I Have Arachnoiditis

A Arachnoiditis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Arachnoiditis. You're not alone. 32 People

    Just Been Diagnosed With Arachnoiditis

    I have a spinal arachnoid cyst that goes from T2-T8. I also have Spina Bifida and use a wheelchair for mobility. I had surgery to decompress the arachnoid cyst about 1 month ago. Before my surgery I had terrible symptoms like burning pain in my lumber area, pain and pins and...
    Tanson Tanson
    31-35
    2 Responses Feb 8, 2009

    Epidural For Birth/ Epidural Steroid Injections

    Here we go. I am a 33 year old mother of two little girls. I was working full time, going to school full time, and I ALWAYS had the energy to take my daughter to the park and do fun things. In 2008 I went in to have my baby girl. Up until then, I was extremely active. Always...
    DawnMG DawnMG
    31-35, F
    1 Response Aug 27, 2012

    Veteran With Aracnoiditis

    WAS DIAGNOISED WITH ARACNOIDITIS IN 1981 OR SO . BY PRIVATE DR'S IN EUREKA CALIF. I HAD BURNING PAIN IN LOWER BACK , LEGS AND NECK AND HEAD. BUT HOW MINE CAME ON WAS WHEN I WAS IN HOUSTON TEXAS THEY WERE DOING A MYODIL INJECTION WITH OIL base DYE AND I WAS ALERGIC TO IT. SO...
    3 Responses Jan 23, 2013

    My Arach

    I had an epidural in 2006 and the pain from the second I had that epidural was something worse than I had ever experienced before. I was 23 years old when I had my daughter, 24 when diagnosed with Arachnoiditis. This disease is a daily struggle, scary and frustrating at the...
    Crystalsmythie Crystalsmythie
    26-30, F
    2 Responses Aug 28, 2012

    i had a myelogram in november 2014.

    when i came out, i had constant spazzing. my legs constantly spazz. i am wheelchair bound due to complications of spina bifida so this makes my hard life harder. when i stand to transfer, i leak. at night, my legs jerk so much i have to sleep in fetal position for somewhat...
    katiefanatic katiefanatic
    26-30, F
    2 Responses Feb 8, 2015

    Life???

    Hello, my name is Bryan and I am 42 years old. I have DDD and have suffered for almost 20 years with low back pain. In 2011 I had a three layer surgery fusing L3-L4, L4-L5, and L5-S1. Since this time I have been in severe low back pains. It is worse than the pain was before...
    HuskerFans HuskerFans
    46-50, M
    1 Response Apr 23, 2013

    Spinal Injections

    I was recently diagnosed with lumbar AA and also have spinal stenosis.  I've had four spinal surgeries.  Seeing a neurosurgeon and a pain management specialits.  The docs gave me a lumbar steroid injection a week ago and pain is much worse.  Do any of you have experience...
    lomnicks lomnicks
    51-55
    2 Responses Jul 20, 2011

    I Need Help

    My Name is Nadine and I am 55. When I was in the 7th grade I fell off the trampoline in my PhyEd class. I injured my back, however my parents didn't have health insurance so I didn't go to the dr. A few years alter I found out that I had herniated my L4,L5 and had a discectomy in...
    quiltsavvy quiltsavvy
    51-55, F
    Oct 24, 2012

    I Would Not Wish This On Anyone!!!!

    My name is Amy Shirley and I was 30 years old when I was told I had arachnoiditis. I had never heard of this so naturally I started reseaching. I was amazed that there was hardly any information out there about arachnoiditis. My story starts back in 2004 when I had to have L5...
    snappermouse snappermouse
    31-35, F
    Jul 9, 2012

    Suffering In Pain

    Hello everyone my name is Judie Smith back in June of last year I had a spinal tap the results came oout normal but I've been inpain ever since.I had to quit my job of thirtten years,internship ans school.My life did a complete 180.I've been to doctors who think I'm nuts I...
    DolandChristi DolandChristi
    31-35
    4 Responses Mar 23, 2011

    Arachnoiditis My Story

    My name I Tammera Heiberger and I have been diaganost with arachnoiditis since 1999. It was caused by a failed surgery. The doctor that did the surgery is no longer allowed to practice medicine in the US or Mexico and has been featured on 20/20 twice. I have had very little luck...
    Tammerakaye Tammerakaye
    41-45, F
    5 Responses May 23, 2011

    Do I Or Don't I???

    Arachnoiditis"Need Advice... I hurt my back in June of 2000. Had a few steroid injections. shortly after I had a myleogram which gave me the most massive headache I had ever had and it lasted for 24 hours. After that I had a diskogram that was inconclusive. I had my first back...
    mikeymal mikeymal
    46-50
    Nov 1, 2012

    I Struggle With Arachnoiditis But Maybe I Can Encourage Someone and Someone Can Encourage Me.

    I am 20 years old my name is James Schwartz and was very active growing up as a kid playing so many sports. I would love to hang out with my friends every day and I would play sports constantly and when I wasn't playing sports I was watching them. I played baseball, ice hockey...
    moobs moobs
    18-21
    6 Responses Jan 11, 2009
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