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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 33 People

    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 70+ 8 Responses May 28, 2009

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    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 18-21, F 1 Response Mar 1, 2013

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    Related Experiences

    Update! There's hope guys - don't settle! Last time I posted it had been only one month since being cheated on - and I was a mess. Only thing I was sure of is that there was no way...
    imatulipinacup imatulipinacup 22-25, F 1 Response 2 hrs ago

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    My sweet boy was born sleeping. I was 34 1/2 weeks pregnant . He had a true knot in his cord and it was also wrapped around his neck . Burying my son Jai'Marri was the hardest...
    brandi1191 brandi1191 31-35, F 22 mins ago

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    I was diagnosed with endometriosis when I was about 12 years old. That's a lot for a person of that age to take in. You don't really pay attention tot what the doctor is telling...
    brandijeannn brandijeannn 16-17, F 1 Response 2 hrs ago

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    I have major trust issues I can't let my bf rest in peace because all I do is think he is gonna cheat or do something that I won't know about when I'm at work and he's not .. Ugh...
    20andinkedxxx 20andinkedxxx 18-21, F 2 Responses 2 hrs ago

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    For a year I have been working part time 1 hours a day Monday to Saturday then Tuesday to Saturday the only time I've had off is when my work has been shut for holidays like bank...
    charmingcutie charmingcutie 18-21, M 46 mins ago

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    I have one on my back but I need more !! Lol
    20andinkedxxx 20andinkedxxx 18-21, F 1 Response 2 hrs ago

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    I have been to Thailand and I was sad and amazing all at the same time ! Te beaches were lovely !! The night sky was ******* amazing !
    20andinkedxxx 20andinkedxxx 18-21, F 2 hrs ago

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    I had this one the night before last and I barely recall any of it, which is sad because it was very engaging and complex. Basically, I lived in this alternate dimension where...
    PinkMellow PinkMellow 18-21, F 2 hrs ago

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    Now the only thing I want from her is her heart in a jar of embalming fluid next to my bed so I can finally have the peace of my soul that she stole
    malakaixanoctu malakaixanoctu 18-21, M 2 hrs ago

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    my girlfriend is amazing. she's so cute and funny and dorky in a cute way. haha. her voice is adorable. she's beautiful. she's gorgeous. she makes me smile. she makes me laugh. she...
    xxxalyssabrownxxx xxxalyssabrownxxx 13-15, F 1 Response Jul 27

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    my best friend is in prison.. he has 16 more months to go-we have known each other for 8 yrs.. well almost 2 years ago he had me talk to another friend of his that was also there...
    traci1212 traci1212 31-35, F 1 Response Jul 27

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    I feel as though my peers and colleagues are not progressing as fast as my mind, soul and heart are. They are moving at a constant slow speed of mental development as I am becoming...
    oldsouldavinci oldsouldavinci 46-50, M Jul 27

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    I'm a loner I have a job but never had guts to ask a girl out with the fear that whether that girl wud b right for me.I come from an orthodox Indian family. I'm 26 and have never...
    Fancricket60 Fancricket60 26-30, M 2 Responses Jul 27

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    I am the only boy with five sisters. Four of them are older and one is younger. You'd think that growing up in a household full of females that I would know all about women... Haha...
    yossarian1944 yossarian1944 26-30, M Jul 27

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    I have been a lot of times. ;o I think my first was to NC from NJ when I was 3? Then I went to Dominican Republic, Disney World, Michigan. Probably NC more, but I don't really...
    njgirll njgirll 16-17, F Jul 27

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    I have a lot of friends online, but I want more friends in person.. and more people I'm close to. Part of it is that I miss being touched. My boyfriend doesn't like to snuggle or...
    audrig audrig 26-30, F Jul 27

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    I'm not a pervert, I don't find breasts arousing just looking at them. Breasts to me are just a part of being human. I'm not saying its for everyone but women should have the right...
    Noxious123 Noxious123 22-25 Jul 27

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    I have been married for 5 years but we've been together for 17. There was a significant age difference between us (she was older). Long story short, over time, I got extremely...
    vladi7 vladi7 46-50, M 1 Response Jul 27

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    I have many things to talk about if you want to vent or talk pm me :)
    Daddylicksyou Daddylicksyou 61-65, M Jul 27

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    I know I shouldn't believe everything that he tells me because I just meet him and already caught him in lies , but part of me believes him even if my mind knows the truth. Why do...
    mimilsu mimilsu 18-21, F 1 Response Jul 27

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    So I kind of like this guy and named J I've known of him for awhile but I barley started talking to him last year since we had 2 classes together I always thought he was attractive...
    HouseofDeVil HouseofDeVil 16-17, F 2 Responses Jul 27

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    Hey guys, it's been awhile since I last posted. I just wanted to post that my alters agreed to have new names, so these are my alters. Sigma: the malevolent one Delta: the logical...
    MultipleRex MultipleRex 16-17, M 3 Responses Jul 27

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    I basically have 3 best friends, a few online friends who I talk to a little, & my boyfriend. But if anyone here wants to be friends, message me .(:
    njgirll njgirll 16-17, F Jul 27

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    My brother Is alright. Haha, he's pretty funny. We have these inside jokes. We love to make fun of my parents behind their backs lol
    LightTheDarkness LightTheDarkness 13-15, F Jul 27

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    I'm just finishing college and I'm currently with my fiance of 4 years. He told me when we got together that he wanted the same thing... but it's been four years and now he's...
    porcelainsmiles porcelainsmiles 22-25, F 6 Responses Jul 27

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    It's crazy how many friends we have and how little we actually know them. You hang out with them every single day and have fun but still no little to nothing about who they really...
    benj3 benj3 16-17, M 1 Response Jul 27

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    I only have 3/4 best friends, & a few acquaintances. I've had like 2 best friends who aren't anymore. I feel like so many people talk about others it's hard to even find anymore...
    njgirll njgirll 16-17, F 1 Response Jul 27

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    last night, I texted him:"undecided to go out for dinner with my friends or shall I stay home, your opinion matters to me"...he replied" if you believe going is better you go, if...
    hannagrace hannagrace 31-35, F 2 Responses Jul 27

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    I have a green band yellow budgie called joe. He is four years old
    JackJoe1231 JackJoe1231 13-15, M 1 Response Jul 27

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    My friend "Noah" ( fake name ) and I were hanging out at a kick back and I was going thru some jealousy issues with my boyfriend and I was confiding in Noah the whole time. He and...
    BellyBoo5 BellyBoo5 16-17, F 2 Responses Jul 27

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    I just posted something here but dont know how to at something to that post. So I start again. I am a Dutch woman of 54 yo. I am diagnosted with HCL last tuesday. I have been...
    jolandamariette jolandamariette 51-55, F 2 Responses Jul 27

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    My step mom is the most evil person I've ever met. I know that most people say that children/teens have trouble accepting their step parent because they feel as if they are trying...
    jay524 jay524 16-17, F Jul 27

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    I have split personality disorder and it is becoming very difficult to remain one person all day. I'm feel like giving up I don't know where or who I am half the time. No insurance...
    enrichedreamer enrichedreamer 26-30, M 1 Response Jul 27

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    Can money buy me love? I feel so torn & broken inside. I wanna have my heart back. It's broken & not in 1 piece, but I wanna have it back.
    JonDanny JonDanny 18-21, F 2 Responses