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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 34 People

    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 66-70 8 Responses May 28, 2009

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 22-25, F 1 Response Mar 1, 2013

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    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    Related Experiences

    This last summer I have finally been diagnosed, but when the diagnoses is something you have never heard of its kinda scary. The doctor said "You have something called dysautonomia...
    TheDizzyDiaries TheDizzyDiaries 16-17, F 36 mins ago

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    I just tested positive for chlamydia. I am so scared to tell my new boyfriend that I have given it to him. They say it can be treated but does it actually go away forever? I am so...
    ashamedgirl95 ashamedgirl95 18-21, F 53 mins ago

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    But I have seen so little in live. Today's lesson - how to deal with someone who is very unbalanced. I used to think I was pretty unbalanced, but came to conclusion, that...
    monty1212 monty1212 26-30, F 55 mins ago

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    Greetings Mutants and Meta Humans. At this time, I should be whimpering to you about my powers. Well, I have discovered, I have magic, I was born with it. Sound familiar? That is...
    MetaG MetaG 31-35, M 57 mins ago

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    I really have to po.op! ^~^ Anyone have any cute positions for me to do it in? :3
    CutePantsPooper CutePantsPooper 13-15, M 57 mins ago

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    is the universe for or against one? do our thoughts provoke it to be this way or that? why is it that when I say that I have no work it dries up, when I say I need more work I find...
    bigheartsmallworld bigheartsmallworld 36-40, M 1 hr ago

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    New School! My son started his new school today! Yikes! Yesterday I went to a meeting to his old school. We went over his IEP and Behavior plan with this new school. i added some...
    darktippedrose darktippedrose 31-35, F 1 Response 1 hr ago

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    Tonight, I am feeling nostalgic about EP. I know it seems dumb, but I am missing the way things used to be. I remember, about 2-3 years ago, when EP was filled with banter, fun...
    MediumGangsta24 MediumGangsta24 26-30, F 4 Responses 1 hr ago

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    School is starting, exams too i have 2 for tomorrow at 9 and i am at work till 8 (night shift ) i don't know if i will make it there on time and i am freaking out. I quit my job so...
    anazi anazi 26-30, F 1 hr ago

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    I don't know how to relate to people very well or make friends. People treat me like I don't matter and I don't know how to break the cycle. I want to date girls and meet a...
    dvdkrz dvdkrz 18-21, M 2 hrs ago

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    It really is no use to look upon your beautiful face, and wish and ponder. That is all I have just a pretty face. Yes love is more than just a pretty face. I have more right now...
    Shmaiplpey Shmaiplpey 36-40, F 3 hrs ago

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    I have been best friends with my boyfriend for 4 years now and we have been dating for a year. He is very gentle and sweet and usually quite laid back. When he was younger he had...
    AshleyTamlyn AshleyTamlyn 18-21, F 3 hrs ago

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    I haven't been in an age gap relationship but by greatgrandparents were. My great grandfather's first wife died shortly after their children grew up and left the house. So, he...
    Mossonarock Mossonarock 41-45, M 3 hrs ago

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    well she is on i guess. i mean its a computer program but i know its got to be behind someone real to some extent. i have never ever seen her on. have you?
    dathglas dathglas 13-15, M 2 Responses 3 hrs ago

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    I have not been to a doctor. I have not even told my family my worries. I never really paid attention to my breasts until about a year or so ago. I tend to get heat rashes - or...
    spunkypumpkin spunkypumpkin 18-21, F 4 hrs ago

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    I've had it for a while now, I don't have that many friends and in not that popular tbh. PS does anyone else have problems where loads of people with illegible names Keep adding...
    Randompi Randompi 13-15, F 4 hrs ago

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    When I was about three years old my mother beat me so hard I remember she put vaseline on my bum because it was so red. When I was older I got to pick which belt I was going to be...
    BenBrin BenBrin 36-40, M 2 Responses 6 hrs ago

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    Stay with me and never leave You are the reason I am here You are the voice that calls me out the sweet gentle voice that calms my spirit, I have always needed a guide like you...
    SunlightSeeker SunlightSeeker 26-30, F 6 hrs ago

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    Today in the wonderful world of wanting someone I can't have I was reminded of how painful it is to know the "other person" really does exist. He and I were joking, all day long...
    RaiseYourWhat RaiseYourWhat 26-30, F 7 hrs ago

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    Guys, I'm kind of freaking out right now. So I was on Facebook and was looking through the guy I likes photos and I clicked on it and I don't think I tagged myself in his photo...
    natjensen8 natjensen8 16-17, F 1 Response 7 hrs ago

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    I have Emetophobia since i was in 10th. But now its on extreme level it has made my life like hell, I understand it is just problem of my mind or fear in my mind but why it is that...
    sandy997366 sandy997366 26-30, M 7 hrs ago

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    after the submission of my phd...today i am feeling a sense of constructive enthusiasm in me, even when i am pretty clueless about this exam i am gona give and it seems quite tough...
    snuffal snuffal 26-30, F 7 hrs ago

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    hello ladies i noticed a small cyst forming 1 wk ago. didn't think much of it. i tried caring for it at home; hot baths. did not work. end of week cyst has grown to the size of an...
    Zab88 Zab88 26-30, F 7 hrs ago

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    It was the closest thing to a serious relationship that I had, even though we were only together for a few months. I still really miss him and I think about him even though he's...
    XlizrocksY XlizrocksY 22-25, F 7 hrs ago

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    Things have been going awesome with me and my amazing woman for awhile now since a bad rough patch. Then out of the blue she says she feels she made a mistake by staying and feels...
    Broken31 Broken31 31-35, M 9 hrs ago

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    I'm physically and mentally exhausted. I suffer with chronic depression and anxiety and sometimes I need a break. I have a lot of patience, but there cones a point where I need...
    RubyGirll RubyGirll 36-40, T 9 hrs ago

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    It's not my ex, it's my boyfriend's ex-girlfriend, Kayla. She is completely out of her mind. In high school, she dated this kid and she got knocked up. She went through with an...
    coolestdweebyahknow coolestdweebyahknow 22-25, F 9 hrs ago