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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 34 People

    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 66-70 8 Responses May 28, 2009

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 22-25, F 1 Response Mar 1, 2013

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    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    Related Experiences

    I guess I never thought of myself as weird or alone, but I have realized that I have no friends. I moved to Oregon from Georgia two years ago and I just don't like anyone here. I...
    findingemily findingemily 13-15, F 43 mins ago

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    Argghhh! Stupid ******* just sometimes want to have problems. Way more issues with women than men for my entire life. Yeah, some guys have screwed me over, but it is the women who...
    LilithsRose LilithsRose 31-35, F 1 hr ago

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    don't cheat on your spouse, kuz if you do when you get old and are dying they have the right to have the nursing staff hold your pain meds. ouch should've thought that one through...
    darktigeress darktigeress 26-30, F 1 Response 1 hr ago

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    My dentist told me I need braces. I said okay (I was excited) then he told but first you have to get rid of your baby teethes. I have 4 baby teethes. They are in the front of my...
    lorrena19 lorrena19 18-21, F 1 hr ago

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    I've been having an affair with a married man for about a week. I'm 27 and he's 44. I met him over a year ago as a graduate student and then I began volunteering for his...
    olivehadley olivehadley 26-30, F 1 Response 1 hr ago

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    Just wrote this amazing story and it got deleted unbelievable the things that get deleted anyway I've been doing it with a friend of mine now for the last couple of weeks and I...
    rayinman02 rayinman02 41-45, M 2 hrs ago

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    I have a short temper when it comes to the bus they are always late I also have a short temper when it comes to the system security office I give them the same paperwork every...
    me0883 me0883 22-25, M 3 hrs ago

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    It swirls and is quite erm fleshy so to speak. I have been teased for it and some say nice things others just stare and a few have tried to touch it. I'm not judgmental so if this...
    Selenah Selenah 22-25, F 1 Response 3 hrs ago

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    I had to have a bone spur removed from MY right foot ten weeks Tuesday May 26TH I NOW have a broken foot. I am looking at getting back ON MY feets IN late September OR October.
    Nebmom2 Nebmom2 41-45, F 1 Response 3 hrs ago

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    Telecommunication is one of the present day emerging markets and like any other industry, it too has its own risks operating with unstable changes and developments. Many operators...
    schmit84serge schmit84serge 26-30, M 4 hrs ago

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    So over the past few years right at 10. I have tried to commit suicide right at 10 times and every time failed, from miss fires on firearms to drugs. and every time that it has...
    Mensin2112 Mensin2112 26-30, M 4 hrs ago

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    I used to be really over weight (almost obese) when I was 10 years old. Since then I have lost A LOTTTTT of weight. I'm 15 now and still not comfortable in my body. I have days...
    AnonymousJSS AnonymousJSS 13-15, F 4 hrs ago

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    although I have been through alot I don't look back at life in sadness, I have not lived a super tough life either. But I believe what good is it to dwell on bad things that make...
    youngadult18 youngadult18 18-21, M 5 hrs ago

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    I never thought of them as such but have had recent dates tell me I have great lips and one even said he couldn't take his eyes off them...........cool!
    steverick steverick 56-60, M 2 Responses 5 hrs ago

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    You're 39, you have no masculine traits and now you're asking me to watch you attempt martial arts. This is going to sound betchy, but .....I want nothing to do with this. I got...
    Abayoumi Abayoumi 26-30, F 1 Response 6 hrs ago

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    All my life I have been a closeted bisexual or lesbian even, I don't know, trust me. Family, friends, place where I live would never approuve my choice, because I prefer women to...
    eternalprisoner eternalprisoner 31-35, F 6 hrs ago

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    Ahhh ****!! **** it all The more I practice being open with myself about my self - about my emotions - the more difficult I find it to accept them. There's a divide between my...
    jacquelinejones jacquelinejones 46-50 7 hrs ago

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    I may not be an angel, I may have been reckless in my life yet impulsive. I have broken the law numerous times. Probably break one petty law every day. But despite that. I have my...
    WokenandOpen WokenandOpen 31-35, M 7 hrs ago

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    Just reading the last year of my EP experiences makes me shake my head. I've made plenty of mistakes in love in the last five years. It seems like it's just a part of being human...
    Northernlights3 Northernlights3 36-40, F 8 hrs ago

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    I think we all think have great ideas when actually they are just trashy thoughts.... But insight we consider them as the last COCA COLA in the desert but is not like that!! ME FOR...
    doctor88latingay doctor88latingay 26-30, M 8 hrs ago

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    My parents believe in letting my sister and I have freedoms. If we have our own money, we can use it on pretty much anything we want (within reason). If we buy it with our own...
    FeedeeMaggie FeedeeMaggie 18-21, F 2 Responses 8 hrs ago

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    The odds of me being born is incredibly slim, not only that but I am classified in society as "normal" along with this I also went through life's struggles and realized... I'm a...
    youngadult18 youngadult18 18-21, M 9 hrs ago

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    I am in one of those moments now that I don't know what's really happening anymore. I am a student and I was diagnosed with ptsd and anxiety 7 months ago now. Over the past few...
    misguidedghost9 misguidedghost9 22-25, F 9 hrs ago

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    Anxiety is such a hard thing to struggle with because it's hard for others to understand what you're going through and what you're feeling like. I don't have anyone in my life who...
    epsarah94 epsarah94 18-21, F 1 Response 9 hrs ago

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    Ok, I don't really know where to post this. In fact am not really sure how to explain. But I have to recently thinking about how people appreciate other people with talent. It's...
    CuriousGuy833 CuriousGuy833 22-25, M 1 Response 10 hrs ago

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    I wish I did but I don't. I never have had any really, some days I think I look nice but other days I don't. I just recently made a facebook account and I get loads of messages...
    Aflame22 Aflame22 18-21, F 1 Response 11 hrs ago

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    I only have one true friend and we have been friends since childhood. All the others were never there for me in my time of need even though I was there for them. It isn't easy...
    SammyReb SammyReb 18-21, M 11 hrs ago

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    I know this looks really bad, but please don't judge me. I was 17 when I started working as a waitress in a restaurant in my hometown. One day, as I was about to leave work and...
    ironwoman45 ironwoman45 26-30, F 1 Response 11 hrs ago