I Have An Undefined Illness

Personal Stories, Advice, and Support 40 People

    Every Week

    I get sick every week. My throat swells up and blisters. I run a fever. I cough. I get ear infections. What is this? Why is this happening? Does anyone know a condition involving these symptoms?? please help me, I can't fail another year of school from absences! I'm 14 in 6th...
    LizzyLabyrinth LizzyLabyrinth
    13-15
    1 Response Dec 28, 2010

    Today's Appointment

    My mood is glum today. Frustrating appointment with my rheumatologist. He had me repeat my bloodwork,added a few more and a urine test. If it wasn't for the fact he was doing all this I'd clobber him and give up. He acknowledges the test shows something wrong but has insinuated...
    projectingexperience projectingexperience
    31-35, F
    2 Responses Sep 22, 2010

    Possible Inherited Metabolic Illness

    I am a 34-year-old independent woman. I am strong and self-sufficient in many important ways. However, I struggle with a possible inherited metabolic disorder (along with my younger brother who was a very sick child and an older sister who is very sick now, both with the same...
    Mavety Mavety
    31-35, F
    1 Response Sep 9, 2012

    Latest

    I saw my rheumatologist at the end of August and have a follow-up in four days. The blood results showed abnormal ANA(anti-bodies),low white cell count and high inflammation. Everything else is fine. He says this is more consistent with lupus than rheumatoid arthritis. He started...
    projectingexperience projectingexperience
    31-35, F
    Sep 18, 2010

    What The Hell Is Wrong With Me?

    I have been living with chronic pain and fatigue for years now. I suffer everywhere;every muscle and joint. My bones in particular have gotten worse. I was diagnosed in May 2001 with fibromyalgia. I recently have begun seeing a new rheumatologist. He did some bloodwork and...
    projectingexperience projectingexperience
    31-35, F
    6 Responses Aug 3, 2010
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