I Have Ankylosing Spondylitis

Personal Stories, Advice, and Support 160 People

    The Beginning

    I guess it all started with the lovely Epstein Barr Virus (aka mono). This terrible virus was running rampant on campus and in my dorm. It made its way down my hall and even with constant hand sanitizing and my arsenal of vitamins I was hit.. and hit hard. I had a fever and...
    LiveIt28 LiveIt28
    18-21, F
    1 Response Jul 11, 2013

    "it's All In Your Head!"

    Wow.  I'm very happy to have found this forum, and especially since it seems to be current.  I'm trying desperately not to cry in relief! How many times did you all hear that "it's all in your head!"???  (The other common response I've received from every doctor I...
    lilabiene1 lilabiene1
    41-45, F
    3 Responses Sep 20, 2010

    AS, As A Women, 28, Feeling So Alone.

    Starting after my new job as a nurse, I finally got a job with kids after working with adults for a while. I had a physical for work and all labs were normal except my platelets, they were elevated, and being a nurse i automatically get worried over all health conditions, but...
    Britbrat85 Britbrat85
    31-35, F
    2 Responses Sep 27, 2013

    i mitigate the syptoms of AS by cutting out

    starch in my diet. WORKS! it won't harm you to try it, message me if you want to know more
    deleriously deleriously
    41-45, M
    1 Response May 4, 2015

    As Medication

    I have AS and have been offered the chance to take anti TNF blockers and was wondering if anyone had any experience of these medications?
    kevinf27 kevinf27
    31-35, M
    2 Responses Jan 28, 2010

    You Don't Look Sick!!

    I am 33 years old and was diagnosed when I was 29.  Went from one week doing spring cleaning in my house to literally not able to walk the next.  Took a few months to be diagnosed.  Was very scary thought it just had to be horrible if the doctors could not...
    rboudreaux rboudreaux
    31-35, F
    Sep 27, 2009

    I am 23 years old and a week ago it was

    confirmed that I have ankylosing spondylitis.... My WHOLE life it's always been a possibility, my father has it and over his 50 years of living it has disabled him. So like I said there was always that possibility in the back of my mind and I've dealt with back issues for awhile...
    AlRoberts AlRoberts
    22-25, F
    Aug 27, 2015

    Combat Medic

    My name is Martin. I'm a combat medic currently serving in the US army. I was diagnose with AS last year while deployed. I have been in pain until this year thank to physical therapy and my medical provider who i am working for. When i was diagnosed i when in to isolation and...
    blackopsAngel blackopsAngel
    26-30, M
    Mar 23, 2013

    20 Yr Old Sailor Diagnosed With As

    Hello I am a 20 yr old female that was Diagnosed about 9 months ago with AS. Took almost 3 years and 4 different doctors to be diagnoses. At a point I really thought I was crazy....kinda like a mind over matter situation I was just imagining the pain.... I am also a sailor in the...
    Jadders4 Jadders4
    6 Responses Jan 21, 2013

    Got Well From As Believe This Please

    Hi Iam charlin joseph from india age 30yrs old. AS diagnosed only in 2008 and i was in pain for several years but pain will come and go. However in 2008 august the pain was so worse that i could not walk elbow knee neck and hip joints are so effected by the inflammation that i...
    kevinjoeseph51 kevinjoeseph51
    6 Responses Jul 31, 2010

    Looking For More Information

    I'm a student training to be a doctor, and have heard very little of this even while studying. If possible would any one share there experience with me? I always promised that if I managed to get a medicine course id try to greatly help people, and the lack of attention this...
    Ciarasjen Ciarasjen
    18-21, F
    4 Responses Nov 13, 2013

    Ankylosing Pondylitis (pain And Trouble)

    I, Ajay Kumar, am suffering from Ankylosing Spondylitis. Many years passed. Consulted many Doctors but still in too much problems of pain on movement. Kindly intimate for getting free from this or at least to get easy on movement.
    ajaykumarpari ajaykumarpari
    51-55, M
    6 Responses Nov 13, 2012

    I Have Ankylosing Spondylitis

    After years of pain, and doctors ignoring, and shrugging their shoulders, and I began to have a bent back, which no doctor cared much about that either!! Then I got uveitis. Two bad flareups, months of eye treatment. As I began to research what caused it, I found a book on...
    keppy keppy
    61-65, F
    3 Responses Jul 24, 2013

    I Am 24 And I Am Living With As

    Back in 2005, I was finishing my last year in high school, when I began to feel pain in my hips and low back. It hurt to walk and to go from sitting to standing and vice versa. Eventually, the pain progressed and caused me to have to use crutches. This lasted for weeks and I...
    divinemimic divinemimic
    22-25, F
    5 Responses Nov 21, 2011

    Ankylosing Spondylitis A Gift And A Curse

    Hi my name is Ryan, the main reason i looked for a chat room like this was to see if anyone diagnosed with AS has had their adenoids removed, I had mine removed when I was a child and have suffered AS since then, I would not have looked at this link except the fact that i know...
    bobacrow bobacrow
    41-45, M
    1 Response Oct 28, 2013

    My Boyfriend Is Battling Ankylosing Spondylitis..

    Hello. My name is Kaylee and I have a wonderful fiancé who,very sadly, has recently been diagnosed with Ankylosing Spondylitis or short for AS. Throughout his life he has faced multiple surgeries, depression, and now AS. He is by far the strongest man I know but this disease is...
    KayleeSpain KayleeSpain
    22-25, F
    5 Responses Mar 18, 2013

    A Non Narcotic Pain Dr

    I have finally found a pain doctor with the same philosophy as me. I do not believe that narcotics are good for controlling chronic pain. After looking over my records, and a 30 minute physical exam, we have a plan of action. I am having steroid injections in my SI joints on both...
    kwilty61 kwilty61
    2 Responses Jul 26, 2011

    Hi, I would like to get some tips about how to

    sleep better. That is the most painful moment for me. Please help. Thanks.
    diegodiego diegodiego
    31-35, M
    3 Responses Dec 30, 2013

    I am a 48 year old female

    who lives in the northwest United States.I was diagnosed 3 years ago by my rheumatologist with Ankylosing Spondylitis. It seems like since then I have been diagnosed with other issues. I have also osteoarthritis, Fibromyalgia, Degenerative Disc Disease, Sleep apnea, restless...
    MaryMT65 MaryMT65
    51-55, F
    3 Responses Dec 16, 2013

    I am 13 and got diagnosed with AS 4 days ago.

    It was a real shock to the system because I have had pain in my legs for years but just got told by the doctors that they were growing pains. I got diagnosed with Vitamin D deficiency a year ago so when I started getting pain in my ribs the doctors then just said it was that. I...
    Squirrel100 Squirrel100
    1 Response Feb 20, 2015

    Mario 's Experience: Never Give Up

    All of you had very bad days which mean to me ,hospital because no way to any movements at all blocked and for months and months even with Humira .Never lost faith ,for me it was GOD who helped,for other's can be the love of your families or whatever outside strength but it's...
    1 Response Dec 22, 2012

    What Led Up As AS.

    Back in high high school which was about 06 my junior year i missed two months of school. I got a uvitues eye inflammation. My eye doctors couldnt figure out what was going on. The main thing that helped to get the epiosde under control was prednisone. and some other drugs.. When...
    satish89 satish89
    26-30, M
    3 Responses Apr 13, 2013

    Recently Diagnosed With A.S.

    31 Y/O Male, active duty Navy for 13 years. Back pain since 2002, was told it was "normal wear and tear" and "degenerative Disc" Just dealt with pain and carried on life as best as I could. Pain kept increasing, fatigue got worse. Was not getting restful sleep at all. 2 years...
    italia289 italia289
    36-40, M
    1 Response Oct 11, 2013

    Diagnosis Took Over 40 Years

    I am Dave, 59 years old and just diagnosed with AS. My problems first started when I was 17, my then employer had a medical centre where I received heat treatment on my back. Throughout my life I have always suffered with lower back pain, but just put up with it. About...
    clk320audio clk320audio
    1 Response Sep 24, 2010

    I have been diagnosed with ankylosing

    spondylitis for over a year now. I can't put my finger on when it first began but I always had a little tingle or pain down by my right hip/back. I put it down to weak glutes for ages as I was actively involved in sports. Before I was diagnosed, some evening I couldn't walk the...
    Westwing85 Westwing85
    26-30, M
    Jul 16, 2015

    A Struggle

    I was diagnosed with Ankylosing Spondylitis when I was 21, it has been three years, this is my story. It first began when I was working in a warehouse job assembling orders. One morning I woke up and the pain in my hip was so bad that I couldn't put any pressure on my left leg...
    ColourInRed ColourInRed
    22-25, M
    3 Responses Nov 4, 2012

    In Search Of Hope..

    Im 21 years old and was diagnosed with AS about 18 months ago. Im a qualified carpenter/joiner, and have had to give up my passion, along with many other things, due to the progression of this disease. I am in pain every day, no matter how i sit/stand/lie.I was on narcotic pain...
    Kiara21 Kiara21
    2 Responses Apr 30, 2012

    Nobody Understands

    I am 33 and I was diagnosed about 2 months ago, but my symptoms started when I was a teenager and my docter said that was when I should have been diagnosed.  I have been in severe pain for the last 10 months, but I have medicaid so my dotor would not send me to a specialist...
    nowellered nowellered
    11 Responses Jun 7, 2009

    Hi My Name Is Teagan,

    I am 14 I suffer with AS, i was diognosed maybe a year ago, its hard I cant go out with my friends, why? as my mum is my full time carer as I cant get of the sofa of the bed of off the toilet on my own this has been very debilitating, I walk with a stick 99% of the time soo...
    teaganfeldman teaganfeldman
    1 Response Oct 17, 2013

    Looking For An Answer

    I don't know if I have AS. I finally succumbed to searching the net last night and burst into tears when I read about Ankylosing Sponylitis! I'm not crazy! This is not in my head! For 25 years I have waged a war with my body. Blaming a fall in my early 20's made it seem logical...
    endeavouring endeavouring
    36-40, F
    4 Responses Jun 23, 2012

    Anyone here experiencing relief with humira?

    How long have you been on it?
    Fretless23 Fretless23
    26-30, M
    2 Responses Aug 31, 2014

    To Everyone That Suffers With Ankylosing Spondylitis(AS)

    My fiancé has AS and is 26... There's so much to say about it. Wow. I see his pain and hurt everyday. I see his struggles and weakness. He is the strongest man I've ever known and this disease has turned him upside down. I just want everyone,everyone to know that I,first hand...
    KayleeSpain KayleeSpain
    22-25, F
    4 Responses Sep 9, 2013

    I Have As And I'm Pregnant

    I'm not really sure when I developed AS because it could have been as far back as around 12 years old.  We would get the yearly spinal exams at school for Scoliosis and they would always send me for a second opinion.  Basically something always felt off about my...
    rileykitty rileykitty
    26-30, F
    2 Responses Jun 10, 2010

    Walked Like Grampa Mccoy Since I Was 21

    Here's a comment I posted to another group: I also have AS. My symptoms first showed up when I was in the military and they couldn't find anything wrong with me right away. Rather than be branded a malingerer or (even worse) delay my separation when my enlistment was up, I...
    TenEyes TenEyes
    6 Responses Dec 30, 2008

    60 Years Old And Just Diagnosed.

    I am a 60 year old male and just officially diagnosed with AS. I was told in the mid-1980's by a radiologist that I had early signs of AS in my sacroiliac joints after having a ct scan. I have shared that with all my doctors since then and feel that I was ignored. I was...
    Poppa53 Poppa53
    61-65, M
    1 Response Mar 28, 2013

    I'm a 41 year old Irish male living in London.

    I was diagnosed with AS in 1989 when I was 16 years old. My 20s and early 30s were really bad with constant pain, fatigue and depression making life very difficult. But I kept going and I am lucky to have supportive family and friends and a wonderful wife who helped me through...
    Yossarian73 Yossarian73
    41-45, M
    Aug 12, 2014

    I am 13 and got diagnosed with AS on the

    16/2/2015 and I am seeking advice. I have pain in my wrists, spine, ribs and knees. Please can I have some help with ideas to ease the pain.
    Squirrel100 Squirrel100
    1 Response Feb 20, 2015

    I'm so stoked to let everyone know the "

    miracle" drug that has worked for me. I've been up and down trying to figure out the best medication that suites me. Sooooo my doctor prescribed me Humira! Let me just say Humira has changed my life. Just when I thought my life was over this medicine has changed it for the...
    SweetT246 SweetT246
    26-30, F
    4 Responses Apr 27, 2015

    Hla-b27 And More

    Was told two weeks ago that it is a 99.9% likelihood that I have AS. While one must surrender to the process, I will never surrender to this diagnosis. It is extremely frustrating to have so much pain, but am trying to be a trooper. I am doing everything emotionally...
    wisesagicap wisesagicap
    41-45, F
    8 Responses Jan 24, 2011

    Wondering Is Anyone Has Tried Changing There Diet To Help With The Pain?

    I just found out I have the gene HLA-B27 have all of you in the chat room been tested? Have you changed your diet to help with pain control? I did order the Ankylosing Spondylitis Diet from Joel Godin, has anyone else tried this diet? As I read his diet plan for remission I found...
    mamasusie mamasusie
    51-55, F
    3 Responses Nov 23, 2013

    How can 12 hours make

    such a massive difference in your life? Yesterday I was "fine" ..well as fine as you can be with A.S..... Today I can hardly move.... every tiny movement feels like someone driving their knee through my lower back...... It ******* kills to even breathe.... Trying to find the...
    thedayyouwentaway thedayyouwentaway
    41-45, M
    1 Response Aug 17, 2014

    How To Cope..

    Hi! Kaylee again. From the previous story I mentioned my boyfriend being diagnosed with Ankylosing spondylitis. I've never imagined hearing this from the man I love the most.. I feel so bad for him and I'm here for him each and every day throughout everything and always will be...
    KayleeSpain KayleeSpain
    22-25, F
    4 Responses Mar 18, 2013

    Looking For Other Women Who Have AS

    I need support from other women who have AS. What pain do you use for your bouts of pain? My GP gave me mussel relaxer and my Rhumetologist gave me non-steroid anti inflammatory to take everyday. The mussel relaxers don't seem to work. HELP!
    tammski tammski
    51-55, F
    3 Responses Feb 25, 2013

    My Fight With Chronic Pain

    pain is the evil monster that lives in my body. some days pain is bigger than me and strangles me with its tentacles. other days i can trick pain by feeding it pills, patches. sometimes i can electrocute it with my stimulator. other days pain grabs hold of me and squeezes me...
    kwilty61 kwilty61
    7 Responses Jul 7, 2011
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