I may have another UTI. I...
    wywildman wywildman 36-40, M 2 hrs ago

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    You stood before me You kissed me on the forehead You hugged me tight You told me I was beautiful You said you were proud of me You did this everyday But this was the last...
    idigress idigress 18-21, F 3 Responses 2 hrs ago

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    I never thought at this age i would get a girl friend who loves me as much i love her ! she want things to be worked by the passage of time and i want things to work like flash...
    CrushedBrainLovesMarmalade CrushedBrainLovesMarmalade 22-25, M 2 hrs ago

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    From the time I started school until the day I left (aged 16), I was bullied. In my case it was all verbal and usually about my race, my lack of nice, expensive clothing and being...
    strangevegetables strangevegetables 36-40, F 2 Responses 2 hrs ago

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    My father was born and raised in Scotland, but I only lived there until I was three years old. Soon after my third birthday my mother died, and my father and I moved to New York to...
    daely daely 16-17, F 1 hr ago

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