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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 33 People

    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 18-21, F 1 Response Mar 1, 2013

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 70+ 8 Responses May 28, 2009

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    Related Experiences

    I literally am reading all these stories and my heart aches. I have been in two mental hospitals and been batteling depression for six years. I have cutt every place there is skin...
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    i have no problem with interacial any thing but sometimes its not that simple ....like people say love is color blind..maybe love is...but people are not......and it depends on who...
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    My mother is a narcissist. My dad is her faithful enabler. They have been married for 52 years and to this day he does what she says. My mother was never home growing up. When...
    pistacchia pistacchia 46-50, F 15 hrs ago

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    My mother trashes my integrity every time she can. This last time is the point of no return for me... I have been a good daughter my entire life. I have been successful and...
    pistacchia pistacchia 46-50, F 12 hrs ago

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    I made a horrible decision(s) He was my friend He was my older sister's friend too He was my affair I was his affair He was 18 And it happened 3 times If the worst situations came...
    gugly14 gugly14 13-15, F 11 hrs ago

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    So there is no more court. My lawyer did play the 911 tape though. It's got me curious to know if the guy who saved my life is on at least Facebook. His name is Blake Walters but...
    raemar85 raemar85 26-30, F 10 hrs ago

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    In need of some rabbit advice!! Well I decided to get a baby bunny, I got her from a really nice guy who clearly has dedicated his life to his rabbits lol, he had a bunch, males...
    Beth0888 Beth0888 26-30, F 7 hrs ago

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    I have had stage 3 HS for 11 years now. When It first showed up I was so embarrassed I didn't tell anyone I was living in South Carolina at the time in foster so it wasn't like I...
    MsAnonymous1 MsAnonymous1 18-21, F 1 Response 7 hrs ago

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    I have a pretty bad case of ptsd. I have done service overseas, in Iraq, in both the Marines and the Army. As was the case with most guys, I bought into the duty and honor of...
    amp6046 amp6046 26-30, M 4 Responses 6 hrs ago

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    Ok. All of the previous experiences sound way too familiar, i can no longer live in denial. I have been with my husband for 11 years now, the last 4 been married. I have never...
    mayooya mayooya 26-30, F 1 Response 3 hrs ago

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    I am a 28 year old mother of two young children and a wife. In February of this year 2014 I was rushed into surgery do to CES. The surgery took care of the back and right leg pain...
    korinne44 korinne44 26-30, F 1 Response 1 hr ago

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    it ruined me.i literally have no social life.i tried to tell mom i think somethings wrong because i dont feel well but she says im fine.i have no friends.i live alone and convinced...
    ohmigawshcookies ohmigawshcookies 18-21, F 3 Responses 1 hr ago

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    I'm one who has no problem with interracial relationships. Most of my romantic relationships with women have been with non whites. I dated mainly Hispanic women in high school...
    CrazyWaterSpring CrazyWaterSpring 51-55, M 23 hrs ago

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    I notice alot of women say I have a cute baby face and would love to shrink me, put me n a baby carriage and have me as their baby. Winder why they say this!
    SmileyWileyGuy81 SmileyWileyGuy81 31-35, M 6 Responses 23 hrs ago

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    Okay so last Friday I was at My boyfriend's house and we were in his room waiting for his parents to finish up dinner. his younger brother had his girlfriend over as well. Me and...
    maromis maromis 16-17, F 2 Responses 21 hrs ago

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    Hi, I am new here and just needed to talk with people who would understand what I'm feeling! I love my husband, he is my true soulmate and greatest love, I never ever want to be...
    Coco181225 Coco181225 26-30, F 3 Responses 20 hrs ago

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    I have only one child; my precious daughter. Her name is Katie.. As she ages, I'm becoming increasingly stressed out. Sometimes I feel like it's hard for me to lead by example...
    majesticmaddy majesticmaddy 70+, F 1 Response 19 hrs ago

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    I learned Pi. I hate math, but I really regret not learning some Pi when I was in school. I would have written it at the bottom of every test, and probably gotten the 2 percent I...
    prettyprude prettyprude 31-35, F 1 Response 18 hrs ago

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    My mom was a single parent to me and I'm an only child. She worked her *** off providing for me.. So I spent most of my time growing up with babysitters and family members. She did...
    sunshiineee sunshiineee 22-25, F 2 Responses 18 hrs ago

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    I am so incredibly heartbroken:( I have just learned that my uncle & Cousin's family dog, Skyler passed away yesterday. This dog was like my very own. He was loved by so many...
    MKM18 MKM18 18-21, F 5 Responses 17 hrs ago

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    I have a Scottish accent which I have been told I sexy!
    HandsomePrince1 HandsomePrince1 16-17, M 12 hrs ago

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    Most of them about killing. When I was a child I wanted to kill my family.. for absolutely no reason. I'd plot it.. then laugh... then feel miserable. Well it does not limit to my...
    jayshade jayshade 18-21, F 3 Responses 12 hrs ago

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    I have problems with anxiety ever since I know about myself, and I'm currently having an identity crisis that's really severe. I've been to one psychotherapy already, it did help...
    Vrime Vrime 22-25, M 1 Response 12 hrs ago

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    We don't get to choose our families unfortunately. If we did it would be nice though. I come from a very unaccepting, judgmental, conditional love sort of family and recently it...
    crystalc1973 crystalc1973 36-40, F 11 hrs ago

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    So today, one of my friends friends was bragging about her new job at McDonald's. She is 21, 2 years older than me. Basically she was rubbing it in everyone's face that only...
    Gemz2411 Gemz2411 18-21, F 9 Responses 11 hrs ago

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    Me aged 7. I lived with my mum in a council house just me and her she didn't work and we certainly didn't have much. But you don't need stuff to be happy Then she met a guy. It was...
    Onedaybaby Onedaybaby 26-30, F 10 hrs ago

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    Whenever my parents leave the house, I have to say 'I love you'. The thinking behind this is that if they die, the last words they hear from me will be 'I love you'. When I put...
    ftmFreddy ftmFreddy 18-21, T 3 Responses 9 hrs ago

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    I haven't remembered my dreams in a long time, but this one is too crazy to forget. Throughout the whole dream, I and whoever I'm traveling with are on this journey. I think we...
    kck3862 kck3862 13-15, F 9 hrs ago

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    A TRIBUTE TO ENCHANTINGDREAM Most my friends will know I am not one to advertise sexual stuffs freely for others to see. But ever since I met my girlfriend here EchantingDream...
    AcousticAnne AcousticAnne 26-30 1 Response 9 hrs ago

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    I lived in a house where the lights would flicker everhtime I was happy or the second I calmed down & no one else seemed to have noticed anything about the lights in our opuse...
    whatelephantswhistle whatelephantswhistle 22-25, F 8 hrs ago

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    I don't have any piercings or tattoos. I don't think I will ever have any. I don't like them at all and find them a turn off. They can ruin a nice body.
    Danceofhours Danceofhours 36-40, M 1 Response 8 hrs ago

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    2 years ago I told my bf I had HS stage 3 found out he did as well.... He has it very mildly maybe stage one. Told him all the crazy stories from trying to hide it for (when I was...
    MsAnonymous1 MsAnonymous1 18-21, F 1 Response 7 hrs ago

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    I have been seeing a psychiatrist and psychologist since I was 12. I had depression and Psychosis disorder nos. Around 15 my mental health started to decline even more. I was...
    mstenorsaxplayer mstenorsaxplayer 18-21, F 1 Response 7 hrs ago

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    How Could A Mother Be So Cruel?- A coworker in her 40s though she honestly doesn't look over 30 arrived at work in tears today. 2 yrs ago her only child moved from their home state...
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