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I Have Amyoplasia Congenita

Amyoplasia Congenita anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Amyoplasia Congenita. You're not alone.

    I was born January '81 without a thyroid gland. My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got...
    mnb99 mnb99 31-35, F 2 days ago

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    I was watching a documentary on domestic violence a week ago. They spoke of abuser traits and it dawned on me how much my dad fits that profile. He has always been so hard to deal...
    JasmineRoses JasmineRoses 26-30, F 1 Response 9 hrs ago

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    I found out on Christmas i have glitter known as herps. I prefer to call it glitter. Im going through a process of accepting that i gotten this. I'm a pretty girl and now i have...
    bakeoflove bakeoflove 26-30 1 Response 15 hrs ago

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    -Get a job/financial aid so I can be on my own and pay for my studies. -Get a workout schedule/diet plan so i can finally drop those extra pounds that like to stick around -Get an...
    aFuzzyBlouw aFuzzyBlouw 18-21, M 1 Response 14 hrs ago

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    YES, I WANT YOUR OPINION. ;) ...It seems to me that by the time most people get here, we are at the point of ranting...or, at least, to the peak of frustration. Today, right now...
    ImnessAntiess ImnessAntiess 26-30, F 13 hrs ago

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    I said that I'd write PART 2 ;) So, there it is. About the breaks... I am virtually relentless in doing whatever I can to make what he wants happen, especially in light of what...
    ImnessAntiess ImnessAntiess 26-30, F 12 hrs ago

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    I hate when my girls don't act as well behaved as they can be. I have a 5 and 7 year old. We had friends over and they were over excited. Being boisterous. Not responding to my...
    Sunrise13 Sunrise13 31-35, F 10 hrs ago

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    There can be no arguing. It's normal in any relationship to have an argument every now and then. I'll even take some bickering instead of real arguing. However, in my relationship...
    Remotay88 Remotay88 18-21, F 2 Responses 9 hrs ago

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    I will have to go to the hospital morrow I have some serious pain in my scrotum and one side is swollen, I have to self catheterise and I think I have a bad uti
    wheels1972 wheels1972 41-45, M 4 Responses 9 hrs ago

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    Okay, so my boyfriend is very good to me when I am good to him(not accusing him, not being jealous and making him stressed out) he's great,caring, likes me hanging out with his mom...
    MissLizy MissLizy 22-25, F 7 hrs ago

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    I have gone just over 2months barely pulling. I pull the odd lash now and again but have managed to fight the urge. It has been really had, especially on rough days when I'm...
    0justme0 0justme0 26-30, F 1 Response 7 hrs ago

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    I'm 21 and single. I'm not a virgin but when it comes to a genuine relationship... I have never had one. I have been rejected by all the girls I really wanted beside me. The...
    Nameless93 Nameless93 18-21, M 6 hrs ago

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    One thing I want to discuss concerns the current situation in New York City with Mayor Bill de Blasio and the police. The fact is, much of the NYPD never liked Mayor de Blasio in...
    Rutterman Rutterman 36-40, M 3 Responses 6 hrs ago

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    Relationships suck when your partner likes to argue. I hate it. He hates it..This isn't the first argument. Things are not suppose to go this way, and to top it off. My bf, says...
    87athleteunknown 87athleteunknown 18-21, F 5 hrs ago

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    Just one conversation..... It just took one conversation, the one we had the other day and all the memories are brought back again.I remember all the moments we shared, the laughs...
    MsDemeanorMe MsDemeanorMe 31-35, F 1 Response 4 hrs ago

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    I've known him for two years. He always makes me smile and laugh when I'm upset, teases me, jokes around and worries about me when I have problems, spends time with me talking...
    sweetice007 sweetice007 18-21, F 4 hrs ago

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    A Life-LessonThere! little girl; don't cry!They have broken your doll, I know;And your tea-set blue,And your play-house, too,Are things of the long ago;But childish troubles will...
    bluefirelady bluefirelady 41-45, F 2 Responses 19 hrs ago

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    I hoped to hide my affair from my H. Didn't want him to think that my wanting to leave him had anything to do with the affair. But my H found out somehow and he's hurting bad. I...
    nolasanchez30 nolasanchez30 31-35, F 1 Response 18 hrs ago

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    It all started off when I went to the Doctors for some routine blood work and a PSA test....she noticed some unusual things and investigated further. Well it turned out that I...
    Bikerdude777 Bikerdude777 51-55, M 18 hrs ago

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    I might not be the best looking or most intelligent women. I may not have loads of money. BUT I have friends that love me, a family that loves me. I have a kind heart and an...
    0815Jade 0815Jade 22-25, F 16 hrs ago

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    Bad dreams...the same one just varied. One where I am out of control of my own life. Where others, normally my mom steps in and tells lies to the authorities and I wake up or find...
    searchingfar searchingfar 22-25, F 1 Response 15 hrs ago

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    This is the first Christmas I haven't enjoyed since I was a kid when my Pop passed away on Christmas Day. I have been so emotionally and upset and so much going on with family and...
    onlytrusthim onlytrusthim 36-40, M 14 hrs ago

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    What am i to you , i mean look at my name on ep . I often wonder why i don't have anyone close to me . For a long period of time, i have been rejected by people. I tend to have a...
    whatdoyousee whatdoyousee 18-21, M 2 Responses 14 hrs ago

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    Im 20 years old and I have had SM my whole life. I only got medication when I was around 10, and since then I have never gotten treatment. I keep all my thoughts inside, and how I...
    sm994 sm994 18-21, F 2 Responses 13 hrs ago

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    What happens if I am wrong - in the future you find all my ideas are hogwash - you have the same sum of monies in a offshore account. Easy access, you've lost nothing.Seem for...
    Darronbanki1 Darronbanki1 31-35, M 1 Response 13 hrs ago

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    Yes I have it and I hate it,I want to get help but sometimes I don't want help from others. I realized lately I start to get depressed for no reason and I am sometimes irritable...
    AJMClassof2014 AJMClassof2014 18-21, F 3 Responses 13 hrs ago

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    I was diagnosed with POTS when I was around ten. I have been on fludrocortisone (florinef) and atenelol ever since. My husband and I are wanting to get pregnant, and my...
    kdav12 kdav12 22-25, F 1 Response 11 hrs ago

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    I wanted to share what i felt like , but my story got deleted. I wanted to post about the way a teacher of mine treated me, but it was inappropriate , while stories of perverts and...
    sparkydream sparkydream 18-21, F 9 hrs ago

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    To you all who choose to pick on me, and bully me: I will not stop being me, simply just because you think I shouldn't be. And all the rumors you spread about me being a boyfriend...
    advicefairy advicefairy 13-15, F 3 Responses 6 hrs ago

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    I think I want to end my life. Its so hard having people in your life that you love and care about treat you like crap . There has been so many times when I tried to slit my wrist...
    insanebeauty insanebeauty 22-25, F 1 Response 23 hrs ago

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    Well. I thought I met the most wonderful beautiful human being in my life when I met him. He was everything I asked for and wanted in a man. He was strong, hard working, caring...
    aqua83 aqua83 26-30, F 1 Response 23 hrs ago

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    I grew up in a predominantly white community. It never crossed my mind that I could be in a relationship with someone of a different ethnicity. One of the great things about...
    curiousguyinga curiousguyinga 36-40, M 4 Responses 18 hrs ago

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    We have a willow tree in our yard and when I get in trouble I have to cut a switch from it and take it to my dad and he whips my bare legs with it.
    emdavis emdavis 18-21, F 1 Response 18 hrs ago

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    I haven't purged in 4 days, mostly due to eating below my limit but my stomach feels slightly better and I have actually lost some weight. I'm sure I'll binge any day soon and...
    poodahpop poodahpop 18-21, T 1 Response 16 hrs ago

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    last night, I dreamt that I have as going to end it all - planned out to a T, no one should have found me until it was too late, death by gunshot. I did everything I could to tie...
    beingbrye beingbrye 22-25, T 1 Response 15 hrs ago

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    its pretty long and not that well written but my friend thinks i should share it. This is the 1st 20 years of my life This is the story of a broken man. Or more precisely, how he...
    TheWickedJester TheWickedJester 26-30, M 15 hrs ago

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    I have maybe....6 secrets that I have never told to anyone. Not even family members know what they are o.O
    Heart4Jesus Heart4Jesus 16-17, F 1 Response 14 hrs ago

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    I am very happy for the responses I have received for friendship and sharing my experience with COPD. I will continue to promote Pulmonary Rehab. You maybe surprise at what you...
    einnim einnim 61-65, F 12 hrs ago

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    I have some stories but 1 I remember I was a teen and me and my friend was playing at his house and his room was the basement his bed was down there and it was wide open like just...
    db6000 db6000 36-40, M 1 Response 10 hrs ago

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    Anyone hear have strange symptoms with their anxiety? Like trouble swallowing food? I know that can be caused by anxiety, but it's still really scary. I am in the middle of a panic...
    MeowOnMe MeowOnMe 18-21, F 6 Responses 9 hrs ago

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    I don't have any Friends. The last 4 years i don't have any friends, because i'm really shy. But now i Got Friends. But i'm only with Them in school, and talk to Them there. I'm on...
    SarahHansenCph SarahHansenCph 13-15, F 9 hrs ago

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    Hmm i wonder if i should remove this experiance... Im so much happier these days... I have people from my elementary school hunting me down and apologizing for the hell they caused...
    sassysauron sassysauron 18-21, M 2 Responses 6 hrs ago

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    I have lost about 110 lbs so far. One interesting part of the experience is how differently people treat me. It is somewhat disturbing how stark the difference is. People are...
    zooomzoom zooomzoom 36-40, M 1 Response 6 hrs ago

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    In 2004 I came across a guy who got me mad .i do not want to mention his nationality for safety reason but he is a white man from a Western European number and I have an Indian...
    Anonymous79ea Anonymous79ea 31-35, F 2 Responses 5 hrs ago

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    I can have really dirty thoughts like I want to write a sex book I have a really dirty mind.
    lexinwonderland lexinwonderland 13-15, F 4 hrs ago

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