I Have An Autonomic Dysfuntion Pots

Personal Stories, Advice, and Support 159 People

    On Procrit - Anyone Else?

    Hello, I am a 55 year old who has had POTS disease all my life but in 2002 it destroyed me. I got sick with full blown POTS after a mono-like virus (seems to be common). I went through the typical BS with lots of doctors telling me I was crazy and take six Prozac and don't call...
    tarnsong tarnsong
    51-55, F
    Apr 4, 2011

    To anyone with any questions about POTS

    or wanting some enlightenment or to have a laugh check out my blog at www.potsisthepits.com
    cassidybute cassidybute
    18-21, F
    3 Responses Jul 1, 2014

    Does anyone else with POTS have extreme

    reactions to stress? For example...I thought a cop was pulling me over so I thought "well this sucks", and of course I got a little nervous....but my body completely freaked out and I had no control...like a severe flight or fight response. My body was shaking, temp rose, heart...
    lisam1414 lisam1414
    26-30, F
    3 Responses Mar 19, 2015

    i have created a circle

    for teens with pots if interested (:
    sierraboo214 sierraboo214
    18-21, F
    Dec 7, 2015

    I Have Pots?

    I went to the mayo clinic in Rochester Minnesota in the fall of 2010. They diagnosed me with POTS among many other things.. But i honestly believe that I was misdiagnosed.. Can you guys tell me how pots affect you? and what exactly the symptoms are?Thanks, Nicole 
    nwarwick11 nwarwick11
    18-21, F
    5 Responses Nov 15, 2011

    I made a blog to tell my experience

    and help others who are just as frustrated with pots. Check it out! Potsisthepits.com
    cassidybute cassidybute
    18-21, F
    Aug 11, 2014

    Fun Diagnosis

    I was diagnosised with P.O.T.S in February of 2009, and have been admitted to the hospital three times this year for problems related to this disease. I've been having a hard time finding doctors that are familiar with this condition. Because of that one of the reasons I...
    aironeko aironeko
    26-30, F
    4 Responses Nov 10, 2009

    I Get Potsy

    I was diagnosed with POTS in 2009. I was forced to quit my job and have been home this whole time. This has been a realy tough road for me and slowly but surely some of my symptoms has improved. I am working on my second college degree....this time online. I am now trying to...
    anniem84 anniem84
    22-25, F
    3 Responses Mar 10, 2011

    I was diagnosed this past fridayand I really

    need info and support. This is no walk in the park. So many questions. Theres also no specialist in tampa fl. Help!! Ughhh
    devinmarieb devinmarieb
    46-50, F
    1 Response Apr 27, 2015

    Has anyone gotten IV saline therapy

    for POTS??? Has it helped??
    december789 december789
    18-21, F
    1 Response Oct 22, 2014

    I have POTS was diagnosed

    when I was 24 back then I was told I'd be in a wheelchair by 30 I decided then that there was no way that was going to happen I was among the first to be diagnosed in 37 now
    elliePOTS elliePOTS
    36-40, F
    Jul 25, 2014

    Strength: An Abstract Psychological Trait

    We all have different stories, but we share the same battle. Some of us may be stronger than others in one way, but weaker than most in other ways. I've learned that my story is nothing special, once you become associated with something "un-normal", the definition in itself...
    kbarrios93 kbarrios93
    18-21, F
    Apr 14, 2013


    Does anyone live in or near Chicago? It would be nice to have a fellow POTSIAN closer to home to chat with and show each other support.
    Carterlovely Carterlovely
    3 Responses Apr 18, 2012
    cassidybute cassidybute
    18-21, F
    Aug 22, 2014

    I Have Ncs And I Think Pots

    Hey Everyone!! I'm back again!! Now cancer free, but now out of work for the past two months. I was punched in the head several times at work and suffered a concussion, from that, I had my first syncope three days later. I didn't have any other symptoms or another syncope for a...
    ekreile1 ekreile1
    22-25, F
    1 Response Jun 2, 2013

    Anyone else in the military get this?

    My PCM has been dodging the med board questions.
    cgmusaf cgmusaf
    31-35, M
    1 Response Sep 27, 2015

    Are There Different Forms Of Pots?

    Hi Everyone,Recently Dagnosed with  POTS and trying to cope with my huge change in life!  My questions:Are there different forms of POTS?Are there successful outcomesof POTS?Will it go away or affect our lives forever?Why is the first reaction from physicians "Anxiety"?Is there...
    scortes520 scortes520
    1 Response Sep 28, 2011

    Almost There

    Hey, I'm Mo and I just joined EP. In the begginning of these very long eight months, I was diagnosed with mesenteric adenitis, then mononucleaosis, and now in a couple weeks, POTS. And the docs still don't understand the ever present abdominal pain I have gone through day to day...
    justmo63 justmo63
    13-15, F
    2 Responses Jul 8, 2012

    I want to make a POTS group

    that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789
    18-21, F
    1 Response Sep 10, 2014

    Sometimes You Just Gotta Laugh......potsy Comedy

    Hello my fellow POTSy soldiers :0)   Ok so one of the first things I found in my research after being diagnosed with POTS is that your mood definitely affects your symptoms. We are known for having hormonal imbalances so we tend to be a little more moody. I have to give...
    anniem84 anniem84
    22-25, F
    Mar 11, 2011
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