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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 34 People

    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 22-25, F 1 Response Mar 1, 2013

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    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 66-70 8 Responses May 28, 2009

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    Related Experiences

    when I was 5-6 my dad molested me and my mom denied it and says that the flash backs I get are lies I've filled my head with and now I find out that if my mom gets another thing...
    sirenserenade sirenserenade 13-15, F 1 Response 45 mins ago

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    Can anyone help me I have Cerebral Palsy and I dribble all the time. I have poor mouth control and closure I wear a bib all the time is there any treatment that can be done to...
    Nic1981 Nic1981 31-35, M 1 hr ago

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    I wanted to spread love wherever I go, and I feel as if I have plenty of hearts in my pockets so I want to give it to others that show their true self to me. I felt as if I'm...
    greenamythese77 greenamythese77 18-21, F 1 Response 2 hrs ago

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    I didn't inherit much from my mother, but one thing she and I have in common are that we dream very very vividly, and when we wake up we remember our dreams very clearly. I can...
    mandabanana25 mandabanana25 22-25, F 2 hrs ago

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    I wouldn't exactly say I had anger issues, because I am that quiet one, but I feel like when people treat me like sh*t, I'll just let it go for that moment and go on with my day. I...
    MrBugsyMalone MrBugsyMalone 13-15, M 2 hrs ago

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    I've been struggling with PMDD for many years and despite this each month it's as if I'm surprised to lose control over my own thoughts. I'm a generally positive person with a...
    halloweenandhardware halloweenandhardware 22-25, F 3 Responses Jan 12

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    Love is a term I have given people who I have lost. I think about that maybe I'll meet a girl when I start college or maybe I find one in church but I have a feeling I wont. I feel...
    ou100 ou100 18-21, M 1 Response Jan 12

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    so im 16 and im still a virgin. but I've always wanted to have a baby. not a baby doll. but a real baby. I know I would be a good parent because I treat my pets like my own...
    DaisyGarcia DaisyGarcia 16-17, F 8 Responses Jan 12

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    OMG, does your dreams become more weird by talking about that their weird?. I just had the weirdest dreams ever on my sofa in a small nap, I im not even sure where to start, or...
    mirkwood86 mirkwood86 26-30, M Jan 12

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    i dont undestand why people dont write on this group are you all better itakes me courage to write as i feel likei dont wan to go on this journey anymore i dont wan to live anymore...
    hannahabbie hannahabbie 46-50, F 2 Responses Jan 12

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    How long have you all been on experience project? This March will be 8 years since I am member. I am planning to stay here when I am in my 70's. I have another 40 years to go. LOL...
    mother1983 mother1983 31-35, F 12 Responses Jan 12

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    Patterns. The world is made up of patterns and we're all very uniform aren't we? This thought frightens me, it's straight and to the point. Nothing wavy about it, even though I...
    Sometimesilence Sometimesilence 18-21, F 1 Response Jan 12

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    OK, this dream is actually quite weird, and awkward, and a tiny bit gross. But I need to share it. I haven't told anyone about it, or about how I woke up sweating bullets, with...
    NancyDrewFan NancyDrewFan 16-17, F 1 Response Jan 12

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    I have completely given up on finding someone. I can actually say i've gone as far as to say that I don't believe it exists anymore. What is the point of any of this? I'm only 23...
    travelaround11 travelaround11 22-25, F Jan 12

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    I've known him about 7 years or so and I love him to pieces. Once upon a time we fooled around but eventually went on to be with other people but still talked. I never understood...
    Ordinarylady Ordinarylady 22-25, F 1 Response Jan 12

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    anyone have a Paypal i can borrow??
    watchyourgrammar watchyourgrammar 22-25, F 1 Response Jan 12

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    I just wish he would talk to me, and inspire me enough to want to talk to him about important issues, awful memories, our relationship and even bullshit with... When we're together...
    RKZeus24 RKZeus24 22-25, F 1 Response Jan 12

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    Not from just intimate relationships but from my mother, father, friends etc. I didn't have a great childhood. My mother was verbally and physically abusive, my father was in and...
    Hismom2015 Hismom2015 18-21, F Jan 12

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    Dear Luke, You probably hate me in many ways right now for ending things. I’m sorry. I don’t blame you if you don’t read this. I hope you got your key back safely by the...
    Chaleureuse Chaleureuse 31-35, F Jan 12

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    His name is Lewis Ross and he is the sweetest guy I have ever met and I love him so much. We met last year on the 22nd December 2014. I was out Christmas shopping on Union Street...
    deleted deleted 26-30 3 Responses Jan 12

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    Two years ago on the 9th November 2013, my fabulous mum lost the battle against cancer. She had been fighting it for months and she was getting more sick every day. It was terrible...
    deleted deleted 26-30 1 Response Jan 12

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    All my life I have never know who my real father is and after the age of five I stopped caring. if he wasn't prepared to be there at all for me then I wasn't prepared to ever see...
    deleted deleted 26-30 Jan 12

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    I have worked hard for it since I was that little chubby kid in primary 4. I have been really strict with myself and it has paid off. I have spent five to six days a week in the...
    deleted deleted 26-30 Jan 12

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    I don't know if it's me acting awkward, or that person doesn't like me. I haven't done anything wrong (that I know of), but I feel like she interacts with other people but not me...
    KT3535 KT3535 13-15, F 3 Responses Jan 12

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    i am 15 years old. I have been hospitalized various times. Recently i have been diagnosed with SSD. i am devastated. So many times i have been called a liar, and several hurtful...
    alyssastock123 alyssastock123 13-15, F Jan 12

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    My exs got a new gf, he was bragging about it in class, but when he say my face he stopped. At first I wanted to get mad and then I wanted to cry cuz I realised he's not mine i don...
    Abi0123 Abi0123 13-15, F Jan 12

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    I'm hoping these guys come at least within a couple hours of me when they go out touring for the new album. All the rock star deaths it seems like there have been here lately made...
    RememberTomorrow RememberTomorrow 31-35, M Jan 12