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I Have Aquagenic Pruritus

A Aquagenic Pruritus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Aquagenic Pruritus. You're not alone. 272 People

    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN 31-35, M Jun 26, 2014

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    Its Going To Be The Death Of Me

      I am a 40 yr old and have been itching for over 20 yrs as soon as i touch water I am going to itch for a half hour to over an hour, I have been on Doxapin and have had light treatment with no prevail. I am so close to jumping in front of a truck I dont know how much...
    patsoxfan00 patsoxfan00 36-40, M 27 Responses Nov 21, 2009

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    Identifying Triggers And Soothers

    This is a post to share my personal discoveries in triggers and soothers of AP.  Maybe it can help you. I have had aquagenic pruritus (AP) for over 6 years.  Finding online support was the best thing I could have done, considering even doctors would ignore my pleas for...
    greenas greenas 31-35 1 Response Nov 20, 2010

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    I have had this terrible condition

    for just over a year. Started with a full on episode which had me thinking I would go insane. Every single shower after that was just as bad, so I tried to devise a way of keeping clean without actually showering or bathing. Washed my hair by kneeling over the bath and...
    mrsmuffin mrsmuffin 61-65, F 2 Responses Oct 6, 2014

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    Update for my aquagenic puritis friends.

    Plug your heating pad in on high before you get into the shower. Take your shower with as hot water as you can stand. Dry your body off all the way. Some people say only pat dry yourself and dont rub your skin. That doesnt work because you want your skin as dry as possible...
    SouthernShores SouthernShores 36-40, F 1 Response Jan 19, 2014

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    I have had aquagenic pruritus

    since I was 15. I'm 47 now. For me, it begins to surface at the end of the summer and last through Christmas. And then it abates until the next year. For YEARS I just dealt with the post-shower intense itching - like ants crawling under my skin. I would claw my skin, try not...
    CFinley123 CFinley123 46-50, F 1 Response Sep 7, 2014

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    Aquagenic Pruritus I usually can't find the

    words to express the torment of living with Aquagenic Pruritus. Basically it is an "allergy" to water. About 5 min after bathing I am engulfed in a burning, biting, stinging, that is almost electrified. In our house we call it "Fire Ants." It lasts about 45 min or so and it is...
    aliceblu24 aliceblu24 46-50, F Apr 22

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    We Shouldn't Have To Suffer

    they can figure out how to cram 20,000 songs onto a device the size of a pack of gum, but no one can stop the itching! I have had this for 30 years. Mine is very seasonal -- late summer/early fall. I once found a dermatologist who knew EXACTLY what i had. He is very far away...
    lindarosep lindarosep 46-50 1 Response Sep 13, 2010

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    I have had this condition

    since I was 7 years old I am now 49. It would wake me up at night and my parents would put ice cubes on my legs until it would subside. My mom had it and she would tell me that I would outgrow it as she did. I have to say she was somewhat correct as it is not so severe anymore...
    Rasoli Rasoli 46-50 Aug 30, 2014

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    Fascinating Condition.

    Hi everybody. I realize that for most of you people suffering from this terrible condition, describing AP as "fascinating" may sound obscene. I apologize for this. I am a Biologist studying various diseases associated with deregulation of ion channels, a family of proteins in...
    vbmiguel vbmiguel 46-50, M 3 Responses Feb 14, 2010

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    So I've had this disease

    for a number of years now, with onset in my 40's. I have excellent medical care and am a 5 time cancer survivor. My docs have said it is probably due to all the chemotherapy I've had since AP is an autoimmune disease. Just one of the many injustices of cancer. I've read...
    emannen emannen 46-50, F 1 Response Jun 1, 2014

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    My Theory Behind Aquagenic Pruritis

    I have suffered from mild aquagenic pruritis since the winter of 2010/11, which was an extremely cold one for us here in the UK. I suffer itching for about half an hour after showering, and also from sweating, mostly in the legs. After recently having an unrelated condition where...
    bleddyn bleddyn 56-60 3 Responses Aug 14, 2012

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    aliceblu24 aliceblu24 46-50, F 2 Responses Apr 22

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    Hope this helps someone.

    Between the ages of 16-21 my daughter has struggled with this terrible problem. Every shower or bath was agony for an hour or so after . We visited numerous physicians, dermatologists, allergists, and she tried everything.. creams , medications ,UVA treatments with no success...
    leokatmom leokatmom 56-60, F 2 Responses Apr 10

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    I Itch Therefore I Am....help

    I just joined this group today and am happy to have found it because my dermatologist tells me she has no idea why I am itching.  I am tired of taking cold showers (even then I itch after) and dreading taking showers at all.  I am just tired of it all. My sisters have...
    Mellymel99 Mellymel99 36-40, F 5 Responses Aug 9, 2010

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    I discovered I had AP in about 2006

    after googling what was wrong with me after I showered. It has been on and off where I am lucky and can have a few short spells with no occurrence, though most of the time it was anywhere from scratching my legs up to pushing my back along the carpet like a dog and yelling. Yeah...
    ketoman ketoman 31-35, M Dec 24, 2013

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    My name is Scott and I am allergic to water.

    I'm trying to contact other people with this allergy because I'm making a documentary about it. Please message or comment so we can talk a little about it. Thanks fro your time.
    ScottPharr ScottPharr 22-25, M 1 Response Jul 25, 2014

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    This Is Getting Ridiculous

    So, today, as I get out of the shower praying that the filter I just put on my shower head would work, I realize it didn't and I begin my 20-30 minutes of itching.  I HATE taking showers, but know I must.  Today, I was almost crying.  What is this??  So, I get...
    LasVegasSushiLover LasVegasSushiLover 41-45 23 Responses Sep 28, 2008

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    Everybody Thought I Was Crazy

    I have had this condition for maybe 10 years. People would say...do this, do that...everything hte same. I told my doctor frequently. I was given Clairitin, tried all sorts of cream, medicated lotions, etc. Most recently, my doctor said...use lotion 2x a day> I was so frustrated...
    mousegirl mousegirl 41-45 4 Responses Apr 24, 2011

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    Good luck to all the other Australian sufferers

    that also have to endure this 5 day heat wave. My advice is to shave and get it over with BEFORE the weather gets to it's hottest.
    ChloeMaay ChloeMaay 18-21, F 1 Response Oct 17, 2014

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    Hi, I'm alice, from Rome.

    I've AP since i was about 13, now I'm 24. I can keep under control the itch (it's more like if i have thousand of pins that pinch continuously my legs) doing exercise before the shower -i don't know why- (Maybe acetilcolna can be releated whit this) I study medicine but i didn...
    AliceFracassi AliceFracassi 22-25, F 3 Responses Sep 22, 2014

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    I too suffer from aquagenic pruritus

    and some days I find it really very disabling. I have only been diagnosed in the last 6 months so am still trying different sorts of treatment to see what works for me. Anti-hystamines didn't work for me and now I'm trying doxepin. If I hadn't had a really bad itching episode...
    scratchyme scratchyme 41-45, F Mar 5, 2014

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    When I was about 13 I'd have very slight itching

    when I got out of the shower and my whole family thought it was bizarre and because I didn't clean the shower properly... Which I did. It's gotten gradually worse and 5 years later it's honestly a nightmare. I often fantasize about having no legs, so I can escape the itching. I...
    ChloeMaay ChloeMaay 18-21, F 4 Responses Jul 30, 2014

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    Stop the Itching!

     Hi all,   I want to share my story as it may be of use to those who have suffered from a similar situation. From the age of about 22 I developed an condition whereby I itch intensely after showering or swimming. Basically if my body got wet, whether by lake, shower...
    starrate starrate 31-35 12 Responses Oct 9, 2008

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    I've dealt with this

    since hitting puberty. My father also suffers from it. Both of our cases are very severe. The only thing that seems to help ours is incredibly hot water. Hot tubs are great! But even then I still itch it just isn't as severe as it is when I take a bath or shower. (Or if I'm in...
    hsimpson9999 hsimpson9999 26-30, F 2 Responses Mar 26, 2014

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    I Now Know, I Do Not Itch Alone

      Hello everyone!   Like you I have Aquagenic Pruritus. I have many of the same symptoms as you all do. I was searching for answer to my itching and I found YOU.   I am an average Jane Doe neighbor. I am not selling anything. I do not work in the medical Field...
    cometstar cometstar 41-45, F 6 Responses Aug 26, 2009

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    I Found Help!!!

    I have suffered on and off for years.  I had this daily when I was pregnant and then it went back to sporadically for 15 years.  This summer, it became a daily event and I really thought I was going to lose my mind!  I noticed that I did not have any trouble while I was on...
    jstealman jstealman 36-40 3 Responses Jan 4, 2011

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    Allergic To Water; What I've Found

    Hi Guys, Like many here; I have Aquagenic Pruritus. I started developing it when I was 16-17, and have been living with it ever since. My symptoms are worse for when I'm exposed to seawater as well as my own sweat. This makes sleeping fairly difficult as I have to make sure the...
    dobbs dobbs 26-30 7 Responses Jul 3, 2011

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    Everytime after bath my thigh,

    legs and chest feel itchy. And I just keep my self busy after bath to channel my attention rather than scratching my skin(sometimes it helps), but AP made me sad. I cannot enjoy bathing because of itchy sensation after bath.
    urbanosherwin17 urbanosherwin17 18-21, M Aug 2, 2014

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    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN 31-35, M Jun 26, 2014

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    honeypolpot honeypolpot 36-40, F 1 Response Dec 11, 2014

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    Very Hot Showers...yes 98% Relief After 50 Years!

    I believed I had an allergy to chlorine for 50 years. All showers, just warm, were followed by a cold shower, to keep the skin cool and I delayed dressing. However, the installation of a chloring filter made no difference to the intense prickling. I started to search and found...
    janeratten janeratten 66-70 1 Response Mar 1, 2011

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    Already An Existing Support Group With Over 700 Members

    I wanted to share a resource that has been helpful for hundreds of people worldwide who have this rare condition.  I am co-moderator of the Aquagenic Pruritus yahoogroup, which now has 761 members.  To join, go to aquagenicskin-subscribe@yahoogroups.com. On the list...
    Query Query 66-70, F 9 Responses Oct 10, 2008

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    Hi..im 55 and at last i have found what i have.

    .thought i was going mad....allergic to water????....dont be ridiculous...its been going on for a couple of years now and its driving me crazy...it seems its associated with the immune system, which figures as i also suffer with alopecia...ssstttrrreesss!!!... mentioned it to my...
    Jostamy Jostamy 56-60, M 1 Response Jun 22, 2014

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    *** Potential Cure For Aquagenic Pruritus ***

    HELLO ALL, I HAVE TRIED PRATICALLY EVERYTHING TO DEAL WITH THE STINGING, PRICKLY, ITCH OF AQUAGENIC PRURITUS FOR THE LAST 10 YEARS AND I FINALLY THINK I FOUND A POTENTIAL CURE. I CHANGE MY DIET DRAMATICALLY BY REDUCING MY SUGAR INTAKE BY 90% AND I INCREASING MY DAILY SALT INTAKE...
    FREEHEALTH FREEHEALTH 31-35 1 Response Sep 22, 2013

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    The Incurable Itch Is Driving Me Nuts!!!!

    I am a 25 year old women living in the UK and this itch is driving me insane!!!!!!I went to my GP last week after stumbling across this site. My GP did not have a clue about this terrible condition and had never heard of it. I came away with a moisturizing cream (Double base) and...
    k8pearce k8pearce 22-25 3 Responses Aug 6, 2011

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    Recovering

    I have had AP for about 10 years and have managed to keep it down. It's not gone, but it almost never bothers me any more. It started with itching after showers. Hot or cold made little difference. Not after every shower either, so at first I could not account for it. It would...
    Not2Rub Not2Rub 41-45, M 4 Responses May 30, 2011

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    I have been itching all my life.

    sometimes, hot baths helps a bit. I had to google it to diagnose myself. recently, my scalp too has started itching. don't know whether it is associated though. sadly, considering the healthcare system here, i may never know
    ayeshaaB ayeshaaB 22-25, F Mar 18, 2014

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    The Curse

    Hi Everyone I have the same condition and I have spent a lot of money trying to find something to stop it. I went to an immunologist and spent over €1000 on tests and no results in the end he told me I had Aquagentic Pruritus - which is what I told him when I first met him...
    kaylen kaylen 26-30 1 Response Oct 15, 2008

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    Increasingly More Itchy

    I guess I must have had AP for several years now. It used to bother me only lightly and occasionally. I had not been able to figure out what made the itch come out, although always after a shower. I did notice that my towels quickly smell funky, so I wash them frequently. I have...
    Not2Rub Not2Rub 41-45, M 1 Response Oct 20, 2009

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    Wow, so you learn something new everyday!

    I just stumbled upon this group and now I'm convinced that this is what's been plaguing me almost my entire life. While my case isn't as severe as most, I still completely understand the annoying itching feeling that occurs just from taking a long shower. I usually just dry off...
    astralucia astralucia 26-30, F Mar 18, 2014

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    I tried oilatum soap,

    It worked!!! But not for long :( but you guys should try it, maybe it can work for you, for a longer period.
    mrij mrij 26-30, F 1 Response Mar 12, 2014

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    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN 31-35, M 1 Response Jun 26, 2014

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    for the past couple of years,

    I couldn't swim or take a shower without this uncontrollable itch. I finally went to the dermatologist, and she prescribed singulair along with OTC Zyrtec (2 x 10mg, take one 30min before shower) and Pepcid AC in the morning. It's worked so far, and I wanted to post this in...
    Dihrkop2 Dihrkop2 26-30, M Mar 19

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    Iron Supplements The Culprit?

    If you take iron supplements, try going off them and see if the pruritus improves. I have had what seemed like aquagenic pruritus for about 12 years and it got worse when my doctor told me to double my iron dose. In fact, after increasing the dose, I started itching even without...
    woodsd woodsd 46-50 1 Response Jun 2, 2012

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    No Morning Showers

    I started itching whenever I had contact with water on the tops of my forearms and on my legs particularly around the insides of my knees and down the front. The itching is severe and lasts for about an hour. I can't go to work if I'm having an itching attack. This happens only...
    SandraJen SandraJen 56-60 2 Responses Jun 14, 2010

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