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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 34 People

    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 22-25, F 1 Response Mar 1, 2013

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 66-70 8 Responses May 28, 2009

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    Related Experiences

    I've come to realize that I don't have any responsibilities concerning her, and that I really shouldn't worry myself about her. I do admit its hard for me to ignore her as my fianc...
    Msprissy Msprissy 36-40, F 13 mins ago

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    I absolutely HATE my job, but i am also thankful to have one. I work at the back of a butcher shop, as a cleaner/general assistant, but i work with a bunch of lazy f*ckwits...
    Anth1290 Anth1290 22-25, M 7 hrs ago

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    I am a nice guy when you meet me. I won't be rude. I'll smile and talk with you. But there are things about me that if you knew, you'd be driven away. Weirded out. Frightened...
    DrumheadTrial DrumheadTrial 18-21, M 1 Response 6 hrs ago

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    Well I just found out I lost 5.8 pounds, but the thing is I haven't been exercising, I haven't been taking my weight loss pills, and I haven't been eating healthy just nor as much...
    lovethybey lovethybey 16-17, F 6 hrs ago

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    I was a freshman at high school. There were two guys in my class who always treated people - especially girls - so to say very, VERY unpolite. This meant sexual jokes, touching and...
    lily12120 lily12120 22-25, F 1 hr ago

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    I had a few friends in high school but I lost them all due to a relationship. He didn't want me to have friend other then him he even hated me to hang out with my sister and my mom...
    hiddenjem hiddenjem 22-25, F 52 mins ago

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    Write about your experienceThere are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    I have been blocked by my mother. She's really childish. I'm more mature than her.
    Nickbailes Nickbailes 16-17, M 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    My half blooded sister won't talk to me. My mother gave her up for adoption when I was 2. Maybe it's better off this way. The person she has become seems mean and coincided. :( I...
    jamielove7777 jamielove7777 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    norahcc11 norahcc11 26-30, F 1 Response 7 hrs ago

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    I have trouble focusing on things with one exception... I can knit/crochet for hours, almost obsessively. Anyone else have similar experience? Any suggestions for focusing when...
    absolom absolom 41-45 1 Response 7 hrs ago

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    One day my wrist just started to ache and then it never stopped. I never had any injury or sprain to the wrist so I didn't think much of it at the time. I ignored it for a few...
    Nimy56 Nimy56 22-25, F 7 hrs ago

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    So 2010, August. Found a black spec on left thumb, in back of nail. I (silently) freaked. I was a semi-sexy, semi-attractive 50 yr old (56 now). Now. Shoot I'm surprised if a...
    ninajefferson70 ninajefferson70 51-55 6 hrs ago

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    So far 4 people have told me that they like my voice 😊
    NoPostOnSundays NoPostOnSundays 18-21, F 3 Responses 6 hrs ago

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    I have shot a gun once in my life. It was very cool
    cybschen cybschen 16-17, F 6 hrs ago

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    I think we all do. However, I think that the more bizarre or f'd up your dream is the more imaginative/ creative you are! People who have boring dreams are, I'm sorry, BORING...
    SeanaO SeanaO 18-21, F 4 Responses 5 hrs ago

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    I will always get the last word, not because I have to but most of the time I'm not even finished talking before they're like **** this lol.
    kovykov95 kovykov95 22-25, M 4 hrs ago

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    I have this strong instinct that my fate in finding love will lead me to a guy from different world.I mean outside my place where we both wait longing for a missing feeling ^_^^_...
    GabrielShot GabrielShot 16-17, M 3 hrs ago

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