I Have Aplastic Anemia

A Aplastic Anemia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Aplastic Anemia. You're not alone. 67 People

    Healthy To Transplant In 5 Weeks!

    March 2013. Bruises and petichiae increased over 5 days. 6th day platelets dropped from 10 to 1 in 12 hours! Severe Aplastic Anaemia. Several transfusions then sibling match donor Bone Marrow Transplant 5 weeks after diagnosis. Doing ok
    sariefaerie sariefaerie
    36-40
    Aug 9, 2013

    New Book - (aplastic Anemia) Omid's Mission - A Tribute To My Son.

    We are here to tell you about a truly remarkable story.  Omid's Mission, A Tribute To My Son was written by Victoria Yousefi, Omid's mother.  Omid's Mission: A Tribute to My Son is a true love story of a mother that was fortunate enough to escape living in Iran in...
    OmidsMission OmidsMission
    46-50
    2 Responses Jun 28, 2010

    hi i was diagnosed with aplastic anemia

    after my casarian delivery in jan 2013...had never heard about this disorder and the very thought that i had this problem killed me and at the same time i was worried for my newly born baby...but thankfully God helped me come out of it... i decided to take the alternative...
    kanki kanki
    36-40, F
    2 Responses May 23, 2014

    My Aplastic Anaemia

    I had never herd of this before I was diagnosed, it all started when I had massive brouises all over my body which didn't hurt and tiny Little red dots, my mums was the one that made me go to the doctors because Im 19 and I woke in a night club I thought that was down to why I...
    Raydul Raydul
    18-21, F
    1 Response May 29, 2012

    Bone Marrow Transplant Questions

    I'm 24 and I just finished my 3rd year of post secondary and I was suddenly getting random big non-painful bruises on my legs and arms, I also felt winded after climbing 3 flights of stairs to my apartment. I am a very clumsy person, and figured I was out of shape, when I came...
    Jessi73 Jessi73
    26-30, F
    1 Response Aug 20, 2013

    22 Year Old Mom Got Aplastic Anemia During Pregnancy....

    I found out i was pregnant on may 14 2011 i was three weeks pregnant. Two months later i went to the obgyn for blood work and ultrasound. in my blood work they found that my platelets were dropping so they referred me to a doctor in dothan alabama. at first they thought i just...
    proudmom2012 proudmom2012
    22-25
    1 Response May 27, 2012

    The Day My Life Changed

    i recently found out on December 3,2010 that i had Aplastic Anemia..when i found out i was shocked at first then i had to ask my doctor exactly what it is and how i ended up with that..i'm currently 18 yrs old and i hope by the time i'm 19 its all better....because its really not...
    PrincessKayy PrincessKayy
    18-21, F
    4 Responses Jan 15, 2011

    Saa

    HI! MY NIECE RUBY WAS DIAGNOSISED WITH SEVERE APLASTIC ANEMIA SHE IS 4 YEARS OLD SHE HAS NEVER BEEN SICK IN HER LIFE. I AM SO UPSET ABOUT  IT CAN SOMEBODY HELP ME GET THRU THIS. THANK YOU! MICHELLE
    phyllbat phyllbat
    36-40
    Apr 14, 2011

    My Daughter Has Severe Aplastic Anemia

    My 13 year old daughter was diagnosed with Severe Aplastic Anemia at the end of November 2011. Since then she has been through atgam treatment, cyclosporine, and many other medications to help with the horrible side effects. It has been 7 weeks since she completed the atgam...
    TinaKomanetsky TinaKomanetsky
    36-40
    8 Responses Feb 6, 2012

    Aplastic Anemia Diagnosed On April Fool's Day Of 98

    Hi there, Well, it all started at the age of 36. I was feeling so tired, crabby and just didn't feel right. I went to the dr and they tested me three times, because it said "Results not Compatible with LIfe." Please confirm. Oh my gosh, that just about freaked me out. Then after...
    sacramentogal sacramentogal
    46-50
    2 Responses Jun 25, 2011

    My Aplastic Anaemia

    I had never heard of this before I was diagnosed, it all started when I had massive bruises all over my body which didn't hurt and tiny little red dots, my mums was the one that made me go to the doctors because Im 19 and I woke in a night club I thought that was down to why I...
    Raydul Raydul
    18-21, F
    7 Responses May 29, 2012

    Severe Aplastic Anemia

    MY BEAUTIFUL NIECE RUBY IS 4 YEARS OLD & WAS DIAGNOSISED WITH SAA IT IS HARD TO BELIEVE CAN SOME HELP UNDERSTAND THIS ?  
    phyllbat phyllbat
    36-40
    5 Responses Apr 14, 2011

    Just Being Diagnosed

    I've had chronic anemia for over twenty years. Just finding out it's probably a secondary aplastic anemia. I'll know for certain in a couple of weeks. I'm wondering if there is anyone out there in my boat who has chronic anemia that ranges in the 8 - 10 hemaglobin range when...
    alagirl alagirl
    41-45
    2 Responses Dec 2, 2010

    My son mike has severe aplastic anemia,

    We need info/advise of what we are gonna be in for? My son has never been sick b4 this happened, He has just went thru the atgam, now getting platlets 1 or 2 times weekly. Please advise on facebook - pray4mike
    pray4mike pray4mike
    51-55, M
    2 Responses Jan 10, 2014

    Hannah

    Recently, my best friend was diagnosed with aplastic anemia. She has undergone ATG treatment, and is slowly gaining her health back. Although she is getting better, and is only receiving a few minor transfusions, I am having a harder time coping with her disease now than before...
    HannahsHero HannahsHero
    13-15, F
    2 Responses May 26, 2012

    Hello, I'm 18 years old

    and I was diagnosed with severe aplastic anemia in September. At the time I was pregnant and I had her while I was 26 weeks. She was rushed to another NICU hospital to be taken care of. All this came all at once and I didn't know what to do. I knew it was in my daughters best...
    kristamarie6518 kristamarie6518
    18-21, F
    1 Response Apr 10, 2015

    Staying A Positive

    My beautiful Nanna Merle passed away from A plastic anemia in 2005. 8 years later at age 24 I'm diagnosed and still fighting hard everyday. It all started with many bruises on my legs and feet and then in my mouth. A quick blood test showed my platelet count to be 7 and before I...
    jmdell jmdell
    26-30, F
    1 Response Oct 31, 2013

    My Sisters Aplastic Anaemia

    Hi. My sister has just been diagnosed with aplastic anaemia. Shes 27 and has a 6 year old daughter. She has always been a hard worker but unfortunately had to stop working due to being so tired all the time. As she has a small child we didn't really think much of it just thought...
    hannah6860 hannah6860
    22-25
    1 Response Sep 22, 2012

    What A Horrific Disease!

    It was June 4th on my mums birthday - she had had the flu for well over 2 weeks now and was really struggling to shake it off. Her health deteriorated very quickly and after calling the ambulance service 3 times she agreed to take her as they believed it was just flu (even...
    kaped kaped
    31-35
    Apr 9, 2012

    I've Had Aplastic Anemia Since I Was 3...

    I was diagnosed at the age of 3 with severe aplastic anemia. Thankfully, at age 12 it went into remission. Things had been going really great since then, but a little over 2 years ago I had to start being seen by a hematologist again to keep an eye on my counts. In 2000, at...
    AndreaTFTPTF AndreaTFTPTF
    26-30, F
    1 Response Sep 24, 2009

    Shocked

    I have had dizzy spells atleast once a day for over a year straight, my mother convinced me to go to the emergency room October 23rd and then is when the doctors told me i have Aplastic Anemia.. I checked out and did lab work and my primary doctor called. November 1st to tell me...
    ahightower ahightower
    26-30
    2 Responses Dec 14, 2012

    Life Interrupted By Aplastic Anemia

    I was diagnosed with Severe Aplastic Anemia in January 2012 when I was 26, and have just celebrated my one year post bone marrow transplant anniversary. I have decided to share my story, and to encourage people to become volunteer bone marrow and blood donors. Feel free to check...
    jtilston jtilston
    31-35, F
    Apr 23, 2013

    Severe Aplastic Anemia

    I was diagnosed in  nov. 2010 my platelet counts are 34000 and i still take 100 mg. of cyclosporine i am 50 yrs old
    nette70507 nette70507
    46-50
    2 Responses Mar 1, 2011

    William

    AROUND DECEMBER OF 2009 I STARTED TO FEEL A LITTLE OUT OF BREATH WHEN EXERTING MYSELF AT WORK (I AM A TRIM CARPENTER). FOR INSTANCE WALKING UP A FLIGHT OF STAIRS OR LIFTING A BUNDLE OF TRIM AND CARRYING IT FROM THE DELIVERY TRUCK, I WOULD HAVE TO STOP FOR A MINUTE AS I FELT JUST...
    whaag1 whaag1
    51-55
    1 Response Aug 16, 2011

    So 5 days ago I was hooked up to an IV

    because they thought I had appendicitis I didn't it turn out I had an ovarian cyst. So they also did blood work and found that I am low on red blood cells and potassium. :( any advice would be great
    sara20014 sara20014
    16-17, F
    Jan 13, 2014
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