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I Have Aquagenic Pruritus

A Aquagenic Pruritus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Aquagenic Pruritus. You're not alone. 249 People

    Hi..im 55 and at last i have found what i have.

    .thought i was going mad....allergic to water????....dont be ridiculous...its been going on for a couple of years now and its driving me crazy...it seems its associated with the immune system, which figures as i also suffer with alopecia...ssstttrrreesss!!!... mentioned it to my...
    Jostamy Jostamy 51-55, M 1 Response Jun 22

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    Aquagenic Pruritis................help (smile)

    I just came across this site (8/28/10) as i was doing some research on Aquagenic Pruritus (AP). I have had this symptoms of attacks since November 2007 and it's driving me nuts after 3 years. I have seen various specialists over the past 3 years about my itching and perking (i...
    firelight49 firelight49 56-60, M 1 Response Aug 28, 2010

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    I too suffer from aquagenic pruritus

    and some days I find it really very disabling. I have only been diagnosed in the last 6 months so am still trying different sorts of treatment to see what works for me. Anti-hystamines didn't work for me and now I'm trying doxepin. If I hadn't had a really bad itching episode...
    scratchyme scratchyme 41-45, F Mar 5

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    Already An Existing Support Group With Over 700 Members

    I wanted to share a resource that has been helpful for hundreds of people worldwide who have this rare condition.  I am co-moderator of the Aquagenic Pruritus yahoogroup, which now has 761 members.  To join, go to aquagenicskin-subscribe@yahoogroups.com. On the list...
    Query Query 61-65, F 9 Responses Oct 10, 2008

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    How I Deal With It

    I've had this problem since I was about 7. Woke up in the middle of the night itching and have had trouble with water ever since* . Everyone has their own way of dealing with it, here's what I do: 1) I only take a quick, lukewarm shower once a week. I use Dove sensitive bar...
    aplady aplady 31-35, F Sep 18, 2013

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    Itching Like Crazy!

    My AP started when I became pregnant for the first time back in may 2012. I tried showering with hot and cold water, tried different soap, no soap, baths. Nothing worked to stop the itch. My OB said it was probably my hormones that were causing it. After a few more months of...
    beckerecka beckerecka 22-25, F 1 Response Sep 20, 2013

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    I tried oilatum soap,

    It worked!!! But not for long :( but you guys should try it, maybe it can work for you, for a longer period.
    mrij mrij 22-25, F 1 Response Mar 12

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    Yay, I'm Not Alone!

    I just discovered what this disease was today.. about thirty minutes ago. It's such a relief to know that I'm not crazy. I have been googling "itchy legs" for years now, but on one board someone mentioned "aquagenic pruritus" and I read about it and it's exactly what I have.I'm...
    Chantalia Chantalia 22-25, F 4 Responses Dec 9, 2011

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    I Now Know, I Do Not Itch Alone

      Hello everyone!   Like you I have Aquagenic Pruritus. I have many of the same symptoms as you all do. I was searching for answer to my itching and I found YOU.   I am an average Jane Doe neighbor. I am not selling anything. I do not work in the medical Field...
    cometstar cometstar 41-45, F 4 Responses Aug 26, 2009

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    Increasingly More Itchy

    I guess I must have had AP for several years now. It used to bother me only lightly and occasionally. I had not been able to figure out what made the itch come out, although always after a shower. I did notice that my towels quickly smell funky, so I wash them frequently. I have...
    Not2Rub Not2Rub 41-45, M 1 Response Oct 20, 2009

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    Allergic To Water; What I've Found

    Hi Guys, Like many here; I have Aquagenic Pruritus. I started developing it when I was 16-17, and have been living with it ever since. My symptoms are worse for when I'm exposed to seawater as well as my own sweat. This makes sleeping fairly difficult as I have to make sure the...
    dobbs dobbs 26-30 7 Responses Jul 3, 2011

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    Cancer Treatment & Aquagenie Pruritus?

    I finished chemotherapy for breast cancer in May of 2012. My itching problems began in October of the same year. My oncologist insists that it could not be the chemo, since there was a 5 month intervention. I went to all the doctors--neurologist, allergist, dermatologist...
    ilene4golf ilene4golf 70+, F Nov 10, 2013

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    No Morning Showers

    I started itching whenever I had contact with water on the tops of my forearms and on my legs particularly around the insides of my knees and down the front. The itching is severe and lasts for about an hour. I can't go to work if I'm having an itching attack. This happens only...
    SandraJen SandraJen 56-60 2 Responses Jun 14, 2010

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    Very Hot Showers...yes 98% Relief After 50 Years!

    I believed I had an allergy to chlorine for 50 years. All showers, just warm, were followed by a cold shower, to keep the skin cool and I delayed dressing. However, the installation of a chloring filter made no difference to the intense prickling. I started to search and found...
    janeratten janeratten 70+ 1 Response Mar 1, 2011

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    Research On Skin Bacteria

    Hi all, I think this may be related, although not everyone is onboard on my assertion that AP is a bacterial skin condition/infection. Anyways, it may still be interesting for you to read. You may have already caught this, since I found it on the BBC news website. http://news...
    Not2Rub Not2Rub 41-45, M 2 Responses Nov 6, 2009

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    The Incurable Itch Is Driving Me Nuts!!!!

    I am a 25 year old women living in the UK and this itch is driving me insane!!!!!!I went to my GP last week after stumbling across this site. My GP did not have a clue about this terrible condition and had never heard of it. I came away with a moisturizing cream (Double base) and...
    k8pearce k8pearce 22-25 3 Responses Aug 6, 2011

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    I used a product years ago

    but cannot recall the name, it was a tablet regimen i think it was called Aqua Tab but cannot find it online anywhere...anyone heard of it?, i will tell you that it worked for me, have almost no symptoms however my son has it now so i need to find this product for him, any help...
    Dwenhold Dwenhold 41-45, M 1 Response Dec 23, 2013

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    Love Water Can´t Stand The Itch

    Goodness until today I thought I was the only person in the world to suffer from water itching.  As a child I would sometimes scratch my legs until they bled after a bath or school swimming lessons.   All my life I have simply presumed it must be various additives...
    lemonlady lemonlady 66-70, F 3 Responses Jul 28, 2010

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    Finally Found The Answer

    For me it started when I was around 11 or 12 (i am now 18) in the beginning I would only itch when i came out from a shower or was in the pool or ocean too long. But after about 2 or 3 years my itching got worse though it is mainly on my legs i would sometimes itch on my arms...
    olig55 olig55 16-17, F 2 Responses May 30, 2010

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    Wow, so you learn something new everyday!

    I just stumbled upon this group and now I'm convinced that this is what's been plaguing me almost my entire life. While my case isn't as severe as most, I still completely understand the annoying itching feeling that occurs just from taking a long shower. I usually just dry off...
    astralucia astralucia 22-25, F Mar 18

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    I Itch Therefore I Am....help

    I just joined this group today and am happy to have found it because my dermatologist tells me she has no idea why I am itching.  I am tired of taking cold showers (even then I itch after) and dreading taking showers at all.  I am just tired of it all. My sisters have...
    Mellymel99 Mellymel99 36-40, F 5 Responses Aug 9, 2010

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    Not Crazy!!

    Literally just found out what this is called today after an extremely bad attack drove me once again to the computer! Needless to say that I shaved this morning... My AP started about 17 years ago after my favorite nail salon began using salt scrub on my lower legs as part of the...
    LizSo LizSo 46-50, F Sep 3, 2013

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    I Couldn't Be Happier That I'm Not The Only One.

    I didn't know this existed until today- right now actually. I have recently been dealing with anxiety issues and was doing some searches about it. I figured I'd search for this skin thing too since I was on a roll. I've done online searches before but couldn't find anything...
    slliwsivart slliwsivart 41-45 Sep 23, 2013

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    Just Self-Diagnosed

    Having had an attack for the first time from air humidity, instead of showering, led me to research a name for this condition. I've researched it before, many times, unsuccessfully, but when I read the description of AP I recognized it as my "condition" instantly. My mother had...
    julietaiber julietaiber 41-45 Sep 20, 2013

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    So I've had this disease

    for a number of years now, with onset in my 40's. I have excellent medical care and am a 5 time cancer survivor. My docs have said it is probably due to all the chemotherapy I've had since AP is an autoimmune disease. Just one of the many injustices of cancer. I've read...
    emannen emannen 46-50, F 1 Response Jun 1

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    I Found Help!!!

    I have suffered on and off for years.  I had this daily when I was pregnant and then it went back to sporadically for 15 years.  This summer, it became a daily event and I really thought I was going to lose my mind!  I noticed that I did not have any trouble while I was on...
    jstealman jstealman 36-40 3 Responses Jan 4, 2011

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    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN 31-35, M Jun 26

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    There's No Escape....Except In Southern Spain?

    I remember the first time I experienced this condition very well. I went for a shower one day at around 11, and was brought to tears by a constant itch that just wouldn't go away mainly on my shins and calves. 10 years later and I still haven't got any further. In fact, it's...
    Mpalmer93 Mpalmer93 18-21, M Nov 9, 2013

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    The Curse

    Hi Everyone I have the same condition and I have spent a lot of money trying to find something to stop it. I went to an immunologist and spent over €1000 on tests and no results in the end he told me I had Aquagentic Pruritus - which is what I told him when I first met him...
    kaylen kaylen 26-30 1 Response Oct 15, 2008

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    New Medical Series Looking For Rare Syndrome Stories

     Do you, or someone you know, suffer from a serious disorder? We are looking for a variety of rare syndromes to be detailed in a series for an Emmy winning major cable network. (see examples below). Cases will be detailed with the utmost sensitivity and professionalism. We...
    frankgarrity frankgarrity 36-40, F 2 Responses Nov 23, 2009

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    Its Going To Be The Death Of Me

      I am a 40 yr old and have been itching for over 20 yrs as soon as i touch water I am going to itch for a half hour to over an hour, I have been on Doxapin and have had light treatment with no prevail. I am so close to jumping in front of a truck I dont know how much...
    patsoxfan00 patsoxfan00 36-40, M 26 Responses Nov 21, 2009

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    This Is Getting Ridiculous

    So, today, as I get out of the shower praying that the filter I just put on my shower head would work, I realize it didn't and I begin my 20-30 minutes of itching.  I HATE taking showers, but know I must.  Today, I was almost crying.  What is this??  So, I get...
    LasVegasSushiLover LasVegasSushiLover 41-45 15 Responses Sep 28, 2008

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    For 26 Years...

    I have had aquagenic pruriitus since I was 18. It has progressively gotten worse over the years. I refuse to take prescription meds for it; I would rather have it than the horrific side effects of trial and error scripts from a doctor. I have increased my iron intake to no avail...
    wifeandmommyv wifeandmommyv 41-45, F 1 Response Nov 11, 2013

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    My Theory Behind Aquagenic Pruritis

    I have suffered from mild aquagenic pruritis since the winter of 2010/11, which was an extremely cold one for us here in the UK. I suffer itching for about half an hour after showering, and also from sweating, mostly in the legs. After recently having an unrelated condition where...
    bleddyn bleddyn 56-60 1 Response Aug 14, 2012

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    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN 31-35, M Jun 26

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    Stop the Itching!

     Hi all,   I want to share my story as it may be of use to those who have suffered from a similar situation. From the age of about 22 I developed an condition whereby I itch intensely after showering or swimming. Basically if my body got wet, whether by lake, shower...
    starrate starrate 31-35 11 Responses Oct 9, 2008

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    When I was about 13 I'd have very slight itching

    when I got out of the shower and my whole family thought it was bizarre and because I didn't clean the shower properly... Which I did. It's gotten gradually worse and 5 years later it's honestly a nightmare. I often fantasize about having no legs, so I can escape the itching. I...
    ChloeMaay96 ChloeMaay96 18-21, F 1 Response 22 hrs ago

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    I have been itching all my life.

    sometimes, hot baths helps a bit. I had to google it to diagnose myself. recently, my scalp too has started itching. don't know whether it is associated though. sadly, considering the healthcare system here, i may never know
    ayeshaaB ayeshaaB 22-25, F Mar 18

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    Its Good To Know Am Not Alone.

    I am now 22 years old and I have had aguagenic pruritus for as long as I can remember.Whenever I tell people about it they either laugh or not take me serious, but now its good to know that I am not alone.I control it by bathing only with hot water and I make sure that i stay...
    tshili tshili 22-25, F 1 Response Oct 25, 2013

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    Identifying Triggers And Soothers

    This is a post to share my personal discoveries in triggers and soothers of AP.  Maybe it can help you. I have had aquagenic pruritus (AP) for over 6 years.  Finding online support was the best thing I could have done, considering even doctors would ignore my pleas for...
    greenas greenas 31-35 1 Response Nov 20, 2010

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    Discovered Aquagenic Pruritus Last Year

    I want to my dr last year with a burning type itching after a shower or sweating. This had been going on god about a year. She told me what it was and just advised me not to take long hot showers. This wasn't much help especially since any time I sweat I would start to itch or I...
    Aneeda Aneeda 56-60, F Oct 28, 2013

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    Is It Possible That I Have Aquagenic Pruritis?

    The reason i ask this question is because I have read most of the stories posted here and they seem far more extreme than anything I've eperienced. Usually what happens is that I start to feel a little tingling as I come out of the shower that progresses into an all over body...
    Natihailu94 Natihailu94 16-17 3 Responses Aug 16, 2011

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    Hurray For Google!!! I Got An Answer!

    After breaking out in itchy hives on my neck and back ONLY after showering (I've changed soaps, shampoos, washcloths, body poufs, etc to no avail) for the past month or so, I decided to Google "water allergies" and BAM - I got a bunch of hits for "...
    dementeddarling dementeddarling 31-35, F 1 Response Jan 1, 2010

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    I have been symptom free

    for 4 months. I have developed a blend of oils. I want to market it eventually so I am looking for a way to get someone to try my method. This post will probably be deleted by some moderator and I will not be able to help anyone here.
    builder0101 builder0101 41-45, M 1 Response Mar 9

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    AP hit me when i was about 7

    or 8 years of age...i would cry and scratch myself til i would bleed and did not know why...As of yesterday I just found out what I had..."Being grown man in tears at work because a shower at lunch was wanted ,is very embarassing".
    TYWUAN TYWUAN 31-35, M Jun 26

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    We Shouldn't Have To Suffer

    they can figure out how to cram 20,000 songs onto a device the size of a pack of gum, but no one can stop the itching! I have had this for 30 years. Mine is very seasonal -- late summer/early fall. I once found a dermatologist who knew EXACTLY what i had. He is very far away...
    lindarosep lindarosep 46-50 1 Response Sep 13, 2010

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    Iron Supplements The Culprit?

    If you take iron supplements, try going off them and see if the pruritus improves. I have had what seemed like aquagenic pruritus for about 12 years and it got worse when my doctor told me to double my iron dose. In fact, after increasing the dose, I started itching even without...
    woodsd woodsd 46-50 1 Response Jun 2, 2012

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    Its Back Again!!!!

    My first incident with this weird and wild condition was when I was in my early to mid 20's. I got out of a friends swimming pool and instantly it hit me. It was the worst itch I have ever had. I stayed out of pools for the rest of my life after that happened. I thought for the...
    rupycriket rupycriket 41-45, M 3 Responses Sep 20, 2013

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    I've have that crap for three years now,

    and to tell you the truth, i hate it!!!. its annoying and irritating. i live in the caribbean so i don't have the best healthcare like you guys do but i do come to the US every year. I went to a dermatologist while in the states and she told me she new nothing about it...
    mrij mrij 22-25, F Dec 27, 2013

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    Update for my aquagenic puritis friends.

    Plug your heating pad in on high before you get into the shower. Take your shower with as hot water as you can stand. Dry your body off all the way. Some people say only pat dry yourself and dont rub your skin. That doesnt work because you want your skin as dry as possible...
    SouthernShores SouthernShores 36-40, F 1 Response Jan 19

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    This Itching Is Driving Me Insane

    Hello, my name is Allan and I found this website today. I have been suffering this severe itching after my body gets wet. It does not matter if its hot,cold, shower, bath or sweat. after I get out of the bath I suffer from this very painful itch and burning sensation all over my...
    allanwalker allanwalker 46-50, M 3 Responses Sep 20, 2013

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    I discovered I had AP in about 2006

    after googling what was wrong with me after I showered. It has been on and off where I am lucky and can have a few short spells with no occurrence, though most of the time it was anywhere from scratching my legs up to pushing my back along the carpet like a dog and yelling. Yeah...
    ketoman ketoman 31-35, M Dec 24, 2013

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    Fascinating Condition.

    Hi everybody. I realize that for most of you people suffering from this terrible condition, describing AP as "fascinating" may sound obscene. I apologize for this. I am a Biologist studying various diseases associated with deregulation of ion channels, a family of proteins in...
    vbmiguel vbmiguel 46-50, M 3 Responses Feb 14, 2010

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