I Have Aquagenic Pruritus

A Aquagenic Pruritus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Aquagenic Pruritus. You're not alone. 295 People

    I Now Know, I Do Not Itch Alone

      Hello everyone!   Like you I have Aquagenic Pruritus. I have many of the same symptoms as you all do. I was searching for answer to my itching and I found YOU.   I am an average Jane Doe neighbor. I am not selling anything. I do not work in the medical Field...
    cometstar cometstar
    41-45, F
    6 Responses Aug 26, 2009

    Yay, I'm Not Alone!

    I just discovered what this disease was today.. about thirty minutes ago. It's such a relief to know that I'm not crazy. I have been googling "itchy legs" for years now, but on one board someone mentioned "aquagenic pruritus" and I read about it and it's exactly what I have.I'm...
    Chantalia Chantalia
    22-25, F
    4 Responses Dec 9, 2011

    Stop the Itching!

     Hi all,   I want to share my story as it may be of use to those who have suffered from a similar situation. From the age of about 22 I developed an condition whereby I itch intensely after showering or swimming. Basically if my body got wet, whether by lake, shower...
    starrate starrate
    31-35
    12 Responses Oct 9, 2008

    Fascinating Condition.

    Hi everybody. I realize that for most of you people suffering from this terrible condition, describing AP as "fascinating" may sound obscene. I apologize for this. I am a Biologist studying various diseases associated with deregulation of ion channels, a family of proteins in...
    vbmiguel vbmiguel
    46-50, M
    3 Responses Feb 14, 2010

    Finally Found The Answer

    For me it started when I was around 11 or 12 (i am now 18) in the beginning I would only itch when i came out from a shower or was in the pool or ocean too long. But after about 2 or 3 years my itching got worse though it is mainly on my legs i would sometimes itch on my arms...
    olig55 olig55
    16-17, F
    2 Responses May 30, 2010

    Hope this helps someone.

    Between the ages of 16-21 my daughter has struggled with this terrible problem. Every shower or bath was agony for an hour or so after . We visited numerous physicians, dermatologists, allergists, and she tried everything.. creams , medications ,UVA treatments with no success...
    leokatmom leokatmom
    61-65, F
    1 Response Apr 10, 2015

    Everybody Thought I Was Crazy

    I have had this condition for maybe 10 years. People would say...do this, do that...everything hte same. I told my doctor frequently. I was given Clairitin, tried all sorts of cream, medicated lotions, etc. Most recently, my doctor said...use lotion 2x a day> I was so frustrated...
    mousegirl mousegirl
    41-45
    4 Responses Apr 24, 2011

    Aquagenic Pruritus I usually can't find the

    words to express the torment of living with Aquagenic Pruritus. Basically it is an "allergy" to water. About 5 min after bathing I am engulfed in a burning, biting, stinging, that is almost electrified. In our house we call it "Fire Ants." It lasts about 45 min or so and it is...
    aliceblu24 aliceblu24
    46-50, F
    3 Responses Apr 22, 2015

    Allergic To Water; What I've Found

    Hi Guys, Like many here; I have Aquagenic Pruritus. I started developing it when I was 16-17, and have been living with it ever since. My symptoms are worse for when I'm exposed to seawater as well as my own sweat. This makes sleeping fairly difficult as I have to make sure the...
    dobbs dobbs
    26-30
    7 Responses Jul 3, 2011

    I have had this for over 15 years.

    It started after I had an op that went wrong and I was in a coma for 2months. Since then 15years of hell,but now I have come across a way of stopping the itching !!!!! It may not work for everyone,but even if it only works for 1 in a hundred it will be worthwhile. When you have...
    scottowner scottowner
    70+
    Oct 13, 2015

    I have found relief!!

    After years of my doctor prescribing everything from antihistamines to anti-anxiety meds, my dermatologist prescribed Gabapentin. It's normally used to treat neuropathic pain. I take anywhere from 300mg/day in the winter to 1500mg/day in the humid summer. It has made 90% of the...
    sgoindfw sgoindfw
    46-50, M
    2 Responses Aug 27, 2014

    Increasingly More Itchy

    I guess I must have had AP for several years now. It used to bother me only lightly and occasionally. I had not been able to figure out what made the itch come out, although always after a shower. I did notice that my towels quickly smell funky, so I wash them frequently. I have...
    Not2Rub Not2Rub
    41-45, M
    1 Response Oct 20, 2009

    I have suffered from this condition

    for thirty years. I am so relieved to find I am not crazy and others know the "HELL I GO THROUGH" after showering. Has anyone got any solutions or cures to get rid of this curse?
    ukshifty ukshifty
    46-50, M
    Aug 31, 2015

    I Itch Therefore I Am....help

    I just joined this group today and am happy to have found it because my dermatologist tells me she has no idea why I am itching.  I am tired of taking cold showers (even then I itch after) and dreading taking showers at all.  I am just tired of it all. My sisters have...
    Mellymel99 Mellymel99
    36-40, F
    5 Responses Aug 9, 2010

    Recovering

    I have had AP for about 10 years and have managed to keep it down. It's not gone, but it almost never bothers me any more. It started with itching after showers. Hot or cold made little difference. Not after every shower either, so at first I could not account for it. It would...
    Not2Rub Not2Rub
    41-45, M
    4 Responses May 30, 2011

    *** Potential Cure For Aquagenic Pruritus ***

    HELLO ALL, I HAVE TRIED PRATICALLY EVERYTHING TO DEAL WITH THE STINGING, PRICKLY, ITCH OF AQUAGENIC PRURITUS FOR THE LAST 10 YEARS AND I FINALLY THINK I FOUND A POTENTIAL CURE. I CHANGE MY DIET DRAMATICALLY BY REDUCING MY SUGAR INTAKE BY 90% AND I INCREASING MY DAILY SALT INTAKE...
    FREEHEALTH FREEHEALTH
    36-40
    1 Response Sep 22, 2013

    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN
    31-35, M
    Jun 26, 2014

    I finally know what it is,

    but it doesn't seem to help because there's no specific cure or treatment. It's gotten so bad that after a quick shower, I'll end up in tears, almost scratching my skin off. It's actually gotten to the point where I can't take showers.....in the past month and a half...I've had...
    deleted deleted
    26-30
    Sep 23, 2015

    I'm a 31 yr old female,

    and I've had episodes of AP on and off for many years after showering, it would be seasonal and I'd forget about it for months. Until recently, I thought it was something about bad circulation, hot water and pores opening. My dad had it too (grew out of it he says) and my sister...
    MLE111 MLE111
    31-35, F
    2 Responses Jun 20, 2015

    Holy ****! You understand!

    You all understand! I'm still sort of at a loss. For decades, I have been searching, trying to find a condition that fit my symptoms, and on Tuesday, after a particularly terrible itch episode, my boyfriend turned to me and said "You have Aquagenic Pruritus" and now I'm here...
    MomOfArlo MomOfArlo
    31-35, F
    2 Responses Oct 2, 2015

    Already An Existing Support Group With Over 700 Members

    I wanted to share a resource that has been helpful for hundreds of people worldwide who have this rare condition.  I am co-moderator of the Aquagenic Pruritus yahoogroup, which now has 761 members.  To join, go to aquagenicskin-subscribe@yahoogroups.com. On the list...
    Query Query
    66-70, F
    9 Responses Oct 10, 2008

    I have this condition

    for about 15yrs now. At the earliest part I taught it was just the environment not until I stop using sponge to take my bath. After about 6yrs later the itching returned back but seasonal. Now it worst i don't really know what to do.
    hoston hoston
    26-30, M
    Jul 1, 2015

    We Shouldn't Have To Suffer

    they can figure out how to cram 20,000 songs onto a device the size of a pack of gum, but no one can stop the itching! I have had this for 30 years. Mine is very seasonal -- late summer/early fall. I once found a dermatologist who knew EXACTLY what i had. He is very far away...
    lindarosep lindarosep
    46-50
    1 Response Sep 13, 2010

    Wow, so you learn something new everyday!

    I just stumbled upon this group and now I'm convinced that this is what's been plaguing me almost my entire life. While my case isn't as severe as most, I still completely understand the annoying itching feeling that occurs just from taking a long shower. I usually just dry off...
    astralucia astralucia
    26-30, F
    Mar 18, 2014

    Good luck to all the other Australian sufferers

    that also have to endure this 5 day heat wave. My advice is to shave and get it over with BEFORE the weather gets to it's hottest.
    ChloeMaay ChloeMaay
    18-21, F
    1 Response Oct 17, 2014

    Very Hot Showers...yes 98% Relief After 50 Years!

    I believed I had an allergy to chlorine for 50 years. All showers, just warm, were followed by a cold shower, to keep the skin cool and I delayed dressing. However, the installation of a chloring filter made no difference to the intense prickling. I started to search and found...
    janeratten janeratten
    70+
    1 Response Mar 1, 2011

    Everytime after bath my thigh,

    legs and chest feel itchy. And I just keep my self busy after bath to channel my attention rather than scratching my skin(sometimes it helps), but AP made me sad. I cannot enjoy bathing because of itchy sensation after bath.
    urbanosherwin17 urbanosherwin17
    22-25, M
    Aug 2, 2014

    I have had this terrible condition

    for just over a year. Started with a full on episode which had me thinking I would go insane. Every single shower after that was just as bad, so I tried to devise a way of keeping clean without actually showering or bathing. Washed my hair by kneeling over the bath and...
    mrsmuffin mrsmuffin
    61-65, F
    4 Responses Oct 6, 2014
    aliceblu24 aliceblu24
    46-50, F
    4 Responses Apr 22, 2015

    Its Going To Be The Death Of Me

      I am a 40 yr old and have been itching for over 20 yrs as soon as i touch water I am going to itch for a half hour to over an hour, I have been on Doxapin and have had light treatment with no prevail. I am so close to jumping in front of a truck I dont know how much...
    patsoxfan00 patsoxfan00
    36-40, M
    27 Responses Nov 21, 2009

    Hi there, I'm new to this online group

    experience and not quite sure how it works. I've been struggling with AP for 5 years now and it's getting worse. Showering is hell. I'd love to hear all your treatment advice and experience. Thanks so much.
    Lamast Lamast
    31-35, F
    Jun 17, 2015

    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN
    31-35, M
    Jun 26, 2014

    I'm a 15 year old boy suffering aquagenic

    pruritus and choligenic urticaria. I discovered them both this year. Choligenic or cold allergy came first. When I went to a strong air conditioned mall I will suffer. Hives and itch would appear. This is driving me crazy. Months later Aquagenic Pruritis attacked me and made...
    AkmalHarith AkmalHarith
    13-15, M
    Nov 16, 2015

    Hi, I'm alice, from Rome.

    I've AP since i was about 13, now I'm 24. I can keep under control the itch (it's more like if i have thousand of pins that pinch continuously my legs) doing exercise before the shower -i don't know why- (Maybe acetilcolna can be releated whit this) I study medicine but i didn...
    AliceFracassi AliceFracassi
    22-25, F
    4 Responses Sep 22, 2014

    This Is Getting Ridiculous

    So, today, as I get out of the shower praying that the filter I just put on my shower head would work, I realize it didn't and I begin my 20-30 minutes of itching.  I HATE taking showers, but know I must.  Today, I was almost crying.  What is this??  So, I get...
    LasVegasSushiLover LasVegasSushiLover
    41-45
    27 Responses Sep 28, 2008
    honeypolpot honeypolpot
    36-40, F
    1 Response Dec 11, 2014

    I think I found a way to stop the itching

    after a shower. Normally I would be itching for 30-45 minutes after a shower and it was driving me nuts. Since I'm not itching during the shower I realized that it was not because my skin was wet, something went wrong when it dried afterwards. So one day I dried myself very...
    Anders78 Anders78
    36-40
    Mar 19

    It hurts to cry. I think that's probably one of

    the things that sucks the most. Makes my face hurt and itch and feel so incredibly raw that it makes me want to cry more.. Only I know that will only make it worse. Ugh! Some days are just so much harder than others.
    tr3ats tr3ats
    22-25
    Dec 3, 2014

    When I was about 13 I'd have very slight itching

    when I got out of the shower and my whole family thought it was bizarre and because I didn't clean the shower properly... Which I did. It's gotten gradually worse and 5 years later it's honestly a nightmare. I often fantasize about having no legs, so I can escape the itching. I...
    ChloeMaay ChloeMaay
    18-21, F
    5 Responses Jul 30, 2014

    No Morning Showers

    I started itching whenever I had contact with water on the tops of my forearms and on my legs particularly around the insides of my knees and down the front. The itching is severe and lasts for about an hour. I can't go to work if I'm having an itching attack. This happens only...
    SandraJen SandraJen
    56-60
    2 Responses Jun 14, 2010

    My Theory Behind Aquagenic Pruritis

    I have suffered from mild aquagenic pruritis since the winter of 2010/11, which was an extremely cold one for us here in the UK. I suffer itching for about half an hour after showering, and also from sweating, mostly in the legs. After recently having an unrelated condition where...
    bleddyn bleddyn
    56-60
    3 Responses Aug 14, 2012

    I Found Help!!!

    I have suffered on and off for years.  I had this daily when I was pregnant and then it went back to sporadically for 15 years.  This summer, it became a daily event and I really thought I was going to lose my mind!  I noticed that I did not have any trouble while I was on...
    jstealman jstealman
    36-40
    3 Responses Jan 4, 2011

    I have had this condition

    since I was 7 years old I am now 49. It would wake me up at night and my parents would put ice cubes on my legs until it would subside. My mom had it and she would tell me that I would outgrow it as she did. I have to say she was somewhat correct as it is not so severe anymore...
    Rasoli Rasoli
    51-55
    Aug 30, 2014

    My name is Scott and I am allergic to water.

    I'm trying to contact other people with this allergy because I'm making a documentary about it. Please message or comment so we can talk a little about it. Thanks fro your time.
    ScottPharr ScottPharr
    26-30, M
    3 Responses Jul 25, 2014

    I Couldn't Be Happier That I'm Not The Only One.

    I didn't know this existed until today- right now actually. I have recently been dealing with anxiety issues and was doing some searches about it. I figured I'd search for this skin thing too since I was on a roll. I've done online searches before but couldn't find anything...
    slliwsivart slliwsivart
    41-45
    Sep 23, 2013

    for the past couple of years,

    I couldn't swim or take a shower without this uncontrollable itch. I finally went to the dermatologist, and she prescribed singulair along with OTC Zyrtec (2 x 10mg, take one 30min before shower) and Pepcid AC in the morning. It's worked so far, and I wanted to post this in...
    Dihrkop2 Dihrkop2
    31-35, M
    Mar 19, 2015

    The Incurable Itch Is Driving Me Nuts!!!!

    I am a 25 year old women living in the UK and this itch is driving me insane!!!!!!I went to my GP last week after stumbling across this site. My GP did not have a clue about this terrible condition and had never heard of it. I came away with a moisturizing cream (Double base) and...
    k8pearce k8pearce
    22-25
    3 Responses Aug 6, 2011

    I have had aquagenic pruritus

    since I was 15. I'm 47 now. For me, it begins to surface at the end of the summer and last through Christmas. And then it abates until the next year. For YEARS I just dealt with the post-shower intense itching - like ants crawling under my skin. I would claw my skin, try not...
    CFinley123 CFinley123
    46-50, F
    1 Response Sep 7, 2014

    My daughter, age 15, began itching

    after bathing back in April 2014. She would tell me about it once in a while. She swam in a chlorine pool later that month and itched the same way. The last 2 weeks, she has itched every time she would bathe, swim or sweat. I done my research and found aquagenic pruritus. I...
    Drumett Drumett
    36-40, F
    1 Response Sep 6, 2014

    Hi i have not been told i have Aquagenic

    Pruritus but it so seems like i have, i have really bad private area psorisos and on my arms and legs, and have been to 2 hostpials without any relief. About a year ago when i had a cool shower i started to itch reallly bad. I have tried to have a bath but as soon as the water...
    stephenrrouse stephenrrouse
    36-40, M
    4 Responses Sep 27, 2015

    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN
    31-35, M
    1 Response Jun 26, 2014

    Ive had itching since i was 11.

    It disappeared until i was 15, but now im 21. 6 long years! It was so bad i would avoid showering. Ive tried a lot of things, but found slight relief with allergy meds. Then i tried hot water, after learning heat relieves itching. I used water as hot as i could handle multiple...
    mehoniisan mehoniisan
    22-25, F
    Nov 30, 2015
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