I Have Aplasia Cutis Congenita

A Aplasia Cutis Congenita anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Aplasia Cutis Congenita. You're not alone. 4 People

    Adams-Oliver Syndrome

    www.aosupport.org/anouk.htm
    Anouk021008 Anouk021008
    26-30
    Aug 16, 2009

    ACC and Our Son

    Our 20 month old was born with Adams Oliver Syndrome. Luckily his only limb abnormality is some missing toes, but he has a very large bald patch  (about 8 by 4 inches) with an underlying skull defect. The last CatScan showed the bone is closing nicely, but he will eventually...
    bseerv1 bseerv1
    31-35
    1 Response Jul 31, 2009

    Living With Cutis Aplasia

    Im 39 and have a massive bald area on my head. I suffered years of bullying at school as it's not very trendy to be a bald female! My mother was born with it too and brought me up to be ashamed of our condition. When I became pregnant at 25 I was so worried my daughter would...
    Lindyloo33 Lindyloo33
    41-45, F
    Aug 15, 2013
More Stories