I Have Aplasia Cutis Congenita

A Aplasia Cutis Congenita anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Aplasia Cutis Congenita. You're not alone. 4 People

    Living With Cutis Aplasia

    Im 39 and have a massive bald area on my head. I suffered years of bullying at school as it's not very trendy to be a bald female! My mother was born with it too and brought me up to be ashamed of our condition. When I became pregnant at 25 I was so worried my daughter would...
    Lindyloo33 Lindyloo33
    41-45, F
    Aug 15, 2013

    Adams-Oliver Syndrome

    Anouk021008 Anouk021008
    Aug 16, 2009

    ACC and Our Son

    Our 20 month old was born with Adams Oliver Syndrome. Luckily his only limb abnormality is some missing toes, but he has a very large bald patch  (about 8 by 4 inches) with an underlying skull defect. The last CatScan showed the bone is closing nicely, but he will eventually...
    bseerv1 bseerv1
    1 Response Jul 31, 2009
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