Post

I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 33 People

    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

    Your Response

    Cancel

    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

    Your Response

    Cancel

    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

    Your Response

    Cancel

    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

    Your Response

    Cancel

    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 70+ 8 Responses May 28, 2009

    Your Response

    Cancel

    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

    Your Response

    Cancel

    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

    Your Response

    Cancel

    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

    Your Response

    Cancel

    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 18-21, F 1 Response Mar 1, 2013

    Your Response

    Cancel

    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

    Your Response

    Cancel

    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

    Your Response

    Cancel

    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

    Your Response

    Cancel

    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

    Your Response

    Cancel

    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

    Your Response

    Cancel

    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

    Your Response

    Cancel

    Related Experiences

    I wish I was fearless and bold and, could put up a fight and stand up for myself but the truth is I am as timid as one could ever be. I shy away from strangers and stress out if I...
    patiencesentience patiencesentience 18-21, F 5 hrs ago

    Your Response

    Cancel
    I'm sharing this with you because I want to know how I can move forward from this. I do love my husband but I feel so betrayed by his actions. And not just him his family and...
    2011dolly40 2011dolly40 41-45, F 3 hrs ago

    Your Response

    Cancel
    Hi my name is Laura and I'm 30 years old, I have had HS since I was 17. I unfortunately have the severe case of this horrible condition, doctors and nurses had no idea what it was...
    lauras1984 lauras1984 26-30, F 31 mins ago

    Your Response

    Cancel
    I have trust issues. I haven't ways had them, in my younger years I trusted without fear of pain or betrayals but I can't function like that anymore. When I was 19 I started...
    misspaperwait misspaperwait 22-25, F 4 hrs ago

    Your Response

    Cancel
    Since I told my husband I have DID, I no longer want anything to do with him physically. Sex was always torture for me; it hurt, it's gross, and I never really desired it. I only...
    BrokenOneX BrokenOneX 26-30 1 Response 3 hrs ago

    Your Response

    Cancel
    I have been hurt and cheated on many times and still, here i am, staying with him and loving him. Now, other woman (he denies having any communication with her) is texting me and...
    brokenscarred brokenscarred 36-40, F 2 Responses 32 mins ago

    Your Response

    Cancel
    When I was 18 I got diagnosed with chronic pancreatitis and have had lots of test done but still live everyday in pain. Is this normal for pancreatitis or has anyone have this...
    Josh3945 Josh3945 18-21, M 4 hrs ago

    Your Response

    Cancel
    Before couple of weeks (17 May 2014), I did a safe sex with a prostitute. But I lick her vagina it was unprotected just for a fraction of seconds, and I tasted something I don't...
    rohitram rohitram 22-25, M 2 hrs ago

    Your Response

    Cancel
    I have a couple, one which no one knows. Another a few people know.. one of those people was an "oops, I let it slip" and my mom got a phone call from some place that deals with...
    brittanys13 brittanys13 22-25, F 1 Response 5 hrs ago

    Your Response

    Cancel
    I came out as bisexual to only some people in my family; if my mom or grandparents find out I'll be disowned. :/ I haven't come out as Agender to anyone yet...
    Dessy16 Dessy16 16-17, F 5 hrs ago

    Your Response

    Cancel
    The women of today have tutorials on how to walk in high heels. I wonder what the tutorials were like when foot-binding was popular. I also wonder if the women of tomorrow will...
    thelonewood thelonewood 26-30 3 hrs ago

    Your Response

    Cancel
    Yes, I've never been in a relationship.. There are times some guys and one girl confessed to me. But I've rejected them all. I support lesbians but I'm VERY VERY straight. I don't...
    IdioticBear IdioticBear 16-17, F 3 hrs ago

    Your Response

    Cancel
    I constantly have fights with my mother. Full-on screaming fights. She is almost 50 years old and yet chooses to go for the "I guess I'm a bad mother whoops" line at the first sign...
    HexTek HexTek 16-17, F 3 Responses 1 hr ago

    Your Response

    Cancel
    I have crush on my teacher and I really hate it, he is married I'm only 14 and he is 25+ something he is my math teacher , im grade 9 right now, from previous grade I dont like...
    unicornharthart unicornharthart 13-15, F 54 mins ago

    Your Response

    Cancel
    http://www.experienceproject.com/stories/Just-Have-To-Say/4445569
    converted converted 46-50, M Jun 23

    Your Response

    Cancel
    http://www.experienceproject.com/stories/Just-Have-To-Say/4445569
    converted converted 46-50, M Jun 23

    Your Response

    Cancel
    I have done it a million times it seems from since I can remember. Sitting there when I was little, or standing even to this day there at 16. Everytime it's like time just stands...
    angelw1698 angelw1698 18-21, F 9 Responses Jun 23

    Your Response

    Cancel
    He's sooo amazing but I'll never have him he's gorgeous to me and funny and sweet and just plain amazing but other than that I'm bored someone hmu
    DannyEck9264 DannyEck9264 13-15, F Jun 23

    Your Response

    Cancel
    I have no friends in real life and on here, after awhile, they all sizzle away ._.
    ItsAllMyFaultxx ItsAllMyFaultxx 13-15, M 1 Response Jun 23

    Your Response

    Cancel
    I don't need drugs and / or alcohol to have fun. Just sari, petticoat or nightie or bra or any other dress (worn by women) is enough for me to have fun.
    lingarielover lingarielover 31-35, M 1 Response Jun 23

    Your Response

    Cancel
    I had absolutely no symptoms of narcolepsy until I was pregnant in 2010. My doctor gave me a flu shot and weeks later, BOOM...narcolepsy and cataplexy. I read that a flu strain in...
    missmonmon missmonmon 41-45, F 1 Response Jun 23

    Your Response

    Cancel
    I have been talking to this guy for 11 months straight, but he last four years on and off. In the 11 months we dated but we have just decided that it's easier that we don't but be...
    lilly2136 lilly2136 13-15, F 2 Responses Jun 23

    Your Response

    Cancel
    my ex locked me outside naked in his garden after a shower in the middle of the day.....and this is how i got revenge a few weeks ago......he came home drunk & fell asleep on top...
    JennaTolls JennaTolls 18-21, F 1 Response Jun 23

    Your Response

    Cancel
    I walked in to math class the first day of highschool and sat down in the back corner seat of the class, I like to observe everyone and make sure I know what kind of people they...
    Sajsd67 Sajsd67 16-17, M 3 Responses Jun 23

    Your Response

    Cancel
    It's pretty much every night of this, and it drives me insane. I will go to bed and next thing I know I'm up an hour or two later, and the cycle just keeps repeating. I can't help...
    dyingalittleinside97 dyingalittleinside97 16-17, F Jun 23

    Your Response

    Cancel
    I have an everyday religion that works for me. Love yourself first, and everything else falls into line. © Lucille Ball
    marklovescoffee marklovescoffee 46-50, M Jun 23

    Your Response

    Cancel
    I am going to a geneticist on Thursday to be studied and diagnosed. All of my joints bend further than necessary. The worst pain of my life is when my SI joint and my C-1 and C-2...
    Soultryst Soultryst 26-30, F 1 Response Jun 23

    Your Response

    Cancel
    Yep... I have an account, but I won't post my username here. O-O
    Conrad219 Conrad219 13-15, M 1 Response Jun 23

    Your Response

    Cancel
    For a while I thought I had this wretched behavior under control. And I was completely justified thinking so; after all I did get married... But it seems that not even vowing...
    BlankWhitePage BlankWhitePage 18-21, F 3 Responses Jun 23

    Your Response

    Cancel
    I can't sleep, and I want to talk to someone, but no one is up. So I'm just going to write a story about this. I just learned that they have a name, actually. Whenever I...
    Ikid Ikid 22-25 Jun 23

    Your Response

    Cancel
    I am currently dating a civilian contractor who is in the Middle East. Our relationship started nine months before he was sent. I have never dated anyone whose career hinged on...
    DharmaFrost DharmaFrost 22-25, F Jun 23

    Your Response

    Cancel
    Earlier I had cravings to smell petrol and now I have cravings for the smell of fire
    Frankineedles Frankineedles 13-15, F Jun 23

    Your Response

    Cancel
    I have a few on my wrist and One on my arm hard two see but if you look close you can see it i got it around age 8 when i burnt my arm off the lamp raching over it for somthing
    DarkpawTheSissyFolf DarkpawTheSissyFolf 18-21, M Jun 23

    Your Response

    Cancel