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I Have Amyopathic Dermatomyositis

A Amyopathic Dermatomyositis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyopathic Dermatomyositis. You're not alone. 33 People

    Diagnosed In 2003

    Initially I was given plaquenil (caused a gawd awful rash), followed by prednisone to alleviate the rash, then methotrexate. Honestly, none of these worked and the side effects sucked. Eventually my rheumatologist found a study linking Enbrel and DM. I started giving my self...
    Yndmup Yndmup 51-55, F Sep 29, 2013

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    Living Each Day

    Hi my name I's Veronica I'm 36 and i have a challenge of Dermatomyositis it I's very hard to live with this i would just like to talk to someone with the same thing I'm going threw . I am to the point of heading toward the next and last change i was praying i wouldn't ever have...
    Roxy12345 Roxy12345 36-40 2 Responses Jun 20, 2012

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    I Have Dermatomositis

    i have dermatomyositis. before i got this i weighed 97 pounds. now i weigh 200 pounds. i havent had a date in 2 years. it seems men  only want someone who is skinny. i will be on predson for the rest of my life, so i will always be large.
    lacleeta lacleeta 46-50 3 Responses Apr 7, 2009

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    Dermatomyositis

    hello, my name is K and I dont have dermatomyositis but my best friend has. I was wondering how long you have this desease and if you are getting any better after the treatment. where do you take the treatment? He doesnt want to talk about it and he doesnt even want to see...
    katerinapap katerinapap 18-21 9 Responses Aug 24, 2008

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    My Experience

    HelloI have been diagnosed with Dermatomyositis now for the past two years.  i originally got the rash around the eyes and thought I was alergic to some make up or soap etc.  I changed everything, went to a naturopath and had hair strand test done.  Nothing major came up...
    bowles9 bowles9 41-45 1 Response Oct 19, 2011

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    I Hope All Dm Sufferers Read This

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 Feb 1, 2012

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    I Also Was Diagosed With Amyopathic Dermatomyositis

    I was recently diagnosed. My rash started on my cuticles right before Christmas. It has since spread to all the fingers of my right hand, my neck, my forehead, chest, hip bones, elbows, ears and nose. I am on 30 mg of Prednisone and also on Plaquenil. Plus supplements. I have...
    cpport cpport 46-50 3 Responses Feb 8, 2011

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    Experiencing Extreme Fatigue With Amyopathic Dm

     It's taken years to diagnose DM since the first symptom appeared in fall '99 with a persistent red ring around left eyelid.  In '04, a red patch appeared on rt. side of neck; in 10/06, red splotchy spots appeared on the knuckles and joints of both hands, one looking...
    willamae willamae 70+ 8 Responses May 28, 2009

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    Hey (:

    Hey, my name is Martha and I was diagnose with dermatomyositis since the age of 1 1/2. I am now 20 and still have dermatomyositis. Sometimes i dislike myself for being diagnose with something that can't really be cure or that's what i've heard. sometimes i feel that i won't find...
    sunflower300 sunflower300 18-21, F 1 Response Mar 1, 2013

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    Is It Normal To Have Flares Everytime I Get Off Of Predisone?

    I was diagnosed with this disease in May 2012. I have been on methotrexate, plaquenil and predisone since. The predisone began at 60 mg which really helped the rash. My rheumatologist had me gradually decrease the predisone but I cannot get below 5 mg without the itching...
    abikat abikat 61-65, F 1 Response Nov 2, 2013

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    Dermatomyositis

    Hello everyone I am a 21 year old female who was diagnosed with dermatomyositis at 13. I must say at that age is was pretty hard but I had my mother who supported me %100. Dealing with prednisone for such a long time I gained an extreme amount of weight and my face looked like a...
    Notgonnabeatme91 Notgonnabeatme91 18-21 1 Response May 17, 2012

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    Diagnosed With Dm A Year Ago.

    Last year on the 13th of January I got diagnosed with Juvenile Dermatomyositis. They told me the reason it was JDM was because I had muscle pain, ulcers, a rash and fatigue. My liver started to fail and got down to 3% function, I couldn't use my hands as they were swollen and had...
    ErrynDundon ErrynDundon 18-21, F 2 Responses Jan 6, 2013

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    I Have Had Dm Since 1984. You Can Be Sure That Is What It Is And These Are Tests To Verify It.

    I have had DN since 1984. There are 3 tests to be sure it is that. One test is a blood test to check CPK count. It is the muscle enzymes in the muscles from damage. There isthen a meurological test to check the muscle activity with needles into the muscles. but to positve always...
    dunawaysm dunawaysm 51-55 1 Response Feb 1, 2012

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    Prayer For Urgent Causes.....

    For quick help... Pray to Saint Expedite Saint Expedite, you lay in rest. I come to you and ask that this wish be granted. ____________ (Clearly express what you want, and ask him to find a way to get it to you.) Expedite now what I ask of you. Expedite now what I want of...
    Gawtcha Gawtcha 26-30 Nov 24, 2011

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    Hi =d

    Hi, I am seventeen. I was diagnosed with DM at age six. I went from a happy, healthy child to an overweight bum. I was on mass amounts of steroids. Luckily I went to a private school I had been attending since pre-school, otherwise I may have had a hard time fitting in. The...
    bubblesmile22 bubblesmile22 16-17, F 1 Response Sep 11, 2009

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    Related Experiences

    Hi, I'm a 47 year old nurse who was diagnosed with Dermatomyositis about 5 years ago. I have undergone all of the medical therapies available including several off label IV and IM...
    robinmac robinmac 46-50, F 1 Response Dec 4

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    It's a terrible thing to know that you have always disappointed your own father, yet at 34 years old this is the realisation that I have gradually awakened to. Every year, I...
    Kitty786 Kitty786 31-35, F 14 hrs ago

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    Hello, I am new to the forum and I deal with C-PTSD. It's caused me to become a hermit who lives by herself and has no friends. I try to meet people and I'm friendly enough, I just...
    CanadianKestrel CanadianKestrel 31-35, F 2 Responses 18 hrs ago

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    You know, high school is a lot different than I thought it would be. People aren't mean or rude; for the most part, that is. I go to a small school, so everyone knows everyone...
    Anonymousgirl152 Anonymousgirl152 13-15, F 1 Response 17 hrs ago

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    So yeah, I'm 13 and I've never met him, my mum told him she was pregnant and he left and never came back. I can find him coz my mum says that he gave her a fake name and a fake...
    cazziefish cazziefish 13-15, F 1 Response 10 hrs ago

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    I had the absolute worst panic attack last night. I mean, I've had little ones before, like with being around a large group of people ( I have bad social anxiety), but I will never...
    lizygurl lizygurl 18-21, F 9 hrs ago

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    Mine are a 34GG and I'm only a size 10 (UK) which makes them look like footballs stuck inside my sweater so it's not easy to hide them! But I want to ask a question really. Have...
    Bustyshylady Bustyshylady 31-35, F 5 Responses 6 hrs ago

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    I've known him for two years. He always makes me smile and laugh when I'm upset, teases me, jokes around and worries about me when I have problems, spends time with me talking...
    sweetice007 sweetice007 18-21, F 1 Response 6 hrs ago

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    in life, in future. I have faith in balance, and that something cant exist without its opposite. The only thing that can exist without an opposite is nothingness. and we know, at...
    ThePinkPowerRanger ThePinkPowerRanger 31-35, F 1 Response 4 hrs ago

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    I don't understand why people like to hurt me....Im not a bad person, im actually really nice but people still feel the need to treat me like I have no feelings. I used to have...
    Imstillhere122 Imstillhere122 18-21, F 3 hrs ago

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    I have to be completely honest with all the guys on here....I am a player. I have settled down now because I found the perfect guy for me. For any guys on here that thought they...
    smooches smooches 22-25, F 2 hrs ago

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    The Christmas season is now in full swing. It's been a very tough time for so many on here. A broken heart. That things aren't as they used to be. The holidays bring out so much...
    Beanbella Beanbella 31-35, F 1 Response 53 mins ago

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    why did you add me to your circle? I say this because I usually add people who have something in common with me or that I find witty or kind. I find it interesting when people add...
    greeneyz83 greeneyz83 31-35, F 2 Responses 27 mins ago

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    I have 24/7 high pitched ringing in my ear, head starting several months ago.. I failed a hearing test for my dream profession because of it. I guess it's all my bad luck, was...
    arlfense arlfense 26-30, F 19 hrs ago

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    Yep I do! I was always one of those people who thought PTSD was all in your head. A fake syndrome just to get attention. Well I got a wake up call! I got into a head on car...
    LetsGetDogWeird LetsGetDogWeird 18-21, F 1 Response 19 hrs ago

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    Wish Seven years I’ve been waiting forA Christmas with you I wish forJust like the other years that passed byMy wish for Christmas never gone byA thought bothered my mindHow...
    Amago Amago 13-15, M 1 Response 18 hrs ago

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    For many, Christmas is the most wonderful time of the year; well maybe for everyone except the children of the comedian that became infamous for saying that he bought his children...
    fungirlmmm fungirlmmm 41-45, F 11 Responses 18 hrs ago

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    'Twas the night before Christmas Eve, and all through the barber shop, not a customer was stirring, not even a cop. The clippers were hung by the barber chair with care, in hopes...
    FlattopJeff FlattopJeff 46-50, M 17 hrs ago

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    I can't really remember the last time I was happy. I mean, I've laughed and smiled, and even on the surface been happy, but its always shallow. underneath everything is a deep...
    Phreakaccident12 Phreakaccident12 18-21, M 17 hrs ago

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    I guess it's more of a gum ache. I've had toothaches and they feel the same. But my gum is like split open and trying to kill me I think. It was something I ate. I could have been...
    DarkwingGoslyn DarkwingGoslyn 31-35 17 hrs ago

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    I have to many naughty thoughts in my head love to share it with one heck of naughty female out there. Send me a naughty pic so I know your real.. Wink wink
    horneybear79912 horneybear79912 36-40, M 17 hrs ago

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    I am open minded guy and want to make news open minded friends. Open to any topic and too all lifestyles. I want to have news friends here. Man, woman, couple, young or old, race...
    naughtyguy13 naughtyguy13 26-30, M 16 hrs ago

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    Find Nemo Survive a zombie apocalypse Find a one ended stick Dig to China Meet Austin powers Go to Smallville Sleep for 48 hours Become a millionaire Find a pot of gold at the end...
    jade0417 jade0417 18-21, F 2 Responses 16 hrs ago

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    In school, all the girls had to have injections and I'm absolutely terrified of needles and when my class got called to the hall to have the injections, I started to get really...
    Sinnister14 Sinnister14 13-15, F 2 Responses 15 hrs ago

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    Okay so I have this issue where whenever I like a guy and they ask me out and I say yes I sometimes question, does he really like me, or is it because he wants pics or does he take...
    FranceEtMusic FranceEtMusic 13-15, F 1 Response 15 hrs ago

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    Isn't it weird when you wake up and feel like you're floating? I have it all the time, it's like I stepped out of my body for a few seconds. :D
    raiinbeau raiinbeau 16-17, F 15 hrs ago

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    If a suicide bomber strikes twice does he have to be retrained?
    LTEP69 LTEP69 51-55, M 2 Responses 15 hrs ago

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    For the life of me I can't remember if I have a bad memory or not
    romanticheart77 romanticheart77 51-55, M 14 hrs ago

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    Would love to have more NS CD's come out on here and perhaps we can get together if we can get a group together... mutual emotional support, tips, and fun.
    MsMarcy MsMarcy 41-45 14 hrs ago

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    No matter what i'll be here for you even if you don't want me to.. if you have no one, please remember: LamPake's still here. :)
    LamPake LamPake 26-30, F 1 Response 14 hrs ago

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    When I was about 10/11, my cousin who is about 2-3 years older than me proposed to have sex. & he basically peer pressured me. Although I was like nope nope last second. I told him...
    thegurlosalind thegurlosalind 13-15, F 1 Response 14 hrs ago

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