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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 33 People

    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 70+ 8 Responses May 28, 2009

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 22-25, F 1 Response Mar 1, 2013

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    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    Related Experiences

    I'm 18 and I was diagnosed with JDMS in fifth grade. I underwent steroid treatment and have been in remission for a few years. Things got really bad when I was sick, but I wanted...
    loganc10 loganc10 18-21, F 1 Response Jan 1

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    I no longer have sex, (well I only have had sex about 10 times, started in my mid thirties and stop about 3 years ago) for many reasons. Main reason it hurts so much and on top of...
    UKtutu UKtutu 41-45, T 3 hrs ago

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    Welcome To My Mind The daily election concerning suicide is nearing its last poll. Life is great, love is wonderful, I have so much to discover! Life is stupid, love doesn't...
    metagross metagross 18-21, M 1 hr ago

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    The world is coming to an end The air is polluted, the oceans contaminated. The animals are going extinct, the economy’s collapsed. Education is shot, police are corrupt...
    TheFemaleGrimReaper TheFemaleGrimReaper 18-21, F 5 Responses 1 hr ago

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    my name is Ciara and I'm 19 and I am currently in the hospital post laminectomy. I have had back pain for about a year now. I had an inflamed SI joint that I recieved 3 steroid...
    cjacobs34 cjacobs34 18-21, F 42 mins ago

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    Does anyone have sleep apnea software to monitor their sleep data through their PC at home? I am using a vpap and am having a really hard time adjusting from auto vpap to vpap...
    True2myHeart True2myHeart 31-35, F 1 Response 2 hrs ago

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    It's been a really weird week this week worst one for this month! I am really disappointed with myself and well thats a horrible feeling to deal with... Hopefully I can resolve it...
    MilweePetite MilweePetite 18-21, F 1 Response 1 hr ago

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    I am holding back tears. I'm so happy. So many good things happening for me. Lost 15 pounds. Decided to weigh myself yesterday and im 15 pounds lighter from my last weigh in...
    HigherCalling HigherCalling 22-25, F 26 mins ago

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    My dad died in a fight when he was drunk when i was 3 . haha. Damn guy. The guy who killed him had knucklebusters like a punch bltch. Too much blood rushed to his brain. I barely...
    Savagez Savagez 13-15, M 3 hrs ago

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    I have social anxiety so I had to leave school at 16 years old. I'm now being home schooled, and have been for two weeks now and the thought of them coming over terrifies me...
    emilythegreat emilythegreat 16-17, F 1 Response 2 hrs ago

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    Wow! Violated doesn't even begin to describe how I feel right now!! I was catfished by a girl by the name of "plunkedd" on okcupid! She was using pictures of a Russian model and I...
    idciloveit idciloveit 22-25, F 1 Response 1 hr ago

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    This is another offshoot of my desire to have my hair cut really short. I sooo want to have the nape buzzed close, I just love the idea of clippers running up it. Why do I feel so...
    PixieDust2015 PixieDust2015 26-30, F 55 mins ago

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    Would anyone be able to guess how old I am in this photo? I am 23.... I think I look 16 😐 .... 😫😫😫 I'll never look my age! I just want to look older. I feel as though I...
    Kristaaaaaaaaaaaa Kristaaaaaaaaaaaa 22-25, F 2 Responses 2 hrs ago

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    So I've seen black shadows since I was little only a few ever made me feel scared. Now I can't stop hearing bells. When I hear them I don't feel comfortable. It's a very dark...
    ScarletVisions ScarletVisions 18-21, F 1 Response 2 hrs ago

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    I have a bald spot on my head that hair never grows from as I had it cut open when my father banged my head on the edge of the door when I was 11. Funny thing is that, even now its...
    SilverLeviathan SilverLeviathan 18-21, F 2 hrs ago

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    I have an oral presentation today and I think I'm gonna be sick... I don't know anyone in that class and i begged the teacher if we could do it privately but she said no . She said...
    TeddyOrTeddie TeddyOrTeddie 13-15, M 4 mins ago

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    What should I do? Bf had been nagging me to delete photos of my ex. I have none on my fb just I am tagged in a few photos of his. I have removed all the pictures of my ex and most...
    LD02 LD02 22-25, F 8 Responses Dec 30, 2014

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    I have a pet wolf (named lucky) I had him since he was a pup he is a red wolf and doesn't have an aggressive side
    Tabaticbloom Tabaticbloom 13-15, F Dec 30, 2014

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    I have a white lab named chip my parents had him since before I was born :)
    Tabaticbloom Tabaticbloom 13-15, F Dec 30, 2014

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    So me and my best friend(guy) work at the same place and we have the same schedule and we live near each other and today he took his car and I took my truck and we just got out...
    Hazel216 Hazel216 16-17, F Dec 30, 2014

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    I have never dated a girl/ woman my age. I dont know why. I mean i am not discriminate against women but ever since i started dating i have always ended up going out with an older...
    fahadkhalid1981 fahadkhalid1981 31-35, M 2 Responses Dec 30, 2014

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    Most of the girls that i have dated have betrayed me. they would say that they liked me that they wanted just to be with me and only me. than i would find them kissing other guys...
    Sladetgx57 Sladetgx57 18-21, M Dec 30, 2014

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    I have bdd and would like to talk to others who share the same experience.
    pixielite pixielite 51-55, F 1 Response Dec 30, 2014

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    I have found two types of people: those that have them (and love them) and those that don't. I love my Monroe, and had my nose pierced as well but couldn't keep the stud in and it...
    MsInvis MsInvis 46-50, F 2 Responses Dec 30, 2014

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    Been beat up more than a couple times and have beaten people up just as much. I was a kid who was bullied who became a bully. I remember one fight i got beaten up so badly that i...
    TheEyeOfHeru TheEyeOfHeru 18-21, M Dec 30, 2014

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    God I ate bowls of chocolate peanut butter and jelly as an after school snack wtf have I done
    MonkeyGirl0909 MonkeyGirl0909 13-15, F Dec 30, 2014

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    So I was talking to my friend yesterday and I realized that I was never hugged as a kid. Idk I just didn't. Any memory I do have of hugs It was because my parents did something...
    SkollHati SkollHati 18-21, M 5 Responses Dec 30, 2014

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    I do have some anger issues but they aren't as bad as my partners, I can control mine whether as she has trouble, she's trying to control them as hard as she can for our baby that...
    tyson2114 tyson2114 16-17, M Dec 30, 2014

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    I have , really . I was 10 at the time and during my bi phase. The car was actually an SUV that was sitting behind my friends house.
    pardax pardax 13-15, M Dec 30, 2014

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    I have insomnia, most nights it's not too bad but tonight I just can not seem to fall asleep.
    TheCreatorOfAll TheCreatorOfAll 18-21, M 3 Responses Dec 30, 2014

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    Earphones have recently broken so I've gone back to rubbish sleep. Struggle to get out of bed and feel tired all the time. Wanted to watch a movie for days but haven't felt...
    1lonelydaisy 1lonelydaisy 41-45 1 Response Dec 30, 2014

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    I just saw two of the cutest/hottest guys (imo) that aren't celebs yet. They were waiters/serving boys in a restaurant. They both have silky soft brown hair. And have the...
    xxxfakerhaterxxx xxxfakerhaterxxx 18-21, M 2 Responses Dec 30, 2014

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